Dépouillements

We must improve the low standards underlying "evidence-based practice" / Kristen BOTTEMA-BEUTEL in Autism, 27-2 (February 2023)  

Public ISBD [article]  inAutism > 27-2 (February 2023) . - p.269-274 Titre : We must improve the low standards underlying "evidence-based practice" Type de document : Texte imprimé et/ou numérique Auteurs : Kristen BOTTEMA-BEUTEL, Auteur Article en page(s) : p.269-274 Langues : Anglais (eng) Index. décimale : PER Périodiques En ligne : http://dx.doi.org/10.1177/13623613221146441 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=493 [article] We must improve the low standards underlying "evidence-based practice" [Texte imprimé et/ou numérique] / Kristen BOTTEMA-BEUTEL, Auteur . - p.269-274. Langues : Anglais (eng) in Autism > 27-2 (February 2023) . - p.269-274 Index. décimale : PER Périodiques En ligne : http://dx.doi.org/10.1177/13623613221146441 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=493

Non-pharmacological interventions for autistic children: An umbrella review / David TREMBATH in Autism, 27-2 (February 2023)  

Public ISBD [article]  inAutism > 27-2 (February 2023) . - p.275-295 Titre : Non-pharmacological interventions for autistic children: An umbrella review Type de document : Texte imprimé et/ou numérique Auteurs : David TREMBATH, Auteur ; Kandice J. VARCIN, Auteur ; Hannah WADDINGTON, Auteur ; Rhylee SULEK, Auteur ; Cathy BENT, Auteur ; Jill ASHBURNER, Auteur ; Valsamma EAPEN, Auteur ; Emma GOODALL, Auteur ; Kristelle HUDRY, Auteur ; Jacqueline ROBERTS, Auteur ; Natalie SILOVE, Auteur ; Andrew J. O. WHITEHOUSE, Auteur Article en page(s) : p.275-295 Langues : Anglais (eng) Mots-clés : autism  evidence  intervention  non-pharmacological  review Index. décimale : PER Périodiques Résumé : The breadth of available non-pharmacological interventions for autistic children, with varying evidence for efficacy summarised in multiple systematic reviews, creates challenges for parents, practitioners, and policymakers in navigating the research evidence. In this article, we report the findings of an umbrella review of 58 systematic reviews of non-pharmacological interventions for autistic children (aged 0 “12 years). Positive therapeutic effects were identified for Behavioural interventions, Developmental interventions, Naturalistic Developmental Behavioural Interventions, Technology-based interventions, and Cognitive Behaviour Therapy across several child and family outcomes. Positive effects for certain practices within Sensory-based interventions and ˜other’ interventions were limited to select child and family outcomes. Both inconsistent and null intervention effects were found for Treatment and Education of Autistic and related Communication-handicapped Children, and Animal-assisted interventions across outcomes. The possible influence of child (chronological age, core autism characteristics, and related skills) and delivery (agent, mode, format, and amount) characteristics on intervention effects was rarely examined, and inconsistent where reported. Twenty-seven systematic reviews (47%) were rated as ˜high’ quality. Few systematic reviews examined children’s participation and quality of life or adverse effects. The findings highlight the need for individualised evidence-based decision-making when selecting interventions for autistic children. En ligne : http://dx.doi.org/10.1177/13623613221119368 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=493 [article] Non-pharmacological interventions for autistic children: An umbrella review [Texte imprimé et/ou numérique] / David TREMBATH, Auteur ; Kandice J. VARCIN, Auteur ; Hannah WADDINGTON, Auteur ; Rhylee SULEK, Auteur ; Cathy BENT, Auteur ; Jill ASHBURNER, Auteur ; Valsamma EAPEN, Auteur ; Emma GOODALL, Auteur ; Kristelle HUDRY, Auteur ; Jacqueline ROBERTS, Auteur ; Natalie SILOVE, Auteur ; Andrew J. O. WHITEHOUSE, Auteur . - p.275-295. Langues : Anglais (eng) in Autism > 27-2 (February 2023) . - p.275-295 Mots-clés : autism  evidence  intervention  non-pharmacological  review Index. décimale : PER Périodiques Résumé : The breadth of available non-pharmacological interventions for autistic children, with varying evidence for efficacy summarised in multiple systematic reviews, creates challenges for parents, practitioners, and policymakers in navigating the research evidence. In this article, we report the findings of an umbrella review of 58 systematic reviews of non-pharmacological interventions for autistic children (aged 0 “12 years). Positive therapeutic effects were identified for Behavioural interventions, Developmental interventions, Naturalistic Developmental Behavioural Interventions, Technology-based interventions, and Cognitive Behaviour Therapy across several child and family outcomes. Positive effects for certain practices within Sensory-based interventions and ˜other’ interventions were limited to select child and family outcomes. Both inconsistent and null intervention effects were found for Treatment and Education of Autistic and related Communication-handicapped Children, and Animal-assisted interventions across outcomes. The possible influence of child (chronological age, core autism characteristics, and related skills) and delivery (agent, mode, format, and amount) characteristics on intervention effects was rarely examined, and inconsistent where reported. Twenty-seven systematic reviews (47%) were rated as ˜high’ quality. Few systematic reviews examined children’s participation and quality of life or adverse effects. The findings highlight the need for individualised evidence-based decision-making when selecting interventions for autistic children. En ligne : http://dx.doi.org/10.1177/13623613221119368 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=493

Longitudinal impact of parents’ discrimination experiences on children’s internalizing and externalizing symptoms: A 2-year study of families of autistic children / Kevin Ka Shing CHAN in Autism, 27-2 (February 2023)  

Public ISBD [article]  inAutism > 27-2 (February 2023) . - p.296-308 Titre : Longitudinal impact of parents’ discrimination experiences on children’s internalizing and externalizing symptoms: A 2-year study of families of autistic children Type de document : Texte imprimé et/ou numérique Auteurs : Kevin Ka Shing CHAN, Auteur ; Donald Chi Kin LEUNG, Auteur ; Winnie Tsz Wa FUNG, Auteur Article en page(s) : p.296-308 Langues : Anglais (eng) Mots-clés : autism spectrum disorder  coparenting conflict  discrimination experiences  externalizing symptoms  harsh parenting  internalizing symptoms  parental depression Index. décimale : PER Périodiques Résumé : The present study examined the longitudinal associations of parents’ discrimination experiences with children’s internalizing and externalizing symptoms among families of autistic children and tested whether these associations would be mediated by parental depression, harsh parenting, and coparenting conflict. On three occasions across 2 years (i.e. T1, T2, and T3), 441 parents of autistic children from Hong Kong, China, provided questionnaire data. Path analyses showed that parents’ discrimination experiences at T1 had significant direct effects on parental depression, harsh parenting, and coparenting conflict at T2, which, in turn, had significant direct effects on children’s internalizing and externalizing symptoms at T3. Bootstrap analyses further demonstrated that parents’ discrimination experiences at T1 had significant indirect effects on children’s internalizing and externalizing symptoms at T3 via parental depression, harsh parenting, and coparenting conflict at T2. Theoretically, our findings elucidate how parents’ discrimination experiences may longitudinally heighten children’s internalizing and externalizing symptoms by adversely affecting parental well-being and parent “child and inter-parental relationships. Practically, our findings highlight the importance of designing and implementing community-based stigma reduction programs and family-based stigma coping interventions to reduce parents’ discrimination experiences and associated adverse outcomes on well-being, parenting, marriage, and child development. En ligne : http://dx.doi.org/10.1177/13623613221093110 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=493 [article] Longitudinal impact of parents’ discrimination experiences on children’s internalizing and externalizing symptoms: A 2-year study of families of autistic children [Texte imprimé et/ou numérique] / Kevin Ka Shing CHAN, Auteur ; Donald Chi Kin LEUNG, Auteur ; Winnie Tsz Wa FUNG, Auteur . - p.296-308. Langues : Anglais (eng) in Autism > 27-2 (February 2023) . - p.296-308 Mots-clés : autism spectrum disorder  coparenting conflict  discrimination experiences  externalizing symptoms  harsh parenting  internalizing symptoms  parental depression Index. décimale : PER Périodiques Résumé : The present study examined the longitudinal associations of parents’ discrimination experiences with children’s internalizing and externalizing symptoms among families of autistic children and tested whether these associations would be mediated by parental depression, harsh parenting, and coparenting conflict. On three occasions across 2 years (i.e. T1, T2, and T3), 441 parents of autistic children from Hong Kong, China, provided questionnaire data. Path analyses showed that parents’ discrimination experiences at T1 had significant direct effects on parental depression, harsh parenting, and coparenting conflict at T2, which, in turn, had significant direct effects on children’s internalizing and externalizing symptoms at T3. Bootstrap analyses further demonstrated that parents’ discrimination experiences at T1 had significant indirect effects on children’s internalizing and externalizing symptoms at T3 via parental depression, harsh parenting, and coparenting conflict at T2. Theoretically, our findings elucidate how parents’ discrimination experiences may longitudinally heighten children’s internalizing and externalizing symptoms by adversely affecting parental well-being and parent “child and inter-parental relationships. Practically, our findings highlight the importance of designing and implementing community-based stigma reduction programs and family-based stigma coping interventions to reduce parents’ discrimination experiences and associated adverse outcomes on well-being, parenting, marriage, and child development. En ligne : http://dx.doi.org/10.1177/13623613221093110 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=493

Examining clinical characteristics of autism and links with parent perceptions of sibling relationship quality / Alana J. MCVEY in Autism, 27-2 (February 2023)  

