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Access to services, quality of care, and family impact for children with autism, other developmental disabilities, and other mental health conditions / Rini VOHRA in Autism, 18-7 (October 2014)
[article]
Titre : Access to services, quality of care, and family impact for children with autism, other developmental disabilities, and other mental health conditions Type de document : Texte imprimé et/ou numérique Auteurs : Rini VOHRA, Auteur ; Suresh MADHAVAN, Auteur ; Usha SAMBAMOORTHI, Auteur ; Claire ST PETER, Auteur Article en page(s) : p.815-826 Langues : Anglais (eng) Mots-clés : Access to services autism autism spectrum disorder health care burden of autism developmental disabilities family impact mental health condition quality of care Index. décimale : PER Périodiques Résumé : This cross-sectional study examined perceived access to services, quality of care, and family impact reported by caregivers of children aged 3–17 years with autism spectrum disorders, as compared to caregivers of children with other developmental disabilities and other mental health conditions. The 2009–2010 National Survey of Children with Special Health Care Needs was utilized to examine the association between child’s special needs condition and three outcomes (N = 18,136): access to services (difficulty using services, difficulty getting referrals, lack of source of care, and inadequate insurance coverage), quality of care (lack of care coordination, lack of shared decision making, and no routine screening), and family impact (financial, employment, and time-related burden). Multivariate logistic regressions were performed to compare caregivers of children with autism spectrum disorders to caregivers of children with developmental disabilities (cerebral palsy, Down syndrome, developmental delay, or intellectual disability), mental health conditions (attention deficit hyperactivity disorder, anxiety, behavioral/conduct problems, or depression), or both developmental disabilities and mental health conditions. Caregivers of children with autism spectrum disorders were significantly more likely to report difficulty using services, lack of source of care, inadequate insurance coverage, lack of shared decision making and care coordination, and adverse family impact as compared to caregivers of children with developmental disabilities, mental health conditions, or both. En ligne : http://dx.doi.org/10.1177/1362361313512902 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=241
in Autism > 18-7 (October 2014) . - p.815-826[article] Access to services, quality of care, and family impact for children with autism, other developmental disabilities, and other mental health conditions [Texte imprimé et/ou numérique] / Rini VOHRA, Auteur ; Suresh MADHAVAN, Auteur ; Usha SAMBAMOORTHI, Auteur ; Claire ST PETER, Auteur . - p.815-826.
Langues : Anglais (eng)
in Autism > 18-7 (October 2014) . - p.815-826
Mots-clés : Access to services autism autism spectrum disorder health care burden of autism developmental disabilities family impact mental health condition quality of care Index. décimale : PER Périodiques Résumé : This cross-sectional study examined perceived access to services, quality of care, and family impact reported by caregivers of children aged 3–17 years with autism spectrum disorders, as compared to caregivers of children with other developmental disabilities and other mental health conditions. The 2009–2010 National Survey of Children with Special Health Care Needs was utilized to examine the association between child’s special needs condition and three outcomes (N = 18,136): access to services (difficulty using services, difficulty getting referrals, lack of source of care, and inadequate insurance coverage), quality of care (lack of care coordination, lack of shared decision making, and no routine screening), and family impact (financial, employment, and time-related burden). Multivariate logistic regressions were performed to compare caregivers of children with autism spectrum disorders to caregivers of children with developmental disabilities (cerebral palsy, Down syndrome, developmental delay, or intellectual disability), mental health conditions (attention deficit hyperactivity disorder, anxiety, behavioral/conduct problems, or depression), or both developmental disabilities and mental health conditions. Caregivers of children with autism spectrum disorders were significantly more likely to report difficulty using services, lack of source of care, inadequate insurance coverage, lack of shared decision making and care coordination, and adverse family impact as compared to caregivers of children with developmental disabilities, mental health conditions, or both. En ligne : http://dx.doi.org/10.1177/1362361313512902 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=241 Language Barriers Impact Access to Services for Children with Autism Spectrum Disorders / H. G. ST AMANT in Journal of Autism and Developmental Disorders, 48-2 (February 2018)
