Commentary: Taking stock and moving forward - the need to consider the influence of loss to follow-up in autism screening research / Van Kim MA ; Heidi M. FELDMAN in Journal of Child Psychology and Psychiatry, 65-9 (September 2024)  

Public ISBD [article]  inJournal of Child Psychology and Psychiatry > 65-9 (September 2024) . - p.1243-1244 Titre : Commentary: Taking stock and moving forward - the need to consider the influence of loss to follow-up in autism screening research Type de document : texte imprimé Auteurs : Van Kim MA, Auteur ; Heidi M. FELDMAN, Auteur Article en page(s) : p.1243-1244 Langues : Anglais (eng) Index. décimale : PER Périodiques Résumé : This commentary highlights the limitations of many existing population-based studies examining the utility of the Modified Checklist for Autism in Toddlers, Revised/Follow-Up (M-CHAT-R/F) in screening for autism. We expound on three major factors: (a) the limited number of screen-negative children who undergo diagnostic evaluations, (b) the substantial number of children who screen positive and were subsequently lost to follow-up (i.e. without further diagnostic evaluations), and (c) the sizeable number of children who did not complete the full two-stage screening process as intended. Each of these factors can lead to erroneous estimates of the psychometric properties, specifically, the sensitivity, specificity, and negative predictive value. Hence, we emphasize the need for future studies to increase the number of children who screen negative and receive a diagnostic evaluation and ensure that these children are selected at random without a higher likelihood for the presence of autism. It is also imperative that concrete steps are taken to minimize the number of screen-positive children who are lost to follow-up both within and after the screening process. Both of these will play a major role in ensuring more robust results from empirical research that can guide the clinical implementation of the M-CHAT-R/F. En ligne : https://doi.org/10.1111/jcpp.13977 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=534 [article] Commentary: Taking stock and moving forward - the need to consider the influence of loss to follow-up in autism screening research [texte imprimé] / Van Kim MA, Auteur ; Heidi M. FELDMAN, Auteur . - p.1243-1244. Langues : Anglais (eng) in Journal of Child Psychology and Psychiatry > 65-9 (September 2024) . - p.1243-1244 Index. décimale : PER Périodiques Résumé : This commentary highlights the limitations of many existing population-based studies examining the utility of the Modified Checklist for Autism in Toddlers, Revised/Follow-Up (M-CHAT-R/F) in screening for autism. We expound on three major factors: (a) the limited number of screen-negative children who undergo diagnostic evaluations, (b) the substantial number of children who screen positive and were subsequently lost to follow-up (i.e. without further diagnostic evaluations), and (c) the sizeable number of children who did not complete the full two-stage screening process as intended. Each of these factors can lead to erroneous estimates of the psychometric properties, specifically, the sensitivity, specificity, and negative predictive value. Hence, we emphasize the need for future studies to increase the number of children who screen negative and receive a diagnostic evaluation and ensure that these children are selected at random without a higher likelihood for the presence of autism. It is also imperative that concrete steps are taken to minimize the number of screen-positive children who are lost to follow-up both within and after the screening process. Both of these will play a major role in ensuring more robust results from empirical research that can guide the clinical implementation of the M-CHAT-R/F. En ligne : https://doi.org/10.1111/jcpp.13977 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=534