Public ISBD [article]  inAutism > 27-2 (February 2023) . - p.309-320 Titre : Examining clinical characteristics of autism and links with parent perceptions of sibling relationship quality Type de document : Texte imprimé et/ou numérique Auteurs : Alana J. MCVEY, Auteur ; Quinn LIU, Auteur ; Saashi A. BEDFORD, Auteur ; Anat ZAIDMAN-ZAIT, Auteur ; Peter SZATMARI, Auteur ; Isabel M. SMITH, Auteur ; Tracy VAILLANCOURT, Auteur ; Lonnie ZWAIGENBAUM, Auteur ; Teresa BENNETT, Auteur ; Eric DUKU, Auteur ; Mayada ELSABBAGH, Auteur ; Stelios GEORGIADES, Auteur ; Connor M. KERNS, Auteur Article en page(s) : p.309-320 Langues : Anglais (eng) Mots-clés : autism spectrum disorder  behavioral difficulties  communication and language  school-age children  sibling relationships Index. décimale : PER Périodiques Résumé : Research regarding autistic children’s sibling relationship quality is mixed, although some literature suggests poorer quality compared to children with other disabilities or who are neurotypical. Little is known about how the clinical characteristics of autistic children relate to parent perceptions of sibling relationship quality. We drew data from a subsample of 119 children on the autism spectrum, ages 10 “11 years, from an ongoing longitudinal study. Hierarchical multiple regressions tested the extent to which children’s autism symptoms, behavioral difficulties, and communication abilities related to four domains of parent-rated sibling relationship quality. We also examined communication ability as a moderator of the effect of behavioral difficulties on parent-rated sibling relationship quality. More severe autism symptoms were associated with lower levels of conflict and rivalry, whereas higher communication ability was related to more relative status/power, but also conflict. Communication ability moderated the effect of behavioral difficulties such that behavioral difficulties were more closely associated with less warmth/closeness when children had weaker communication skills; behavioral difficulties were not significantly associated with other domains of sibling relationship quality. Findings underscore the importance of considering clinical characteristics and multiple domains of relationship quality to better understand how parents view the relationships between autistic children and their siblings. En ligne : http://dx.doi.org/10.1177/13623613221094672 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=493 [article] Examining clinical characteristics of autism and links with parent perceptions of sibling relationship quality [Texte imprimé et/ou numérique] / Alana J. MCVEY, Auteur ; Quinn LIU, Auteur ; Saashi A. BEDFORD, Auteur ; Anat ZAIDMAN-ZAIT, Auteur ; Peter SZATMARI, Auteur ; Isabel M. SMITH, Auteur ; Tracy VAILLANCOURT, Auteur ; Lonnie ZWAIGENBAUM, Auteur ; Teresa BENNETT, Auteur ; Eric DUKU, Auteur ; Mayada ELSABBAGH, Auteur ; Stelios GEORGIADES, Auteur ; Connor M. KERNS, Auteur . - p.309-320. Langues : Anglais (eng) in Autism > 27-2 (February 2023) . - p.309-320 Mots-clés : autism spectrum disorder  behavioral difficulties  communication and language  school-age children  sibling relationships Index. décimale : PER Périodiques Résumé : Research regarding autistic children’s sibling relationship quality is mixed, although some literature suggests poorer quality compared to children with other disabilities or who are neurotypical. Little is known about how the clinical characteristics of autistic children relate to parent perceptions of sibling relationship quality. We drew data from a subsample of 119 children on the autism spectrum, ages 10 “11 years, from an ongoing longitudinal study. Hierarchical multiple regressions tested the extent to which children’s autism symptoms, behavioral difficulties, and communication abilities related to four domains of parent-rated sibling relationship quality. We also examined communication ability as a moderator of the effect of behavioral difficulties on parent-rated sibling relationship quality. More severe autism symptoms were associated with lower levels of conflict and rivalry, whereas higher communication ability was related to more relative status/power, but also conflict. Communication ability moderated the effect of behavioral difficulties such that behavioral difficulties were more closely associated with less warmth/closeness when children had weaker communication skills; behavioral difficulties were not significantly associated with other domains of sibling relationship quality. Findings underscore the importance of considering clinical characteristics and multiple domains of relationship quality to better understand how parents view the relationships between autistic children and their siblings. En ligne : http://dx.doi.org/10.1177/13623613221094672 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=493

Autism as a difference or a disorder? Exploring the views of individuals who use peer-led online support groups for autistic partners / Laura FORAN LEWIS in Autism, 27-2 (February 2023)  

Public ISBD [article]  inAutism > 27-2 (February 2023) . - p.321-330 Titre : Autism as a difference or a disorder? Exploring the views of individuals who use peer-led online support groups for autistic partners Type de document : Texte imprimé et/ou numérique Auteurs : Laura FORAN LEWIS, Auteur Article en page(s) : p.321-330 Langues : Anglais (eng) Mots-clés : autism  intimate partners  qualitative  romantic relationships  social media Index. décimale : PER Périodiques Résumé : Approximately one-third of autistics report intimate relationship experience, but few studies have explored neuromixed relationships from the perspectives of non-autistic partners. Non-autistic partners increasingly use peer-led online groups to seek support. The purpose of this study was to capture a theory that reflects the basic social experience of individuals who use these support groups using classic Glaserian grounded theory methodology. Online interviews were conducted with 162 non-autistics who believed that they were in neuromixed relationships. Data were concurrently collected and analyzed using constant comparative analysis. Participants described varying views of autism, from a difference to a disorder, which defined the context of their relationships. Five relationship profiles emerged-mutual partnership: viewed partners as = companionship: viewed partners as friends but lacked a deeper connection; caregiving: viewed partners as dependents and compared relationships to parent “child dyads; detachment: viewed relationships as broken beyond repair and isolated selves from partners; and discriminatory: believed and circulated negative generalizations about autism. Many participants who were dissatisfied in their relationships shared that their partners were not formally evaluated and did not self-identify as autistic. Future research should explore ways that autism labels are (mis)applied by the general public based on negative stereotypes about autism. En ligne : http://dx.doi.org/10.1177/13623613221097850 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=493 [article] Autism as a difference or a disorder? Exploring the views of individuals who use peer-led online support groups for autistic partners [Texte imprimé et/ou numérique] / Laura FORAN LEWIS, Auteur . - p.321-330. Langues : Anglais (eng) in Autism > 27-2 (February 2023) . - p.321-330 Mots-clés : autism  intimate partners  qualitative  romantic relationships  social media Index. décimale : PER Périodiques Résumé : Approximately one-third of autistics report intimate relationship experience, but few studies have explored neuromixed relationships from the perspectives of non-autistic partners. Non-autistic partners increasingly use peer-led online groups to seek support. The purpose of this study was to capture a theory that reflects the basic social experience of individuals who use these support groups using classic Glaserian grounded theory methodology. Online interviews were conducted with 162 non-autistics who believed that they were in neuromixed relationships. Data were concurrently collected and analyzed using constant comparative analysis. Participants described varying views of autism, from a difference to a disorder, which defined the context of their relationships. Five relationship profiles emerged-mutual partnership: viewed partners as = companionship: viewed partners as friends but lacked a deeper connection; caregiving: viewed partners as dependents and compared relationships to parent “child dyads; detachment: viewed relationships as broken beyond repair and isolated selves from partners; and discriminatory: believed and circulated negative generalizations about autism. Many participants who were dissatisfied in their relationships shared that their partners were not formally evaluated and did not self-identify as autistic. Future research should explore ways that autism labels are (mis)applied by the general public based on negative stereotypes about autism. En ligne : http://dx.doi.org/10.1177/13623613221097850 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=493

Predictors of expert providers’ familiarity with intervention practices for school- and transition-age youth with autism spectrum disorder / Chelsea M. COOPER in Autism, 27-2 (February 2023)  

Public ISBD [article]  inAutism > 27-2 (February 2023) . - p.331-343 Titre : Predictors of expert providers’ familiarity with intervention practices for school- and transition-age youth with autism spectrum disorder Type de document : Texte imprimé et/ou numérique Auteurs : Chelsea M. COOPER, Auteur ; Tamara ROSEN, Auteur ; Hyunsik KIM, Auteur ; Nicholas R. EATON, Auteur ; Elizabeth COHN, Auteur ; Amy DRAHOTA, Auteur ; Lauren J. MOSKOWITZ, Auteur ; Matthew D. LERNER, Auteur ; Connor M. KERNS, Auteur Article en page(s) : p.331-343 Langues : Anglais (eng) Mots-clés : adolescents  adults  autism spectrum disorders  interventions-psychosocial/behavioral  psychiatric comorbidity  school-age children Index. décimale : PER Périodiques Résumé : Understanding the types of intervention practices familiar to transdisciplinary autism spectrum disorder providers may be critical to characterize and optimize "usual care" for common clinical concerns (e.g. internalizing, externalizing, and social challenges) among school- and transition-age autistic youth. We assessed if there is an underlying factor structure to expert providers’ familiarity with such practices, and if characteristics of experts (discipline, years’ experience, and school setting) and/or their clients (age and intellectual disability) predicted these factors. Fifty-three expert providers rated their familiarity with 55 practices via an online Delphi poll. Exploratory structural equation modeling identified latent factors of familiarity, which were regressed onto provider and client variables to identify predictors. Four factors emerged: two approaches (cognitive and behavioral) and two strategies (engagement and accessibility). Cognitive approaches were associated with practicing outside school settings and treating clients without intellectual disability, behavioral approaches with practicing in schools and the disciplines of clinical psychology and behavior analysis, engagement strategies with practicing outside school settings, and accessibility strategies with more years in practice. Findings suggest expert transdisciplinary autism spectrum disorder providers are familiar with many of the same approaches and that differences in knowledge are predicted by their discipline, treatment setting, experience, and work with youth with intellectual disabilities. En ligne : http://dx.doi.org/10.1177/13623613221100787 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=493 [article] Predictors of expert providers’ familiarity with intervention practices for school- and transition-age youth with autism spectrum disorder [Texte imprimé et/ou numérique] / Chelsea M. COOPER, Auteur ; Tamara ROSEN, Auteur ; Hyunsik KIM, Auteur ; Nicholas R. EATON, Auteur ; Elizabeth COHN, Auteur ; Amy DRAHOTA, Auteur ; Lauren J. MOSKOWITZ, Auteur ; Matthew D. LERNER, Auteur ; Connor M. KERNS, Auteur . - p.331-343. Langues : Anglais (eng) in Autism > 27-2 (February 2023) . - p.331-343 Mots-clés : adolescents  adults  autism spectrum disorders  interventions-psychosocial/behavioral  psychiatric comorbidity  school-age children Index. décimale : PER Périodiques Résumé : Understanding the types of intervention practices familiar to transdisciplinary autism spectrum disorder providers may be critical to characterize and optimize "usual care" for common clinical concerns (e.g. internalizing, externalizing, and social challenges) among school- and transition-age autistic youth. We assessed if there is an underlying factor structure to expert providers’ familiarity with such practices, and if characteristics of experts (discipline, years’ experience, and school setting) and/or their clients (age and intellectual disability) predicted these factors. Fifty-three expert providers rated their familiarity with 55 practices via an online Delphi poll. Exploratory structural equation modeling identified latent factors of familiarity, which were regressed onto provider and client variables to identify predictors. Four factors emerged: two approaches (cognitive and behavioral) and two strategies (engagement and accessibility). Cognitive approaches were associated with practicing outside school settings and treating clients without intellectual disability, behavioral approaches with practicing in schools and the disciplines of clinical psychology and behavior analysis, engagement strategies with practicing outside school settings, and accessibility strategies with more years in practice. Findings suggest expert transdisciplinary autism spectrum disorder providers are familiar with many of the same approaches and that differences in knowledge are predicted by their discipline, treatment setting, experience, and work with youth with intellectual disabilities. En ligne : http://dx.doi.org/10.1177/13623613221100787 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=493

