Cultural Adaptation and Translation of Outreach Materials on Autism Spectrum Disorder / Roy R. GRINKER in Journal of Autism and Developmental Disorders, 45-8 (August 2015)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 45-8 (August 2015) . - p.2329-2336 Titre : Cultural Adaptation and Translation of Outreach Materials on Autism Spectrum Disorder Type de document : Texte imprimé et/ou numérique Auteurs : Roy R. GRINKER, Auteur ; Christina D. KANG-YI, Auteur ; Chloe AHMANN, Auteur ; Rinad S. BEIDAS, Auteur ; Adrienne LAGMAN, Auteur ; David S. MANDELL, Auteur Année de publication : 2015 Article en page(s) : p.2329-2336 Langues : Anglais (eng) Mots-clés : Autism spectrum disorder  Outreach materials  Cultural aspects of ASD  Korean-Americans  Ethnic disparities  Translation Index. décimale : PER Périodiques Résumé : In order to connect with families and influence treatment trajectories, outreach materials should address cultural perceptions of the condition, its causes, and post-diagnostic care. This paper describes the cultural adaptation and translation of the Autism Speaks First 100 Days Kit into Korean for the purpose of improving autism spectrum disorder (ASD) diagnosis, assessment, and interventions. The goal of this study is to describe a methodology for future cross-cultural adaptations and translations of outreach materials on ASD, using the Autism Speaks First 100 Days Kit as an exemplar. The research involved two stages of qualitative interviews: unstructured individual and group interviews with 19 Korean child health and education professionals in Queens, NY, followed by structured cultural consensus modeling interviews with 23 Korean mothers, with and without children with ASD, in Queens, NY and the greater Washington, DC area. We conclude that a systematic approach to cultural translation of outreach materials is feasible. Cultural consensus modeling yielded information about numerous barriers to care, had a demonstrable effect on the translation of the kit, and was efficient when employed with coherent segments of a relatively homogeneous population and focused on a single condition. En ligne : http://dx.doi.org/10.1007/s10803-015-2397-6 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=263 [article] Cultural Adaptation and Translation of Outreach Materials on Autism Spectrum Disorder [Texte imprimé et/ou numérique] / Roy R. GRINKER, Auteur ; Christina D. KANG-YI, Auteur ; Chloe AHMANN, Auteur ; Rinad S. BEIDAS, Auteur ; Adrienne LAGMAN, Auteur ; David S. MANDELL, Auteur . - 2015 . - p.2329-2336. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 45-8 (August 2015) . - p.2329-2336 Mots-clés : Autism spectrum disorder  Outreach materials  Cultural aspects of ASD  Korean-Americans  Ethnic disparities  Translation Index. décimale : PER Périodiques Résumé : In order to connect with families and influence treatment trajectories, outreach materials should address cultural perceptions of the condition, its causes, and post-diagnostic care. This paper describes the cultural adaptation and translation of the Autism Speaks First 100 Days Kit into Korean for the purpose of improving autism spectrum disorder (ASD) diagnosis, assessment, and interventions. The goal of this study is to describe a methodology for future cross-cultural adaptations and translations of outreach materials on ASD, using the Autism Speaks First 100 Days Kit as an exemplar. The research involved two stages of qualitative interviews: unstructured individual and group interviews with 19 Korean child health and education professionals in Queens, NY, followed by structured cultural consensus modeling interviews with 23 Korean mothers, with and without children with ASD, in Queens, NY and the greater Washington, DC area. We conclude that a systematic approach to cultural translation of outreach materials is feasible. Cultural consensus modeling yielded information about numerous barriers to care, had a demonstrable effect on the translation of the kit, and was efficient when employed with coherent segments of a relatively homogeneous population and focused on a single condition. En ligne : http://dx.doi.org/10.1007/s10803-015-2397-6 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=263

Korean Culture and Autism Spectrum Disorders / Christina D. KANG-YI in Journal of Autism and Developmental Disorders, 43-3 (March 2013)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 43-3 (March 2013) . - p.503-520 Titre : Korean Culture and Autism Spectrum Disorders Type de document : Texte imprimé et/ou numérique Auteurs : Christina D. KANG-YI, Auteur ; Roy Richard GRINKER, Auteur ; David S. MANDELL, Auteur Article en page(s) : p.503-520 Langues : Anglais (eng) Mots-clés : Autism spectrum disorder  Korean culture  Early child development Index. décimale : PER Périodiques Résumé : This paper reviews the literature on early child development among Koreans, with a focus on autism spectrum disorders (ASD). The literature review of 951 abstracts in English, 101 abstracts in Korean and 27 full articles published from 1994 to 2011 was performed to understand the presentation of and response to ASD in Korean culture. Based on research to date on the identification, description, and treatment of ASD in Korean populations, we argue that at both conceptual and practical levels, early child development and interventions must be understood within cultural context. Culturally informed research on ASD is vital for increasing awareness of the importance of early intervention and the need for educational and psychological services in countries in which autism is stigmatized, misdiagnosed or undiagnosed. En ligne : http://dx.doi.org/10.1007/s10803-012-1570-4 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=192 [article] Korean Culture and Autism Spectrum Disorders [Texte imprimé et/ou numérique] / Christina D. KANG-YI, Auteur ; Roy Richard GRINKER, Auteur ; David S. MANDELL, Auteur . - p.503-520. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 43-3 (March 2013) . - p.503-520 Mots-clés : Autism spectrum disorder  Korean culture  Early child development Index. décimale : PER Périodiques Résumé : This paper reviews the literature on early child development among Koreans, with a focus on autism spectrum disorders (ASD). The literature review of 951 abstracts in English, 101 abstracts in Korean and 27 full articles published from 1994 to 2011 was performed to understand the presentation of and response to ASD in Korean culture. Based on research to date on the identification, description, and treatment of ASD in Korean populations, we argue that at both conceptual and practical levels, early child development and interventions must be understood within cultural context. Culturally informed research on ASD is vital for increasing awareness of the importance of early intervention and the need for educational and psychological services in countries in which autism is stigmatized, misdiagnosed or undiagnosed. En ligne : http://dx.doi.org/10.1007/s10803-012-1570-4 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=192