Family Navigation for Children with Autism: A Scoping Review of Quantitative and Qualitative Evidence / Ingrid Y. LIN in Journal of Autism and Developmental Disorders, 56-8 (August 2026)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 56-8 (August 2026) . - p.3032-3054 Titre : Family Navigation for Children with Autism: A Scoping Review of Quantitative and Qualitative Evidence Type de document : texte imprimé Auteurs : Ingrid Y. LIN, Auteur ; Anna C. MORGAN, Auteur ; Christopher D. STAVE, Auteur ; Heidi M. FELDMAN, Auteur ; Lynne C. HUFFMAN, Auteur Article en page(s) : p.3032-3054 Langues : Anglais (eng) Index. décimale : PER Périodiques Résumé : Family navigation (FN) has emerged as a promising intervention for reducing barriers and addressing social and economic inequities in autism service delivery. Little is known regarding the implementation and effectiveness of FN for children with autism. The aims of this scoping review are to: (1) summarize the breadth, quantity, and characteristics of the existing literature on FN for children diagnosed with autism; (2) describe the models and outcomes of FN for this population; and (3) identify knowledge gaps and provide directions for future research. Authors used Arksey and O’Malley’s methodological framework for scoping reviews. Searches were conducted in PubMed, CINAHL, Embase, Social Services Abstracts, and Web of Science, resulting in identification of 308 papers. Two independent raters completed title/abstract and full-text screenings. Data was extracted using a researcher-developed tool. Results synthesis involved content and construct analysis and descriptive numerical summaries. 17 publications met inclusion criteria. Among these, seven studies evaluated FN models delivered by professional or peer navigators. Three studies investigated FN tools. The remaining seven papers included five qualitative and two mixed methods studies that provided valuable insights on improving FN programs. Overall, studies on FN models reported positive impacts on family activation and well-being, knowledge, and service access and utilization. None addressed improvements in child developmental status or behavioral profiles. FN is a promising intervention for improving family outcomes and increasing service access and utilization. Further research is needed to establish best practices, identify child- and family-centered outcome metrics, and promote scalability and sustainability. En ligne : https://doi.org/10.1007/s10803-025-06798-9 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=591 [article] Family Navigation for Children with Autism: A Scoping Review of Quantitative and Qualitative Evidence [texte imprimé] / Ingrid Y. LIN, Auteur ; Anna C. MORGAN, Auteur ; Christopher D. STAVE, Auteur ; Heidi M. FELDMAN, Auteur ; Lynne C. HUFFMAN, Auteur . - p.3032-3054. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 56-8 (August 2026) . - p.3032-3054 Index. décimale : PER Périodiques Résumé : Family navigation (FN) has emerged as a promising intervention for reducing barriers and addressing social and economic inequities in autism service delivery. Little is known regarding the implementation and effectiveness of FN for children with autism. The aims of this scoping review are to: (1) summarize the breadth, quantity, and characteristics of the existing literature on FN for children diagnosed with autism; (2) describe the models and outcomes of FN for this population; and (3) identify knowledge gaps and provide directions for future research. Authors used Arksey and O’Malley’s methodological framework for scoping reviews. Searches were conducted in PubMed, CINAHL, Embase, Social Services Abstracts, and Web of Science, resulting in identification of 308 papers. Two independent raters completed title/abstract and full-text screenings. Data was extracted using a researcher-developed tool. Results synthesis involved content and construct analysis and descriptive numerical summaries. 17 publications met inclusion criteria. Among these, seven studies evaluated FN models delivered by professional or peer navigators. Three studies investigated FN tools. The remaining seven papers included five qualitative and two mixed methods studies that provided valuable insights on improving FN programs. Overall, studies on FN models reported positive impacts on family activation and well-being, knowledge, and service access and utilization. None addressed improvements in child developmental status or behavioral profiles. FN is a promising intervention for improving family outcomes and increasing service access and utilization. Further research is needed to establish best practices, identify child- and family-centered outcome metrics, and promote scalability and sustainability. En ligne : https://doi.org/10.1007/s10803-025-06798-9 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=591

