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Auteur I. Carina GILLBERG |
Documents disponibles écrits par cet auteur (18)



Aspects of quality of life in adults diagnosed with autism in childhood: A population-based study / Eva BILLSTEDT in Autism, 15-1 (January 2011)
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Titre : Aspects of quality of life in adults diagnosed with autism in childhood: A population-based study Type de document : Texte imprimé et/ou numérique Auteurs : Eva BILLSTEDT, Auteur ; I. Carina GILLBERG, Auteur ; Christopher GILLBERG, Auteur Année de publication : 2011 Article en page(s) : p.7-20 Langues : Anglais (eng) Index. décimale : PER Périodiques Résumé : The present study is a long-term prospective follow-up study of a population-based cohort of 120 individuals diagnosed with autism in childhood, followed into late adolescence/early adulthood. Specific aims of the study were to attempt to measure and study social aspects/quality of life in those 108 individuals with autism alive and available for study at the time of follow-up (13—22 years after original diagnosis). A newly constructed scale for rating ‘autism-friendly environment’/quality of life was used alongside a structured parent/carer interview assessing current occupation, educational history, services provided, accommodation type, and recreational activities. The majority of the group with autism remained dependent on parents/caregivers for support in education, accommodation and occupational situations. In spite of this, the estimation of the study group’s general quality of life was encouragingly positive. Nevertheless, there was an obvious need for improvements in the areas of occupation and recreational activities. Future studies need to look in more depth at the concept of an autism-friendly environment and develop more detailed quality of life assessment tools relevant for people in the autism spectrum. En ligne : http://dx.doi.org/10.1177/1362361309346066 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=117
in Autism > 15-1 (January 2011) . - p.7-20[article] Aspects of quality of life in adults diagnosed with autism in childhood: A population-based study [Texte imprimé et/ou numérique] / Eva BILLSTEDT, Auteur ; I. Carina GILLBERG, Auteur ; Christopher GILLBERG, Auteur . - 2011 . - p.7-20.
Langues : Anglais (eng)
in Autism > 15-1 (January 2011) . - p.7-20
Index. décimale : PER Périodiques Résumé : The present study is a long-term prospective follow-up study of a population-based cohort of 120 individuals diagnosed with autism in childhood, followed into late adolescence/early adulthood. Specific aims of the study were to attempt to measure and study social aspects/quality of life in those 108 individuals with autism alive and available for study at the time of follow-up (13—22 years after original diagnosis). A newly constructed scale for rating ‘autism-friendly environment’/quality of life was used alongside a structured parent/carer interview assessing current occupation, educational history, services provided, accommodation type, and recreational activities. The majority of the group with autism remained dependent on parents/caregivers for support in education, accommodation and occupational situations. In spite of this, the estimation of the study group’s general quality of life was encouragingly positive. Nevertheless, there was an obvious need for improvements in the areas of occupation and recreational activities. Future studies need to look in more depth at the concept of an autism-friendly environment and develop more detailed quality of life assessment tools relevant for people in the autism spectrum. En ligne : http://dx.doi.org/10.1177/1362361309346066 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=117 Asperger Syndrome and Autism: A Comparative Longitudinal Follow-Up Study More than 5 Years after Original Diagnosis / Mats CEDERLUND in Journal of Autism and Developmental Disorders, 38-1 (January 2008)
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Titre : Asperger Syndrome and Autism: A Comparative Longitudinal Follow-Up Study More than 5 Years after Original Diagnosis Type de document : Texte imprimé et/ou numérique Auteurs : Mats CEDERLUND, Auteur ; Eva BILLSTEDT, Auteur ; I. Carina GILLBERG, Auteur ; Christopher GILLBERG, Auteur ; Bibbi HAGBERG, Auteur Année de publication : 2008 Article en page(s) : p.72-85 Langues : Anglais (eng) Mots-clés : Asperger-syndrome Autism Follow-up Intellectual-ability Outcome DISCO Index. décimale : PER Périodiques Résumé : Prospective follow-up study of 70 males with Asperger syndrome (AS), and 70 males with autism more than 5 years after original diagnosis. Instruments used at follow-up included overall clinical assessment, the Diagnostic Interview for Social and Communication Disorders, Wechsler Intelligence Scales, Vineland Adaptive Behavior Scales, and Global Assessment of Functioning Scale. Specific outcome criteria were used. Outcome in AS was good in 27% of cases. However, 26% had a very restricted life, with no occupation/activity and no friends. Outcome in the autism group was significantly worse. Males with AS had worse outcomes than expected given normal to high IQ. However, outcome was considerably better than for the comparison group of individuals with autism.