Treatment utilization by adults with autism and co-occurring anxiety or depression / Brenna B. MADDOX in Research in Autism Spectrum Disorders, 51 (July 2018)  

Public ISBD [article]  inResearch in Autism Spectrum Disorders > 51 (July 2018) . - p.32-37 Titre : Treatment utilization by adults with autism and co-occurring anxiety or depression Type de document : Texte imprimé et/ou numérique Auteurs : Brenna B. MADDOX, Auteur ; Christina D. KANG-YI, Auteur ; Edward S. BRODKIN, Auteur ; David S. MANDELL, Auteur Article en page(s) : p.32-37 Langues : Anglais (eng) Mots-clés : Autism spectrum disorder  Depression  Anxiety  Adults  Treatment  Therapy Index. décimale : PER Périodiques Résumé : Background While a growing body of research suggests that talk therapies can reduce anxiety and depression in adults with autism spectrum disorder (ASD), we know little about what community treatment for these disorders looks like for them. The present study investigated whether treatment utilization differs between adults with and without ASD who have anxiety or depression. Method Using Pennsylvania Medicaid claims data, adults aged 18–65 years diagnosed with ASD and depression or anxiety (n?=?268) were matched 1:4 to adults with depression or anxiety disorder without ASD (n?=?1072). Chi-square tests and generalized linear models were used to estimate differences in diagnoses and psychiatric treatment between groups. Results While the proportion of people prescribed benzodiazepine and antidepressants did not differ between groups, the ASD group had more days per month prescribed for all medications. Adults with ASD also were more likely to be prescribed multiple medications concurrently and to use case management. Adults without ASD were more likely to receive talk therapy for anxiety/depression. Among those receiving talk therapy, adults with ASD averaged more individual visits per month. Conclusions Findings suggest that therapists may need more session time for adults with ASD, although it is unclear if this time is dedicated to anxiety or depression treatment. The greater use of psychotropic medications among adults with ASD may suggest unresponsiveness to the talk therapy they receive or greater clinical complexity. En ligne : https://doi.org/10.1016/j.rasd.2018.03.009 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=362 [article] Treatment utilization by adults with autism and co-occurring anxiety or depression [Texte imprimé et/ou numérique] / Brenna B. MADDOX, Auteur ; Christina D. KANG-YI, Auteur ; Edward S. BRODKIN, Auteur ; David S. MANDELL, Auteur . - p.32-37. Langues : Anglais (eng) in Research in Autism Spectrum Disorders > 51 (July 2018) . - p.32-37 Mots-clés : Autism spectrum disorder  Depression  Anxiety  Adults  Treatment  Therapy Index. décimale : PER Périodiques Résumé : Background While a growing body of research suggests that talk therapies can reduce anxiety and depression in adults with autism spectrum disorder (ASD), we know little about what community treatment for these disorders looks like for them. The present study investigated whether treatment utilization differs between adults with and without ASD who have anxiety or depression. Method Using Pennsylvania Medicaid claims data, adults aged 18–65 years diagnosed with ASD and depression or anxiety (n?=?268) were matched 1:4 to adults with depression or anxiety disorder without ASD (n?=?1072). Chi-square tests and generalized linear models were used to estimate differences in diagnoses and psychiatric treatment between groups. Results While the proportion of people prescribed benzodiazepine and antidepressants did not differ between groups, the ASD group had more days per month prescribed for all medications. Adults with ASD also were more likely to be prescribed multiple medications concurrently and to use case management. Adults without ASD were more likely to receive talk therapy for anxiety/depression. Among those receiving talk therapy, adults with ASD averaged more individual visits per month. Conclusions Findings suggest that therapists may need more session time for adults with ASD, although it is unclear if this time is dedicated to anxiety or depression treatment. The greater use of psychotropic medications among adults with ASD may suggest unresponsiveness to the talk therapy they receive or greater clinical complexity. En ligne : https://doi.org/10.1016/j.rasd.2018.03.009 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=362

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