Centre d'Information et de documentation du CRA Rhône-Alpes
CRA
Informations pratiques
-
Adresse
Centre d'information et de documentation
du CRA Rhône-Alpes
Centre Hospitalier le Vinatier
bât 211
95, Bd Pinel
69678 Bron CedexHoraires
Lundi au Vendredi
9h00-12h00 13h30-16h00Contact
Tél: +33(0)4 37 91 54 65
Mail
Fax: +33(0)4 37 91 54 37
-
Détail de l'auteur
Auteur Lauren FRANZ |
Documents disponibles écrits par cet auteur (11)
Faire une suggestion Affiner la recherche
Associations between executive function and attention abilities and language and social communication skills in young autistic children / Jill HOWARD in Autism, 27-7 (October 2023)
[article]
Titre : Associations between executive function and attention abilities and language and social communication skills in young autistic children Type de document : Texte imprimé et/ou numérique Auteurs : Jill HOWARD, Auteur ; Brianna HEROLD, Auteur ; Samantha MAJOR, Auteur ; Caroline LEAHY, Auteur ; Kevin RAMSEUR, Auteur ; Lauren FRANZ, Auteur ; Megan DEAVER, Auteur ; Saritha VERMEER, Auteur ; Kimberly LH CARPENTER, Auteur ; Michael MURIAS, Auteur ; Wei Angel HUANG, Auteur ; Geraldine DAWSON, Auteur Article en page(s) : p.2135-2144 Langues : Anglais (eng) Mots-clés : attention autism spectrum disorder executive function eye-tracking social communication Index. décimale : PER Périodiques Résumé : Although it has been found that autistic children exhibit delays in executive function abilities and atypical patterns of attention, less is known about the relationship between executive function and attention abilities and social and language skills in early childhood. In this study, 180 autistic children, age 2-8?years, participated in a study examining the relationship between executive function abilities, measured by the Behavior Rating Inventory of Executive Function, and assessments of sustained attention measured via eye-tracking and several language and social communication measures. Results revealed that children with higher caregiver-reported executive function skills, specifically, working memory and planning/organization abilities, demonstrated higher levels of caregiver-reported receptive-expressive social communication abilities measured via the Pervasive Developmental Disorder Behavior Inventory. Higher executive function abilities across all domains were associated with lower levels of social pragmatic problems. Children who were able to sustain their attention for a longer duration demonstrated higher expressive language abilities. These results suggest that executive function and attention skills may play an important role in multiple domains of functioning in autistic children. It will be useful to determine whether therapies that seek to improve executive function skills in autistic individuals also positively influence their social/communication and language abilities.Lay AbstractExecutive functioning describes a set of cognitive processes that affect thinking and behavior. Past research has shown that autistic individuals often have delays in the acquisition of executive function abilities. Our study explored how differences in executive function and attention abilities relate to social abilities and communication/language in 180 young autistic children. Data were gathered via caregiver report (questionnaires/interviews) and an assessment of vocabulary skills. The ability to sustain attention to a dynamic video was measured via eye tracking. We found that children with higher levels of executive function skills demonstrated lower levels of social pragmatic problems, a measure of having difficulties in social contexts. Furthermore, children who were able to sustain their attention longer to the video displayed higher levels of expressive language. Our results emphasize the importance of executive function and attention skills across multiple areas of functioning in autistic children, in particular those that involve language and social communication. En ligne : http://dx.doi.org/10.1177/13623613231154310 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=510
in Autism > 27-7 (October 2023) . - p.2135-2144[article] Associations between executive function and attention abilities and language and social communication skills in young autistic children [Texte imprimé et/ou numérique] / Jill HOWARD, Auteur ; Brianna HEROLD, Auteur ; Samantha MAJOR, Auteur ; Caroline LEAHY, Auteur ; Kevin RAMSEUR, Auteur ; Lauren FRANZ, Auteur ; Megan DEAVER, Auteur ; Saritha VERMEER, Auteur ; Kimberly LH CARPENTER, Auteur ; Michael MURIAS, Auteur ; Wei Angel HUANG, Auteur ; Geraldine DAWSON, Auteur . - p.2135-2144.
