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Community Participation Comparison Between Adults on the Autism Spectrum and Adults in the General Population / Wei SONG in Journal of Autism and Developmental Disorders, 52-4 (April 2022)
[article]
Titre : Community Participation Comparison Between Adults on the Autism Spectrum and Adults in the General Population Type de document : Texte imprimé et/ou numérique Auteurs : Wei SONG, Auteur ; Lindsay SHEA, Auteur ; Stacy L. NONNEMACHER, Auteur ; Eugene BRUSILOVSKIY, Auteur ; Greg TOWNLEY, Auteur ; Mark S. SALZER, Auteur Article en page(s) : p.1610-1621 Langues : Anglais (eng) Mots-clés : Adult Autism Spectrum Disorder/epidemiology Autistic Disorder/epidemiology Community Participation Humans Personal Satisfaction Autism spectrum disorder Community activities Group comparison Participation Index. décimale : PER Périodiques Résumé : Little research has examined the full-range of participation among adults on the autism spectrum. The current study addresses this knowledge gap by comparing the frequency, importance, breadth, and sufficiency of participation between autistic adults and adults in the general population. Autistic adults participated less, had fewer areas that were important to them, participated in fewer areas that were important to them, and were less satisfied with their participation even after controlling for demographic characteristics. Moreover, this study raises questions about what influences their perceptions about the breadth of activities that are important to them and the degree to which they desire to participate in those areas. Suggestions for future interventions and research are offered. En ligne : http://dx.doi.org/10.1007/s10803-021-05059-9 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=475
in Journal of Autism and Developmental Disorders > 52-4 (April 2022) . - p.1610-1621[article] Community Participation Comparison Between Adults on the Autism Spectrum and Adults in the General Population [Texte imprimé et/ou numérique] / Wei SONG, Auteur ; Lindsay SHEA, Auteur ; Stacy L. NONNEMACHER, Auteur ; Eugene BRUSILOVSKIY, Auteur ; Greg TOWNLEY, Auteur ; Mark S. SALZER, Auteur . - p.1610-1621.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 52-4 (April 2022) . - p.1610-1621
Mots-clés : Adult Autism Spectrum Disorder/epidemiology Autistic Disorder/epidemiology Community Participation Humans Personal Satisfaction Autism spectrum disorder Community activities Group comparison Participation Index. décimale : PER Périodiques Résumé : Little research has examined the full-range of participation among adults on the autism spectrum. The current study addresses this knowledge gap by comparing the frequency, importance, breadth, and sufficiency of participation between autistic adults and adults in the general population. Autistic adults participated less, had fewer areas that were important to them, participated in fewer areas that were important to them, and were less satisfied with their participation even after controlling for demographic characteristics. Moreover, this study raises questions about what influences their perceptions about the breadth of activities that are important to them and the degree to which they desire to participate in those areas. Suggestions for future interventions and research are offered. En ligne : http://dx.doi.org/10.1007/s10803-021-05059-9 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=475 Community participation patterns among autistic adults and associated characteristics: A latent class analysis / Wei SONG in Research in Autism Spectrum Disorders, 89 (November 2021)
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Titre : Community participation patterns among autistic adults and associated characteristics: A latent class analysis Type de document : Texte imprimé et/ou numérique Auteurs : Wei SONG, Auteur ; Mark S. SALZER, Auteur ; Stacy L. NONNEMACHER, Auteur ; Lindsay L. SHEA, Auteur Article en page(s) : 101884 Langues : Anglais (eng) Mots-clés : Autism spectrum disorder Adults Community participation Latent class analysis Index. décimale : PER Périodiques Résumé : Background Community participation can buffer stress and anxiety and improve quality of life for autistic adults. While the participation of autistic adults is known to be lower than the general population, it is not known if subgroups exist based on the degree of interest in participation or amounts of participation among those who are interested. Method This study uses Latent Class Analysis to identify subgroups based on the number of important areas and engagement in important activities, and the demographic, clinical, social, and environmental features of these subgroups. Cross-sectional data from 816 autistic adults aged 18–72 from a large, statewide survey were used. Results Latent Class Analysis resulted in a good-fitting four class solution: Low Importance of Participation (33%); High Importance-Low Participation (16%); High Importance-Moderate Participation (22%); High Importance-High Participation (29%). Autistic adults in the Low Importance group were more likely to have fewer years of education, live with family members, and less likely to have an intellectual disability. Among the classes where participation was important, compared to adults in the Moderate Participation class, those in the Low Participation class were more likely to live in an isolated environment, such as rural areas or supported living facilities, and those in the High Participation class had more satisfying relationships and fewer unmet service needs. Conclusions Study findings have implications for more efficient and effective service planning and delivery that enhances participation interests and amount of community participation to align with interests. En ligne : https://doi.org/10.1016/j.rasd.2021.101884 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=458
in Research in Autism Spectrum Disorders > 89 (November 2021) . - 101884[article] Community participation patterns among autistic adults and associated characteristics: A latent class analysis [Texte imprimé et/ou numérique] / Wei SONG, Auteur ; Mark S. SALZER, Auteur ; Stacy L. NONNEMACHER, Auteur ; Lindsay L. SHEA, Auteur . - 101884.
