Examining the Role of Race, Ethnicity, and Gender on Social and Behavioral Ratings Within the Autism Diagnostic Observation Schedule / Ashley J. HARRISON in Journal of Autism and Developmental Disorders, 47-9 (September 2017)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 47-9 (September 2017) . - p.2770-2782 Titre : Examining the Role of Race, Ethnicity, and Gender on Social and Behavioral Ratings Within the Autism Diagnostic Observation Schedule Type de document : Texte imprimé et/ou numérique Auteurs : Ashley J. HARRISON, Auteur ; Kristin A. LONG, Auteur ; Douglas C. TOMMET, Auteur ; Richard N. JONES, Auteur Article en page(s) : p.2770-2782 Langues : Anglais (eng) Mots-clés : Autism spectrum disorder  Cross-cultural  Social norms  ADOS  Measurement bias  Race  Ethnicity Index. décimale : PER Périodiques Résumé : The Autism Diagnostic Observation Schedule (ADOS) is widely used to assess symptoms of autism spectrum disorder (ASD). Given well-documented differences in social behaviors across cultures, this study examined whether item-level biases exist in ADOS scores across sociodemographic groups (race, ethnicity, and gender). We examined a subset of ten ADOS items among participants (N?=?2458). Holding level of overall ADOS behavioral symptoms constant, we found significant item level bias (measurement noninvariance) for race and ethnicity on three ADOS items. Item-level bias was not apparent across gender. Although the magnitude of bias was small, our findings highlight the need to reevaluate norms and operational definitions used in assessments to increase ASD diagnostic accuracy among culturally-diverse groups. En ligne : https://doi.org/10.1007/s10803-017-3176-3 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=315 [article] Examining the Role of Race, Ethnicity, and Gender on Social and Behavioral Ratings Within the Autism Diagnostic Observation Schedule [Texte imprimé et/ou numérique] / Ashley J. HARRISON, Auteur ; Kristin A. LONG, Auteur ; Douglas C. TOMMET, Auteur ; Richard N. JONES, Auteur . - p.2770-2782. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 47-9 (September 2017) . - p.2770-2782 Mots-clés : Autism spectrum disorder  Cross-cultural  Social norms  ADOS  Measurement bias  Race  Ethnicity Index. décimale : PER Périodiques Résumé : The Autism Diagnostic Observation Schedule (ADOS) is widely used to assess symptoms of autism spectrum disorder (ASD). Given well-documented differences in social behaviors across cultures, this study examined whether item-level biases exist in ADOS scores across sociodemographic groups (race, ethnicity, and gender). We examined a subset of ten ADOS items among participants (N?=?2458). Holding level of overall ADOS behavioral symptoms constant, we found significant item level bias (measurement noninvariance) for race and ethnicity on three ADOS items. Item-level bias was not apparent across gender. Although the magnitude of bias was small, our findings highlight the need to reevaluate norms and operational definitions used in assessments to increase ASD diagnostic accuracy among culturally-diverse groups. En ligne : https://doi.org/10.1007/s10803-017-3176-3 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=315

Exploring communicative competence in autistic children who are minimally verbal: The Low Verbal Investigatory Survey for Autism (LVIS) / Adam NAPLES in Autism, 27-5 (July 2023)  