Consensus statements on optimal adult post-autism diagnosis support and services: Delphi process following a UK survey of autistic adults, relatives and clinicians / Sarah WIGHAM in Autism, 27-2 (February 2023)  

Public ISBD [article]  inAutism > 27-2 (February 2023) . - p.344-355 Titre : Consensus statements on optimal adult post-autism diagnosis support and services: Delphi process following a UK survey of autistic adults, relatives and clinicians Type de document : Texte imprimé et/ou numérique Auteurs : Sarah WIGHAM, Auteur ; Barry INGHAM, Auteur ; Ann LE COUTEUR, Auteur ; Colin WILSON, Auteur ; Ian ENSUM, Auteur ; Jeremy R. PARR, Auteur Article en page(s) : p.344-355 Langues : Anglais (eng) Mots-clés : adult  autism  Delphi consensus  optimal services  post-diagnostic support  stakeholder involvement Index. décimale : PER Périodiques Résumé : Opportunities for adults to access support following a clinical diagnosis of autism are limited. This study investigated perspectives of autistic adults, relatives and clinicians regarding characteristics of optimal adult autism post-diagnosis support and services. In Stage 1, key stakeholders were surveyed about recent experiences of UK adult autism post-diagnostic services immediately following assessment/up to 12 months afterwards. Information gathered from Stage 1 was used to devise a set of statements describing optimal post-autism diagnostic support/service characteristics. In Stage 2 statements were presented to clinicians in a modified Delphi process. Data analyses were non-parametric and descriptive. Three hundred forty-three autistic adults and 45 relatives completed the Stage 1 surveys. Thirty-five clinicians completed a parallel survey. Just over half of adults and relatives reported receiving a follow-up appointment. Fewer than 40% of autistic people received support/services 12 months after diagnosis. Eleven statements describing optimal post-autism diagnostic support/service provision were developed and consensus among clinicians was reached on all. Autistic adults, relatives and clinicians described some aspects of post-autism diagnosis support and services positively; however, there were significant opportunities for improvement. The study findings can be used to develop current UK post-diagnosis support and services and may be relevant internationally. En ligne : http://dx.doi.org/10.1177/13623613221097502 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=493 [article] Consensus statements on optimal adult post-autism diagnosis support and services: Delphi process following a UK survey of autistic adults, relatives and clinicians [Texte imprimé et/ou numérique] / Sarah WIGHAM, Auteur ; Barry INGHAM, Auteur ; Ann LE COUTEUR, Auteur ; Colin WILSON, Auteur ; Ian ENSUM, Auteur ; Jeremy R. PARR, Auteur . - p.344-355. Langues : Anglais (eng) in Autism > 27-2 (February 2023) . - p.344-355 Mots-clés : adult  autism  Delphi consensus  optimal services  post-diagnostic support  stakeholder involvement Index. décimale : PER Périodiques Résumé : Opportunities for adults to access support following a clinical diagnosis of autism are limited. This study investigated perspectives of autistic adults, relatives and clinicians regarding characteristics of optimal adult autism post-diagnosis support and services. In Stage 1, key stakeholders were surveyed about recent experiences of UK adult autism post-diagnostic services immediately following assessment/up to 12 months afterwards. Information gathered from Stage 1 was used to devise a set of statements describing optimal post-autism diagnostic support/service characteristics. In Stage 2 statements were presented to clinicians in a modified Delphi process. Data analyses were non-parametric and descriptive. Three hundred forty-three autistic adults and 45 relatives completed the Stage 1 surveys. Thirty-five clinicians completed a parallel survey. Just over half of adults and relatives reported receiving a follow-up appointment. Fewer than 40% of autistic people received support/services 12 months after diagnosis. Eleven statements describing optimal post-autism diagnostic support/service provision were developed and consensus among clinicians was reached on all. Autistic adults, relatives and clinicians described some aspects of post-autism diagnosis support and services positively; however, there were significant opportunities for improvement. The study findings can be used to develop current UK post-diagnosis support and services and may be relevant internationally. En ligne : http://dx.doi.org/10.1177/13623613221097502 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=493

Learning from the experts: Evaluating a participatory autism and universal design training for university educators / TC WAISMAN in Autism, 27-2 (February 2023)  

Public ISBD [article]  inAutism > 27-2 (February 2023) . - p.356-370 Titre : Learning from the experts: Evaluating a participatory autism and universal design training for university educators Type de document : Texte imprimé et/ou numérique Auteurs : TC WAISMAN, Auteur ; Zachary J. WILLIAMS, Auteur ; Eilidh CAGE, Auteur ; Siva Priya SANTHANAM, Auteur ; Iliana MAGIATI, Auteur ; Patrick DWYER, Auteur ; Kayden M. STOCKWELL, Auteur ; Bella KOFNER, Auteur ; Heather BROWN, Auteur ; Denise DAVIDSON, Auteur ; Jessye HERRELL, Auteur ; Stephen M. SHORE, Auteur ; Dave CAUDEL, Auteur ; Emine GURBUZ, Auteur ; Kristen GILLESPIE-LYNCH, Auteur Article en page(s) : p.356-370 Langues : Anglais (eng) Mots-clés : autism training  autistic university students  higher education  participatory  stigma  universal design Index. décimale : PER Périodiques Résumé : Autistic students experience strengths and challenges that can impact their full inclusion in higher education, including stigma. A participatory team of autistic and non-autistic scholars developed an autism and universal design (UD) training. This participatory approach centered the voices of autistic collaborators in training design and evaluation. Ninety-eight educators from 53 institutions across five countries completed assessments before training (pre-tests), 89 completed post-tests (after training), and 82 completed maintenance assessments (a month after post-test). Pre-test autism stigma was heightened among males, educators with less autism knowledge, and those who reported heightened social dominance orientation. Autism knowledge, autism stigma, and attitudes toward UD improved with training. Improvements remained apparent a month after post-test but were somewhat attenuated for knowledge and stigma. To the best of our knowledge, this is the first evidence of maintenance of benefits of an autism training over time. Participants’ main reason for enrolling in the study was to gain a better understanding about neurodiversity. Feedback indicates that this goal was reached by most with the added benefit of gaining understanding about UD. Results suggest that interest in one type of diversity (e.g. autism) can motivate faculty to learn UD-aligned teaching strategies that benefit diverse students more generally. En ligne : http://dx.doi.org/10.1177/13623613221097207 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=493 [article] Learning from the experts: Evaluating a participatory autism and universal design training for university educators [Texte imprimé et/ou numérique] / TC WAISMAN, Auteur ; Zachary J. WILLIAMS, Auteur ; Eilidh CAGE, Auteur ; Siva Priya SANTHANAM, Auteur ; Iliana MAGIATI, Auteur ; Patrick DWYER, Auteur ; Kayden M. STOCKWELL, Auteur ; Bella KOFNER, Auteur ; Heather BROWN, Auteur ; Denise DAVIDSON, Auteur ; Jessye HERRELL, Auteur ; Stephen M. SHORE, Auteur ; Dave CAUDEL, Auteur ; Emine GURBUZ, Auteur ; Kristen GILLESPIE-LYNCH, Auteur . - p.356-370. Langues : Anglais (eng) in Autism > 27-2 (February 2023) . - p.356-370 Mots-clés : autism training  autistic university students  higher education  participatory  stigma  universal design Index. décimale : PER Périodiques Résumé : Autistic students experience strengths and challenges that can impact their full inclusion in higher education, including stigma. A participatory team of autistic and non-autistic scholars developed an autism and universal design (UD) training. This participatory approach centered the voices of autistic collaborators in training design and evaluation. Ninety-eight educators from 53 institutions across five countries completed assessments before training (pre-tests), 89 completed post-tests (after training), and 82 completed maintenance assessments (a month after post-test). Pre-test autism stigma was heightened among males, educators with less autism knowledge, and those who reported heightened social dominance orientation. Autism knowledge, autism stigma, and attitudes toward UD improved with training. Improvements remained apparent a month after post-test but were somewhat attenuated for knowledge and stigma. To the best of our knowledge, this is the first evidence of maintenance of benefits of an autism training over time. Participants’ main reason for enrolling in the study was to gain a better understanding about neurodiversity. Feedback indicates that this goal was reached by most with the added benefit of gaining understanding about UD. Results suggest that interest in one type of diversity (e.g. autism) can motivate faculty to learn UD-aligned teaching strategies that benefit diverse students more generally. En ligne : http://dx.doi.org/10.1177/13623613221097207 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=493

Nutrient intake and adequacy in children with autism spectrum disorder: EPINED epidemiological study / Victoria ARIJA in Autism, 27-2 (February 2023)  

