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Détail de l'auteur
Auteur Helen MCCONACHIE |
Documents disponibles écrits par cet auteur (36)
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Measuring the relationship between the parental Broader Autism Phenotype, parent–child interaction, and children’s progress following parent mediated intervention / Jeremy R. PARR in Research in Autism Spectrum Disorders, 20 (December 2015)
[article]
Titre : Measuring the relationship between the parental Broader Autism Phenotype, parent–child interaction, and children’s progress following parent mediated intervention Type de document : Texte imprimé et/ou numérique Auteurs : Jeremy R. PARR, Auteur ; Laura GRAY, Auteur ; Sarah WIGHAM, Auteur ; Helen MCCONACHIE, Auteur ; Ann Le COUTEUR, Auteur Article en page(s) : p.24-30 Langues : Anglais (eng) Mots-clés : Broader Autism Phenotype Child progress Parent–child interaction Early intervention Index. décimale : PER Périodiques Résumé : Parents of children with ASD may show ASD type behaviours including particular social communication interaction styles—the Broader Autism Phenotype (BAP). Understanding the potential impact of defined parent characteristics may be relevant when designing and evaluating the efficacy and effectiveness of parent-mediated interventions. In this proof of principle analysis, 18 mothers who had taken part in an early parent-mediated intervention later completed Family History Interviews. Parent data were split into lower and higher BAP groups. There was a significant negative correlation between BAP factor total scores and mother–child interaction total and post-intervention change scores. Change in number of words understood was significantly greater in children of mothers scoring in the lower BAP group compared with children of mothers in the higher BAP group. These preliminary findings provide some support for further investigation of parent BAP status as a potential moderator of the impact of early parent-mediated psychosocial interventions. En ligne : http://dx.doi.org/10.1016/j.rasd.2015.07.006 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=270
in Research in Autism Spectrum Disorders > 20 (December 2015) . - p.24-30[article] Measuring the relationship between the parental Broader Autism Phenotype, parent–child interaction, and children’s progress following parent mediated intervention [Texte imprimé et/ou numérique] / Jeremy R. PARR, Auteur ; Laura GRAY, Auteur ; Sarah WIGHAM, Auteur ; Helen MCCONACHIE, Auteur ; Ann Le COUTEUR, Auteur . - p.24-30.
Langues : Anglais (eng)
in Research in Autism Spectrum Disorders > 20 (December 2015) . - p.24-30
Mots-clés : Broader Autism Phenotype Child progress Parent–child interaction Early intervention Index. décimale : PER Périodiques Résumé : Parents of children with ASD may show ASD type behaviours including particular social communication interaction styles—the Broader Autism Phenotype (BAP). Understanding the potential impact of defined parent characteristics may be relevant when designing and evaluating the efficacy and effectiveness of parent-mediated interventions. In this proof of principle analysis, 18 mothers who had taken part in an early parent-mediated intervention later completed Family History Interviews. Parent data were split into lower and higher BAP groups. There was a significant negative correlation between BAP factor total scores and mother–child interaction total and post-intervention change scores. Change in number of words understood was significantly greater in children of mothers scoring in the lower BAP group compared with children of mothers in the higher BAP group. These preliminary findings provide some support for further investigation of parent BAP status as a potential moderator of the impact of early parent-mediated psychosocial interventions. En ligne : http://dx.doi.org/10.1016/j.rasd.2015.07.006 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=270 Mediation of 6-year mid-childhood follow-up outcomes after pre-school social communication (PACT) therapy for autistic children: randomised controlled trial / Andrew PICKLES ; Tony CHARMAN ; Helen MCCONACHIE ; Ann LE COUTEUR ; Vicky SLONIMS ; Patricia HOWLIN ; Rachel COLLUM ; Erica SALOMONE ; Hannah TOBIN ; Isobel GAMMER ; Jessica MAXWELL ; Catherine ALDRED ; Jeremy PARR ; Kathy LEADBITTER ; Jonathan GREEN in Journal of Child Psychology and Psychiatry, 65-2 (February 2024)