Langues : Anglais (eng)
in Autism > 27-7 (October 2023) . - p.2135-2144
Mots-clés : attention autism spectrum disorder executive function eye-tracking social communication Index. décimale : PER Périodiques Résumé : Although it has been found that autistic children exhibit delays in executive function abilities and atypical patterns of attention, less is known about the relationship between executive function and attention abilities and social and language skills in early childhood. In this study, 180 autistic children, age 2-8?years, participated in a study examining the relationship between executive function abilities, measured by the Behavior Rating Inventory of Executive Function, and assessments of sustained attention measured via eye-tracking and several language and social communication measures. Results revealed that children with higher caregiver-reported executive function skills, specifically, working memory and planning/organization abilities, demonstrated higher levels of caregiver-reported receptive-expressive social communication abilities measured via the Pervasive Developmental Disorder Behavior Inventory. Higher executive function abilities across all domains were associated with lower levels of social pragmatic problems. Children who were able to sustain their attention for a longer duration demonstrated higher expressive language abilities. These results suggest that executive function and attention skills may play an important role in multiple domains of functioning in autistic children. It will be useful to determine whether therapies that seek to improve executive function skills in autistic individuals also positively influence their social/communication and language abilities.Lay AbstractExecutive functioning describes a set of cognitive processes that affect thinking and behavior. Past research has shown that autistic individuals often have delays in the acquisition of executive function abilities. Our study explored how differences in executive function and attention abilities relate to social abilities and communication/language in 180 young autistic children. Data were gathered via caregiver report (questionnaires/interviews) and an assessment of vocabulary skills. The ability to sustain attention to a dynamic video was measured via eye tracking. We found that children with higher levels of executive function skills demonstrated lower levels of social pragmatic problems, a measure of having difficulties in social contexts. Furthermore, children who were able to sustain their attention longer to the video displayed higher levels of expressive language. Our results emphasize the importance of executive function and attention skills across multiple areas of functioning in autistic children, in particular those that involve language and social communication. En ligne : http://dx.doi.org/10.1177/13623613231154310 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=510 Autism spectrum disorder in sub-saharan africa: A comprehensive scoping review / Lauren FRANZ in Autism Research, 10-5 (May 2017)
[article]
Titre : Autism spectrum disorder in sub-saharan africa: A comprehensive scoping review Type de document : Texte imprimé et/ou numérique Auteurs : Lauren FRANZ, Auteur ; Nola J. CHAMBERS, Auteur ; Megan VON ISENBURG, Auteur ; Petrus J. DE VRIES, Auteur Article en page(s) : p.723-749 Langues : Anglais (eng) Mots-clés : autism autism spectrum disorder low- and middle-income countries LMIC low resource environments Africa Index. décimale : PER Périodiques Résumé : Autism spectrum disorder (ASD) is recognized as a global public health concern, yet almost everything we know about ASD comes from high-income countries. Here we performed a scoping review of all research on ASD ever published in sub-Saharan Africa (SSA) in order to identify ASD knowledge gaps in this part of the world. Fifty-three publications met inclusion criteria. Themes included the phenotype, genetics and risk factors for ASD in SSA, screening and diagnosis, professional knowledge, interventions for ASD, parental perceptions, and social-cognitive neuroscience. No epidemiological, early intervention, school-based or adult studies were identified. For each identified theme, we aimed to summarize results and make recommendations to fill the knowledge gaps. The quality of study methodologies was generally not high. Few studies used standardized diagnostic instruments, and intervention studies were typically small-scale. Overall, findings suggest a substantial need for large-scale clinical, training, and research programmes to improve the lives of people who live with ASD in SSA. However, SSA also has the potential to make unique and globally-significant contributions to the etiology and treatments of ASD through implementation, interventional, and comparative genomic science. En ligne : http://dx.doi.org/10.1002/aur.1766 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=307
in Autism Research > 10-5 (May 2017) . - p.723-749[article] Autism spectrum disorder in sub-saharan africa: A comprehensive scoping review [Texte imprimé et/ou numérique] / Lauren FRANZ, Auteur ; Nola J. CHAMBERS, Auteur ; Megan VON ISENBURG, Auteur ; Petrus J. DE VRIES, Auteur . - p.723-749.
