Parents planning for the long-term future of adults with ASD in India: "But that?s a maybe. It?s still a maybe" / Subharati GHOSH in Journal of Autism and Developmental Disorders, 53-7 (July 2023)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 53-7 (July 2023) . - p.2863-2877 Titre : Parents planning for the long-term future of adults with ASD in India: "But that?s a maybe. It?s still a maybe" Type de document : Texte imprimé et/ou numérique Auteurs : Subharati GHOSH, Auteur Article en page(s) : p.2863-2877 Langues : Anglais (eng) Index. décimale : PER Périodiques Résumé : Research on long-term planning for adults with Autism Spectrum Disorder (ASD) in India is non-existent. The mixed-methods study examined caregiver?s expectations around the future planning of an adult with ASD and the barriers and facilitators to the future planning. The purposive sample included 139 caregivers to adults and adolescents with ASD who were part of the survey and 25 caregivers who participated in in-depth interviews. 40% of caregivers hadn?t started planning for the future.The family was considered the ideal place to age, but perceived and objective barriers impacted caregivers' ability to plan for the future. The most common barrier that impacted all domains of long-term care was the fear of the unknown or the fear that none of the plans would fall in place. The study also identified resources and strategies used by parents to plan. Findings from the study can potentially impact policy, advocacy, and practice. En ligne : https://doi.org/10.1007/s10803-022-05545-8 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=508 [article] Parents planning for the long-term future of adults with ASD in India: "But that?s a maybe. It?s still a maybe" [Texte imprimé et/ou numérique] / Subharati GHOSH, Auteur . - p.2863-2877. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 53-7 (July 2023) . - p.2863-2877 Index. décimale : PER Périodiques Résumé : Research on long-term planning for adults with Autism Spectrum Disorder (ASD) in India is non-existent. The mixed-methods study examined caregiver?s expectations around the future planning of an adult with ASD and the barriers and facilitators to the future planning. The purposive sample included 139 caregivers to adults and adolescents with ASD who were part of the survey and 25 caregivers who participated in in-depth interviews. 40% of caregivers hadn?t started planning for the future.The family was considered the ideal place to age, but perceived and objective barriers impacted caregivers' ability to plan for the future. The most common barrier that impacted all domains of long-term care was the fear of the unknown or the fear that none of the plans would fall in place. The study also identified resources and strategies used by parents to plan. Findings from the study can potentially impact policy, advocacy, and practice. En ligne : https://doi.org/10.1007/s10803-022-05545-8 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=508

Subjective Burden and Depression in Mothers of Children with Autism Spectrum Disorder in India: Moderating Effect of Social Support / Prerna SINGH in Journal of Autism and Developmental Disorders, 47-10 (October 2017)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 47-10 (October 2017) . - p.3097-3111 Titre : Subjective Burden and Depression in Mothers of Children with Autism Spectrum Disorder in India: Moderating Effect of Social Support Type de document : Texte imprimé et/ou numérique Auteurs : Prerna SINGH, Auteur ; Subharati GHOSH, Auteur ; Subhrangshu NANDI, Auteur Article en page(s) : p.3097-3111 Langues : Anglais (eng) Mots-clés : India  Autism  Caregiver  Social support  Depression  Subjective burden  Interaction  Folkman-Lazarus  Stress Index. décimale : PER Périodiques Résumé : The quantitative study assessed subjective burden, depression, and the moderating effect of social support in mothers of children with autism spectrum disorder (ASD) in India. Seventy mothers were interviewed using a structured interview schedule, which measured their subjective burden, depression, and social support from family, friends, and significant others. Data was analyzed using descriptive statistics and multiple regression analysis with interaction terms. Half of the mothers in the study reported depression of clinical significance. Higher subjective burden significantly predicted higher depression. Of the three sources of support, only medium/high family support had a direct impact on depression and also moderated the impact of the subjective burden of depression. Implications for practice and policy are discussed. En ligne : https://doi.org/10.1007/s10803-017-3233-y Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=319 [article] Subjective Burden and Depression in Mothers of Children with Autism Spectrum Disorder in India: Moderating Effect of Social Support [Texte imprimé et/ou numérique] / Prerna SINGH, Auteur ; Subharati GHOSH, Auteur ; Subhrangshu NANDI, Auteur . - p.3097-3111. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 47-10 (October 2017) . - p.3097-3111 Mots-clés : India  Autism  Caregiver  Social support  Depression  Subjective burden  Interaction  Folkman-Lazarus  Stress Index. décimale : PER Périodiques Résumé : The quantitative study assessed subjective burden, depression, and the moderating effect of social support in mothers of children with autism spectrum disorder (ASD) in India. Seventy mothers were interviewed using a structured interview schedule, which measured their subjective burden, depression, and social support from family, friends, and significant others. Data was analyzed using descriptive statistics and multiple regression analysis with interaction terms. Half of the mothers in the study reported depression of clinical significance. Higher subjective burden significantly predicted higher depression. Of the three sources of support, only medium/high family support had a direct impact on depression and also moderated the impact of the subjective burden of depression. Implications for practice and policy are discussed. En ligne : https://doi.org/10.1007/s10803-017-3233-y Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=319

