Centre d'Information et de documentation du CRA Rhône-Alpes
CRA
Informations pratiques
-
Adresse
Centre d'information et de documentation
du CRA Rhône-Alpes
Centre Hospitalier le Vinatier
bât 211
95, Bd Pinel
69678 Bron CedexHoraires
Lundi au Vendredi
9h00-12h00 13h30-16h00Contact
Tél: +33(0)4 37 91 54 65
Mail
Fax: +33(0)4 37 91 54 37
-
Détail de l'auteur
Auteur Kristen T. MACKENZIE |
Documents disponibles écrits par cet auteur (3)
Faire une suggestion Affiner la recherche
Interventions to Improve Outcomes for Parents of Children with Autism Spectrum Disorder: A Meta-Analysis / Kristen T. MACKENZIE in Journal of Autism and Developmental Disorders, 52-7 (July 2022)
[article]
Titre : Interventions to Improve Outcomes for Parents of Children with Autism Spectrum Disorder: A Meta-Analysis Type de document : Texte imprimé et/ou numérique Auteurs : Kristen T. MACKENZIE, Auteur ; Shaun M. EACK, Auteur Article en page(s) : p.2859-2883 Langues : Anglais (eng) Mots-clés : Autism Spectrum Disorder/therapy Child Humans Mental Health Parenting/psychology Parents/psychology Meta-analysis Parent interventions Parent outcomes Parent training Index. décimale : PER Périodiques Résumé : This meta-analysis examines the impact of parent interventions on outcomes for parents of children with ASD. A systematic review of the literature produced 37 studies that met inclusion criteria. Random-effects models revealed small but significant impacts of intervention on parental outcomes, primarily in parenting confidence and mental health. No improvements were observed in caregiving burden, family adjustment, physical health, or stress. Significant heterogeneity was observed; however, no moderation effects were detected for intervention or sample characteristics. These findings suggest parent interventions improve parenting confidence and, to a lesser degree, mental health. More work is needed to develop interventions that address a wider range of outcomes for parents of children with ASD. Limitations and implications for future research are discussed. En ligne : http://dx.doi.org/10.1007/s10803-021-05164-9 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=477
in Journal of Autism and Developmental Disorders > 52-7 (July 2022) . - p.2859-2883[article] Interventions to Improve Outcomes for Parents of Children with Autism Spectrum Disorder: A Meta-Analysis [Texte imprimé et/ou numérique] / Kristen T. MACKENZIE, Auteur ; Shaun M. EACK, Auteur . - p.2859-2883.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 52-7 (July 2022) . - p.2859-2883
Mots-clés : Autism Spectrum Disorder/therapy Child Humans Mental Health Parenting/psychology Parents/psychology Meta-analysis Parent interventions Parent outcomes Parent training Index. décimale : PER Périodiques Résumé : This meta-analysis examines the impact of parent interventions on outcomes for parents of children with ASD. A systematic review of the literature produced 37 studies that met inclusion criteria. Random-effects models revealed small but significant impacts of intervention on parental outcomes, primarily in parenting confidence and mental health. No improvements were observed in caregiving burden, family adjustment, physical health, or stress. Significant heterogeneity was observed; however, no moderation effects were detected for intervention or sample characteristics. These findings suggest parent interventions improve parenting confidence and, to a lesser degree, mental health. More work is needed to develop interventions that address a wider range of outcomes for parents of children with ASD. Limitations and implications for future research are discussed. En ligne : http://dx.doi.org/10.1007/s10803-021-05164-9 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=477 Obtaining a First Diagnosis of Autism Spectrum Disorder: Descriptions of the Diagnostic Process and Correlates of Parent Satisfaction from a National Sample / Kristen T. MACKENZIE in Journal of Autism and Developmental Disorders, 53-10 (October 2023)
[article]
Titre : Obtaining a First Diagnosis of Autism Spectrum Disorder: Descriptions of the Diagnostic Process and Correlates of Parent Satisfaction from a National Sample Type de document : Texte imprimé et/ou numérique Auteurs : Kristen T. MACKENZIE, Auteur ; Carla A. MAZEFSKY, Auteur ; Shaun M. EACK, Auteur Article en page(s) : p.3799-3812 Langues : Anglais (eng) Index. décimale : PER Périodiques Résumé : Obtaining an autism spectrum disorder (ASD) diagnosis is often challenging for parents. The purpose of this study was to better understand this process and examine how elements of the process may influence parent satisfaction. A total of 406 parents of autistic children participated. Participants were administered a survey covering the ASD diagnostic process. Parents had developmental concerns early but experienced long wait times and usually attended many appointments. Mean diagnostic age was 3.26 years and overall delay was 1.20 years. Stress and being told there was "no problem" were significantly associated with parental satisfaction with the process. Findings provide insight into challenges experienced by families of autistic children and can help pinpoint areas where the diagnostic process may be improved. En ligne : https://doi.org/10.1007/s10803-022-05673-1 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=511
in Journal of Autism and Developmental Disorders > 53-10 (October 2023) . - p.3799-3812[article] Obtaining a First Diagnosis of Autism Spectrum Disorder: Descriptions of the Diagnostic Process and Correlates of Parent Satisfaction from a National Sample [Texte imprimé et/ou numérique] / Kristen T. MACKENZIE, Auteur ; Carla A. MAZEFSKY, Auteur ; Shaun M. EACK, Auteur . - p.3799-3812.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 53-10 (October 2023) . - p.3799-3812