Langues : Anglais (eng)
in Autism Research > 10-5 (May 2017) . - p.723-749
Mots-clés : autism autism spectrum disorder low- and middle-income countries LMIC low resource environments Africa Index. décimale : PER Périodiques Résumé : Autism spectrum disorder (ASD) is recognized as a global public health concern, yet almost everything we know about ASD comes from high-income countries. Here we performed a scoping review of all research on ASD ever published in sub-Saharan Africa (SSA) in order to identify ASD knowledge gaps in this part of the world. Fifty-three publications met inclusion criteria. Themes included the phenotype, genetics and risk factors for ASD in SSA, screening and diagnosis, professional knowledge, interventions for ASD, parental perceptions, and social-cognitive neuroscience. No epidemiological, early intervention, school-based or adult studies were identified. For each identified theme, we aimed to summarize results and make recommendations to fill the knowledge gaps. The quality of study methodologies was generally not high. Few studies used standardized diagnostic instruments, and intervention studies were typically small-scale. Overall, findings suggest a substantial need for large-scale clinical, training, and research programmes to improve the lives of people who live with ASD in SSA. However, SSA also has the potential to make unique and globally-significant contributions to the etiology and treatments of ASD through implementation, interventional, and comparative genomic science. En ligne : http://dx.doi.org/10.1002/aur.1766 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=307 Automated movement tracking of young autistic children during free play is correlated with clinical features associated with autism / Andrew YUAN in Autism, 27-8 (November 2023)
[article]
Titre : Automated movement tracking of young autistic children during free play is correlated with clinical features associated with autism Type de document : Texte imprimé et/ou numérique Auteurs : Andrew YUAN, Auteur ; Maura SABATOS-DEVITO, Auteur ; Alexandra L BEY, Auteur ; Samantha MAJOR, Auteur ; Kimberly LH CARPENTER, Auteur ; Lauren FRANZ, Auteur ; Jill HOWARD, Auteur ; Saritha VERMEER, Auteur ; Ryan SIMMONS, Auteur ; Jesse TROY, Auteur ; Geraldine DAWSON, Auteur Article en page(s) : p.2530-2541 Mots-clés : autism caregiver-child free play movement video tracking Index. décimale : PER Périodiques Résumé : Autistic children?s play provides insights into social, communication, and other skills; however, methods for measuring these observations can be labor-intensive and rely on subjective judgment. This study explored whether children?s movement and location during play measured via automated video tracking correlates with clinical features. Movement tracking metrics of 164 autistic children (27-96?months old) during free play were analyzed in relation to standard assessments of cognitive, language, social-communication, and adaptive skills. Children with higher cognitive and language abilities were more likely to spend time in the center toy region and more slowly or never approached the region without toys. Children with higher autism-related features spent less time in the center. Children with lower daily living skills spent more time near the caregiver and those with lower overall adaptive and language skills approached the caregiver more quickly. Over 90% of autistic children representing a range of ages and skills provided analyzable movement data during play and those with higher cognitive, language, and adaptive skills displayed movement tracking patterns that reflect more sustained focus on toy play and independence from the caregiver. Results suggest that automated movement tracking is a promising complementary, objective method for assessing clinical variation during autistic children?s play.Lay AbstractPlay-based observations allow researchers to observe autistic children across a wide range of ages and skills. We recorded autistic children playing with toys in the center of a room and at a corner table while a caregiver remained seated off to the side and used video tracking technology to track children?s movement and location. We examined how time children spent in room regions and whether or not they approached each region during play related to their cognitive, social, communication, and adaptive skills to determine if tracking child movement and location can meaningfully demonstrate clinical variation among autistic children representing a range of ages and skills. One significant finding was that autistic children who spent more time in the toy-containing center of the room had higher cognitive and language abilities, whereas those who spent less time in the center had higher levels of autism-related behaviors. In contrast, children who spent more time in the caregiver region had lower daily living skills and those who were quicker to approach the caregiver had lower adaptive behavior and language skills. These findings support the use of movement tracking as a complementary method of measuring clinical differences among autistic children. Furthermore, over 90% of autistic children representing a range of ages and skills in this study provided analyzable play observation data, demonstrating that this method allows autistic children of all levels of support needs to participate in research and demonstrate their social, communication, and attention skills without wearing any devices. En ligne : http://dx.doi.org/10.1177/13623613231169546 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=514
in Autism > 27-8 (November 2023) . - p.2530-2541[article] Automated movement tracking of young autistic children during free play is correlated with clinical features associated with autism [Texte imprimé et/ou numérique] / Andrew YUAN, Auteur ; Maura SABATOS-DEVITO, Auteur ; Alexandra L BEY, Auteur ; Samantha MAJOR, Auteur ; Kimberly LH CARPENTER, Auteur ; Lauren FRANZ, Auteur ; Jill HOWARD, Auteur ; Saritha VERMEER, Auteur ; Ryan SIMMONS, Auteur ; Jesse TROY, Auteur ; Geraldine DAWSON, Auteur . - p.2530-2541.
