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Blindness and Autism: Parents' Perspectives on Diagnostic Challenges, Support Needs and Support Provision / Kim DE VERDIER in Journal of Autism and Developmental Disorders, 50-6 (June 2020)
[article]
Titre : Blindness and Autism: Parents' Perspectives on Diagnostic Challenges, Support Needs and Support Provision Type de document : Texte imprimé et/ou numérique Auteurs : Kim DE VERDIER, Auteur ; Elisabeth FERNELL, Auteur ; Ulla EK, Auteur Article en page(s) : p.1921-1930 Langues : Anglais (eng) Mots-clés : Assessments Autism Blindness Children Parents’ experiences Support Index. décimale : PER Périodiques Résumé : Autism spectrum disorder (ASD), with or without intellectual disability (ID), is common in children with congenital blindness. This complex combination of disabilities often involves many challenges for the family. This study explored parents' experiences of having a child with blindness and ASD (with or without ID), their support needs and experiences of the support provided. Interviews with eight parents, representing six families, were performed. The parents emphasized that assessment and diagnostic procedures must be performed by professionals with expertise in blind children's development, and ASD. The support was often perceived as fragmented and did not correspond to the families' needs. The results suggest that national guidelines should be produced, to ensure a more coordinated and tailored support to these families. En ligne : http://dx.doi.org/10.1007/s10803-019-03944-y Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=425
in Journal of Autism and Developmental Disorders > 50-6 (June 2020) . - p.1921-1930[article] Blindness and Autism: Parents' Perspectives on Diagnostic Challenges, Support Needs and Support Provision [Texte imprimé et/ou numérique] / Kim DE VERDIER, Auteur ; Elisabeth FERNELL, Auteur ; Ulla EK, Auteur . - p.1921-1930.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 50-6 (June 2020) . - p.1921-1930
Mots-clés : Assessments Autism Blindness Children Parents’ experiences Support Index. décimale : PER Périodiques Résumé : Autism spectrum disorder (ASD), with or without intellectual disability (ID), is common in children with congenital blindness. This complex combination of disabilities often involves many challenges for the family. This study explored parents' experiences of having a child with blindness and ASD (with or without ID), their support needs and experiences of the support provided. Interviews with eight parents, representing six families, were performed. The parents emphasized that assessment and diagnostic procedures must be performed by professionals with expertise in blind children's development, and ASD. The support was often perceived as fragmented and did not correspond to the families' needs. The results suggest that national guidelines should be produced, to ensure a more coordinated and tailored support to these families. En ligne : http://dx.doi.org/10.1007/s10803-019-03944-y Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=425 Challenges and Successful Pedagogical Strategies: Experiences from Six Swedish Students with Blindness and Autism in Different School Settings / K. DE VERDIER in Journal of Autism and Developmental Disorders, 48-2 (February 2018)
[article]
Titre : Challenges and Successful Pedagogical Strategies: Experiences from Six Swedish Students with Blindness and Autism in Different School Settings Type de document : Texte imprimé et/ou numérique Auteurs : K. DE VERDIER, Auteur ; E. FERNELL, Auteur ; U. EK, Auteur Article en page(s) : p.520-532 Langues : Anglais (eng) Mots-clés : Autism Blindness Children Education Executive functions School Support Index. décimale : PER Périodiques Résumé : The prevalence of autism in children with blindness is much higher than in the general population. There are many challenges regarding the school situation for children with this complex dual disability. This study explored challenges and successful strategies in school for a sample of six Swedish children with blindness and autism, with and without intellectual disability, through qualitative interviews with students, teachers and parents. All students displayed executive functioning deficits, and the teaching situation entailed several challenges. Our research points to the importance of adopting evidence-based practices for ASD, but adapted according to the students lack of vision. For this to be possible, close collaboration between teachers, parents and specialists in the field of visual impairment and autism is necessary. En ligne : https://doi.org/10.1007/s10803-017-3360-5 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=337
in Journal of Autism and Developmental Disorders > 48-2 (February 2018) . - p.520-532[article] Challenges and Successful Pedagogical Strategies: Experiences from Six Swedish Students with Blindness and Autism in Different School Settings [Texte imprimé et/ou numérique] / K. DE VERDIER, Auteur ; E. FERNELL, Auteur ; U. EK, Auteur . - p.520-532.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 48-2 (February 2018) . - p.520-532
Mots-clés : Autism Blindness Children Education Executive functions School Support Index. décimale : PER Périodiques Résumé : The prevalence of autism in children with blindness is much higher than in the general population. There are many challenges regarding the school situation for children with this complex dual disability. This study explored challenges and successful strategies in school for a sample of six Swedish children with blindness and autism, with and without intellectual disability, through qualitative interviews with students, teachers and parents. All students displayed executive functioning deficits, and the teaching situation entailed several challenges. Our research points to the importance of adopting evidence-based practices for ASD, but adapted according to the students lack of vision. For this to be possible, close collaboration between teachers, parents and specialists in the field of visual impairment and autism is necessary. En ligne : https://doi.org/10.1007/s10803-017-3360-5 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=337 Autism Spectrum Disorders (ASD) in Blind Children: Very High Prevalence, Potentially Better Outlook / Rubin JURE in Journal of Autism and Developmental Disorders, 46-3 (March 2016)
