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African American Families on Autism Diagnosis and Treatment: The Influence of Culture / Karen BURKETT in Journal of Autism and Developmental Disorders, 45-10 (October 2015)
[article]
Titre : African American Families on Autism Diagnosis and Treatment: The Influence of Culture Type de document : Texte imprimé et/ou numérique Auteurs : Karen BURKETT, Auteur ; Edith MORRIS, Auteur ; Patricia MANNING-COURTNEY, Auteur ; Jean ANTHONY, Auteur ; Donna SHAMBLEY-EBRON, Auteur Article en page(s) : p.3244-3254 Langues : Anglais (eng) Mots-clés : Autism spectrum disorder Health care disparities African American families Cultural factors ASD diagnosis Index. décimale : PER Périodiques Résumé : Cultural factors such as health care access and autism spectrum disorder (ASD) symptom interpretations have been proposed as impacting delayed diagnosis and treatment for African American children with ASD. A qualitative study of urban African American families caring for their child with autism was conducted with 24 family members and 28 ASD professionals. Cultural caring meant families protected their child from harm including potential or actual distrustful encounters, and took action for their child and community to optimize their child’s health and address the knowledge deficits of ASD within their community. Families and professionals believed cultural influences delayed families’ receiving and seeking appropriate health care for the African American child with ASD affecting timely autism diagnosis and treatment. En ligne : http://dx.doi.org/10.1007/s10803-015-2482-x Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=267
in Journal of Autism and Developmental Disorders > 45-10 (October 2015) . - p.3244-3254[article] African American Families on Autism Diagnosis and Treatment: The Influence of Culture [Texte imprimé et/ou numérique] / Karen BURKETT, Auteur ; Edith MORRIS, Auteur ; Patricia MANNING-COURTNEY, Auteur ; Jean ANTHONY, Auteur ; Donna SHAMBLEY-EBRON, Auteur . - p.3244-3254.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 45-10 (October 2015) . - p.3244-3254
Mots-clés : Autism spectrum disorder Health care disparities African American families Cultural factors ASD diagnosis Index. décimale : PER Périodiques Résumé : Cultural factors such as health care access and autism spectrum disorder (ASD) symptom interpretations have been proposed as impacting delayed diagnosis and treatment for African American children with ASD. A qualitative study of urban African American families caring for their child with autism was conducted with 24 family members and 28 ASD professionals. Cultural caring meant families protected their child from harm including potential or actual distrustful encounters, and took action for their child and community to optimize their child’s health and address the knowledge deficits of ASD within their community. Families and professionals believed cultural influences delayed families’ receiving and seeking appropriate health care for the African American child with ASD affecting timely autism diagnosis and treatment. En ligne : http://dx.doi.org/10.1007/s10803-015-2482-x Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=267 Critical examination of resilience and resistance in African American families: Adaptive capacities to navigate toxic oppressive upstream waters / Kelsey A. B. GASTINEAU ; Aijah K. B. GOODWIN ; Rachel HANEBUTT ; Velma McBride MURRY ; Lipika NARISETTI ; Juliet M. NYANAMBA in Development and Psychopathology, 35-5 (December 2023)
[article]
Titre : Critical examination of resilience and resistance in African American families: Adaptive capacities to navigate toxic oppressive upstream waters Type de document : Texte imprimé et/ou numérique Auteurs : Kelsey A. B. GASTINEAU, Auteur ; Aijah K. B. GOODWIN, Auteur ; Rachel HANEBUTT, Auteur ; Velma McBride MURRY, Auteur ; Lipika NARISETTI, Auteur ; Juliet M. NYANAMBA, Auteur Article en page(s) : p.2113-2131 Mots-clés : African American families resilience and resistance structural racism toxic waters Index. décimale : PER Périodiques Résumé : African American families navigate not only everyday stressors and adversities but also unique sociocultural stressors (e.g., ?toxic upstream waters? like oppression). These adverse conditions are consequences of the historical vestiges of slavery and Jim Crow laws, often manifested as inequities in wealth, housing, wages, employment, access to healthcare, and quality education. Despite these challenges, African American families have developed resilience using strength-based adaptive coping strategies, to some extent, to filter these waters. To advance the field of resilience research, we focused on the following questions: (1) what constitutes positive responses to adversity?; (2) how is resilience defined conceptually and measured operationally?; (3) how has the field of resilience evolved?; (4) who defines what, when, and how responses are manifestations of resilience, instead of, for example, resistance? How can resistance, which at times leads to positive adaptations, be incorporated into the study of resilience?; and (5) are there case examples that demonstrate ways to address structural oppression and the pernicious effects of racism through system-level interventions, thereby changing environmental situations that sustain toxic waters requiring acts of resilience to survive and thrive? We end by exploring how a re-conceptualization of resilience requires a paradigm shift and new methodological approaches to understand ways in which preventive interventions move beyond focusing on families? capacity to navigate oppression and target systems and structures that maintain these toxic waters. En ligne : https://dx.doi.org/10.1017/S0954579423001037 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=519
in Development and Psychopathology > 35-5 (December 2023) . - p.2113-2131[article] Critical examination of resilience and resistance in African American families: Adaptive capacities to navigate toxic oppressive upstream waters [Texte imprimé et/ou numérique] / Kelsey A. B. GASTINEAU, Auteur ; Aijah K. B. GOODWIN, Auteur ; Rachel HANEBUTT, Auteur ; Velma McBride MURRY, Auteur ; Lipika NARISETTI, Auteur ; Juliet M. NYANAMBA, Auteur . - p.2113-2131.
