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Brief Report: Participation of Black and African-American Families in Autism Research / Wendy E SHAIA in Journal of Autism and Developmental Disorders, 50-5 (May 2020)
[article]
Titre : Brief Report: Participation of Black and African-American Families in Autism Research Type de document : Texte imprimé et/ou numérique Auteurs : Wendy E SHAIA, Auteur ; Helen M. NICHOLS, Auteur ; Sarah DABABNAH, Auteur ; Karen CAMPION, Auteur ; Nicole GARBARINO, Auteur Article en page(s) : p.1841-1846 Langues : Anglais (eng) Mots-clés : African-American Autism spectrum disorder Black Caregivers Research methods Sample recruitment Index. décimale : PER Périodiques Résumé : Black and African-American families are underrepresented in research on autism spectrum disorder (ASD) and few studies have explored how to increase their involvement. To address this gap in the literature, this study explored the perspectives of 22 Black families raising children with ASD in order to identify facilitators and barriers to research participation; as well as suggestions to increase their involvement in ASD studies. Facilitators to research involvement included a desire to contribute to ASD research inclusive of Black families; to seek information and support for child and/or caregiver; and, to engage with culturally responsive research team members. Barriers to research involvement included stigma; denial, shame, and/or embarrassment; distrust of the research process; lack of time/interest; and research material inaccessibility or literacy issues. En ligne : http://dx.doi.org/10.1007/s10803-019-03926-0 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=422
in Journal of Autism and Developmental Disorders > 50-5 (May 2020) . - p.1841-1846[article] Brief Report: Participation of Black and African-American Families in Autism Research [Texte imprimé et/ou numérique] / Wendy E SHAIA, Auteur ; Helen M. NICHOLS, Auteur ; Sarah DABABNAH, Auteur ; Karen CAMPION, Auteur ; Nicole GARBARINO, Auteur . - p.1841-1846.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 50-5 (May 2020) . - p.1841-1846
Mots-clés : African-American Autism spectrum disorder Black Caregivers Research methods Sample recruitment Index. décimale : PER Périodiques Résumé : Black and African-American families are underrepresented in research on autism spectrum disorder (ASD) and few studies have explored how to increase their involvement. To address this gap in the literature, this study explored the perspectives of 22 Black families raising children with ASD in order to identify facilitators and barriers to research participation; as well as suggestions to increase their involvement in ASD studies. Facilitators to research involvement included a desire to contribute to ASD research inclusive of Black families; to seek information and support for child and/or caregiver; and, to engage with culturally responsive research team members. Barriers to research involvement included stigma; denial, shame, and/or embarrassment; distrust of the research process; lack of time/interest; and research material inaccessibility or literacy issues. En ligne : http://dx.doi.org/10.1007/s10803-019-03926-0 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=422 When resilience is not enough: Imagining novel approaches to supporting Black youth navigating racism / Shawn C. T. JONES ; Akilah PATTERSON ; Carlisa B. SIMON ; Kenna YADETA in Development and Psychopathology, 35-5 (December 2023)
[article]
Titre : When resilience is not enough: Imagining novel approaches to supporting Black youth navigating racism Type de document : Texte imprimé et/ou numérique Auteurs : Shawn C. T. JONES, Auteur ; Akilah PATTERSON, Auteur ; Carlisa B. SIMON, Auteur ; Kenna YADETA, Auteur Article en page(s) : p.2132-2140 Mots-clés : Black racism resilience transformation youth Index. décimale : PER Périodiques Résumé : The narrative surrounding the impact racism has had on the well-being of Black youth has shifted across sociocultural and historical context. Early discourse around these topics were problem-saturated, focusing on deficits ?within? Black youth. Over time, an important narrative shift occurred: greater attention was paid to the inherent assets of Black youth, their families, and communities, including how racial-ethnic protective factors such as racial socialization afforded them resilience. What resulted was decades of research seeking to understand the mechanisms that allow Black youth to bounce back in spite of racism-related adversity. Notwithstanding the viable practice and policy implications that have emerged from such inquiry, at what point does our focus on the resilience of Black youth ? whether individual or multisystemic ? fall short? It is with this question in mind that this paper challenges those committed to the optimal development of Black youth to consider yet another narrative shift: one that stands upon the legacy of cultural ecological frameworks and the seminal models underlying resilience research, and calls us toward not supporting Black youth?s adaptation to racism, but toward collective efforts to transform our approach, pushing back against the perniciousness of racism. En ligne : https://dx.doi.org/10.1017/S0954579423000986 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=519
in Development and Psychopathology > 35-5 (December 2023) . - p.2132-2140[article] When resilience is not enough: Imagining novel approaches to supporting Black youth navigating racism [Texte imprimé et/ou numérique] / Shawn C. T. JONES, Auteur ; Akilah PATTERSON, Auteur ; Carlisa B. SIMON, Auteur ; Kenna YADETA, Auteur . - p.2132-2140.
