Adapting and pre-testing the World Health Organization's Caregiver Skills Training programme for autism and other developmental disorders in a very low-resource setting: Findings from Ethiopia / B. TEKOLA in Autism, 24-1 (January 2020)  

Public ISBD [article]  inAutism > 24-1 (January 2020) . - p.51-63 Titre : Adapting and pre-testing the World Health Organization's Caregiver Skills Training programme for autism and other developmental disorders in a very low-resource setting: Findings from Ethiopia Type de document : Texte imprimé et/ou numérique Auteurs : B. TEKOLA, Auteur ; F. GIRMA, Auteur ; M. KINFE, Auteur ; Rehana ABDURAHMAN, Auteur ; M. TESFAYE, Auteur ; Z. YENUS, Auteur ; E. SALOMONE, Auteur ; L. PACIONE, Auteur ; A. FEKADU, Auteur ; C. SERVILI, Auteur ; C. HANLON, Auteur ; R. A. HOEKSTRA, Auteur Article en page(s) : p.51-63 Langues : Anglais (eng) Mots-clés : Ethiopia  caregivers  developmental delay  developmental disorders  parent-mediated  parenting skills programme  qualitative Index. décimale : PER Périodiques Résumé : The World Health Organization's Caregiver Skills Training programme for children with developmental disorders or delays teaches caregivers strategies to help them support their child's development. Ethiopia has a severe lack of services for children with developmental disorders or delays. This study explored the perspectives of Ethiopian caregivers, professionals and other stakeholders to inform adaptation and implementation of the World Health Organization's Caregiver Skills Training in Ethiopia. Data collection included (1) a consultation and review, comprising stakeholder meetings, review of draft Caregiver Skills Training materials and feedback from Ethiopian Master Trainees and (2) a pre-pilot including quantitative feasibility and acceptability measures and qualitative interviews with caregivers (n = 9) and programme facilitators/observers (n = 5). The consultation participants indicated that the Caregiver Skills Training addresses an urgent need and is relevant to the Ethiopian context. Several adaptations were proposed, including more emphasis on psycho-education, stigma, parental feelings of guilt and expectations of a cure. The adapted Caregiver Skills Training was pre-piloted with excellent participation (100%) and retention (90%) rates. Four themes were developed from the qualitative data: (1) Programme acceptability and relevance, (2) Perceived programme benefits, (3) Challenges and barriers and (4) Suggestions for improvement. The World Health Organization's Caregiver Skills Training addresses a local need and, with careful adaptations, is feasible and acceptable to be implemented in Ethiopia. These findings may have relevance to low-resource settings worldwide. En ligne : http://dx.doi.org/10.1177/1362361319848532 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=414 [article] Adapting and pre-testing the World Health Organization's Caregiver Skills Training programme for autism and other developmental disorders in a very low-resource setting: Findings from Ethiopia [Texte imprimé et/ou numérique] / B. TEKOLA, Auteur ; F. GIRMA, Auteur ; M. KINFE, Auteur ; Rehana ABDURAHMAN, Auteur ; M. TESFAYE, Auteur ; Z. YENUS, Auteur ; E. SALOMONE, Auteur ; L. PACIONE, Auteur ; A. FEKADU, Auteur ; C. SERVILI, Auteur ; C. HANLON, Auteur ; R. A. HOEKSTRA, Auteur . - p.51-63. Langues : Anglais (eng) in Autism > 24-1 (January 2020) . - p.51-63 Mots-clés : Ethiopia  caregivers  developmental delay  developmental disorders  parent-mediated  parenting skills programme  qualitative Index. décimale : PER Périodiques Résumé : The World Health Organization's Caregiver Skills Training programme for children with developmental disorders or delays teaches caregivers strategies to help them support their child's development. Ethiopia has a severe lack of services for children with developmental disorders or delays. This study explored the perspectives of Ethiopian caregivers, professionals and other stakeholders to inform adaptation and implementation of the World Health Organization's Caregiver Skills Training in Ethiopia. Data collection included (1) a consultation and review, comprising stakeholder meetings, review of draft Caregiver Skills Training materials and feedback from Ethiopian Master Trainees and (2) a pre-pilot including quantitative feasibility and acceptability measures and qualitative interviews with caregivers (n = 9) and programme facilitators/observers (n = 5). The consultation participants indicated that the Caregiver Skills Training addresses an urgent need and is relevant to the Ethiopian context. Several adaptations were proposed, including more emphasis on psycho-education, stigma, parental feelings of guilt and expectations of a cure. The adapted Caregiver Skills Training was pre-piloted with excellent participation (100%) and retention (90%) rates. Four themes were developed from the qualitative data: (1) Programme acceptability and relevance, (2) Perceived programme benefits, (3) Challenges and barriers and (4) Suggestions for improvement. The World Health Organization's Caregiver Skills Training addresses a local need and, with careful adaptations, is feasible and acceptable to be implemented in Ethiopia. These findings may have relevance to low-resource settings worldwide. En ligne : http://dx.doi.org/10.1177/1362361319848532 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=414

