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Auteur B. N. HAND |
Documents disponibles écrits par cet auteur (5)
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Ambulatory Care Sensitive Admissions in Individuals With Autism Spectrum Disorder, Intellectual Disability, and Population Controls / B. N. HAND in Autism Research, 12-2 (February 2019)
[article]
Titre : Ambulatory Care Sensitive Admissions in Individuals With Autism Spectrum Disorder, Intellectual Disability, and Population Controls Type de document : Texte imprimé et/ou numérique Auteurs : B. N. HAND, Auteur ; Andrea BOAN, Auteur ; Catherine BRADLEY, Auteur ; J. M. CHARLES, Auteur ; Laura A. CARPENTER, Auteur Article en page(s) : p.295-302 Langues : Anglais (eng) Mots-clés : children epidemiology-descriptive intellectual disability pediatrics Index. décimale : PER Périodiques Résumé : Ambulatory care sensitive (ACS) admissions are those for which effective primary care can prevent the need for emergency department (ED) visits and inpatient hospitalizations, and are an indicator of primary care access. Individuals with autism spectrum disorder (ASD) and/or intellectual disability (ID) may be at higher risk for ACS admissions than individuals in the general population due to difficulty accessing primary care. The objective of this study was to compare the incidence of ACS admissions among four cohorts of individuals aged 2-24 years: ASD without co-occurring ID (ASD-only), ASD with co-occurring ID (ASD + ID), ID without ASD (ID-only), and population controls (PC). Data from ED visits and inpatient hospitalizations occurring between January 1, 2000 and December 31, 2015 were examined to identify ACS admissions. Generalized linear models were used to examine differences between cohorts on the number of ACS ED visits and inpatient hospitalizations. Results revealed the ASD + ID and ID-only cohorts had significantly higher rates of ACS inpatient hospitalizations than the PC cohort. Additionally, the ID-only cohort had higher rates of ACS ED visits than the PC cohort. The ASD-only and PC cohorts did not differ on incidence of ACS admissions. These findings suggest that presence of an ID with or without co-occurring ASD increased the risk for ACS inpatient hospitalizations, and presence of ID-only increased the risk for ACS ED visits. Future work should examine trajectories of ACS admissions over time and consider inclusion of additional characteristics that may elucidate reasons for differences in ACS admissions among these groups. Autism Res 2019, 12: 295-302 (c) 2018 International Society for Autism Research, Wiley Periodicals, Inc. LAY SUMMARY: Preventable hospitalizations are a common indicator of problems with access to quality primary healthcare. Findings of this study suggest that individuals with intellectual disability, with or without autism spectrum disorder, have higher rates of preventable hospitalizations than the general population. Further research is needed to understand how to improve access to primary care and reduce preventable hospitalizations for this vulnerable population. En ligne : http://dx.doi.org/10.1002/aur.2050 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=383
in Autism Research > 12-2 (February 2019) . - p.295-302[article] Ambulatory Care Sensitive Admissions in Individuals With Autism Spectrum Disorder, Intellectual Disability, and Population Controls [Texte imprimé et/ou numérique] / B. N. HAND, Auteur ; Andrea BOAN, Auteur ; Catherine BRADLEY, Auteur ; J. M. CHARLES, Auteur ; Laura A. CARPENTER, Auteur . - p.295-302.
