Development of the Behavioral Inflexibility Scale for Children with Autism Spectrum Disorder and Other Developmental Disabilities / Luc LECAVALIER in Autism Research, 13-3 (March 2020)  

Public ISBD [article]  inAutism Research > 13-3 (March 2020) . - p.489-499 Titre : Development of the Behavioral Inflexibility Scale for Children with Autism Spectrum Disorder and Other Developmental Disabilities Type de document : Texte imprimé et/ou numérique Auteurs : Luc LECAVALIER, Auteur ; James W. BODFISH, Auteur ; Clare HARROP, Auteur ; Allison WHITTEN, Auteur ; Desiree R. JONES, Auteur ; Jill PRITCHETT, Auteur ; Richard FALDOWSKI, Auteur ; Brian A. BOYD, Auteur Article en page(s) : p.489-499 Langues : Anglais (eng) Mots-clés : autism spectrum disorder  behavior inflexibility  development  measurement  outcome  repetitive behavior Index. décimale : PER Périodiques Résumé : Behavior inflexibility (BI) refers to rigid patterns of behavior that contrast with the need to be adaptable to changing environmental demands. We developed a parent-reported outcome measure of BI for children with autism spectrum disorder (ASD) and other developmental disabilities with a multi-step iterative process. A pool of 62 candidate items was generated through expert panel feedback, review of existing scales and focus groups. A consensus process was used to generate the final 38 items. Parents of 943 children (age range, 3-18 years; average, 11.4 years; 79% boys) with ASD completed an online survey. One hundred thirty-three parents rated their child twice within 3 weeks (average = 16.5 days). A series of factor analyses suggested that the 38 items measured a single construct. Scores had a weak correlation with level of functioning (-0.12) and did not differ based on sex. Scores had a negligible correlation with age (-0.07), although measurement invariance was not supported. The mean total score for the Behavioral Inflexibility Scale (BIS) was normally distributed. Internal consistency was alpha = 0.97 and temporal stability was r = 0.92. Correlations with parent ratings on the subscales of the Repetitive Behavior Scale-Revised varied from 0.48 to 0.89. The correlation with parent ratings on the Social Communication Questionnaire total score was 0.52. Our data show that BI in children with ASD ranges significantly from mild to severe and that the 38-item BIS is valid and reliable. Autism Res 2020, 13: 489-499. (c) 2020 The Authors. Autism Research published by International Society for Autism Research published by Wiley Periodicals, Inc. LAY SUMMARY: We developed a parent-completed rating scale of behavior inflexibility (BI) for children with developmental disabilities using a multistep process. The Behavioral Inflexibility Scale (BIS) contains 38 questions rated on a 6-point scale. Parents of 943 children with autism spectrum disorder (ASD) completed an online survey. We examined associations between the BIS and other scales and demographic variables. The BIS is valid and reliable. BI in children with ASD ranges from mild to severe. En ligne : http://dx.doi.org/10.1002/aur.2257 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=421 [article] Development of the Behavioral Inflexibility Scale for Children with Autism Spectrum Disorder and Other Developmental Disabilities [Texte imprimé et/ou numérique] / Luc LECAVALIER, Auteur ; James W. BODFISH, Auteur ; Clare HARROP, Auteur ; Allison WHITTEN, Auteur ; Desiree R. JONES, Auteur ; Jill PRITCHETT, Auteur ; Richard FALDOWSKI, Auteur ; Brian A. BOYD, Auteur . - p.489-499. Langues : Anglais (eng) in Autism Research > 13-3 (March 2020) . - p.489-499 Mots-clés : autism spectrum disorder  behavior inflexibility  development  measurement  outcome  repetitive behavior Index. décimale : PER Périodiques Résumé : Behavior inflexibility (BI) refers to rigid patterns of behavior that contrast with the need to be adaptable to changing environmental demands. We developed a parent-reported outcome measure of BI for children with autism spectrum disorder (ASD) and other developmental disabilities with a multi-step iterative process. A pool of 62 candidate items was generated through expert panel feedback, review of existing scales and focus groups. A consensus process was used to generate the final 38 items. Parents of 943 children (age range, 3-18 years; average, 11.4 years; 79% boys) with ASD completed an online survey. One hundred thirty-three parents rated their child twice within 3 weeks (average = 16.5 days). A series of factor analyses suggested that the 38 items measured a single construct. Scores had a weak correlation with level of functioning (-0.12) and did not differ based on sex. Scores had a negligible correlation with age (-0.07), although measurement invariance was not supported. The mean total score for the Behavioral Inflexibility Scale (BIS) was normally distributed. Internal consistency was alpha = 0.97 and temporal stability was r = 0.92. Correlations with parent ratings on the subscales of the Repetitive Behavior Scale-Revised varied from 0.48 to 0.89. The correlation with parent ratings on the Social Communication Questionnaire total score was 0.52. Our data show that BI in children with ASD ranges significantly from mild to severe and that the 38-item BIS is valid and reliable. Autism Res 2020, 13: 489-499. (c) 2020 The Authors. Autism Research published by International Society for Autism Research published by Wiley Periodicals, Inc. LAY SUMMARY: We developed a parent-completed rating scale of behavior inflexibility (BI) for children with developmental disabilities using a multistep process. The Behavioral Inflexibility Scale (BIS) contains 38 questions rated on a 6-point scale. Parents of 943 children with autism spectrum disorder (ASD) completed an online survey. We examined associations between the BIS and other scales and demographic variables. The BIS is valid and reliable. BI in children with ASD ranges from mild to severe. En ligne : http://dx.doi.org/10.1002/aur.2257 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=421

