
- <Centre d'Information et de documentation du CRA Rhône-Alpes
- CRA
- Informations pratiques
-
Adresse
Centre d'information et de documentation
Horaires
du CRA Rhône-Alpes
Centre Hospitalier le Vinatier
bât 211
95, Bd Pinel
69678 Bron CedexLundi au Vendredi
Contact
9h00-12h00 13h30-16h00Tél: +33(0)4 37 91 54 65
Mail
Fax: +33(0)4 37 91 54 37
-
Adresse
Auteur Susan ABEL
|
|
Documents disponibles écrits par cet auteur (3)
Faire une suggestion Affiner la rechercheAutistic Burnout on Reddit: A Sisyphean Struggle with Daily Tasks / Megan M. CLAREY in Journal of Autism and Developmental Disorders, 56-7 (July 2026)
![]()
[article]
Titre : Autistic Burnout on Reddit: A Sisyphean Struggle with Daily Tasks Type de document : texte imprimé Auteurs : Megan M. CLAREY, Auteur ; Susan ABEL, Auteur ; Michael J. IRELAND, Auteur ; Charlotte BROWNLOW, Auteur Article en page(s) : p.2790-2802 Langues : Anglais (eng) Index. décimale : PER Périodiques Résumé : The crippling impacts of autistic burnout are well known to the autistic community, yet research is only in its early stages. While research to date has chiefly relied on structured interviews and Delphi studies, it has focused on defining and measuring burnout. What is missing from the research is an analysis of the broader experiences of autistic burnout, and the very real implications that autistic people face when impacted by it. This study reviewed the narratives of autistic people discussing their experiences of autistic burnout on the social media platform Reddit. Using data scraped from Reddit, quantitative and qualitative analyses were undertaken to elicit meaning from the online discourse. After analysing 249 Reddit threads using quantitative content analysis, the results supported existing research identifying three core components of autistic burnout, those being: chronic exhaustion; increased sensory sensitivities; and social withdrawal. New insights were found with users reporting physiological ailments as a complicating factor in their burnout experience. The research also found evidence supporting suggested treatment options for autistic burnout including reducing/stopping social obligations, reducing sensory inputs as much as possible, and time spent alone to reset and recharge. Most importantly, users identified that being autonomous in their recovery choices was critical to the success of their recovery. En ligne : https://doi.org/10.1007/s10803-025-06765-4 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=591
in Journal of Autism and Developmental Disorders > 56-7 (July 2026) . - p.2790-2802[article] Autistic Burnout on Reddit: A Sisyphean Struggle with Daily Tasks [texte imprimé] / Megan M. CLAREY, Auteur ; Susan ABEL, Auteur ; Michael J. IRELAND, Auteur ; Charlotte BROWNLOW, Auteur . - p.2790-2802.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 56-7 (July 2026) . - p.2790-2802
Index. décimale : PER Périodiques Résumé : The crippling impacts of autistic burnout are well known to the autistic community, yet research is only in its early stages. While research to date has chiefly relied on structured interviews and Delphi studies, it has focused on defining and measuring burnout. What is missing from the research is an analysis of the broader experiences of autistic burnout, and the very real implications that autistic people face when impacted by it. This study reviewed the narratives of autistic people discussing their experiences of autistic burnout on the social media platform Reddit. Using data scraped from Reddit, quantitative and qualitative analyses were undertaken to elicit meaning from the online discourse. After analysing 249 Reddit threads using quantitative content analysis, the results supported existing research identifying three core components of autistic burnout, those being: chronic exhaustion; increased sensory sensitivities; and social withdrawal. New insights were found with users reporting physiological ailments as a complicating factor in their burnout experience. The research also found evidence supporting suggested treatment options for autistic burnout including reducing/stopping social obligations, reducing sensory inputs as much as possible, and time spent alone to reset and recharge. Most importantly, users identified that being autonomous in their recovery choices was critical to the success of their recovery. En ligne : https://doi.org/10.1007/s10803-025-06765-4 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=591 Beyond Exhaustion: Shame, Identity Disruption, and Functional Collapse in Autistic Burnout / Megan M. CLAREY in Autism, 30-6 (June 2026)
![]()
[article]