[article]
Titre : Language Barriers Impact Access to Services for Children with Autism Spectrum Disorders Type de document : Texte imprimé et/ou numérique Auteurs : H. G. ST AMANT, Auteur ; Sheree M. SCHRAGER, Auteur ; C. PENA-RICARDO, Auteur ; M. E. WILLIAMS, Auteur ; D. L. VANDERBILT, Auteur Article en page(s) : p.333-340 Langues : Anglais (eng) Mots-clés : Access to services Autism spectrum disorder Health care disparities Individualized education plan Language barriers Index. décimale : PER Périodiques Résumé : Racial and ethnic disparities in accessing health care have been described in children with autism spectrum disorder (ASD). In a retrospective chart review of 152 children with ASD, children of parents whose primary language was English were significantly more likely to have both social skills and communication goals within their individualized education plan (IEP) compared to children of parents whose primary language was not English. Additionally, children of primary English speakers received significantly more hours of direct services from their state disability program. After controlling for demographic covariates, findings suggest that language barriers may negatively affect parents' abilities to access health care services for their child with ASD. Acculturation factors must therefore be considered when analyzing disparities in autism. En ligne : https://doi.org/10.1007/s10803-017-3330-y Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=337
in Journal of Autism and Developmental Disorders > 48-2 (February 2018) . - p.333-340[article] Language Barriers Impact Access to Services for Children with Autism Spectrum Disorders [Texte imprimé et/ou numérique] / H. G. ST AMANT, Auteur ; Sheree M. SCHRAGER, Auteur ; C. PENA-RICARDO, Auteur ; M. E. WILLIAMS, Auteur ; D. L. VANDERBILT, Auteur . - p.333-340.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 48-2 (February 2018) . - p.333-340
Mots-clés : Access to services Autism spectrum disorder Health care disparities Individualized education plan Language barriers Index. décimale : PER Périodiques Résumé : Racial and ethnic disparities in accessing health care have been described in children with autism spectrum disorder (ASD). In a retrospective chart review of 152 children with ASD, children of parents whose primary language was English were significantly more likely to have both social skills and communication goals within their individualized education plan (IEP) compared to children of parents whose primary language was not English. Additionally, children of primary English speakers received significantly more hours of direct services from their state disability program. After controlling for demographic covariates, findings suggest that language barriers may negatively affect parents' abilities to access health care services for their child with ASD. Acculturation factors must therefore be considered when analyzing disparities in autism. En ligne : https://doi.org/10.1007/s10803-017-3330-y Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=337 Perceived self-efficacy in parents of adolescents and adults with autism spectrum disorder / Jonathan A WEISS in Autism, 20-4 (May 2016)
[article]
Titre : Perceived self-efficacy in parents of adolescents and adults with autism spectrum disorder Type de document : Texte imprimé et/ou numérique Auteurs : Jonathan A WEISS, Auteur ; Ami TINT, Auteur ; Melissa PAQUETTE-SMITH, Auteur ; Yona LUNSKY, Auteur Article en page(s) : p.425-434 Langues : Anglais (eng) Mots-clés : access to services autism spectrum disorder parent self-efficacy parenting Index. décimale : PER Périodiques Résumé : Many parents of adolescents and adults with autism spectrum disorder experience difficulty accessing appropriate services for their children, and may report low levels of parent self-efficacy. In an effort to identify the factors that contribute to the difficulties these families face, this study examined the role of demographic, systemic, and clinical need variables as they relate to parents’ experience of self-efficacy. Participants included 324 parents of individuals with autism spectrum disorder, 12–25?years of age. Results suggest that parent self-efficacy is related to a number of variables and not simply a child’s clinical situation, including child age, parent immigrant status, barriers to service access, and caregiver burden. Given the crucial role that parents often play in the lives of individuals with autism spectrum disorder across the lifespan, it is important that service providers support the efforts of parents who provide and access care for their children. En ligne : http://dx.doi.org/10.1177/1362361315586292 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=287
in Autism > 20-4 (May 2016) . - p.425-434[article] Perceived self-efficacy in parents of adolescents and adults with autism spectrum disorder [Texte imprimé et/ou numérique] / Jonathan A WEISS, Auteur ; Ami TINT, Auteur ; Melissa PAQUETTE-SMITH, Auteur ; Yona LUNSKY, Auteur . - p.425-434.
