Dépouillements

The 'double empathy problem': Ten years on / Damian MILTON in Autism, 26-8 (November 2022)  

Public ISBD [article]  inAutism > 26-8 (November 2022) . - p.1901-1903 Titre : The 'double empathy problem': Ten years on Type de document : Texte imprimé et/ou numérique Auteurs : Damian MILTON, Auteur ; Emine GURBUZ, Auteur ; Betriz LOPEZ, Auteur Article en page(s) : p.1901-1903 Langues : Anglais (eng) Mots-clés : Humans  Empathy  Autism Spectrum Disorder Index. décimale : PER Périodiques En ligne : http://dx.doi.org/10.1177/13623613221129123 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=488 [article] The 'double empathy problem': Ten years on [Texte imprimé et/ou numérique] / Damian MILTON, Auteur ; Emine GURBUZ, Auteur ; Betriz LOPEZ, Auteur . - p.1901-1903. Langues : Anglais (eng) in Autism > 26-8 (November 2022) . - p.1901-1903 Mots-clés : Humans  Empathy  Autism Spectrum Disorder Index. décimale : PER Périodiques En ligne : http://dx.doi.org/10.1177/13623613221129123 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=488

Considerations of the built environment for autistic individuals: A review of the literature / Melissa Heather BLACK in Autism, 26-8 (November 2022)  

Public ISBD [article]  inAutism > 26-8 (November 2022) . - p.1904-1915 Titre : Considerations of the built environment for autistic individuals: A review of the literature Type de document : Texte imprimé et/ou numérique Auteurs : Melissa Heather BLACK, Auteur ; Sarah MCGARRY, Auteur ; Lynn CHURCHILL, Auteur ; Emily D'ARCY, Auteur ; Julia DALGLEISH, Auteur ; Isabelle NASH, Auteur ; Alisala JONES, Auteur ; Tin Yan TSE, Auteur ; Jane GIBSON, Auteur ; Sven BÖLTE, Auteur Article en page(s) : p.1904-1915 Langues : Anglais (eng) Mots-clés : Humans  Autistic Disorder  Autism Spectrum Disorder  Built Environment  Noise  architecture  design  interior  sensory  space Index. décimale : PER Périodiques Résumé : Factors related to the interiors of buildings, including the layout of rooms, colours, smells, noises, temperature, ventilation, colour and clutter, among other things, can change the way we interact with our environment and the people around us. Autistic individuals can have differences in processing sensory information and may find aspects of the built environment (BE) over-whelming and difficult to navigate. We reviewed the existing literature exploring the BE and autism. This study found that it is possible to make changes to the BE to create more inclusive and friendly environments for everyone, including autistic individuals. Findings from this study provide clear recommendations that can be used by interior designers, architects, builders, and clinical practitioners to make a positive difference. Key recommendations include using simple spatial layouts, compartmentalising and zoning spaces into specific activity sections and providing retreat spaces. The thoughtful placement of windows and blinds and the installation of dimmable lights, for example, will allow users to manage or reduce sensory over-stimulation caused by lights. Similarly, we recommend creating soundproofing and sound absorbent materials to reduce background noise and sound levels. We also recommend using neutral or simple colour palettes and restrained use of patterns. Finally, and most importantly, the BE needs to be flexible and adaptable to meet the unique needs of each person. This study provides a starting point for design guidelines and recommendations towards making a difference to the everyday experiences of the interiors of buildings. En ligne : http://dx.doi.org/10.1177/13623613221102753 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=488 [article] Considerations of the built environment for autistic individuals: A review of the literature [Texte imprimé et/ou numérique] / Melissa Heather BLACK, Auteur ; Sarah MCGARRY, Auteur ; Lynn CHURCHILL, Auteur ; Emily D'ARCY, Auteur ; Julia DALGLEISH, Auteur ; Isabelle NASH, Auteur ; Alisala JONES, Auteur ; Tin Yan TSE, Auteur ; Jane GIBSON, Auteur ; Sven BÖLTE, Auteur . - p.1904-1915. Langues : Anglais (eng) in Autism > 26-8 (November 2022) . - p.1904-1915 Mots-clés : Humans  Autistic Disorder  Autism Spectrum Disorder  Built Environment  Noise  architecture  design  interior  sensory  space Index. décimale : PER Périodiques Résumé : Factors related to the interiors of buildings, including the layout of rooms, colours, smells, noises, temperature, ventilation, colour and clutter, among other things, can change the way we interact with our environment and the people around us. Autistic individuals can have differences in processing sensory information and may find aspects of the built environment (BE) over-whelming and difficult to navigate. We reviewed the existing literature exploring the BE and autism. This study found that it is possible to make changes to the BE to create more inclusive and friendly environments for everyone, including autistic individuals. Findings from this study provide clear recommendations that can be used by interior designers, architects, builders, and clinical practitioners to make a positive difference. Key recommendations include using simple spatial layouts, compartmentalising and zoning spaces into specific activity sections and providing retreat spaces. The thoughtful placement of windows and blinds and the installation of dimmable lights, for example, will allow users to manage or reduce sensory over-stimulation caused by lights. Similarly, we recommend creating soundproofing and sound absorbent materials to reduce background noise and sound levels. We also recommend using neutral or simple colour palettes and restrained use of patterns. Finally, and most importantly, the BE needs to be flexible and adaptable to meet the unique needs of each person. This study provides a starting point for design guidelines and recommendations towards making a difference to the everyday experiences of the interiors of buildings. En ligne : http://dx.doi.org/10.1177/13623613221102753 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=488

Leisure, employment, community participation and quality of life in caregivers of autistic children: A scoping review / Gemma DAVY in Autism, 26-8 (November 2022)  

Public ISBD [article]  inAutism > 26-8 (November 2022) . - p.1916-1930 Titre : Leisure, employment, community participation and quality of life in caregivers of autistic children: A scoping review Type de document : Texte imprimé et/ou numérique Auteurs : Gemma DAVY, Auteur ; Katy L. UNWIN, Auteur ; Josephine BARBARO, Auteur ; Cheryl DISSANAYAKE, Auteur Article en page(s) : p.1916-1930 Langues : Anglais (eng) Mots-clés : Child  Humans  Caregivers  Quality of Life  Autistic Disorder  Autism Spectrum Disorder  Leisure Activities  Employment  Community Participation  Autism spectrum disorder  occupational balance  participation Index. décimale : PER Périodiques Résumé : We searched a wide range of academic journals for published information on the participation levels of caregivers of autistic children in activities relating to leisure, social, community and employment contexts, and the impact that participation may have on caregiver quality of life. Overall, we found that the impact of parenting an autistic child is broad with caregivers often prioritising their child's needs over their own, particularly in occupational participation, which impacts their quality of life. Findings also highlighted a need for further research to investigate the experience of caregivers, and the relationship between participation and quality of life in caregivers of autistic children, as the results can inform the development of better supports for them. En ligne : http://dx.doi.org/10.1177/13623613221105836 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=488 [article] Leisure, employment, community participation and quality of life in caregivers of autistic children: A scoping review [Texte imprimé et/ou numérique] / Gemma DAVY, Auteur ; Katy L. UNWIN, Auteur ; Josephine BARBARO, Auteur ; Cheryl DISSANAYAKE, Auteur . - p.1916-1930. Langues : Anglais (eng) in Autism > 26-8 (November 2022) . - p.1916-1930 Mots-clés : Child  Humans  Caregivers  Quality of Life  Autistic Disorder  Autism Spectrum Disorder  Leisure Activities  Employment  Community Participation  Autism spectrum disorder  occupational balance  participation Index. décimale : PER Périodiques Résumé : We searched a wide range of academic journals for published information on the participation levels of caregivers of autistic children in activities relating to leisure, social, community and employment contexts, and the impact that participation may have on caregiver quality of life. Overall, we found that the impact of parenting an autistic child is broad with caregivers often prioritising their child's needs over their own, particularly in occupational participation, which impacts their quality of life. Findings also highlighted a need for further research to investigate the experience of caregivers, and the relationship between participation and quality of life in caregivers of autistic children, as the results can inform the development of better supports for them. En ligne : http://dx.doi.org/10.1177/13623613221105836 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=488

Autism presentation in female and Black populations: Examining the roles of identity, theory, and systemic inequalities / Maire Claire DIEMER in Autism, 26-8 (November 2022)  

Public ISBD [article]  inAutism > 26-8 (November 2022) . - p.1931-1946 Titre : Autism presentation in female and Black populations: Examining the roles of identity, theory, and systemic inequalities Type de document : Texte imprimé et/ou numérique Auteurs : Maire Claire DIEMER, Auteur ; Emily D. GERSTEIN, Auteur ; April REGESTER, Auteur Article en page(s) : p.1931-1946 Langues : Anglais (eng) Mots-clés : Child  Humans  United States  Female  Child, Preschool  Autistic Disorder/diagnosis  Autism Spectrum Disorder/epidemiology  Intellectual Disability  Ethnicity  Racial Groups  African American  autism spectrum disorders  diagnosis  diversity  gender  health disparity  intellectual disability  intersectional  race  systemic inequality Index. décimale : PER Périodiques Résumé : Although the prevalence of autism has been rising in recent years, disparities in diagnosis still remain. Female and Black populations in the United States are diagnosed later, are more likely to have an intellectual disability, and are excluded from research as well as services designed for autistic individuals. Autistic Black girls are effectively invisible in the current scientific literature. Intersectional theory, which looks at a person as a whole, examines models that are inclusive toward diverse gender, ability, and racial/ethnic backgrounds. This theory may be a useful approach to clinical and research work with autism so that practitioners may be most effective for the whole population of autistic people. The authors recommend research focusing on inclusion of autistic populations with intellectual disability and research studies that include evaluations as part of the procedure. Clinically, the authors recommend a focus on screening all young children for autism and improving provider knowledge in working with diverse autistic populations. En ligne : http://dx.doi.org/10.1177/13623613221113501 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=488 [article] Autism presentation in female and Black populations: Examining the roles of identity, theory, and systemic inequalities [Texte imprimé et/ou numérique] / Maire Claire DIEMER, Auteur ; Emily D. GERSTEIN, Auteur ; April REGESTER, Auteur . - p.1931-1946. Langues : Anglais (eng) in Autism > 26-8 (November 2022) . - p.1931-1946 Mots-clés : Child  Humans  United States  Female  Child, Preschool  Autistic Disorder/diagnosis  Autism Spectrum Disorder/epidemiology  Intellectual Disability  Ethnicity  Racial Groups  African American  autism spectrum disorders  diagnosis  diversity  gender  health disparity  intellectual disability  intersectional  race  systemic inequality Index. décimale : PER Périodiques Résumé : Although the prevalence of autism has been rising in recent years, disparities in diagnosis still remain. Female and Black populations in the United States are diagnosed later, are more likely to have an intellectual disability, and are excluded from research as well as services designed for autistic individuals. Autistic Black girls are effectively invisible in the current scientific literature. Intersectional theory, which looks at a person as a whole, examines models that are inclusive toward diverse gender, ability, and racial/ethnic backgrounds. This theory may be a useful approach to clinical and research work with autism so that practitioners may be most effective for the whole population of autistic people. The authors recommend research focusing on inclusion of autistic populations with intellectual disability and research studies that include evaluations as part of the procedure. Clinically, the authors recommend a focus on screening all young children for autism and improving provider knowledge in working with diverse autistic populations. En ligne : http://dx.doi.org/10.1177/13623613221113501 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=488

A prospective study of associations between early fearfulness and perceptual sensitivity and later restricted and repetitive behaviours in infants with typical and elevated likelihood of autism / Nisha NARVEKAR in Autism, 26-8 (November 2022)  