Titre : Beyond Exhaustion: Shame, Identity Disruption, and Functional Collapse in Autistic Burnout Type de document : texte imprimé Auteurs : Megan M. CLAREY, Auteur ; Michael J. IRELAND, Auteur ; Susan ABEL, Auteur ; Charlotte BROWNLOW, Auteur Article en page(s) : p.1519-1531 Langues : Anglais (eng) Mots-clés : autistic burnout dual-masking gentle re-engagement people-adjacent shame Index. décimale : PER Périodiques Résumé : Autistic burnout is typically defined as chronic exhaustion with functional impacts on everyday life. It appears common across work, study, and relationships, yet its emotional and relational dimensions remain underexamined. To document lived experiences of autistic burnout among autistic adults and to identify emotional and relational processes (e.g. shame and masking) that may shape onset, maintenance, and recovery. Eleven autistic adults participated in semi-structured interviews or written responses conducted online between July 2023 and November 2024. Data were analysed using template analysis, combining a priori codes from prior research with inductive coding. Participants described profound exhaustion, sensory overload, and executive dysfunction that disrupted daily life. A prominent emergent theme was shame, which shaped interpretations of functional limits, masking efforts, and help-seeking. Many reported dual-masking, concealing both autistic traits and signs of burnout, which intensified strain, delayed recognition, and undermined recovery. Withdrawal and “gentle re-engagement” through low-demand, people-adjacent activities were described as recovery strategies. Autistic burnout involves physical and cognitive challenges alongside relational and emotional processes that can precipitate and sustain it and complicate recovery. Shame and masking shape how burnout is interpreted and disclosed, underscoring the need for shame-aware, low-demand supports.Lay Abstract Autistic burnout is a period of overwhelming exhaustion and reduced ability to cope with everyday life. Although autistic people have spoken about burnout for many years, there is still little research describing what it actually feels like. In this study, 11 autistic adults shared their experiences of burnout through online interviews or written responses. We analysed their words to look for common patterns and individual differences. Participants described extreme tiredness, difficulty starting and completing everyday tasks, and increased sensitivity to noise, light, or smells. Many withdrew from friends, family, or work to protect their limited energy. A key pattern was shame, feeling embarrassed, inadequate, or like a burden, which shaped how people made sense of their burnout and whether they felt able to ask for help. Several described “dual-masking,” meaning they hid both their autistic traits and the signs of burnout itself. This added pressure often made burnout last longer and delayed access to support. Recovery was often slow. Gentle steps, such as spending quiet time near others without having to talk (“people-adjacent” activities), helped them reconnect without pressure. These findings suggest that supportive environments, where autistic people feel safe to be themselves, may reduce the impact and length of burnout episodes. En ligne : https://dx.doi.org/10.1177/13623613261444797 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=586
in Autism > 30-6 (June 2026) . - p.1519-1531[article] Beyond Exhaustion: Shame, Identity Disruption, and Functional Collapse in Autistic Burnout [texte imprimé] / Megan M. CLAREY, Auteur ; Michael J. IRELAND, Auteur ; Susan ABEL, Auteur ; Charlotte BROWNLOW, Auteur . - p.1519-1531.
Langues : Anglais (eng)
in Autism > 30-6 (June 2026) . - p.1519-1531
Mots-clés : autistic burnout dual-masking gentle re-engagement people-adjacent shame Index. décimale : PER Périodiques Résumé : Autistic burnout is typically defined as chronic exhaustion with functional impacts on everyday life. It appears common across work, study, and relationships, yet its emotional and relational dimensions remain underexamined. To document lived experiences of autistic burnout among autistic adults and to identify emotional and relational processes (e.g. shame and masking) that may shape onset, maintenance, and recovery. Eleven autistic adults participated in semi-structured interviews or written responses conducted online between July 2023 and November 2024. Data were analysed using template analysis, combining a priori codes from prior research with inductive coding. Participants described profound exhaustion, sensory overload, and executive dysfunction that disrupted daily life. A prominent emergent theme was shame, which shaped interpretations of functional limits, masking efforts, and help-seeking. Many reported dual-masking, concealing both autistic traits and signs of burnout, which intensified strain, delayed recognition, and undermined recovery. Withdrawal and “gentle re-engagement” through low-demand, people-adjacent activities were described as recovery strategies. Autistic burnout involves physical and cognitive challenges alongside relational and emotional processes that can precipitate and sustain it and complicate recovery. Shame and masking shape how burnout is interpreted and disclosed, underscoring the need for shame-aware, low-demand supports.Lay Abstract Autistic burnout is a period of overwhelming exhaustion and reduced ability to cope with everyday life. Although autistic people have spoken about burnout for many years, there is still little research describing what it actually feels like. In this study, 11 autistic adults shared their experiences of burnout through online interviews or written responses. We analysed their words to look for common patterns and individual differences. Participants described extreme tiredness, difficulty starting and completing everyday tasks, and increased sensitivity to noise, light, or smells. Many withdrew from friends, family, or work to protect their limited energy. A key pattern was shame, feeling embarrassed, inadequate, or