Is autism linked to criminality? / Katie L. MARAS in Autism, 19-5 (July 2015)  

Public ISBD [article]  inAutism > 19-5 (July 2015) . - p.515-516 Titre : Is autism linked to criminality? Type de document : texte imprimé Auteurs : Katie L. MARAS, Auteur ; Sue MULCAHY, Auteur ; Laura CRANE, Auteur Article en page(s) : p.515-516 Langues : Anglais (eng) Index. décimale : PER Périodiques En ligne : http://dx.doi.org/10.1177/1362361315583411 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=261 [article] Is autism linked to criminality? [texte imprimé] / Katie L. MARAS, Auteur ; Sue MULCAHY, Auteur ; Laura CRANE, Auteur . - p.515-516. Langues : Anglais (eng) in Autism > 19-5 (July 2015) . - p.515-516 Index. décimale : PER Périodiques En ligne : http://dx.doi.org/10.1177/1362361315583411 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=261

'It seems like a luxury to be able to offer that': Factors influencing the implementation of annual health checks for autistic people in England / Jade DAVIES in Autism, 28-3 (March 2024)  

Public ISBD [article]  inAutism > 28-3 (March 2024) . - p.656-673 Titre : 'It seems like a luxury to be able to offer that': Factors influencing the implementation of annual health checks for autistic people in England Type de document : texte imprimé Auteurs : Jade DAVIES, Auteur ; Anna REMINGTON, Auteur ; Carole BUCKLEY, Auteur ; Laura CRANE, Auteur ; Katelyn SMALLEY, Auteur Article en page(s) : p.656-673 Langues : Anglais (eng) Mots-clés : autism  behavioural science  health checks  healthcare  policy  preventive care Index. décimale : PER Périodiques Résumé : Autistic people in England face worse health outcomes than non-autistic people. Autism-specific annual health checks have been proposed as one solution to this issue. This study identified strategies to incentivise primary care providers to offer autism-specific annual health checks, using a behavioural science approach. In phase 1, we conducted interviews and focus groups with autistic people (n = 10) and primary care providers (n = 11). In phase 2, we conducted a national survey of primary care providers (n = 196). Qualitative data were analysed using a framework method and the Theoretical Domains Framework. Quantitative data were analysed descriptively, and comparisons between sub-groups of survey respondents were made using Mann-Whitney U and Kruskal-Wallis tests. The most salient theoretical domain was environmental context and resources. Participants identified lack of time and staff as key barriers to implementation. Delegating tasks to non-physician practitioners and automating processes were seen as key facilitators. Autism-specific knowledge was another relevant domain; education produced and delivered by autistic people was posited to increase health check uptake and quality. Overall, participants were enthusiastic about autism-specific annual health checks but were concerned about the practical aspects of implementation. We identified specific barriers and facilitators that can be addressed prior to policy adoption to maximise chances of success. Lay abstract Autistic people are more likely to have mental and physical health problems than non-autistic people. Annual health checks could reduce these problems by finding and treating them early. Annual health checks are yearly medical appointments where a primary healthcare provider (such as a doctor or nurse) can check things like a patient?s weight and heart rate and ask if they have any worries about their health. In this study, we wanted to understand what might encourage primary healthcare providers to use annual health checks with their autistic patients. First, we spoke to 10 autistic people and 11 primary healthcare providers. Using the findings from these conversations, we created an online survey for primary healthcare providers in England. We used the findings from the interviews and survey to help us understand what would encourage primary healthcare providers to offer annual health checks for autistic people. Our participants said that a lack of time and staff would make it hard to provide health checks. To help, they said other members of staff (such as nurses and healthcare assistants) could do the health checks, rather than doctors. They also said parts of the process could be made automatic to save time (e.g. sending automatic reminders). Knowledge about autism was important too (e.g. knowing about the common conditions autistic people have, and how to best support autistic patients). Participants said training on these topics, produced and delivered with autistic people, could encourage them to use annual health checks with their autistic patients. En ligne : https://dx.doi.org/10.1177/13623613231182011 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=523 [article] 'It seems like a luxury to be able to offer that': Factors influencing the implementation of annual health checks for autistic people in England [texte imprimé] / Jade DAVIES, Auteur ; Anna REMINGTON, Auteur ; Carole BUCKLEY, Auteur ; Laura CRANE, Auteur ; Katelyn SMALLEY, Auteur . - p.656-673. Langues : Anglais (eng) in Autism > 28-3 (March 2024) . - p.656-673 Mots-clés : autism  behavioural science  health checks  healthcare  policy  preventive care Index. décimale : PER Périodiques Résumé : Autistic people in England face worse health outcomes than non-autistic people. Autism-specific annual health checks have been proposed as one solution to this issue. This study identified strategies to incentivise primary care providers to offer autism-specific annual health checks, using a behavioural science approach. In phase 1, we conducted interviews and focus groups with autistic people (n = 10) and primary care providers (n = 11). In phase 2, we conducted a national survey of primary care providers (n = 196). Qualitative data were analysed using a framework method and the Theoretical Domains Framework. Quantitative data were analysed descriptively, and comparisons between sub-groups of survey respondents were made using Mann-Whitney U and Kruskal-Wallis tests. The most salient theoretical domain was environmental context and resources. Participants identified lack of time and staff as key barriers to implementation. Delegating tasks to non-physician practitioners and automating processes were seen as key facilitators. Autism-specific knowledge was another relevant domain; education produced and delivered by autistic people was posited to increase health check uptake and quality. Overall, participants were enthusiastic about autism-specific annual health checks but were concerned about the practical aspects of implementation. We identified specific barriers and facilitators that can be addressed prior to policy adoption to maximise chances of success. Lay abstract Autistic people are more likely to have mental and physical health problems than non-autistic people. Annual health checks could reduce these problems by finding and treating them early. Annual health checks are yearly medical appointments where a primary healthcare provider (such as a doctor or nurse) can check things like a patient?s weight and heart rate and ask if they have any worries about their health. In this study, we wanted to understand what might encourage primary healthcare providers to use annual health checks with their autistic patients. First, we spoke to 10 autistic people and 11 primary healthcare providers. Using the findings from these conversations, we created an online survey for primary healthcare providers in England. We used the findings from the interviews and survey to help us understand what would encourage primary healthcare providers to offer annual health checks for autistic people. Our participants said that a lack of time and staff would make it hard to provide health checks. To help, they said other members of staff (such as nurses and healthcare assistants) could do the health checks, rather than doctors. They also said parts of the process could be made automatic to save time (e.g. sending automatic reminders). Knowledge about autism was important too (e.g. knowing about the common conditions autistic people have, and how to best support autistic patients). Participants said training on these topics, produced and delivered with autistic people, could encourage them to use annual health checks with their autistic patients. En ligne : https://dx.doi.org/10.1177/13623613231182011 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=523

