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Faire une suggestionA Study of Asian Children Who are Diagnosed with Autism Spectrum Disorder and Available Support Services in Auckland, New Zealand / Myint HTUT in Journal of Autism and Developmental Disorders, 50-6 (June 2020)
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Titre : A Study of Asian Children Who are Diagnosed with Autism Spectrum Disorder and Available Support Services in Auckland, New Zealand Type de document : texte imprimé Auteurs : Myint HTUT, Auteur ; Elsie HO, Auteur ; Janine WILES, Auteur Article en page(s) : p.1855-1865 Langues : Anglais (eng) Mots-clés : Asian Demographic characteristics Equity Fragmentation Support services Index. décimale : PER Périodiques Résumé : This study reviews the demographic characteristics of Asian children diagnosed with autism spectrum disorder (ASD) in Auckland, New Zealand, the support services they can access, and how more equitable access to health services can be provided. We examined government and non-government support services for Asian children diagnosed with ASD and their families. The findings reflect the complexities of navigating and accessing health, disability, education and social support services. Analysis of Ministry of Health Disability Support Services (DSSs) data suggest that Asians in New Zealand are underrepresented in utilizing DSSs. Drawing on Andersen's health care utilization model, suggestions for more equitable access to health, disability, education and social support include culturally and linguistically appropriate health care and social policies. En ligne : http://dx.doi.org/10.1007/s10803-019-03936-y Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=425
in Journal of Autism and Developmental Disorders > 50-6 (June 2020) . - p.1855-1865[article] A Study of Asian Children Who are Diagnosed with Autism Spectrum Disorder and Available Support Services in Auckland, New Zealand [texte imprimé] / Myint HTUT, Auteur ; Elsie HO, Auteur ; Janine WILES, Auteur . - p.1855-1865.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 50-6 (June 2020) . - p.1855-1865
Mots-clés : Asian Demographic characteristics Equity Fragmentation Support services Index. décimale : PER Périodiques Résumé : This study reviews the demographic characteristics of Asian children diagnosed with autism spectrum disorder (ASD) in Auckland, New Zealand, the support services they can access, and how more equitable access to health services can be provided. We examined government and non-government support services for Asian children diagnosed with ASD and their families. The findings reflect the complexities of navigating and accessing health, disability, education and social support services. Analysis of Ministry of Health Disability Support Services (DSSs) data suggest that Asians in New Zealand are underrepresented in utilizing DSSs. Drawing on Andersen's health care utilization model, suggestions for more equitable access to health, disability, education and social support include culturally and linguistically appropriate health care and social policies. En ligne : http://dx.doi.org/10.1007/s10803-019-03936-y Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=425 The parenting experiences and needs of Asian primary caregivers of children with autism: A meta-synthesis / Shefaly SHOREY in Autism, 24-3 (April 2020)
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Titre : The parenting experiences and needs of Asian primary caregivers of children with autism: A meta-synthesis Type de document : texte imprimé Auteurs : Shefaly SHOREY, Auteur ; Esperanza D. NG, Auteur ; Gorill HAUGAN, Auteur ; Evelyn LAW, Auteur Article en page(s) : p.591-604 Langues : Anglais (eng) Mots-clés : Asian Asperger syndrome autism spectrum disorder autistic disorder caregivers child parenting review Index. décimale : PER Périodiques Résumé : Parents of children with autism are faced with higher risks of unemployment, divorce, and poorer mental health than parents of children with other disorders. Such parenting stress can be further exacerbated by cultural and environmental factors such as the more conservative and collectivistic Asian values. Therefore, this review identifies and synthesizes literature on the parenting experiences and needs of Asian primary caregivers of children with autism using a critical interpretive method. A qualitative meta-summary was conducted. Seven electronic databases (CINAHL, Embase, ProQuest, PsycINFO, PubMed, Scopus, and Web of Science) were searched from each database's date of inception to November 2018. In total, 44 studies were included in this review. Thirteen studies examined Asian immigrant parents' experiences, and 31 studies were done among Asia-based parents. Six domains were identified: "personal parenting journey"; "adaptation and coping strategies"; "family, community, and social support"; "experiences with healthcare, education, and social services"; "future hopes and recommendations"; and "unique experiences of immigrants." The distinctive influence of religious beliefs, cultural values, and environmental factors on Asian parenting experiences were discussed, and recommendations were proposed to better meet the needs of parents with autistic children. En ligne : http://dx.doi.org/10.1177/1362361319886513 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=422
in Autism > 24-3 (April 2020) . - p.591-604[article] The parenting experiences and needs of Asian primary caregivers of children with autism: A meta-synthesis [texte imprimé] / Shefaly SHOREY, Auteur ; Esperanza D. NG, Auteur ; Gorill HAUGAN, Auteur ; Evelyn LAW, Auteur . - p.591-604.