Langues : Anglais (eng)
in Autism Research > 12-2 (February 2019) . - p.295-302
Mots-clés : children epidemiology-descriptive intellectual disability pediatrics Index. décimale : PER Périodiques Résumé : Ambulatory care sensitive (ACS) admissions are those for which effective primary care can prevent the need for emergency department (ED) visits and inpatient hospitalizations, and are an indicator of primary care access. Individuals with autism spectrum disorder (ASD) and/or intellectual disability (ID) may be at higher risk for ACS admissions than individuals in the general population due to difficulty accessing primary care. The objective of this study was to compare the incidence of ACS admissions among four cohorts of individuals aged 2-24 years: ASD without co-occurring ID (ASD-only), ASD with co-occurring ID (ASD + ID), ID without ASD (ID-only), and population controls (PC). Data from ED visits and inpatient hospitalizations occurring between January 1, 2000 and December 31, 2015 were examined to identify ACS admissions. Generalized linear models were used to examine differences between cohorts on the number of ACS ED visits and inpatient hospitalizations. Results revealed the ASD + ID and ID-only cohorts had significantly higher rates of ACS inpatient hospitalizations than the PC cohort. Additionally, the ID-only cohort had higher rates of ACS ED visits than the PC cohort. The ASD-only and PC cohorts did not differ on incidence of ACS admissions. These findings suggest that presence of an ID with or without co-occurring ASD increased the risk for ACS inpatient hospitalizations, and presence of ID-only increased the risk for ACS ED visits. Future work should examine trajectories of ACS admissions over time and consider inclusion of additional characteristics that may elucidate reasons for differences in ACS admissions among these groups. Autism Res 2019, 12: 295-302 (c) 2018 International Society for Autism Research, Wiley Periodicals, Inc. LAY SUMMARY: Preventable hospitalizations are a common indicator of problems with access to quality primary healthcare. Findings of this study suggest that individuals with intellectual disability, with or without autism spectrum disorder, have higher rates of preventable hospitalizations than the general population. Further research is needed to understand how to improve access to primary care and reduce preventable hospitalizations for this vulnerable population. En ligne : http://dx.doi.org/10.1002/aur.2050 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=383 Caregiver Burden Varies by Sensory Subtypes and Sensory Dimension Scores of Children with Autism / B. N. HAND in Journal of Autism and Developmental Disorders, 48-4 (April 2018)
[article]
Titre : Caregiver Burden Varies by Sensory Subtypes and Sensory Dimension Scores of Children with Autism Type de document : Texte imprimé et/ou numérique Auteurs : B. N. HAND, Auteur ; A. E. LANE, Auteur ; P. DE BOECK, Auteur ; D. M. BASSO, Auteur ; D. S. NICHOLS-LARSEN, Auteur ; Amy R. DARRAGH, Auteur Article en page(s) : p.1133-1146 Langues : Anglais (eng) Mots-clés : Autism Caregiver burden Caregiver strain Pediatrics Sensory processing Sensory subtypes Index. décimale : PER Périodiques Résumé : Understanding characteristics associated with burden in caregivers of children with autism spectrum disorder (ASD) is critical due to negative health consequences. We explored the association between child sensory subtype, sensory dimension scores, and caregiver burden. A national survey of caregivers of children with ASD aged 5-13 years was conducted (n = 367). The relationship between variables of interest and indicators of caregiver burden, including health-related quality of life (HRQOL) and caregiver strain, was examined with canonical correlation analyses. Caregiver strain was, but caregiver HRQOL was not, significantly associated with child sensory subtype and sensory dimension scores. Caregiver age, child age, and household income were also associated with caregiver strain. Potential explanatory mechanisms for these findings, derived from published qualitative studies, are discussed. En ligne : http://dx.doi.org/10.1007/s10803-017-3348-1 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=351
in Journal of Autism and Developmental Disorders > 48-4 (April 2018) . - p.1133-1146[article] Caregiver Burden Varies by Sensory Subtypes and Sensory Dimension Scores of Children with Autism [Texte imprimé et/ou numérique] / B. N. HAND, Auteur ; A. E. LANE, Auteur ; P. DE BOECK, Auteur ; D. M. BASSO, Auteur ; D. S. NICHOLS-LARSEN, Auteur ; Amy R. DARRAGH, Auteur . - p.1133-1146.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 48-4 (April 2018) . - p.1133-1146