[article]
Titre : Mediation of 6-year mid-childhood follow-up outcomes after pre-school social communication (PACT) therapy for autistic children: randomised controlled trial Type de document : Texte imprimé et/ou numérique Auteurs : Andrew PICKLES, Auteur ; Tony CHARMAN, Auteur ; Helen MCCONACHIE, Auteur ; Ann LE COUTEUR, Auteur ; Vicky SLONIMS, Auteur ; Patricia HOWLIN, Auteur ; Rachel COLLUM, Auteur ; Erica SALOMONE, Auteur ; Hannah TOBIN, Auteur ; Isobel GAMMER, Auteur ; Jessica MAXWELL, Auteur ; Catherine ALDRED, Auteur ; Jeremy PARR, Auteur ; Kathy LEADBITTER, Auteur ; Jonathan GREEN, Auteur Article en page(s) : p.233-244 Index. décimale : PER Périodiques Résumé : Background There are very few mechanistic studies of the long-term impact of psychosocial interventions in childhood. The parent-mediated Paediatric Autism Communication Therapy (PACT) RCT showed sustained effects on autistic child outcomes from pre-school to mid-childhood. We investigated the mechanism by which the PACT intervention achieved these effects. Methods Of 152 children randomised to receive PACT or treatment as usual between 2 and 5?years of age, 121 (79.6%) were followed 5?6?years after the endpoint at a mean age of 10.5?years. Assessors, blind to the intervention group, measured Autism Diagnostic Observation Scale Calibrated Severity Score (ADOS CSS) for child autistic behaviours and Teacher Vineland (TVABS) for adaptive behaviour in school. Hypothesised mediators were child communication initiations with caregivers in a standard play observation (Dyadic Communication Measure for Autism, DCMA). Hypothesised moderators of mediation were baseline child non-verbal age equivalent scores (AE), communication and symbolic development (CSBS) and ?insistence on sameness? (IS). Structural equation modelling was used in a repeated measures mediation design. Results Good model fits were obtained. The treatment effect on child dyadic initiation with the caregiver was sustained through the follow-up period. Increased child initiation at treatment midpoint mediated the majority (73%) of the treatment effect on follow-up ADOS CSS. A combination of partial mediation from midpoint child initiations and the direct effect of treatment also contributed to a near-significant total effect on follow-up TVABS. No moderation of this mediation was found for AE, CSBS or IS. Conclusions Early sustained increase in an autistic child's communication initiation with their caregiver is largely responsible for the long-term effects from PACT therapy on autistic and adaptive behaviour outcomes. This supports the theoretical logic model of PACT therapy but also illuminates fundamental causal processes of social and adaptive development in autism over time: early social engagement in autism can be improved and this can have long-term generalised outcome effects. En ligne : https://doi.org/10.1111/jcpp.13798 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=520
in Journal of Child Psychology and Psychiatry > 65-2 (February 2024) . - p.233-244[article] Mediation of 6-year mid-childhood follow-up outcomes after pre-school social communication (PACT) therapy for autistic children: randomised controlled trial [Texte imprimé et/ou numérique] / Andrew PICKLES, Auteur ; Tony CHARMAN, Auteur ; Helen MCCONACHIE, Auteur ; Ann LE COUTEUR, Auteur ; Vicky SLONIMS, Auteur ; Patricia HOWLIN, Auteur ; Rachel COLLUM, Auteur ; Erica SALOMONE, Auteur ; Hannah TOBIN, Auteur ; Isobel GAMMER, Auteur ; Jessica MAXWELL, Auteur ; Catherine ALDRED, Auteur ; Jeremy PARR, Auteur ; Kathy LEADBITTER, Auteur ; Jonathan GREEN, Auteur . - p.233-244.