in Development and Psychopathology > 35-5 (December 2023) . - p.2132-2140
Mots-clés : Black racism resilience transformation youth Index. décimale : PER Périodiques Résumé : The narrative surrounding the impact racism has had on the well-being of Black youth has shifted across sociocultural and historical context. Early discourse around these topics were problem-saturated, focusing on deficits ?within? Black youth. Over time, an important narrative shift occurred: greater attention was paid to the inherent assets of Black youth, their families, and communities, including how racial-ethnic protective factors such as racial socialization afforded them resilience. What resulted was decades of research seeking to understand the mechanisms that allow Black youth to bounce back in spite of racism-related adversity. Notwithstanding the viable practice and policy implications that have emerged from such inquiry, at what point does our focus on the resilience of Black youth ? whether individual or multisystemic ? fall short? It is with this question in mind that this paper challenges those committed to the optimal development of Black youth to consider yet another narrative shift: one that stands upon the legacy of cultural ecological frameworks and the seminal models underlying resilience research, and calls us toward not supporting Black youth?s adaptation to racism, but toward collective efforts to transform our approach, pushing back against the perniciousness of racism. En ligne : https://dx.doi.org/10.1017/S0954579423000986 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=519 Race/Ethnicity-Resolved Time Trends in United States ASD Prevalence Estimates from IDEA and ADDM / C. NEVISON in Journal of Autism and Developmental Disorders, 49-12 (December 2019)
[article]
Titre : Race/Ethnicity-Resolved Time Trends in United States ASD Prevalence Estimates from IDEA and ADDM Type de document : Texte imprimé et/ou numérique Auteurs : C. NEVISON, Auteur ; Walter ZAHORODNY, Auteur Article en page(s) : p.4721-4730 Langues : Anglais (eng) Mots-clés : Addm Autism Spectrum Disorder Black Hispanic Idea Prevalence Race/ethnicity Time trends White Index. décimale : PER Périodiques Résumé : Race-specific time trends in Autism Spectrum Disorder prevalence are tracked among 3-5 year-olds and 8 year-olds identified by the U.S. Individuals with Disabilities Education Act (IDEA) and the Autism and Developmental Disabilities Monitoring (ADDM) Network, respectively. White ASD prevalence historically has been higher than other racial groups but plateaued for IDEA birth cohorts from ~ 2004 to 2007 before resuming its increase. Black and Hispanic IDEA prevalence increased continuously and caught up to whites by birth year ~ 2008 and ~ 2013, respectively, with black prevalence subsequently exceeding white prevalence in the majority of states. Plateaus in white prevalence occurred in some ADDM states for birth years 2002-2006, but IDEA trends suggest prevalence will increase across all racial groups in ADDM's birth year 2008 report. En ligne : http://dx.doi.org/10.1007/s10803-019-04188-6 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=411
in Journal of Autism and Developmental Disorders > 49-12 (December 2019) . - p.4721-4730[article] Race/Ethnicity-Resolved Time Trends in United States ASD Prevalence Estimates from IDEA and ADDM [Texte imprimé et/ou numérique] / C. NEVISON, Auteur ; Walter ZAHORODNY, Auteur . - p.4721-4730.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 49-12 (December 2019) . - p.4721-4730
