A mixed-methods process evaluation of Family Navigation implementation for autism spectrum disorder / Sarabeth BRODER-FINGERT in Autism, 23-5 (July 2019)  

Public ISBD [article]  inAutism > 23-5 (July 2019) . - p.1288-1299 Titre : A mixed-methods process evaluation of Family Navigation implementation for autism spectrum disorder Type de document : Texte imprimé et/ou numérique Auteurs : Sarabeth BRODER-FINGERT, Auteur ; S. QIN, Auteur ; J. GOUPIL, Auteur ; J. ROSENBERG, Auteur ; Marilyn AUGUSTYN, Auteur ; N. BLUM, Auteur ; Amanda E. BENNETT, Auteur ; C. WEITZMAN, Auteur ; J. P. GUEVARA, Auteur ; A. FENICK, Auteur ; M. SILVERSTEIN, Auteur ; E. FEINBERG, Auteur Article en page(s) : p.1288-1299 Langues : Anglais (eng) Mots-clés : autism spectrum disorders  qualitative research Index. décimale : PER Périodiques Résumé : There is growing interest in Family Navigation as an approach to improving access to care for children with autism spectrum disorder, yet little data exist on the implementation of Family Navigation. The aim of this study was to identify potential failures in implementing Family Navigation for children with autism spectrum disorder, using a failure modes and effects analysis. This mixed-methods study was set within a randomized controlled trial testing the effectiveness of Family Navigation in reducing the time from screening to diagnosis and treatment for autism spectrum disorder across three states. Using standard failure modes and effects analysis methodology, experts in Family Navigation for autism spectrum disorder (n = 9) rated potential failures in implementation on a 10-point scale in three categories: likelihood of the failure occurring, likelihood of not detecting the failure, and severity of failure. Ratings were then used to create a risk priority number for each failure. The failure modes and effects analysis detected five areas for potential "high priority" failures in implementation: (1) setting up community-based services, (2) initial family meeting, (3) training, (4) fidelity monitoring, and (5) attending testing appointments. Reasons for failure included families not receptive, scheduling, and insufficient training time. The process with the highest risk profile was "setting up community-based services." Failure in "attending testing appointment" was rated as the most severe potential failure. A number of potential failures in Family Navigation implementation-along with strategies for mitigation-were identified. These data can guide those working to implement Family Navigation for children with autism spectrum disorder. En ligne : http://dx.doi.org/10.1177/1362361318808460 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=401 [article] A mixed-methods process evaluation of Family Navigation implementation for autism spectrum disorder [Texte imprimé et/ou numérique] / Sarabeth BRODER-FINGERT, Auteur ; S. QIN, Auteur ; J. GOUPIL, Auteur ; J. ROSENBERG, Auteur ; Marilyn AUGUSTYN, Auteur ; N. BLUM, Auteur ; Amanda E. BENNETT, Auteur ; C. WEITZMAN, Auteur ; J. P. GUEVARA, Auteur ; A. FENICK, Auteur ; M. SILVERSTEIN, Auteur ; E. FEINBERG, Auteur . - p.1288-1299. Langues : Anglais (eng) in Autism > 23-5 (July 2019) . - p.1288-1299 Mots-clés : autism spectrum disorders  qualitative research Index. décimale : PER Périodiques Résumé : There is growing interest in Family Navigation as an approach to improving access to care for children with autism spectrum disorder, yet little data exist on the implementation of Family Navigation. The aim of this study was to identify potential failures in implementing Family Navigation for children with autism spectrum disorder, using a failure modes and effects analysis. This mixed-methods study was set within a randomized controlled trial testing the effectiveness of Family Navigation in reducing the time from screening to diagnosis and treatment for autism spectrum disorder across three states. Using standard failure modes and effects analysis methodology, experts in Family Navigation for autism spectrum disorder (n = 9) rated potential failures in implementation on a 10-point scale in three categories: likelihood of the failure occurring, likelihood of not detecting the failure, and severity of failure. Ratings were then used to create a risk priority number for each failure. The failure modes and effects analysis detected five areas for potential "high priority" failures in implementation: (1) setting up community-based services, (2) initial family meeting, (3) training, (4) fidelity monitoring, and (5) attending testing appointments. Reasons for failure included families not receptive, scheduling, and insufficient training time. The process with the highest risk profile was "setting up community-based services." Failure in "attending testing appointment" was rated as the most severe potential failure. A number of potential failures in Family Navigation implementation-along with strategies for mitigation-were identified. These data can guide those working to implement Family Navigation for children with autism spectrum disorder. En ligne : http://dx.doi.org/10.1177/1362361318808460 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=401