Adaptive Behaviour and Cognitive Skills: Stability and Change from 7 Months to 7 Years in Siblings at High Familial Risk of Autism Spectrum Disorder / E. SALOMONE in Journal of Autism and Developmental Disorders, 48-9 (September 2018)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 48-9 (September 2018) . - p.2901-2911 Titre : Adaptive Behaviour and Cognitive Skills: Stability and Change from 7 Months to 7 Years in Siblings at High Familial Risk of Autism Spectrum Disorder Type de document : Texte imprimé et/ou numérique Auteurs : E. SALOMONE, Auteur ; E. SHEPHARD, Auteur ; B. MILOSAVLJEVIC, Auteur ; M. H. JOHNSON, Auteur ; Tony CHARMAN, Auteur Article en page(s) : p.2901-2911 Langues : Anglais (eng) Mots-clés : Adaptive behaviour  Cognitive ability  High familial risk  Prospective study Index. décimale : PER Périodiques Résumé : Cognitive and adaptive behaviour abilities early in life provide important clinical prognostic information. We examined stability of such skills in children at high familial risk for ASD who either met diagnostic criteria for ASD at age 7 years (HR-ASD, n = 15) or did not (HR-non-ASD, n = 24) and low-risk control children (LR, n = 37), prospectively studied from infancy. For both HR groups, cognitive skills were consistently lower across time than those of LR children. HR-ASD children showed increasing difficulties in adaptive behaviour over time compared to LR children, while the HR-non-ASD children showed no such difficulties. This pattern of change may inform our understanding of developmental profiles of HR siblings beyond core ASD symptoms. En ligne : http://dx.doi.org/10.1007/s10803-018-3554-5 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=367 [article] Adaptive Behaviour and Cognitive Skills: Stability and Change from 7 Months to 7 Years in Siblings at High Familial Risk of Autism Spectrum Disorder [Texte imprimé et/ou numérique] / E. SALOMONE, Auteur ; E. SHEPHARD, Auteur ; B. MILOSAVLJEVIC, Auteur ; M. H. JOHNSON, Auteur ; Tony CHARMAN, Auteur . - p.2901-2911. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 48-9 (September 2018) . - p.2901-2911 Mots-clés : Adaptive behaviour  Cognitive ability  High familial risk  Prospective study Index. décimale : PER Périodiques Résumé : Cognitive and adaptive behaviour abilities early in life provide important clinical prognostic information. We examined stability of such skills in children at high familial risk for ASD who either met diagnostic criteria for ASD at age 7 years (HR-ASD, n = 15) or did not (HR-non-ASD, n = 24) and low-risk control children (LR, n = 37), prospectively studied from infancy. For both HR groups, cognitive skills were consistently lower across time than those of LR children. HR-ASD children showed increasing difficulties in adaptive behaviour over time compared to LR children, while the HR-non-ASD children showed no such difficulties. This pattern of change may inform our understanding of developmental profiles of HR siblings beyond core ASD symptoms. En ligne : http://dx.doi.org/10.1007/s10803-018-3554-5 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=367