Langues : Anglais (eng)
in Autism > 24-3 (April 2020) . - p.591-604
Mots-clés : Asian Asperger syndrome autism spectrum disorder autistic disorder caregivers child parenting review Index. décimale : PER Périodiques Résumé : Parents of children with autism are faced with higher risks of unemployment, divorce, and poorer mental health than parents of children with other disorders. Such parenting stress can be further exacerbated by cultural and environmental factors such as the more conservative and collectivistic Asian values. Therefore, this review identifies and synthesizes literature on the parenting experiences and needs of Asian primary caregivers of children with autism using a critical interpretive method. A qualitative meta-summary was conducted. Seven electronic databases (CINAHL, Embase, ProQuest, PsycINFO, PubMed, Scopus, and Web of Science) were searched from each database's date of inception to November 2018. In total, 44 studies were included in this review. Thirteen studies examined Asian immigrant parents' experiences, and 31 studies were done among Asia-based parents. Six domains were identified: "personal parenting journey"; "adaptation and coping strategies"; "family, community, and social support"; "experiences with healthcare, education, and social services"; "future hopes and recommendations"; and "unique experiences of immigrants." The distinctive influence of religious beliefs, cultural values, and environmental factors on Asian parenting experiences were discussed, and recommendations were proposed to better meet the needs of parents with autistic children. En ligne : http://dx.doi.org/10.1177/1362361319886513 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=422 Autism epidemiology in Hong Kong children and youths aged 6–17: Implications on autism screening and sex differences in the community / Oscar W.H. WONG in Autism, 29-11 (November 2025)
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Titre : Autism epidemiology in Hong Kong children and youths aged 6–17: Implications on autism screening and sex differences in the community Type de document : texte imprimé Auteurs : Oscar W.H. WONG, Auteur ; Sandra SM CHAN, Auteur ; Steven W.H. CHAU, Auteur ; Winnie CW CHU, Auteur ; Carol SW HO, Auteur ; Stephy WS HO, Auteur ; Se-fong HUNG, Auteur ; Samara HUSSAIN, Auteur ; Kelly Y.C. LAI, Auteur ; Angela M.W. LAM, Auteur ; Holly HL LO, Auteur ; Karen K.Y. MA, Auteur ; Suk Ling MA, Auteur ; Flora Y.M. MO, Auteur ; Pak Chung SHAM, Auteur ; Caroline K.S. SHEA, Auteur ; Suzanne H.W. SO, Auteur ; Kelvin KF TSOI, Auteur ; Patrick W.L. LEUNG, Auteur Article en page(s) : p.2872-2884 Langues : Anglais (eng) Mots-clés : Asian autism epidemiology prevalence screening sex differences Index. décimale : PER Périodiques Résumé : Epidemiological studies on autism lack representation from Asia. We estimated the prevalence of autism among children and youths in Hong Kong using a two-stage approach. In addition, we evaluated the psychometric properties of the screening instrument and explored sex differences within an epidemiological context. A random school-based sample of 5,865 children and youths were screened with the Autism Spectrum Quotient-10 (AQ-10). Then, a subsample of 317 participants underwent the Autism Diagnostic Interview-Revised assessment. Prevalence was estimated by applying positive and negative predictive values (PPV/NPV) of AQ-10 derived from the subsample to the entire cohort. None of the screened negative participants had autism, resulting in an NPV of 100%. Discrepant PPVs were noted for males (20.4%) and females (5.20%). The estimated prevalence was 2.57% using sex-specific PPVs. Explorative analysis on AQ-10 Positive participants without the diagnosis (i.e. ‘false positives’) showed significantly elevated autistic symptoms. The prevalence of autism in Hong Kong is comparable to the recent estimates in Western countries, which poses a significant public health challenge. Despite the high false-positive rates, AQ-10 remains valuable for excluding autism and identifying those with autistic symptoms. Furthermore, community-based studies are crucial to address sex differences in autism expression.Lay abstract Although studies have found that autism is becoming more common, little