En ligne : http://dx.doi.org/10.1007/s10803-007-0364-6 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=315
in Journal of Autism and Developmental Disorders > 38-1 (January 2008) . - p.72-85[article] Asperger Syndrome and Autism: A Comparative Longitudinal Follow-Up Study More than 5 Years after Original Diagnosis [Texte imprimé et/ou numérique] / Mats CEDERLUND, Auteur ; Eva BILLSTEDT, Auteur ; I. Carina GILLBERG, Auteur ; Christopher GILLBERG, Auteur ; Bibbi HAGBERG, Auteur . - 2008 . - p.72-85.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 38-1 (January 2008) . - p.72-85
Mots-clés : Asperger-syndrome Autism Follow-up Intellectual-ability Outcome DISCO Index. décimale : PER Périodiques Résumé : Prospective follow-up study of 70 males with Asperger syndrome (AS), and 70 males with autism more than 5 years after original diagnosis. Instruments used at follow-up included overall clinical assessment, the Diagnostic Interview for Social and Communication Disorders, Wechsler Intelligence Scales, Vineland Adaptive Behavior Scales, and Global Assessment of Functioning Scale. Specific outcome criteria were used. Outcome in AS was good in 27% of cases. However, 26% had a very restricted life, with no occupation/activity and no friends. Outcome in the autism group was significantly worse. Males with AS had worse outcomes than expected given normal to high IQ. However, outcome was considerably better than for the comparison group of individuals with autism.
En ligne : http://dx.doi.org/10.1007/s10803-007-0364-6 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=315 Autism in adults: symptom patterns and early childhood predictors. Use of the DISCO in a community sample followed from childhood / Eva BILLSTEDT in Journal of Child Psychology and Psychiatry, 48-11 (November 2007)
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Titre : Autism in adults: symptom patterns and early childhood predictors. Use of the DISCO in a community sample followed from childhood Type de document : Texte imprimé et/ou numérique Auteurs : Eva BILLSTEDT, Auteur ; I. Carina GILLBERG, Auteur ; Christopher GILLBERG, Auteur Année de publication : 2007 Article en page(s) : p.1102–1110 Langues : Anglais (eng) Mots-clés : Autism the-DISCO community-sample adult-outcome Index. décimale : PER Périodiques Résumé : Few studies have looked at the very long-term outcome of individuals with autism who were diagnosed in childhood.
Methods: A longitudinal, prospective, community-based follow-up study of adults who had received the diagnosis of autism (classic and atypical) in childhood (n = 105) was conducted. A structured interview (the Diagnostic Interview for Social and COmmunication disorders – the DISCO) was used in order to evaluate symptoms and symptom patterns 13–22 years after original diagnosis. Childhood measures, including IQ-level at time of childhood diagnosis and communicative speech registered before age 5 years, were studied in relation to the presence of autism symptoms at follow-up.
Results: The classical and atypical autism groups were fairly homogeneously impaired in terms of symptoms in the social interaction category whereas other common childhood autism symptoms, including maladaptive and stereotyped behaviours, were more variable in the study group at follow-up. Odd responses to sensory stimuli were still extremely common. Speech before 5 years of age, IQ, gender, diagnosed medical disorder and onset of epilepsy before 5 years were variables that correlated to outcome on the DISCO algorithm for autistic spectrum disorders (Wing & Gould, 1979) concerning style and quality of social interaction, communication style and pattern of self-chosen activities.
Conclusions: Social interaction problems were still present in the vast majority of adults with autism/atypical autism, but behavioural impairments were much more variable in adulthood. Almost all cases were reported to show persistent perceptual problems. Certain childhood measures were found to prospectively predict adult social interaction style, communication type, and pattern of self-chosen activities, which still met diagnostic criteria for autism/atypical autism in adulthood.En ligne : http://dx.doi.org/10.1111/j.1469-7610.2007.01774.x Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=297
in Journal of Child Psychology and Psychiatry > 48-11 (November 2007) . - p.1102–1110[article] Autism in adults: symptom patterns and early childhood predictors. Use of the DISCO in a community sample followed from childhood [Texte imprimé et/ou numérique] / Eva BILLSTEDT, Auteur ; I. Carina GILLBERG, Auteur ; Christopher GILLBERG, Auteur . - 2007 . - p.1102–1110.
