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Détail de l'auteur
Auteur Ilina SINGH |
Documents disponibles écrits par cet auteur (3)
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[article]
Titre : Autism research beyond the bench Type de document : Texte imprimé et/ou numérique Auteurs : Ilina SINGH, Auteur ; Mayada ELSABBAGH, Auteur Article en page(s) : p.754-755 Langues : Anglais (eng) Index. décimale : PER Périodiques En ligne : http://dx.doi.org/10.1177/1362361314548816 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=241
in Autism > 18-7 (October 2014) . - p.754-755[article] Autism research beyond the bench [Texte imprimé et/ou numérique] / Ilina SINGH, Auteur ; Mayada ELSABBAGH, Auteur . - p.754-755.
Langues : Anglais (eng)
in Autism > 18-7 (October 2014) . - p.754-755
Index. décimale : PER Périodiques En ligne : http://dx.doi.org/10.1177/1362361314548816 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=241 Autism voices: Perspectives of the needs, challenges, and hopes for the future of autistic youth / Rackeb TESFAYE in Autism, 27-4 (May 2023)
[article]
Titre : Autism voices: Perspectives of the needs, challenges, and hopes for the future of autistic youth Type de document : Texte imprimé et/ou numérique Auteurs : Rackeb TESFAYE, Auteur ; Valérie COURCHESNE, Auteur ; Pat MIRENDA, Auteur ; Wendy MITCHELL, Auteur ; David NICHOLAS, Auteur ; Ilina SINGH, Auteur ; Lonnie ZWAIGENBAUM, Auteur ; Mayada ELSABBAGH, Auteur Article en page(s) : p.1142-1156 Langues : Anglais (eng) Mots-clés : adolescence,first-person perspective,inclusive methods,qualitative research,strength-based Index. décimale : PER Périodiques Résumé : The Autism Voices study draws on novel inclusive methods to obtain the first-person experiences of autistic youth with a range of cognitive and verbal abilities. Thirty-one autistic youth were interviewed with a strength-based protocol, enabling them to provide responses in the modality of their choice. Dynamics between youth and their environments such as home, school, and community were explored. Youth were questioned about their interests, plans for the future, experiences with various emotions, and experience of autism. Based on a thematic analysis, six themes emerged: (1) autistic identities, (2) thinking about the future, (3) seeking social connection on their own terms, (4) seeking autonomy, (5) school as both a stressor and social facilitator, and (6) experiences of stress and anxiety. The experiences described by autistic youth parallel many of the aspirations and challenges of typically developing adolescents, while being uniquely shaped by their autism. We discuss how these insights shared by autistic youth can facilitate active involvement in their communities, promote well-being, and promote optimal transition into adulthood. Autism Voices demonstrates that partnering with multiple stakeholders and the use of inclusive methodologies are pivotal steps toward capturing the voices of all autistic youth.Lay abstractCurrently, our understanding of the adolescent period for autistic youth has relied on the expertise of researchers, clinicians, parents, and teachers, yet rarely involves their unique first-person experiences. Our study attempted to understand the experiences and perspectives of autistic adolescents in their home, school, and community environments using the Autism Voices protocol, a semi-structured interview specifically designed and tailored to engage with autistic youth with various language and intellectual levels. The analysis of the 31 interviews conducted with autistic adolescents aged 11-18?years highlighted six themes: (1) autistic identities, (2) thinking about the future, (3) seeking social connection on their own terms, (4) seeking autonomy, (5) school as both a stressor and social facilitator, and (6) experiences of stress and anxiety. These results highlight similarities and differences in the adolescent experiences of autistic youth compared to their typically developing peers. Our findings suggest that by removing assumptions about the experiences of autistic individuals and investing in inclusive interview methods, we can faithfully capture the experiences of autistic youth regardless of their communication and cognitive abilities. Being able to capture and amplify these diverse voices will facilitate the active involvement of autistic communities in research and clinical and policy decisions that impact them. En ligne : https://doi.org/10.1177/13623613221132108 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=499
in Autism > 27-4 (May 2023) . - p.1142-1156[article] Autism voices: Perspectives of the needs, challenges, and hopes for the future of autistic youth [Texte imprimé et/ou numérique] / Rackeb TESFAYE, Auteur ; Valérie COURCHESNE, Auteur ; Pat MIRENDA, Auteur ; Wendy MITCHELL, Auteur ; David NICHOLAS, Auteur ; Ilina SINGH, Auteur ; Lonnie ZWAIGENBAUM, Auteur ; Mayada ELSABBAGH, Auteur . - p.1142-1156.