Public ISBD [article]  inAutism > 26-8 (November 2022) . - p.1947-1958 Titre : A prospective study of associations between early fearfulness and perceptual sensitivity and later restricted and repetitive behaviours in infants with typical and elevated likelihood of autism Type de document : Texte imprimé et/ou numérique Auteurs : Nisha NARVEKAR, Auteur ; Virginia CARTER LENO, Auteur ; Greg PASCO, Auteur ; Mark H. JOHNSON, Auteur ; Emily J. H. JONES, Auteur ; Tony CHARMAN, Auteur Article en page(s) : p.1947-1958 Langues : Anglais (eng) Mots-clés : Child  Infant  Humans  Autistic Disorder  Stereotyped Behavior  Prospective Studies  Autism Spectrum Disorder  Quality of Life  Fear  autism  early development pathways  elevated likelihood  restricted and repetitive behaviours  temperament  to the research, authorship and/or publication of this article: T.C. has served  as a paid consultant to F. Hoffmann-La Roche Ltd. and Servier, and has received  royalties from Sage Publications and Guilford Publications. G.P. is a licensed  ADOS-2 trainer and receives income from delivering ADOS-2 training. Index. décimale : PER Périodiques Résumé : Restricted interests and repetitive behaviours are central to the diagnosis of autism and can have profound effects on daily activities and quality of life. These challenges are also linked to other co-occurring conditions such as anxiety and sensory sensitivities. Here, we looked at whether early emerging signs of anxiety and sensory problems appear before symptoms of autism by studying infants with a family history of autism, as these infants are more likely to develop autism themselves. Studying infant siblings provides an opportunity for researchers to focus on early developmental markers of autism as these infants can be followed from birth. This study found that early infant signs of anxiety (e.g. fear/shyness) predicted later perceptual sensitivity, and those infants who scored higher on fear/shyness and sensitivity were more likely to experience more persistent repetitive behaviours, but also social and communication difficulties in toddlerhood. Early signs of anxiety and perceptual sensitivity may thus relate to both later social difficulties and repetitive behaviours. These findings support the importance of further research exploring the causal links between these domains in relation to autism, resulting in increased understanding of children who go onto develop autism in the future and guiding early interventions and supports. En ligne : http://dx.doi.org/10.1177/13623613211068932 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=488 [article] A prospective study of associations between early fearfulness and perceptual sensitivity and later restricted and repetitive behaviours in infants with typical and elevated likelihood of autism [Texte imprimé et/ou numérique] / Nisha NARVEKAR, Auteur ; Virginia CARTER LENO, Auteur ; Greg PASCO, Auteur ; Mark H. JOHNSON, Auteur ; Emily J. H. JONES, Auteur ; Tony CHARMAN, Auteur . - p.1947-1958. Langues : Anglais (eng) in Autism > 26-8 (November 2022) . - p.1947-1958 Mots-clés : Child  Infant  Humans  Autistic Disorder  Stereotyped Behavior  Prospective Studies  Autism Spectrum Disorder  Quality of Life  Fear  autism  early development pathways  elevated likelihood  restricted and repetitive behaviours  temperament  to the research, authorship and/or publication of this article: T.C. has served  as a paid consultant to F. Hoffmann-La Roche Ltd. and Servier, and has received  royalties from Sage Publications and Guilford Publications. G.P. is a licensed  ADOS-2 trainer and receives income from delivering ADOS-2 training. Index. décimale : PER Périodiques Résumé : Restricted interests and repetitive behaviours are central to the diagnosis of autism and can have profound effects on daily activities and quality of life. These challenges are also linked to other co-occurring conditions such as anxiety and sensory sensitivities. Here, we looked at whether early emerging signs of anxiety and sensory problems appear before symptoms of autism by studying infants with a family history of autism, as these infants are more likely to develop autism themselves. Studying infant siblings provides an opportunity for researchers to focus on early developmental markers of autism as these infants can be followed from birth. This study found that early infant signs of anxiety (e.g. fear/shyness) predicted later perceptual sensitivity, and those infants who scored higher on fear/shyness and sensitivity were more likely to experience more persistent repetitive behaviours, but also social and communication difficulties in toddlerhood. Early signs of anxiety and perceptual sensitivity may thus relate to both later social difficulties and repetitive behaviours. These findings support the importance of further research exploring the causal links between these domains in relation to autism, resulting in increased understanding of children who go onto develop autism in the future and guiding early interventions and supports. En ligne : http://dx.doi.org/10.1177/13623613211068932 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=488

A survey of autistic adults, relatives and clinical teams in the United Kingdom: And Delphi process consensus statements on optimal autism diagnostic assessment for adults / Sarah WIGHAM in Autism, 26-8 (November 2022)  

Public ISBD [article]  inAutism > 26-8 (November 2022) . - p.1959-1972 Titre : A survey of autistic adults, relatives and clinical teams in the United Kingdom: And Delphi process consensus statements on optimal autism diagnostic assessment for adults Type de document : Texte imprimé et/ou numérique Auteurs : Sarah WIGHAM, Auteur ; Barry INGHAM, Auteur ; Ann LE COUTEUR, Auteur ; Colin WILSON, Auteur ; Ian ENSUM, Auteur ; Jeremy R. PARR, Auteur Article en page(s) : p.1959-1972 Langues : Anglais (eng) Mots-clés : Adult  Humans  Autistic Disorder/diagnosis/psychology  Autism Spectrum Disorder/diagnosis/psychology  Surveys and Questionnaires  United Kingdom  NICE guidance  adults  assessment pathway  autism spectrum disorders  diagnosis  stakeholders  research, authorship, and/or publication of this article. Index. décimale : PER Périodiques Résumé : Living with undiagnosed autism can be distressing and may affect mental health. A diagnosis of autism can help self-awareness and self-understanding. However, it can be difficult for adults to access an autism assessment. Clinicians also sometimes find it hard to identify autism in adults. This may mean an autism diagnosis is delayed or missed. In this study, we asked autistic adults, relatives and clinicians how to improve this. The study was in two stages. In the first stage (stage 1), 343 autistic adults and 45 relatives completed a survey. In the survey, we asked questions about people's experiences of UK autism assessment services for adults. Thirty-five clinicians completed a similar survey. Clinicians reported that some autism assessment teams lacked key professionals, for example, psychologists and occupational therapists. We used the information from the three separate surveys to create 13 statements describing best autism assessment services for adults. In stage 2, we asked clinicians for their views on the 13 statements. Clinicians agreed with 11 of the statements. Some autistic adults, relatives and clinicians were positive about autism assessment services, and many also described areas that could be improved. The study findings can be used to improve UK adult autism assessment services and may be helpful for service developments worldwide. En ligne : http://dx.doi.org/10.1177/13623613211073020 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=488 [article] A survey of autistic adults, relatives and clinical teams in the United Kingdom: And Delphi process consensus statements on optimal autism diagnostic assessment for adults [Texte imprimé et/ou numérique] / Sarah WIGHAM, Auteur ; Barry INGHAM, Auteur ; Ann LE COUTEUR, Auteur ; Colin WILSON, Auteur ; Ian ENSUM, Auteur ; Jeremy R. PARR, Auteur . - p.1959-1972. Langues : Anglais (eng) in Autism > 26-8 (November 2022) . - p.1959-1972 Mots-clés : Adult  Humans  Autistic Disorder/diagnosis/psychology  Autism Spectrum Disorder/diagnosis/psychology  Surveys and Questionnaires  United Kingdom  NICE guidance  adults  assessment pathway  autism spectrum disorders  diagnosis  stakeholders  research, authorship, and/or publication of this article. Index. décimale : PER Périodiques Résumé : Living with undiagnosed autism can be distressing and may affect mental health. A diagnosis of autism can help self-awareness and self-understanding. However, it can be difficult for adults to access an autism assessment. Clinicians also sometimes find it hard to identify autism in adults. This may mean an autism diagnosis is delayed or missed. In this study, we asked autistic adults, relatives and clinicians how to improve this. The study was in two stages. In the first stage (stage 1), 343 autistic adults and 45 relatives completed a survey. In the survey, we asked questions about people's experiences of UK autism assessment services for adults. Thirty-five clinicians completed a similar survey. Clinicians reported that some autism assessment teams lacked key professionals, for example, psychologists and occupational therapists. We used the information from the three separate surveys to create 13 statements describing best autism assessment services for adults. In stage 2, we asked clinicians for their views on the 13 statements. Clinicians agreed with 11 of the statements. Some autistic adults, relatives and clinicians were positive about autism assessment services, and many also described areas that could be improved. The study findings can be used to improve UK adult autism assessment services and may be helpful for service developments worldwide. En ligne : http://dx.doi.org/10.1177/13623613211073020 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=488

A virtuous circle: Stakeholder perspectives of a short-term intensive parent training programme delivered within the context of routine services for autism in China / Zuyi FANG in Autism, 26-8 (November 2022)  

Public ISBD [article]  inAutism > 26-8 (November 2022) . - p.1973-1986 Titre : A virtuous circle: Stakeholder perspectives of a short-term intensive parent training programme delivered within the context of routine services for autism in China Type de document : Texte imprimé et/ou numérique Auteurs : Zuyi FANG, Auteur ; Jamie M. LACHMAN, Auteur ; Cheng ZHANG, Auteur ; Dongping QIAO, Auteur ; Jane BARLOW, Auteur Article en page(s) : p.1973-1986 Langues : Anglais (eng) Mots-clés : Child  Humans  Autistic Disorder/therapy  Autism Spectrum Disorder/therapy  Family  Caregivers  Parents  autism spectrum disorders  family functioning and support  interventions - psychosocial/behavioural  pre-school children  qualitative research  research, authorship and/or publication of this article. Index. décimale : PER Périodiques Résumé : While much knowledge about autism derives from high-income countries, most people diagnosed with autism reside in low- and middle-income countries, where little is documented in terms of local interventions. This is also true for parent training programmes for families of autistic children. An evaluation was conducted to understand the effects of a short-term intensive parent training programme delivered in routine services for families of autistic children in China. This study reported results from the in-depth interviews with 14 participating caregivers and group discussions with eight group leaders. The interviews and discussions were aimed at learning (1) to what extent the programme components were deemed acceptable, (2) what affected caregivers' attendance and engagement in the programme and (3) what affected group leaders' delivery of the programme. Findings suggested that future parent training programmes provide adequate opportunities for caregivers to practice and receive feedback; group support; coaching experience tailored to individual challenges; more autism-related knowledge, resources and activities for children and extended family members; and organisational support to group leaders. This study highlights the value of qualitative research and points to the need for more empirical studies to address the recommendations, so that research findings can be better utilised to promote practices. En ligne : http://dx.doi.org/10.1177/13623613211070869 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=488 [article] A virtuous circle: Stakeholder perspectives of a short-term intensive parent training programme delivered within the context of routine services for autism in China [Texte imprimé et/ou numérique] / Zuyi FANG, Auteur ; Jamie M. LACHMAN, Auteur ; Cheng ZHANG, Auteur ; Dongping QIAO, Auteur ; Jane BARLOW, Auteur . - p.1973-1986. Langues : Anglais (eng) in Autism > 26-8 (November 2022) . - p.1973-1986 Mots-clés : Child  Humans  Autistic Disorder/therapy  Autism Spectrum Disorder/therapy  Family  Caregivers  Parents  autism spectrum disorders  family functioning and support  interventions - psychosocial/behavioural  pre-school children  qualitative research  research, authorship and/or publication of this article. Index. décimale : PER Périodiques Résumé : While much knowledge about autism derives from high-income countries, most people diagnosed with autism reside in low- and middle-income countries, where little is documented in terms of local interventions. This is also true for parent training programmes for families of autistic children. An evaluation was conducted to understand the effects of a short-term intensive parent training programme delivered in routine services for families of autistic children in China. This study reported results from the in-depth interviews with 14 participating caregivers and group discussions with eight group leaders. The interviews and discussions were aimed at learning (1) to what extent the programme components were deemed acceptable, (2) what affected caregivers' attendance and engagement in the programme and (3) what affected group leaders' delivery of the programme. Findings suggested that future parent training programmes provide adequate opportunities for caregivers to practice and receive feedback; group support; coaching experience tailored to individual challenges; more autism-related knowledge, resources and activities for children and extended family members; and organisational support to group leaders. This study highlights the value of qualitative research and points to the need for more empirical studies to address the recommendations, so that research findings can be better utilised to promote practices. En ligne : http://dx.doi.org/10.1177/13623613211070869 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=488

