Adapting the Tackling Teenage Training Sex Education Program for Autistic Adults in the US: A Pilot Study / Eileen T. CREHAN in Journal of Autism and Developmental Disorders, 54-6 (June 2024)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 54-6 (June 2024) . - p.2108-2123 Titre : Adapting the Tackling Teenage Training Sex Education Program for Autistic Adults in the US: A Pilot Study Type de document : Texte imprimé et/ou numérique Auteurs : Eileen T. CREHAN, Auteur ; Xihan YANG, Auteur ; Simone Dufresne, Auteur ; Jamie BARSTEIN, Auteur ; Laurie STEPHENS, Auteur ; Linda DEKKER, Auteur ; Kirstin GREAVES-LORD, Auteur Article en page(s) : p.2108-2123 Langues : Anglais (eng) Index. décimale : PER Périodiques Résumé : Despite the established need for sexuality and relationship programming for autistic adults, there are extremely limited curricula for this population. This pilot study used an evidence-based sexuality and relationship education program for autistic adolescents (Tackling Teenage Training) as the basis for an adult-focused virtual psychoeducational group. Qualitative feedback, quantitative ratings of the programming, and behavioral surveys from participants were collected. Nine participants completed the program, and corresponding pre and post measures. Highly rated topics, for example gender identity and online dating, were consistent with previous research on what autistic adults want from a sexuality and relationship education program. Future programming should incorporate increased attention to themes and topics highlighted by participants, and should utilize the teaching tools (e.g., role play, peer discussions) identified as useful by the participants. En ligne : https://doi.org/10.1007/s10803-023-05962-3 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=530 [article] Adapting the Tackling Teenage Training Sex Education Program for Autistic Adults in the US: A Pilot Study [Texte imprimé et/ou numérique] / Eileen T. CREHAN, Auteur ; Xihan YANG, Auteur ; Simone Dufresne, Auteur ; Jamie BARSTEIN, Auteur ; Laurie STEPHENS, Auteur ; Linda DEKKER, Auteur ; Kirstin GREAVES-LORD, Auteur . - p.2108-2123. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 54-6 (June 2024) . - p.2108-2123 Index. décimale : PER Périodiques Résumé : Despite the established need for sexuality and relationship programming for autistic adults, there are extremely limited curricula for this population. This pilot study used an evidence-based sexuality and relationship education program for autistic adolescents (Tackling Teenage Training) as the basis for an adult-focused virtual psychoeducational group. Qualitative feedback, quantitative ratings of the programming, and behavioral surveys from participants were collected. Nine participants completed the program, and corresponding pre and post measures. Highly rated topics, for example gender identity and online dating, were consistent with previous research on what autistic adults want from a sexuality and relationship education program. Future programming should incorporate increased attention to themes and topics highlighted by participants, and should utilize the teaching tools (e.g., role play, peer discussions) identified as useful by the participants. En ligne : https://doi.org/10.1007/s10803-023-05962-3 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=530

'Who, When, How to Share': Pilot study of a new disclosure decision-making programme for autistic adults / Katrina SCIOR ; Kana GRACE ; Eric HEATH ; Simone Dufresne ; Laura CRANE in Autism, 28-8 (August 2024)  

Public ISBD [article]  inAutism > 28-8 (August 2024) . - p.2090-2104 Titre : 'Who, When, How to Share': Pilot study of a new disclosure decision-making programme for autistic adults Type de document : Texte imprimé et/ou numérique Auteurs : Katrina SCIOR, Auteur ; Kana GRACE, Auteur ; Eric HEATH, Auteur ; Simone Dufresne, Auteur ; Laura CRANE, Auteur Article en page(s) : p.2090-2104 Langues : Anglais (eng) Mots-clés : autism  autistic adults  decision-making  disclosure  feasibility  intervention  pilot  programme  stigma  support Index. décimale : PER Périodiques Résumé : In this pilot study, we report on the feasibility, acceptability and potential impact of 'Who, When, How to Share', a new disclosure decision-making programme for autistic adults. We evaluated this programme using pre-post mixed-methods surveys that included questions about participants'experiences of the programme and four psychosocial outcome