Refining our Understanding of Anxiety in Autistic Youth: Examining the Role of Behavioral Inflexibility / Clare HARROP in Journal of Autism and Developmental Disorders, 54-10 (October 2024)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 54-10 (October 2024) . - p.3620-3629 Titre : Refining our Understanding of Anxiety in Autistic Youth: Examining the Role of Behavioral Inflexibility Type de document : Texte imprimé et/ou numérique Auteurs : Clare HARROP, Auteur ; James BODFISH, Auteur ; Luc LECAVALIER, Auteur ; Aaron R. DALLMAN, Auteur ; Desiree JONES, Auteur ; Jill PRITCHETT, Auteur ; Allison WHITTEN, Auteur ; Brian A. BOYD, Auteur Article en page(s) : p.3620-3629 Langues : Anglais (eng) Index. décimale : PER Périodiques Résumé : Prior research has demonstrated that cognitive inflexibility is associated with anxiety in autistic individuals. Everyday patterns of behavioral inflexibility (e.g. observable inflexible behavior in the context of the need to change or adapt and that is manifested in real-world everyday settings) is common in autism and can be distinguished from performance on discrete cognitive tasks that tap flexible attention, learning, or decision-making. The purpose of this study was to extend this prior work on inflexibility in autism but with measures specifically developed with input from stakeholders (caregivers and clinicians) for autistic youth designed to measure everyday behavioral inflexibility (BI). We characterized anxiety in a large sample of autistic (N = 145) and non-autistic youth (N = 91), ages 3 to 17 years, using the Parent Rated Anxiety Scale for Autism Spectrum Disorder (PRAS-ASD). Further, we sought to understand how BI, measured via the Behavioral Inflexibility Scale (BIS), predicted anxiety compared to other variables known to increase anxiety in youth (chronological age, IQ, autism diagnosis, assigned sex at birth). Autistic youth had higher parent-related anxiety and BI compared to non-autistic youth. BI was the strongest predictor of anxiety scores, irrespective of diagnosis. Overall, our findings highlight the importance of BI to the understanding of anxiety in autistic youth. En ligne : https://doi.org/10.1007/s10803-023-06079-3 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=536 [article] Refining our Understanding of Anxiety in Autistic Youth: Examining the Role of Behavioral Inflexibility [Texte imprimé et/ou numérique] / Clare HARROP, Auteur ; James BODFISH, Auteur ; Luc LECAVALIER, Auteur ; Aaron R. DALLMAN, Auteur ; Desiree JONES, Auteur ; Jill PRITCHETT, Auteur ; Allison WHITTEN, Auteur ; Brian A. BOYD, Auteur . - p.3620-3629. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 54-10 (October 2024) . - p.3620-3629 Index. décimale : PER Périodiques Résumé : Prior research has demonstrated that cognitive inflexibility is associated with anxiety in autistic individuals. Everyday patterns of behavioral inflexibility (e.g. observable inflexible behavior in the context of the need to change or adapt and that is manifested in real-world everyday settings) is common in autism and can be distinguished from performance on discrete cognitive tasks that tap flexible attention, learning, or decision-making. The purpose of this study was to extend this prior work on inflexibility in autism but with measures specifically developed with input from stakeholders (caregivers and clinicians) for autistic youth designed to measure everyday behavioral inflexibility (BI). We characterized anxiety in a large sample of autistic (N = 145) and non-autistic youth (N = 91), ages 3 to 17 years, using the Parent Rated Anxiety Scale for Autism Spectrum Disorder (PRAS-ASD). Further, we sought to understand how BI, measured via the Behavioral Inflexibility Scale (BIS), predicted anxiety compared to other variables known to increase anxiety in youth (chronological age, IQ, autism diagnosis, assigned sex at birth). Autistic youth had higher parent-related anxiety and BI compared to non-autistic youth. BI was the strongest predictor of anxiety scores, irrespective of diagnosis. Overall, our findings highlight the importance of BI to the understanding of anxiety in autistic youth. En ligne : https://doi.org/10.1007/s10803-023-06079-3 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=536