Langues : Anglais (eng)
in Research in Autism Spectrum Disorders > 89 (November 2021) . - 101884
Mots-clés : Autism spectrum disorder Adults Community participation Latent class analysis Index. décimale : PER Périodiques Résumé : Background Community participation can buffer stress and anxiety and improve quality of life for autistic adults. While the participation of autistic adults is known to be lower than the general population, it is not known if subgroups exist based on the degree of interest in participation or amounts of participation among those who are interested. Method This study uses Latent Class Analysis to identify subgroups based on the number of important areas and engagement in important activities, and the demographic, clinical, social, and environmental features of these subgroups. Cross-sectional data from 816 autistic adults aged 18–72 from a large, statewide survey were used. Results Latent Class Analysis resulted in a good-fitting four class solution: Low Importance of Participation (33%); High Importance-Low Participation (16%); High Importance-Moderate Participation (22%); High Importance-High Participation (29%). Autistic adults in the Low Importance group were more likely to have fewer years of education, live with family members, and less likely to have an intellectual disability. Among the classes where participation was important, compared to adults in the Moderate Participation class, those in the Low Participation class were more likely to live in an isolated environment, such as rural areas or supported living facilities, and those in the High Participation class had more satisfying relationships and fewer unmet service needs. Conclusions Study findings have implications for more efficient and effective service planning and delivery that enhances participation interests and amount of community participation to align with interests. En ligne : https://doi.org/10.1016/j.rasd.2021.101884 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=458 Examining Environmental Predictors of Community Participation for Adults with Autism Spectrum Disorder Using Geographic Information Systems (GIS) / D. V. CHAN in Journal of Autism and Developmental Disorders, 51-7 (July 2021)
[article]
Titre : Examining Environmental Predictors of Community Participation for Adults with Autism Spectrum Disorder Using Geographic Information Systems (GIS) Type de document : Texte imprimé et/ou numérique Auteurs : D. V. CHAN, Auteur ; M. R. KLINGER, Auteur ; K. A. ADKISSON, Auteur ; L. G. KLINGER, Auteur Article en page(s) : p.2531-2537 Langues : Anglais (eng) Mots-clés : Activities of Daily Living Adult Autism Spectrum Disorder/epidemiology Community Participation Female Geographic Information Systems Humans Male Adults Autism spectrum disorder Community participation Geographic information systems (GIS) Services Foundation, the Organization for Autism Research, The University of North Carolina at Chapel Hill Junior Faculty Development Award and the University Research Council. Laura Klinger received research grants from Autism Speaks (#8316) and the Foundation of Hope. Index. décimale : PER Périodiques Résumé : A geographic information system (GIS) approach systematically assessed whether population density and distribution of community resources contributed to caregiver reported community participation outcomes for 124 adults with autism spectrum disorder (ASD). Regression analyses examined whether GIS measures predicted community participation in areas of social activities and use of services, while also accounting for adult age, conversation ability, and daily living skills (DLS). Results indicated that in addition to person factors of greater DLS and better conversation ability, access to specific community features, such as bus stops, contributed to improved participation. Unexpectedly, population density where one lived made minimal contribution to participation outcomes, except in getting together with friends outside of organized activities. En ligne : http://dx.doi.org/10.1007/s10803-020-04660-8 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=452
in Journal of Autism and Developmental Disorders > 51-7 (July 2021) . - p.2531-2537[article] Examining Environmental Predictors of Community Participation for Adults with Autism Spectrum Disorder Using Geographic Information Systems (GIS) [Texte imprimé et/ou numérique] / D. V. CHAN, Auteur ; M. R. KLINGER, Auteur ; K. A. ADKISSON, Auteur ; L. G. KLINGER, Auteur . - p.2531-2537.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 51-7 (July 2021) . - p.2531-2537