in Journal of Child Psychology and Psychiatry > 65-2 (February 2024) . - p.233-244
Index. décimale : PER Périodiques Résumé : Background There are very few mechanistic studies of the long-term impact of psychosocial interventions in childhood. The parent-mediated Paediatric Autism Communication Therapy (PACT) RCT showed sustained effects on autistic child outcomes from pre-school to mid-childhood. We investigated the mechanism by which the PACT intervention achieved these effects. Methods Of 152 children randomised to receive PACT or treatment as usual between 2 and 5?years of age, 121 (79.6%) were followed 5?6?years after the endpoint at a mean age of 10.5?years. Assessors, blind to the intervention group, measured Autism Diagnostic Observation Scale Calibrated Severity Score (ADOS CSS) for child autistic behaviours and Teacher Vineland (TVABS) for adaptive behaviour in school. Hypothesised mediators were child communication initiations with caregivers in a standard play observation (Dyadic Communication Measure for Autism, DCMA). Hypothesised moderators of mediation were baseline child non-verbal age equivalent scores (AE), communication and symbolic development (CSBS) and ?insistence on sameness? (IS). Structural equation modelling was used in a repeated measures mediation design. Results Good model fits were obtained. The treatment effect on child dyadic initiation with the caregiver was sustained through the follow-up period. Increased child initiation at treatment midpoint mediated the majority (73%) of the treatment effect on follow-up ADOS CSS. A combination of partial mediation from midpoint child initiations and the direct effect of treatment also contributed to a near-significant total effect on follow-up TVABS. No moderation of this mediation was found for AE, CSBS or IS. Conclusions Early sustained increase in an autistic child's communication initiation with their caregiver is largely responsible for the long-term effects from PACT therapy on autistic and adaptive behaviour outcomes. This supports the theoretical logic model of PACT therapy but also illuminates fundamental causal processes of social and adaptive development in autism over time: early social engagement in autism can be improved and this can have long-term generalised outcome effects. En ligne : https://doi.org/10.1111/jcpp.13798 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=520 New Interview and Observation Measures of the Broader Autism Phenotype: Description of Strategy and Reliability Findings for the Interview Measures / Jeremy R. PARR in Autism Research, 8-5 (October 2015)
[article]
Titre : New Interview and Observation Measures of the Broader Autism Phenotype: Description of Strategy and Reliability Findings for the Interview Measures Type de document : Texte imprimé et/ou numérique Auteurs : Jeremy R. PARR, Auteur ; Maretha V. DE JONGE, Auteur ; Simon WALLACE, Auteur ; Andrew PICKLES, Auteur ; Michael L. RUTTER, Auteur ; Ann S. LE COUTEUR, Auteur ; Herman VAN ENGELAND, Auteur ; Kerstin WITTEMEYER, Auteur ; Helen MCCONACHIE, Auteur ; Bernadette ROGE, Auteur ; Carine MANTOULAN, Auteur ; Lennart PEDERSEN, Auteur ; Torben ISAGER, Auteur ; Fritz POUSTKA, Auteur ; Sven BÖLTE, Auteur ; Patrick BOLTON, Auteur ; Emma WEISBLATT, Auteur ; Jonathan GREEN, Auteur ; Katerina PAPANIKOLAOU, Auteur ; Gillian BAIRD, Auteur ; Anthony J. BAILEY, Auteur Article en page(s) : p.522-533 Langues : Anglais (eng) Mots-clés : broader autism phenotype informant interview self-report interview interrater reliability retest reliability Index. décimale : PER Périodiques Résumé : Clinical genetic studies confirm the broader autism phenotype (BAP) in some relatives of individuals with autism, but there are few standardized assessment measures. We developed three BAP measures (informant interview, self-report interview, and impression of interviewee observational scale) and describe the development strategy and findings from the interviews. International Molecular Genetic Study of Autism Consortium data were collected from families containing at least two individuals with autism. Comparison of the informant and self-report interviews was restricted to samples in which the interviews were undertaken by different researchers from that site (251 UK informants, 119 from the Netherlands). Researchers produced