Index. décimale : PER Périodiques Résumé : Obtaining an autism spectrum disorder (ASD) diagnosis is often challenging for parents. The purpose of this study was to better understand this process and examine how elements of the process may influence parent satisfaction. A total of 406 parents of autistic children participated. Participants were administered a survey covering the ASD diagnostic process. Parents had developmental concerns early but experienced long wait times and usually attended many appointments. Mean diagnostic age was 3.26 years and overall delay was 1.20 years. Stress and being told there was "no problem" were significantly associated with parental satisfaction with the process. Findings provide insight into challenges experienced by families of autistic children and can help pinpoint areas where the diagnostic process may be improved. En ligne : https://doi.org/10.1007/s10803-022-05673-1 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=511 Stakeholder informed development of the Emotion Awareness and Skills Enhancement team-based program (EASE-Teams) / Kelly B. BECK in Autism, 26-3 (April 2022)
[article]
Titre : Stakeholder informed development of the Emotion Awareness and Skills Enhancement team-based program (EASE-Teams) Type de document : Texte imprimé et/ou numérique Auteurs : Kelly B. BECK, Auteur ; Jessie B. NORTHRUP, Auteur ; Kaitlyn E. BREITENFELDT, Auteur ; Shannon PORTON, Auteur ; Taylor N. DAY, Auteur ; Kristen T. MACKENZIE, Auteur ; Caitlin M. CONNER, Auteur ; Carla A. MAZEFSKY, Auteur Article en page(s) : p.586-600 Langues : Anglais (eng) Mots-clés : Adolescent Adult Aged Autism Spectrum Disorder/psychology/therapy Autistic Disorder/psychology/therapy Caregivers Child Emotions Humans Intellectual Disability/therapy Young Adult autism spectrum disorders emotion regulation family functioning and support interventions?psychosocial/behavioral mindfulness Index. décimale : PER Périodiques Résumé : Emotion dysregulation (ED) impacts mental health symptoms and well-being in autistic individuals. In prior work, we developed the Emotion Awareness and Skills Enhancement (EASE) to improve emotion dysregulation with autistic adolescents (aged 12-17). The study team partnered with autistic individuals, their caregivers, and expert clinicians to adapt EASE for autistic adolescents and adults with co-occurring intellectual disability and autistic elementary-aged children, groups that often benefit from caregiver support in treatment. In three phases, we (1) gathered caregiver and expert feedback to adapt the original EASE program for autistic adults with intellectual disability, (2) revised the treatment after using it with six autistic adults with intellectual disability, and (3) tested the newly developed caregiver-client team-based treatment, called EASE-Teams, in a small group of 10 autistic individuals with and without intellectual disability (aged 7-25). Families found EASE-Teams to be acceptable and helpful. We found improvements in emotion dysregulation and mental health symptoms for autistic participants. Caregivers reported less stress from their child's dysregulation after participating. These results show that EASE-Teams can be appropriate for different developmental and cognitive needs. Future studies will need to test the benefits of the treatment in community clinics. En ligne : https://dx.doi.org/10.1177/13623613211061936 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=473
in Autism > 26-3 (April 2022) . - p.586-600[article] Stakeholder informed development of the Emotion Awareness and Skills Enhancement team-based program (EASE-Teams) [Texte imprimé et/ou numérique] / Kelly B. BECK, Auteur ; Jessie B. NORTHRUP, Auteur ; Kaitlyn E. BREITENFELDT, Auteur ; Shannon PORTON, Auteur ; Taylor N. DAY, Auteur ; Kristen T. MACKENZIE, Auteur ; Caitlin M. CONNER, Auteur ; Carla A. MAZEFSKY, Auteur . - p.586-600.
Langues : Anglais (eng)
in Autism > 26-3 (April 2022) . - p.586-600
Mots-clés : Adolescent Adult Aged Autism Spectrum Disorder/psychology/therapy Autistic Disorder/psychology/therapy Caregivers Child Emotions Humans Intellectual Disability/therapy Young Adult autism spectrum disorders emotion regulation family functioning and support interventions?psychosocial/behavioral mindfulness Index. décimale : PER Périodiques Résumé : Emotion dysregulation (ED) impacts mental health symptoms and well-being in autistic individuals. In prior work, we developed the Emotion Awareness and Skills Enhancement (EASE) to improve emotion dysregulation with autistic adolescents (aged 12-17). The study team partnered with autistic individuals, their caregivers, and expert clinicians to adapt EASE for autistic adolescents and adults with co-occurring intellectual disability and autistic elementary-aged children, groups that often benefit from caregiver support in treatment. In three phases, we (1) gathered caregiver and expert feedback to adapt the original EASE program for autistic adults with intellectual disability, (2) revised the treatment after using it with six autistic adults with intellectual disability, and (3) tested the newly developed caregiver-client team-based treatment, called EASE-Teams, in a small group of 10 autistic individuals with and without intellectual disability (aged 7-25). Families found EASE-Teams to be acceptable and helpful. We found improvements in emotion dysregulation and mental health symptoms for autistic participants. Caregivers reported less stress from their child's dysregulation after participating. These results show that EASE-Teams can be appropriate for different developmental and cognitive needs. Future studies will need to test the benefits of the treatment in community clinics. En ligne : https://dx.doi.org/10.1177/13623613211061936 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=473