Exploring potential sources of childhood trauma: A qualitative study with autistic adults and caregivers / Connor M. KERNS in Autism, 26-8 (November 2022)  

Public ISBD [article]  inAutism > 26-8 (November 2022) . - p.1987-1998 Titre : Exploring potential sources of childhood trauma: A qualitative study with autistic adults and caregivers Type de document : Texte imprimé et/ou numérique Auteurs : Connor M. KERNS, Auteur ; Stephen LANKENAU, Auteur ; Paul T. SHATTUCK, Auteur ; Diana L. ROBINS, Auteur ; Craig J. NEWSCHAFFER, Auteur ; Steven J. BERKOWITZ, Auteur Article en page(s) : p.1987-1998 Langues : Anglais (eng) Mots-clés : Adult  Child  Humans  Autistic Disorder/psychology  Caregivers/psychology  Adverse Childhood Experiences  Autism Spectrum Disorder/psychology  Qualitative Research  autism  childhood  qualitative  traumatic events Index. décimale : PER Périodiques Résumé : The stressors autistic individuals encounter and experience as traumatic may vary from those not on the spectrum and typically measured. We conducted in-depth interviews with autistic adults and caregivers of children and adults on the spectrum to identify potential sources of trauma for autistic individuals and evaluate the ability of a standard trauma measure to capture those experiences. Fourteen autistic adults and 15 caregivers with varied backgrounds, clinical profiles, and histories of adversity were interviewed. Participants also completed standard measures of autism, traumatic exposures, and stress. Interviews were analyzed to record both traditional sources of trauma, for comparison with the standard measure, and distinct sources, described as traumatic only in the narratives of participants. Participants described varied experiences as traumatic. Whereas some reflected traditional traumas (e.g. maltreatment) and forms of social marginalization, others reflected conflicts between autistic characteristics and the environment (e.g. sensory trauma). All adults and most caregivers described sources of trauma in interviews not reported on the standard measure. Results have implications for assessing traumatic events in autism and for understanding their contribution to the mental health of this group. En ligne : http://dx.doi.org/10.1177/13623613211070637 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=488 [article] Exploring potential sources of childhood trauma: A qualitative study with autistic adults and caregivers [Texte imprimé et/ou numérique] / Connor M. KERNS, Auteur ; Stephen LANKENAU, Auteur ; Paul T. SHATTUCK, Auteur ; Diana L. ROBINS, Auteur ; Craig J. NEWSCHAFFER, Auteur ; Steven J. BERKOWITZ, Auteur . - p.1987-1998. Langues : Anglais (eng) in Autism > 26-8 (November 2022) . - p.1987-1998 Mots-clés : Adult  Child  Humans  Autistic Disorder/psychology  Caregivers/psychology  Adverse Childhood Experiences  Autism Spectrum Disorder/psychology  Qualitative Research  autism  childhood  qualitative  traumatic events Index. décimale : PER Périodiques Résumé : The stressors autistic individuals encounter and experience as traumatic may vary from those not on the spectrum and typically measured. We conducted in-depth interviews with autistic adults and caregivers of children and adults on the spectrum to identify potential sources of trauma for autistic individuals and evaluate the ability of a standard trauma measure to capture those experiences. Fourteen autistic adults and 15 caregivers with varied backgrounds, clinical profiles, and histories of adversity were interviewed. Participants also completed standard measures of autism, traumatic exposures, and stress. Interviews were analyzed to record both traditional sources of trauma, for comparison with the standard measure, and distinct sources, described as traumatic only in the narratives of participants. Participants described varied experiences as traumatic. Whereas some reflected traditional traumas (e.g. maltreatment) and forms of social marginalization, others reflected conflicts between autistic characteristics and the environment (e.g. sensory trauma). All adults and most caregivers described sources of trauma in interviews not reported on the standard measure. Results have implications for assessing traumatic events in autism and for understanding their contribution to the mental health of this group. En ligne : http://dx.doi.org/10.1177/13623613211070637 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=488

Parent peer coaching program: A cascading intervention for parents of children with autism in Mongolia / James D. LEE in Autism, 26-8 (November 2022)  

Public ISBD [article]  inAutism > 26-8 (November 2022) . - p.1999-2014 Titre : Parent peer coaching program: A cascading intervention for parents of children with autism in Mongolia Type de document : Texte imprimé et/ou numérique Auteurs : James D. LEE, Auteur ; Hedda MEADAN, Auteur ; Enkhjin OYUNBAATAR, Auteur Article en page(s) : p.1999-2014 Langues : Anglais (eng) Mots-clés : Child  Humans  Autistic Disorder/therapy  Mentoring  Mongolia  Autism Spectrum Disorder/therapy  Parents/education  capacity building  low-resource setting  parent peer coaching Index. décimale : PER Périodiques Résumé : Parents of children with autism are known to experience severe hardships related to raising their children. These hardships are exacerbated in low-resource settings internationally where there is very little resource for children and their families, including professionals who provide evidence-based treatment. Mongolia was chosen as an example of such low-resource settings in this single-case research, and four parent mentors and five parent peers and their children with autism participated and completed the study. A local parent group, the Autism Association of Mongolia, was actively involved in this study and helped with recruitment, development, adaptation, and implementation of the intervention to increase acceptability and feasibility. In addition, a local bilingual research assistant was also utilized as the purpose of this study was to build capacity of diverse stakeholders of children with autism in Mongolia. The research assistant was trained and coached by the research team on both content (communication teaching strategies and behavior management) and delivery (coaching adults), who then provided coaching to parent mentors via live videoconferencing in Mongolian. Parent mentors then similarly provided coaching to parent peers after observing the interactions with their children with autism. The findings suggest that parents can effectively deliver high-fidelity coaching to disseminate evidence-based treatment in low-resource settings when given proper training and coaching. Further examination on scalability and sustainment of effects is suggested. En ligne : http://dx.doi.org/10.1177/13623613211070636 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=488 [article] Parent peer coaching program: A cascading intervention for parents of children with autism in Mongolia [Texte imprimé et/ou numérique] / James D. LEE, Auteur ; Hedda MEADAN, Auteur ; Enkhjin OYUNBAATAR, Auteur . - p.1999-2014. Langues : Anglais (eng) in Autism > 26-8 (November 2022) . - p.1999-2014 Mots-clés : Child  Humans  Autistic Disorder/therapy  Mentoring  Mongolia  Autism Spectrum Disorder/therapy  Parents/education  capacity building  low-resource setting  parent peer coaching Index. décimale : PER Périodiques Résumé : Parents of children with autism are known to experience severe hardships related to raising their children. These hardships are exacerbated in low-resource settings internationally where there is very little resource for children and their families, including professionals who provide evidence-based treatment. Mongolia was chosen as an example of such low-resource settings in this single-case research, and four parent mentors and five parent peers and their children with autism participated and completed the study. A local parent group, the Autism Association of Mongolia, was actively involved in this study and helped with recruitment, development, adaptation, and implementation of the intervention to increase acceptability and feasibility. In addition, a local bilingual research assistant was also utilized as the purpose of this study was to build capacity of diverse stakeholders of children with autism in Mongolia. The research assistant was trained and coached by the research team on both content (communication teaching strategies and behavior management) and delivery (coaching adults), who then provided coaching to parent mentors via live videoconferencing in Mongolian. Parent mentors then similarly provided coaching to parent peers after observing the interactions with their children with autism. The findings suggest that parents can effectively deliver high-fidelity coaching to disseminate evidence-based treatment in low-resource settings when given proper training and coaching. Further examination on scalability and sustainment of effects is suggested. En ligne : http://dx.doi.org/10.1177/13623613211070636 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=488

The creator did not give me more than I can handle: Exploring coping in parents of Black autistic children / Ericka M. LEWIS in Autism, 26-8 (November 2022)  

Public ISBD [article]  inAutism > 26-8 (November 2022) . - p.2015-2025 Titre : The creator did not give me more than I can handle: Exploring coping in parents of Black autistic children Type de document : Texte imprimé et/ou numérique Auteurs : Ericka M. LEWIS, Auteur ; Sarah DABABNAH, Auteur ; Kelley R. HOLLIE, Auteur ; Irang KIM, Auteur ; Yao WANG, Auteur ; Wendy E. SHAIA, Auteur Article en page(s) : p.2015-2025 Langues : Anglais (eng) Mots-clés : Child  Humans  Autistic Disorder  Autism Spectrum Disorder  Adaptation, Psychological  Parents  Parenting  Black families  Ways of Coping Questionnaire  autism  autism spectrum disorder  coping  parenting stress Index. décimale : PER Périodiques Résumé : Parents of Black autistic children use several strategies to cope with daily stressors. These strategies include seeking social support, self-care, and optimism. We asked parents about their experiences receiving treatment services for their autistic child and how they reduce parenting stress. Twenty-two parents completed a coping survey and participated in individual interviews. Few studies have explored the experiences of Black families raising autistic children, and it's important for healthcare and other systems of care to understand the role culture, race, and ethnicity play in the use of coping strategies. In our study, the majority of parents relied on social support to relieve stress and identified partners, family, and community members, as their most useful sources of support. Connecting with other parents of autistic children, through support groups and social media, also helped parents relieve stress. Parents discussed using self-care activities (e.g. church, exercising, listening to music) to cope with stressors. Several parents described how prayer and meditation helped them reframe stressful situations and gain more patience and appreciation for "what's important." The findings of this work demonstrate the need for professionals to have ongoing and deeper conversations about the ways in which parents deal with stressors. In particular, clinicians should leverage the strengths of Black families and promote strategies that are culturally informed and engaged. En ligne : http://dx.doi.org/10.1177/13623613211070865 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=488 [article] The creator did not give me more than I can handle: Exploring coping in parents of Black autistic children [Texte imprimé et/ou numérique] / Ericka M. LEWIS, Auteur ; Sarah DABABNAH, Auteur ; Kelley R. HOLLIE, Auteur ; Irang KIM, Auteur ; Yao WANG, Auteur ; Wendy E. SHAIA, Auteur . - p.2015-2025. Langues : Anglais (eng) in Autism > 26-8 (November 2022) . - p.2015-2025 Mots-clés : Child  Humans  Autistic Disorder  Autism Spectrum Disorder  Adaptation, Psychological  Parents  Parenting  Black families  Ways of Coping Questionnaire  autism  autism spectrum disorder  coping  parenting stress Index. décimale : PER Périodiques Résumé : Parents of Black autistic children use several strategies to cope with daily stressors. These strategies include seeking social support, self-care, and optimism. We asked parents about their experiences receiving treatment services for their autistic child and how they reduce parenting stress. Twenty-two parents completed a coping survey and participated in individual interviews. Few studies have explored the experiences of Black families raising autistic children, and it's important for healthcare and other systems of care to understand the role culture, race, and ethnicity play in the use of coping strategies. In our study, the majority of parents relied on social support to relieve stress and identified partners, family, and community members, as their most useful sources of support. Connecting with other parents of autistic children, through support groups and social media, also helped parents relieve stress. Parents discussed using self-care activities (e.g. church, exercising, listening to music) to cope with stressors. Several parents described how prayer and meditation helped them reframe stressful situations and gain more patience and appreciation for "what's important." The findings of this work demonstrate the need for professionals to have ongoing and deeper conversations about the ways in which parents deal with stressors. In particular, clinicians should leverage the strengths of Black families and promote strategies that are culturally informed and engaged. En ligne : http://dx.doi.org/10.1177/13623613211070865 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=488