Public ISBD [article]  inAutism > 27-2 (February 2023) . - p.371-388 Titre : Nutrient intake and adequacy in children with autism spectrum disorder: EPINED epidemiological study Type de document : Texte imprimé et/ou numérique Auteurs : Victoria ARIJA, Auteur ; Patricia ESTEBAN-FIGUEROLA, Auteur ; Paula MORALES-HIDALGO, Auteur ; Cristina JARDI, Auteur ; Josefa CANALS-SANS, Auteur Article en page(s) : p.371-388 Langues : Anglais (eng) Mots-clés : autism spectrum disorder  mineral  nutrition/feeding  preschool children  primary school children  vitamin Index. décimale : PER Périodiques Résumé : This article assesses nutritional intake and adequacy in children with autism spectrum disorder (ASD), subdiagnostic autistic symptoms and children with typical development (TD). In total, 77 children diagnosed with ASD, 40 with subdiagnostic autistic symptoms and 333 children with TD were assessed. A validated food frequency questionnaire was used. Very few nutritional differences were found between ASD and TD groups. Preschool children with ASD and subdiagnostic autistic symptoms had slightly lower intake of monounsaturated fatty acids (MUFA), vitamin D and vitamin B12, and primary school children with ASD and subdiagnostic autistic symptoms had slightly higher intake of protein, cholesterol, thiamine and niacin, and a higher percentage of obesity than children with TD. All samples had an unbalanced energy intake (high in added sugars, fats and saturated fatty acids (SFAs); extremely inadequate intake (80% “100%) of vitamins D and E; high intake (50% “80%) of fibre, b-carotene (except preschool children with TD), calcium (except preschool children) and magnesium). The fact that differences between diagnoses are scarce may be related to the low level of ASD severity in this school sample. En ligne : http://dx.doi.org/10.1177/13623613221098237 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=493 [article] Nutrient intake and adequacy in children with autism spectrum disorder: EPINED epidemiological study [Texte imprimé et/ou numérique] / Victoria ARIJA, Auteur ; Patricia ESTEBAN-FIGUEROLA, Auteur ; Paula MORALES-HIDALGO, Auteur ; Cristina JARDI, Auteur ; Josefa CANALS-SANS, Auteur . - p.371-388. Langues : Anglais (eng) in Autism > 27-2 (February 2023) . - p.371-388 Mots-clés : autism spectrum disorder  mineral  nutrition/feeding  preschool children  primary school children  vitamin Index. décimale : PER Périodiques Résumé : This article assesses nutritional intake and adequacy in children with autism spectrum disorder (ASD), subdiagnostic autistic symptoms and children with typical development (TD). In total, 77 children diagnosed with ASD, 40 with subdiagnostic autistic symptoms and 333 children with TD were assessed. A validated food frequency questionnaire was used. Very few nutritional differences were found between ASD and TD groups. Preschool children with ASD and subdiagnostic autistic symptoms had slightly lower intake of monounsaturated fatty acids (MUFA), vitamin D and vitamin B12, and primary school children with ASD and subdiagnostic autistic symptoms had slightly higher intake of protein, cholesterol, thiamine and niacin, and a higher percentage of obesity than children with TD. All samples had an unbalanced energy intake (high in added sugars, fats and saturated fatty acids (SFAs); extremely inadequate intake (80% “100%) of vitamins D and E; high intake (50% “80%) of fibre, b-carotene (except preschool children with TD), calcium (except preschool children) and magnesium). The fact that differences between diagnoses are scarce may be related to the low level of ASD severity in this school sample. En ligne : http://dx.doi.org/10.1177/13623613221098237 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=493

Prospective relationship between autistic traits and nutrient intakes among Japanese children: Results of the Shika study / Hiromasa TSUJIGUCHI in Autism, 27-2 (February 2023)  

Public ISBD [article]  inAutism > 27-2 (February 2023) . - p.389-401 Titre : Prospective relationship between autistic traits and nutrient intakes among Japanese children: Results of the Shika study Type de document : Texte imprimé et/ou numérique Auteurs : Hiromasa TSUJIGUCHI, Auteur ; Akinori HARA, Auteur ; Sakae MIYAGI, Auteur ; Kim Oanh PHAM, Auteur ; Keita SUZUKI, Auteur ; Thao Thi Thu NGUYEN, Auteur ; Yasuki ONO, Auteur ; Yasuhiro KAMBAYASHI, Auteur ; Yukari SHIMIZU, Auteur ; Haruki NAKAMURA, Auteur ; Fumihiko SUZUKI, Auteur ; Aki SHIBATA, Auteur ; Koichi HAYASHI, Auteur ; Hirohito TSUBOI, Auteur ; Hiroyuki NAKAMURA, Auteur Article en page(s) : p.389-401 Langues : Anglais (eng) Mots-clés : ASD  children  longitudinal  nutrient  population-based Index. décimale : PER Périodiques Résumé : Increased food selectivity among children with autism spectrum disorder may lead to nutritional inadequacy. We designed this study to examine the prospective relationship between autistic traits in children and subsequent nutrient intake in later childhood and whether this relationship changes over time. We utilized longitudinal data obtained at two time points from the Shika study, an ongoing population-based study conducted in a rural area of Japan. Participants were 759 Japanese children aged between 7 and 12 years at baseline and between 10 and 15 years in the follow-up. The results obtained showed relatively lower intakes of sodium, calcium, magnesium, iron, vitamin D, vitamin B2, and vitamin B12 among children with than without autistic traits. Interactions were observed among autistic traits and time points for iron, vitamin B2, folic acid, and pantothenic acid. The results of this study suggest the importance of screening the nutrient intake of children with autistic traits across childhood in order to reduce the risk of restricted intake. En ligne : http://dx.doi.org/10.1177/13623613221097487 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=493 [article] Prospective relationship between autistic traits and nutrient intakes among Japanese children: Results of the Shika study [Texte imprimé et/ou numérique] / Hiromasa TSUJIGUCHI, Auteur ; Akinori HARA, Auteur ; Sakae MIYAGI, Auteur ; Kim Oanh PHAM, Auteur ; Keita SUZUKI, Auteur ; Thao Thi Thu NGUYEN, Auteur ; Yasuki ONO, Auteur ; Yasuhiro KAMBAYASHI, Auteur ; Yukari SHIMIZU, Auteur ; Haruki NAKAMURA, Auteur ; Fumihiko SUZUKI, Auteur ; Aki SHIBATA, Auteur ; Koichi HAYASHI, Auteur ; Hirohito TSUBOI, Auteur ; Hiroyuki NAKAMURA, Auteur . - p.389-401. Langues : Anglais (eng) in Autism > 27-2 (February 2023) . - p.389-401 Mots-clés : ASD  children  longitudinal  nutrient  population-based Index. décimale : PER Périodiques Résumé : Increased food selectivity among children with autism spectrum disorder may lead to nutritional inadequacy. We designed this study to examine the prospective relationship between autistic traits in children and subsequent nutrient intake in later childhood and whether this relationship changes over time. We utilized longitudinal data obtained at two time points from the Shika study, an ongoing population-based study conducted in a rural area of Japan. Participants were 759 Japanese children aged between 7 and 12 years at baseline and between 10 and 15 years in the follow-up. The results obtained showed relatively lower intakes of sodium, calcium, magnesium, iron, vitamin D, vitamin B2, and vitamin B12 among children with than without autistic traits. Interactions were observed among autistic traits and time points for iron, vitamin B2, folic acid, and pantothenic acid. The results of this study suggest the importance of screening the nutrient intake of children with autistic traits across childhood in order to reduce the risk of restricted intake. En ligne : http://dx.doi.org/10.1177/13623613221097487 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=493

Sex differences in predictors and outcomes of camouflaging: Comparing diagnosed autistic, high autistic trait and low autistic trait young adults / Victoria MILNER in Autism, 27-2 (February 2023)  

Public ISBD [article]  inAutism > 27-2 (February 2023) . - p.402-414 Titre : Sex differences in predictors and outcomes of camouflaging: Comparing diagnosed autistic, high autistic trait and low autistic trait young adults Type de document : Texte imprimé et/ou numérique Auteurs : Victoria MILNER, Auteur ; Will MANDY, Auteur ; Francesca HAPPE, Auteur ; Emma COLVERT, Auteur Article en page(s) : p.402-414 Langues : Anglais (eng) Mots-clés : autism  camouflaging  compensation  female autism  sex differences in autism Index. décimale : PER Périodiques Résumé : Many autistic individuals camouflage socially atypical behaviours. Evidence suggests autistic females camouflage more than autistic males. Although camouflaging may confer some benefits, it is also associated with negative outcomes including poorer mental health and well-being. Those with high autistic traits but no clinical diagnosis are not seldom included in camouflaging research, therefore we cannot ascertain whether camouflaging plays a role in the underdiagnosis of autistic females. Data from young adults with a diagnosis of autism (n=78), high autistic traits but no diagnosis (n=177) or low autistic traits (n=180) revealed autistic females reported camouflaging significantly more than other groups. Males and females with low autistic traits reported significantly lower camouflaging than high trait and diagnosed groups. Loneliness was a key predictor of camouflaging for the diagnosed group only. Camouflaging was found to predict lower psychological quality of life for the diagnosed group, and lower social quality of life for the high trait and low trait groups. Overall, findings indicated that, although all groups reported camouflaging, the motivations for doing so may be different for diagnosed autistic individuals. It is important for stakeholders and society to improve understanding of autism and acceptance of atypical behaviour to alleviate possible negative outcomes associated with camouflaging. En ligne : http://dx.doi.org/10.1177/13623613221098240 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=493 [article] Sex differences in predictors and outcomes of camouflaging: Comparing diagnosed autistic, high autistic trait and low autistic trait young adults [Texte imprimé et/ou numérique] / Victoria MILNER, Auteur ; Will MANDY, Auteur ; Francesca HAPPE, Auteur ; Emma COLVERT, Auteur . - p.402-414. Langues : Anglais (eng) in Autism > 27-2 (February 2023) . - p.402-414 Mots-clés : autism  camouflaging  compensation  female autism  sex differences in autism Index. décimale : PER Périodiques Résumé : Many autistic individuals camouflage socially atypical behaviours. Evidence suggests autistic females camouflage more than autistic males. Although camouflaging may confer some benefits, it is also associated with negative outcomes including poorer mental health and well-being. Those with high autistic traits but no clinical diagnosis are not seldom included in camouflaging research, therefore we cannot ascertain whether camouflaging plays a role in the underdiagnosis of autistic females. Data from young adults with a diagnosis of autism (n=78), high autistic traits but no diagnosis (n=177) or low autistic traits (n=180) revealed autistic females reported camouflaging significantly more than other groups. Males and females with low autistic traits reported significantly lower camouflaging than high trait and diagnosed groups. Loneliness was a key predictor of camouflaging for the diagnosed group only. Camouflaging was found to predict lower psychological quality of life for the diagnosed group, and lower social quality of life for the high trait and low trait groups. Overall, findings indicated that, although all groups reported camouflaging, the motivations for doing so may be different for diagnosed autistic individuals. It is important for stakeholders and society to improve understanding of autism and acceptance of atypical behaviour to alleviate possible negative outcomes associated with camouflaging. En ligne : http://dx.doi.org/10.1177/13623613221098240 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=493

Clinician factors related to the delivery of psychotherapy for autistic youth and youth with attention-deficit hyperactivity disorder / Flora ROUDBARANI in Autism, 27-2 (February 2023)  