Public ISBD [article]  inAutism > 27-5 (July 2023) . - p.1391-1406 Titre : Exploring communicative competence in autistic children who are minimally verbal: The Low Verbal Investigatory Survey for Autism (LVIS) Type de document : Texte imprimé et/ou numérique Auteurs : Adam NAPLES, Auteur ; Elena J. TENENBAUM, Auteur ; Richard N. JONES, Auteur ; Giulia RIGHI, Auteur ; Stephen J. SHEINKOPF, Auteur ; Inge-Marie EIGSTI, Auteur Article en page(s) : p.1391-1406 Langues : Anglais (eng) Mots-clés : autism spectrum disorder;assessment;communication;language;LVIS;minimally verbal Index. décimale : PER Périodiques Résumé : Approximately 30% of autistic children are considered minimally verbal. The field lacks an efficient and reliable measure of communicative capacity among minimally verbal autistic children. Improved methods are needed to determine which children are at greatest risk for minimally verbal outcomes to better target interventions. Here, we present the Low Verbal Investigatory Survey (LVIS), a brief parent-report measure designed to assess communicative capacity among minimally verbal autistic children. The 36-item easy-to-complete LVIS was developed to capture the atypical language trajectories associated specifically with autism. We report pilot results from a sample of 147 children (1-8?years) whose caregivers completed the LVIS as part of other studies. Principal components analysis was used to assess dimensionality of the LVIS; composite scores were compared with existing measures of communicative capacity, all of which take significantly more time and training to administer and score. Scores on the LVIS were strongly correlated with existing gold-standard measures of communication. Presence of atypical vocalizations was determined to be particularly relevant for symptoms of autism as well as language and cognitive abilities. These findings provide initial validation of a tool designed to capture multiple dimensions of communicative capacity in children with minimal or low verbal skills. Lay abstract Approximately one in three autistic children is unable to communicate with language; this state is often described as minimally verbal. Despite the tremendous clinical implications, we cannot predict whether a minimally verbal child is simply delayed (but will eventually develop spoken language) or will continue to struggle with verbal language, and might therefore benefit from learning an alternative form of communication. This is important for clinicians to know, to be able to choose the most helpful interventions, such as alternative forms of communication. In addition, the field lacks a standard definition of "minimally verbal." Even when we do agree on what the term means (e.g. fewer than 20 words), describing a child based on their lack of words does not tell us whether that child is communicating in other ways or how they are using those 20 words. To address these concerns, we developed the Low Verbal Investigatory Survey (LVIS), a one-page parent-report measure designed to help us characterize how minimally verbal autistic children are communicating. Parents of 147 children (aged 1-8?years) completed the LVIS. Here, we ask (1) whether the survey measures what it was designed to measure, that is, communicative ability in children without much spoken language, and (2) how the LVIS relates to cognitive and language ability, and symptoms of autism. Results suggest that this survey, which takes only 5?min to complete, is a good estimate of the child?s communication skills. Furthermore, LVIS survey scores are correlated with other measures of language and cognitive abilities as well as autism symptomatology. The LVIS has the potential to save time and money in both clinical and research efforts to assess communication skills in minimally verbal autistic children. En ligne : http://dx.doi.org/10.1177/13623613221136657 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=507 [article] Exploring communicative competence in autistic children who are minimally verbal: The Low Verbal Investigatory Survey for Autism (LVIS) [Texte imprimé et/ou numérique] / Adam NAPLES, Auteur ; Elena J. TENENBAUM, Auteur ; Richard N. JONES, Auteur ; Giulia RIGHI, Auteur ; Stephen J. SHEINKOPF, Auteur ; Inge-Marie EIGSTI, Auteur . - p.1391-1406. Langues : Anglais (eng) in Autism > 27-5 (July 2023) . - p.1391-1406 Mots-clés : autism spectrum disorder;assessment;communication;language;LVIS;minimally verbal Index. décimale : PER Périodiques Résumé : Approximately 30% of autistic children are considered minimally verbal. The field lacks an efficient and reliable measure of communicative capacity among minimally verbal autistic children. Improved methods are needed to determine which children are at greatest risk for minimally verbal outcomes to better target interventions. Here, we present the Low Verbal Investigatory Survey (LVIS), a brief parent-report measure designed to assess communicative capacity among minimally verbal autistic children. The 36-item easy-to-complete LVIS was developed to capture the atypical language trajectories associated specifically with autism. We report pilot results from a sample of 147 children (1-8?years) whose caregivers completed the LVIS as part of other studies. Principal components analysis was used to assess dimensionality of the LVIS; composite scores were compared with existing measures of communicative capacity, all of which take significantly more time and training to administer and score. Scores on the LVIS were strongly correlated with existing gold-standard measures of communication. Presence of atypical vocalizations was determined to be particularly relevant for symptoms of autism as well as language and cognitive abilities. These findings provide initial validation of a tool designed to capture multiple dimensions of communicative capacity in children with minimal or low verbal skills. Lay abstract Approximately one in three autistic children is unable to communicate with language; this state is often described as minimally verbal. Despite the tremendous clinical implications, we cannot predict whether a minimally verbal child is simply delayed (but will eventually develop spoken language) or will continue to struggle with verbal language, and might therefore benefit from learning an alternative form of communication. This is important for clinicians to know, to be able to choose the most helpful interventions, such as alternative forms of communication. In addition, the field lacks a standard definition of "minimally verbal." Even when we do agree on what the term means (e.g. fewer than 20 words), describing a child based on their lack of words does not tell us whether that child is communicating in other ways or how they are using those 20 words. To address these concerns, we developed the Low Verbal Investigatory Survey (LVIS), a one-page parent-report measure designed to help us characterize how minimally verbal autistic children are communicating. Parents of 147 children (aged 1-8?years) completed the LVIS. Here, we ask (1) whether the survey measures what it was designed to measure, that is, communicative ability in children without much spoken language, and (2) how the LVIS relates to cognitive and language ability, and symptoms of autism. Results suggest that this survey, which takes only 5?min to complete, is a good estimate of the child?s communication skills. Furthermore, LVIS survey scores are correlated with other measures of language and cognitive abilities as well as autism symptomatology. The LVIS has the potential to save time and money in both clinical and research efforts to assess communication skills in minimally verbal autistic children. En ligne : http://dx.doi.org/10.1177/13623613221136657 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=507