L'évolution de la cognition sociale chez les enfants avec un trouble du spectre de l'autisme : approche développementale mixte / Evelyne THOMMEN in Approche Neuropsychologique des Apprentissages chez l'Enfant - A.N.A.E., 144 (Novembre 2016)

Public ISBD [article]  inApproche Neuropsychologique des Apprentissages chez l'Enfant - A.N.A.E. > 144 (Novembre 2016) . - frep.527-537 Titre : L'évolution de la cognition sociale chez les enfants avec un trouble du spectre de l'autisme : approche développementale mixte Type de document : Texte imprimé et/ou numérique Auteurs : Evelyne THOMMEN, Auteur ; D. BULGARELLI, Auteur ; Chiara CATTELAN, Auteur ; A. DI FULVIO, Auteur ; N. FOUDON, Auteur ; P. MOLINA, Auteur ; E. ROSSINI, Auteur ; N. RUDELLI, Auteur ; E. SALOMONE, Auteur Article en page(s) : frep.527-537 Mots-clés : Trouble du spectre de l’autisme  Théorie de l’esprit  Compréhension des émotions Index. décimale : PER Périodiques Résumé : Cet article présente les résultats d’une recherche sur le développement de la cognition sociale chez des enfants avec un trouble du spectre de l’autisme (TSA). Nous avons examiné à deux reprises à 6 mois d’intervalle 65 enfants de 4 à 10 ans avec un TSA comparés à des enfants au développement typique. Les enfants sont regroupés selon leur niveau de développement non verbal en trois groupes d’âge de développement (4 à 5, 5 à 7 et 7 et plus). Nous avons évalué leur théorie de l’esprit et leur compréhension des émotions au moyen de deux batteries de tests : le TEC (Pons & Harris, 2000) et le ToM Storybooks (Blijd-Hoogewys et al., 2003). Nos résultats montrent que les scores des enfants s’améliorent au cours du temps pour les deux batteries de tests. Nous trouvons également un développement de cette compréhension en fonction des trois groupes d’âge de développement. Finalement, dans le développement de la cognition sociale, la compréhension des fausses croyances semble constituer une difficulté particulière pour les enfants avec un TSA. Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=299 [article] L'évolution de la cognition sociale chez les enfants avec un trouble du spectre de l'autisme : approche développementale mixte [Texte imprimé et/ou numérique] / Evelyne THOMMEN, Auteur ; D. BULGARELLI, Auteur ; Chiara CATTELAN, Auteur ; A. DI FULVIO, Auteur ; N. FOUDON, Auteur ; P. MOLINA, Auteur ; E. ROSSINI, Auteur ; N. RUDELLI, Auteur ; E. SALOMONE, Auteur . - frep.527-537. in Approche Neuropsychologique des Apprentissages chez l'Enfant - A.N.A.E. > 144 (Novembre 2016) . - frep.527-537 Mots-clés : Trouble du spectre de l’autisme  Théorie de l’esprit  Compréhension des émotions Index. décimale : PER Périodiques Résumé : Cet article présente les résultats d’une recherche sur le développement de la cognition sociale chez des enfants avec un trouble du spectre de l’autisme (TSA). Nous avons examiné à deux reprises à 6 mois d’intervalle 65 enfants de 4 à 10 ans avec un TSA comparés à des enfants au développement typique. Les enfants sont regroupés selon leur niveau de développement non verbal en trois groupes d’âge de développement (4 à 5, 5 à 7 et 7 et plus). Nous avons évalué leur théorie de l’esprit et leur compréhension des émotions au moyen de deux batteries de tests : le TEC (Pons & Harris, 2000) et le ToM Storybooks (Blijd-Hoogewys et al., 2003). Nos résultats montrent que les scores des enfants s’améliorent au cours du temps pour les deux batteries de tests. Nous trouvons également un développement de cette compréhension en fonction des trois groupes d’âge de développement. Finalement, dans le développement de la cognition sociale, la compréhension des fausses croyances semble constituer une difficulté particulière pour les enfants avec un TSA. Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=299