like a burden, which shaped how people made sense of their burnout and whether they felt able to ask for help. Several described “dual-masking,” meaning they hid both their autistic traits and the signs of burnout itself. This added pressure often made burnout last longer and delayed access to support. Recovery was often slow. Gentle steps, such as spending quiet time near others without having to talk (“people-adjacent” activities), helped them reconnect without pressure. These findings suggest that supportive environments, where autistic people feel safe to be themselves, may reduce the impact and length of burnout episodes. En ligne : https://dx.doi.org/10.1177/13623613261444797 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=586 Support, socialise and advocate: An exploration of the stated purposes of Facebook autism groups / Susan ABEL in Research in Autism Spectrum Disorders, 61 (May 2019)
![]()
[article]
Titre : Support, socialise and advocate: An exploration of the stated purposes of Facebook autism groups Type de document : texte imprimé Auteurs : Susan ABEL, Auteur ; Tanya MACHIN, Auteur ; Charlotte BROWNLOW, Auteur Article en page(s) : p.10-21 Langues : Anglais (eng) Mots-clés : Autism ASD Social support Facebook groups Index. décimale : PER Périodiques Résumé : With a rapidly growing global population of just over two billion users, Facebook has changed the way many people engage with each other. Whilst the autism community—autistic people, their families and carers, and their broader support network—are represented in this population there is limited research about how or why this community intends to use Facebook to connect and communicate. This exploratory study aimed to characterise the stated purposes of Facebook groups related to autism and their target membership. The terms autism, Asperger, ASD, Aspie, and wrong planet were used to search for Facebook groups. Using a content analysis, the group name, description, privacy status and member count of 500 autism groups on Facebook were examined. The groups had a combined membership of 905,655 English-speaking users and were created for support (60.4%), social companionship (16.4%), advocacy (15.8%), treatments (5.6%), sales (1.0%) and fundraising (0.8%). Most of the groups had a target membership of parents and families (57.4%), autistic people (23.4%), and women (10.4%). Many groups specified group etiquette (36.4%), or the geographic location of members (42.8%). Of the groups targeting autistic people, 77.8% used identity-first language, while 58.2% of groups targeting parents and families used person-first language. Separate and shared neuro-spaces appear to be negotiated within these Facebook groups and this could stimulate critical discussion around the autism community’s engagement with social media. These Facebook groups are designed to provide support to autistic people and their families and to provide social networking opportunities for autistic people. En ligne : https://doi.org/10.1016/j.rasd.2019.01.009 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=385
in Research in Autism Spectrum Disorders > 61 (May 2019) . - p.10-21[article] Support, socialise and advocate: An exploration of the stated purposes of Facebook autism groups [texte imprimé] / Susan ABEL, Auteur ; Tanya MACHIN, Auteur ; Charlotte BROWNLOW, Auteur . - p.10-21.
Langues : Anglais (eng)
in Research in Autism Spectrum Disorders > 61 (May 2019) . - p.10-21
Mots-clés : Autism ASD Social support Facebook groups Index. décimale : PER Périodiques Résumé : With a rapidly growing global population of just over two billion users, Facebook has changed the way many people engage with each other. Whilst the autism community—autistic people, their families and carers, and their broader support network—are represented in this population there is limited research about how or why this community intends to use Facebook to connect and communicate. This exploratory study aimed to characterise the stated purposes of Facebook groups related to autism and their target membership. The terms autism, Asperger, ASD, Aspie, and wrong planet were used to search for Facebook groups. Using a content analysis, the group name, description, privacy status and member count of 500 autism groups on Facebook were examined. The groups had a combined membership of 905,655 English-speaking users and were created for support (60.4%), social companionship (16.4%), advocacy (15.8%), treatments (5.6%), sales (1.0%) and fundraising (0.8%). Most of the groups had a target membership of parents and families (57.4%), autistic people (23.4%), and women (10.4%). Many groups specified group etiquette (36.4%), or the geographic location of members (42.8%). Of the groups targeting autistic people, 77.8% used identity-first language, while 58.2% of groups targeting parents and families used person-first language. Separate and shared neuro-spaces appear to be negotiated within these Facebook groups and this could stimulate critical discussion around the autism community’s engagement with social media. These Facebook groups are designed to provide support to autistic people and their families and to provide social networking opportunities for autistic people. En ligne : https://doi.org/10.1016/j.rasd.2019.01.009 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=385

