Centre d'Information et de documentation du CRA Rhône-Alpes
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Effectiveness of Adaptive Care Plans for Children with Developmental Disabilities During Outpatient Clinic Appointments / M. LIDDLE in Journal of Autism and Developmental Disorders, 51-9 (September 2021)
[article]
Titre : Effectiveness of Adaptive Care Plans for Children with Developmental Disabilities During Outpatient Clinic Appointments Type de document : Texte imprimé et/ou numérique Auteurs : M. LIDDLE, Auteur ; T. L. SONNENTAG, Auteur Article en page(s) : p.3028-3038 Langues : Anglais (eng) Mots-clés : Adaptation, Psychological Ambulatory Care Facilities Autism Spectrum Disorder/therapy Child Developmental Disabilities/therapy Humans Adaptive care plan Child life specialist Developmental disability Patient-centered care Index. décimale : PER Périodiques Résumé : Children with developmental disabilities require more medical experiences than typically-developing children and struggle to cooperate with healthcare encounters. Adaptive care plans, delivered by child life specialists, are individualized patient-centered plans created to address the challenges that children with developmental disabilities experience. The current study evaluated if adaptive care plans affect the psychosocial outcomes of children with ASD compared to those with other developmental disabilities. One-hundred and sixty children between 3 and 18 years of age (child's M(age)?=?8.10, SD?=?3.75) participated. Although children with developmental disabilities who had adaptive care plans did not generally experience less psychosocial distress; children with ASD who had adaptive care plans experienced fewer challenges with anxiety and coping compared to children with ASD who did not have adaptive care plans. En ligne : http://dx.doi.org/10.1007/s10803-020-04764-1 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=453
in Journal of Autism and Developmental Disorders > 51-9 (September 2021) . - p.3028-3038[article] Effectiveness of Adaptive Care Plans for Children with Developmental Disabilities During Outpatient Clinic Appointments [Texte imprimé et/ou numérique] / M. LIDDLE, Auteur ; T. L. SONNENTAG, Auteur . - p.3028-3038.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 51-9 (September 2021) . - p.3028-3038
Mots-clés : Adaptation, Psychological Ambulatory Care Facilities Autism Spectrum Disorder/therapy Child Developmental Disabilities/therapy Humans Adaptive care plan Child life specialist Developmental disability Patient-centered care Index. décimale : PER Périodiques Résumé : Children with developmental disabilities require more medical experiences than typically-developing children and struggle to cooperate with healthcare encounters. Adaptive care plans, delivered by child life specialists, are individualized patient-centered plans created to address the challenges that children with developmental disabilities experience. The current study evaluated if adaptive care plans affect the psychosocial outcomes of children with ASD compared to those with other developmental disabilities. One-hundred and sixty children between 3 and 18 years of age (child's M(age)?=?8.10, SD?=?3.75) participated. Although children with developmental disabilities who had adaptive care plans did not generally experience less psychosocial distress; children with ASD who had adaptive care plans experienced fewer challenges with anxiety and coping compared to children with ASD who did not have adaptive care plans. En ligne : http://dx.doi.org/10.1007/s10803-020-04764-1 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=453 Dysregulation in Children and Adolescents Presenting to a Multidisciplinary Autism Clinic / Roma A. VASA in Journal of Autism and Developmental Disorders, 52-4 (April 2022)
[article]