Patterns in reporting and participant inclusion related to race and ethnicity in autism intervention literature: Data from a large-scale systematic review of evidence-based practices / Jessica R. STEINBRENNER in Autism, 26-8 (November 2022)  

Public ISBD [article]  inAutism > 26-8 (November 2022) . - p.2026-2040 Titre : Patterns in reporting and participant inclusion related to race and ethnicity in autism intervention literature: Data from a large-scale systematic review of evidence-based practices Type de document : Texte imprimé et/ou numérique Auteurs : Jessica R. STEINBRENNER, Auteur ; Nancy MCINTYRE, Auteur ; Lindsay F. RENTSCHLER, Auteur ; Jamie N. PEARSON, Auteur ; Paul LUELMO, Auteur ; Maria Elizabeth JARAMILLO, Auteur ; Brian A. BOYD, Auteur ; Connie S. WONG, Auteur ; Sallie W. NOWELL, Auteur ; Samuel L ODOM, Auteur ; Kara A. HUME, Auteur Article en page(s) : p.2026-2040 Langues : Anglais (eng) Mots-clés : Child  Humans  Asian People  Autism Spectrum Disorder  Autistic Disorder  Ethnicity  Evidence-Based Practice  Systematic Reviews as Topic  autism  interventions —psychosocial/behavioral  race  systematic review  research, authorship, and/or publication of this article. Index. décimale : PER Périodiques Résumé : Researchers who study autism-related interventions do a poor job reporting data related to the race and ethnicity of autistic individuals who participate in their studies, and of those who do report these data, the participants are overwhelmingly White. This is problematic for many reasons, as we know little about how interventions are meeting the needs of culturally and linguistically diverse populations, and we assume that interventions are effective for all when they have been developed and validated primarily with and for White children. This study examined the reporting patterns of autism intervention researchers whose work was included in a large-scale systematic review of the intervention literature published between 1990 and 2017. We found that only 25% of studies (out of 1,013 included in the review) included data related to the race and ethnicity of their participants, with minimal change in reporting patterns across the years. In studies with reported data, White participants had the highest rate of participation, with a large gap between the next highest rates of participation among Hispanic/Latino, Black, and Asian participants. Other race and ethnicity groups had very low representation. This study includes additional analyses which examine how the reporting patterns and the inclusion of racially and ethnically diverse participants varies across study types, interventions, and outcome areas. Reporting this data is merely a starting point to begin to address the many disparities in autism-related healthcare, education, and research practices, and this article includes broader implications and next steps to ensure the field becomes more equitable and inclusive. En ligne : http://dx.doi.org/10.1177/13623613211072593 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=488 [article] Patterns in reporting and participant inclusion related to race and ethnicity in autism intervention literature: Data from a large-scale systematic review of evidence-based practices [Texte imprimé et/ou numérique] / Jessica R. STEINBRENNER, Auteur ; Nancy MCINTYRE, Auteur ; Lindsay F. RENTSCHLER, Auteur ; Jamie N. PEARSON, Auteur ; Paul LUELMO, Auteur ; Maria Elizabeth JARAMILLO, Auteur ; Brian A. BOYD, Auteur ; Connie S. WONG, Auteur ; Sallie W. NOWELL, Auteur ; Samuel L ODOM, Auteur ; Kara A. HUME, Auteur . - p.2026-2040. Langues : Anglais (eng) in Autism > 26-8 (November 2022) . - p.2026-2040 Mots-clés : Child  Humans  Asian People  Autism Spectrum Disorder  Autistic Disorder  Ethnicity  Evidence-Based Practice  Systematic Reviews as Topic  autism  interventions —psychosocial/behavioral  race  systematic review  research, authorship, and/or publication of this article. Index. décimale : PER Périodiques Résumé : Researchers who study autism-related interventions do a poor job reporting data related to the race and ethnicity of autistic individuals who participate in their studies, and of those who do report these data, the participants are overwhelmingly White. This is problematic for many reasons, as we know little about how interventions are meeting the needs of culturally and linguistically diverse populations, and we assume that interventions are effective for all when they have been developed and validated primarily with and for White children. This study examined the reporting patterns of autism intervention researchers whose work was included in a large-scale systematic review of the intervention literature published between 1990 and 2017. We found that only 25% of studies (out of 1,013 included in the review) included data related to the race and ethnicity of their participants, with minimal change in reporting patterns across the years. In studies with reported data, White participants had the highest rate of participation, with a large gap between the next highest rates of participation among Hispanic/Latino, Black, and Asian participants. Other race and ethnicity groups had very low representation. This study includes additional analyses which examine how the reporting patterns and the inclusion of racially and ethnically diverse participants varies across study types, interventions, and outcome areas. Reporting this data is merely a starting point to begin to address the many disparities in autism-related healthcare, education, and research practices, and this article includes broader implications and next steps to ensure the field becomes more equitable and inclusive. En ligne : http://dx.doi.org/10.1177/13623613211072593 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=488

Friendship quality among autistic and non-autistic (pre-) adolescents: Protective or risk factor for mental health? / Rachel A. G. O'CONNOR in Autism, 26-8 (November 2022)  

Public ISBD [article]  inAutism > 26-8 (November 2022) . - p.2041-2051 Titre : Friendship quality among autistic and non-autistic (pre-) adolescents: Protective or risk factor for mental health? Type de document : Texte imprimé et/ou numérique Auteurs : Rachel A. G. O'CONNOR, Auteur ; Neeltje VAN DEN BEDEM, Auteur ; Els M. A. BLIJD-HOOGEWYS, Auteur ; Lex STOCKMANN, Auteur ; Carolien RIEFFE, Auteur Article en page(s) : p.2041-2051 Langues : Anglais (eng) Mots-clés : Male  Female  Adolescent  Humans  Friends/psychology  Interpersonal Relations  Mental Health  Autism Spectrum Disorder/psychology  Risk Factors  anxiety  autism  depression  friendship  mental health  research, authorship and/or publication of this article. Index. décimale : PER Périodiques Résumé : Autistic young people are often misunderstood by non-autistic young people, and this can lead to difficulties in their friendships. We know that friendship is very important for our mental health. For non-autistic young people, having good friendships is linked to better mental health and having problems in friendship can cause mental health problems. This study aimed to compare the positive and negative features of friendship that autistic non-autistic young people experience. The study also aimed to understand if having positive or negative friendship features is related to signs of mental health problems (anxiety and depression). 306 young people aged 9-16 took part in this study. These were 86 autistic boys, 18 autistic girls, 91 non-autistic boys and 111 non-autistic girls. The findings of this study showed that autistic young people have less positive friendship features than non-autistic young people. For all young people in the study, having more positive friendship features was related to fewer signs of depression, while having more negative friendship features was related to more signs of depression. Just for autistic girls, having more positive friendship features was related to more signs of anxiety. These findings show that support is needed to help autistic young people have more positive friendships. For example, by teaching non-autistic young people how to be supportive friends to their autistic peers. En ligne : http://dx.doi.org/10.1177/13623613211073448 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=488 [article] Friendship quality among autistic and non-autistic (pre-) adolescents: Protective or risk factor for mental health? [Texte imprimé et/ou numérique] / Rachel A. G. O'CONNOR, Auteur ; Neeltje VAN DEN BEDEM, Auteur ; Els M. A. BLIJD-HOOGEWYS, Auteur ; Lex STOCKMANN, Auteur ; Carolien RIEFFE, Auteur . - p.2041-2051. Langues : Anglais (eng) in Autism > 26-8 (November 2022) . - p.2041-2051 Mots-clés : Male  Female  Adolescent  Humans  Friends/psychology  Interpersonal Relations  Mental Health  Autism Spectrum Disorder/psychology  Risk Factors  anxiety  autism  depression  friendship  mental health  research, authorship and/or publication of this article. Index. décimale : PER Périodiques Résumé : Autistic young people are often misunderstood by non-autistic young people, and this can lead to difficulties in their friendships. We know that friendship is very important for our mental health. For non-autistic young people, having good friendships is linked to better mental health and having problems in friendship can cause mental health problems. This study aimed to compare the positive and negative features of friendship that autistic non-autistic young people experience. The study also aimed to understand if having positive or negative friendship features is related to signs of mental health problems (anxiety and depression). 306 young people aged 9-16 took part in this study. These were 86 autistic boys, 18 autistic girls, 91 non-autistic boys and 111 non-autistic girls. The findings of this study showed that autistic young people have less positive friendship features than non-autistic young people. For all young people in the study, having more positive friendship features was related to fewer signs of depression, while having more negative friendship features was related to more signs of depression. Just for autistic girls, having more positive friendship features was related to more signs of anxiety. These findings show that support is needed to help autistic young people have more positive friendships. For example, by teaching non-autistic young people how to be supportive friends to their autistic peers. En ligne : http://dx.doi.org/10.1177/13623613211073448 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=488

Individuals with autism show non-adaptive relative weighting of perceptual prior and sensory reliability / Nahal BINUR in Autism, 26-8 (November 2022)  

Public ISBD [article]  inAutism > 26-8 (November 2022) . - p.2052-2065 Titre : Individuals with autism show non-adaptive relative weighting of perceptual prior and sensory reliability Type de document : Texte imprimé et/ou numérique Auteurs : Nahal BINUR, Auteur ; Hagit HEL-OR, Auteur ; Bat-Sheva HADAD, Auteur Article en page(s) : p.2052-2065 Langues : Anglais (eng) Mots-clés : Humans  Autistic Disorder  Autism Spectrum Disorder  Reproducibility of Results  Bayesian perception  autism spectrum disorder  inferred perception  perceptual illusions  width-height illusion Index. décimale : PER Périodiques Résumé : Unique perceptual skills and abnormalities in perception have been extensively demonstrated in those with autism for many perceptual domains, accounting, at least in part, for some of the main symptoms. Several new hypotheses suggest that perceptual representations in autism are unrefined, appear less constrained by exposure and regularities of the environment, and rely more on actual concrete input. Consistent with these emerging views, a bottom-up, data-driven fashion of processing has been suggested to account for the atypical perception in autism. It is yet unclear, however, whether reduced effects of prior knowledge and top-down information, or rather reduced noise in the sensory input, account for the often-reported bottom-up mode of processing in autism. We show that neither is sufficiently supported. Instead, we demonstrate clear differences between autistics and neurotypicals in how incoming input is weighted against prior knowledge and experience in determining the final percept. Importantly, the findings tap central differences in perception between those with and without autism that are consistent across identified sub-clusters within each group. En ligne : http://dx.doi.org/10.1177/13623613221074416 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=488 [article] Individuals with autism show non-adaptive relative weighting of perceptual prior and sensory reliability [Texte imprimé et/ou numérique] / Nahal BINUR, Auteur ; Hagit HEL-OR, Auteur ; Bat-Sheva HADAD, Auteur . - p.2052-2065. Langues : Anglais (eng) in Autism > 26-8 (November 2022) . - p.2052-2065 Mots-clés : Humans  Autistic Disorder  Autism Spectrum Disorder  Reproducibility of Results  Bayesian perception  autism spectrum disorder  inferred perception  perceptual illusions  width-height illusion Index. décimale : PER Périodiques Résumé : Unique perceptual skills and abnormalities in perception have been extensively demonstrated in those with autism for many perceptual domains, accounting, at least in part, for some of the main symptoms. Several new hypotheses suggest that perceptual representations in autism are unrefined, appear less constrained by exposure and regularities of the environment, and rely more on actual concrete input. Consistent with these emerging views, a bottom-up, data-driven fashion of processing has been suggested to account for the atypical perception in autism. It is yet unclear, however, whether reduced effects of prior knowledge and top-down information, or rather reduced noise in the sensory input, account for the often-reported bottom-up mode of processing in autism. We show that neither is sufficiently supported. Instead, we demonstrate clear differences between autistics and neurotypicals in how incoming input is weighted against prior knowledge and experience in determining the final percept. Importantly, the findings tap central differences in perception between those with and without autism that are consistent across identified sub-clusters within each group. En ligne : http://dx.doi.org/10.1177/13623613221074416 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=488

