Autism prevalence and outcomes in older adults / J. E. ROBISON in Autism Research, 12-3 (March 2019)  

Public ISBD [article]  inAutism Research > 12-3 (March 2019) . - p.370-374 Titre : Autism prevalence and outcomes in older adults Type de document : Texte imprimé et/ou numérique Auteurs : J. E. ROBISON, Auteur Article en page(s) : p.370-374 Langues : Anglais (eng) Mots-clés : diagnosis  outcomes  prevalence  treatment Index. décimale : PER Périodiques Résumé : Recent studies of mortality, illness, and suicide among autistic adults paint an alarming picture. Autistic people appear to die much earlier than the general population, and they seem to be far more vulnerable to a surprising range of medical problems. Suicide and depression seem far more common than in the general population. If correct, that suggests an older autistic population in silent crisis, with few if any supports. If so, older autistic people should be a focus for public health and human service agencies. But is the picture complete? Autism researchers ask for answers, identifying problems and their scope. This article discusses the limitations of our adult autism knowledge, and the challenges we will face studying adults. Researching and ultimately serving older autistic adults presents a unique set of problems that have not yet been addressed by scientists or clinicians. Autism Res 2019, 12: 370-374 (c) 2019 International Society for Autism Research, Wiley Periodicals, Inc. LAY SUMMARY: Public policy toward autistic people is driven by data. Most autism data to date have been derived from and about children, because autism tends to be identified and supported in the public school system. This has created a public perception of autism as a childhood problem. In fact, autism is a lifelong difference or disability, and recent studies suggest serious overlooked concerns for autistic adults. This commentary discusses how we have evaluated adult autism so far, limitations of our knowledge, and how we might evaluate adult needs going forward. The commentary makes a case for specific new adult prevalence and outcome studies to inform public policy. En ligne : http://dx.doi.org/10.1002/aur.2080 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=387 [article] Autism prevalence and outcomes in older adults [Texte imprimé et/ou numérique] / J. E. ROBISON, Auteur . - p.370-374. Langues : Anglais (eng) in Autism Research > 12-3 (March 2019) . - p.370-374 Mots-clés : diagnosis  outcomes  prevalence  treatment Index. décimale : PER Périodiques Résumé : Recent studies of mortality, illness, and suicide among autistic adults paint an alarming picture. Autistic people appear to die much earlier than the general population, and they seem to be far more vulnerable to a surprising range of medical problems. Suicide and depression seem far more common than in the general population. If correct, that suggests an older autistic population in silent crisis, with few if any supports. If so, older autistic people should be a focus for public health and human service agencies. But is the picture complete? Autism researchers ask for answers, identifying problems and their scope. This article discusses the limitations of our adult autism knowledge, and the challenges we will face studying adults. Researching and ultimately serving older autistic adults presents a unique set of problems that have not yet been addressed by scientists or clinicians. Autism Res 2019, 12: 370-374 (c) 2019 International Society for Autism Research, Wiley Periodicals, Inc. LAY SUMMARY: Public policy toward autistic people is driven by data. Most autism data to date have been derived from and about children, because autism tends to be identified and supported in the public school system. This has created a public perception of autism as a childhood problem. In fact, autism is a lifelong difference or disability, and recent studies suggest serious overlooked concerns for autistic adults. This commentary discusses how we have evaluated adult autism so far, limitations of our knowledge, and how we might evaluate adult needs going forward. The commentary makes a case for specific new adult prevalence and outcome studies to inform public policy. En ligne : http://dx.doi.org/10.1002/aur.2080 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=387

Talking about autism-thoughts for researchers / J. E. ROBISON in Autism Research, 12-7 (July 2019)  

Public ISBD [article]  inAutism Research > 12-7 (July 2019) . - p.1004-1006 Titre : Talking about autism-thoughts for researchers Type de document : Texte imprimé et/ou numérique Auteurs : J. E. ROBISON, Auteur Année de publication : 2019 Article en page(s) : p.1004-1006 Langues : Anglais (eng) Mots-clés : aging/ASD in adults  language  treatment research Index. décimale : PER Périodiques Résumé : At the 2019 strategic planning meeting the International Society for Autism Research (INSAR) board discussed the question of appropriate language to be used when speaking or writing about autism or affected individuals. Board members articulated a wide range of views on this subject, making clear that there is no single simple answer. This commentary was inspired by that discussion. It is by John Elder Robison who is both an INSAR board member and an individual diagnosed with autism. Autism Res 2019, 12: 1004-1006. (c) 2019 International Society for Autism Research, Wiley Periodicals, Inc. LAY SUMMARY: How should researchers talk about autism? Personal reflections on writing and speaking about autism, with particular regard for affected individuals, be they autistic people, people with autism, or family members. This commentary is authored by John Elder Robison who is both an INSAR board member and an individual diagnosed with autism. En ligne : http://dx.doi.org/10.1002/aur.2119 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=402 [article] Talking about autism-thoughts for researchers [Texte imprimé et/ou numérique] / J. E. ROBISON, Auteur . - 2019 . - p.1004-1006. Langues : Anglais (eng) in Autism Research > 12-7 (July 2019) . - p.1004-1006 Mots-clés : aging/ASD in adults  language  treatment research Index. décimale : PER Périodiques Résumé : At the 2019 strategic planning meeting the International Society for Autism Research (INSAR) board discussed the question of appropriate language to be used when speaking or writing about autism or affected individuals. Board members articulated a wide range of views on this subject, making clear that there is no single simple answer. This commentary was inspired by that discussion. It is by John Elder Robison who is both an INSAR board member and an individual diagnosed with autism. Autism Res 2019, 12: 1004-1006. (c) 2019 International Society for Autism Research, Wiley Periodicals, Inc. LAY SUMMARY: How should researchers talk about autism? Personal reflections on writing and speaking about autism, with particular regard for affected individuals, be they autistic people, people with autism, or family members. This commentary is authored by John Elder Robison who is both an INSAR board member and an individual diagnosed with autism. En ligne : http://dx.doi.org/10.1002/aur.2119 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=402