is known whether this is true in Asian countries. This study looked into how many children and teenagers in Hong Kong might have autism. We first screened 5,865 school-aged children and youths with the Autism Spectrum Quotient-10 (AQ-10). Then, we conducted in-depth interviews with 317 of them to assess for autism. We found that around 2.57% of children and youths aged 6–17 years in Hong Kong might have autism. This number is similar to that of the Western countries. Furthermore, we also discovered that boys who were screened positive on the AQ-10 were more likely to have autism than girls. This could be because autism is more common in boys, and the AQ-10 might be better at spotting autism in boys than in girls. In the future, studies will need to find an optimal way of detecting autism in the community, considering how autism may present differently in boys and girls. En ligne : https://dx.doi.org/10.1177/13623613251360269 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=570
in Autism > 29-11 (November 2025) . - p.2872-2884[article] Autism epidemiology in Hong Kong children and youths aged 6–17: Implications on autism screening and sex differences in the community [texte imprimé] / Oscar W.H. WONG, Auteur ; Sandra SM CHAN, Auteur ; Steven W.H. CHAU, Auteur ; Winnie CW CHU, Auteur ; Carol SW HO, Auteur ; Stephy WS HO, Auteur ; Se-fong HUNG, Auteur ; Samara HUSSAIN, Auteur ; Kelly Y.C. LAI, Auteur ; Angela M.W. LAM, Auteur ; Holly HL LO, Auteur ; Karen K.Y. MA, Auteur ; Suk Ling MA, Auteur ; Flora Y.M. MO, Auteur ; Pak Chung SHAM, Auteur ; Caroline K.S. SHEA, Auteur ; Suzanne H.W. SO, Auteur ; Kelvin KF TSOI, Auteur ; Patrick W.L. LEUNG, Auteur . - p.2872-2884.
Langues : Anglais (eng)
in Autism > 29-11 (November 2025) . - p.2872-2884
Mots-clés : Asian autism epidemiology prevalence screening sex differences Index. décimale : PER Périodiques Résumé : Epidemiological studies on autism lack representation from Asia. We estimated the prevalence of autism among children and youths in Hong Kong using a two-stage approach. In addition, we evaluated the psychometric properties of the screening instrument and explored sex differences within an epidemiological context. A random school-based sample of 5,865 children and youths were screened with the Autism Spectrum Quotient-10 (AQ-10). Then, a subsample of 317 participants underwent the Autism Diagnostic Interview-Revised assessment. Prevalence was estimated by applying positive and negative predictive values (PPV/NPV) of AQ-10 derived from the subsample to the entire cohort. None of the screened negative participants had autism, resulting in an NPV of 100%. Discrepant PPVs were noted for males (20.4%) and females (5.20%). The estimated prevalence was 2.57% using sex-specific PPVs. Explorative analysis on AQ-10 Positive participants without the diagnosis (i.e. ‘false positives’) showed significantly elevated autistic symptoms. The prevalence of autism in Hong Kong is comparable to the recent estimates in Western countries, which poses a significant public health challenge. Despite the high false-positive rates, AQ-10 remains valuable for excluding autism and identifying those with autistic symptoms. Furthermore, community-based studies are crucial to address sex differences in autism expression.Lay abstract Although studies have found that autism is becoming more common, little is known whether this is true in Asian countries. This study looked into how many children and teenagers in Hong Kong might have autism. We first screened 5,865 school-aged children and youths with the Autism Spectrum Quotient-10 (AQ-10). Then, we conducted in-depth interviews with 317 of them to assess for autism. We found that around 2.57% of children and youths aged 6–17 years in Hong Kong might have autism. This number is similar to that of the Western countries. Furthermore, we also discovered that boys who were screened positive on the AQ-10 were more likely to have autism than girls. This could be because autism is more common in boys, and the AQ-10 might be better at spotting autism in boys than in girls. In the future, studies will need to find an optimal way of detecting autism in the community, considering how autism may present differently in boys and girls. En ligne : https://dx.doi.org/10.1177/13623613251360269 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=570 Racial and ethnic group differences in service utilization in children with autism spectrum disorder: The role of parental stigma / Karla RIVERA-FIGUEROA in Autism, 29-5 (May 2025)
