Adding the missing voice: How self-report of autistic youth self-report on an executive functioning rating scale compares to parent report and that of youth with attention deficit hyperactivity disorder or neurotypical development / L. KENWORTHY in Autism, 26-2 (February 2022)  

Public ISBD [article]  inAutism > 26-2 (February 2022) . - p.422-433 Titre : Adding the missing voice: How self-report of autistic youth self-report on an executive functioning rating scale compares to parent report and that of youth with attention deficit hyperactivity disorder or neurotypical development Type de document : Texte imprimé et/ou numérique Auteurs : L. KENWORTHY, Auteur ; A. VERBALIS, Auteur ; Julia BASCOM, Auteur ; S. DAVANPORT, Auteur ; J. F. STRANG, Auteur ; C. PUGLIESE, Auteur ; A. FREEMAN, Auteur ; C. JEPPSEN, Auteur ; Anna Chelsea ARMOUR, Auteur ; G. JOST, Auteur ; K. HARDY, Auteur ; Gregory L. WALLACE, Auteur Article en page(s) : p.422-433 Langues : Anglais (eng) Mots-clés : attention deficit hyperactivity disorder  autism  executive function  parent report  psychometrics  self-report  youth  receives financial compensation for use of the First and second editions of the  Behavior Rating of Executive Functions (BRIEF, BRIEF 2). Index. décimale : PER Périodiques Résumé : Executive functions are often impaired in autistic people and relate to important outcomes such as mental health, success in school and work, and quality of life. Evaluating executive functions helps autistic people, clinicians, and families identify targets for external supports and skill building. Youth self-report of executive function has not been studied, yet we know that self-report from autistic youth is key to understanding other cognitive/behavioral phenomena in autism such as anxiety, obsessions/compulsions, sensory sensitivities, and repetitive behaviors. We investigated self- and parent-report of executive function problems in 197 autistic youth without intellectual disability (ages 11-18?years), including the magnitude and profiles of executive function problems autistic youth report across subdomains of executive function. We compared autistic self-report with that of 114 youth with attention deficit hyperactivity disorder without intellectual disability and 197 neurotypical youth. We found that autistic youth report significant executive function problems compared to neurotypical youth and a distinctive profile of challenges in comparison to attention deficit hyperactivity disorder youth. Parents and their autistic children diverged regarding the magnitude of the youth's executive function difficulties, but both identify inflexibility as the most impaired executive function subdomain. Autistic youth and their parents were somewhat more concordant in their report of executive function problems than youth with attention deficit hyperactivity disorder and their parents, but only showed moderate concordance at best. These findings elevate the importance of asking autistic youth directly about their executive functioning when engaging them in assessment and intervention, or researching executive functions in autism. En ligne : http://dx.doi.org/10.1177/13623613211029117 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=452 [article] Adding the missing voice: How self-report of autistic youth self-report on an executive functioning rating scale compares to parent report and that of youth with attention deficit hyperactivity disorder or neurotypical development [Texte imprimé et/ou numérique] / L. KENWORTHY, Auteur ; A. VERBALIS, Auteur ; Julia BASCOM, Auteur ; S. DAVANPORT, Auteur ; J. F. STRANG, Auteur ; C. PUGLIESE, Auteur ; A. FREEMAN, Auteur ; C. JEPPSEN, Auteur ; Anna Chelsea ARMOUR, Auteur ; G. JOST, Auteur ; K. HARDY, Auteur ; Gregory L. WALLACE, Auteur . - p.422-433. Langues : Anglais (eng) in Autism > 26-2 (February 2022) . - p.422-433 Mots-clés : attention deficit hyperactivity disorder  autism  executive function  parent report  psychometrics  self-report  youth  receives financial compensation for use of the First and second editions of the  Behavior Rating of Executive Functions (BRIEF, BRIEF 2). Index. décimale : PER Périodiques Résumé : Executive functions are often impaired in autistic people and relate to important outcomes such as mental health, success in school and work, and quality of life. Evaluating executive functions helps autistic people, clinicians, and families identify targets for external supports and skill building. Youth self-report of executive function has not been studied, yet we know that self-report from autistic youth is key to understanding other cognitive/behavioral phenomena in autism such as anxiety, obsessions/compulsions, sensory sensitivities, and repetitive behaviors. We investigated self- and parent-report of executive function problems in 197 autistic youth without intellectual disability (ages 11-18?years), including the magnitude and profiles of executive function problems autistic youth report across subdomains of executive function. We compared autistic self-report with that of 114 youth with attention deficit hyperactivity disorder without intellectual disability and 197 neurotypical youth. We found that autistic youth report significant executive function problems compared to neurotypical youth and a distinctive profile of challenges in comparison to attention deficit hyperactivity disorder youth. Parents and their autistic children diverged regarding the magnitude of the youth's executive function difficulties, but both identify inflexibility as the most impaired executive function subdomain. Autistic youth and their parents were somewhat more concordant in their report of executive function problems than youth with attention deficit hyperactivity disorder and their parents, but only showed moderate concordance at best. These findings elevate the importance of asking autistic youth directly about their executive functioning when engaging them in assessment and intervention, or researching executive functions in autism. En ligne : http://dx.doi.org/10.1177/13623613211029117 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=452