Reliability and validity of the Pediatric Anxiety Rating Scale modified for autism spectrum disorder / Brenna B MADDOX in Autism, 24-7 (October 2020)  

Public ISBD [article]  inAutism > 24-7 (October 2020) . - p.1773-1782 Titre : Reliability and validity of the Pediatric Anxiety Rating Scale modified for autism spectrum disorder Type de document : Texte imprimé et/ou numérique Auteurs : Brenna B MADDOX, Auteur ; Luc LECAVALIER, Auteur ; Judith S. MILLER, Auteur ; Jill PRITCHETT, Auteur ; Jill HOLLWAY, Auteur ; Susan W. WHITE, Auteur ; Scott GILLESPIE, Auteur ; Andrea Nichole EVANS, Auteur ; Robert T. SCHULTZ, Auteur ; John D. HERRINGTON, Auteur ; Karen E. BEARSS, Auteur ; Lawrence SCAHILL, Auteur Article en page(s) : p.1773-1782 Langues : Anglais (eng) Mots-clés : *Pediatric Anxiety Rating Scale  *anxiety  *assessment  *autism spectrum disorder  *reliability  *validity Index. décimale : PER Périodiques Résumé : Many youth with autism spectrum disorder have anxiety, but it can be difficult to assess anxiety with existing measures. We modified the Pediatric Anxiety Rating Scale for youth with autism spectrum disorder and tested the new measure in a group of 116 youth (age: 5-17?years) with autism spectrum disorder. The Pediatric Anxiety Rating Scale for youth with autism spectrum disorder is an interview that a clinician usually completes with the child and parent together. We modified the interview questions and scoring instructions based on feedback from parents of children with autism spectrum disorder and from a panel of experts in autism spectrum disorder and anxiety. Unlike many other anxiety measures, the Pediatric Anxiety Rating Scale for youth with autism spectrum disorder relies less on a child's verbal expression of anxiety and more on signs that a parent can easily observe. Training clinicians to administer and score the Pediatric Anxiety Rating Scale for youth with autism spectrum disorder was uncomplicated, and raters showed excellent agreement on video-recorded interviews. Youth who were not currently in treatment for anxiety had stable Pediatric Anxiety Rating Scale for youth with autism spectrum disorder scores with repeat measurement over a 1-month period. The Pediatric Anxiety Rating Scale for youth with autism spectrum disorder is a useful clinician-rated measure of anxiety in youth with autism spectrum disorder and fills a gap for assessing anxiety in this population. En ligne : http://dx.doi.org/10.1177/1362361320922682 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=431 [article] Reliability and validity of the Pediatric Anxiety Rating Scale modified for autism spectrum disorder [Texte imprimé et/ou numérique] / Brenna B MADDOX, Auteur ; Luc LECAVALIER, Auteur ; Judith S. MILLER, Auteur ; Jill PRITCHETT, Auteur ; Jill HOLLWAY, Auteur ; Susan W. WHITE, Auteur ; Scott GILLESPIE, Auteur ; Andrea Nichole EVANS, Auteur ; Robert T. SCHULTZ, Auteur ; John D. HERRINGTON, Auteur ; Karen E. BEARSS, Auteur ; Lawrence SCAHILL, Auteur . - p.1773-1782. Langues : Anglais (eng) in Autism > 24-7 (October 2020) . - p.1773-1782 Mots-clés : *Pediatric Anxiety Rating Scale  *anxiety  *assessment  *autism spectrum disorder  *reliability  *validity Index. décimale : PER Périodiques Résumé : Many youth with autism spectrum disorder have anxiety, but it can be difficult to assess anxiety with existing measures. We modified the Pediatric Anxiety Rating Scale for youth with autism spectrum disorder and tested the new measure in a group of 116 youth (age: 5-17?years) with autism spectrum disorder. The Pediatric Anxiety Rating Scale for youth with autism spectrum disorder is an interview that a clinician usually completes with the child and parent together. We modified the interview questions and scoring instructions based on feedback from parents of children with autism spectrum disorder and from a panel of experts in autism spectrum disorder and anxiety. Unlike many other anxiety measures, the Pediatric Anxiety Rating Scale for youth with autism spectrum disorder relies less on a child's verbal expression of anxiety and more on signs that a parent can easily observe. Training clinicians to administer and score the Pediatric Anxiety Rating Scale for youth with autism spectrum disorder was uncomplicated, and raters showed excellent agreement on video-recorded interviews. Youth who were not currently in treatment for anxiety had stable Pediatric Anxiety Rating Scale for youth with autism spectrum disorder scores with repeat measurement over a 1-month period. The Pediatric Anxiety Rating Scale for youth with autism spectrum disorder is a useful clinician-rated measure of anxiety in youth with autism spectrum disorder and fills a gap for assessing anxiety in this population. En ligne : http://dx.doi.org/10.1177/1362361320922682 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=431