measures. While 32 autistic adults completed the pre-programme survey and enrolled into the programme, there was high attrition, with only 19 autistic adults completing the programme and post-programme survey. We found that it was feasible to deliver the programme in a guided self-help format, although a minority of participants (who completed the programme or provided reasons for withdrawing from the programme) found it challenging to work through the programme independently and within the study time frame. High levels of satisfaction and positive qualitative feedback also suggested that the programme was acceptable to autistic adults. Participants provided useful recommendations for improvement, such as more interactive elements to enhance engagement. The programme showed potential to improve decisional conflict, disclosure-related distress, stigma-related stress and internalised stigma among autistic adults, though further evaluation of the impact of the programme is needed. Lay abstract 'Who, When, How to Share'is a new programme that aims to support autistic adults in making decisions around sharing their autistic identity with others. The programme involves working through a self-help guide independently over 3?weeks with optional peer support. We wanted to find out if autistic adults would join the programme and find it useful. Thirty-two autistic adults took part in the programme and 19 of them completed it. Most participants who completed the programme liked the programme and found it helpful, but some felt that they needed more time and support to complete it. They suggested that the programme would be more accessible if it was more interactive, such as including videos and other ways to gain feedback on their progress. Surveys filled in by participants before and after the programme suggested that they became more confident and less stressed about sharing their autistic identity with others, but some felt they still needed to build more confidence in order to handle negative attitudes from others. More work is needed to improve and test the programme further. En ligne : https://dx.doi.org/10.1177/13623613231221685 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=533 [article] 'Who, When, How to Share': Pilot study of a new disclosure decision-making programme for autistic adults [Texte imprimé et/ou numérique] / Katrina SCIOR, Auteur ; Kana GRACE, Auteur ; Eric HEATH, Auteur ; Simone Dufresne, Auteur ; Laura CRANE, Auteur . - p.2090-2104. Langues : Anglais (eng) in Autism > 28-8 (August 2024) . - p.2090-2104 Mots-clés : autism  autistic adults  decision-making  disclosure  feasibility  intervention  pilot  programme  stigma  support Index. décimale : PER Périodiques Résumé : In this pilot study, we report on the feasibility, acceptability and potential impact of 'Who, When, How to Share', a new disclosure decision-making programme for autistic adults. We evaluated this programme using pre-post mixed-methods surveys that included questions about participants'experiences of the programme and four psychosocial outcome measures. While 32 autistic adults completed the pre-programme survey and enrolled into the programme, there was high attrition, with only 19 autistic adults completing the programme and post-programme survey. We found that it was feasible to deliver the programme in a guided self-help format, although a minority of participants (who completed the programme or provided reasons for withdrawing from the programme) found it challenging to work through the programme independently and within the study time frame. High levels of satisfaction and positive qualitative feedback also suggested that the programme was acceptable to autistic adults. Participants provided useful recommendations for improvement, such as more interactive elements to enhance engagement. The programme showed potential to improve decisional conflict, disclosure-related distress, stigma-related stress and internalised stigma among autistic adults, though further evaluation of the impact of the programme is needed. Lay abstract 'Who, When, How to Share'is a new programme that aims to support autistic adults in making decisions around sharing their autistic identity with others. The programme involves working through a self-help guide independently over 3?weeks with optional peer support. We wanted to find out if autistic adults would join the programme and find it useful. Thirty-two autistic adults took part in the programme and 19 of them completed