The Association Between Child and Family Characteristics and the Mental Health and Wellbeing of Caregivers of Children with Autism in Mid-Childhood / E. SALOMONE in Journal of Autism and Developmental Disorders, 48-4 (April 2018)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 48-4 (April 2018) . - p.1189-1198 Titre : The Association Between Child and Family Characteristics and the Mental Health and Wellbeing of Caregivers of Children with Autism in Mid-Childhood Type de document : Texte imprimé et/ou numérique Auteurs : E. SALOMONE, Auteur ; K. LEADBITTER, Auteur ; Catherine ALDRED, Auteur ; B. BARRETT, Auteur ; Sarah BYFORD, Auteur ; Tony CHARMAN, Auteur ; P. HOWLIN, Auteur ; J. GREEN, Auteur ; A. LE COUTEUR, Auteur ; H. MCCONACHIE, Auteur ; Jeremy R. PARR, Auteur ; A. PICKLES, Auteur ; V. SLONIMS, Auteur Article en page(s) : p.1189-1198 Langues : Anglais (eng) Mots-clés : Autism  Caregiver  Daily living skills  Emotional and behavioural difficulties  Mental health  Mental wellbeing Index. décimale : PER Périodiques Résumé : We examined predictors of mental health difficulties and wellbeing in caregivers of children with autism in the Pre-school Autism Communication Trial cohort in middle childhood (N = 104). Child's intellectual disability, daily living skills impairment, elevated emotional and behavioural difficulties, high educational level of caregiver and household income below the median significantly predicted caregivers' mental health difficulties, but autism severity, child communication skills and family circumstances did not. Lower caregiver mental wellbeing was predicted by elevated child emotional and behavioural difficulties. The need to support the mental health and wellbeing of caregivers of children with autism is discussed in light of the results. En ligne : http://dx.doi.org/10.1007/s10803-017-3392-x Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=352 [article] The Association Between Child and Family Characteristics and the Mental Health and Wellbeing of Caregivers of Children with Autism in Mid-Childhood [Texte imprimé et/ou numérique] / E. SALOMONE, Auteur ; K. LEADBITTER, Auteur ; Catherine ALDRED, Auteur ; B. BARRETT, Auteur ; Sarah BYFORD, Auteur ; Tony CHARMAN, Auteur ; P. HOWLIN, Auteur ; J. GREEN, Auteur ; A. LE COUTEUR, Auteur ; H. MCCONACHIE, Auteur ; Jeremy R. PARR, Auteur ; A. PICKLES, Auteur ; V. SLONIMS, Auteur . - p.1189-1198. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 48-4 (April 2018) . - p.1189-1198 Mots-clés : Autism  Caregiver  Daily living skills  Emotional and behavioural difficulties  Mental health  Mental wellbeing Index. décimale : PER Périodiques Résumé : We examined predictors of mental health difficulties and wellbeing in caregivers of children with autism in the Pre-school Autism Communication Trial cohort in middle childhood (N = 104). Child's intellectual disability, daily living skills impairment, elevated emotional and behavioural difficulties, high educational level of caregiver and household income below the median significantly predicted caregivers' mental health difficulties, but autism severity, child communication skills and family circumstances did not. Lower caregiver mental wellbeing was predicted by elevated child emotional and behavioural difficulties. The need to support the mental health and wellbeing of caregivers of children with autism is discussed in light of the results. En ligne : http://dx.doi.org/10.1007/s10803-017-3392-x Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=352