Using qualitative methods to guide scale development for anxiety in youth with autism spectrum disorder / Karen E. BEARSS in Autism, 20-6 (August 2016)  

Public ISBD [article]  inAutism > 20-6 (August 2016) . - p.663-672 Titre : Using qualitative methods to guide scale development for anxiety in youth with autism spectrum disorder Type de document : Texte imprimé et/ou numérique Auteurs : Karen E. BEARSS, Auteur ; Christopher A TAYLOR, Auteur ; Michael G. AMAN, Auteur ; Robin WHITTEMORE, Auteur ; Luc LECAVALIER, Auteur ; Judith MILLER, Auteur ; Jill PRITCHETT, Auteur ; Bryson GREEN, Auteur ; Lawrence SCAHILL, Auteur Article en page(s) : p.663-672 Langues : Anglais (eng) Mots-clés : anxiety  autism spectrum disorder  content validity  focus group  instrument development  qualitative methods Index. décimale : PER Périodiques Résumé : Anxiety is common in youth with autism spectrum disorder. Despite this common co-occurrence, studies targeting anxiety in this population are hindered by the under-developed state of measures in youth with autism spectrum disorder. Content validity (the extent to which an instrument measures the domain of interest) and an instrument’s relevance to the patient population are key components of measurement development. This article describes the application of qualitative research methods in the initial development of a parent-rated instrument of anxiety symptoms in youth with autism spectrum disorder. Overall, 48 parents of 45 children (aged 3–17?years) with autism spectrum disorder and at least mild anxiety participated in one of six focus groups at two sites (three groups per site). Systematic coding of the focus group transcripts identified broad themes reflecting the situations and events that trigger anxiety in children with autism spectrum disorder, the behavioral manifestations of anxiety in children with autism spectrum disorder, the parent and the child’s own response to anxiety, and broad behavioral patterns that could be associated with anxiety. From the focus group data, investigators generated 52 candidate items for a parent-rating of anxiety in youth with autism spectrum disorder. This report provides a detailed description of these early steps in developing a patient-oriented outcome measure. En ligne : http://dx.doi.org/10.1177/1362361315601012 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=290 [article] Using qualitative methods to guide scale development for anxiety in youth with autism spectrum disorder [Texte imprimé et/ou numérique] / Karen E. BEARSS, Auteur ; Christopher A TAYLOR, Auteur ; Michael G. AMAN, Auteur ; Robin WHITTEMORE, Auteur ; Luc LECAVALIER, Auteur ; Judith MILLER, Auteur ; Jill PRITCHETT, Auteur ; Bryson GREEN, Auteur ; Lawrence SCAHILL, Auteur . - p.663-672. Langues : Anglais (eng) in Autism > 20-6 (August 2016) . - p.663-672 Mots-clés : anxiety  autism spectrum disorder  content validity  focus group  instrument development  qualitative methods Index. décimale : PER Périodiques Résumé : Anxiety is common in youth with autism spectrum disorder. Despite this common co-occurrence, studies targeting anxiety in this population are hindered by the under-developed state of measures in youth with autism spectrum disorder. Content validity (the extent to which an instrument measures the domain of interest) and an instrument’s relevance to the patient population are key components of measurement development. This article describes the application of qualitative research methods in the initial development of a parent-rated instrument of anxiety symptoms in youth with autism spectrum disorder. Overall, 48 parents of 45 children (aged 3–17?years) with autism spectrum disorder and at least mild anxiety participated in one of six focus groups at two sites (three groups per site). Systematic coding of the focus group transcripts identified broad themes reflecting the situations and events that trigger anxiety in children with autism spectrum disorder, the behavioral manifestations of anxiety in children with autism spectrum disorder, the parent and the child’s own response to anxiety, and broad behavioral patterns that could be associated with anxiety. From the focus group data, investigators generated 52 candidate items for a parent-rating of anxiety in youth with autism spectrum disorder. This report provides a detailed description of these early steps in developing a patient-oriented outcome measure. En ligne : http://dx.doi.org/10.1177/1362361315601012 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=290

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