Overweight and obese status in children with autism spectrum disorder and disruptive behavior / K. K. CRIADO in Autism, 22-4 (May 2018)  

Public ISBD [article]  inAutism > 22-4 (May 2018) . - p.450-459 Titre : Overweight and obese status in children with autism spectrum disorder and disruptive behavior Type de document : Texte imprimé et/ou numérique Auteurs : K. K. CRIADO, Auteur ; W. G. SHARP, Auteur ; C. E. MCCRACKEN, Auteur ; O. DE VINCK-BAROODY, Auteur ; L. DONG, Auteur ; Michael G. AMAN, Auteur ; C. J. MCDOUGLE, Auteur ; J. T. MCCRACKEN, Auteur ; L. EUGENE ARNOLD, Auteur ; C. WEITZMAN, Auteur ; J. M. LEVENTHAL, Auteur ; B. VITIELLO, Auteur ; Lawrence SCAHILL, Auteur Article en page(s) : p.450-459 Langues : Anglais (eng) Mots-clés : National Health and Nutrition Examination Surveys  prevalence  risperidone Index. décimale : PER Périodiques Résumé : Overweight and obesity are common in pediatric populations. Children with autism spectrum disorder and disruptive behavior may be at higher risk. This study examined whether children with autism spectrum disorder and disruptive behavior are more likely to be overweight or obese than matched controls. Baseline data from medication-free children with autism spectrum disorder who participated in trials conducted by the Research Units on Pediatric Psychopharmacology Autism Network (N = 276) were compared to 544 control children from the National Health and Nutrition Examination Survey database matched on age, sex, race, parent education, and era of data collection. The mean age of the children with autism spectrum disorder was 7.9 +/- 2.6 years; 84.4% were males. In the autism spectrum disorder group, the prevalence was 42.4% for overweight and 21.4% for obesity compared to 26.1% for overweight and 12.0% for obesity among controls (p < 0.001 for each contrast). Within the autism spectrum disorder sample, obesity was associated with minority status and lower daily living skills. These findings suggest that children with autism spectrum disorder and disruptive behavior are at increased risk for obesity and underscore the need for weight management interventions in this population. En ligne : http://dx.doi.org/10.1177/1362361316683888 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=361 [article] Overweight and obese status in children with autism spectrum disorder and disruptive behavior [Texte imprimé et/ou numérique] / K. K. CRIADO, Auteur ; W. G. SHARP, Auteur ; C. E. MCCRACKEN, Auteur ; O. DE VINCK-BAROODY, Auteur ; L. DONG, Auteur ; Michael G. AMAN, Auteur ; C. J. MCDOUGLE, Auteur ; J. T. MCCRACKEN, Auteur ; L. EUGENE ARNOLD, Auteur ; C. WEITZMAN, Auteur ; J. M. LEVENTHAL, Auteur ; B. VITIELLO, Auteur ; Lawrence SCAHILL, Auteur . - p.450-459. Langues : Anglais (eng) in Autism > 22-4 (May 2018) . - p.450-459 Mots-clés : National Health and Nutrition Examination Surveys  prevalence  risperidone Index. décimale : PER Périodiques Résumé : Overweight and obesity are common in pediatric populations. Children with autism spectrum disorder and disruptive behavior may be at higher risk. This study examined whether children with autism spectrum disorder and disruptive behavior are more likely to be overweight or obese than matched controls. Baseline data from medication-free children with autism spectrum disorder who participated in trials conducted by the Research Units on Pediatric Psychopharmacology Autism Network (N = 276) were compared to 544 control children from the National Health and Nutrition Examination Survey database matched on age, sex, race, parent education, and era of data collection. The mean age of the children with autism spectrum disorder was 7.9 +/- 2.6 years; 84.4% were males. In the autism spectrum disorder group, the prevalence was 42.4% for overweight and 21.4% for obesity compared to 26.1% for overweight and 12.0% for obesity among controls (p < 0.001 for each contrast). Within the autism spectrum disorder sample, obesity was associated with minority status and lower daily living skills. These findings suggest that children with autism spectrum disorder and disruptive behavior are at increased risk for obesity and underscore the need for weight management interventions in this population. En ligne : http://dx.doi.org/10.1177/1362361316683888 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=361

