Camouflaging, not sensory processing or autistic identity, predicts eating disorder symptoms in autistic adults / Siofra BRADLEY in Autism, 28-11 (November 2024)  

Public ISBD [article]  inAutism > 28-11 (November 2024) . - p.2858 - 2868 Titre : Camouflaging, not sensory processing or autistic identity, predicts eating disorder symptoms in autistic adults Type de document : Texte imprimé et/ou numérique Auteurs : Siofra BRADLEY, Auteur ; Fhionna MOORE, Auteur ; Fiona DUFFY, Auteur ; Lili CLARK, Auteur ; Tasha SURATWALA, Auteur ; Pooky KNIGHTSMITH, Auteur ; Karri GILLESPIE-SMITH, Auteur Article en page(s) : p.2858 - 2868 Langues : Anglais (eng) Mots-clés : autism  Autistic identity  camouflaging  eating disorders  sensory processing Index. décimale : PER Périodiques Résumé : The objective of this study was to explore the role that Autistic identity, sensory processing and camouflaging behaviours have on eating disorder symptomology in Autistic adults. Previous research has focused on cognitive and sensory factors to explain the association between autism and eating disorders, but the roles of social identity and camouflaging are yet to be explored. Autistic participants (N = 180) were recruited from NHS settings and community groups. The participants completed online questionnaires measuring autistic identity, camouflaging behaviours, sensory processing, autistic traits and eating disorder symptoms. Multiple regression revealed that camouflaging significantly predicted eating disorder symptoms. Although sensory processing was related, it did not significantly predict eating disorder symptom severity. In addition, there was no significant relationship between autistic identity and eating disorder symptom severity. This study highlights the impact that camouflaging behaviours and sensory processing can have on eating disorder symptomatology in autism and may indicate important considerations for the treatment of eating disorders in Autistic people. Lay Abstract This study aimed to explore the impact of Autistic identity (i.e. feeling like you belong to the Autistic community), sensory profiles (e.g. being over or under responsive to sensations) and camouflaging behaviours (i.e. masking) on eating disorder symptoms in Autistic adults. 180 Autistic people were recruited from the community and NHS. The Autistic people completed online questionnaires measuring Autistic identity, sensory profiles, camouflaging behaviours, autistic traits and eating disorder symptoms. The analysis showed that higher levels of camouflaging behaviour predicted higher levels of eating disorder symptoms. Sensory profiles were related to but did not predict eating disorder symptoms and there was no relationship between level of Autistic identity and eating disorder symptoms. This shows that camouflaging is the most important predictor of eating disorder symptoms in Autistic people, and warrants further exploration. En ligne : https://dx.doi.org/10.1177/13623613241245749 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=537 [article] Camouflaging, not sensory processing or autistic identity, predicts eating disorder symptoms in autistic adults [Texte imprimé et/ou numérique] / Siofra BRADLEY, Auteur ; Fhionna MOORE, Auteur ; Fiona DUFFY, Auteur ; Lili CLARK, Auteur ; Tasha SURATWALA, Auteur ; Pooky KNIGHTSMITH, Auteur ; Karri GILLESPIE-SMITH, Auteur . - p.2858 - 2868. Langues : Anglais (eng) in Autism > 28-11 (November 2024) . - p.2858 - 2868 Mots-clés : autism  Autistic identity  camouflaging  eating disorders  sensory processing Index. décimale : PER Périodiques Résumé : The objective of this study was to explore the role that Autistic identity, sensory processing and camouflaging behaviours have on eating disorder symptomology in Autistic adults. Previous research has focused on cognitive and sensory factors to explain the association between autism and eating disorders, but the roles of social identity and camouflaging are yet to be explored. Autistic participants (N = 180) were recruited from NHS settings and community groups. The participants completed online questionnaires measuring autistic identity, camouflaging behaviours, sensory processing, autistic traits and eating disorder symptoms. Multiple regression revealed that camouflaging significantly predicted eating disorder symptoms. Although sensory processing was related, it did not significantly predict eating