'We've come a very, very, long way' Overcoming stigma of autism: An interpretative phenomenological analysis within the UK Jewish community / David Ariel SHER in Autism, 26-8 (November 2022)  

Public ISBD [article]  inAutism > 26-8 (November 2022) . - p.2066-2083 Titre : 'We've come a very, very, long way' Overcoming stigma of autism: An interpretative phenomenological analysis within the UK Jewish community Type de document : Texte imprimé et/ou numérique Auteurs : David Ariel SHER, Auteur ; Jenny L. GIBSON, Auteur ; Hannah Ella SHER, Auteur Article en page(s) : p.2066-2083 Langues : Anglais (eng) Mots-clés : Child  Humans  Autistic Disorder  Jews  Autism Spectrum Disorder  Social Stigma  United Kingdom  Jewish  autism  autistic  qualitative  stigma  research, authorship and/or publication of this article. Index. décimale : PER Périodiques Résumé : Autistic people contend with high levels of stigma in a wide array of cultures worldwide. There is a scarcity of literature on stigma in relation to autism in faith communities, with some limited research on this issue in Christian, Muslim and Hindu populations. There is virtually no research focussing on this topic in Jewish communities and to our knowledge, none at all within UK Jewish contexts. In this study, we aimed to explore experiences of stigma towards autism and sought views on what steps have and can be taken to reduce such stigma. Using an interpretative phenomenological analysis approach, we conducted semi-structured interviews with 10 participants within the UK Jewish community, including parents, rabbis, SENDCos, teachers, and headmasters of autistic children in both mainstream and specialist autistic schools. Interviews were conducted over 2 months in 2020. During analysis, 5 superordinate (central) themes and 13 subordinate themes were abstracted from the data. Superordinate themes included 'Stigma not specific to the Jewish community'; 'Considerable strides made'; 'More a lack of knowledge or denial than stigma'; 'Fear of stigma is a real concern but not widely prevalent'; and 'Potent factors that reduce stigma in the Jewish community'. We recommend workshops for greater awareness and training for teachers and parents on autism and autistic children's experiences. We also recommend the formation of specialist autism schools in other communities and promotion of positive narratives concerning autistic people, as this successfully reduced stigma within the Jewish community. En ligne : http://dx.doi.org/10.1177/13623613221075099 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=488 [article] 'We've come a very, very, long way' Overcoming stigma of autism: An interpretative phenomenological analysis within the UK Jewish community [Texte imprimé et/ou numérique] / David Ariel SHER, Auteur ; Jenny L. GIBSON, Auteur ; Hannah Ella SHER, Auteur . - p.2066-2083. Langues : Anglais (eng) in Autism > 26-8 (November 2022) . - p.2066-2083 Mots-clés : Child  Humans  Autistic Disorder  Jews  Autism Spectrum Disorder  Social Stigma  United Kingdom  Jewish  autism  autistic  qualitative  stigma  research, authorship and/or publication of this article. Index. décimale : PER Périodiques Résumé : Autistic people contend with high levels of stigma in a wide array of cultures worldwide. There is a scarcity of literature on stigma in relation to autism in faith communities, with some limited research on this issue in Christian, Muslim and Hindu populations. There is virtually no research focussing on this topic in Jewish communities and to our knowledge, none at all within UK Jewish contexts. In this study, we aimed to explore experiences of stigma towards autism and sought views on what steps have and can be taken to reduce such stigma. Using an interpretative phenomenological analysis approach, we conducted semi-structured interviews with 10 participants within the UK Jewish community, including parents, rabbis, SENDCos, teachers, and headmasters of autistic children in both mainstream and specialist autistic schools. Interviews were conducted over 2 months in 2020. During analysis, 5 superordinate (central) themes and 13 subordinate themes were abstracted from the data. Superordinate themes included 'Stigma not specific to the Jewish community'; 'Considerable strides made'; 'More a lack of knowledge or denial than stigma'; 'Fear of stigma is a real concern but not widely prevalent'; and 'Potent factors that reduce stigma in the Jewish community'. We recommend workshops for greater awareness and training for teachers and parents on autism and autistic children's experiences. We also recommend the formation of specialist autism schools in other communities and promotion of positive narratives concerning autistic people, as this successfully reduced stigma within the Jewish community. En ligne : http://dx.doi.org/10.1177/13623613221075099 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=488

Bilingualism effects on cognition in autistic children are not all-or-nothing: The role of socioeconomic status in intellectual skills in bilingual autistic children / Eleni PERISTERI in Autism, 26-8 (November 2022)  

Public ISBD [article]  inAutism > 26-8 (November 2022) . - p.2084-2097 Titre : Bilingualism effects on cognition in autistic children are not all-or-nothing: The role of socioeconomic status in intellectual skills in bilingual autistic children Type de document : Texte imprimé et/ou numérique Auteurs : Eleni PERISTERI, Auteur ; Silvia SILLERESI, Auteur ; Ianthi Maria TSIMPLI, Auteur Article en page(s) : p.2084-2097 Langues : Anglais (eng) Mots-clés : Child  Humans  Multilingualism  Autistic Disorder  Autism Spectrum Disorder  Cognition  Social Class  Autism spectrum disorders  environmental factors  intellectual measurement  school-age children Index. décimale : PER Périodiques Résumé : Previous research has suggested that bilingualism may improve cognition in children with autism, and that this boost may stem from improvement in executive functions. The Wechsler Intelligence Scales for Children are considered to be reliable and valid measures of intelligence when administered to autistic children. These measures have so far revealed unusual psychometric properties in monolingual autistic children, notably distinctive patterns of strengths and weaknesses and low inter-correlation among verbal and nonverbal IQ subtests. The way bilingualism affects the intellectual functioning of autistic children has not been explored yet. Nor has there been a satisfactory factor structure that explains monolingual and bilingual autistic children's IQ performance in terms of individual factors, such as age and socioeconomic status. The current study examined the intelligence profiles of 316 bilingual and age- and gender-matched monolingual children with autism using the Wechsler Intelligence Scales for Children-Third Edition. The study applied clustering models to extract intelligence subtypes of autism, and mediation analyses to examine potential mediation effects of age and socioeconomic status on the children's verbal and nonverbal IQ performance. The results support the mediational role of the children's socioeconomic status in the association between bilingualism and intelligence. Low-socioeconomic status bilingual autistic children outperformed their monolingual peers on both verbal and nonverbal subtests, while the differences faded in medium-socioeconomic status and high-socioeconomic status children. The findings emphasize the positive effects of bilingualism on low-socioeconomic status autistic children's intelligence and also highlight high-socioeconomic status as a factor that may mitigate discrepant patterns of strengths and weaknesses in monolingual children's IQ performance. En ligne : http://dx.doi.org/10.1177/13623613221075097 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=488 [article] Bilingualism effects on cognition in autistic children are not all-or-nothing: The role of socioeconomic status in intellectual skills in bilingual autistic children [Texte imprimé et/ou numérique] / Eleni PERISTERI, Auteur ; Silvia SILLERESI, Auteur ; Ianthi Maria TSIMPLI, Auteur . - p.2084-2097. Langues : Anglais (eng) in Autism > 26-8 (November 2022) . - p.2084-2097 Mots-clés : Child  Humans  Multilingualism  Autistic Disorder  Autism Spectrum Disorder  Cognition  Social Class  Autism spectrum disorders  environmental factors  intellectual measurement  school-age children Index. décimale : PER Périodiques Résumé : Previous research has suggested that bilingualism may improve cognition in children with autism, and that this boost may stem from improvement in executive functions. The Wechsler Intelligence Scales for Children are considered to be reliable and valid measures of intelligence when administered to autistic children. These measures have so far revealed unusual psychometric properties in monolingual autistic children, notably distinctive patterns of strengths and weaknesses and low inter-correlation among verbal and nonverbal IQ subtests. The way bilingualism affects the intellectual functioning of autistic children has not been explored yet. Nor has there been a satisfactory factor structure that explains monolingual and bilingual autistic children's IQ performance in terms of individual factors, such as age and socioeconomic status. The current study examined the intelligence profiles of 316 bilingual and age- and gender-matched monolingual children with autism using the Wechsler Intelligence Scales for Children-Third Edition. The study applied clustering models to extract intelligence subtypes of autism, and mediation analyses to examine potential mediation effects of age and socioeconomic status on the children's verbal and nonverbal IQ performance. The results support the mediational role of the children's socioeconomic status in the association between bilingualism and intelligence. Low-socioeconomic status bilingual autistic children outperformed their monolingual peers on both verbal and nonverbal subtests, while the differences faded in medium-socioeconomic status and high-socioeconomic status children. The findings emphasize the positive effects of bilingualism on low-socioeconomic status autistic children's intelligence and also highlight high-socioeconomic status as a factor that may mitigate discrepant patterns of strengths and weaknesses in monolingual children's IQ performance. En ligne : http://dx.doi.org/10.1177/13623613221075097 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=488

Adults with autism spectrum disorder and the criminal justice system: An investigation of prevalence of contact with the criminal justice system, risk factors and sex differences in a specialist assessment service / Charlotte E. BLACKMORE in Autism, 26-8 (November 2022)  