Parent stress and coping trajectories in Hispanic and non-Hispanic families of children at risk of autism spectrum disorder / E. J. HICKEY in Autism, 25-6 (August 2021)  

Public ISBD [article]  inAutism > 25-6 (August 2021) . - p.1694-1708 Titre : Parent stress and coping trajectories in Hispanic and non-Hispanic families of children at risk of autism spectrum disorder Type de document : Texte imprimé et/ou numérique Auteurs : E. J. HICKEY, Auteur ; M. STRANSKY, Auteur ; J. KUHN, Auteur ; J. E. ROSENBERG, Auteur ; H. J. CABRAL, Auteur ; C. WEITZMAN, Auteur ; Sarabeth BRODER-FINGERT, Auteur ; E. FEINBERG, Auteur Article en page(s) : p.1694-1708 Langues : Anglais (eng) Mots-clés : Adaptation, Psychological  Autism Spectrum Disorder  Child  Humans  Parenting  Parents  Stress, Psychological  autism risk  autism spectrum disorders  coping  developmental disabilities  family impact  parenting stress  trajectories Index. décimale : PER Périodiques Résumé : Little is known about parent experiences throughout the diagnostic process for autism or how these parent experiences may help explain the disparities that exist between Hispanic and non-Hispanic families in time-to-diagnosis among children identified as at risk for autism. The current study examined trajectories of parenting stress, coping, and perceived family impact over time, throughout the autism diagnostic process among Hispanic and non-Hispanic families. Hispanic families reported lower levels of parenting stress, coping, and negative family impact across time. Further, there were differences in the change in use of coping and the amount of negative family impact reported between Hispanic and non-Hispanic parents over time. These differences shed light on the unique experiences and strengths of Hispanic families demonstrate. Interventions that leverage those strengths and focus on education, empowerment, and resilience might be particularly beneficial for Hispanic families and may also better inform work to increase resilience. En ligne : http://dx.doi.org/10.1177/13623613211001611 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=451 [article] Parent stress and coping trajectories in Hispanic and non-Hispanic families of children at risk of autism spectrum disorder [Texte imprimé et/ou numérique] / E. J. HICKEY, Auteur ; M. STRANSKY, Auteur ; J. KUHN, Auteur ; J. E. ROSENBERG, Auteur ; H. J. CABRAL, Auteur ; C. WEITZMAN, Auteur ; Sarabeth BRODER-FINGERT, Auteur ; E. FEINBERG, Auteur . - p.1694-1708. Langues : Anglais (eng) in Autism > 25-6 (August 2021) . - p.1694-1708 Mots-clés : Adaptation, Psychological  Autism Spectrum Disorder  Child  Humans  Parenting  Parents  Stress, Psychological  autism risk  autism spectrum disorders  coping  developmental disabilities  family impact  parenting stress  trajectories Index. décimale : PER Périodiques Résumé : Little is known about parent experiences throughout the diagnostic process for autism or how these parent experiences may help explain the disparities that exist between Hispanic and non-Hispanic families in time-to-diagnosis among children identified as at risk for autism. The current study examined trajectories of parenting stress, coping, and perceived family impact over time, throughout the autism diagnostic process among Hispanic and non-Hispanic families. Hispanic families reported lower levels of parenting stress, coping, and negative family impact across time. Further, there were differences in the change in use of coping and the amount of negative family impact reported between Hispanic and non-Hispanic parents over time. These differences shed light on the unique experiences and strengths of Hispanic families demonstrate. Interventions that leverage those strengths and focus on education, empowerment, and resilience might be particularly beneficial for Hispanic families and may also better inform work to increase resilience. En ligne : http://dx.doi.org/10.1177/13623613211001611 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=451