Increasing autism acceptance: The impact of the Sesame Street "See Amazing in All Children" initiative / Bruno J. ANTHONY in Autism, 24-1 (January 2020)  

Public ISBD [article]  inAutism > 24-1 (January 2020) . - p.95-108 Titre : Increasing autism acceptance: The impact of the Sesame Street "See Amazing in All Children" initiative Type de document : Texte imprimé et/ou numérique Auteurs : Bruno J. ANTHONY, Auteur ; H. A. ROBERTSON, Auteur ; A. VERBALIS, Auteur ; Y. MYRICK, Auteur ; M. TROXEL, Auteur ; S. SEESE, Auteur ; Laura G. ANTHONY, Auteur Article en page(s) : p.95-108 Langues : Anglais (eng) Mots-clés : acceptance  autism spectrum disorders  community inclusion  preschool Index. décimale : PER Périodiques Résumé : To promote knowledge and acceptance of autism, Sesame Workshop created an online initiative: See Amazing in All Children. This nationwide evaluation of See Amazing assessed whether it increased knowledge and acceptance, promoted community inclusion, reduced parenting strain, and enhanced parenting competence. Survey responses were collected online from parents of children (age 6) with and without autism before (N = 1010), 1 week after (N = 510), and, for parents of autistic children, 1 month after (N = 182) they viewed the See Amazing materials. Following exposure, parents of non-autistic children showed small but significant increases in knowledge of autism and, like parents of autistic children, greater acceptance of autistic children. Parents of autistic children reported less strain, increased parenting competence, and more hope about involving their child in their community. That the See Amazing materials invoked positive changes in the general parent community and in parents of autistic children suggests that See Amazing materials have the potential to be an effective resource to increase acceptance and community inclusion, although limitations of self-selection, dropout rate, and lack of control group constrain interpretation. Implications include support for targeting acceptance as a step beyond awareness campaigns, though actual behavior change is a subject for future research. En ligne : http://dx.doi.org/10.1177/1362361319847927 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=414 [article] Increasing autism acceptance: The impact of the Sesame Street "See Amazing in All Children" initiative [Texte imprimé et/ou numérique] / Bruno J. ANTHONY, Auteur ; H. A. ROBERTSON, Auteur ; A. VERBALIS, Auteur ; Y. MYRICK, Auteur ; M. TROXEL, Auteur ; S. SEESE, Auteur ; Laura G. ANTHONY, Auteur . - p.95-108. Langues : Anglais (eng) in Autism > 24-1 (January 2020) . - p.95-108 Mots-clés : acceptance  autism spectrum disorders  community inclusion  preschool Index. décimale : PER Périodiques Résumé : To promote knowledge and acceptance of autism, Sesame Workshop created an online initiative: See Amazing in All Children. This nationwide evaluation of See Amazing assessed whether it increased knowledge and acceptance, promoted community inclusion, reduced parenting strain, and enhanced parenting competence. Survey responses were collected online from parents of children (age 6) with and without autism before (N = 1010), 1 week after (N = 510), and, for parents of autistic children, 1 month after (N = 182) they viewed the See Amazing materials. Following exposure, parents of non-autistic children showed small but significant increases in knowledge of autism and, like parents of autistic children, greater acceptance of autistic children. Parents of autistic children reported less strain, increased parenting competence, and more hope about involving their child in their community. That the See Amazing materials invoked positive changes in the general parent community and in parents of autistic children suggests that See Amazing materials have the potential to be an effective resource to increase acceptance and community inclusion, although limitations of self-selection, dropout rate, and lack of control group constrain interpretation. Implications include support for targeting acceptance as a step beyond awareness campaigns, though actual behavior change is a subject for future research. En ligne : http://dx.doi.org/10.1177/1362361319847927 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=414