disorder symptom severity. In addition, there was no significant relationship between autistic identity and eating disorder symptom severity. This study highlights the impact that camouflaging behaviours and sensory processing can have on eating disorder symptomatology in autism and may indicate important considerations for the treatment of eating disorders in Autistic people. Lay Abstract This study aimed to explore the impact of Autistic identity (i.e. feeling like you belong to the Autistic community), sensory profiles (e.g. being over or under responsive to sensations) and camouflaging behaviours (i.e. masking) on eating disorder symptoms in Autistic adults. 180 Autistic people were recruited from the community and NHS. The Autistic people completed online questionnaires measuring Autistic identity, sensory profiles, camouflaging behaviours, autistic traits and eating disorder symptoms. The analysis showed that higher levels of camouflaging behaviour predicted higher levels of eating disorder symptoms. Sensory profiles were related to but did not predict eating disorder symptoms and there was no relationship between level of Autistic identity and eating disorder symptoms. This shows that camouflaging is the most important predictor of eating disorder symptoms in Autistic people, and warrants further exploration. En ligne : https://dx.doi.org/10.1177/13623613241245749 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=537

Preterm birth is associated with atypical social orienting in infancy detected using eye tracking / Emma J. TELFORD in Journal of Child Psychology and Psychiatry, 57-7 (July 2016)  

Public ISBD [article]  inJournal of Child Psychology and Psychiatry > 57-7 (July 2016) . - p.861-868 Titre : Preterm birth is associated with atypical social orienting in infancy detected using eye tracking Type de document : Texte imprimé et/ou numérique Auteurs : Emma J. TELFORD, Auteur ; Sue FLETCHER-WATSON, Auteur ; Karri GILLESPIE-SMITH, Auteur ; Rozalia PATAKY, Auteur ; Sarah SPARROW, Auteur ; Ian C. MURRAY, Auteur ; Anne O'HARE, Auteur ; James P. BOARDMAN, Auteur Article en page(s) : p.861-868 Langues : Anglais (eng) Mots-clés : Social orienting  development  preterm infant  eye tracking Index. décimale : PER Périodiques Résumé : Background Preterm birth is closely associated with neurocognitive impairment in childhood including increased risk for social difficulties. Eye tracking objectively assesses eye-gaze behaviour in response to visual stimuli, which permits inference about underlying cognitive processes. We tested the hypothesis that social orienting in infancy is altered by preterm birth. Methods Fifty preterm infants with mean (range) gestational age (GA) at birth of 29+1 (23+2–33+0) weeks and 50 term infants with mean (range) GA at birth 40+2 (37+0–42+3) weeks underwent eye tracking at median age of 7 months. Infants were presented with three categories of social stimuli of increasing complexity. Time to first fixate (TFF) and looking time (LT) on areas of interest (AoIs) were recorded using remote eye tracking. Results Preterm infants consistently fixated for a shorter time on social content than term infants across all three tasks: face-scanning (fixation to eyes minus mouth 0.61s vs. 1.47s, p = .013); face pop-out task (fixation to face 0.8s vs. 1.34s, p = .023); and social preferential looking (1.16s vs. 1.5s p = .02). Time given to AoIs containing social content as a proportion of LT at the whole stimulus was lower in preterm infants across all three tasks. These results were not explained by differences in overall looking time between the groups. Conclusions Eye tracking provides early evidence of atypical cognition after preterm birth, and may be a useful tool for stratifying infants at risk of impairment for early interventions designed to improve outcome. En ligne : http://dx.doi.org/10.1111/jcpp.12546 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=291 [article] Preterm birth is associated with atypical social orienting in infancy detected using eye tracking [Texte imprimé et/ou numérique] / Emma J. TELFORD, Auteur ; Sue FLETCHER-WATSON, Auteur ; Karri GILLESPIE-SMITH, Auteur ; Rozalia PATAKY, Auteur ; Sarah SPARROW, Auteur ; Ian C. MURRAY, Auteur ; Anne O'HARE, Auteur ; James P. BOARDMAN, Auteur . - p.861-868. Langues : Anglais (eng) in Journal of Child Psychology and Psychiatry > 57-7 (July 2016) . - p.861-868 