Parenting Stress and its Associated Components Prior to an Autism Spectrum Disorder (ASD) Diagnostic Evaluation / Y. VOLIOVITCH in Journal of Autism and Developmental Disorders, 51-10 (October 2021)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 51-10 (October 2021) . - p.3432-3442 Titre : Parenting Stress and its Associated Components Prior to an Autism Spectrum Disorder (ASD) Diagnostic Evaluation Type de document : Texte imprimé et/ou numérique Auteurs : Y. VOLIOVITCH, Auteur ; J. M. LEVENTHAL, Auteur ; A. M. FENICK, Auteur ; A. R. GUPTA, Auteur ; E. FEINBERG, Auteur ; E. J. HICKEY, Auteur ; V. SHABANOVA, Auteur ; C. WEITZMAN, Auteur Article en page(s) : p.3432-3442 Langues : Anglais (eng) Mots-clés : Autism Spectrum Disorder/diagnosis  Child  Cross-Sectional Studies  Humans  Parenting  Parents  Stress, Psychological/diagnosis  Autism spectrum disorder  Parenting stress  Pre-diagnostic Index. décimale : PER Périodiques Résumé : Parents of children with autism spectrum disorder (ASD) show increased levels of parenting stress, but only one study has examined this association before a diagnostic evaluation. We conducted a cross-sectional study of parenting stress in 317 low SES parents with children at-risk for ASD before a diagnostic evaluation. Multiple regression modeling evaluated the associations between parenting stress and parent and child factors. Parenting stress was negatively associated with social support and positively associated with active avoidance coping and parental worry. However, parenting stress was not associated with the child's ASD symptom severity or adaptive functioning, except for self-direction. Findings suggest parenting stress among parents of children at risk of ASD should be assessed prior to diagnosis. En ligne : http://dx.doi.org/10.1007/s10803-020-04804-w Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=453 [article] Parenting Stress and its Associated Components Prior to an Autism Spectrum Disorder (ASD) Diagnostic Evaluation [Texte imprimé et/ou numérique] / Y. VOLIOVITCH, Auteur ; J. M. LEVENTHAL, Auteur ; A. M. FENICK, Auteur ; A. R. GUPTA, Auteur ; E. FEINBERG, Auteur ; E. J. HICKEY, Auteur ; V. SHABANOVA, Auteur ; C. WEITZMAN, Auteur . - p.3432-3442. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 51-10 (October 2021) . - p.3432-3442 Mots-clés : Autism Spectrum Disorder/diagnosis  Child  Cross-Sectional Studies  Humans  Parenting  Parents  Stress, Psychological/diagnosis  Autism spectrum disorder  Parenting stress  Pre-diagnostic Index. décimale : PER Périodiques Résumé : Parents of children with autism spectrum disorder (ASD) show increased levels of parenting stress, but only one study has examined this association before a diagnostic evaluation. We conducted a cross-sectional study of parenting stress in 317 low SES parents with children at-risk for ASD before a diagnostic evaluation. Multiple regression modeling evaluated the associations between parenting stress and parent and child factors. Parenting stress was negatively associated with social support and positively associated with active avoidance coping and parental worry. However, parenting stress was not associated with the child's ASD symptom severity or adaptive functioning, except for self-direction. Findings suggest parenting stress among parents of children at risk of ASD should be assessed prior to diagnosis. En ligne : http://dx.doi.org/10.1007/s10803-020-04804-w Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=453

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