Journeys towards accessing an autism diagnosis and associated support: A survey of families of autistic children in Ecuador / Paulina BUFFLE in Autism, 29-3 (March 2025)  

Public ISBD [article]  inAutism > 29-3 (March 2025) . - p.596-613 Titre : Journeys towards accessing an autism diagnosis and associated support: A survey of families of autistic children in Ecuador Type de document : texte imprimé Auteurs : Paulina BUFFLE, Auteur ; Thalia CAVADINI, Auteur ; María de Lourdes ORTEGA, Auteur ; Cristina ARMIJOS, Auteur ; Patricia SOTO, Auteur ; Edouard GENTAZ, Auteur ; Laura CRANE, Auteur Article en page(s) : p.596-613 Langues : Anglais (eng) Index. décimale : PER Périodiques Résumé : There has been limited research on families of autistic children in Ecuador, especially in relation to their experiences of accessing a diagnosis and associated support. In this study, we surveyed 767 families about their diagnostic and post-diagnostic ... En ligne : https://dx.doi.org/10.1177/13623613241281029 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=550 [article] Journeys towards accessing an autism diagnosis and associated support: A survey of families of autistic children in Ecuador [texte imprimé] / Paulina BUFFLE, Auteur ; Thalia CAVADINI, Auteur ; María de Lourdes ORTEGA, Auteur ; Cristina ARMIJOS, Auteur ; Patricia SOTO, Auteur ; Edouard GENTAZ, Auteur ; Laura CRANE, Auteur . - p.596-613. Langues : Anglais (eng) in Autism > 29-3 (March 2025) . - p.596-613 Index. décimale : PER Périodiques Résumé : There has been limited research on families of autistic children in Ecuador, especially in relation to their experiences of accessing a diagnosis and associated support. In this study, we surveyed 767 families about their diagnostic and post-diagnostic ... En ligne : https://dx.doi.org/10.1177/13623613241281029 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=550