Mots-clés : Social orienting  development  preterm infant  eye tracking Index. décimale : PER Périodiques Résumé : Background Preterm birth is closely associated with neurocognitive impairment in childhood including increased risk for social difficulties. Eye tracking objectively assesses eye-gaze behaviour in response to visual stimuli, which permits inference about underlying cognitive processes. We tested the hypothesis that social orienting in infancy is altered by preterm birth. Methods Fifty preterm infants with mean (range) gestational age (GA) at birth of 29+1 (23+2–33+0) weeks and 50 term infants with mean (range) GA at birth 40+2 (37+0–42+3) weeks underwent eye tracking at median age of 7 months. Infants were presented with three categories of social stimuli of increasing complexity. Time to first fixate (TFF) and looking time (LT) on areas of interest (AoIs) were recorded using remote eye tracking. Results Preterm infants consistently fixated for a shorter time on social content than term infants across all three tasks: face-scanning (fixation to eyes minus mouth 0.61s vs. 1.47s, p = .013); face pop-out task (fixation to face 0.8s vs. 1.34s, p = .023); and social preferential looking (1.16s vs. 1.5s p = .02). Time given to AoIs containing social content as a proportion of LT at the whole stimulus was lower in preterm infants across all three tasks. These results were not explained by differences in overall looking time between the groups. Conclusions Eye tracking provides early evidence of atypical cognition after preterm birth, and may be a useful tool for stratifying infants at risk of impairment for early interventions designed to improve outcome. En ligne : http://dx.doi.org/10.1111/jcpp.12546 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=291

The Impact of COVID-19 Restrictions on Psychological Distress in Family Caregivers of Children with Neurodevelopmental Disability in the UK / Karri GILLESPIE-SMITH in Journal of Autism and Developmental Disorders, 53-4 (April 2023)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 53-4 (April 2023) . - p.1573-1587 Titre : The Impact of COVID-19 Restrictions on Psychological Distress in Family Caregivers of Children with Neurodevelopmental Disability in the UK Type de document : Texte imprimé et/ou numérique Auteurs : Karri GILLESPIE-SMITH, Auteur ; Doug MCCONACHIE, Auteur ; Carrie BALLANTYNE, Auteur ; Bonnie AUYEUNG, Auteur ; Karen GOODALL, Auteur Article en page(s) : p.1573-1587 Langues : Anglais (eng) Index. décimale : PER Périodiques Résumé : Caregivers of a child with a neurodevelopmental disability are more vulnerable to mental health difficulties. These difficulties are influenced by the child?s challenging behaviours, and the caregiver?s coping strategies; factors impacted by the COVID-19 pandemic. An online mixed methods survey was conducted on caregivers of children with neurodevelopmental disabilities (n=43) and children who are typically developing (n=67). The results showed that presence of challenging behaviours related to neurodevelopmental disability, and caregiver coping strategies predicted caregiver psychological distress during lockdown. Themes that emerged included 'confusing messages and guidance', 'loss of freedom' and 'unsupported and forgotten'. The results demonstrate the pressing need for the implementation of appropriate support to protect the mental health of caregivers across the UK. En ligne : https://doi.org/10.1007/s10803-021-05132-3 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=500 [article] The Impact of COVID-19 Restrictions on Psychological Distress in Family Caregivers of Children with Neurodevelopmental Disability in the UK [Texte imprimé et/ou numérique] / Karri GILLESPIE-SMITH, Auteur ; Doug MCCONACHIE, Auteur ; Carrie BALLANTYNE, Auteur ; Bonnie AUYEUNG, Auteur ; Karen GOODALL, Auteur . - p.1573-1587. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 53-4 (April 2023) . - p.1573-1587 Index. décimale : PER Périodiques Résumé : Caregivers of a child with a neurodevelopmental disability are more vulnerable to mental health difficulties. These difficulties are influenced by the child?s challenging behaviours, and the caregiver?s coping strategies; factors impacted by the COVID-19 pandemic. An online mixed methods survey was conducted on caregivers of children with neurodevelopmental disabilities (n=43) and children who are typically developing (n=67). The results showed that presence of challenging behaviours related to neurodevelopmental disability, and caregiver coping strategies predicted caregiver psychological distress during lockdown. Themes that emerged included 'confusing messages and guidance', 'loss of freedom' and 'unsupported and forgotten'. The results demonstrate the pressing need for the implementation of appropriate support to protect the mental health of caregivers across the UK. En ligne : https://doi.org/10.1007/s10803-021-05132-3 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=500