Mots-clés : Autism Caregiver burden Caregiver strain Pediatrics Sensory processing Sensory subtypes Index. décimale : PER Périodiques Résumé : Understanding characteristics associated with burden in caregivers of children with autism spectrum disorder (ASD) is critical due to negative health consequences. We explored the association between child sensory subtype, sensory dimension scores, and caregiver burden. A national survey of caregivers of children with ASD aged 5-13 years was conducted (n = 367). The relationship between variables of interest and indicators of caregiver burden, including health-related quality of life (HRQOL) and caregiver strain, was examined with canonical correlation analyses. Caregiver strain was, but caregiver HRQOL was not, significantly associated with child sensory subtype and sensory dimension scores. Caregiver age, child age, and household income were also associated with caregiver strain. Potential explanatory mechanisms for these findings, derived from published qualitative studies, are discussed. En ligne : http://dx.doi.org/10.1007/s10803-017-3348-1 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=351 Emergency department utilization and monetary charges in adolescents with autism spectrum disorder, intellectual disability, and a population comparison group / B. N. HAND in Autism Research, 12-7 (July 2019)
[article]
Titre : Emergency department utilization and monetary charges in adolescents with autism spectrum disorder, intellectual disability, and a population comparison group Type de document : Texte imprimé et/ou numérique Auteurs : B. N. HAND, Auteur ; Andrea BOAN, Auteur ; Catherine BRADLEY, Auteur ; J. M. CHARLES, Auteur ; Laura A. CARPENTER, Auteur Année de publication : 2019 Article en page(s) : p.1129-1138 Langues : Anglais (eng) Mots-clés : children epidemiology-descriptive intellectual disability pediatrics Index. décimale : PER Périodiques Résumé : Adolescents with autism spectrum disorder (ASD) and/or intellectual disability (ID) may utilize the emergency department (ED) more frequently than individuals in the general population. This study compared ED utilization and charges during adolescence among four groups of individuals: ASD-only, ASD + ID, ID-only, and a population comparison (PC) group. ED visits occurring during age 12-17 years were examined to identify non, low, and high utilizers. Logistic regression was used to compare groups on the odds of having at least one ED visit during adolescence. Generalized linear models were used to compare groups on number of ED visits and total charges, stratified by low and high ED utilization. Descriptive examination of presenting diagnoses was performed. Individuals with ID, with or without co-occurring ASD, were significantly more likely to have at least one ED visit during adolescence. Among high ED utilizers, the ID-only group had the most frequent ED visits but had significantly lower charges than the ASD-only group. Individuals with ASD-only and ASD + ID differed from the ID-only and PC groups in presenting diagnoses. No differences between groups in number of ED visits or charges were observed among low utilizers. ID, with or without ASD, increased the odds of visiting the ED during adolescence. Adolescents with ID-only had the most frequent ED visits, but individuals with ASD-only had the highest ED charges and tended to be seen for psychiatric concerns. Further research is warranted to better characterize and meet the healthcare needs of individuals with ASD and/or ID during adolescence. Autism Res 2019, 12: 1129-1138. (c) 2019 International Society for Autism Research, Wiley Periodicals, Inc. LAY SUMMARY: Frequent emergency department (ED) visits strain medical resources and are costlier than primary and urgent care. Our findings show that adolescents with intellectual disability (ID) may use the ED frequently for nonurgent conditions. Adolescents with autism spectrum disorder, without ID, use the ED less frequently but incur higher charges. Further research is needed to understand how to meet the unique needs of these populations in primary care to prevent overuse of the ED. En ligne : http://dx.doi.org/10.1002/aur.2124 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=402
in Autism Research > 12-7 (July 2019) . - p.1129-1138[article] Emergency department utilization and monetary charges in adolescents with autism spectrum disorder, intellectual disability, and a population comparison group [Texte imprimé et/ou numérique] / B. N. HAND, Auteur ; Andrea BOAN, Auteur ; Catherine BRADLEY, Auteur ; J. M. CHARLES, Auteur ; Laura A. CARPENTER, Auteur . - 2019 . - p.1129-1138.