Female Autism Phenotypes Investigated at Different Levels of Language and Developmental Abilities / Yamini J. HOWE in Journal of Autism and Developmental Disorders, 45-11 (November 2015)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 45-11 (November 2015) . - p.3537-3549 Titre : Female Autism Phenotypes Investigated at Different Levels of Language and Developmental Abilities Type de document : Texte imprimé et/ou numérique Auteurs : Yamini J. HOWE, Auteur ; Julia A. O’ROURKE, Auteur ; Yvette YATCHMINK, Auteur ; Emma W. VISCIDI, Auteur ; Richard N. JONES, Auteur ; Eric M. MORROW, Auteur Article en page(s) : p.3537-3549 Langues : Anglais (eng) Mots-clés : Autism spectrum disorder  Sex differences  Diagnosis of autism spectrum disorder Index. décimale : PER Périodiques Résumé : This study investigated the differences in clinical symptoms between females and males with autism spectrum disorder (ASD) across three verbal ability groups (nonverbal, phrase and fluent speech), based on which Autism Diagnostic Observation Schedule module was administered to 5723 individuals in four research datasets. In the Simons Simplex Collection and Autism Treatment Network, females with ASD and phrase or fluent speech had lower cognitive, adaptive, and social abilities than males. In the Autism Genetics Resource Exchange and the Autism Consortium, females with phrase or fluent speech had similar or better adaptive and social abilities than males. Females who were nonverbal had similar cognitive, adaptive, and social abilities as males. Population-based longitudinal studies of verbally fluent females with ASD are needed. En ligne : http://dx.doi.org/10.1007/s10803-015-2501-y Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=270 [article] Female Autism Phenotypes Investigated at Different Levels of Language and Developmental Abilities [Texte imprimé et/ou numérique] / Yamini J. HOWE, Auteur ; Julia A. O’ROURKE, Auteur ; Yvette YATCHMINK, Auteur ; Emma W. VISCIDI, Auteur ; Richard N. JONES, Auteur ; Eric M. MORROW, Auteur . - p.3537-3549. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 45-11 (November 2015) . - p.3537-3549 Mots-clés : Autism spectrum disorder  Sex differences  Diagnosis of autism spectrum disorder Index. décimale : PER Périodiques Résumé : This study investigated the differences in clinical symptoms between females and males with autism spectrum disorder (ASD) across three verbal ability groups (nonverbal, phrase and fluent speech), based on which Autism Diagnostic Observation Schedule module was administered to 5723 individuals in four research datasets. In the Simons Simplex Collection and Autism Treatment Network, females with ASD and phrase or fluent speech had lower cognitive, adaptive, and social abilities than males. In the Autism Genetics Resource Exchange and the Autism Consortium, females with phrase or fluent speech had similar or better adaptive and social abilities than males. Females who were nonverbal had similar cognitive, adaptive, and social abilities as males. Population-based longitudinal studies of verbally fluent females with ASD are needed. En ligne : http://dx.doi.org/10.1007/s10803-015-2501-y Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=270

Moderators of Age of Diagnosis in > 20,000 Females with Autism in Two Large US Studies / Christine A. SCHREMP ; Richard N. JONES ; Carrie R. BEST ; Stephen J. SHEINKOPF ; Eric M. MORROW in Journal of Autism and Developmental Disorders, 53-2 (February 2023)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 53-2 (February 2023) . - p.864-869 Titre : Moderators of Age of Diagnosis in > 20,000 Females with Autism in Two Large US Studies Type de document : Texte imprimé et/ou numérique Auteurs : Christine A. SCHREMP, Auteur ; Richard N. JONES, Auteur ; Carrie R. BEST, Auteur ; Stephen J. SHEINKOPF, Auteur ; Eric M. MORROW, Auteur Article en page(s) : p.864-869 Langues : Anglais (eng) Index. décimale : PER Périodiques Résumé : The objective of this study was to determine the clinical features that moderate a later age at ASD diagnosis in females in a large sample of females with ASD. Within two large and independent ASD datasets (>â€20,000 females), females were first diagnosed with ASD 14-months later relative to males. This later age at diagnosis was moderated by a mild or atypical presentation, wherein repetitive behaviors were limited, IQ and language were broadly intact, and recognized symptoms emerged later in development. Females are at risk for a later age at ASD diagnosis and treatment implementation, and modification of early childhood ASD screening methods for females may be warranted. En ligne : https://doi.org/10.1007/s10803-021-05026-4 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=495 [article] Moderators of Age of Diagnosis in > 20,000 Females with Autism in Two Large US Studies [Texte imprimé et/ou numérique] / Christine A. SCHREMP, Auteur ; Richard N. JONES, Auteur ; Carrie R. BEST, Auteur ; Stephen J. SHEINKOPF, Auteur ; Eric M. MORROW, Auteur . - p.864-869. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 53-2 (February 2023) . - p.864-869 Index. décimale : PER Périodiques Résumé : The objective of this study was to determine the clinical features that moderate a later age at ASD diagnosis in females in a large sample of females with ASD. Within two large and independent ASD datasets (>â€20,000 females), females were first diagnosed with ASD 14-months later relative to males. This later age at diagnosis was moderated by a mild or atypical presentation, wherein repetitive behaviors were limited, IQ and language were broadly intact, and recognized symptoms emerged later in development. Females are at risk for a later age at ASD diagnosis and treatment implementation, and modification of early childhood ASD screening methods for females may be warranted. En ligne : https://doi.org/10.1007/s10803-021-05026-4 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=495

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