Centre d'Information et de documentation du CRA Rhône-Alpes
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Carers’ experiences of being exposed to challenging behaviour in services for autism spectrum disorders / Rasa BUTRIMAVICIUTE in Autism, 18-8 (November 2014)
[article]
Titre : Carers’ experiences of being exposed to challenging behaviour in services for autism spectrum disorders Type de document : Texte imprimé et/ou numérique Auteurs : Rasa BUTRIMAVICIUTE, Auteur ; Alan GRIEVE, Auteur Article en page(s) : p.882-890 Langues : Anglais (eng) Mots-clés : autism autism spectrum disorder carers challenging behaviour interpretative phenomenological analysis support workers Index. décimale : PER Périodiques Résumé : Previous studies have demonstrated that being exposed to challenging behaviour in services of care can have a negative impact on staff. Recently, challenging behaviour has been linked to people with autism spectrum disorders; however, little research has been aimed at exploring staff’s experiences of facing such behaviour in services for autism spectrum disorders in particular. A qualitative study using interpretative phenomenological analysis was conducted. This method involves thorough exploration of experiences revealed by individuals. A purposive sample (N = 10) was used. Participants were involved in semi-structured interviews which were later analysed according to the guidelines by Smith and Osborn. Four themes were discovered: intense mental and physical engagement, importance of adaptive coping, ambiguous experience of failure and achievement and destructive emotional reactions. Being exposed to challenging behaviour in services for autism spectrum disorders is a complex multi-component experience. The present results allow some insight into personal worlds of staff and might be useful for improving their working environment as well as ensuring a higher quality of care for service users. En ligne : http://dx.doi.org/10.1177/1362361313508022 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=242
in Autism > 18-8 (November 2014) . - p.882-890[article] Carers’ experiences of being exposed to challenging behaviour in services for autism spectrum disorders [Texte imprimé et/ou numérique] / Rasa BUTRIMAVICIUTE, Auteur ; Alan GRIEVE, Auteur . - p.882-890.
Langues : Anglais (eng)
in Autism > 18-8 (November 2014) . - p.882-890
Mots-clés : autism autism spectrum disorder carers challenging behaviour interpretative phenomenological analysis support workers Index. décimale : PER Périodiques Résumé : Previous studies have demonstrated that being exposed to challenging behaviour in services of care can have a negative impact on staff. Recently, challenging behaviour has been linked to people with autism spectrum disorders; however, little research has been aimed at exploring staff’s experiences of facing such behaviour in services for autism spectrum disorders in particular. A qualitative study using interpretative phenomenological analysis was conducted. This method involves thorough exploration of experiences revealed by individuals. A purposive sample (N = 10) was used. Participants were involved in semi-structured interviews which were later analysed according to the guidelines by Smith and Osborn. Four themes were discovered: intense mental and physical engagement, importance of adaptive coping, ambiguous experience of failure and achievement and destructive emotional reactions. Being exposed to challenging behaviour in services for autism spectrum disorders is a complex multi-component experience. The present results allow some insight into personal worlds of staff and might be useful for improving their working environment as well as ensuring a higher quality of care for service users. En ligne : http://dx.doi.org/10.1177/1362361313508022 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=242 Predictors of the Quality of Life of Informal Carers of Adults on the Autism Spectrum / Marisse T. SONIDO in Journal of Autism and Developmental Disorders, 52-7 (July 2022)
[article]
Titre : Predictors of the Quality of Life of Informal Carers of Adults on the Autism Spectrum Type de document : Texte imprimé et/ou numérique Auteurs : Marisse T. SONIDO, Auteur ; Ye In HWANG, Auteur ; Preeyaporn SRASUEBKUL, Auteur ; Julian N. TROLLOR, Auteur ; Samuel R. C. ARNOLD, Auteur Article en page(s) : p.2997-3014 Langues : Anglais (eng) Mots-clés : Adult Australia Autism Spectrum Disorder Autistic Disorder Caregivers/psychology Humans Longitudinal Studies Quality of Life/psychology Adults Autism spectrum disorders Carers Family functioning and support Mental well-being Psychiatric comorbidity Quality of life Index. décimale : PER Périodiques Résumé : Carers of adults on the autism spectrum often experience high levels of stress, worry, and caregiver burden. There are few studies identifying the predictors of carer mental well-being and none have been conducted in Australia. Data from the Autism Cooperative Research Centre for Living with Autism's Australian Longitudinal Study of Autism in Adulthood was used to test the conceptual model by Sonido et al. (Rev J Autism Dev