vignettes that were rated blind by others. Retest reliability was assessed in 45 participants. Agreement between live scoring and vignette ratings was very high. Retest stability for the interviews was high. Factor analysis indicated a first factor comprising social-communication items and rigidity (but not other repetitive domain items), and a second factor comprised mainly of reading and spelling impairments. Whole scale Cronbach's alphas were high for both interviews. The correlation between interviews for factor 1 was moderate (adult items 0.50; childhood items 0.43); Kappa values for between-interview agreement on individual items were mainly low. The correlations between individual items and total score were moderate. The inclusion of several factor 2 items lowered the overall Cronbach's alpha for the total set. Both interview measures showed good reliability and substantial stability over time, but the findings were better for factor 1 than factor 2. We recommend factor 1 scores be used for characterising the BAP. Autism Res 2015, 8: 522–533. © 2015 International Society for Autism Research, Wiley Periodicals, Inc. En ligne : http://dx.doi.org/10.1002/aur.1466 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=270
in Autism Research > 8-5 (October 2015) . - p.522-533[article] New Interview and Observation Measures of the Broader Autism Phenotype: Description of Strategy and Reliability Findings for the Interview Measures [Texte imprimé et/ou numérique] / Jeremy R. PARR, Auteur ; Maretha V. DE JONGE, Auteur ; Simon WALLACE, Auteur ; Andrew PICKLES, Auteur ; Michael L. RUTTER, Auteur ; Ann S. LE COUTEUR, Auteur ; Herman VAN ENGELAND, Auteur ; Kerstin WITTEMEYER, Auteur ; Helen MCCONACHIE, Auteur ; Bernadette ROGE, Auteur ; Carine MANTOULAN, Auteur ; Lennart PEDERSEN, Auteur ; Torben ISAGER, Auteur ; Fritz POUSTKA, Auteur ; Sven BÖLTE, Auteur ; Patrick BOLTON, Auteur ; Emma WEISBLATT, Auteur ; Jonathan GREEN, Auteur ; Katerina PAPANIKOLAOU, Auteur ; Gillian BAIRD, Auteur ; Anthony J. BAILEY, Auteur . - p.522-533.
Langues : Anglais (eng)
in Autism Research > 8-5 (October 2015) . - p.522-533
Mots-clés : broader autism phenotype informant interview self-report interview interrater reliability retest reliability Index. décimale : PER Périodiques Résumé : Clinical genetic studies confirm the broader autism phenotype (BAP) in some relatives of individuals with autism, but there are few standardized assessment measures. We developed three BAP measures (informant interview, self-report interview, and impression of interviewee observational scale) and describe the development strategy and findings from the interviews. International Molecular Genetic Study of Autism Consortium data were collected from families containing at least two individuals with autism. Comparison of the informant and self-report interviews was restricted to samples in which the interviews were undertaken by different researchers from that site (251 UK informants, 119 from the Netherlands). Researchers produced vignettes that were rated blind by others. Retest reliability was assessed in 45 participants. Agreement between live scoring and vignette ratings was very high. Retest stability for the interviews was high. Factor analysis indicated a first factor comprising social-communication items and rigidity (but not other repetitive domain items), and a second factor comprised mainly of reading and spelling impairments. Whole scale Cronbach's alphas were high for both interviews. The correlation between interviews for factor 1 was moderate (adult items 0.50; childhood items 0.43); Kappa values for between-interview agreement on individual items were mainly low. The correlations between individual items and total score were moderate. The inclusion of several factor 2 items lowered the overall Cronbach's alpha for the total set. Both interview measures showed good reliability and substantial stability over time, but the findings were better for factor 1 than factor 2. We recommend factor 1 scores be used for characterising the BAP. Autism Res 2015, 8: 522–533. © 2015 International Society for Autism Research, Wiley Periodicals, Inc. En ligne : http://dx.doi.org/10.1002/aur.1466 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=270 One-year Change in Repetitive Behaviours in Young Children with Communication Disorders Including Autism / Emma HONEY in Journal of Autism and Developmental Disorders, 38-8 (September 2008)