When the mask comes off: Mothers' experiences of parenting a daughter with autism spectrum condition / James ANDERSON in Autism, 24-6 (August 2020)  

Public ISBD [article]  inAutism > 24-6 (August 2020) . - p.1546-1556 Titre : When the mask comes off: Mothers' experiences of parenting a daughter with autism spectrum condition Type de document : Texte imprimé et/ou numérique Auteurs : James ANDERSON, Auteur ; Charles MARLEY, Auteur ; Karri GILLESPIE-SMITH, Auteur ; Leonie CARTER, Auteur ; Ken MACMAHON, Auteur Article en page(s) : p.1546-1556 Langues : Anglais (eng) Mots-clés : autism spectrum condition  daughters  girls  interpretative phenomenological analysis  masking  mothers  parenting Index. décimale : PER Périodiques Résumé : Parents of children with autism spectrum condition report increased stress and difficulties compared with parents of typically developing children. Our knowledge and understanding of how autism spectrum condition presents in autistic females is currently limited and parents of this population may experience challenges when raising their daughter. Given that mothers are often the main caregiver of a child with autism spectrum condition, they may have useful insights into the experiences of parenting a daughter with autism spectrum condition. Therefore, a qualitative study was undertaken to explore what mothers' experiences are of parenting a daughter with autism spectrum condition. Semi-structured interviews were conducted with 10 mothers of daughters with autism spectrum condition. The interviews were analysed using interpretative phenomenological analysis. Five main themes emerged from the qualitative study ('Girls have autism too', 'She's a chameleon', 'The impact of the diagnosis', 'Impact on mums' and 'Day-to-day life'). The findings of this study expand our current knowledge of the experiences and challenges faced by mothers raising a daughter with autism spectrum condition. Mothers hold a vast amount of knowledge on their daughters' autism spectrum condition which could inform the diagnostic process and clinical practice. Considering these results, it is important that clinicians support mothers and the family system around children with an autism spectrum condition diagnosis. En ligne : http://dx.doi.org/10.1177/1362361320913668 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=428 [article] When the mask comes off: Mothers' experiences of parenting a daughter with autism spectrum condition [Texte imprimé et/ou numérique] / James ANDERSON, Auteur ; Charles MARLEY, Auteur ; Karri GILLESPIE-SMITH, Auteur ; Leonie CARTER, Auteur ; Ken MACMAHON, Auteur . - p.1546-1556. Langues : Anglais (eng) in Autism > 24-6 (August 2020) . - p.1546-1556 Mots-clés : autism spectrum condition  daughters  girls  interpretative phenomenological analysis  masking  mothers  parenting Index. décimale : PER Périodiques Résumé : Parents of children with autism spectrum condition report increased stress and difficulties compared with parents of typically developing children. Our knowledge and understanding of how autism spectrum condition presents in autistic females is currently limited and parents of this population may experience challenges when raising their daughter. Given that mothers are often the main caregiver of a child with autism spectrum condition, they may have useful insights into the experiences of parenting a daughter with autism spectrum condition. Therefore, a qualitative study was undertaken to explore what mothers' experiences are of parenting a daughter with autism spectrum condition. Semi-structured interviews were conducted with 10 mothers of daughters with autism spectrum condition. The interviews were analysed using interpretative phenomenological analysis. Five main themes emerged from the qualitative study ('Girls have