Mots-clés : Addm Autism Spectrum Disorder Black Hispanic Idea Prevalence Race/ethnicity Time trends White Index. décimale : PER Périodiques Résumé : Race-specific time trends in Autism Spectrum Disorder prevalence are tracked among 3-5 year-olds and 8 year-olds identified by the U.S. Individuals with Disabilities Education Act (IDEA) and the Autism and Developmental Disabilities Monitoring (ADDM) Network, respectively. White ASD prevalence historically has been higher than other racial groups but plateaued for IDEA birth cohorts from ~ 2004 to 2007 before resuming its increase. Black and Hispanic IDEA prevalence increased continuously and caught up to whites by birth year ~ 2008 and ~ 2013, respectively, with black prevalence subsequently exceeding white prevalence in the majority of states. Plateaus in white prevalence occurred in some ADDM states for birth years 2002-2006, but IDEA trends suggest prevalence will increase across all racial groups in ADDM's birth year 2008 report. En ligne : http://dx.doi.org/10.1007/s10803-019-04188-6 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=411 Racial Disparities in a Sample of Inpatient Youth with ASD / Helen M. NICHOLS in Autism Research, 13-4 (April 2020)
[article]
Titre : Racial Disparities in a Sample of Inpatient Youth with ASD Type de document : Texte imprimé et/ou numérique Auteurs : Helen M. NICHOLS, Auteur ; Sarah DABABNAH, Auteur ; Brittany TROEN, Auteur ; Jessica VEZZOLI, Auteur ; Rajneesh MAHAJAN, Auteur ; Carla A. MAZEFSKY, Auteur Article en page(s) : p.532-538 Langues : Anglais (eng) Mots-clés : Black autism spectrum disorder racial differences youth Index. décimale : PER Périodiques Résumé : Although more than one in 10 youth with Autism Spectrum Disorder (ASD) is admitted to a psychiatric facility before they reach adulthood, the inpatient population is underrepresented in research. Furthermore, Black youth are more likely to be psychiatrically hospitalized, compared to their White counterparts. Yet, prior research has been inconsistent in potential racial differences in ASD symptoms and severity. This study examined differences in the symptom presentation of psychiatrically hospitalized Black and White youth with ASD. Researchers collected data as part of a larger study of youth admitted to one of six US specialized inpatient psychiatric units between 2013 and 2017. We used bivariate and multivariate models to analyze the data. The study included 654 youth diagnosed with ASD, with an average age of 13 years. While bivariate analyses found that Black youth had lower written language and daily living skills and more impaired social affect and inappropriate speech, multivariate regression models suggested that overall ability level and age may be driving these differences. Specifically, the only variables that significantly predicted adaptive functioning (written language, daily living) and behavioral profiles (social affect, inappropriate speech) were verbal ability, IQ, and age. Race was not a significant predictor in any of the models. Cultural diversity and competency are vital to the identification and treatment of ASD clinical care. Thus, understanding the role race may play in early detection and accurate diagnosis is important to improving ASD identification, diagnosis, and treatment. Autism Res 2020, 13: 532-538. (c) 2020 International Society for Autism Research, Wiley Periodicals, Inc. LAY SUMMARY: This study examined differences in autism symptoms between Black and White youth in psychiatric hospitals. We found that while it initially appeared that Black and White youth differed in written language and daily living skills, these racial differences were not significant once we accounted for differences in IQ, age, and verbal ability. Our findings suggest that providers should pay greater attention to other potential reasons for racial disparities in autism services. En ligne : http://dx.doi.org/10.1002/aur.2262 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=421
in Autism Research > 13-4 (April 2020) . - p.532-538[article] Racial Disparities in a Sample of Inpatient Youth with ASD [Texte imprimé et/ou numérique] / Helen M. NICHOLS, Auteur ; Sarah DABABNAH, Auteur ; Brittany TROEN, Auteur ; Jessica VEZZOLI, Auteur ; Rajneesh MAHAJAN, Auteur ; Carla A. MAZEFSKY, Auteur . - p.532-538.