Public ISBD [article]  inAutism > 27-2 (February 2023) . - p.415-427 Titre : Clinician factors related to the delivery of psychotherapy for autistic youth and youth with attention-deficit hyperactivity disorder Type de document : Texte imprimé et/ou numérique Auteurs : Flora ROUDBARANI, Auteur ; Paula TABLON-MODICA, Auteur ; Brenna B. MADDOX, Auteur ; Yvonne BOHR, Auteur ; Jonathan A. WEISS, Auteur Article en page(s) : p.415-427 Langues : Anglais (eng) Mots-clés : ADHD  autism  children  clinicians  intention  mental health  psychotherapy  theory of planned behaviour Index. décimale : PER Périodiques Résumé : Autistic children and adolescents are more likely than non-autistic youth to experience mental health problems, such as anxiety or depression, but less likely to receive psychotherapy to address these concerns. Recent research indicates that clinician factors, such as knowledge, attitudes, confidence and beliefs, can impact their decisions to provide care, though this work has primarily focused on adults or within the context of one kind of treatment (cognitive behaviour therapy). The current study examined psychological predictors (e.g. attitudes and confidence) of clinicians’ intention to deliver psychotherapy to autistic youth and those with attention-deficit hyperactivity disorder. Participants included 611 clinicians across publicly funded agencies in Ontario, Canada. Multiple mediation analyses revealed that clinician knowledge on mental health-related topics (e.g. core symptoms, developing treatment plans and identifying progress towards treatment goals) was associated with intention to treat autistic clients or clients with attention-deficit hyperactivity disorder, and normative pressures and attitudes partially mediated this association. Clinicians felt less likely to treat autistic clients than clients with attention-deficit hyperactivity disorder, partly because of differences in attitudes, normative pressures and knowledge. This research suggests that targeted training around autism and mental health care may be a useful initiative for agency staff. En ligne : http://dx.doi.org/10.1177/13623613221106400 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=493 [article] Clinician factors related to the delivery of psychotherapy for autistic youth and youth with attention-deficit hyperactivity disorder [Texte imprimé et/ou numérique] / Flora ROUDBARANI, Auteur ; Paula TABLON-MODICA, Auteur ; Brenna B. MADDOX, Auteur ; Yvonne BOHR, Auteur ; Jonathan A. WEISS, Auteur . - p.415-427. Langues : Anglais (eng) in Autism > 27-2 (February 2023) . - p.415-427 Mots-clés : ADHD  autism  children  clinicians  intention  mental health  psychotherapy  theory of planned behaviour Index. décimale : PER Périodiques Résumé : Autistic children and adolescents are more likely than non-autistic youth to experience mental health problems, such as anxiety or depression, but less likely to receive psychotherapy to address these concerns. Recent research indicates that clinician factors, such as knowledge, attitudes, confidence and beliefs, can impact their decisions to provide care, though this work has primarily focused on adults or within the context of one kind of treatment (cognitive behaviour therapy). The current study examined psychological predictors (e.g. attitudes and confidence) of clinicians’ intention to deliver psychotherapy to autistic youth and those with attention-deficit hyperactivity disorder. Participants included 611 clinicians across publicly funded agencies in Ontario, Canada. Multiple mediation analyses revealed that clinician knowledge on mental health-related topics (e.g. core symptoms, developing treatment plans and identifying progress towards treatment goals) was associated with intention to treat autistic clients or clients with attention-deficit hyperactivity disorder, and normative pressures and attitudes partially mediated this association. Clinicians felt less likely to treat autistic clients than clients with attention-deficit hyperactivity disorder, partly because of differences in attitudes, normative pressures and knowledge. This research suggests that targeted training around autism and mental health care may be a useful initiative for agency staff. En ligne : http://dx.doi.org/10.1177/13623613221106400 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=493

Predicting intervention use in autistic children: Demographic and autism-specific characteristics / Kim M. JONKMAN in Autism, 27-2 (February 2023)  

Public ISBD [article]  inAutism > 27-2 (February 2023) . - p.428-442 Titre : Predicting intervention use in autistic children: Demographic and autism-specific characteristics Type de document : Texte imprimé et/ou numérique Auteurs : Kim M. JONKMAN, Auteur ; Elisa BACK, Auteur ; Sander BEGEER, Auteur Article en page(s) : p.428-442 Langues : Anglais (eng) Mots-clés : autism spectrum disorders  health services  interventions – pharmacologic  interventions – psychosocial/behavioural  treatment use Index. décimale : PER Périodiques Résumé : Autism is a heterogeneous diagnosis with symptoms that present in different ways. There is a large variety of interventions for autistic individuals. However, little is known about who chooses which specific interventions. We aimed to explore intervention prevalence and predict intervention use, based on demographic and autism-specific characteristics. This study used data on autistic children (N=1464, aged 1 “17 years) from the Netherlands Autism Register. Most children (88%) had received therapies, and about half had received medication. Intervention use was mostly related to additional factors (lower IQ, special education and co-occurring diagnoses). Children with a lower IQ received less therapies, children attending special education or with a co-occurring diagnosis received more therapies. Children in special education or with a co-occurring diagnosis were more likely to receive several types of therapy and medication. Older age, higher IQ and being female were related to more guideline (autism-specific) or mainstream (targeting co-occurring problems) therapy use. Lower parental education was related to more mainstream medication use. More severe sensory issues increased the chance of other medication use. Other autism-specific characteristics (autism severity, social skills, repetitive and restrictive behaviours) were not related to intervention use. More transdiagnostic interventions should be available for children with autism who have additional difficulties. En ligne : http://dx.doi.org/10.1177/13623613221102748 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=493 [article] Predicting intervention use in autistic children: Demographic and autism-specific characteristics [Texte imprimé et/ou numérique] / Kim M. JONKMAN, Auteur ; Elisa BACK, Auteur ; Sander BEGEER, Auteur . - p.428-442. Langues : Anglais (eng) in Autism > 27-2 (February 2023) . - p.428-442 Mots-clés : autism spectrum disorders  health services  interventions – pharmacologic  interventions – psychosocial/behavioural  treatment use Index. décimale : PER Périodiques Résumé : Autism is a heterogeneous diagnosis with symptoms that present in different ways. There is a large variety of interventions for autistic individuals. However, little is known about who chooses which specific interventions. We aimed to explore intervention prevalence and predict intervention use, based on demographic and autism-specific characteristics. This study used data on autistic children (N=1464, aged 1 “17 years) from the Netherlands Autism Register. Most children (88%) had received therapies, and about half had received medication. Intervention use was mostly related to additional factors (lower IQ, special education and co-occurring diagnoses). Children with a lower IQ received less therapies, children attending special education or with a co-occurring diagnosis received more therapies. Children in special education or with a co-occurring diagnosis were more likely to receive several types of therapy and medication. Older age, higher IQ and being female were related to more guideline (autism-specific) or mainstream (targeting co-occurring problems) therapy use. Lower parental education was related to more mainstream medication use. More severe sensory issues increased the chance of other medication use. Other autism-specific characteristics (autism severity, social skills, repetitive and restrictive behaviours) were not related to intervention use. More transdiagnostic interventions should be available for children with autism who have additional difficulties. En ligne : http://dx.doi.org/10.1177/13623613221102748 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=493

One size does not fit all for parent-mediated autism interventions: A randomized clinical trial / Megan Y. ROBERTS in Autism, 27-2 (February 2023)  

Public ISBD [article]  inAutism > 27-2 (February 2023) . - p.443-455 Titre : One size does not fit all for parent-mediated autism interventions: A randomized clinical trial Type de document : Texte imprimé et/ou numérique Auteurs : Megan Y. ROBERTS, Auteur ; Bailey J. SONE, Auteur ; Maranda JONES, Auteur ; Jeffrey GRAUZER, Auteur ; Laura SUDEC, Auteur ; Yael S STERN, Auteur ; Elaine KWOK, Auteur ; Molly LOSH, Auteur ; Aaron KAAT, Auteur Article en page(s) : p.443-455 Langues : Anglais (eng) Mots-clés : autism spectrum disorders  communication and language  interventions-psychosocial/behavioral Index. décimale : PER Périodiques Résumé : Coaching parents to use language facilitation strategies improves long-term language outcomes for autistic children. To optimize parent-mediated interventions, more studies need to explore factors that influence parents’ learning. This study involved 119 autistic children (18 “48 months) and their biological mothers enrolled in a single-site, factorial randomized clinical trial. Mothers were taught to use one of two types of language facilitation strategies (responsive or directive) during eight weekly, hour-long instructional sessions. We explored the impact of (a) type of language facilitation strategy, (b) maternal Broad Autism Phenotype (subclinical traits of autism spectrum disorder), and (c) preintervention strategy use on mothers’ outcomes measured immediately and 3 months after intervention sessions. At postintervention, mothers who learned responsive strategies demonstrated significantly greater use of taught strategies than mothers who learned directive strategies (d=0.90, 95% CI =[0.47, 1.32]). Mothers’ use of taught strategies did not differ by Broad Autism Phenotype status. However, a significant two-way interaction was found between preintervention strategy use and Broad Autism Phenotype status on taught strategy use (F(1, 107)=6.04, p=0.016, ΔR2=0.053). Findings suggest that strategy type, maternal Broad Autism Phenotype status, and preintervention strategy use may be important factors to be considered to individualize parent-mediated interventions. En ligne : http://dx.doi.org/10.1177/13623613221102736 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=493 [article] One size does not fit all for parent-mediated autism interventions: A randomized clinical trial [Texte imprimé et/ou numérique] / Megan Y. ROBERTS, Auteur ; Bailey J. SONE, Auteur ; Maranda JONES, Auteur ; Jeffrey GRAUZER, Auteur ; Laura SUDEC, Auteur ; Yael S STERN, Auteur ; Elaine KWOK, Auteur ; Molly LOSH, Auteur ; Aaron KAAT, Auteur . - p.443-455. Langues : Anglais (eng) in Autism > 27-2 (February 2023) . - p.443-455 Mots-clés : autism spectrum disorders  communication and language  interventions-psychosocial/behavioral Index. décimale : PER Périodiques Résumé : Coaching parents to use language facilitation strategies improves long-term language outcomes for autistic children. To optimize parent-mediated interventions, more studies need to explore factors that influence parents’ learning. This study involved 119 autistic children (18 “48 months) and their biological mothers enrolled in a single-site, factorial randomized clinical trial. Mothers were taught to use one of two types of language facilitation strategies (responsive or directive) during eight weekly, hour-long instructional sessions. We explored the impact of (a) type of language facilitation strategy, (b) maternal Broad Autism Phenotype (subclinical traits of autism spectrum disorder), and (c) preintervention strategy use on mothers’ outcomes measured immediately and 3 months after intervention sessions. At postintervention, mothers who learned responsive strategies demonstrated significantly greater use of taught strategies than mothers who learned directive strategies (d=0.90, 95% CI =[0.47, 1.32]). Mothers’ use of taught strategies did not differ by Broad Autism Phenotype status. However, a significant two-way interaction was found between preintervention strategy use and Broad Autism Phenotype status on taught strategy use (F(1, 107)=6.04, p=0.016, ΔR2=0.053). Findings suggest that strategy type, maternal Broad Autism Phenotype status, and preintervention strategy use may be important factors to be considered to individualize parent-mediated interventions. En ligne : http://dx.doi.org/10.1177/13623613221102736 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=493