Letter to the Editor: A possible threat to data integrity for online qualitative autism research / Elizabeth PELLICANO in Autism, 28-3 (March 2024)  

Public ISBD [article]  inAutism > 28-3 (March 2024) . - p.786-792 Titre : Letter to the Editor: A possible threat to data integrity for online qualitative autism research Type de document : texte imprimé Auteurs : Elizabeth PELLICANO, Auteur ; Dawn ADAMS, Auteur ; Laura CRANE, Auteur ; Calliope HOLLINGUE, Auteur ; Connie ALLEN, Auteur ; Katherine ALMENDINGER, Auteur ; Monique BOTHA, Auteur ; Tori HAAR, Auteur ; Steven K. KAPP, Auteur ; Elizabeth WHEELEY, Auteur Article en page(s) : p.786-792 Langues : Anglais (eng) Mots-clés : fraud  imposter  research participation Index. décimale : PER Périodiques Résumé : Researchers are increasingly relying on online methods for data collection, including for qualitative research involving interviews and focus groups. In this letter, we alert autism researchers to a possible threat to data integrity in such studies: "scammer" participants, who may be posing as autistic people and/or parents of autistic children in research studies, presumably for financial gain. Here, we caution qualitative autism researchers to be vigilant of potential scammer participants in their online studies and invite a broader discussion about the implications of such fraudulent acts. Lay abstract Doing research online, via Zoom, Teams, or live chat, is becoming more and more common. It can help researchers to reach more people, including from different parts of the world. It can also make the research more accessible for participants, especially those with different communication preferences. However, online research can have its downsides too. We have recently been involved in three studies in which we had in-depth discussions with autistic people and/or parents of autistic children about various topics. It turns out, though, that some of these participants were not genuine. Instead, we believe they were "scammer participants": people posing as autistic people or parents of autistic children, possibly to gain money from doing the research. This is a real problem because we need research data that we can trust. In this letter, we encourage autism researchers to be wary of scammer participants in their own research. En ligne : https://dx.doi.org/10.1177/13623613231174543 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=523 [article] Letter to the Editor: A possible threat to data integrity for online qualitative autism research [texte imprimé] / Elizabeth PELLICANO, Auteur ; Dawn ADAMS, Auteur ; Laura CRANE, Auteur ; Calliope HOLLINGUE, Auteur ; Connie ALLEN, Auteur ; Katherine ALMENDINGER, Auteur ; Monique BOTHA, Auteur ; Tori HAAR, Auteur ; Steven K. KAPP, Auteur ; Elizabeth WHEELEY, Auteur . - p.786-792. Langues : Anglais (eng) in Autism > 28-3 (March 2024) . - p.786-792 Mots-clés : fraud  imposter  research participation Index. décimale : PER Périodiques Résumé : Researchers are increasingly relying on online methods for data collection, including for qualitative research involving interviews and focus groups. In this letter, we alert autism researchers to a possible threat to data integrity in such studies: "scammer" participants, who may be posing as autistic people and/or parents of autistic children in research studies, presumably for financial gain. Here, we caution qualitative autism researchers to be vigilant of potential scammer participants in their online studies and invite a broader discussion about the implications of such fraudulent acts. Lay abstract Doing research online, via Zoom, Teams, or live chat, is becoming more and more common. It can help researchers to reach more people, including from different parts of the world. It can also make the research more accessible for participants, especially those with different communication preferences. However, online research can have its downsides too. We have recently been involved in three studies in which we had in-depth discussions with autistic people and/or parents of autistic children about various topics. It turns out, though, that some of these participants were not genuine. Instead, we believe they were "scammer participants": people posing as autistic people or parents of autistic children, possibly to gain money from doing the research. This is a real problem because we need research data that we can trust. In this letter, we encourage autism researchers to be wary of scammer participants in their own research. En ligne : https://dx.doi.org/10.1177/13623613231174543 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=523