Public ISBD [article]  inAutism > 26-8 (November 2022) . - p.2098-2107 Titre : Adults with autism spectrum disorder and the criminal justice system: An investigation of prevalence of contact with the criminal justice system, risk factors and sex differences in a specialist assessment service Type de document : Texte imprimé et/ou numérique Auteurs : Charlotte E. BLACKMORE, Auteur ; Emma L. WOODHOUSE, Auteur ; Nicola GILLAN, Auteur ; Ellie WILSON, Auteur ; Karen L. ASHWOOD, Auteur ; Vladimira STOENCHEVA, Auteur ; Alexandra NOLAN, Auteur ; Gráinne M. MCALONAN, Auteur ; Dene M. ROBERTSON, Auteur ; Susannah WHITWELL, Auteur ; Quinton DEELEY, Auteur ; Michael C. CRAIG, Auteur ; Janneke ZINKSTOK, Auteur ; Rob WICHERS, Auteur ; Debbie SPAIN, Auteur ; Ged ROBERTS, Auteur ; Declan GM MURPHY, Auteur ; Clodagh M. MURPHY, Auteur ; Eileen DALY, Auteur Article en page(s) : p.2098-2107 Langues : Anglais (eng) Mots-clés : Adult  Humans  Male  Female  Autism Spectrum Disorder/epidemiology  Criminal Law  Prevalence  Sex Characteristics  Risk Factors  autism spectrum disorders  crime  criminal justice system  offending  risk factors  research, authorship and/or publication of this article. Index. décimale : PER Périodiques Résumé : There has been growing interest in offending and contact with the criminal justice system (CJS) by people with autism spectrum disorder (ASD). However, it is not clear whether people with ASD offend more than those without ASD. Studies have started to look at whether there are particular offences people with ASD are more likely to commit and whether there are any factors that can affect whether someone comes into contact with the CJS as a potential suspect. This study looked at the patients who attended an ASD diagnostic service over a 17-year period to see the rate of contact with the CJS of those who were diagnosed with ASD and whether there were any particular factors that might increase the risk of CJS contact. Nearly a quarter of the ASD group had some contact with the CJS as a potential suspect. Factors that seemed to increase whether someone with ASD was more likely to have contact with the CJS were being male, being diagnosed with ADHD, and being diagnosed with psychosis. This study is one of the largest studies to investigate the rate of CJS contact as a potential suspect in a sample of adults with ASD in an attempt to give a clearer picture of what might influence someone with ASD to engage in offending behaviour in order to try to see what mental health services can offer to reduce the likelihood of someone with ASD coming into contact with the CJS, for example, treatment for another condition or support. En ligne : http://dx.doi.org/10.1177/13623613221081343 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=488 [article] Adults with autism spectrum disorder and the criminal justice system: An investigation of prevalence of contact with the criminal justice system, risk factors and sex differences in a specialist assessment service [Texte imprimé et/ou numérique] / Charlotte E. BLACKMORE, Auteur ; Emma L. WOODHOUSE, Auteur ; Nicola GILLAN, Auteur ; Ellie WILSON, Auteur ; Karen L. ASHWOOD, Auteur ; Vladimira STOENCHEVA, Auteur ; Alexandra NOLAN, Auteur ; Gráinne M. MCALONAN, Auteur ; Dene M. ROBERTSON, Auteur ; Susannah WHITWELL, Auteur ; Quinton DEELEY, Auteur ; Michael C. CRAIG, Auteur ; Janneke ZINKSTOK, Auteur ; Rob WICHERS, Auteur ; Debbie SPAIN, Auteur ; Ged ROBERTS, Auteur ; Declan GM MURPHY, Auteur ; Clodagh M. MURPHY, Auteur ; Eileen DALY, Auteur . - p.2098-2107. Langues : Anglais (eng) in Autism > 26-8 (November 2022) . - p.2098-2107 Mots-clés : Adult  Humans  Male  Female  Autism Spectrum Disorder/epidemiology  Criminal Law  Prevalence  Sex Characteristics  Risk Factors  autism spectrum disorders  crime  criminal justice system  offending  risk factors  research, authorship and/or publication of this article. Index. décimale : PER Périodiques Résumé : There has been growing interest in offending and contact with the criminal justice system (CJS) by people with autism spectrum disorder (ASD). However, it is not clear whether people with ASD offend more than those without ASD. Studies have started to look at whether there are particular offences people with ASD are more likely to commit and whether there are any factors that can affect whether someone comes into contact with the CJS as a potential suspect. This study looked at the patients who attended an ASD diagnostic service over a 17-year period to see the rate of contact with the CJS of those who were diagnosed with ASD and whether there were any particular factors that might increase the risk of CJS contact. Nearly a quarter of the ASD group had some contact with the CJS as a potential suspect. Factors that seemed to increase whether someone with ASD was more likely to have contact with the CJS were being male, being diagnosed with ADHD, and being diagnosed with psychosis. This study is one of the largest studies to investigate the rate of CJS contact as a potential suspect in a sample of adults with ASD in an attempt to give a clearer picture of what might influence someone with ASD to engage in offending behaviour in order to try to see what mental health services can offer to reduce the likelihood of someone with ASD coming into contact with the CJS, for example, treatment for another condition or support. En ligne : http://dx.doi.org/10.1177/13623613221081343 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=488

Factors associated with age of diagnosis in children with autism spectrum disorders: Report from a French cohort / Cécile RATTAZ in Autism, 26-8 (November 2022)  

Public ISBD [article]  inAutism > 26-8 (November 2022) . - p.2108-2116 Titre : Factors associated with age of diagnosis in children with autism spectrum disorders: Report from a French cohort Type de document : Texte imprimé et/ou numérique Auteurs : Cécile RATTAZ, Auteur ; Julie LOUBERSAC, Auteur ; Cécile MICHELON, Auteur ; Marie-Maude GEOFFRAY, Auteur ; Marie-Christine PICOT, Auteur ; Kerim M. MUNIR, Auteur ; Amaria BAGHDADLI, Auteur Article en page(s) : p.2108-2116 Langues : Anglais (eng) Mots-clés : Child  Adolescent  Humans  Child, Preschool  Autism Spectrum Disorder/diagnosis/epidemiology/complications  Cohort Studies  Intellectual Disability/complications  Early Diagnosis  Social Class  ELENA cohort  age of diagnosis  autism spectrum disorder  children Index. décimale : PER Périodiques Résumé : Autism spectrum disorder is an early onset neurodevelopmental disorder and diagnosis can be made as early as 18 months of age. Early diagnosis of autism spectrum disorder is critical as it leads to early intervention. Age of autism spectrum disorder diagnosis has been linked to the child profile as autism spectrum disorder is characterized by strong heterogeneity, but is also influenced by socio-economic factors. There is paucity of data on age of diagnosis of autism spectrum disorder in France. We therefore examined the age of autism spectrum disorder diagnosis in 554 children and adolescents enrolled in the ELENA cohort study with respect to the influences of child profile, family antecedents, and socio-economic factors. The mean age of diagnosis was 4.9 years (Â+2.8 years). Early diagnosis, before 3 years of age, was related to the co-occurrence of intellectual disability, higher autism spectrum disorder symptom severity, and lower communicative abilities. Children in low socio-economic status families tended to have an earlier diagnosis, but these children also had greater degree of intellectual impairment compared to children in high socio-economic status families. The age of autism spectrum disorder diagnosis was not associated with the presence of an older sibling with autism spectrum disorder. The observed current trend of an inverse relationship between socio-economic status and age of diagnosis of autism spectrum disorder suggests equitable access to autism spectrum disorder services in France where health coverage is universal and free. Better screening of more subtle/less severe forms of autism spectrum disorder is needed, as well as further assessment of the link between the co-occurrence of autism spectrum disorder and intellectual impairment in children in lower socio-economic status families. En ligne : http://dx.doi.org/10.1177/13623613221077724 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=488 [article] Factors associated with age of diagnosis in children with autism spectrum disorders: Report from a French cohort [Texte imprimé et/ou numérique] / Cécile RATTAZ, Auteur ; Julie LOUBERSAC, Auteur ; Cécile MICHELON, Auteur ; Marie-Maude GEOFFRAY, Auteur ; Marie-Christine PICOT, Auteur ; Kerim M. MUNIR, Auteur ; Amaria BAGHDADLI, Auteur . - p.2108-2116. Langues : Anglais (eng) in Autism > 26-8 (November 2022) . - p.2108-2116 Mots-clés : Child  Adolescent  Humans  Child, Preschool  Autism Spectrum Disorder/diagnosis/epidemiology/complications  Cohort Studies  Intellectual Disability/complications  Early Diagnosis  Social Class  ELENA cohort  age of diagnosis  autism spectrum disorder  children Index. décimale : PER Périodiques Résumé : Autism spectrum disorder is an early onset neurodevelopmental disorder and diagnosis can be made as early as 18 months of age. Early diagnosis of autism spectrum disorder is critical as it leads to early intervention. Age of autism spectrum disorder diagnosis has been linked to the child profile as autism spectrum disorder is characterized by strong heterogeneity, but is also influenced by socio-economic factors. There is paucity of data on age of diagnosis of autism spectrum disorder in France. We therefore examined the age of autism spectrum disorder diagnosis in 554 children and adolescents enrolled in the ELENA cohort study with respect to the influences of child profile, family antecedents, and socio-economic factors. The mean age of diagnosis was 4.9 years (Â+2.8 years). Early diagnosis, before 3 years of age, was related to the co-occurrence of intellectual disability, higher autism spectrum disorder symptom severity, and lower communicative abilities. Children in low socio-economic status families tended to have an earlier diagnosis, but these children also had greater degree of intellectual impairment compared to children in high socio-economic status families. The age of autism spectrum disorder diagnosis was not associated with the presence of an older sibling with autism spectrum disorder. The observed current trend of an inverse relationship between socio-economic status and age of diagnosis of autism spectrum disorder suggests equitable access to autism spectrum disorder services in France where health coverage is universal and free. Better screening of more subtle/less severe forms of autism spectrum disorder is needed, as well as further assessment of the link between the co-occurrence of autism spectrum disorder and intellectual impairment in children in lower socio-economic status families. En ligne : http://dx.doi.org/10.1177/13623613221077724 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=488

Loneliness in autistic adults: A systematic review / Kana UMAGAMI in Autism, 26-8 (November 2022)  

Public ISBD [article]  inAutism > 26-8 (November 2022) . - p.2117-2135 Titre : Loneliness in autistic adults: A systematic review Type de document : Texte imprimé et/ou numérique Auteurs : Kana UMAGAMI, Auteur ; Anna REMINGTON, Auteur ; Brynmor LLOYD-EVANS, Auteur ; Jade DAVIES, Auteur ; Laura CRANE, Auteur Article en page(s) : p.2117-2135 Langues : Anglais (eng) Mots-clés : Adult  Child  Humans  Adolescent  Loneliness  Autistic Disorder/complications  Autism Spectrum Disorder/complications  Anxiety  Surveys and Questionnaires  adults  autism  relationships  systematic review Index. décimale : PER Périodiques Résumé : Recently, researchers have been interested in how autistic people experience loneliness. Yet, most of this research has focused on loneliness in autistic children and young people. We present the results of a systematic review on loneliness in autistic adults. A systematic review is a rigorous way of searching for all existing research on a topic and summarizing the findings about specific questions. We searched for all research published on this topic until 9 April 2021. We found 34 articles that investigated loneliness in autistic adults. This research showed that (1) there is fairly little research that has involved directly asking autistic adults about their first-hand experiences of loneliness (e.g. what loneliness feels like for them); (2) few research studies have used loneliness questionnaires specifically developed for autistic adults (this was attempted in just one research study); (3) collective loneliness (i.e. loneliness associated with how much an autistic person feels they 'fit in' to society) seems important to autistic adults but has not been investigated as commonly as other aspects of loneliness (e.g. loneliness associated with romantic relationships or friendships); (4) things that might increase loneliness in autistic adults include anxiety and depression, and a lack of autism understanding and acceptance, for example; and (5) things that might reduce loneliness in autistic adults include having relationships and self-acceptance, for example. In our article, we discuss the kinds of future research on loneliness in autistic adults that might be useful. En ligne : http://dx.doi.org/10.1177/13623613221077721 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=488 [article] Loneliness in autistic adults: A systematic review [Texte imprimé et/ou numérique] / Kana UMAGAMI, Auteur ; Anna REMINGTON, Auteur ; Brynmor LLOYD-EVANS, Auteur ; Jade DAVIES, Auteur ; Laura CRANE, Auteur . - p.2117-2135. Langues : Anglais (eng) in Autism > 26-8 (November 2022) . - p.2117-2135 Mots-clés : Adult  Child  Humans  Adolescent  Loneliness  Autistic Disorder/complications  Autism Spectrum Disorder/complications  Anxiety  Surveys and Questionnaires  adults  autism  relationships  systematic review Index. décimale : PER Périodiques Résumé : Recently, researchers have been interested in how autistic people experience loneliness. Yet, most of this research has focused on loneliness in autistic children and young people. We present the results of a systematic review on loneliness in autistic adults. A systematic review is a rigorous way of searching for all existing research on a topic and summarizing the findings about specific questions. We searched for all research published on this topic until 9 April 2021. We found 34 articles that investigated loneliness in autistic adults. This research showed that (1) there is fairly little research that has involved directly asking autistic adults about their first-hand experiences of loneliness (e.g. what loneliness feels like for them); (2) few research studies have used loneliness questionnaires specifically developed for autistic adults (this was attempted in just one research study); (3) collective loneliness (i.e. loneliness associated with how much an autistic person feels they 'fit in' to society) seems important to autistic adults but has not been investigated as commonly as other aspects of loneliness (e.g. loneliness associated with romantic relationships or friendships); (4) things that might increase loneliness in autistic adults include anxiety and depression, and a lack of autism understanding and acceptance, for example; and (5) things that might reduce loneliness in autistic adults include having relationships and self-acceptance, for example. In our article, we discuss the kinds of future research on loneliness in autistic adults that might be useful. En ligne : http://dx.doi.org/10.1177/13623613221077721 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=488