Motor stereotypies in autism spectrum disorder: Clinical randomized study and classification proposal / ClAudia MELO in Autism, 27-2 (February 2023)  

Public ISBD [article]  inAutism > 27-2 (February 2023) . - p.456-471 Titre : Motor stereotypies in autism spectrum disorder: Clinical randomized study and classification proposal Type de document : Texte imprimé et/ou numérique Auteurs : ClAudia MELO, Auteur ; Tiago Pinto RIBEIRO, Auteur ; Catarina PRIOR, Auteur ; Camila GESTA, Auteur ; Vânia MARTINS, Auteur ; Guiomar OLIVEIRA, Auteur ; Teresa TEMUDO, Auteur Article en page(s) : p.456-471 Langues : Anglais (eng) Mots-clés : autism  epidemiologic determinants  intellectual disability  prevalence  stereotypies Index. décimale : PER Périodiques Résumé : Motor stereotypies are frequently reported in individuals with autism spectrum disorder, but determinants of stereotypies remain poorly understood. In this study, a randomized sample of children with diagnosis of autism spectrum disorder was investigated to identify the prevalence and determinants of stereotypies. A total of 134 children who carried the diagnosis of autism spectrum disorder were included (aged 2.3 “17.6 years; 79.1% male). Stereotypies were classified during a standardized protocol with video recording. The prevalence of stereotypies was 56.7%. Among 1198 captured stereotypies, hand/arm stereotypies were the most frequent. Thirty-five morphology patterns were identified, the most frequent being hand flapping, tapping, and jumping. In univariate analysis, an association was found between stereotypies and younger age (odds ratio=0.74), developmental delay, or intellectual disability (odds ratio=5.25), being nonverbal (odds ratio=0.06), epilepsy (odds ratio=3.89), Autism Diagnostic Interview “Revised-A score (odds ratio=1.17), Autism Diagnostic Interview “Revised-C score (odds ratio=1.25), and Autism Diagnostic Observation Schedule “2 score (odds ratio=1.65). After multivariate analysis, only younger age, being nonverbal, and Autism Diagnostic Interview “Revised-A and Autism Diagnostic Observation Schedule “2 scores remained as determinants of stereotypies. The prevalence of stereotypies in autism spectrum disorder was close to the values obtained in a previous meta-analysis and seems to represent a valid value. The combination of younger age, being nonverbal, and autism severity seems to increase the odds of stereotypies. En ligne : http://dx.doi.org/10.1177/13623613221105479 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=493 [article] Motor stereotypies in autism spectrum disorder: Clinical randomized study and classification proposal [Texte imprimé et/ou numérique] / ClAudia MELO, Auteur ; Tiago Pinto RIBEIRO, Auteur ; Catarina PRIOR, Auteur ; Camila GESTA, Auteur ; Vânia MARTINS, Auteur ; Guiomar OLIVEIRA, Auteur ; Teresa TEMUDO, Auteur . - p.456-471. Langues : Anglais (eng) in Autism > 27-2 (February 2023) . - p.456-471 Mots-clés : autism  epidemiologic determinants  intellectual disability  prevalence  stereotypies Index. décimale : PER Périodiques Résumé : Motor stereotypies are frequently reported in individuals with autism spectrum disorder, but determinants of stereotypies remain poorly understood. In this study, a randomized sample of children with diagnosis of autism spectrum disorder was investigated to identify the prevalence and determinants of stereotypies. A total of 134 children who carried the diagnosis of autism spectrum disorder were included (aged 2.3 “17.6 years; 79.1% male). Stereotypies were classified during a standardized protocol with video recording. The prevalence of stereotypies was 56.7%. Among 1198 captured stereotypies, hand/arm stereotypies were the most frequent. Thirty-five morphology patterns were identified, the most frequent being hand flapping, tapping, and jumping. In univariate analysis, an association was found between stereotypies and younger age (odds ratio=0.74), developmental delay, or intellectual disability (odds ratio=5.25), being nonverbal (odds ratio=0.06), epilepsy (odds ratio=3.89), Autism Diagnostic Interview “Revised-A score (odds ratio=1.17), Autism Diagnostic Interview “Revised-C score (odds ratio=1.25), and Autism Diagnostic Observation Schedule “2 score (odds ratio=1.65). After multivariate analysis, only younger age, being nonverbal, and Autism Diagnostic Interview “Revised-A and Autism Diagnostic Observation Schedule “2 scores remained as determinants of stereotypies. The prevalence of stereotypies in autism spectrum disorder was close to the values obtained in a previous meta-analysis and seems to represent a valid value. The combination of younger age, being nonverbal, and autism severity seems to increase the odds of stereotypies. En ligne : http://dx.doi.org/10.1177/13623613221105479 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=493

Theory of mind in naturalistic conversations between autistic and typically developing children and adolescents / Diana ALKIRE in Autism, 27-2 (February 2023)  

Public ISBD [article]  inAutism > 27-2 (February 2023) . - p.472-488 Titre : Theory of mind in naturalistic conversations between autistic and typically developing children and adolescents Type de document : Texte imprimé et/ou numérique Auteurs : Diana ALKIRE, Auteur ; Kathryn A. MCNAUGHTON, Auteur ; Heather A. YARGER, Auteur ; Deena SHARIQ, Auteur ; Elizabeth REDCAY, Auteur Article en page(s) : p.472-488 Langues : Anglais (eng) Mots-clés : adolescents  autism spectrum disorders  behavioral measurement  communication and language  mentalizing  pragmatics  school-age children  social cognition and social behavior  social interaction  theory of mind Index. décimale : PER Périodiques Résumé : Successful social interactions are assumed to depend on theory of mind-the ability to represent others’ mental states-yet most studies of the relation between theory of mind and social-interactive success rely on non-interactive tasks that do not adequately capture the spontaneous engagement of theory of mind, a crucial component of everyday social interactions. We addressed this gap by establishing a novel observational rating scale to measure the spontaneous use of theory of mind (or lack thereof) within naturalistic conversations (conversational ToM; cToM). In 50 age- and gender-matched dyads of autistic and typically developing youth aged 8 “16 years (three dyad types: autistic “typically developing, typically developing “typically developing, autistic “autistic), we assessed cToM during 5-min unstructured conversations. We found that ratings on the cToM Negative scale, reflecting theory-of-mind-related violations of neurotypical conversational norms, were negatively associated with two forms of non-interactive theory of mind: visual-affective and spontaneous. In contrast, the cToM Positive scale, reflecting explicit mental state language and perspective-taking, was not associated with non-interactive theory of mind. Furthermore, autistic youth were rated higher than typically developing youth on cToM Negative, but the groups were rated similarly on cToM Positive. Together, these findings provide insight into multiple aspects of theory of mind in conversation and reveal a nuanced picture of the relative strengths and difficulties among autistic youth. En ligne : http://dx.doi.org/10.1177/13623613221103699 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=493 [article] Theory of mind in naturalistic conversations between autistic and typically developing children and adolescents [Texte imprimé et/ou numérique] / Diana ALKIRE, Auteur ; Kathryn A. MCNAUGHTON, Auteur ; Heather A. YARGER, Auteur ; Deena SHARIQ, Auteur ; Elizabeth REDCAY, Auteur . - p.472-488. Langues : Anglais (eng) in Autism > 27-2 (February 2023) . - p.472-488 Mots-clés : adolescents  autism spectrum disorders  behavioral measurement  communication and language  mentalizing  pragmatics  school-age children  social cognition and social behavior  social interaction  theory of mind Index. décimale : PER Périodiques Résumé : Successful social interactions are assumed to depend on theory of mind-the ability to represent others’ mental states-yet most studies of the relation between theory of mind and social-interactive success rely on non-interactive tasks that do not adequately capture the spontaneous engagement of theory of mind, a crucial component of everyday social interactions. We addressed this gap by establishing a novel observational rating scale to measure the spontaneous use of theory of mind (or lack thereof) within naturalistic conversations (conversational ToM; cToM). In 50 age- and gender-matched dyads of autistic and typically developing youth aged 8 “16 years (three dyad types: autistic “typically developing, typically developing “typically developing, autistic “autistic), we assessed cToM during 5-min unstructured conversations. We found that ratings on the cToM Negative scale, reflecting theory-of-mind-related violations of neurotypical conversational norms, were negatively associated with two forms of non-interactive theory of mind: visual-affective and spontaneous. In contrast, the cToM Positive scale, reflecting explicit mental state language and perspective-taking, was not associated with non-interactive theory of mind. Furthermore, autistic youth were rated higher than typically developing youth on cToM Negative, but the groups were rated similarly on cToM Positive. Together, these findings provide insight into multiple aspects of theory of mind in conversation and reveal a nuanced picture of the relative strengths and difficulties among autistic youth. En ligne : http://dx.doi.org/10.1177/13623613221103699 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=493

The autistic experience of homelessness: Implications from a narrative enquiry / Beth STONE in Autism, 27-2 (February 2023)  

Public ISBD [article]  inAutism > 27-2 (February 2023) . - p.489-499 Titre : The autistic experience of homelessness: Implications from a narrative enquiry Type de document : Texte imprimé et/ou numérique Auteurs : Beth STONE, Auteur ; Ailsa CAMERON, Auteur ; Sandra DOWLING, Auteur Article en page(s) : p.489-499 Langues : Anglais (eng) Mots-clés : autism  homelessness  narrative research  rough sleeping  service access  service engagement Index. décimale : PER Périodiques Résumé : Emerging research suggests autistic people are disproportionately represented in homeless populations. Less is known about how autistic people experience homelessness and what prevents them from exiting homelessness. This article presents findings from a narrative enquiry investigating the link between autism and homelessness. Ten autistic adults consented to participate in narrative interviews which explored their life histories and pathways through homelessness. This article considers how participants experienced rough sleeping and sofa surfing before attempting to access hostels. It then examines how participants navigated support systems, arguing that barriers to accessing services perpetuated homelessness. Because of these barriers, some participants disengaged with services, preferring to sleep rough. The extent to which participants could be said to have ˜chosen’ homelessness is balanced with consideration of the lack of autonomy autistic adults are able to exercise over their lives. This article concludes with discussion of practical implications for services and policy in England. En ligne : http://dx.doi.org/10.1177/13623613221105091 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=493 [article] The autistic experience of homelessness: Implications from a narrative enquiry [Texte imprimé et/ou numérique] / Beth STONE, Auteur ; Ailsa CAMERON, Auteur ; Sandra DOWLING, Auteur . - p.489-499. Langues : Anglais (eng) in Autism > 27-2 (February 2023) . - p.489-499 Mots-clés : autism  homelessness  narrative research  rough sleeping  service access  service engagement Index. décimale : PER Périodiques Résumé : Emerging research suggests autistic people are disproportionately represented in homeless populations. Less is known about how autistic people experience homelessness and what prevents them from exiting homelessness. This article presents findings from a narrative enquiry investigating the link between autism and homelessness. Ten autistic adults consented to participate in narrative interviews which explored their life histories and pathways through homelessness. This article considers how participants experienced rough sleeping and sofa surfing before attempting to access hostels. It then examines how participants navigated support systems, arguing that barriers to accessing services perpetuated homelessness. Because of these barriers, some participants disengaged with services, preferring to sleep rough. The extent to which participants could be said to have ˜chosen’ homelessness is balanced with consideration of the lack of autonomy autistic adults are able to exercise over their lives. This article concludes with discussion of practical implications for services and policy in England. En ligne : http://dx.doi.org/10.1177/13623613221105091 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=493