World Health Organisation-Caregiver Skills Training (WHO-CST) Program: Feasibility of Delivery by Non-Specialist Providers in Real-world Urban Settings in India / Koyeli SENGUPTA in Journal of Autism and Developmental Disorders, 53-4 (April 2023)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 53-4 (April 2023) . - p.1444-1461 Titre : World Health Organisation-Caregiver Skills Training (WHO-CST) Program: Feasibility of Delivery by Non-Specialist Providers in Real-world Urban Settings in India Type de document : Texte imprimé et/ou numérique Auteurs : Koyeli SENGUPTA, Auteur ; Henal SHAH, Auteur ; Subharati GHOSH, Auteur ; Disha SANGHVI, Auteur ; Sanchita MAHADIK, Auteur ; Allauki DANI, Auteur ; Oshin DESHMUKH, Auteur ; Laura PACIONE, Auteur ; Pamela DIXON, Auteur ; Erica SALOMONE, Auteur ; Chiara SERVILI, Auteur ; Who-Cst TEAM, Auteur Article en page(s) : p.1444-1461 Langues : Anglais (eng) Index. décimale : PER Périodiques Résumé : The World Health Organization-Caregiver Skills Training Program, a parent-mediated early intervention facilitated by non-specialist providers piloted in urban India was evaluated using mixed-methods for feasibility and effects on child and caregiver outcomes. Caregivers (n=22) of children (2-9 years) with social-communication delays participated in a single-group pre-post study. High rates of caregiver attendance, improved caregiver fidelity, and facilitator competency suggested program feasibility. Caregivers voiced acceptability of various intervention-components. The intervention was associated with improved caregiver-reported skills and knowledge (p En ligne : https://doi.org/10.1007/s10803-021-05367-0 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=500 [article] World Health Organisation-Caregiver Skills Training (WHO-CST) Program: Feasibility of Delivery by Non-Specialist Providers in Real-world Urban Settings in India [Texte imprimé et/ou numérique] / Koyeli SENGUPTA, Auteur ; Henal SHAH, Auteur ; Subharati GHOSH, Auteur ; Disha SANGHVI, Auteur ; Sanchita MAHADIK, Auteur ; Allauki DANI, Auteur ; Oshin DESHMUKH, Auteur ; Laura PACIONE, Auteur ; Pamela DIXON, Auteur ; Erica SALOMONE, Auteur ; Chiara SERVILI, Auteur ; Who-Cst TEAM, Auteur . - p.1444-1461. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 53-4 (April 2023) . - p.1444-1461 Index. décimale : PER Périodiques Résumé : The World Health Organization-Caregiver Skills Training Program, a parent-mediated early intervention facilitated by non-specialist providers piloted in urban India was evaluated using mixed-methods for feasibility and effects on child and caregiver outcomes. Caregivers (n=22) of children (2-9 years) with social-communication delays participated in a single-group pre-post study. High rates of caregiver attendance, improved caregiver fidelity, and facilitator competency suggested program feasibility. Caregivers voiced acceptability of various intervention-components. The intervention was associated with improved caregiver-reported skills and knowledge (p En ligne : https://doi.org/10.1007/s10803-021-05367-0 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=500

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