Mots-clés : Activities of Daily Living Adult Autism Spectrum Disorder/epidemiology Community Participation Female Geographic Information Systems Humans Male Adults Autism spectrum disorder Community participation Geographic information systems (GIS) Services Foundation, the Organization for Autism Research, The University of North Carolina at Chapel Hill Junior Faculty Development Award and the University Research Council. Laura Klinger received research grants from Autism Speaks (#8316) and the Foundation of Hope. Index. décimale : PER Périodiques Résumé : A geographic information system (GIS) approach systematically assessed whether population density and distribution of community resources contributed to caregiver reported community participation outcomes for 124 adults with autism spectrum disorder (ASD). Regression analyses examined whether GIS measures predicted community participation in areas of social activities and use of services, while also accounting for adult age, conversation ability, and daily living skills (DLS). Results indicated that in addition to person factors of greater DLS and better conversation ability, access to specific community features, such as bus stops, contributed to improved participation. Unexpectedly, population density where one lived made minimal contribution to participation outcomes, except in getting together with friends outside of organized activities. En ligne : http://dx.doi.org/10.1007/s10803-020-04660-8 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=452 Community and Social Participation Among Individuals with Autism Spectrum Disorder Transitioning to Adulthood / Emily MYERS in Journal of Autism and Developmental Disorders, 45-8 (August 2015)
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Titre : Community and Social Participation Among Individuals with Autism Spectrum Disorder Transitioning to Adulthood Type de document : Texte imprimé et/ou numérique Auteurs : Emily MYERS, Auteur ; Beth Ellen DAVIS, Auteur ; Gary STOBBE, Auteur ; Kristie BJORNSON, Auteur Année de publication : 2015 Article en page(s) : p.2373-2381 Langues : Anglais (eng) Mots-clés : Autism Adulthood Adolescence Case management Community participation Social participation Index. décimale : PER Périodiques Résumé : Individuals with Autism Spectrum Disorders (ASDs) are at increased risk for poor psychosocial outcomes as adults. We described community and social participation in adolescents with ASDs as they transitioned from adolescence to adulthood, and identified adolescent factors associated with community and social participation outcomes in adulthood. We performed a secondary data analysis of a nationally representative cohort using the National Longitudinal Transition Study 2 and observed a significant decrease in community participation from adolescence to adulthood (63 to 46 %); social participation remained stable. The presence of case management in adolescence was associated with increased community and social participation in adulthood. Case management may be crucial for optimal levels of participation among adults with ASDs. En ligne : http://dx.doi.org/10.1007/s10803-015-2403-z Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=263
in Journal of Autism and Developmental Disorders > 45-8 (August 2015) . - p.2373-2381[article] Community and Social Participation Among Individuals with Autism Spectrum Disorder Transitioning to Adulthood [Texte imprimé et/ou numérique] / Emily MYERS, Auteur ; Beth Ellen DAVIS, Auteur ; Gary STOBBE, Auteur ; Kristie BJORNSON, Auteur . - 2015 . - p.2373-2381.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 45-8 (August 2015) . - p.2373-2381
Mots-clés : Autism Adulthood Adolescence Case management Community participation Social participation Index. décimale : PER Périodiques Résumé : Individuals with Autism Spectrum Disorders (ASDs) are at increased risk for poor psychosocial outcomes as adults. We described community and social participation in adolescents with ASDs as they transitioned from adolescence to adulthood, and identified adolescent factors associated with community and social participation outcomes in adulthood. We performed a secondary data analysis of a nationally representative cohort using the National Longitudinal Transition Study 2 and observed a significant decrease in community participation from adolescence to adulthood (63 to 46 %); social participation remained stable. The presence of case management in adolescence was associated with increased community and social participation in adulthood. Case management may be crucial for optimal levels of participation among adults with ASDs. En ligne : http://dx.doi.org/10.1007/s10803-015-2403-z Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=263 Exploring the relationship between COVID-19 and autistic adults' community participation: Findings from a two-timepoint longitudinal study / Mark S. SALZER ; Alec BECKER ; David J. VANNESS ; Brian K. LEE ; Dylan COOPER ; Jonas VENTIMIGLIA ; Lindsay L. SHEA in Research in Autism Spectrum Disorders, 109 (November 2023)
[article]