"I felt like I deserved it because I was autistic": Understanding the impact of interpersonal victimisation in the lives of autistic people / Amy PEARSON in Autism, 27-2 (February 2023)  

Public ISBD [article]  inAutism > 27-2 (February 2023) . - p.500-511 Titre : "I felt like I deserved it because I was autistic": Understanding the impact of interpersonal victimisation in the lives of autistic people Type de document : Texte imprimé et/ou numérique Auteurs : Amy PEARSON, Auteur ; Kieran ROSE, Auteur ; Jon REES, Auteur Année de publication : 2023 Article en page(s) : p.500-511 Langues : Anglais (eng) Mots-clés : autism  masking  relationships  stigma  victimisation Index. décimale : PER Périodiques Résumé : Research suggests that there is a high prevalence of interpersonal violence and victimisation within the autistic population, and that this accounts for poor mental health outcomes. This study aimed to examine the impact of interpersonal violence and victimisation on autistic adults from their own perspective and explore what helps or hinders their recovery. In total, 102 autistic adults completed either an online survey or a spoken interview about their experiences of interpersonal violence and victimisation. We analysed the data using a thematic analysis, and found four themes: (1) The usual for autism (expectations of victimisation, experiences of othering), (2) Personhood revoked: The cost of living (being part of a neurominority, trauma, masking and burnout), (3) Unpacking the baggage (impact of hermeneutical injustice) and (4) ˜If you want to make an apple pie from scratch, you have to invent the universe first’ (structural inequality/power dynamics, support and community). Findings highlight the importance of considering the relationship between stigma and victimisation, and the relationship between trauma, masking, and burnout in autistic people. Reducing barriers to support and recovery are contingent on reducing structural inequality and providing better training about autistic people to frontline professionals. En ligne : http://dx.doi.org/10.1177/13623613221104546 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=493 [article] "I felt like I deserved it because I was autistic": Understanding the impact of interpersonal victimisation in the lives of autistic people [Texte imprimé et/ou numérique] / Amy PEARSON, Auteur ; Kieran ROSE, Auteur ; Jon REES, Auteur . - 2023 . - p.500-511. Langues : Anglais (eng) in Autism > 27-2 (February 2023) . - p.500-511 Mots-clés : autism  masking  relationships  stigma  victimisation Index. décimale : PER Périodiques Résumé : Research suggests that there is a high prevalence of interpersonal violence and victimisation within the autistic population, and that this accounts for poor mental health outcomes. This study aimed to examine the impact of interpersonal violence and victimisation on autistic adults from their own perspective and explore what helps or hinders their recovery. In total, 102 autistic adults completed either an online survey or a spoken interview about their experiences of interpersonal violence and victimisation. We analysed the data using a thematic analysis, and found four themes: (1) The usual for autism (expectations of victimisation, experiences of othering), (2) Personhood revoked: The cost of living (being part of a neurominority, trauma, masking and burnout), (3) Unpacking the baggage (impact of hermeneutical injustice) and (4) ˜If you want to make an apple pie from scratch, you have to invent the universe first’ (structural inequality/power dynamics, support and community). Findings highlight the importance of considering the relationship between stigma and victimisation, and the relationship between trauma, masking, and burnout in autistic people. Reducing barriers to support and recovery are contingent on reducing structural inequality and providing better training about autistic people to frontline professionals. En ligne : http://dx.doi.org/10.1177/13623613221104546 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=493

A meta-analysis and critical review of metacognitive accuracy in autism / Katie L CARPENTER in Autism, 27-2 (February 2023)  

Public ISBD [article]  inAutism > 27-2 (February 2023) . - p.512-525 Titre : A meta-analysis and critical review of metacognitive accuracy in autism Type de document : Texte imprimé et/ou numérique Auteurs : Katie L CARPENTER, Auteur ; David M. WILLIAMS, Auteur Article en page(s) : p.512-525 Langues : Anglais (eng) Mots-clés : autism  autism spectrum disorders  metacognition  metacognitive accuracy  metacognitive monitoring  mindreading Index. décimale : PER Périodiques Résumé : Metacognition refers to cognitions about our own cognitions. In recent years, there has been a concerted effort to examine metacognition among autistic people. The results from these studies have produced a mixed picture, with some concluding that autistic people are just as accurate as typically developing people in judging their own cognitions and others providing evidence of reduced accuracy. The aim of this meta-analysis is to amalgamate this research to obtain a clearer picture of the evidence to date. A total of 17 studies comparing 412 individuals diagnosed with autism and 453 typically developing individuals were included in the meta-analysis. The data revealed a moderate, but heterogeneous, reduction in metacognitive accuracy among autistic individuals in comparison with non-autistic individuals. A critical review of the results suggested that, despite the overall reduction in metacognitive accuracy, performance was not universally diminished among autistic participants across studies. Accuracy may be undiminished on certain types of metacognitive task. Moreover, across all tasks, there was moderate difference in metacognitive accuracy between autistic and non-autistic children, but only a small difference in metacognitive accuracy between autistic and non-autistic adults. En ligne : http://dx.doi.org/10.1177/13623613221106004 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=493 [article] A meta-analysis and critical review of metacognitive accuracy in autism [Texte imprimé et/ou numérique] / Katie L CARPENTER, Auteur ; David M. WILLIAMS, Auteur . - p.512-525. Langues : Anglais (eng) in Autism > 27-2 (February 2023) . - p.512-525 Mots-clés : autism  autism spectrum disorders  metacognition  metacognitive accuracy  metacognitive monitoring  mindreading Index. décimale : PER Périodiques Résumé : Metacognition refers to cognitions about our own cognitions. In recent years, there has been a concerted effort to examine metacognition among autistic people. The results from these studies have produced a mixed picture, with some concluding that autistic people are just as accurate as typically developing people in judging their own cognitions and others providing evidence of reduced accuracy. The aim of this meta-analysis is to amalgamate this research to obtain a clearer picture of the evidence to date. A total of 17 studies comparing 412 individuals diagnosed with autism and 453 typically developing individuals were included in the meta-analysis. The data revealed a moderate, but heterogeneous, reduction in metacognitive accuracy among autistic individuals in comparison with non-autistic individuals. A critical review of the results suggested that, despite the overall reduction in metacognitive accuracy, performance was not universally diminished among autistic participants across studies. Accuracy may be undiminished on certain types of metacognitive task. Moreover, across all tasks, there was moderate difference in metacognitive accuracy between autistic and non-autistic children, but only a small difference in metacognitive accuracy between autistic and non-autistic adults. En ligne : http://dx.doi.org/10.1177/13623613221106004 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=493

A systematic review of the experiences of autistic young people enrolled in mainstream second-level (post-primary) schools / Finbar HORGAN in Autism, 27-2 (February 2023)  

Public ISBD [article]  inAutism > 27-2 (February 2023) . - p.526-538 Titre : A systematic review of the experiences of autistic young people enrolled in mainstream second-level (post-primary) schools Type de document : Texte imprimé et/ou numérique Auteurs : Finbar HORGAN, Auteur ; Neil KENNY, Auteur ; Paula FLYNN, Auteur Article en page(s) : p.526-538 Langues : Anglais (eng) Mots-clés : adolescents  autism spectrum disorders  education services  qualitative research  school-age children Index. décimale : PER Périodiques Résumé : Internationally, there is a growing trend towards the inclusion of autistic pupils within mainstream schools. However, concerns have been expressed regarding this policy roll-out preceding empirical evidence demonstrating effective outcomes for autistic students. Concerns have also been expressed regarding the absence of the voices of autistic pupils themselves within research and policy literature. This review seeks to synthesise evidence from qualitative studies relating to the experiences and perspectives of autistic young people enrolled in mainstream second-level or post-primary education. Searches were carried out on three bibliographic databases: Education Research Complete, Education Resources Information Centre and PsychInfo. One thousand sixty-three studies were identified through a combination of database and hand searches of which 33 met the inclusion criteria for the review. Data were synthesised using ˜thematic synthesis’ and the validity of included studies was assessed using the ˜Critical Appraisal Skills Programme’ (CASP) checklist. Thematic synthesis resulted in the development of three analytical themes: ˜Demands of mainstream placements’, ˜Social participation’ and ˜Impacts on the student’. Our analysis revealed that for many autistic young people, mainstream school is a complex and demanding social environment. Further research conducted in partnership with this cohort is essential as inclusive policy and practice continues to develop. En ligne : http://dx.doi.org/10.1177/13623613221105089 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=493 [article] A systematic review of the experiences of autistic young people enrolled in mainstream second-level (post-primary) schools [Texte imprimé et/ou numérique] / Finbar HORGAN, Auteur ; Neil KENNY, Auteur ; Paula FLYNN, Auteur . - p.526-538. Langues : Anglais (eng) in Autism > 27-2 (February 2023) . - p.526-538 Mots-clés : adolescents  autism spectrum disorders  education services  qualitative research  school-age children Index. décimale : PER Périodiques Résumé : Internationally, there is a growing trend towards the inclusion of autistic pupils within mainstream schools. However, concerns have been expressed regarding this policy roll-out preceding empirical evidence demonstrating effective outcomes for autistic students. Concerns have also been expressed regarding the absence of the voices of autistic pupils themselves within research and policy literature. This review seeks to synthesise evidence from qualitative studies relating to the experiences and perspectives of autistic young people enrolled in mainstream second-level or post-primary education. Searches were carried out on three bibliographic databases: Education Research Complete, Education Resources Information Centre and PsychInfo. One thousand sixty-three studies were identified through a combination of database and hand searches of which 33 met the inclusion criteria for the review. Data were synthesised using ˜thematic synthesis’ and the validity of included studies was assessed using the ˜Critical Appraisal Skills Programme’ (CASP) checklist. Thematic synthesis resulted in the development of three analytical themes: ˜Demands of mainstream placements’, ˜Social participation’ and ˜Impacts on the student’. Our analysis revealed that for many autistic young people, mainstream school is a complex and demanding social environment. Further research conducted in partnership with this cohort is essential as inclusive policy and practice continues to develop. En ligne : http://dx.doi.org/10.1177/13623613221105089 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=493

