Pubmed du 17/05/20

dimanche 17 mai 2020

1. Bent CA, Barbaro J, Dissanayake C. Parents’ experiences of the service pathway to an autism diagnosis for their child : What predicts an early diagnosis in Australia ?. Res Dev Disabil. 2020 ; 103 : 103689.

BACKGROUND : The early identification and diagnosis of autism is critical to ensure access to appropriate early intervention and support. Few studies have examined the association between potentially modifiable characteristics of the service system and timelier diagnosis. METHODS : An online survey was conducted to examine parental experiences of service pathways to an autism diagnosis for their child, and to identify child, family, and service level characteristics that predict the age and timeliness of diagnosis. Participants included 107 parents of children with autism who were diagnosed by 7 years of age and a smaller subgroup of 29 parents who were diagnosed after 7 years of age. RESULTS : Parents of younger children reported that, on average, it took approximately 12 months and 8 professional consultations to receive a confirmed diagnosis for their child. Parents of older children, as well as those who reported they were a sole caregiver, or were advised by professionals to ’wait and see’, reported more time between first raising concerns and diagnosis. CONCLUSIONS : The findings reiterate the importance of proactive professional responses to parental concerns. They also highlight the need for standardised screening and assessment and professional development and training to build capacity in the sector to deliver timely and accurate autism diagnoses.

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2. Mills AS, Vimalakanthan K, Sivapalan S, Shanmugalingam N, Weiss JA. Brief Report : Preliminary Outcomes of a Peer Counselling Program for Parents of Children with Autism in the South Asian Community. J Autism Dev Disord. 2020.

Peer volunteers have been found to be effective in delivering psychosocial interventions when they come from the same culture and share similar experiences as participants. We examined the clinical utility (feasibility and preliminary effectiveness) of a community-based, manualized, peer-delivered group counselling program to address the need for culturally responsive counselling for parents of children with autism in the South Asian community. Sixty-three parents (M(age) = 43.7 years, 68% mothers) participated in the program, and reported high stable program satisfaction across sessions. Further, parents reported improved mental health and quality of life following involvement in the program, with changes noted even after the first session. Further research is warranted to assess the efficacy of this kind of parent support intervention.

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3. van Tiel B, Deliens G, Geelhand P, Murillo Oosterwijk A, Kissine M. Strategic Deception in Adults with Autism Spectrum Disorder. J Autism Dev Disord. 2020.

Autism Spectrum Disorder (ASD) is often associated with impaired perspective-taking skills. Deception is an important indicator of perspective-taking, and therefore may be thought to pose difficulties to people with ASD (e.g., Baron-Cohen in J Child Psychol Psychiatry 3:1141-1155, 1992). To test this hypothesis, we asked participants with and without ASD to play a computerised deception game. We found that participants with ASD were equally likely-and in complex cases of deception even more likely-to deceive and detect deception, and learned deception at a faster rate. However, participants with ASD initially deceived less frequently, and were slower at detecting deception. These results suggest that people with ASD readily engage in deception but may do so through conscious and effortful reasoning about other people’s perspective.

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