Langues : Anglais (eng)
in Autism > 27-4 (May 2023) . - p.1142-1156
Mots-clés : adolescence,first-person perspective,inclusive methods,qualitative research,strength-based Index. décimale : PER Périodiques Résumé : The Autism Voices study draws on novel inclusive methods to obtain the first-person experiences of autistic youth with a range of cognitive and verbal abilities. Thirty-one autistic youth were interviewed with a strength-based protocol, enabling them to provide responses in the modality of their choice. Dynamics between youth and their environments such as home, school, and community were explored. Youth were questioned about their interests, plans for the future, experiences with various emotions, and experience of autism. Based on a thematic analysis, six themes emerged: (1) autistic identities, (2) thinking about the future, (3) seeking social connection on their own terms, (4) seeking autonomy, (5) school as both a stressor and social facilitator, and (6) experiences of stress and anxiety. The experiences described by autistic youth parallel many of the aspirations and challenges of typically developing adolescents, while being uniquely shaped by their autism. We discuss how these insights shared by autistic youth can facilitate active involvement in their communities, promote well-being, and promote optimal transition into adulthood. Autism Voices demonstrates that partnering with multiple stakeholders and the use of inclusive methodologies are pivotal steps toward capturing the voices of all autistic youth.Lay abstractCurrently, our understanding of the adolescent period for autistic youth has relied on the expertise of researchers, clinicians, parents, and teachers, yet rarely involves their unique first-person experiences. Our study attempted to understand the experiences and perspectives of autistic adolescents in their home, school, and community environments using the Autism Voices protocol, a semi-structured interview specifically designed and tailored to engage with autistic youth with various language and intellectual levels. The analysis of the 31 interviews conducted with autistic adolescents aged 11-18?years highlighted six themes: (1) autistic identities, (2) thinking about the future, (3) seeking social connection on their own terms, (4) seeking autonomy, (5) school as both a stressor and social facilitator, and (6) experiences of stress and anxiety. These results highlight similarities and differences in the adolescent experiences of autistic youth compared to their typically developing peers. Our findings suggest that by removing assumptions about the experiences of autistic individuals and investing in inclusive interview methods, we can faithfully capture the experiences of autistic youth regardless of their communication and cognitive abilities. Being able to capture and amplify these diverse voices will facilitate the active involvement of autistic communities in research and clinical and policy decisions that impact them. En ligne : https://doi.org/10.1177/13623613221132108 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=499 Commentary: What makes a life go well? Moral functioning and quality of life measurement in neurodevelopmental disorders – reflections on Jonsson et al. (2017) / Ilina SINGH in Journal of Child Psychology and Psychiatry, 58-4 (April 2017)
[article]
Titre : Commentary: What makes a life go well? Moral functioning and quality of life measurement in neurodevelopmental disorders – reflections on Jonsson et al. (2017) Type de document : Texte imprimé et/ou numérique Auteurs : Ilina SINGH, Auteur Article en page(s) : p.470-473 Langues : Anglais (eng) Index. décimale : PER Périodiques Résumé : Jonsson et al.'s excellent review of the literature on quality of life (QoL) and childhood mental and behavioural disorders (Jonsson et al., ) highlights the need for studies that utilise child self-reported QoL, in contrast to parent or proxy QoL measures, and further challenges the field to develop QoL measures that ‘put the child's own views and priorities first’. En ligne : http://dx.doi.org/10.1111/jcpp.12716 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=305
in Journal of Child Psychology and Psychiatry > 58-4 (April 2017) . - p.470-473[article] Commentary: What makes a life go well? Moral functioning and quality of life measurement in neurodevelopmental disorders – reflections on Jonsson et al. (2017) [Texte imprimé et/ou numérique] / Ilina SINGH, Auteur . - p.470-473.
Langues : Anglais (eng)
in Journal of Child Psychology and Psychiatry > 58-4 (April 2017) . - p.470-473
Index. décimale : PER Périodiques Résumé : Jonsson et al.'s excellent review of the literature on quality of life (QoL) and childhood mental and behavioural disorders (Jonsson et al., ) highlights the need for studies that utilise child self-reported QoL, in contrast to parent or proxy QoL measures, and further challenges the field to develop QoL measures that ‘put the child's own views and priorities first’. En ligne : http://dx.doi.org/10.1111/jcpp.12716 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=305