Langues : Anglais (eng)
in Autism Research > 12-7 (July 2019) . - p.1129-1138
Mots-clés : children epidemiology-descriptive intellectual disability pediatrics Index. décimale : PER Périodiques Résumé : Adolescents with autism spectrum disorder (ASD) and/or intellectual disability (ID) may utilize the emergency department (ED) more frequently than individuals in the general population. This study compared ED utilization and charges during adolescence among four groups of individuals: ASD-only, ASD + ID, ID-only, and a population comparison (PC) group. ED visits occurring during age 12-17 years were examined to identify non, low, and high utilizers. Logistic regression was used to compare groups on the odds of having at least one ED visit during adolescence. Generalized linear models were used to compare groups on number of ED visits and total charges, stratified by low and high ED utilization. Descriptive examination of presenting diagnoses was performed. Individuals with ID, with or without co-occurring ASD, were significantly more likely to have at least one ED visit during adolescence. Among high ED utilizers, the ID-only group had the most frequent ED visits but had significantly lower charges than the ASD-only group. Individuals with ASD-only and ASD + ID differed from the ID-only and PC groups in presenting diagnoses. No differences between groups in number of ED visits or charges were observed among low utilizers. ID, with or without ASD, increased the odds of visiting the ED during adolescence. Adolescents with ID-only had the most frequent ED visits, but individuals with ASD-only had the highest ED charges and tended to be seen for psychiatric concerns. Further research is warranted to better characterize and meet the healthcare needs of individuals with ASD and/or ID during adolescence. Autism Res 2019, 12: 1129-1138. (c) 2019 International Society for Autism Research, Wiley Periodicals, Inc. LAY SUMMARY: Frequent emergency department (ED) visits strain medical resources and are costlier than primary and urgent care. Our findings show that adolescents with intellectual disability (ID) may use the ED frequently for nonurgent conditions. Adolescents with autism spectrum disorder, without ID, use the ED less frequently but incur higher charges. Further research is needed to understand how to meet the unique needs of these populations in primary care to prevent overuse of the ED. En ligne : http://dx.doi.org/10.1002/aur.2124 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=402 Healthcare service use patterns among autistic adults: A systematic review with narrative synthesis / D. GILMORE in Autism, 26-2 (February 2022)
[article]
Titre : Healthcare service use patterns among autistic adults: A systematic review with narrative synthesis Type de document : Texte imprimé et/ou numérique Auteurs : D. GILMORE, Auteur ; M. KRANTZ, Auteur ; L. WEAVER, Auteur ; B. N. HAND, Auteur Article en page(s) : p.317-331 Langues : Anglais (eng) Mots-clés : autism health services systematic review Index. décimale : PER Périodiques Résumé : Autistic adults often have complex healthcare needs due to factors like having other health conditions, sensory sensitivities, and limited access to healthcare providers who are trained to provide care for them. All these factors may influence the healthcare services that autistic adults use. In this review, we searched six electronic research databases to gather the most recent evidence about how often autistic adults use five important healthcare services (the emergency department, hospitalization, outpatient mental health, preventive services, and primary care) compared to populations of non-autistic adults. A total of 16 articles were ultimately included in this review. Most articles found that autistic adults had equal or higher use of healthcare services than non-autistic adults. Autistic adults frequently used the emergency department and hospital. This may indicate that routine outpatient care in the community is not meeting their needs. Our findings show the importance of improving care at this level for autistic adults to reduce overuse of the emergency department (in this article referred to as ED) and hospital. En ligne : http://dx.doi.org/10.1177/13623613211060906 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=452
in Autism > 26-2 (February 2022) . - p.317-331[article] Healthcare service use patterns among autistic adults: A systematic review with narrative synthesis [Texte imprimé et/ou numérique] / D. GILMORE, Auteur ; M. KRANTZ, Auteur ; L. WEAVER, Auteur ; B. N. HAND, Auteur . - p.317-331.