in Autism > 27-8 (November 2023) . - p.2530-2541
Mots-clés : autism caregiver-child free play movement video tracking Index. décimale : PER Périodiques Résumé : Autistic children?s play provides insights into social, communication, and other skills; however, methods for measuring these observations can be labor-intensive and rely on subjective judgment. This study explored whether children?s movement and location during play measured via automated video tracking correlates with clinical features. Movement tracking metrics of 164 autistic children (27-96?months old) during free play were analyzed in relation to standard assessments of cognitive, language, social-communication, and adaptive skills. Children with higher cognitive and language abilities were more likely to spend time in the center toy region and more slowly or never approached the region without toys. Children with higher autism-related features spent less time in the center. Children with lower daily living skills spent more time near the caregiver and those with lower overall adaptive and language skills approached the caregiver more quickly. Over 90% of autistic children representing a range of ages and skills provided analyzable movement data during play and those with higher cognitive, language, and adaptive skills displayed movement tracking patterns that reflect more sustained focus on toy play and independence from the caregiver. Results suggest that automated movement tracking is a promising complementary, objective method for assessing clinical variation during autistic children?s play.Lay AbstractPlay-based observations allow researchers to observe autistic children across a wide range of ages and skills. We recorded autistic children playing with toys in the center of a room and at a corner table while a caregiver remained seated off to the side and used video tracking technology to track children?s movement and location. We examined how time children spent in room regions and whether or not they approached each region during play related to their cognitive, social, communication, and adaptive skills to determine if tracking child movement and location can meaningfully demonstrate clinical variation among autistic children representing a range of ages and skills. One significant finding was that autistic children who spent more time in the toy-containing center of the room had higher cognitive and language abilities, whereas those who spent less time in the center had higher levels of autism-related behaviors. In contrast, children who spent more time in the caregiver region had lower daily living skills and those who were quicker to approach the caregiver had lower adaptive behavior and language skills. These findings support the use of movement tracking as a complementary method of measuring clinical differences among autistic children. Furthermore, over 90% of autistic children representing a range of ages and skills in this study provided analyzable play observation data, demonstrating that this method allows autistic children of all levels of support needs to participate in research and demonstrate their social, communication, and attention skills without wearing any devices. En ligne : http://dx.doi.org/10.1177/13623613231169546 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=514 Complexity analysis of head movements in autistic toddlers / Pradeep Raj KRISHNAPPA BABU in Journal of Child Psychology and Psychiatry, 64-1 (January 2023)
[article]
Titre : Complexity analysis of head movements in autistic toddlers Type de document : Texte imprimé et/ou numérique Auteurs : Pradeep Raj KRISHNAPPA BABU, Auteur ; J. Matias DI MARTINO, Auteur ; Zhuoqing CHANG, Auteur ; Sam PEROCHON, Auteur ; Rachel AIELLO, Auteur ; Kimberly L.H. CARPENTER, Auteur ; Scott COMPTON, Auteur ; Naomi DAVIS, Auteur ; Lauren FRANZ, Auteur ; Steven ESPINOSA, Auteur ; Jacqueline FLOWERS, Auteur ; Geraldine DAWSON, Auteur ; Guillermo SAPIRO, Auteur Article en page(s) : p.156-166 Langues : Anglais (eng) Index. décimale : PER Périodiques Résumé : Background Early differences in sensorimotor functioning have been documented in young autistic children and infants who are later diagnosed with autism. Previous research has demonstrated that autistic toddlers exhibit more frequent head movement when viewing dynamic audiovisual stimuli, compared to neurotypical toddlers. To further explore this behavioral characteristic, in this study, computer vision (CV) analysis was used to measure several aspects of head movement dynamics of autistic and neurotypical toddlers while they watched a set of brief movies with social and nonsocial content presented on a tablet. Methods Data were collected from 457 toddlers, 17-36 months old, during their well-child visit to four pediatric primary care clinics. Forty-one toddlers were subsequently diagnosed with autism. An application (app) displayed several brief movies on a tablet, and the toddlers watched these movies while sitting on their caregiver's lap. The front-facing camera in the tablet recorded the toddlers' behavioral responses. CV was used to measure the participants' head movement rate, movement acceleration, and complexity using multiscale entropy. Results Autistic toddlers exhibited significantly higher rate, acceleration, and complexity in their head movements while watching the movies compared to neurotypical toddlers, regardless of the type of movie content (social vs. nonsocial). The combined features of head movement acceleration and complexity reliably distinguished the autistic and neurotypical toddlers. Conclusions Autistic toddlers exhibit differences in their head movement dynamics when viewing audiovisual stimuli. Higher complexity of their head movements suggests that their movements were less predictable and less stable compared to neurotypical toddlers. CV offers a scalable means of detecting subtle differences in head movement dynamics, which may be helpful in identifying early behaviors associated with autism and providing insight into the nature of sensorimotor differences associated with autism. En ligne : https://doi.org/10.1111/jcpp.13681 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=490
in Journal of Child Psychology and Psychiatry > 64-1 (January 2023) . - p.156-166[article] Complexity analysis of head movements in autistic toddlers [Texte imprimé et/ou numérique] / Pradeep Raj KRISHNAPPA BABU, Auteur ; J. Matias DI MARTINO, Auteur ; Zhuoqing CHANG, Auteur ; Sam PEROCHON, Auteur ; Rachel AIELLO, Auteur ; Kimberly L.H. CARPENTER, Auteur ; Scott COMPTON, Auteur ; Naomi DAVIS, Auteur ; Lauren FRANZ, Auteur ; Steven ESPINOSA, Auteur ; Jacqueline FLOWERS, Auteur ; Geraldine DAWSON, Auteur ; Guillermo SAPIRO, Auteur . - p.156-166.