[article]
Titre : Autism Spectrum Disorders (ASD) in Blind Children: Very High Prevalence, Potentially Better Outlook Type de document : Texte imprimé et/ou numérique Auteurs : Rubin JURE, Auteur ; Ramón POGONZA, Auteur ; Isabelle RAPIN, Auteur Article en page(s) : p.749-759 Langues : Anglais (eng) Mots-clés : Autism spectrum disorder Autism recovery Autistic regression Blindisms Blindness Congenital blindness Index. décimale : PER Périodiques Résumé : Autism spectrum disorders affected 19 of 38 unselected children at a school for the blind in Cordoba, Argentina. Autism was linked to total congenital blindness, not blindness’ etiology, acquired or incomplete blindness, sex, overt brain damage, or socioeconomic status. Autism “recovery,” had occurred in 4 verbal children. Congenital blindness causes profoundly deviant sensory experience and massive reorganization of brain connectivity. Its ?30 times greater prevalence than in sighted children suggests a distinct pathogenesis. Unawareness of autism’s high prevalence in blind individuals includes blindness’ rarity, misunderstanding of autism as “disease” rather than dimensional behavioral diagnosis, reluctance to diagnose it in blind children, and ignorance of its potentially more favorable outcome. Future investigation may suggest interventions to prevent or mitigate it. En ligne : http://dx.doi.org/10.1007/s10803-015-2612-5 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=281
in Journal of Autism and Developmental Disorders > 46-3 (March 2016) . - p.749-759[article] Autism Spectrum Disorders (ASD) in Blind Children: Very High Prevalence, Potentially Better Outlook [Texte imprimé et/ou numérique] / Rubin JURE, Auteur ; Ramón POGONZA, Auteur ; Isabelle RAPIN, Auteur . - p.749-759.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 46-3 (March 2016) . - p.749-759
Mots-clés : Autism spectrum disorder Autism recovery Autistic regression Blindisms Blindness Congenital blindness Index. décimale : PER Périodiques Résumé : Autism spectrum disorders affected 19 of 38 unselected children at a school for the blind in Cordoba, Argentina. Autism was linked to total congenital blindness, not blindness’ etiology, acquired or incomplete blindness, sex, overt brain damage, or socioeconomic status. Autism “recovery,” had occurred in 4 verbal children. Congenital blindness causes profoundly deviant sensory experience and massive reorganization of brain connectivity. Its ?30 times greater prevalence than in sighted children suggests a distinct pathogenesis. Unawareness of autism’s high prevalence in blind individuals includes blindness’ rarity, misunderstanding of autism as “disease” rather than dimensional behavioral diagnosis, reluctance to diagnose it in blind children, and ignorance of its potentially more favorable outcome. Future investigation may suggest interventions to prevent or mitigate it. En ligne : http://dx.doi.org/10.1007/s10803-015-2612-5 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=281 Mother-infant interactions with infants with congenital visual impairment and associations with longitudinal outcomes in cognition and language / E. SAKKALOU in Journal of Child Psychology and Psychiatry, 62-6 (June 2021)
[article]
Titre : Mother-infant interactions with infants with congenital visual impairment and associations with longitudinal outcomes in cognition and language Type de document : Texte imprimé et/ou numérique Auteurs : E. SAKKALOU, Auteur ; M. A. O'REILLY, Auteur ; H. SAKKI, Auteur ; C. SPRINGALL, Auteur ; M. DE HAAN, Auteur ; A. T. SALT, Auteur ; N. J. DALE, Auteur Article en page(s) : p.742-750 Langues : Anglais (eng) Mots-clés : Adolescent Child Cognition Cross-Sectional Studies Female Humans Infant Language Mother-Child Relations Mothers Vision Disorders Visual impairment blindness child cognition infant Index. décimale : PER Périodiques Résumé : BACKGROUND: This study investigated mother-infant interactions, including maternal maintaining of infant attentional focus and sensitivity, with infants with congenital severe and profound visual impairment (VI) and the association with developmental trajectories from one to three years. METHOD: Fifty-five infants and mothers were video-recorded playing together with a standard set of toys at Time 1 (T1) mean age 12.95 months (8.13-17.05 months). Maintain was categorized as the mother following and maintaining the child's focus, and Sensitivity, the mother's responsiveness and contingency to infant behaviour. Vision level was measured using the Near Detection Scale. Cognition and language were measured at T1, 12 months later (T2) and 24 months later (T3) using the Reynell-Zinkin Scales. RESULTS: Cross-sectional analyses showed that mothers of infants with severe VI (basic form vision) produced higher rates of Maintain compared to those with children with profound VI (light perception at best). Linear mixed-effects models examining developmental progression from T1 to T3 (controlling for vision level) showed an average increase of 5 DQ points (CI 95%: 1.03-9.08) in verbal comprehension for higher Sensitivity. No significant findings were found for Maintain. CONCLUSIONS: The findings suggest that mother-infant interactions (maternal Maintain) are associated with level of vision at infancy, but only maternal Sensitivity has a long-term positive association with advances in verbal comprehension from infancy to about three years. They highlight the need for incorporating strategies related to parent-infant interactions, including increased sensitivity, into early intervention for children with visual impairment. En ligne : http://dx.doi.org/10.1111/jcpp.13308 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=456
in Journal of Child Psychology and Psychiatry > 62-6 (June 2021) . - p.742-750[article] Mother-infant interactions with infants with congenital visual impairment and associations with longitudinal outcomes in cognition and language [Texte imprimé et/ou numérique] / E. SAKKALOU, Auteur ; M. A. O'REILLY, Auteur ; H. SAKKI, Auteur ; C. SPRINGALL, Auteur ; M. DE HAAN, Auteur ; A. T. SALT, Auteur ; N. J. DALE, Auteur . - p.742-750.