Disord, 2019, https://doi.org/10.1007/s40489-019-00177-8 ) by (a) identifying the predictors of mental well-being for carers of adults on the spectrum, (b) using model selection to determine which predictors contribute to the model of best fit, and (c) testing for mediating relationships between the predictors. Several predictors were directly associated with carer psychological quality of life, including carer age, care recipient intellectual disability, and carer intolerance of uncertainty. Model selection strongly supported the inclusion of most clusters from the conceptual model. Some mediating relationships were found, such as care recipient depressive behaviours mediating the relationships between caregiver burden and psychological quality of life. Future studies of the conceptual model will improve understanding of the predictors of carer mental well-being and enable tailored interventions to improve the psychological health of carers of adults on the autism spectrum. En ligne : http://dx.doi.org/10.1007/s10803-021-05178-3 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=477
in Journal of Autism and Developmental Disorders > 52-7 (July 2022) . - p.2997-3014[article] Predictors of the Quality of Life of Informal Carers of Adults on the Autism Spectrum [Texte imprimé et/ou numérique] / Marisse T. SONIDO, Auteur ; Ye In HWANG, Auteur ; Preeyaporn SRASUEBKUL, Auteur ; Julian N. TROLLOR, Auteur ; Samuel R. C. ARNOLD, Auteur . - p.2997-3014.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 52-7 (July 2022) . - p.2997-3014
Mots-clés : Adult Australia Autism Spectrum Disorder Autistic Disorder Caregivers/psychology Humans Longitudinal Studies Quality of Life/psychology Adults Autism spectrum disorders Carers Family functioning and support Mental well-being Psychiatric comorbidity Quality of life Index. décimale : PER Périodiques Résumé : Carers of adults on the autism spectrum often experience high levels of stress, worry, and caregiver burden. There are few studies identifying the predictors of carer mental well-being and none have been conducted in Australia. Data from the Autism Cooperative Research Centre for Living with Autism's Australian Longitudinal Study of Autism in Adulthood was used to test the conceptual model by Sonido et al. (Rev J Autism Dev Disord, 2019, https://doi.org/10.1007/s40489-019-00177-8 ) by (a) identifying the predictors of mental well-being for carers of adults on the spectrum, (b) using model selection to determine which predictors contribute to the model of best fit, and (c) testing for mediating relationships between the predictors. Several predictors were directly associated with carer psychological quality of life, including carer age, care recipient intellectual disability, and carer intolerance of uncertainty. Model selection strongly supported the inclusion of most clusters from the conceptual model. Some mediating relationships were found, such as care recipient depressive behaviours mediating the relationships between caregiver burden and psychological quality of life. Future studies of the conceptual model will improve understanding of the predictors of carer mental well-being and enable tailored interventions to improve the psychological health of carers of adults on the autism spectrum. En ligne : http://dx.doi.org/10.1007/s10803-021-05178-3 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=477
[article]
Titre : Diagnosis of autism in adulthood: A scoping review Type de document : Texte imprimé et/ou numérique Auteurs : Yunhe HUANG, Auteur ; Samuel R. C. ARNOLD, Auteur ; Kitty-Rose FOLEY, Auteur ; Julian N. TROLLOR, Auteur Article en page(s) : p.1311-1327 Langues : Anglais (eng) Mots-clés : adults autism spectrum disorders carers diagnosis gender health services psychiatric comorbidity Index. décimale : PER Périodiques Résumé : More adults are getting assessed for possible autism. Here, we give an overview on what is already known about autism diagnosis in adulthood and find areas that need more research. We divided results from the studies we found into six topics of (1) rates of autism in different groups; (2) the process of getting an autism diagnosis in adulthood; (3) gender; (4) personality traits, abilities and behaviours of diagnosed adults; (5) mental and physical health conditions that occur together with autism; and (6) how adults think and feel about being assessed and diagnosed. We found that adults often have strong emotions after being diagnosed, the process of getting a diagnosis can be unclear and different for everyone, and not many support services are available for adults. More research on diagnosing adults with intellectual disability, differences between early and late-diagnosed adults, and support after diagnosis would be useful. En ligne : http://dx.doi.org/10.1177/1362361320903128 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=428
in Autism > 24-6 (August 2020) . - p.1311-1327[article] Diagnosis of autism in adulthood: A scoping review [Texte imprimé et/ou numérique] / Yunhe HUANG, Auteur ; Samuel R. C. ARNOLD, Auteur ; Kitty-Rose FOLEY, Auteur ; Julian N. TROLLOR, Auteur . - p.1311-1327.