in Development and Psychopathology > 35-5 (December 2023) . - p.2113-2131
Mots-clés : African American families resilience and resistance structural racism toxic waters Index. décimale : PER Périodiques Résumé : African American families navigate not only everyday stressors and adversities but also unique sociocultural stressors (e.g., ?toxic upstream waters? like oppression). These adverse conditions are consequences of the historical vestiges of slavery and Jim Crow laws, often manifested as inequities in wealth, housing, wages, employment, access to healthcare, and quality education. Despite these challenges, African American families have developed resilience using strength-based adaptive coping strategies, to some extent, to filter these waters. To advance the field of resilience research, we focused on the following questions: (1) what constitutes positive responses to adversity?; (2) how is resilience defined conceptually and measured operationally?; (3) how has the field of resilience evolved?; (4) who defines what, when, and how responses are manifestations of resilience, instead of, for example, resistance? How can resistance, which at times leads to positive adaptations, be incorporated into the study of resilience?; and (5) are there case examples that demonstrate ways to address structural oppression and the pernicious effects of racism through system-level interventions, thereby changing environmental situations that sustain toxic waters requiring acts of resilience to survive and thrive? We end by exploring how a re-conceptualization of resilience requires a paradigm shift and new methodological approaches to understand ways in which preventive interventions move beyond focusing on families? capacity to navigate oppression and target systems and structures that maintain these toxic waters. En ligne : https://dx.doi.org/10.1017/S0954579423001037 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=519 Life After an Autism Spectrum Disorder Diagnosis: A Comparison of Stress and Coping Profiles of African American and Euro-American Caregivers / T. V. WILLIAMS in Journal of Autism and Developmental Disorders, 49-3 (March 2019)
[article]
Titre : Life After an Autism Spectrum Disorder Diagnosis: A Comparison of Stress and Coping Profiles of African American and Euro-American Caregivers Type de document : Texte imprimé et/ou numérique Auteurs : T. V. WILLIAMS, Auteur ; K. HARTMANN, Auteur ; James F. PAULSON, Auteur ; C. T. RAFFAELE, Auteur ; M. R. URBANO, Auteur Article en page(s) : p.1024-1034 Langues : Anglais (eng) Mots-clés : African American families Autism spectrum disorder Coping Religion Stress Index. décimale : PER Périodiques Résumé : The purpose of the present study was to understand how caregiver stress and coping behaviors impact African American and Euro-American families differently when caring for a child with autism. This study used discriminate function analysis to contrast the stress and coping profiles of Euro-American caregivers who are more acculturated with the majority culture with African American caregivers who ascribe to more traditional values. A sample of 103 families was recruited (52 Euro-American, 51 African American). African American families reported significantly more stress and utilizing more varied coping strategies than their Euro-American counterparts. Additional differences were found between the high and low acculturated African American groups such that low acculturated African Americans were more likely to engage in religious coping. En ligne : http://dx.doi.org/10.1007/s10803-018-3802-8 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=386
in Journal of Autism and Developmental Disorders > 49-3 (March 2019) . - p.1024-1034[article] Life After an Autism Spectrum Disorder Diagnosis: A Comparison of Stress and Coping Profiles of African American and Euro-American Caregivers [Texte imprimé et/ou numérique] / T. V. WILLIAMS, Auteur ; K. HARTMANN, Auteur ; James F. PAULSON, Auteur ; C. T. RAFFAELE, Auteur ; M. R. URBANO, Auteur . - p.1024-1034.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 49-3 (March 2019) . - p.1024-1034
Mots-clés : African American families Autism spectrum disorder Coping Religion Stress Index. décimale : PER Périodiques Résumé : The purpose of the present study was to understand how caregiver stress and coping behaviors impact African American and Euro-American families differently when caring for a child with autism. This study used discriminate function analysis to contrast the stress and coping profiles of Euro-American caregivers who are more acculturated with the majority culture with African American caregivers who ascribe to more traditional values. A sample of 103 families was recruited (52 Euro-American, 51 African American). African American families reported significantly more stress and utilizing more varied coping strategies than their Euro-American counterparts. Additional differences were found between the high and low acculturated African American groups such that low acculturated African Americans were more likely to engage in religious coping. En ligne : http://dx.doi.org/10.1007/s10803-018-3802-8 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=386