[article]
Titre : One-year Change in Repetitive Behaviours in Young Children with Communication Disorders Including Autism Type de document : Texte imprimé et/ou numérique Auteurs : Emma HONEY, Auteur ; Helen MCCONACHIE, Auteur ; Ann LE COUTEUR, Auteur ; Val RANDLE, Auteur ; Heather SHEARER, Auteur Année de publication : 2008 Article en page(s) : p.1439-1450 Langues : Anglais (eng) Mots-clés : Longitudinal Repetitive-behaviour Autism-spectrum-disorder Ability Early-identification ADI-R Index. décimale : PER Périodiques Résumé : Repetitive behaviours are a relatively neglected area of study in autism. Previous research has concluded that repetitive behaviour is inversely related to ability and that it tends to increase over the preschool years. One-hundred and four children ages 24–48 months, with autism, autism spectrum disorder (ASD) or other disorders, were followed for 13 months. Twelve items from the Autism Diagnostic Interview (ADI-R) were analysed, as well as diagnostic algorithm scores. Ability was related to degree of repetitive behaviours, except for one cluster of relatively able children. ADI-R repetitive behaviour algorithm scores increased over time; however, when all 12 behaviours were considered, there was a general decrease in impact upon the child’s and family’s activities. Reasons for this decrease are discussed. En ligne : http://dx.doi.org/10.1007/s10803-006-0191-1 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=538
in Journal of Autism and Developmental Disorders > 38-8 (September 2008) . - p.1439-1450[article] One-year Change in Repetitive Behaviours in Young Children with Communication Disorders Including Autism [Texte imprimé et/ou numérique] / Emma HONEY, Auteur ; Helen MCCONACHIE, Auteur ; Ann LE COUTEUR, Auteur ; Val RANDLE, Auteur ; Heather SHEARER, Auteur . - 2008 . - p.1439-1450.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 38-8 (September 2008) . - p.1439-1450
Mots-clés : Longitudinal Repetitive-behaviour Autism-spectrum-disorder Ability Early-identification ADI-R Index. décimale : PER Périodiques Résumé : Repetitive behaviours are a relatively neglected area of study in autism. Previous research has concluded that repetitive behaviour is inversely related to ability and that it tends to increase over the preschool years. One-hundred and four children ages 24–48 months, with autism, autism spectrum disorder (ASD) or other disorders, were followed for 13 months. Twelve items from the Autism Diagnostic Interview (ADI-R) were analysed, as well as diagnostic algorithm scores. Ability was related to degree of repetitive behaviours, except for one cluster of relatively able children. ADI-R repetitive behaviour algorithm scores increased over time; however, when all 12 behaviours were considered, there was a general decrease in impact upon the child’s and family’s activities. Reasons for this decrease are discussed. En ligne : http://dx.doi.org/10.1007/s10803-006-0191-1 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=538 Parents’ and Child Health Professionals’ Attitudes Towards Dietary Interventions for Children with Autism Spectrum Disorders / Elizabeth WINBURN in Journal of Autism and Developmental Disorders, 44-4 (April 2014)
[article]
Titre : Parents’ and Child Health Professionals’ Attitudes Towards Dietary Interventions for Children with Autism Spectrum Disorders Type de document : Texte imprimé et/ou numérique Auteurs : Elizabeth WINBURN, Auteur ; Jenna CHARLTON, Auteur ; Helen MCCONACHIE, Auteur ; Elaine MCCOLL, Auteur ; Jeremy R. PARR, Auteur ; Anne O’HARE, Auteur ; Gillian BAIRD, Auteur ; Paul GRINGRAS, Auteur ; David C. WILSON, Auteur ; Ashley ADAMSON, Auteur ; Sandra ADAMS, Auteur ; Ann COUTEUR, Auteur Année de publication : 2014 Article en page(s) : p.747-757 Langues : Anglais (eng) Mots-clés : Autism ASD Dietary interventions Gluten Casein Index. décimale : PER Périodiques Résumé : Parents of children with autism spectrum disorders (ASD) use a wide range of interventions including poorly evidenced dietary interventions. To investigate parents’ and professionals’ experience of dietary interventions and attitudes towards a proposed trial to evaluate the gluten free casein free diet (GFCFD). Survey of UK parents of children with ASD, and professionals. 258 parents and 244 professionals participated. 83 % of children had received a range of dietary manipulations; three quarters of professionals have been asked for advice about GFCFD. Respondents identified an inadequate evidence base for dietary interventions in ASD and suggested modifications to a proposed trial design. Both parents and professionals supported the need for further evaluation of dietary interventions in ASD. En ligne : http://dx.doi.org/10.1007/s10803-013-1922-8 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=228