Langues : Anglais (eng)
in Autism > 20-4 (May 2016) . - p.425-434
Mots-clés : access to services autism spectrum disorder parent self-efficacy parenting Index. décimale : PER Périodiques Résumé : Many parents of adolescents and adults with autism spectrum disorder experience difficulty accessing appropriate services for their children, and may report low levels of parent self-efficacy. In an effort to identify the factors that contribute to the difficulties these families face, this study examined the role of demographic, systemic, and clinical need variables as they relate to parents’ experience of self-efficacy. Participants included 324 parents of individuals with autism spectrum disorder, 12–25?years of age. Results suggest that parent self-efficacy is related to a number of variables and not simply a child’s clinical situation, including child age, parent immigrant status, barriers to service access, and caregiver burden. Given the crucial role that parents often play in the lives of individuals with autism spectrum disorder across the lifespan, it is important that service providers support the efforts of parents who provide and access care for their children. En ligne : http://dx.doi.org/10.1177/1362361315586292 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=287 Impact of Choice on Social Outcomes of Adults with ASD / Margaret H. MEHLING in Journal of Autism and Developmental Disorders, 45-6 (June 2015)
[article]
Titre : Impact of Choice on Social Outcomes of Adults with ASD Type de document : Texte imprimé et/ou numérique Auteurs : Margaret H. MEHLING, Auteur ; Marc J. TASSE, Auteur Article en page(s) : p.1588-1602 Langues : Anglais (eng) Mots-clés : Autism Social relationships Social participation Access to services Personal control National core indicators Index. décimale : PER Périodiques Résumé : This study explores social outcomes for adults with autism spectrum disorder (ASD) in comparison to adults with developmental disabilities other than ASD by investigating the relationships between the constructs Social Participation and Relationships, Social Determination, and Personal Control. Structural equation modeling (SEM) was used to test a model of the relationships among constructs of interest and structured means analysis was used to test for mean group differences on these constructs. Results indicated that individuals with ASD had lower levels of Social Determination and Friendships than individuals with other developmental disabilities. SEM analyses yielded significant relationships between constructs. Results provide insight with regards to novel statistical, theoretical, and practical approaches to the study of social outcomes for individuals with ASD. En ligne : http://dx.doi.org/10.1007/s10803-014-2312-6 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=259
in Journal of Autism and Developmental Disorders > 45-6 (June 2015) . - p.1588-1602[article] Impact of Choice on Social Outcomes of Adults with ASD [Texte imprimé et/ou numérique] / Margaret H. MEHLING, Auteur ; Marc J. TASSE, Auteur . - p.1588-1602.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 45-6 (June 2015) . - p.1588-1602
Mots-clés : Autism Social relationships Social participation Access to services Personal control National core indicators Index. décimale : PER Périodiques Résumé : This study explores social outcomes for adults with autism spectrum disorder (ASD) in comparison to adults with developmental disabilities other than ASD by investigating the relationships between the constructs Social Participation and Relationships, Social Determination, and Personal Control. Structural equation modeling (SEM) was used to test a model of the relationships among constructs of interest and structured means analysis was used to test for mean group differences on these constructs. Results indicated that individuals with ASD had lower levels of Social Determination and Friendships than individuals with other developmental disabilities. SEM analyses yielded significant relationships between constructs. Results provide insight with regards to novel statistical, theoretical, and practical approaches to the study of social outcomes for individuals with ASD. En ligne : http://dx.doi.org/10.1007/s10803-014-2312-6 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=259