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Titre : Racial and ethnic group differences in service utilization in children with autism spectrum disorder: The role of parental stigma Type de document : texte imprimé Auteurs : Karla RIVERA-FIGUEROA, Auteur ; Stephanie MILAN, Auteur ; Thyde DUMONT-MATHIEU, Auteur ; Diane QUINN, Auteur ; Inge-Marie EIGSTI, Auteur Article en page(s) : p.1171-1183 Langues : Anglais (eng) Mots-clés : access to services affiliate stigma Asian barriers Black community stigma discrimination healthcare equity Latino multiracial parental education quality of services socioeconomic status Index. décimale : PER Périodiques Résumé : Racial and ethnic disparities in service utilization in autism are widely documented. Autism-related parental stigma may play a role if parents from racial/ethnic minoritized backgrounds experience dual stigma from autism and from membership in a marginalized group. This study examines racial/ethnic differences in autism-related stigma and compares the impact of stigma on service utilization in a large, diverse sample of US-based parents of autistic children (final sample = 764; White 41.6%, Black 16.6%, Latino/a/x/Hispanic 20.9%, Asian 7.5%, Multiracial 9.6%, Native American 1.8%, Pacific Islander 0.5%, Middle Eastern 0.2%, and Other 0.2%). Parents completed online surveys assessing affiliate and community stigma, service utilization, and perceived unmet treatment needs. Small but significant racial/ethnic group differences emerged in some aspects of stigma and service utilization. Specifically, Asian and Latino/a/x parents were less likely to fully engage in recommended services; Asian parents endorsed less service availability; Latino/a/x and multiracial parents reported more unmet needs; and Asian and White parents reported significantly more affiliate stigma. There was little indication that stigma contributed to racial/ethnic differences in service utilization, except for Asian families. Results indicate that socioeconomic factors interact with race/ethnicity to impact service use and stigma.Lay abstract Families of color often have less access to autism-related services and describe receiving lower-quality care than White families. The experience of being rejected and judged due to being a parent of an autistic child, called "stigma," might contribute to these healthcare inequalities. The purpose of this study was to test whether families from different racial/ethnic backgrounds differ in their use of autism services and experience of stigma and whether autism stigma leads to lower service engagement for families of color. Our results indicated that Asian parents were less likely to engage in recommended services fully, reported less service availability, and significantly higher levels of autism-related stigma. Furthermore, higher levels of stigma among Asian families partially contributed to lower service engagement. Similar to Asian parents, Latino/a/x parents were more likely to report lower service engagement; and Latino/a/x and Multiracial parents endorsed more unmet treatment needs than other groups. Interestingly, White parents reported levels of internalized stigma similar to those of Asian parents, and both groups reported experiencing more stigma compared to Latino/a/x, Black, and multiracial parents. Future research must examine the factors underlying these differences, and more attention should be directed to reducing stigma among Asian families to minimize its impact on service utilization. En ligne : https://dx.doi.org/10.1177/13623613241298043 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=555
in Autism > 29-5 (May 2025) . - p.1171-1183[article] Racial and ethnic group differences in service utilization in children with autism spectrum disorder: The role of parental stigma [texte imprimé] / Karla RIVERA-FIGUEROA, Auteur ; Stephanie MILAN, Auteur ; Thyde DUMONT-MATHIEU, Auteur ; Diane QUINN, Auteur ; Inge-Marie EIGSTI, Auteur . - p.1171-1183.