Titre : Dysregulation in Children and Adolescents Presenting to a Multidisciplinary Autism Clinic Type de document : Texte imprimé et/ou numérique Auteurs : Roma A. VASA, Auteur ; Vini SINGH, Auteur ; Rachel G. MCDONALD, Auteur ; Carla MAZEFSKY, Auteur ; Ji Su HONG, Auteur ; Amy KEEFER, Auteur Article en page(s) : p.1762-1770 Langues : Anglais (eng) Mots-clés : Adolescent Ambulatory Care Facilities Autism Spectrum Disorder/diagnosis/epidemiology/psychology Autistic Disorder/diagnosis/epidemiology Child Humans Prevalence Autism center Children Dysregulation Screening Index. décimale : PER Périodiques Résumé : Research indicates that children with autism spectrum disorder (ASD) frequently exhibit dysregulation, which refers to poorly coordinated affective, behavioral, and cognitive responses to a given situation. We examined the characteristics of dysregulation in children presenting to a multidisciplinary ASD clinic for an ASD diagnostic evaluation. Sixty percent of children presenting for an ASD evaluation exhibited dysregulation. Dysregulation prevalence was higher in children without ASD versus with ASD (69% versus 56%). Severe dysregulation was higher in children without ASD (29% versus 16%). Both groups with severe dysregulation were equally likely to be taking psychiatric medications, however, children with ASD were less likely to be receiving therapy. These findings highlight the importance of implementing dysregulation screening and treatment protocols in ASD centers. En ligne : http://dx.doi.org/10.1007/s10803-021-05056-y Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=476
in Journal of Autism and Developmental Disorders > 52-4 (April 2022) . - p.1762-1770[article] Dysregulation in Children and Adolescents Presenting to a Multidisciplinary Autism Clinic [Texte imprimé et/ou numérique] / Roma A. VASA, Auteur ; Vini SINGH, Auteur ; Rachel G. MCDONALD, Auteur ; Carla MAZEFSKY, Auteur ; Ji Su HONG, Auteur ; Amy KEEFER, Auteur . - p.1762-1770.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 52-4 (April 2022) . - p.1762-1770
Mots-clés : Adolescent Ambulatory Care Facilities Autism Spectrum Disorder/diagnosis/epidemiology/psychology Autistic Disorder/diagnosis/epidemiology Child Humans Prevalence Autism center Children Dysregulation Screening Index. décimale : PER Périodiques Résumé : Research indicates that children with autism spectrum disorder (ASD) frequently exhibit dysregulation, which refers to poorly coordinated affective, behavioral, and cognitive responses to a given situation. We examined the characteristics of dysregulation in children presenting to a multidisciplinary ASD clinic for an ASD diagnostic evaluation. Sixty percent of children presenting for an ASD evaluation exhibited dysregulation. Dysregulation prevalence was higher in children without ASD versus with ASD (69% versus 56%). Severe dysregulation was higher in children without ASD (29% versus 16%). Both groups with severe dysregulation were equally likely to be taking psychiatric medications, however, children with ASD were less likely to be receiving therapy. These findings highlight the importance of implementing dysregulation screening and treatment protocols in ASD centers. En ligne : http://dx.doi.org/10.1007/s10803-021-05056-y Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=476 From Syringe to Spoon Feeding: A Case Report of How Occupational Therapy Treatment Successfully Guided the Parents of a Child with Autism Spectrum Disorder and Prematurity in an Outpatient Clinic / V. HOYO in Journal of Autism and Developmental Disorders, 51-7 (July 2021)
[article]
Titre : From Syringe to Spoon Feeding: A Case Report of How Occupational Therapy Treatment Successfully Guided the Parents of a Child with Autism Spectrum Disorder and Prematurity in an Outpatient Clinic Type de document : Texte imprimé et/ou numérique Auteurs : V. HOYO, Auteur ; Mary Beth KADLEC, Auteur Article en page(s) : p.2561-2565 Langues : Anglais (eng) Mots-clés : Adult Ambulatory Care Facilities Autism Spectrum Disorder/therapy Child Child, Preschool Family Feeding Behavior Female Humans Male Occupational Therapy Parents Syringes Autism spectrum disorder Family-centered practice Feeding disorder Occupational therapy Prematurity Index. décimale : PER Périodiques Résumé : This case report details how occupational therapy treatment in an outpatient setting successfully guided the parents of a child with autism spectrum disorder and a history of prematurity from restrained syringe feedings to the acceptance of spoon feedings. Occupational therapy practitioners are qualified, needed and available to assess and treat feeding disorders in children with autism spectrum disorder and a history of prematurity. Family-centered practice must be utilized for successful outcomes in an outpatient service delivery model. En ligne : http://dx.doi.org/10.1007/s10803-020-04713-y Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=452