autism too', 'She's a chameleon', 'The impact of the diagnosis', 'Impact on mums' and 'Day-to-day life'). The findings of this study expand our current knowledge of the experiences and challenges faced by mothers raising a daughter with autism spectrum condition. Mothers hold a vast amount of knowledge on their daughters' autism spectrum condition which could inform the diagnostic process and clinical practice. Considering these results, it is important that clinicians support mothers and the family system around children with an autism spectrum condition diagnosis. En ligne : http://dx.doi.org/10.1177/1362361320913668 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=428

"You Feel Like You Kind of Walk Between the Two Worlds": A Participatory Study Exploring How Technology Can Support Emotion Regulation for Autistic People / Lauren GILLIES-WALKER in Journal of Autism and Developmental Disorders, 53-1 (January 2023)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 53-1 (January 2023) . - p.216-228 Titre : "You Feel Like You Kind of Walk Between the Two Worlds": A Participatory Study Exploring How Technology Can Support Emotion Regulation for Autistic People Type de document : Texte imprimé et/ou numérique Auteurs : Lauren GILLIES-WALKER, Auteur ; Naeem RAMZAN, Auteur ; Jean RANKIN, Auteur ; Emy NIMBLEY, Auteur ; Karri GILLESPIE-SMITH, Auteur Article en page(s) : p.216-228 Langues : Anglais (eng) Index. décimale : PER Périodiques Résumé : An increasing amount of technological solutions aiming to support emotion regulation are being developed for Autistic people. However, there remains a lack of understanding of user needs, and design factors which has led to poor usability and varied success. Furthermore, studies assessing the feasibility of emotion regulation technology via physiological signals for autistic people are increasingly showing promise, yet to date there has been no exploration of views from the autistic community on the benefits/challenges such technology may present in practice. Focus groups with autistic people and their allies were conducted to gain insight into experiences and expectations of technological supports aimed at supporting emotion regulation. Reflexive thematic analysis generated three themes: (1) communication challenges (2) views on emotion regulation technology (3) ˜how’ technology is implemented. Results provide meaningful insight into the socio-emotional communication challenges faced by autistic people, and explore the expectations of technology aimed at supporting emotion regulation. En ligne : https://doi.org/10.1007/s10803-021-05392-z Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=493 [article] "You Feel Like You Kind of Walk Between the Two Worlds": A Participatory Study Exploring How Technology Can Support Emotion Regulation for Autistic People [Texte imprimé et/ou numérique] / Lauren GILLIES-WALKER, Auteur ; Naeem RAMZAN, Auteur ; Jean RANKIN, Auteur ; Emy NIMBLEY, Auteur ; Karri GILLESPIE-SMITH, Auteur . - p.216-228. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 53-1 (January 2023) . - p.216-228 Index. décimale : PER Périodiques Résumé : An increasing amount of technological solutions aiming to support emotion regulation are being developed for Autistic people. However, there remains a lack of understanding of user needs, and design factors which has led to poor usability and varied success. Furthermore, studies assessing the feasibility of emotion regulation technology via physiological signals for autistic people are increasingly showing promise, yet to date there has been no exploration of views from the autistic community on the benefits/challenges such technology may present in practice. Focus groups with autistic people and their allies were conducted to gain insight into experiences and expectations of technological supports aimed at supporting emotion regulation. Reflexive thematic analysis generated three themes: (1) communication challenges (2) views on emotion regulation technology (3) ˜how’ technology is implemented. Results provide meaningful insight into the socio-emotional communication challenges faced by autistic people, and explore the expectations of technology aimed at supporting emotion regulation. En ligne : https://doi.org/10.1007/s10803-021-05392-z Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=493

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