Langues : Anglais (eng)
in Autism > 24-6 (August 2020) . - p.1311-1327
Mots-clés : adults autism spectrum disorders carers diagnosis gender health services psychiatric comorbidity Index. décimale : PER Périodiques Résumé : More adults are getting assessed for possible autism. Here, we give an overview on what is already known about autism diagnosis in adulthood and find areas that need more research. We divided results from the studies we found into six topics of (1) rates of autism in different groups; (2) the process of getting an autism diagnosis in adulthood; (3) gender; (4) personality traits, abilities and behaviours of diagnosed adults; (5) mental and physical health conditions that occur together with autism; and (6) how adults think and feel about being assessed and diagnosed. We found that adults often have strong emotions after being diagnosed, the process of getting a diagnosis can be unclear and different for everyone, and not many support services are available for adults. More research on diagnosing adults with intellectual disability, differences between early and late-diagnosed adults, and support after diagnosis would be useful. En ligne : http://dx.doi.org/10.1177/1362361320903128 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=428 Healthy Mothers Healthy Families Workshop Intervention: A Preliminary Investigation of Healthy Lifestyle Changes for Mothers of a Child with a Disability / Helen M. BOURKE-TAYLOR in Journal of Autism and Developmental Disorders, 49-3 (March 2019)
[article]
Titre : Healthy Mothers Healthy Families Workshop Intervention: A Preliminary Investigation of Healthy Lifestyle Changes for Mothers of a Child with a Disability Type de document : Texte imprimé et/ou numérique Auteurs : Helen M. BOURKE-TAYLOR, Auteur ; F. JANE, Auteur ; J. PEAT, Auteur Article en page(s) : p.935-949 Langues : Anglais (eng) Mots-clés : Carers Children with disability Health promotion Mental health Mothers Women's health Index. décimale : PER Périodiques Résumé : Substantial evidence identifies mothers of children with a disability as having a higher risk for compromised health outcomes and lifestyle restrictions secondary to caring responsibilities. Healthy Mothers Healthy Families (HMHF) is an evidence informed health and empowerment group-based workshop program. METHODS: HMHF features health education and lifestyle redesign content. Mixed methods evaluated the program. This paper presents a pretest-postest time series design to evaluate outcomes over 8 months. RESULTS: Mothers reported significant change across 4 time points including participation in healthy activity (p = 0.017), depression, anxiety, stress symptoms (p = 0.017, 0.016, 0.037 respectively) and empowerment (p = 0.009). CONCLUSION: Coupled with qualitative findings, these results suggest that HMHF is effective at improving health and wellbeing outcomes for mothers of children with a disability. En ligne : http://dx.doi.org/10.1007/s10803-018-3789-1 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=386
in Journal of Autism and Developmental Disorders > 49-3 (March 2019) . - p.935-949[article] Healthy Mothers Healthy Families Workshop Intervention: A Preliminary Investigation of Healthy Lifestyle Changes for Mothers of a Child with a Disability [Texte imprimé et/ou numérique] / Helen M. BOURKE-TAYLOR, Auteur ; F. JANE, Auteur ; J. PEAT, Auteur . - p.935-949.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 49-3 (March 2019) . - p.935-949