Langues : Anglais (eng)
in Journal of Child Psychology and Psychiatry > 48-11 (November 2007) . - p.1102–1110
Mots-clés : Autism the-DISCO community-sample adult-outcome Index. décimale : PER Périodiques Résumé : Few studies have looked at the very long-term outcome of individuals with autism who were diagnosed in childhood.
Methods: A longitudinal, prospective, community-based follow-up study of adults who had received the diagnosis of autism (classic and atypical) in childhood (n = 105) was conducted. A structured interview (the Diagnostic Interview for Social and COmmunication disorders – the DISCO) was used in order to evaluate symptoms and symptom patterns 13–22 years after original diagnosis. Childhood measures, including IQ-level at time of childhood diagnosis and communicative speech registered before age 5 years, were studied in relation to the presence of autism symptoms at follow-up.
Results: The classical and atypical autism groups were fairly homogeneously impaired in terms of symptoms in the social interaction category whereas other common childhood autism symptoms, including maladaptive and stereotyped behaviours, were more variable in the study group at follow-up. Odd responses to sensory stimuli were still extremely common. Speech before 5 years of age, IQ, gender, diagnosed medical disorder and onset of epilepsy before 5 years were variables that correlated to outcome on the DISCO algorithm for autistic spectrum disorders (Wing & Gould, 1979) concerning style and quality of social interaction, communication style and pattern of self-chosen activities.
Conclusions: Social interaction problems were still present in the vast majority of adults with autism/atypical autism, but behavioural impairments were much more variable in adulthood. Almost all cases were reported to show persistent perceptual problems. Certain childhood measures were found to prospectively predict adult social interaction style, communication type, and pattern of self-chosen activities, which still met diagnostic criteria for autism/atypical autism in adulthood.En ligne : http://dx.doi.org/10.1111/j.1469-7610.2007.01774.x Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=297 Autism in the Faroe Islands. An Epidemiological Study / Asa ELLEFSEN in Journal of Autism and Developmental Disorders, 37-3 (March 2007)
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Titre : Autism in the Faroe Islands. An Epidemiological Study Type de document : Texte imprimé et/ou numérique Auteurs : Asa ELLEFSEN, Auteur ; Hanna KAMPMANN, Auteur ; Eva BILLSTEDT, Auteur ; I. Carina GILLBERG, Auteur ; Christopher GILLBERG, Auteur Année de publication : 2007 Article en page(s) : p.437-444 Langues : Anglais (eng) Mots-clés : prevalence population-study Faroe Islands Index. décimale : PER Périodiques Résumé : The Faroe Islands are considered to be a genetic isolate. This population study of the prevalence of autism sought to identify a representative cohort for future genetic studies. In 2002 all schools were screened for autism spectrum disorders. The target population were all children born in 1985 through 1994 and living in the Faroe Islands on December 31, 2002. Children who screened positive for autism characteristics were examined using the Diagnostic Interview for Social and Communication Disorders (DISCO). Of the children aged 8 through 17 years, 0.56% had childhood autism, Asperger syndrome or atypical autism. The male:female ratio was just under 6:1. The prevalence of autism in the Faroe Islands was very similar to that reported from many western countries. En ligne : http://dx.doi.org/10.1007/s10803-006-0178-y Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=648
in Journal of Autism and Developmental Disorders > 37-3 (March 2007) . - p.437-444[article] Autism in the Faroe Islands. An Epidemiological Study [Texte imprimé et/ou numérique] / Asa ELLEFSEN, Auteur ; Hanna KAMPMANN, Auteur ; Eva BILLSTEDT, Auteur ; I. Carina GILLBERG, Auteur ; Christopher GILLBERG, Auteur . - 2007 . - p.437-444.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 37-3 (March 2007) . - p.437-444
Mots-clés : prevalence population-study Faroe Islands Index. décimale : PER Périodiques Résumé : The Faroe Islands are considered to be a genetic isolate. This population study of the prevalence of autism sought to identify a representative cohort for future genetic studies. In 2002 all schools were screened for autism spectrum disorders. The target population were all children born in 1985 through 1994 and living in the Faroe Islands on December 31, 2002. Children who screened positive for autism characteristics were examined using the Diagnostic Interview for Social and Communication Disorders (DISCO). Of the children aged 8 through 17 years, 0.56% had childhood autism, Asperger syndrome or atypical autism. The male:female ratio was just under 6:1. The prevalence of autism in the Faroe Islands was very similar to that reported from many western countries. En ligne : http://dx.doi.org/10.1007/s10803-006-0178-y Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=648 Autistic Syndrome with Onset at Age 31 Years: Herpes Encephalitis as a Possible Model for Childhood Autism / I. Carina GILLBERG in Developmental Medicine & Child Neurology, 33-10 (October 1991)