"Life is Much More Difficult to Manage During Periods": Autistic Experiences of Menstruation / Robyn STEWARD in Journal of Autism and Developmental Disorders, 48-12 (December 2018)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 48-12 (December 2018) . - p.4287-4292 Titre : "Life is Much More Difficult to Manage During Periods": Autistic Experiences of Menstruation Type de document : texte imprimé Auteurs : Robyn STEWARD, Auteur ; Laura CRANE, Auteur ; Eilish MAIRI ROY, Auteur ; Anna REMINGTON, Auteur ; Elizabeth PELLICANO, Auteur Article en page(s) : p.4287-4292 Langues : Anglais (eng) Mots-clés : Autism  Menarche  Menstruation  Self-regulation  Sensory sensitivities  Women's health Index. décimale : PER Périodiques Résumé : Although menarche and menstruation are perceived to be overwhelmingly negative events for developmentally-disabled women, women's health issues remain under-researched in autism. Here, we conducted a preliminary investigation of the experiences of post-menarcheal autistic (n = 123) and non-autistic (n = 114) respondents to a brief online survey. Although autistic respondents reported many overlapping issues and experiences with non-autistic respondents, they also highlighted distinct-and sometimes-distressing-issues relating to menstruation, especially a cyclical amplification of autistic-related challenges, including sensory differences and difficulties with regulating emotion and behavior, which had a significant, negative impact on their lives. These initial findings call for systematic research on the potential causes, correlates and consequences of menstrual-related problems in autistic individuals-across the spectrum and the lifespan. En ligne : http://dx.doi.org/10.1007/s10803-018-3664-0 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=371 [article] "Life is Much More Difficult to Manage During Periods": Autistic Experiences of Menstruation [texte imprimé] / Robyn STEWARD, Auteur ; Laura CRANE, Auteur ; Eilish MAIRI ROY, Auteur ; Anna REMINGTON, Auteur ; Elizabeth PELLICANO, Auteur . - p.4287-4292. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 48-12 (December 2018) . - p.4287-4292 Mots-clés : Autism  Menarche  Menstruation  Self-regulation  Sensory sensitivities  Women's health Index. décimale : PER Périodiques Résumé : Although menarche and menstruation are perceived to be overwhelmingly negative events for developmentally-disabled women, women's health issues remain under-researched in autism. Here, we conducted a preliminary investigation of the experiences of post-menarcheal autistic (n = 123) and non-autistic (n = 114) respondents to a brief online survey. Although autistic respondents reported many overlapping issues and experiences with non-autistic respondents, they also highlighted distinct-and sometimes-distressing-issues relating to menstruation, especially a cyclical amplification of autistic-related challenges, including sensory differences and difficulties with regulating emotion and behavior, which had a significant, negative impact on their lives. These initial findings call for systematic research on the potential causes, correlates and consequences of menstrual-related problems in autistic individuals-across the spectrum and the lifespan. En ligne : http://dx.doi.org/10.1007/s10803-018-3664-0 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=371

Loneliness in autistic adults: A systematic review / Kana UMAGAMI in Autism, 26-8 (November 2022)  

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Making the future together: Shaping autism research through meaningful participation / Sue FLETCHER-WATSON in Autism, 23-4 (May 2019)  

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Masking, social context and perceived stress in autistic adults: An ecological momentary assessment study / Anke M. SCHEEREN in Autism, 29-12 (December 2025)  

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Mock Juror Perceptions of Child Witnesses on the Autism Spectrum: The Impact of Providing Diagnostic Labels and Information About Autism / Laura CRANE in Journal of Autism and Developmental Disorders, 50-5 (May 2020)  

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Neurodiversity and community-led rights-based movements: Barriers and opportunities for global research partnerships / Yulin CHENG in Autism, 27-3 (April 2023)  

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Parents' views and experiences of talking about autism with their children / Laura CRANE in Autism, 23-8 (November 2019)  

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Participatory autism research: Early career and established researchers' views and experiences / Hannah PICKARD in Autism, 26-1 (January 2022)  

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Patterns of Autobiographical Memory in Adults with Autism Spectrum Disorder / Laura CRANE in Journal of Autism and Developmental Disorders, 42-10 (October 2012)  

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'People should be allowed to do what they like': Autistic adults' views and experiences of stimming / Steven K. KAPP in Autism, 23-7 (October 2019)  

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Perceptions of autistic and non-autistic adults in employment interviews: The role of impression management / Jade Eloise NORRIS in Research in Autism Spectrum Disorders, 112 (April 2024)  

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