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Détail de l'auteur
Auteur Ana J. SCHAEFER |
Documents disponibles écrits par cet auteur (2)
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A Taxonomy of Reported Harms in Pediatric Autism Spectrum Disorder Screening: Provider and Parent Perspectives / M. PETRUCCELLI in Journal of Autism and Developmental Disorders, 52-2 (February 2022)
[article]
Titre : A Taxonomy of Reported Harms in Pediatric Autism Spectrum Disorder Screening: Provider and Parent Perspectives Type de document : Texte imprimé et/ou numérique Auteurs : M. PETRUCCELLI, Auteur ; L. RAMELLA, Auteur ; Ana J. SCHAEFER, Auteur ; R. C. SHELDRICK, Auteur ; Alice S. CARTER, Auteur ; A. EISENHOWER, Auteur ; Sarabeth BRODER-FINGERT, Auteur ; T. I. MACKIE, Auteur Article en page(s) : p.647-673 Langues : Anglais (eng) Mots-clés : Autism Spectrum Disorder/diagnosis Child Child, Preschool Early Intervention, Educational Humans Mass Screening Parents Pediatricians Autism spectrum disorder Harms Healthcare providers Qualitative methods Screening first-stage screeners used in this study. He conducts research related to this instrument but receives no royalties. Dr. Carter is the cocreator of the POSI but receives no royalties. She is also co-creator of the BITSEA, which is one of the two first-stage screeners used in this study. Dr. Carter receives royalties on the sale of the BITSEA, which is distributed by MAPI Research Trust. The remaining co-authors report no conflicts of interest. Index. décimale : PER Périodiques Résumé : The U.S. Preventive Services Task Force (USPSTF) report on screening for Autism Spectrum Disorder (ASD) highlighted the need for research that examines the harms potentially associated with screening so as to assess the overall net benefit of universal screening. In response, this study engages qualitative, semi-structured interviews to generate a taxonomy outlining potential harms reported by parents and providers (pediatricians and Early Intervention providers) with experience in screening young children for ASD. Potential harms emerged including: physical, psychological, social, logistical/financial, opportunity cost, attrition, and exacerbation of non-targeted disparities. Respondents reported harms being experienced by the toddlers, parents, and providers. The harms reported highlight opportunities for providers to offer resources that mitigate the potential for these unintended consequences. En ligne : http://dx.doi.org/10.1007/s10803-021-04964-3 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=455
in Journal of Autism and Developmental Disorders > 52-2 (February 2022) . - p.647-673[article] A Taxonomy of Reported Harms in Pediatric Autism Spectrum Disorder Screening: Provider and Parent Perspectives [Texte imprimé et/ou numérique] / M. PETRUCCELLI, Auteur ; L. RAMELLA, Auteur ; Ana J. SCHAEFER, Auteur ; R. C. SHELDRICK, Auteur ; Alice S. CARTER, Auteur ; A. EISENHOWER, Auteur ; Sarabeth BRODER-FINGERT, Auteur ; T. I. MACKIE, Auteur . - p.647-673.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 52-2 (February 2022) . - p.647-673
Mots-clés : Autism Spectrum Disorder/diagnosis Child Child, Preschool Early Intervention, Educational Humans Mass Screening Parents Pediatricians Autism spectrum disorder Harms Healthcare providers Qualitative methods Screening first-stage screeners used in this study. He conducts research related to this instrument but receives no royalties. Dr. Carter is the cocreator of the POSI but receives no royalties. She is also co-creator of the BITSEA, which is one of the two first-stage screeners used in this study. Dr. Carter receives royalties on the sale of the BITSEA, which is distributed by MAPI Research Trust. The remaining co-authors report no conflicts of interest. Index. décimale : PER Périodiques Résumé : The U.S. Preventive Services Task Force (USPSTF) report on screening for Autism Spectrum Disorder (ASD) highlighted the need for research that examines the harms potentially associated with screening so as to assess the overall net benefit of universal screening. In response, this study engages qualitative, semi-structured interviews to generate a taxonomy outlining