Langues : Anglais (eng)
in Autism Research > 13-4 (April 2020) . - p.532-538
Mots-clés : Black autism spectrum disorder racial differences youth Index. décimale : PER Périodiques Résumé : Although more than one in 10 youth with Autism Spectrum Disorder (ASD) is admitted to a psychiatric facility before they reach adulthood, the inpatient population is underrepresented in research. Furthermore, Black youth are more likely to be psychiatrically hospitalized, compared to their White counterparts. Yet, prior research has been inconsistent in potential racial differences in ASD symptoms and severity. This study examined differences in the symptom presentation of psychiatrically hospitalized Black and White youth with ASD. Researchers collected data as part of a larger study of youth admitted to one of six US specialized inpatient psychiatric units between 2013 and 2017. We used bivariate and multivariate models to analyze the data. The study included 654 youth diagnosed with ASD, with an average age of 13 years. While bivariate analyses found that Black youth had lower written language and daily living skills and more impaired social affect and inappropriate speech, multivariate regression models suggested that overall ability level and age may be driving these differences. Specifically, the only variables that significantly predicted adaptive functioning (written language, daily living) and behavioral profiles (social affect, inappropriate speech) were verbal ability, IQ, and age. Race was not a significant predictor in any of the models. Cultural diversity and competency are vital to the identification and treatment of ASD clinical care. Thus, understanding the role race may play in early detection and accurate diagnosis is important to improving ASD identification, diagnosis, and treatment. Autism Res 2020, 13: 532-538. (c) 2020 International Society for Autism Research, Wiley Periodicals, Inc. LAY SUMMARY: This study examined differences in autism symptoms between Black and White youth in psychiatric hospitals. We found that while it initially appeared that Black and White youth differed in written language and daily living skills, these racial differences were not significant once we accounted for differences in IQ, age, and verbal ability. Our findings suggest that providers should pay greater attention to other potential reasons for racial disparities in autism services. En ligne : http://dx.doi.org/10.1002/aur.2262 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=421 California Autism Prevalence by County and Race/Ethnicity: Declining Trends Among Wealthy Whites / Cynthia NEVISON in Journal of Autism and Developmental Disorders, 50-11 (November 2020)
[article]
Titre : California Autism Prevalence by County and Race/Ethnicity: Declining Trends Among Wealthy Whites Type de document : Texte imprimé et/ou numérique Auteurs : Cynthia NEVISON, Auteur ; William PARKER, Auteur Article en page(s) : p.4011-4021 Langues : Anglais (eng) Mots-clés : Asian Autism spectrum disorder Black California County Hispanic Income Prevalence Race/ethnicity Silicon Valley Time trends White or financial relationships that could be construed as a potential conflict of interest. Index. décimale : PER Périodiques Résumé : County-level ASD prevalence was estimated using an age-resolved snapshot from the California Department of Developmental Services (DDS) for birth years 1993-2013. ASD prevalence increased among all children across birth years 1993-2000 but plateaued or declined thereafter among whites from wealthy counties. In contrast, ASD rates increased continuously across 1993-2013 among whites from lower income counties and Hispanics from all counties. Both white ASD prevalence and rate of change in prevalence were inversely correlated to county income from birth year 2000-2013 but not 1993-2000. These disparate trends within the dataset suggest that wealthy white parents, starting around 2000, may have begun opting out of DDS in favor of private care and/or making changes that effectively lowered their children's risk of ASD. En ligne : http://dx.doi.org/10.1007/s10803-020-04460-0 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=432
in Journal of Autism and Developmental Disorders > 50-11 (November 2020) . - p.4011-4021[article] California Autism Prevalence by County and Race/Ethnicity: Declining Trends Among Wealthy Whites [Texte imprimé et/ou numérique] / Cynthia NEVISON, Auteur ; William PARKER, Auteur . - p.4011-4021.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 50-11 (November 2020) . - p.4011-4021
Mots-clés : Asian Autism spectrum disorder Black California County Hispanic Income Prevalence Race/ethnicity Silicon Valley Time trends White or financial relationships that could be construed as a potential conflict of interest. Index. décimale : PER Périodiques Résumé : County-level ASD prevalence was estimated using an age-resolved snapshot from the California Department of Developmental Services (DDS) for birth years 1993-2013. ASD prevalence increased among all children across birth years 1993-2000 but plateaued or declined thereafter among whites from wealthy counties. In contrast, ASD rates increased continuously across 1993-2013 among whites from lower income counties and Hispanics from all counties. Both white ASD prevalence and rate of change in prevalence were inversely correlated to county income from birth year 2000-2013 but not 1993-2000. These disparate trends within the dataset suggest that wealthy white parents, starting around 2000, may have begun opting out of DDS in favor of private care and/or making changes that effectively lowered their children's risk of ASD. En ligne : http://dx.doi.org/10.1007/s10803-020-04460-0 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=432 Contextual risks and psychosocial outcomes among rural African American emerging adults: A latent profile analysis / Trenette Clark GOINGS in Development and Psychopathology, 34-1 (February 2022)
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