in Journal of Autism and Developmental Disorders > 51-7 (July 2021) . - p.2561-2565[article] From Syringe to Spoon Feeding: A Case Report of How Occupational Therapy Treatment Successfully Guided the Parents of a Child with Autism Spectrum Disorder and Prematurity in an Outpatient Clinic [Texte imprimé et/ou numérique] / V. HOYO, Auteur ; Mary Beth KADLEC, Auteur . - p.2561-2565.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 51-7 (July 2021) . - p.2561-2565
Mots-clés : Adult Ambulatory Care Facilities Autism Spectrum Disorder/therapy Child Child, Preschool Family Feeding Behavior Female Humans Male Occupational Therapy Parents Syringes Autism spectrum disorder Family-centered practice Feeding disorder Occupational therapy Prematurity Index. décimale : PER Périodiques Résumé : This case report details how occupational therapy treatment in an outpatient setting successfully guided the parents of a child with autism spectrum disorder and a history of prematurity from restrained syringe feedings to the acceptance of spoon feedings. Occupational therapy practitioners are qualified, needed and available to assess and treat feeding disorders in children with autism spectrum disorder and a history of prematurity. Family-centered practice must be utilized for successful outcomes in an outpatient service delivery model. En ligne : http://dx.doi.org/10.1007/s10803-020-04713-y Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=452 Health Services Use and Costs in Individuals with Autism Spectrum Disorder in Germany: Results from a Survey in ASD Outpatient Clinics / J. HOFER in Journal of Autism and Developmental Disorders, 52-2 (February 2022)
[article]
Titre : Health Services Use and Costs in Individuals with Autism Spectrum Disorder in Germany: Results from a Survey in ASD Outpatient Clinics Type de document : Texte imprimé et/ou numérique Auteurs : J. HOFER, Auteur ; F. HOFFMANN, Auteur ; M. DÖRKS, Auteur ; I. KAMP-BECKER, Auteur ; C. KÜPPER, Auteur ; L. POUSTKA, Auteur ; S. ROEPKE, Auteur ; V. ROESSNER, Auteur ; S. STROTH, Auteur ; N. WOLFF, Auteur ; C. J. BACHMANN, Auteur Article en page(s) : p.540-552 Langues : Anglais (eng) Mots-clés : Ambulatory Care Facilities Autism Spectrum Disorder/epidemiology/therapy Female Germany/epidemiology Health Care Costs Humans Male Mental Health Services Adolescents Adults Children Costs Germany Health services Index. décimale : PER Périodiques Résumé : Autism spectrum disorders (ASD) are associated with high services use, but European data on costs are scarce. Utilisation and annual costs of 385 individuals with ASD (aged 4-67 years; 18.2% females; 37.4% IQ?85) from German outpatient clinics were assessed. Average annual costs per person were 3287 EUR, with psychiatric inpatient care (19.8%), pharmacotherapy (11.1%), and occupational therapy (11.1%) being the largest cost components. Females incurred higher costs than males (4864 EUR vs. 2936 EUR). In a regression model, female sex (Cost Ratio: 1.65), lower IQ (1.90), and Asperger syndrome (1.54) were associated with higher costs. In conclusion, ASD-related health costs are comparable to those of schizophrenia, thus underlining its public health relevance. Higher costs in females demand further research. En ligne : http://dx.doi.org/10.1007/s10803-021-04955-4 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=455
in Journal of Autism and Developmental Disorders > 52-2 (February 2022) . - p.540-552[article] Health Services Use and Costs in Individuals with Autism Spectrum Disorder in Germany: Results from a Survey in ASD Outpatient Clinics [Texte imprimé et/ou numérique] / J. HOFER, Auteur ; F. HOFFMANN, Auteur ; M. DÖRKS, Auteur ; I. KAMP-BECKER, Auteur ; C. KÜPPER, Auteur ; L. POUSTKA, Auteur ; S. ROEPKE, Auteur ; V. ROESSNER, Auteur ; S. STROTH, Auteur ; N. WOLFF, Auteur ; C. J. BACHMANN, Auteur . - p.540-552.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 52-2 (February 2022) . - p.540-552