potential harms reported by parents and providers (pediatricians and Early Intervention providers) with experience in screening young children for ASD. Potential harms emerged including: physical, psychological, social, logistical/financial, opportunity cost, attrition, and exacerbation of non-targeted disparities. Respondents reported harms being experienced by the toddlers, parents, and providers. The harms reported highlight opportunities for providers to offer resources that mitigate the potential for these unintended consequences. En ligne : http://dx.doi.org/10.1007/s10803-021-04964-3 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=455 Understanding How Parents Make Meaning of Their Child's Behaviors During Screening for Autism Spectrum Disorders: A Longitudinal Qualitative Investigation / Thomas I. MACKIE in Journal of Autism and Developmental Disorders, 51-3 (March 2021)
[article]
Titre : Understanding How Parents Make Meaning of Their Child's Behaviors During Screening for Autism Spectrum Disorders: A Longitudinal Qualitative Investigation Type de document : Texte imprimé et/ou numérique Auteurs : Thomas I. MACKIE, Auteur ; Ana J. SCHAEFER, Auteur ; Leah RAMELLA, Auteur ; Alice S. CARTER, Auteur ; Abbey EISENHOWER, Auteur ; Manuel E. JIMENEZ, Auteur ; Angel FETTIG, Auteur ; R. Christopher SHELDRICK, Auteur Article en page(s) : p.906-921 Langues : Anglais (eng) Mots-clés : Autism spectrum disorders Parental perception Qualitative Screening Index. décimale : PER Périodiques Résumé : A family's journey in understanding their child's behaviors in relation to Autism Spectrum Disorders (ASD) frequently begins with screening. This study aimed to characterize the interpretive processes that unfold for parents. We employed longitudinal interviews with 19 families engaged in a community-based multi-stage screening protocol. Parents participated in 1-6 interviews dependent upon children's length of engagement in the screening protocol; data were analyzed through modified grounded theory. Parents who moved towards understanding their child's behaviors as ASD expressed (1) sensitization to ASD symptoms, (2) differentiation from other developmental conditions, and (3) use of the ASD diagnosis to explain the etiology of concerning behaviors. Identifying interpretive processes involved during ASD screening provides new opportunities for shared decision-making. En ligne : http://dx.doi.org/10.1007/s10803-020-04502-7 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=443
in Journal of Autism and Developmental Disorders > 51-3 (March 2021) . - p.906-921[article] Understanding How Parents Make Meaning of Their Child's Behaviors During Screening for Autism Spectrum Disorders: A Longitudinal Qualitative Investigation [Texte imprimé et/ou numérique] / Thomas I. MACKIE, Auteur ; Ana J. SCHAEFER, Auteur ; Leah RAMELLA, Auteur ; Alice S. CARTER, Auteur ; Abbey EISENHOWER, Auteur ; Manuel E. JIMENEZ, Auteur ; Angel FETTIG, Auteur ; R. Christopher SHELDRICK, Auteur . - p.906-921.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 51-3 (March 2021) . - p.906-921
Mots-clés : Autism spectrum disorders Parental perception Qualitative Screening Index. décimale : PER Périodiques Résumé : A family's journey in understanding their child's behaviors in relation to Autism Spectrum Disorders (ASD) frequently begins with screening. This study aimed to characterize the interpretive processes that unfold for parents. We employed longitudinal interviews with 19 families engaged in a community-based multi-stage screening protocol. Parents participated in 1-6 interviews dependent upon children's length of engagement in the screening protocol; data were analyzed through modified grounded theory. Parents who moved towards understanding their child's behaviors as ASD expressed (1) sensitization to ASD symptoms, (2) differentiation from other developmental conditions, and (3) use of the ASD diagnosis to explain the etiology of concerning behaviors. Identifying interpretive processes involved during ASD screening provides new opportunities for shared decision-making. En ligne : http://dx.doi.org/10.1007/s10803-020-04502-7 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=443