Determinants of satisfaction with the detection process of autism in Europe: Results from the ASDEU study / Quentin GUILLON in Autism, 26-8 (November 2022)  

Public ISBD [article]  inAutism > 26-8 (November 2022) . - p.2136-2150 Titre : Determinants of satisfaction with the detection process of autism in Europe: Results from the ASDEU study Type de document : Texte imprimé et/ou numérique Auteurs : Quentin GUILLON, Auteur ; Sophie BADUEL, Auteur ; Alvaro BEJARANO-MARTIN, Auteur ; Ricardo CANAL-BEDIA, Auteur ; Maria MAGAN-MAGANTO, Auteur ; Clara FERNÁNDEZ-ÁLVAREZ, Auteur ; Maria Victoria MARTAN-CILLEROS, Auteur ; María Cruz SÁNCHEZ-GÓMEZ, Auteur ; Patricia GARCÍA PRIMO, Auteur ; Mary ROSE-SWEENEY, Auteur ; Andrew BOILSON, Auteur ; Renata LINERTOVÁ, Auteur ; Herbert ROEYERS, Auteur ; Sara VAN DER PAELT, Auteur ; Diana SCHENDEL, Auteur ; Christine Kloster WARBERG, Auteur ; Susanne CRAMER, Auteur ; Antonio NARZISI, Auteur ; Filippo MURATORI, Auteur ; Maria Luisa SCATTONI, Auteur ; Irma MOILANEN, Auteur ; Anneli YLIHERVA, Auteur ; Evald SAEMUNDSEN, Auteur ; Sigrídur Lóa JONSDOTTIR, Auteur ; Magdalena EFRIM-BUDISTEANU, Auteur ; Aurora ARGHIR, Auteur ; Sorina Mihaela PAPUC, Auteur ; Astrid VICENTE, Auteur ; Célia RASGA, Auteur ; Johanna XENIA KAFKA, Auteur ; Luise POUSTKA, Auteur ; Oswald D. KOTHGASSNER, Auteur ; Rafal KAWA, Auteur ; Ewa PISULA, Auteur ; Tracey SELLERS, Auteur ; Manuel POSADA DE LA PAZ, Auteur ; Bernadette ROGE, Auteur Article en page(s) : p.2136-2150 Langues : Anglais (eng) Mots-clés : Child  Humans  Child, Preschool  Autistic Disorder/diagnosis/psychology  Personal Satisfaction  Autism Spectrum Disorder/diagnosis/psychology  Parents/psychology  Family  autism  early detection  parents’ experiences  satisfaction Index. décimale : PER Périodiques Résumé : Professional guidance and support in response to first concerns appears to be an important predictor of the level of satisfaction with the detection process of autism in young children. In this study, we analyzed the views of 1342 family members, including 1278 parents, who completed an online survey form collecting information about their experience and satisfaction with the early detection of autism in their child. Specifically, we were interested in how specific experiences with the detection process relate to the satisfaction with it and whether we could identify important predictors of satisfaction. The detection process is an emotionally charged period for parents, often described as painful, chaotic, and lengthy. A better understanding of their experiences is important to take appropriate action to improve the detection process. In our sample, the level of satisfaction with the detection process varied greatly from one respondent to another. Among the different experiences we considered, whether or not respondents received professional guidance and support in response to first concerns explained most of this variation. We also found that difficulty finding information about detection services, lack of professional guidance and support in response to first concerns, having to find a diagnostic service on one's own, and longer delays between confirmation of concerns and first appointment with a specialist were experiences associated with a greater likelihood of being unsatisfied. The findings of this study highlight the importance of the parent-professional relationship in the detection process and have important practical implications for health administrations to improve the detection process. En ligne : http://dx.doi.org/10.1177/13623613221080318 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=488 [article] Determinants of satisfaction with the detection process of autism in Europe: Results from the ASDEU study [Texte imprimé et/ou numérique] / Quentin GUILLON, Auteur ; Sophie BADUEL, Auteur ; Alvaro BEJARANO-MARTIN, Auteur ; Ricardo CANAL-BEDIA, Auteur ; Maria MAGAN-MAGANTO, Auteur ; Clara FERNÁNDEZ-ÁLVAREZ, Auteur ; Maria Victoria MARTAN-CILLEROS, Auteur ; María Cruz SÁNCHEZ-GÓMEZ, Auteur ; Patricia GARCÍA PRIMO, Auteur ; Mary ROSE-SWEENEY, Auteur ; Andrew BOILSON, Auteur ; Renata LINERTOVÁ, Auteur ; Herbert ROEYERS, Auteur ; Sara VAN DER PAELT, Auteur ; Diana SCHENDEL, Auteur ; Christine Kloster WARBERG, Auteur ; Susanne CRAMER, Auteur ; Antonio NARZISI, Auteur ; Filippo MURATORI, Auteur ; Maria Luisa SCATTONI, Auteur ; Irma MOILANEN, Auteur ; Anneli YLIHERVA, Auteur ; Evald SAEMUNDSEN, Auteur ; Sigrídur Lóa JONSDOTTIR, Auteur ; Magdalena EFRIM-BUDISTEANU, Auteur ; Aurora ARGHIR, Auteur ; Sorina Mihaela PAPUC, Auteur ; Astrid VICENTE, Auteur ; Célia RASGA, Auteur ; Johanna XENIA KAFKA, Auteur ; Luise POUSTKA, Auteur ; Oswald D. KOTHGASSNER, Auteur ; Rafal KAWA, Auteur ; Ewa PISULA, Auteur ; Tracey SELLERS, Auteur ; Manuel POSADA DE LA PAZ, Auteur ; Bernadette ROGE, Auteur . - p.2136-2150. Langues : Anglais (eng) in Autism > 26-8 (November 2022) . - p.2136-2150 Mots-clés : Child  Humans  Child, Preschool  Autistic Disorder/diagnosis/psychology  Personal Satisfaction  Autism Spectrum Disorder/diagnosis/psychology  Parents/psychology  Family  autism  early detection  parents’ experiences  satisfaction Index. décimale : PER Périodiques Résumé : Professional guidance and support in response to first concerns appears to be an important predictor of the level of satisfaction with the detection process of autism in young children. In this study, we analyzed the views of 1342 family members, including 1278 parents, who completed an online survey form collecting information about their experience and satisfaction with the early detection of autism in their child. Specifically, we were interested in how specific experiences with the detection process relate to the satisfaction with it and whether we could identify important predictors of satisfaction. The detection process is an emotionally charged period for parents, often described as painful, chaotic, and lengthy. A better understanding of their experiences is important to take appropriate action to improve the detection process. In our sample, the level of satisfaction with the detection process varied greatly from one respondent to another. Among the different experiences we considered, whether or not respondents received professional guidance and support in response to first concerns explained most of this variation. We also found that difficulty finding information about detection services, lack of professional guidance and support in response to first concerns, having to find a diagnostic service on one's own, and longer delays between confirmation of concerns and first appointment with a specialist were experiences associated with a greater likelihood of being unsatisfied. The findings of this study highlight the importance of the parent-professional relationship in the detection process and have important practical implications for health administrations to improve the detection process. En ligne : http://dx.doi.org/10.1177/13623613221080318 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=488

'It's being a part of a grand tradition, a grand counter-culture which involves communities': A qualitative investigation of autistic community connectedness / Monique BOTHA in Autism, 26-8 (November 2022)  

Public ISBD [article]  inAutism > 26-8 (November 2022) . - p.2151-2164 Titre : 'It's being a part of a grand tradition, a grand counter-culture which involves communities': A qualitative investigation of autistic community connectedness Type de document : Texte imprimé et/ou numérique Auteurs : Monique BOTHA, Auteur ; Bridget DIBB, Auteur ; David M. FROST, Auteur Article en page(s) : p.2151-2164 Langues : Anglais (eng) Mots-clés : Humans  Autistic Disorder/psychology  Autism Spectrum Disorder  Friends  Mental Health  Interpersonal Relations  autistic community  belongingness  community  identity  political connectedness  qualitative research  social connectedness  stigma  wellbeing  research, authorship and/or publication of this article. Index. décimale : PER Périodiques Résumé : A sense of being connected to other autistic people has been reported anecdotally. Friendships and connectedness may be important to autistic people and beneficial for their wellbeing. Our research aimed to understand the autistic community by interviewing 20 autistic people about their experiences of being connected to other autistic people. Participants were interviewed in person, over video, using a text-based software to type or over email. Participants detailed three parts of autistic community connectedness: a sense of belonging, social connection with autistic friends and political connectedness. The friendships autistic people had with one another were deemed to be very important to participants because it gave them confidence, provided companionship and made them happy. Some participants did not experience connectedness to the autistic community. These participants also found autism to be less important to their identity and had fewer positive feelings about being autistic. This research is important as it raises awareness that community connectedness is viewed as important to this group. It is possible that community connectedness may help protect the mental health of autistic people when they face stigma or negative life experiences in society. En ligne : http://dx.doi.org/10.1177/13623613221080248 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=488 [article] 'It's being a part of a grand tradition, a grand counter-culture which involves communities': A qualitative investigation of autistic community connectedness [Texte imprimé et/ou numérique] / Monique BOTHA, Auteur ; Bridget DIBB, Auteur ; David M. FROST, Auteur . - p.2151-2164. Langues : Anglais (eng) in Autism > 26-8 (November 2022) . - p.2151-2164 Mots-clés : Humans  Autistic Disorder/psychology  Autism Spectrum Disorder  Friends  Mental Health  Interpersonal Relations  autistic community  belongingness  community  identity  political connectedness  qualitative research  social connectedness  stigma  wellbeing  research, authorship and/or publication of this article. Index. décimale : PER Périodiques Résumé : A sense of being connected to other autistic people has been reported anecdotally. Friendships and connectedness may be important to autistic people and beneficial for their wellbeing. Our research aimed to understand the autistic community by interviewing 20 autistic people about their experiences of being connected to other autistic people. Participants were interviewed in person, over video, using a text-based software to type or over email. Participants detailed three parts of autistic community connectedness: a sense of belonging, social connection with autistic friends and political connectedness. The friendships autistic people had with one another were deemed to be very important to participants because it gave them confidence, provided companionship and made them happy. Some participants did not experience connectedness to the autistic community. These participants also found autism to be less important to their identity and had fewer positive feelings about being autistic. This research is important as it raises awareness that community connectedness is viewed as important to this group. It is possible that community connectedness may help protect the mental health of autistic people when they face stigma or negative life experiences in society. En ligne : http://dx.doi.org/10.1177/13623613221080248 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=488

Understanding feeding problems in autistic children: Exploring the interplay between internalizing symptoms and sensory features / Alessandro CRIPPA in Autism, 26-8 (November 2022)  