in Journal of Autism and Developmental Disorders > 44-4 (April 2014) . - p.747-757[article] Parents’ and Child Health Professionals’ Attitudes Towards Dietary Interventions for Children with Autism Spectrum Disorders [Texte imprimé et/ou numérique] / Elizabeth WINBURN, Auteur ; Jenna CHARLTON, Auteur ; Helen MCCONACHIE, Auteur ; Elaine MCCOLL, Auteur ; Jeremy R. PARR, Auteur ; Anne O’HARE, Auteur ; Gillian BAIRD, Auteur ; Paul GRINGRAS, Auteur ; David C. WILSON, Auteur ; Ashley ADAMSON, Auteur ; Sandra ADAMS, Auteur ; Ann COUTEUR, Auteur . - 2014 . - p.747-757.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 44-4 (April 2014) . - p.747-757
Mots-clés : Autism ASD Dietary interventions Gluten Casein Index. décimale : PER Périodiques Résumé : Parents of children with autism spectrum disorders (ASD) use a wide range of interventions including poorly evidenced dietary interventions. To investigate parents’ and professionals’ experience of dietary interventions and attitudes towards a proposed trial to evaluate the gluten free casein free diet (GFCFD). Survey of UK parents of children with ASD, and professionals. 258 parents and 244 professionals participated. 83 % of children had received a range of dietary manipulations; three quarters of professionals have been asked for advice about GFCFD. Respondents identified an inadequate evidence base for dietary interventions in ASD and suggested modifications to a proposed trial design. Both parents and professionals supported the need for further evaluation of dietary interventions in ASD. En ligne : http://dx.doi.org/10.1007/s10803-013-1922-8 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=228 Pilot Randomized Controlled Trial of the WHO Caregiver Skills Training in Public Health Services in Italy / Erica SALOMONE in Journal of Autism and Developmental Disorders, 52-10 (October 2022)
PermalinkPredictors of reliable symptom change: Secondary analysis of the Preschool Autism Communication Trial / Kristelle HUDRY in Autism & Developmental Language Impairments, 3 (January-December 2018)
PermalinkProblems of Children with Hemiplegia in Mainstream Primary Schools / Carole YUDE in Journal of Child Psychology and Psychiatry, 39-4 (May 1998)
PermalinkRelations among restricted and repetitive behaviors, anxiety and sensory features in children with autism spectrum disorders / Jane S. M. LIDSTONE in Research in Autism Spectrum Disorders, 8-2 (February 2014)
PermalinkRelations between specific and global outcome measures in a social-communication intervention for children with autism spectrum disorder / Anders NORDAHL-HANSEN in Research in Autism Spectrum Disorders, 29-30 (September–October 2016)
PermalinkRepetitive Behaviour and Play in Typically Developing Children and Children with Autism Spectrum Disorders / Emma HONEY in Journal of Autism and Developmental Disorders, 37-6 (July 2007)
PermalinkRepetitive behaviours in typically developing 2-year-olds / Susan R. LEEKAM in Journal of Child Psychology and Psychiatry, 48-11 (November 2007)
PermalinkRestricted and Repetitive Behaviors in Autism Spectrum Disorders and Typical Development: Cross-Sectional and Longitudinal Comparisons / Clare HARROP in Journal of Autism and Developmental Disorders, 44-5 (May 2014)
PermalinkRestricted and Repetitive Behaviours, Sensory Processing and Cognitive Style in Children with Autism Spectrum Disorders / Yu-Han CHEN in Journal of Autism and Developmental Disorders, 39-4 (April 2009)
PermalinkThe Hospital Anxiety and Depression scale: Factor structure and psychometric properties in older adolescents and young adults with autism spectrum disorder / Mirko ULJAREVIC in Autism Research, 11-2 (February 2018)
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