Mots-clés : Carers Children with disability Health promotion Mental health Mothers Women's health Index. décimale : PER Périodiques Résumé : Substantial evidence identifies mothers of children with a disability as having a higher risk for compromised health outcomes and lifestyle restrictions secondary to caring responsibilities. Healthy Mothers Healthy Families (HMHF) is an evidence informed health and empowerment group-based workshop program. METHODS: HMHF features health education and lifestyle redesign content. Mixed methods evaluated the program. This paper presents a pretest-postest time series design to evaluate outcomes over 8 months. RESULTS: Mothers reported significant change across 4 time points including participation in healthy activity (p = 0.017), depression, anxiety, stress symptoms (p = 0.017, 0.016, 0.037 respectively) and empowerment (p = 0.009). CONCLUSION: Coupled with qualitative findings, these results suggest that HMHF is effective at improving health and wellbeing outcomes for mothers of children with a disability. En ligne : http://dx.doi.org/10.1007/s10803-018-3789-1 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=386 Mothers' Experiences of a Women's Health and Empowerment Program for Mothers of a Child with a Disability / Helen M. BOURKE-TAYLOR in Journal of Autism and Developmental Disorders, 48-6 (June 2018)
[article]
Titre : Mothers' Experiences of a Women's Health and Empowerment Program for Mothers of a Child with a Disability Type de document : Texte imprimé et/ou numérique Auteurs : Helen M. BOURKE-TAYLOR, Auteur ; F. M. JANE, Auteur Article en page(s) : p.2174-2186 Langues : Anglais (eng) Mots-clés : Carers Children with disability Health promotion Mental health Mothers of children with a disability Women's health Index. décimale : PER Périodiques Résumé : Substantial research identifies mothers of children with a disability as a vulnerable group with compromised health outcomes and restrictions for their own self-care, social, economic and leisure participation. This study investigated perceptions and experiences of mothers following attendance at health education and empowerment workshops (Healthy Mothers Healthy Families). Mixed methods evaluated mothers' experiences. A pragmatic qualitative approach was applied to data analysis of interviews with mothers (N = 19). Four themes emerged: Changes for me; Changes for my family; Wisdom gained; and Worthwhile workshops. Mothers described feeling validated and empowered in this facilitated group intervention and valued education about women's health, tailored research findings, individualised goal setting, time to learn and share with other mothers, and the workshop environment. En ligne : http://dx.doi.org/10.1007/s10803-018-3486-0 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=362
in Journal of Autism and Developmental Disorders > 48-6 (June 2018) . - p.2174-2186[article] Mothers' Experiences of a Women's Health and Empowerment Program for Mothers of a Child with a Disability [Texte imprimé et/ou numérique] / Helen M. BOURKE-TAYLOR, Auteur ; F. M. JANE, Auteur . - p.2174-2186.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 48-6 (June 2018) . - p.2174-2186
Mots-clés : Carers Children with disability Health promotion Mental health Mothers of children with a disability Women's health Index. décimale : PER Périodiques Résumé : Substantial research identifies mothers of children with a disability as a vulnerable group with compromised health outcomes and restrictions for their own self-care, social, economic and leisure participation. This study investigated perceptions and experiences of mothers following attendance at health education and empowerment workshops (Healthy Mothers Healthy Families). Mixed methods evaluated mothers' experiences. A pragmatic qualitative approach was applied to data analysis of interviews with mothers (N = 19). Four themes emerged: Changes for me; Changes for my family; Wisdom gained; and Worthwhile workshops. Mothers described feeling validated and empowered in this facilitated group intervention and valued education about women's health, tailored research findings, individualised goal setting, time to learn and share with other mothers, and the workshop environment. En ligne : http://dx.doi.org/10.1007/s10803-018-3486-0 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=362