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Titre : Autistic Syndrome with Onset at Age 31 Years: Herpes Encephalitis as a Possible Model for Childhood Autism Type de document : Texte imprimé et/ou numérique Auteurs : I. Carina GILLBERG, Auteur Année de publication : 1991 Article en page(s) : p.920-924 Langues : Anglais (eng) Index. décimale : PER Périodiques Résumé : Le syndrome autistique avec début à l'âge de 31 ans. L'encéphalite herpétique comme modèle possible de l'autisme infantile
L'auteur décrit le cas d'un homme antérieurement en bonne santé ayant contracté une encéphalite herpétique à l'âge de 31 ans, et qui dans les mois suivants présenta tous les symptômes permettant un diagnostic d'autisme. Ce cas entraîne un doute sur la notion d'autisme comme étant exclusivement un trouble de développement. Il est suggéré que les lésions du lobe temporal peuvent causer un autisme dans certains cas.Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=136
in Developmental Medicine & Child Neurology > 33-10 (October 1991) . - p.920-924[article] Autistic Syndrome with Onset at Age 31 Years: Herpes Encephalitis as a Possible Model for Childhood Autism [Texte imprimé et/ou numérique] / I. Carina GILLBERG, Auteur . - 1991 . - p.920-924.
Langues : Anglais (eng)
in Developmental Medicine & Child Neurology > 33-10 (October 1991) . - p.920-924
Index. décimale : PER Périodiques Résumé : Le syndrome autistique avec début à l'âge de 31 ans. L'encéphalite herpétique comme modèle possible de l'autisme infantile
L'auteur décrit le cas d'un homme antérieurement en bonne santé ayant contracté une encéphalite herpétique à l'âge de 31 ans, et qui dans les mois suivants présenta tous les symptômes permettant un diagnostic d'autisme. Ce cas entraîne un doute sur la notion d'autisme comme étant exclusivement un trouble de développement. Il est suggéré que les lésions du lobe temporal peuvent causer un autisme dans certains cas.Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=136 Boys with Asperger Syndrome Grow Up: Psychiatric and Neurodevelopmental Disorders 20 Years After Initial Diagnosis / I. Carina GILLBERG in Journal of Autism and Developmental Disorders, 46-1 (January 2016)
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PermalinkChildren with minor neurodevelopmental disorders. III: Neurological and neurodevelopmental problems at age 10 / I. Carina GILLBERG in Developmental Medicine & Child Neurology, 27-1 (February 1985)
PermalinkChildren With Preschool Minor Neurodevelopmental Disorders. Iv: Behaviour And School Achievement At Age 13 / I. Carina GILLBERG in Developmental Medicine & Child Neurology, 31-1 (February 1989)
PermalinkChildren With Preschool Minor Neurodevelopmental Disorders, V: Neurodevelopmental Profiles At Age 13 / I. Carina GILLBERG in Developmental Medicine & Child Neurology, 31-1 (February 1989)
PermalinkErratum : Autism after Adolescence: Population-based 13- to 22-year Follow-up Study of 120 Individuals with Autism Diagnosed in Childhood / Eva BILLSTEDT in Journal of Autism and Developmental Disorders, 37-9 (October 2007)
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PermalinkErratum to: The Prevalence of Autism Spectrum Disorders in Toddlers: A Population Study of 2-Year-Old Swedish Children / Gudrun NYGREN in Journal of Autism and Developmental Disorders, 42-7 (July 2012)
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PermalinkIdentification de mutations associées à l'autisme et au syndrome d'Asperger dans deux gènes du chromosome X codant les neuroligines NLGN3 et NLGN4 / Stéphane JAMAIN in Bulletin Scientifique de l'arapi (Le), 11 (automne 2003)
PermalinkMortality in Autism: A Prospective Longitudinal Community-Based Study / Christopher GILLBERG in Journal of Autism and Developmental Disorders, 40-3 (March 2010)
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PermalinkSiblings and Parents of Children with Autism: A Controlled Population-Based Study / Christopher GILLBERG in Developmental Medicine & Child Neurology, 34-5 (May 1992)
PermalinkThe Rising Prevalence of Autism: A Prospective Longitudinal Study in the Faroe Islands / Eva KOCOVSKA in Journal of Autism and Developmental Disorders, 42-9 (September 2012)
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