Titre : Exploring the relationship between COVID-19 and autistic adults' community participation: Findings from a two-timepoint longitudinal study Type de document : Texte imprimé et/ou numérique Auteurs : Mark S. SALZER, Auteur ; Alec BECKER, Auteur ; David J. VANNESS, Auteur ; Brian K. LEE, Auteur ; Dylan COOPER, Auteur ; Jonas VENTIMIGLIA, Auteur ; Lindsay L. SHEA, Auteur Article en page(s) : 102278 Langues : Anglais (eng) Mots-clés : Autism COVID-19 Community participation Autistic adults Index. décimale : PER Périodiques Résumé : Background The COVID-19 pandemic has resulted in a continuum of changes in communities that have impacted the lives and health of millions of autistic people. Method To identify community participation changes during COVID-19, we conducted a two-timepoint (2018 and 2022) longitudinal quantitative study involving 116 autistic adults in Pennsylvania to investigate the impact of the pandemic on their community participation. Community participation was measured by the Temple University Community Participation Measure, and the impact of the pandemic was measured by a series of factors related to the COVID-19 pandemic (e.g., healthcare access, transportation, safety, etc.). Results Results of paired sample t-tests did not show changes in participants' total days of participation over the last 30 days, the total number of activities, or percentages of all activities participants considered important and participated in (i.e., breadth ratio) between the timepoints. However, the percentage of activities that were important to participants and in which they reported engaging as much as they wanted to (i.e., sufficiency ratio) reduced significantly. When examining participation outcomes and COVID-19 impact, we found that multiple participation outcomes (i.e., number of activities, breadth ratio, and sufficiency ratio) were negatively associated with the COVID-19 impact. Conclusion Results suggest that the COVID-19 impacts on autistic adults are variable, with those reporting a more significant impact also reporting a significantly lower level of participation. These findings emphasize the importance of individualized planning to support autistic adults to maintain or regain participation in their preferred activities during the pandemic and beyond. En ligne : https://doi.org/10.1016/j.rasd.2023.102278 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=517
in Research in Autism Spectrum Disorders > 109 (November 2023) . - 102278[article] Exploring the relationship between COVID-19 and autistic adults' community participation: Findings from a two-timepoint longitudinal study [Texte imprimé et/ou numérique] / Mark S. SALZER, Auteur ; Alec BECKER, Auteur ; David J. VANNESS, Auteur ; Brian K. LEE, Auteur ; Dylan COOPER, Auteur ; Jonas VENTIMIGLIA, Auteur ; Lindsay L. SHEA, Auteur . - 102278.
Langues : Anglais (eng)
in Research in Autism Spectrum Disorders > 109 (November 2023) . - 102278
Mots-clés : Autism COVID-19 Community participation Autistic adults Index. décimale : PER Périodiques Résumé : Background The COVID-19 pandemic has resulted in a continuum of changes in communities that have impacted the lives and health of millions of autistic people. Method To identify community participation changes during COVID-19, we conducted a two-timepoint (2018 and 2022) longitudinal quantitative study involving 116 autistic adults in Pennsylvania to investigate the impact of the pandemic on their community participation. Community participation was measured by the Temple University Community Participation Measure, and the impact of the pandemic was measured by a series of factors related to the COVID-19 pandemic (e.g., healthcare access, transportation, safety, etc.). Results Results of paired sample t-tests did not show changes in participants' total days of participation over the last 30 days, the total number of activities, or percentages of all activities participants considered important and participated in (i.e., breadth ratio) between the timepoints. However, the percentage of activities that were important to participants and in which they reported engaging as much as they wanted to (i.e., sufficiency ratio) reduced significantly. When examining participation outcomes and COVID-19 impact, we found that multiple participation outcomes (i.e., number of activities, breadth ratio, and sufficiency ratio) were negatively associated with the COVID-19 impact. Conclusion Results suggest that the COVID-19 impacts on autistic adults are variable, with those reporting a more significant impact also reporting a significantly lower level of participation. These findings emphasize the importance of individualized planning to support autistic adults to maintain or regain participation in their preferred activities during the pandemic and beyond. En ligne : https://doi.org/10.1016/j.rasd.2023.102278 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=517 Impact of COVID-19 on Community Participation and Mobility in Young Adults with Autism Spectrum Disorders / Beth PFEIFFER in Journal of Autism and Developmental Disorders, 52-4 (April 2022)
PermalinkLeisure, employment, community participation and quality of life in caregivers of autistic children: A scoping review / Gemma DAVY in Autism, 26-8 (November 2022)
PermalinkSelf-reported community participation experiences and preferences of autistic adults / Lindsay L. SHEA in Autism, 25-5 (July 2021)
PermalinkSelf-reported community participation experiences and preferences of autistic adults / Lindsay L. SHEA in Autism, 26-5 (July 2022)
PermalinkSitting on the Sidelines: Disparities in Social, Recreational, and Community Participation Among Adolescents with Autism Spectrum Disorder / Alexa C. BUDAVARI in Journal of Autism and Developmental Disorders, 52-8 (August 2022)
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