Meeting the needs of autistic adults in Qatar: Stakeholder perspectives on gaps in services and priorities for future programming / Serene HABAYEB in Autism, 26-1 (January 2022)  

Public ISBD [article]  inAutism > 26-1 (January 2022) . - p.88-100 Titre : Meeting the needs of autistic adults in Qatar: Stakeholder perspectives on gaps in services and priorities for future programming Type de document : Texte imprimé et/ou numérique Auteurs : Serene HABAYEB, Auteur ; S. AL-HARAHSHEH, Auteur ; Allison B. RATTO, Auteur ; A. VERBALIS, Auteur ; C. PUGLIESE, Auteur ; N. NADWODNY, Auteur ; F. AL-MEER, Auteur ; M. EL-AKOUM, Auteur Article en page(s) : p.88-100 Langues : Anglais (eng) Mots-clés : Qatar  adolescents  adults  autism spectrum disorders  family functioning and support  quality of life  vocational/labor force participation Index. décimale : PER Périodiques Résumé : Qatar is expanding the services that it offers for autistic people, but these services focus mainly on diagnosing and treating young children. Because there are not enough autism providers in Qatar and few opportunities for autistic youth to participate in the community, more and more autistic teens and young adults have unmet needs during their transition to adulthood. The goal of this study was to conduct a needs assessment of transition-age autistic youth in Qatar and their families in order to inform the development of an adult respite care and support center. Respite care is a service that provides families with stress relief and time to participate in activities that are more difficult to do when their loved one with a disability is with them. The objective of this study was to use family and stakeholder input to identify the needs and preferences for respite care for autistic youth in Qatar. The project was conducted with a local research team in Qatar and a team of clinical researchers in the United States specializing in autism. Stakeholders, including parents of autistic people and providers working with individuals with autism, completed surveys and participated in focus groups. Families and providers in Qatar were very interested increasing services for young adults with autism to improve quality of life, although wanted to make sure the service providers would be reliable and trustworthy. Implications from this study may substantially improve the lives of autistic adults in Qatar. En ligne : http://dx.doi.org/10.1177/13623613211020623 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=451 [article] Meeting the needs of autistic adults in Qatar: Stakeholder perspectives on gaps in services and priorities for future programming [Texte imprimé et/ou numérique] / Serene HABAYEB, Auteur ; S. AL-HARAHSHEH, Auteur ; Allison B. RATTO, Auteur ; A. VERBALIS, Auteur ; C. PUGLIESE, Auteur ; N. NADWODNY, Auteur ; F. AL-MEER, Auteur ; M. EL-AKOUM, Auteur . - p.88-100. Langues : Anglais (eng) in Autism > 26-1 (January 2022) . - p.88-100 Mots-clés : Qatar  adolescents  adults  autism spectrum disorders  family functioning and support  quality of life  vocational/labor force participation Index. décimale : PER Périodiques Résumé : Qatar is expanding the services that it offers for autistic people, but these services focus mainly on diagnosing and treating young children. Because there are not enough autism providers in Qatar and few opportunities for autistic youth to participate in the community, more and more autistic teens and young adults have unmet needs during their transition to adulthood. The goal of this study was to conduct a needs assessment of transition-age autistic youth in Qatar and their families in order to inform the development of an adult respite care and support center. Respite care is a service that provides families with stress relief and time to participate in activities that are more difficult to do when their loved one with a disability is with them. The objective of this study was to use family and stakeholder input to identify the needs and preferences for respite care for autistic youth in Qatar. The project was conducted with a local research team in Qatar and a team of clinical researchers in the United States specializing in autism. Stakeholders, including parents of autistic people and providers working with individuals with autism, completed surveys and participated in focus groups. Families and providers in Qatar were very interested increasing services for young adults with autism to improve quality of life, although wanted to make sure the service providers would be reliable and trustworthy. Implications from this study may substantially improve the lives of autistic adults in Qatar. En ligne : http://dx.doi.org/10.1177/13623613211020623 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=451

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