it. Most participants who completed the programme liked the programme and found it helpful, but some felt that they needed more time and support to complete it. They suggested that the programme would be more accessible if it was more interactive, such as including videos and other ways to gain feedback on their progress. Surveys filled in by participants before and after the programme suggested that they became more confident and less stressed about sharing their autistic identity with others, but some felt they still needed to build more confidence in order to handle negative attitudes from others. More work is needed to improve and test the programme further. En ligne : https://dx.doi.org/10.1177/13623613231221685 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=533

Youth and Caregivers' Perspective on Teens Engaged as Mentors (TEAM): An Inclusive Peer Mentoring Program for Autistic Adolescents / Belinda O?Hagan ; Pooja Sonikar ; River Grace ; Dasha Castillo ; Emily Chen ; Malhaar Agrawal ; Simone Dufresne ; Zach Rossetti ; Lauren Bartolotti ; Shari KRAUSS in Journal of Autism and Developmental Disorders, 53-6 (June 2023)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 53-6 (June 2023) . - p.2219-2231 Titre : Youth and Caregivers' Perspective on Teens Engaged as Mentors (TEAM): An Inclusive Peer Mentoring Program for Autistic Adolescents : Journal of Autism and Developmental Disorders Type de document : Texte imprimé et/ou numérique Auteurs : Belinda O?Hagan, Auteur ; Pooja Sonikar, Auteur ; River Grace, Auteur ; Dasha Castillo, Auteur ; Emily Chen, Auteur ; Malhaar Agrawal, Auteur ; Simone Dufresne, Auteur ; Zach Rossetti, Auteur ; Lauren Bartolotti, Auteur ; Shari KRAUSS, Auteur Article en page(s) : p.2219-2231 Langues : Anglais (eng) Index. décimale : PER Périodiques Résumé : Past studies indicate that many autistic youth benefit from support with developing social relationships, exploring leadership opportunities, and engaging in post-secondary education. Teens Engaged as Mentors (TEAM) is an innovative mentoring program that provides socialization and community engagement opportunities in a safe environment for youth with and without autism. This qualitative study explored how participants and their caregivers perceived participation in TEAM. Stakeholder focus groups were conducted annually from 2016 to 2020 with 16 autistic mentees (ages 9-13), 30 autistic and neurotypical mentors (ages 14-21), and 30 caregivers. Participants reported enjoying TEAM because of increased socialization opportunities, which promoted friendships and openness toward others. Caregivers reported growth in their children?s social skills and confidence throughout their participation. En ligne : https://doi.org/10.1007/s10803-022-05543-w Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=506 [article] Youth and Caregivers' Perspective on Teens Engaged as Mentors (TEAM): An Inclusive Peer Mentoring Program for Autistic Adolescents : Journal of Autism and Developmental Disorders [Texte imprimé et/ou numérique] / Belinda O?Hagan, Auteur ; Pooja Sonikar, Auteur ; River Grace, Auteur ; Dasha Castillo, Auteur ; Emily Chen, Auteur ; Malhaar Agrawal, Auteur ; Simone Dufresne, Auteur ; Zach Rossetti, Auteur ; Lauren Bartolotti, Auteur ; Shari KRAUSS, Auteur . - p.2219-2231. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 53-6 (June 2023) . - p.2219-2231 Index. décimale : PER Périodiques Résumé : Past studies indicate that many autistic youth benefit from support with developing social relationships, exploring leadership opportunities, and engaging in post-secondary education. Teens Engaged as Mentors (TEAM) is an innovative mentoring program that provides socialization and community engagement opportunities in a safe environment for youth with and without autism. This qualitative study explored how participants and their caregivers perceived participation in TEAM. Stakeholder focus groups were conducted annually from 2016 to 2020 with 16 autistic mentees (ages 9-13), 30 autistic and neurotypical mentors (ages 14-21), and 30 caregivers. Participants reported enjoying TEAM because of increased socialization opportunities, which promoted friendships and openness toward others. Caregivers reported growth in their children?s social skills and confidence throughout their participation. En ligne : https://doi.org/10.1007/s10803-022-05543-w Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=506

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