Mots-clés : Ambulatory Care Facilities Autism Spectrum Disorder/epidemiology/therapy Female Germany/epidemiology Health Care Costs Humans Male Mental Health Services Adolescents Adults Children Costs Germany Health services Index. décimale : PER Périodiques Résumé : Autism spectrum disorders (ASD) are associated with high services use, but European data on costs are scarce. Utilisation and annual costs of 385 individuals with ASD (aged 4-67 years; 18.2% females; 37.4% IQ?85) from German outpatient clinics were assessed. Average annual costs per person were 3287 EUR, with psychiatric inpatient care (19.8%), pharmacotherapy (11.1%), and occupational therapy (11.1%) being the largest cost components. Females incurred higher costs than males (4864 EUR vs. 2936 EUR). In a regression model, female sex (Cost Ratio: 1.65), lower IQ (1.90), and Asperger syndrome (1.54) were associated with higher costs. In conclusion, ASD-related health costs are comparable to those of schizophrenia, thus underlining its public health relevance. Higher costs in females demand further research. En ligne : http://dx.doi.org/10.1007/s10803-021-04955-4 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=455 A Longitudinal Study of Features Associated with Autism Spectrum in Clinic Referred, Gender Diverse Adolescents Accessing Puberty Suppression Treatment / I. RUSSELL in Journal of Autism and Developmental Disorders, 51-6 (June 2021)
[article]
Titre : A Longitudinal Study of Features Associated with Autism Spectrum in Clinic Referred, Gender Diverse Adolescents Accessing Puberty Suppression Treatment Type de document : Texte imprimé et/ou numérique Auteurs : I. RUSSELL, Auteur ; B. PEARSON, Auteur ; U. MASIC, Auteur Article en page(s) : p.2068-2076 Langues : Anglais (eng) Mots-clés : Adolescent Ambulatory Care Facilities Autism Spectrum Disorder/psychology Female Gonadotropin-Releasing Hormone/analogs & derivatives Humans Longitudinal Studies Male Puberty/psychology Referral and Consultation Sex Reassignment Procedures/psychology Transsexualism/drug therapy/psychology Autism spectrum Co-occurrence Features of autism spectrum Gender diversity Gender dysphoria Gender identity Social responsiveness scale Index. décimale : PER Périodiques Résumé : Literature has documented inflated rates of features associated with autism spectrum (AS) in clinic referred, gender diverse young people. This study examined scores on the Social Responsiveness Scale, Second Edition (SRS-2) over time in a group of clinic referred, gender diverse adolescents accessing gonadotropin-releasing hormone analogues (GnRHa) to supress puberty. Primary caregivers of 95 adolescents presenting to the Gender Identity Development Service (GIDS) completed the SRS-2 prior to receiving endocrine input (mean age: 13.6?±?SEM: 0.11) and after approximately one year of accessing GnRHa (mean age: 14.6?±?SEM: 0.13). No significant differences in SRS-2 scores over time and between birth assigned sex were found. No interactions between time and birth assigned sex were established for SRS-2 subscales or total scores. En ligne : http://dx.doi.org/10.1007/s10803-020-04698-8 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=452
in Journal of Autism and Developmental Disorders > 51-6 (June 2021) . - p.2068-2076[article] A Longitudinal Study of Features Associated with Autism Spectrum in Clinic Referred, Gender Diverse Adolescents Accessing Puberty Suppression Treatment [Texte imprimé et/ou numérique] / I. RUSSELL, Auteur ; B. PEARSON, Auteur ; U. MASIC, Auteur . - p.2068-2076.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 51-6 (June 2021) . - p.2068-2076
Mots-clés : Adolescent Ambulatory Care Facilities Autism Spectrum Disorder/psychology Female Gonadotropin-Releasing Hormone/analogs & derivatives Humans Longitudinal Studies Male Puberty/psychology Referral and Consultation Sex Reassignment Procedures/psychology Transsexualism/drug therapy/psychology Autism spectrum Co-occurrence Features of autism spectrum Gender diversity Gender dysphoria Gender identity Social responsiveness scale Index. décimale : PER Périodiques Résumé : Literature has documented inflated rates of features associated with autism spectrum (AS) in clinic referred, gender diverse young people. This study examined scores on the Social Responsiveness Scale, Second Edition (SRS-2) over time in a group of clinic referred, gender diverse adolescents accessing gonadotropin-releasing hormone analogues (GnRHa) to supress puberty. Primary caregivers of 95 adolescents presenting to the Gender Identity Development Service (GIDS) completed the SRS-2 prior to receiving endocrine input (mean age: 13.6?±?SEM: 0.11) and after approximately one year of accessing GnRHa (mean age: 14.6?±?SEM: 0.13). No significant differences in SRS-2 scores over time and between birth assigned sex were found. No interactions between time and birth assigned sex were established for SRS-2 subscales or total scores. En ligne : http://dx.doi.org/10.1007/s10803-020-04698-8 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=452