Langues : Anglais (eng)
in Journal of Child Psychology and Psychiatry > 64-1 (January 2023) . - p.156-166
Index. décimale : PER Périodiques Résumé : Background Early differences in sensorimotor functioning have been documented in young autistic children and infants who are later diagnosed with autism. Previous research has demonstrated that autistic toddlers exhibit more frequent head movement when viewing dynamic audiovisual stimuli, compared to neurotypical toddlers. To further explore this behavioral characteristic, in this study, computer vision (CV) analysis was used to measure several aspects of head movement dynamics of autistic and neurotypical toddlers while they watched a set of brief movies with social and nonsocial content presented on a tablet. Methods Data were collected from 457 toddlers, 17-36 months old, during their well-child visit to four pediatric primary care clinics. Forty-one toddlers were subsequently diagnosed with autism. An application (app) displayed several brief movies on a tablet, and the toddlers watched these movies while sitting on their caregiver's lap. The front-facing camera in the tablet recorded the toddlers' behavioral responses. CV was used to measure the participants' head movement rate, movement acceleration, and complexity using multiscale entropy. Results Autistic toddlers exhibited significantly higher rate, acceleration, and complexity in their head movements while watching the movies compared to neurotypical toddlers, regardless of the type of movie content (social vs. nonsocial). The combined features of head movement acceleration and complexity reliably distinguished the autistic and neurotypical toddlers. Conclusions Autistic toddlers exhibit differences in their head movement dynamics when viewing audiovisual stimuli. Higher complexity of their head movements suggests that their movements were less predictable and less stable compared to neurotypical toddlers. CV offers a scalable means of detecting subtle differences in head movement dynamics, which may be helpful in identifying early behaviors associated with autism and providing insight into the nature of sensorimotor differences associated with autism. En ligne : https://doi.org/10.1111/jcpp.13681 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=490 Conducting caregiver focus groups on autism in the context of an international research collaboration: Logistical and methodological lessons learned in South Africa / Jessy GULER in Autism, 27-3 (April 2023)
[article]
Titre : Conducting caregiver focus groups on autism in the context of an international research collaboration: Logistical and methodological lessons learned in South Africa Type de document : Texte imprimé et/ou numérique Auteurs : Jessy GULER, Auteur ; Kearsley A STEWART, Auteur ; Petrus J DE VRIES, Auteur ; Noleen SERIS, Auteur ; Nokuthula SHABALALA, Auteur ; Lauren FRANZ, Auteur Article en page(s) : p.751-761 Langues : Anglais (eng) Mots-clés : autism spectrum disorders,caregivers,focus group discussions,logistical challenges,qualitative research,research ethics,research methods Index. décimale : PER Périodiques Résumé : Most autism research has been conducted in high-income countries, with participants typically from White, upper-middle-income families. Given the disparities experienced by autistic individuals living in underserved communities globally, there is a critical need for research to include individuals from culturally, linguistically, socioeconomically, and geographically diverse backgrounds to understand their unique needs. Qualitative research has the potential to describe the ''lived experience'' of families historically underrepresented in the autism literature. Here we describe the logistical and methodological challenges of conducting focus group discussions with 22 caregivers of young autistic children living in Cape Town, South Africa. Logistical challenges included (1) recruitment, (2) response rate, and (3) resource access. Methodological challenges included (1) participant background and experiences, (2) interpersonal dynamics, and (3) research ethics. We present recommendations based on lessons learned to reduce these challenges and improve rigorous qualitative research practices in similar low-resource contexts.Lay abstractMost of the autism research to date has been conducted in high-income countries, with children and families typically from White, upper-middle-income backgrounds. However, we know there are significant inequalities that exist which influence how autistic individuals from diverse, underserved communities can access services they need. As many of these individuals have not been included in the majority of autism research to date, there is much we do not know about these individuals' life experiences, which are critically needed to better inform the development and implementation of care for families from historically underrepresented groups. In this article, we describe the research process we took to conduct focus group discussions with 22 caregivers of young autistic children living in Cape Town, South Africa. We specifically describe the lessons we learned in implementing these focus groups and provide recommendations aimed at how to best reduce logistical and methodological challenges moving forward to improve research conducted in similar low-resource contexts. En ligne : https://doi.org/10.1177/13623613221117012 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=499