Langues : Anglais (eng)
in Autism > 26-2 (February 2022) . - p.317-331
Mots-clés : autism health services systematic review Index. décimale : PER Périodiques Résumé : Autistic adults often have complex healthcare needs due to factors like having other health conditions, sensory sensitivities, and limited access to healthcare providers who are trained to provide care for them. All these factors may influence the healthcare services that autistic adults use. In this review, we searched six electronic research databases to gather the most recent evidence about how often autistic adults use five important healthcare services (the emergency department, hospitalization, outpatient mental health, preventive services, and primary care) compared to populations of non-autistic adults. A total of 16 articles were ultimately included in this review. Most articles found that autistic adults had equal or higher use of healthcare services than non-autistic adults. Autistic adults frequently used the emergency department and hospital. This may indicate that routine outpatient care in the community is not meeting their needs. Our findings show the importance of improving care at this level for autistic adults to reduce overuse of the emergency department (in this article referred to as ED) and hospital. En ligne : http://dx.doi.org/10.1177/13623613211060906 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=452 Short report: Patterns of US federal autism research funding during 2017-2019 / L. HARRIS in Autism, 25-7 (October 2021)
[article]
Titre : Short report: Patterns of US federal autism research funding during 2017-2019 Type de document : Texte imprimé et/ou numérique Auteurs : L. HARRIS, Auteur ; D. GILMORE, Auteur ; A. LONGO, Auteur ; B. N. HAND, Auteur Article en page(s) : p.2135-2139 Langues : Anglais (eng) Mots-clés : Autism Spectrum Disorder/therapy Autistic Disorder/therapy Financial Management Humans United States autism funding research priorities Index. décimale : PER Périodiques Résumé : In 2017, an advisory board consisting of autism researchers and community members recommended that funders of autism research prioritize research projects on: (1) treatments/interventions, (2) evidence-based services, and (3) lifespan issues. To describe funding in these areas since this recommendation was made, we searched the databases of the three largest federal funders of autism research in the United States. We found that the largest portion of federal funding during 2017-2019 was awarded to research on the biology of autism (32.59%) and treatments and interventions for autism (22.87%). Less funds were awarded to research areas that are high funding priorities by the Interagency Autism Coordinating Committee budget recommendation including services (5.02%) and lifespan issues (2.51%). Our findings emphasize that autism research funding is not consistent with the Interagency Autism Coordinating Committee budget recommendation to increase funding particularly to services and lifespan issues. We recommend that funding patterns should shift to better align with these priorities so that autism research may better serve the needs of the autism community. En ligne : http://dx.doi.org/10.1177/13623613211003430 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=451
in Autism > 25-7 (October 2021) . - p.2135-2139[article] Short report: Patterns of US federal autism research funding during 2017-2019 [Texte imprimé et/ou numérique] / L. HARRIS, Auteur ; D. GILMORE, Auteur ; A. LONGO, Auteur ; B. N. HAND, Auteur . - p.2135-2139.
Langues : Anglais (eng)
in Autism > 25-7 (October 2021) . - p.2135-2139
Mots-clés : Autism Spectrum Disorder/therapy Autistic Disorder/therapy Financial Management Humans United States autism funding research priorities Index. décimale : PER Périodiques Résumé : In 2017, an advisory board consisting of autism researchers and community members recommended that funders of autism research prioritize research projects on: (1) treatments/interventions, (2) evidence-based services, and (3) lifespan issues. To describe funding in these areas since this recommendation was made, we searched the databases of the three largest federal funders of autism research in the United States. We found that the largest portion of federal funding during 2017-2019 was awarded to research on the biology of autism (32.59%) and treatments and interventions for autism (22.87%). Less funds were awarded to research areas that are high funding priorities by the Interagency Autism Coordinating Committee budget recommendation including services (5.02%) and lifespan issues (2.51%). Our findings emphasize that autism research funding is not consistent with the Interagency Autism Coordinating Committee budget recommendation to increase funding particularly to services and lifespan issues. We recommend that funding patterns should shift to better align with these priorities so that autism research may better serve the needs of the autism community. En ligne : http://dx.doi.org/10.1177/13623613211003430 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=451