Public ISBD [article]  inAutism > 26-8 (November 2022) . - p.2165-2174 Titre : Understanding feeding problems in autistic children: Exploring the interplay between internalizing symptoms and sensory features Type de document : Texte imprimé et/ou numérique Auteurs : Alessandro CRIPPA, Auteur ; Paola COLOMBO, Auteur ; Valentina DE COSMI, Auteur ; Alessandra MAZZOCCHI, Auteur ; Silvia SCAGLIONI, Auteur ; Giulia Carla Immacolata SPOLIDORO, Auteur ; Silvia BETTOCCHI, Auteur ; Veronica D'ORIA, Auteur ; Nicole VIGANO, Auteur ; Elisa MANI, Auteur ; Massimo MOLTENI, Auteur ; Carlo AGOSTONI, Auteur Article en page(s) : p.2165-2174 Langues : Anglais (eng) Mots-clés : Child  Humans  Autistic Disorder  Autism Spectrum Disorder  Feeding Behavior  autism spectrum disorder  feeding problems  internalizing problems  mealtime behaviors  preschool  sensory profile Index. décimale : PER Périodiques Résumé : This study adds to a growing body of research documenting feeding problems in autistic children. Our results indicate that children aged 1.5-5 years with feeding problems may present with elevated internalizing difficulties and alterations in sensory processing when compared to same-age children without feeding problems. Our study also proposes that sensory processing may be an important, mediating factor in the relationship between autism features and feeding problems. The present work suggests, therefore, that implementers should thoroughly consider the sensory profile of autistic children prior to intervening on feeding behaviors. In particular, based on these preliminary findings, feeding interventions could benefit from environments designed to support children who can find them noisy and overwhelming. En ligne : http://dx.doi.org/10.1177/13623613221080227 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=488 [article] Understanding feeding problems in autistic children: Exploring the interplay between internalizing symptoms and sensory features [Texte imprimé et/ou numérique] / Alessandro CRIPPA, Auteur ; Paola COLOMBO, Auteur ; Valentina DE COSMI, Auteur ; Alessandra MAZZOCCHI, Auteur ; Silvia SCAGLIONI, Auteur ; Giulia Carla Immacolata SPOLIDORO, Auteur ; Silvia BETTOCCHI, Auteur ; Veronica D'ORIA, Auteur ; Nicole VIGANO, Auteur ; Elisa MANI, Auteur ; Massimo MOLTENI, Auteur ; Carlo AGOSTONI, Auteur . - p.2165-2174. Langues : Anglais (eng) in Autism > 26-8 (November 2022) . - p.2165-2174 Mots-clés : Child  Humans  Autistic Disorder  Autism Spectrum Disorder  Feeding Behavior  autism spectrum disorder  feeding problems  internalizing problems  mealtime behaviors  preschool  sensory profile Index. décimale : PER Périodiques Résumé : This study adds to a growing body of research documenting feeding problems in autistic children. Our results indicate that children aged 1.5-5 years with feeding problems may present with elevated internalizing difficulties and alterations in sensory processing when compared to same-age children without feeding problems. Our study also proposes that sensory processing may be an important, mediating factor in the relationship between autism features and feeding problems. The present work suggests, therefore, that implementers should thoroughly consider the sensory profile of autistic children prior to intervening on feeding behaviors. In particular, based on these preliminary findings, feeding interventions could benefit from environments designed to support children who can find them noisy and overwhelming. En ligne : http://dx.doi.org/10.1177/13623613221080227 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=488

Supporting peer engagement for low-income preschool students with autism spectrum disorder during academic instruction: A pilot randomized trial / Jonathan L. PANGANIBAN in Autism, 26-8 (November 2022)  

Public ISBD [article]  inAutism > 26-8 (November 2022) . - p.2175-2187 Titre : Supporting peer engagement for low-income preschool students with autism spectrum disorder during academic instruction: A pilot randomized trial Type de document : Texte imprimé et/ou numérique Auteurs : Jonathan L. PANGANIBAN, Auteur ; Stephanie Y. SHIRE, Auteur ; Justin H.G. WILLIAMS, Auteur ; Connie KASARI, Auteur Article en page(s) : p.2175-2187 Langues : Anglais (eng) Mots-clés : Child  Child, Preschool  Humans  Autism Spectrum Disorder  Pilot Projects  School Teachers  Autistic Disorder  Students  Jasper  autism spectrum disorders  engagement  peer  pre-school children  professional development  social communication  research, authorship, and/or publication of this article. Index. décimale : PER Périodiques Résumé : Children with autism spectrum disorder attending special education preschool classrooms may not receive support that addresses their core challenges, such as engagement and social communication. There are interventions designed to target these core challenges, like the play-based intervention known as Joint Attention, Symbolic Play, Engagement, and Regulation. Embedding strategies from an intervention like Joint Attention, Symbolic Play, Engagement, and Regulation into more traditional academic activities can help teachers target engagement and social communication throughout the school day. In the current study, we collaborated with special education preschool teachers to embed Joint Attention, Symbolic Play, Engagement, and Regulation strategies during small group time for moderate to severe disability students with autism spectrum disorder, 3-5 years of age. Compared to teachers implementing the standard preschool curriculum, teachers trained in Joint Attention, Symbolic Play, Engagement, and Regulation strategies effectively embedded these strategies in their small group activities, and their students were more likely to engage with peers during these activities. Supporting teachers to embed targeted strategies in academic activities can help them provide students more opportunities to engage with peers during the school day. Teachers can support their autistic students to interact appropriately with their peers. Unlike interventions that train peers to act as a teacher, embedding Joint Attention, Symbolic Play, Engagement, and Regulation strategies during small group academic activities facilitates naturalistic social interactions for autistic students. En ligne : http://dx.doi.org/10.1177/13623613221085339 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=488 [article] Supporting peer engagement for low-income preschool students with autism spectrum disorder during academic instruction: A pilot randomized trial [Texte imprimé et/ou numérique] / Jonathan L. PANGANIBAN, Auteur ; Stephanie Y. SHIRE, Auteur ; Justin H.G. WILLIAMS, Auteur ; Connie KASARI, Auteur . - p.2175-2187. Langues : Anglais (eng) in Autism > 26-8 (November 2022) . - p.2175-2187 Mots-clés : Child  Child, Preschool  Humans  Autism Spectrum Disorder  Pilot Projects  School Teachers  Autistic Disorder  Students  Jasper  autism spectrum disorders  engagement  peer  pre-school children  professional development  social communication  research, authorship, and/or publication of this article. Index. décimale : PER Périodiques Résumé : Children with autism spectrum disorder attending special education preschool classrooms may not receive support that addresses their core challenges, such as engagement and social communication. There are interventions designed to target these core challenges, like the play-based intervention known as Joint Attention, Symbolic Play, Engagement, and Regulation. Embedding strategies from an intervention like Joint Attention, Symbolic Play, Engagement, and Regulation into more traditional academic activities can help teachers target engagement and social communication throughout the school day. In the current study, we collaborated with special education preschool teachers to embed Joint Attention, Symbolic Play, Engagement, and Regulation strategies during small group time for moderate to severe disability students with autism spectrum disorder, 3-5 years of age. Compared to teachers implementing the standard preschool curriculum, teachers trained in Joint Attention, Symbolic Play, Engagement, and Regulation strategies effectively embedded these strategies in their small group activities, and their students were more likely to engage with peers during these activities. Supporting teachers to embed targeted strategies in academic activities can help them provide students more opportunities to engage with peers during the school day. Teachers can support their autistic students to interact appropriately with their peers. Unlike interventions that train peers to act as a teacher, embedding Joint Attention, Symbolic Play, Engagement, and Regulation strategies during small group academic activities facilitates naturalistic social interactions for autistic students. En ligne : http://dx.doi.org/10.1177/13623613221085339 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=488

Co-occurring ADHD symptoms in autistic adults are associated with less independence in daily living activities and lower subjective quality of life / Benjamin E. YERYS in Autism, 26-8 (November 2022)  

Public ISBD [article]  inAutism > 26-8 (November 2022) . - p.2188-2195 Titre : Co-occurring ADHD symptoms in autistic adults are associated with less independence in daily living activities and lower subjective quality of life Type de document : Texte imprimé et/ou numérique Auteurs : Benjamin E. YERYS, Auteur ; Goldie A. MCQUAID, Auteur ; Nancy Raitano LEE, Auteur ; Gregory L. WALLACE, Auteur Article en page(s) : p.2188-2195 Langues : Anglais (eng) Mots-clés : Adult  Humans  Female  Male  Attention Deficit Disorder with  Hyperactivity/complications/epidemiology/diagnosis  Autistic Disorder/complications/epidemiology/diagnosis  Activities of Daily Living/psychology  Quality of Life  Autism Spectrum Disorder/complications/epidemiology/diagnosis  attention-deficit/hyperactivity disorder  autism  daily living skills Index. décimale : PER Périodiques Résumé : Outcomes for autistic adults are generally poor, including activities of daily living and self-ratings of quality of life. Co-occurring psychiatric conditions contribute to these poor outcomes. Attention-deficit/hyperactivity disorder is one of the most common co-occurring conditions in autistic individuals. However, we know little about the association between attention-deficit/hyperactivity disorder symptoms and outcomes in autistic adults. A total of 724 autistic adults (18-83 years; 58% female) recruited from the Simons Foundation Powering Autism Research participant registry completed questionnaires on demographics, co-occurring psychiatric conditions, activities of daily living, and subjective quality of life. Autistic adults who rated themselves as having more attention-deficit/hyperactivity disorder symptoms also rated themselves as having less independence in activities of daily living and a lower quality of life. This is the first study to show these relationships in autistic adults. These findings highlight that additional research and better supports for co-occurring attention-deficit/hyperactivity disorder symptoms may be critical to improving independence and quality of life for autistic adults. En ligne : http://dx.doi.org/10.1177/13623613221112198 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=488 [article] Co-occurring ADHD symptoms in autistic adults are associated with less independence in daily living activities and lower subjective quality of life [Texte imprimé et/ou numérique] / Benjamin E. YERYS, Auteur ; Goldie A. MCQUAID, Auteur ; Nancy Raitano LEE, Auteur ; Gregory L. WALLACE, Auteur . - p.2188-2195. Langues : Anglais (eng) in Autism > 26-8 (November 2022) . - p.2188-2195 Mots-clés : Adult  Humans  Female  Male  Attention Deficit Disorder with  Hyperactivity/complications/epidemiology/diagnosis  Autistic Disorder/complications/epidemiology/diagnosis  Activities of Daily Living/psychology  Quality of Life  Autism Spectrum Disorder/complications/epidemiology/diagnosis  attention-deficit/hyperactivity disorder  autism  daily living skills Index. décimale : PER Périodiques Résumé : Outcomes for autistic adults are generally poor, including activities of daily living and self-ratings of quality of life. Co-occurring psychiatric conditions contribute to these poor outcomes. Attention-deficit/hyperactivity disorder is one of the most common co-occurring conditions in autistic individuals. However, we know little about the association between attention-deficit/hyperactivity disorder symptoms and outcomes in autistic adults. A total of 724 autistic adults (18-83 years; 58% female) recruited from the Simons Foundation Powering Autism Research participant registry completed questionnaires on demographics, co-occurring psychiatric conditions, activities of daily living, and subjective quality of life. Autistic adults who rated themselves as having more attention-deficit/hyperactivity disorder symptoms also rated themselves as having less independence in activities of daily living and a lower quality of life. This is the first study to show these relationships in autistic adults. These findings highlight that additional research and better supports for co-occurring attention-deficit/hyperactivity disorder symptoms may be critical to improving independence and quality of life for autistic adults. En ligne : http://dx.doi.org/10.1177/13623613221112198 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=488