The Gestalt of functioning in autism spectrum disorder: Results of the international conference to develop final consensus International Classification of Functioning, Disability and Health core sets / Sven BÖLTE in Autism, 23-2 (February 2019)  

Public ISBD [article]  inAutism > 23-2 (February 2019) . - p.449-467 Titre : The Gestalt of functioning in autism spectrum disorder: Results of the international conference to develop final consensus International Classification of Functioning, Disability and Health core sets Type de document : Texte imprimé et/ou numérique Auteurs : Sven BÖLTE, Auteur ; S. MAHDI, Auteur ; P. J. DE VRIES, Auteur ; M. GRANLUND, Auteur ; J. E. ROBISON, Auteur ; C. SHULMAN, Auteur ; Susan E. SWEDO, Auteur ; B. TONGE, Auteur ; V. WONG, Auteur ; Lonnie ZWAIGENBAUM, Auteur ; W. SEGERER, Auteur ; M. SELB, Auteur Article en page(s) : p.449-467 Langues : Anglais (eng) Mots-clés : Disability and Health core sets  International Classification of Functioning  assessment  autism spectrum disorder  consensus conference  disability  functioning Index. décimale : PER Périodiques Résumé : Autism spectrum disorder is associated with diverse social, educational, and occupational challenges. To date, no standardized, internationally accepted tools exist to assess autism spectrum disorder-related functioning. World Health Organization's International Classification of Functioning, Disability and Health can serve as foundation for developing such tools. This study aimed to identify a comprehensive, a common brief, and three age-appropriate brief autism spectrum disorder Core Sets. Four international preparatory studies yielded in total 164 second-level International Classification of Functioning, Disability and Health candidate categories. Based on this evidence, 20 international autism spectrum disorder experts applied an established iterative decision-making consensus process to select from the candidate categories the most relevant ones to constitute the autism spectrum disorder Core Sets. The consensus process generated 111 second-level International Classification of Functioning, Disability and Health categories in the Comprehensive Core Set for autism spectrum disorder-one body structure, 20 body functions, 59 activities and participation categories, and 31 environmental factors. The Common Brief Core Set comprised 60 categories, while the age-appropriate core sets included 73 categories in the preschool version (0- to 5-year-old children), 81 in the school-age version (6- to 16-year-old children and adolescents), and 79 in the older adolescent and adult version (17-year-old individuals). The autism spectrum disorder Core Sets mark a milestone toward the standardized assessment of autism spectrum disorder-related functioning in educational, administrative, clinical, and research settings. En ligne : http://dx.doi.org/10.1177/1362361318755522 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=383 [article] The Gestalt of functioning in autism spectrum disorder: Results of the international conference to develop final consensus International Classification of Functioning, Disability and Health core sets [Texte imprimé et/ou numérique] / Sven BÖLTE, Auteur ; S. MAHDI, Auteur ; P. J. DE VRIES, Auteur ; M. GRANLUND, Auteur ; J. E. ROBISON, Auteur ; C. SHULMAN, Auteur ; Susan E. SWEDO, Auteur ; B. TONGE, Auteur ; V. WONG, Auteur ; Lonnie ZWAIGENBAUM, Auteur ; W. SEGERER, Auteur ; M. SELB, Auteur . - p.449-467. Langues : Anglais (eng) in Autism > 23-2 (February 2019) . - p.449-467 Mots-clés : Disability and Health core sets  International Classification of Functioning  assessment  autism spectrum disorder  consensus conference  disability  functioning Index. décimale : PER Périodiques Résumé : Autism spectrum disorder is associated with diverse social, educational, and occupational challenges. To date, no standardized, internationally accepted tools exist to assess autism spectrum disorder-related functioning. World Health Organization's International Classification of Functioning, Disability and Health can serve as foundation for developing such tools. This study aimed to identify a comprehensive, a common brief, and three age-appropriate brief autism spectrum disorder Core Sets. Four international preparatory studies yielded in total 164 second-level International Classification of Functioning, Disability and Health candidate categories. Based on this evidence, 20 international autism spectrum disorder experts applied an established iterative decision-making consensus process to select from the candidate categories the most relevant ones to constitute the autism spectrum disorder Core Sets. The consensus process generated 111 second-level International Classification of Functioning, Disability and Health categories in the Comprehensive Core Set for autism spectrum disorder-one body structure, 20 body functions, 59 activities and participation categories, and 31 environmental factors. The Common Brief Core Set comprised 60 categories, while the age-appropriate core sets included 73 categories in the preschool version (0- to 5-year-old children), 81 in the school-age version (6- to 16-year-old children and adolescents), and 79 in the older adolescent and adult version (17-year-old individuals). The autism spectrum disorder Core Sets mark a milestone toward the standardized assessment of autism spectrum disorder-related functioning in educational, administrative, clinical, and research settings. En ligne : http://dx.doi.org/10.1177/1362361318755522 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=383

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