The experiences of parents raising children with developmental disabilities in Ethiopia / Bethlehem TEKOLA in Autism, 27-2 (February 2023)  

Public ISBD [article]  inAutism > 27-2 (February 2023) . - p.539-551 Titre : The experiences of parents raising children with developmental disabilities in Ethiopia Type de document : Texte imprimé et/ou numérique Auteurs : Bethlehem TEKOLA, Auteur ; Mersha KINFE, Auteur ; Fikirte GIRMA BAYOUH, Auteur ; Charlotte HANLON, Auteur ; Rosa A. HOEKSTRA, Auteur Article en page(s) : p.539-551 Langues : Anglais (eng) Mots-clés : children  developmental disabilities  Ethiopia  parents  qualitative Index. décimale : PER Périodiques Résumé : The experiences of parents raising children with developmental disabilities have been widely researched, although most of this research comes from Western, high-income countries. In comparison, little is known about the lived experiences of parents of children with developmental disabilities in low- and middle-income countries and in Africa in particular. Parents’ lived experiences can provide insights into local conceptualizations of developmental disabilities, challenges children and their families face and their needs. This study explores the experiences of parents (14 mothers and 4 fathers) raising children with developmental disabilities in urban and rural Ethiopia using in-depth interviews. Cultural and religious beliefs played a role in the types of delays or differences in their child’s development that parents noticed early and the kinds of support they sought. Parents experienced stigma and lack of understanding from others. Their experiences regarding some of the challenges they faced such as lack of appropriate services varied based on where they lived (urban or rural). Single mothers especially were faced with multiple and intersecting struggles including poverty, stigma, and lack of social support. Implications for future research and interventions that aim to increase knowledge about developmental disabilities, tackle stigma and improve the lives of children and their families are discussed. En ligne : http://dx.doi.org/10.1177/13623613221105085 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=493 [article] The experiences of parents raising children with developmental disabilities in Ethiopia [Texte imprimé et/ou numérique] / Bethlehem TEKOLA, Auteur ; Mersha KINFE, Auteur ; Fikirte GIRMA BAYOUH, Auteur ; Charlotte HANLON, Auteur ; Rosa A. HOEKSTRA, Auteur . - p.539-551. Langues : Anglais (eng) in Autism > 27-2 (February 2023) . - p.539-551 Mots-clés : children  developmental disabilities  Ethiopia  parents  qualitative Index. décimale : PER Périodiques Résumé : The experiences of parents raising children with developmental disabilities have been widely researched, although most of this research comes from Western, high-income countries. In comparison, little is known about the lived experiences of parents of children with developmental disabilities in low- and middle-income countries and in Africa in particular. Parents’ lived experiences can provide insights into local conceptualizations of developmental disabilities, challenges children and their families face and their needs. This study explores the experiences of parents (14 mothers and 4 fathers) raising children with developmental disabilities in urban and rural Ethiopia using in-depth interviews. Cultural and religious beliefs played a role in the types of delays or differences in their child’s development that parents noticed early and the kinds of support they sought. Parents experienced stigma and lack of understanding from others. Their experiences regarding some of the challenges they faced such as lack of appropriate services varied based on where they lived (urban or rural). Single mothers especially were faced with multiple and intersecting struggles including poverty, stigma, and lack of social support. Implications for future research and interventions that aim to increase knowledge about developmental disabilities, tackle stigma and improve the lives of children and their families are discussed. En ligne : http://dx.doi.org/10.1177/13623613221105085 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=493

"The key to this is not so much the technology. It's the individual who is using the technology": Perspectives on telehealth delivery for autistic adults during the COVID-19 pandemic / Dorota ALI in Autism, 27-2 (February 2023)  

Public ISBD [article]  inAutism > 27-2 (February 2023) . - p.552-564 Titre : "The key to this is not so much the technology. It's the individual who is using the technology": Perspectives on telehealth delivery for autistic adults during the COVID-19 pandemic Type de document : Texte imprimé et/ou numérique Auteurs : Dorota ALI, Auteur ; Sarah O’BRIEN, Auteur ; Laura HULL, Auteur ; Lorcan KENNY, Auteur ; Will MANDY, Auteur Année de publication : 2023 Article en page(s) : p.552-564 Langues : Anglais (eng) Mots-clés : autism  mental health  physical health  service delivery  telehealth Index. décimale : PER Périodiques Résumé : The COVID-19 pandemic prompted a large-scale move to remote delivery of healthcare services. However, little research has directly explored telehealth experiences of autistic adults, a population strongly affected by health inequalities and care access barriers. This study sought telehealth experiences of 11 autistic adults (aged 27 “67 years), seven family members/carers (aged 44 “75) reporting about autistic people and six service providers. In-depth qualitative interviews were conducted with all participants, which were then thematically analysed. Two over-arching themes identified were technology aids communication and access “ except when it doesn’t, and in/flexibility, with a number of sub-themes. The themes, on one hand, highlighted positives of telehealth delivery, including easing some aspects of communication and decreased stress and, on the other hand, negatives, such as increased rigidity of the healthcare system, amplifying pre-existing barriers. Considering autistic people experience barriers to accessing healthcare, this study highlights such barriers could be, in some instances, addressed via remote delivery, as well as possible limitations of telehealth for some autistic adults. En ligne : http://dx.doi.org/10.1177/13623613221108010 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=493 [article] "The key to this is not so much the technology. It's the individual who is using the technology": Perspectives on telehealth delivery for autistic adults during the COVID-19 pandemic [Texte imprimé et/ou numérique] / Dorota ALI, Auteur ; Sarah O’BRIEN, Auteur ; Laura HULL, Auteur ; Lorcan KENNY, Auteur ; Will MANDY, Auteur . - 2023 . - p.552-564. Langues : Anglais (eng) in Autism > 27-2 (February 2023) . - p.552-564 Mots-clés : autism  mental health  physical health  service delivery  telehealth Index. décimale : PER Périodiques Résumé : The COVID-19 pandemic prompted a large-scale move to remote delivery of healthcare services. However, little research has directly explored telehealth experiences of autistic adults, a population strongly affected by health inequalities and care access barriers. This study sought telehealth experiences of 11 autistic adults (aged 27 “67 years), seven family members/carers (aged 44 “75) reporting about autistic people and six service providers. In-depth qualitative interviews were conducted with all participants, which were then thematically analysed. Two over-arching themes identified were technology aids communication and access “ except when it doesn’t, and in/flexibility, with a number of sub-themes. The themes, on one hand, highlighted positives of telehealth delivery, including easing some aspects of communication and decreased stress and, on the other hand, negatives, such as increased rigidity of the healthcare system, amplifying pre-existing barriers. Considering autistic people experience barriers to accessing healthcare, this study highlights such barriers could be, in some instances, addressed via remote delivery, as well as possible limitations of telehealth for some autistic adults. En ligne : http://dx.doi.org/10.1177/13623613221108010 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=493

Preferences for identity-first versus person-first language in a US sample of autism stakeholders / Amanda TABOAS in Autism, 27-2 (February 2023)  

Public ISBD [article]  inAutism > 27-2 (February 2023) . - p.565-570 Titre : Preferences for identity-first versus person-first language in a US sample of autism stakeholders Type de document : Texte imprimé et/ou numérique Auteurs : Amanda TABOAS, Auteur ; Karla DOEPKE, Auteur ; Corinne ZIMMERMAN, Auteur Article en page(s) : p.565-570 Langues : Anglais (eng) Mots-clés : autism spectrum disorders  identity-first language  person-first language Index. décimale : PER Périodiques Résumé : Although person-first language is commonly used in many professional settings, this practice has received criticism from self-advocates and scholars who believe that identity-defining features, such as autism, cannot be separated from the individual. Arguments have been made that person-first language may perpetuate stigma by drawing attention to a disability through unconventional language. Increasingly, disability advocates have expressed preferences for identity-first language. We surveyed US autism stakeholders (n=728) about their usage of and preferences for person-first language and identity-first language. Preference and use of terms varied across stakeholder groups (adults with autism, parents of autistic children, professionals, family members/friends, and a comparison group of people with little to no experience with the autism community). Autistic adults preferred to self-identify using identity-first language (87%); however, a sizable minority of adults with autism prefer to self-identify with person-first language (13%). Professionals were more likely to use, like, and choose person-first language terms, which is consistent with current guidelines for usage in professional settings and prescribed by style guides for written communication. As the language we use shapes our conscious and unconscious perceptions and beliefs of individuals with autism, it is critical to identify the terminology that is preferred by individuals within the community. En ligne : http://dx.doi.org/10.1177/13623613221130845 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=493 [article] Preferences for identity-first versus person-first language in a US sample of autism stakeholders [Texte imprimé et/ou numérique] / Amanda TABOAS, Auteur ; Karla DOEPKE, Auteur ; Corinne ZIMMERMAN, Auteur . - p.565-570. Langues : Anglais (eng) in Autism > 27-2 (February 2023) . - p.565-570 Mots-clés : autism spectrum disorders  identity-first language  person-first language Index. décimale : PER Périodiques Résumé : Although person-first language is commonly used in many professional settings, this practice has received criticism from self-advocates and scholars who believe that identity-defining features, such as autism, cannot be separated from the individual. Arguments have been made that person-first language may perpetuate stigma by drawing attention to a disability through unconventional language. Increasingly, disability advocates have expressed preferences for identity-first language. We surveyed US autism stakeholders (n=728) about their usage of and preferences for person-first language and identity-first language. Preference and use of terms varied across stakeholder groups (adults with autism, parents of autistic children, professionals, family members/friends, and a comparison group of people with little to no experience with the autism community). Autistic adults preferred to self-identify using identity-first language (87%); however, a sizable minority of adults with autism prefer to self-identify with person-first language (13%). Professionals were more likely to use, like, and choose person-first language terms, which is consistent with current guidelines for usage in professional settings and prescribed by style guides for written communication. As the language we use shapes our conscious and unconscious perceptions and beliefs of individuals with autism, it is critical to identify the terminology that is preferred by individuals within the community. En ligne : http://dx.doi.org/10.1177/13623613221130845 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=493