Hospitalizations of Children with Autism Increased from 1999 to 2009 / Aaron M. NAYFACK in Journal of Autism and Developmental Disorders, 44-5 (May 2014)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 44-5 (May 2014) . - p.1087-1094 Titre : Hospitalizations of Children with Autism Increased from 1999 to 2009 Type de document : texte imprimé Auteurs : Aaron M. NAYFACK, Auteur ; Lynne C. HUFFMAN, Auteur ; Heidi M. FELDMAN, Auteur ; Jia CHAN, Auteur ; Olga SAYNINA, Auteur ; Paul H. WISE, Auteur Année de publication : 2014 Article en page(s) : p.1087-1094 Langues : Anglais (eng) Mots-clés : Autism  Mental health  Hospitalization  Adolescence Index. décimale : PER Périodiques Résumé : We performed a retrospective analysis of hospital discharges for children with autism, in comparison to children with cerebral palsy, Down syndrome, mental retardation/intellectual disability, and the general population. Hospitalizations for autism increased nearly threefold over 10 years, especially at the oldest ages, while hospitalizations for the other groups did not change. Leading discharge diagnoses for each age group in children with autism included mental health and nervous system disorders. Older age, Caucasian ethnicity, and living in a region with a high number of pediatric beds predicted hospitalizations associated with mental health diagnoses. These findings underscore the need for comprehensive clinical services that address the complex needs of children with autism to prevent costly hospitalizations. En ligne : http://dx.doi.org/10.1007/s10803-013-1965-x Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=232 [article] Hospitalizations of Children with Autism Increased from 1999 to 2009 [texte imprimé] / Aaron M. NAYFACK, Auteur ; Lynne C. HUFFMAN, Auteur ; Heidi M. FELDMAN, Auteur ; Jia CHAN, Auteur ; Olga SAYNINA, Auteur ; Paul H. WISE, Auteur . - 2014 . - p.1087-1094. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 44-5 (May 2014) . - p.1087-1094 Mots-clés : Autism  Mental health  Hospitalization  Adolescence Index. décimale : PER Périodiques Résumé : We performed a retrospective analysis of hospital discharges for children with autism, in comparison to children with cerebral palsy, Down syndrome, mental retardation/intellectual disability, and the general population. Hospitalizations for autism increased nearly threefold over 10 years, especially at the oldest ages, while hospitalizations for the other groups did not change. Leading discharge diagnoses for each age group in children with autism included mental health and nervous system disorders. Older age, Caucasian ethnicity, and living in a region with a high number of pediatric beds predicted hospitalizations associated with mental health diagnoses. These findings underscore the need for comprehensive clinical services that address the complex needs of children with autism to prevent costly hospitalizations. En ligne : http://dx.doi.org/10.1007/s10803-013-1965-x Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=232

Primary Care Physicians/Subspecialty Pediatricians / Julie N. YOUSSEF

Public ISBD in Handbook of Interdisciplinary Treatments for Autism Spectrum Disorder / Robert D. RIESKE Titre : Primary Care Physicians/Subspecialty Pediatricians Type de document : texte imprimé Auteurs : Julie N. YOUSSEF, Auteur ; Dana C. WON, Auteur ; Heidi M. FELDMAN, Auteur Année de publication : 2019 Importance : p.207-223 Langues : Anglais (eng) Index. décimale : AUT-F AUT-F - L'Autisme - Soins Résumé : Primary care physicians are often the first point of contact for individuals with ASD and their families, and they continue to play an important role throughout treatment. Physicians often play the role of mediator and leader in many multidisciplinary and other models of treatment teams. This chapter addresses the role and expertise of physicians within the context of interdisciplinary teams. In addition, it discusses the importance and differences between several types of primary care physicians, including developmental-behavioral pediatricians and the unique areas of expertise that they bring to the team. Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=418 in Handbook of Interdisciplinary Treatments for Autism Spectrum Disorder / Robert D. RIESKE Primary Care Physicians/Subspecialty Pediatricians [texte imprimé] / Julie N. YOUSSEF, Auteur ; Dana C. WON, Auteur ; Heidi M. FELDMAN, Auteur . - 2019 . - p.207-223. Langues : Anglais (eng) Index. décimale : AUT-F AUT-F - L'Autisme - Soins Résumé : Primary care physicians are often the first point of contact for individuals with ASD and their families, and they continue to play an important role throughout treatment. Physicians often play the role of mediator and leader in many multidisciplinary and other models of treatment teams. This chapter addresses the role and expertise of physicians within the context of interdisciplinary teams. In addition, it discusses the importance and differences between several types of primary care physicians, including developmental-behavioral pediatricians and the unique areas of expertise that they bring to the team. Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=418

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