The Autism Family Experience Questionnaire (AFEQ): An Ecologically-Valid, Parent-Nominated Measure of Family Experience, Quality of Life and Prioritised Outcomes for Early Intervention / K. LEADBITTER in Journal of Autism and Developmental Disorders, 48-4 (April 2018)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 48-4 (April 2018) . - p.1052-1062 Titre : The Autism Family Experience Questionnaire (AFEQ): An Ecologically-Valid, Parent-Nominated Measure of Family Experience, Quality of Life and Prioritised Outcomes for Early Intervention Type de document : Texte imprimé et/ou numérique Auteurs : K. LEADBITTER, Auteur ; Catherine ALDRED, Auteur ; H. MCCONACHIE, Auteur ; A. LE COUTEUR, Auteur ; D. KAPADIA, Auteur ; Tony CHARMAN, Auteur ; W. MACDONALD, Auteur ; E. SALOMONE, Auteur ; R. EMSLEY, Auteur ; J. GREEN, Auteur Article en page(s) : p.1052-1062 Langues : Anglais (eng) Mots-clés : Autism Spectrum Disorder  Family experience  Intervention  Parent  Quality of Life  Wellbeing Index. décimale : PER Périodiques Résumé : There is a lack of measures that reflect the intervention priorities of parents of children with autism spectrum disorder (ASD) and that assess the impact of interventions on family experience and quality of life. The Autism Family Experience Questionnaire (AFEQ) was developed through focus groups and online consultation with parents, and reflected parental priorities. It was then administered to the parents of children enrolled in the Pre-school Autism Communication Trial and its 6-year follow-up study. The AFEQ showed good convergent validity with well-established measures of child adaptive functioning, parental mental health and parental wellbeing. It was sensitive to change in response to a parent-mediated intervention for young children with autism, showing treatment effect at treatment endpoint which increased at six-year follow-up. En ligne : http://dx.doi.org/10.1007/s10803-017-3350-7 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=351 [article] The Autism Family Experience Questionnaire (AFEQ): An Ecologically-Valid, Parent-Nominated Measure of Family Experience, Quality of Life and Prioritised Outcomes for Early Intervention [Texte imprimé et/ou numérique] / K. LEADBITTER, Auteur ; Catherine ALDRED, Auteur ; H. MCCONACHIE, Auteur ; A. LE COUTEUR, Auteur ; D. KAPADIA, Auteur ; Tony CHARMAN, Auteur ; W. MACDONALD, Auteur ; E. SALOMONE, Auteur ; R. EMSLEY, Auteur ; J. GREEN, Auteur . - p.1052-1062. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 48-4 (April 2018) . - p.1052-1062 Mots-clés : Autism Spectrum Disorder  Family experience  Intervention  Parent  Quality of Life  Wellbeing Index. décimale : PER Périodiques Résumé : There is a lack of measures that reflect the intervention priorities of parents of children with autism spectrum disorder (ASD) and that assess the impact of interventions on family experience and quality of life. The Autism Family Experience Questionnaire (AFEQ) was developed through focus groups and online consultation with parents, and reflected parental priorities. It was then administered to the parents of children enrolled in the Pre-school Autism Communication Trial and its 6-year follow-up study. The AFEQ showed good convergent validity with well-established measures of child adaptive functioning, parental mental health and parental wellbeing. It was sensitive to change in response to a parent-mediated intervention for young children with autism, showing treatment effect at treatment endpoint which increased at six-year follow-up. En ligne : http://dx.doi.org/10.1007/s10803-017-3350-7 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=351

The Interplay of Communication Skills, Emotional and Behavioural Problems and Parental Psychological Distress / E. SALOMONE in Journal of Autism and Developmental Disorders, 49-11 (November 2019)  

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What do parents of children with autism expect from participation in research? A community survey about early autism studies / Sue FLETCHER-WATSON in Autism, 23-1 (January 2019)  

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