Langues : Anglais (eng)
in Journal of Child Psychology and Psychiatry > 62-6 (June 2021) . - p.742-750
Mots-clés : Adolescent Child Cognition Cross-Sectional Studies Female Humans Infant Language Mother-Child Relations Mothers Vision Disorders Visual impairment blindness child cognition infant Index. décimale : PER Périodiques Résumé : BACKGROUND: This study investigated mother-infant interactions, including maternal maintaining of infant attentional focus and sensitivity, with infants with congenital severe and profound visual impairment (VI) and the association with developmental trajectories from one to three years. METHOD: Fifty-five infants and mothers were video-recorded playing together with a standard set of toys at Time 1 (T1) mean age 12.95 months (8.13-17.05 months). Maintain was categorized as the mother following and maintaining the child's focus, and Sensitivity, the mother's responsiveness and contingency to infant behaviour. Vision level was measured using the Near Detection Scale. Cognition and language were measured at T1, 12 months later (T2) and 24 months later (T3) using the Reynell-Zinkin Scales. RESULTS: Cross-sectional analyses showed that mothers of infants with severe VI (basic form vision) produced higher rates of Maintain compared to those with children with profound VI (light perception at best). Linear mixed-effects models examining developmental progression from T1 to T3 (controlling for vision level) showed an average increase of 5 DQ points (CI 95%: 1.03-9.08) in verbal comprehension for higher Sensitivity. No significant findings were found for Maintain. CONCLUSIONS: The findings suggest that mother-infant interactions (maternal Maintain) are associated with level of vision at infancy, but only maternal Sensitivity has a long-term positive association with advances in verbal comprehension from infancy to about three years. They highlight the need for incorporating strategies related to parent-infant interactions, including increased sensitivity, into early intervention for children with visual impairment. En ligne : http://dx.doi.org/10.1111/jcpp.13308 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=456
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Titre : The coherence of autism Type de document : Texte imprimé et/ou numérique Auteurs : R. Peter HOBSON, Auteur Article en page(s) : p.6-16 Langues : Anglais (eng) Mots-clés : Autism blindness coherence fractionation identification intersubjectivity syndrome; Index. décimale : PER Périodiques Résumé : There is a growing body of opinion that we should view autism as fractionable into different, largely independent sets of clinical features. The alternative view is that autism is a coherent syndrome in which principal features of the disorder stand in intimate developmental relationship with each other. Studies of congenitally blind children offer support for the latter position and suggest that a source of coherence in autism is restriction in certain forms of perceptually dependent social experience. En ligne : http://dx.doi.org/10.1177/1362361313497538 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=221
in Autism > 18-1 (January 2014) . - p.6-16[article] The coherence of autism [Texte imprimé et/ou numérique] / R. Peter HOBSON, Auteur . - p.6-16.
Langues : Anglais (eng)
in Autism > 18-1 (January 2014) . - p.6-16
Mots-clés : Autism blindness coherence fractionation identification intersubjectivity syndrome; Index. décimale : PER Périodiques Résumé : There is a growing body of opinion that we should view autism as fractionable into different, largely independent sets of clinical features. The alternative view is that autism is a coherent syndrome in which principal features of the disorder stand in intimate developmental relationship with each other. Studies of congenitally blind children offer support for the latter position and suggest that a source of coherence in autism is restriction in certain forms of perceptually dependent social experience. En ligne : http://dx.doi.org/10.1177/1362361313497538 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=221 Theory of Mind Development in Children with Visual Impairment: The Contribution of the Adapted Comprehensive Test ToM Storybooks / G. BARTOLI in Journal of Autism and Developmental Disorders, 49-9 (September 2019)
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