Langues : Anglais (eng)
in Autism > 29-5 (May 2025) . - p.1171-1183
Mots-clés : access to services affiliate stigma Asian barriers Black community stigma discrimination healthcare equity Latino multiracial parental education quality of services socioeconomic status Index. décimale : PER Périodiques Résumé : Racial and ethnic disparities in service utilization in autism are widely documented. Autism-related parental stigma may play a role if parents from racial/ethnic minoritized backgrounds experience dual stigma from autism and from membership in a marginalized group. This study examines racial/ethnic differences in autism-related stigma and compares the impact of stigma on service utilization in a large, diverse sample of US-based parents of autistic children (final sample = 764; White 41.6%, Black 16.6%, Latino/a/x/Hispanic 20.9%, Asian 7.5%, Multiracial 9.6%, Native American 1.8%, Pacific Islander 0.5%, Middle Eastern 0.2%, and Other 0.2%). Parents completed online surveys assessing affiliate and community stigma, service utilization, and perceived unmet treatment needs. Small but significant racial/ethnic group differences emerged in some aspects of stigma and service utilization. Specifically, Asian and Latino/a/x parents were less likely to fully engage in recommended services; Asian parents endorsed less service availability; Latino/a/x and multiracial parents reported more unmet needs; and Asian and White parents reported significantly more affiliate stigma. There was little indication that stigma contributed to racial/ethnic differences in service utilization, except for Asian families. Results indicate that socioeconomic factors interact with race/ethnicity to impact service use and stigma.Lay abstract Families of color often have less access to autism-related services and describe receiving lower-quality care than White families. The experience of being rejected and judged due to being a parent of an autistic child, called "stigma," might contribute to these healthcare inequalities. The purpose of this study was to test whether families from different racial/ethnic backgrounds differ in their use of autism services and experience of stigma and whether autism stigma leads to lower service engagement for families of color. Our results indicated that Asian parents were less likely to engage in recommended services fully, reported less service availability, and significantly higher levels of autism-related stigma. Furthermore, higher levels of stigma among Asian families partially contributed to lower service engagement. Similar to Asian parents, Latino/a/x parents were more likely to report lower service engagement; and Latino/a/x and Multiracial parents endorsed more unmet treatment needs than other groups. Interestingly, White parents reported levels of internalized stigma similar to those of Asian parents, and both groups reported experiencing more stigma compared to Latino/a/x, Black, and multiracial parents. Future research must examine the factors underlying these differences, and more attention should be directed to reducing stigma among Asian families to minimize its impact on service utilization. En ligne : https://dx.doi.org/10.1177/13623613241298043 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=555 California Autism Prevalence by County and Race/Ethnicity: Declining Trends Among Wealthy Whites / Cynthia NEVISON in Journal of Autism and Developmental Disorders, 50-11 (November 2020)
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Titre : California Autism Prevalence by County and Race/Ethnicity: Declining Trends Among Wealthy Whites Type de document : texte imprimé Auteurs : Cynthia NEVISON, Auteur ; William PARKER, Auteur Article en page(s) : p.4011-4021 Langues : Anglais (eng) Mots-clés : Asian Autism spectrum disorder Black California County Hispanic Income Prevalence Race/ethnicity Silicon Valley Time trends White or financial relationships that could be construed as a potential conflict of interest. Index. décimale : PER Périodiques Résumé : County-level ASD prevalence was estimated using an age-resolved snapshot from the California Department of Developmental Services (DDS) for birth years 1993-2013. ASD prevalence increased among all children across birth years 1993-2000 but plateaued or declined thereafter among whites from wealthy counties. In contrast, ASD rates increased continuously across 1993-2013 among whites from lower income counties and Hispanics from all counties. Both white ASD prevalence and rate of change in prevalence were inversely correlated to county income from birth year 2000-2013 but not 1993-2000. These disparate trends within the dataset suggest that wealthy white parents, starting around 2000, may have begun opting out of DDS in favor of private care and/or making changes that effectively lowered their children's risk of ASD. En ligne : http://dx.doi.org/10.1007/s10803-020-04460-0 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=432
in Journal of Autism and Developmental Disorders > 50-11 (November 2020) . - p.4011-4021[article] California Autism Prevalence by County and Race/Ethnicity: Declining Trends Among Wealthy Whites [texte imprimé] / Cynthia NEVISON, Auteur ; William PARKER, Auteur . - p.4011-4021.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 50-11 (November 2020) . - p.4011-4021
Mots-clés : Asian Autism spectrum disorder Black California County Hispanic Income Prevalence Race/ethnicity Silicon Valley Time trends White or financial relationships that could be construed as a potential conflict of interest. Index. décimale : PER Périodiques Résumé : County-level ASD prevalence was estimated using an age-resolved snapshot from the California Department of Developmental Services (DDS) for birth years 1993-2013. ASD prevalence increased among all children across birth years 1993-2000 but plateaued or declined thereafter among whites from wealthy counties. In contrast, ASD rates increased continuously across 1993-2013 among whites from lower income counties and Hispanics from all counties. Both white ASD prevalence and rate of change in prevalence were inversely correlated to county income from birth year 2000-2013 but not 1993-2000. These disparate trends within the dataset suggest that wealthy white parents, starting around 2000, may have begun opting out of DDS in favor of private care and/or making changes that effectively lowered their children's risk of ASD. En ligne : http://dx.doi.org/10.1007/s10803-020-04460-0 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=432