in Autism > 27-3 (April 2023) . - p.751-761[article] Conducting caregiver focus groups on autism in the context of an international research collaboration: Logistical and methodological lessons learned in South Africa [Texte imprimé et/ou numérique] / Jessy GULER, Auteur ; Kearsley A STEWART, Auteur ; Petrus J DE VRIES, Auteur ; Noleen SERIS, Auteur ; Nokuthula SHABALALA, Auteur ; Lauren FRANZ, Auteur . - p.751-761.
Langues : Anglais (eng)
in Autism > 27-3 (April 2023) . - p.751-761
Mots-clés : autism spectrum disorders,caregivers,focus group discussions,logistical challenges,qualitative research,research ethics,research methods Index. décimale : PER Périodiques Résumé : Most autism research has been conducted in high-income countries, with participants typically from White, upper-middle-income families. Given the disparities experienced by autistic individuals living in underserved communities globally, there is a critical need for research to include individuals from culturally, linguistically, socioeconomically, and geographically diverse backgrounds to understand their unique needs. Qualitative research has the potential to describe the ''lived experience'' of families historically underrepresented in the autism literature. Here we describe the logistical and methodological challenges of conducting focus group discussions with 22 caregivers of young autistic children living in Cape Town, South Africa. Logistical challenges included (1) recruitment, (2) response rate, and (3) resource access. Methodological challenges included (1) participant background and experiences, (2) interpersonal dynamics, and (3) research ethics. We present recommendations based on lessons learned to reduce these challenges and improve rigorous qualitative research practices in similar low-resource contexts.Lay abstractMost of the autism research to date has been conducted in high-income countries, with children and families typically from White, upper-middle-income backgrounds. However, we know there are significant inequalities that exist which influence how autistic individuals from diverse, underserved communities can access services they need. As many of these individuals have not been included in the majority of autism research to date, there is much we do not know about these individuals' life experiences, which are critically needed to better inform the development and implementation of care for families from historically underrepresented groups. In this article, we describe the research process we took to conduct focus group discussions with 22 caregivers of young autistic children living in Cape Town, South Africa. We specifically describe the lessons we learned in implementing these focus groups and provide recommendations aimed at how to best reduce logistical and methodological challenges moving forward to improve research conducted in similar low-resource contexts. En ligne : https://doi.org/10.1177/13623613221117012 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=499 Educational classifications of autism spectrum disorder and intellectual disability among school-aged children in North Carolina: Associations with race, rurality, and resource availability / Eunsoo Timothy KIM in Autism Research, 14-5 (May 2021)
PermalinkEye-tracking measures of social versus nonsocial attention are related to level of social engagement during naturalistic caregiver-child interactions in autistic children / Carla A. WALL in Autism Research, 16-5 (May 2023)
PermalinkGastrointestinal problems are associated with increased repetitive behaviors but not social communication difficulties in young children with autism spectrum disorders / Payal CHAKRABORTY in Autism, 25-2 (February 2021)
PermalinkPrevalence of bias against neurodivergence-related terms in artificial intelligence language models / Sam BRANDSEN in Autism Research, 17-2 (February 2024)
PermalinkRelationship between quantitative digital behavioral features and clinical profiles in young autistic children / Marika COFFMAN in Autism Research, 16-7 (July 2023)
PermalinkValidation of eye?tracking measures of social attention as a potential biomarker for autism clinical trials / Michael MURIAS in Autism Research, 11-1 (January 2018)
Permalink