2 recherche sur le mot-clé 'Cultural Competency'

Biases, Barriers, and Possible Solutions: Steps Towards Addressing Autism Researchers Under-Engagement with Racially, Ethnically, and Socioeconomically Diverse Communities / Melissa MAYE in Journal of Autism and Developmental Disorders, 52-9 (September 2022)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 52-9 (September 2022) . - p.4206-4211 Titre : Biases, Barriers, and Possible Solutions: Steps Towards Addressing Autism Researchers Under-Engagement with Racially, Ethnically, and Socioeconomically Diverse Communities Type de document : texte imprimé Auteurs : Melissa MAYE, Auteur ; Brian A. BOYD, Auteur ; Frances MARTINEZ-PEDRAZA, Auteur ; Alycia K. HALLADAY, Auteur ; Audrey THURM, Auteur ; David S. MANDELL, Auteur Article en page(s) : p.4206-4211 Langues : Anglais (eng) Mots-clés : Autism Spectrum Disorder  Autistic Disorder  Bias  Cultural Competency  Healthcare Disparities  Humans  Autism  Engagement  Ethnicity  Participation  Race  Socioeconomic status  to disclose. Index. décimale : PER Périodiques Résumé : Autistic individuals who are also people of color or from lower socioeconomic strata are historically underrepresented in research. Lack of representation in autism research has contributed to health and healthcare disparities. Reducing these disparities will require culturally competent research that is relevant to under-resourced communities as well as collecting large nationally representative samples, or samples in which traditionally disenfranchised groups are over-represented. To achieve these goals, a diverse group of culturally competent researchers must partner with and gain the trust of communities to identify and eliminate barriers to participating in research. We suggest community-academic partnerships as one promising approach that results in high-quality research built on cultural competency, respect, and shared decision making. En ligne : http://dx.doi.org/10.1007/s10803-021-05250-y Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=486 [article] Biases, Barriers, and Possible Solutions: Steps Towards Addressing Autism Researchers Under-Engagement with Racially, Ethnically, and Socioeconomically Diverse Communities [texte imprimé] / Melissa MAYE, Auteur ; Brian A. BOYD, Auteur ; Frances MARTINEZ-PEDRAZA, Auteur ; Alycia K. HALLADAY, Auteur ; Audrey THURM, Auteur ; David S. MANDELL, Auteur . - p.4206-4211. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 52-9 (September 2022) . - p.4206-4211 Mots-clés : Autism Spectrum Disorder  Autistic Disorder  Bias  Cultural Competency  Healthcare Disparities  Humans  Autism  Engagement  Ethnicity  Participation  Race  Socioeconomic status  to disclose. Index. décimale : PER Périodiques Résumé : Autistic individuals who are also people of color or from lower socioeconomic strata are historically underrepresented in research. Lack of representation in autism research has contributed to health and healthcare disparities. Reducing these disparities will require culturally competent research that is relevant to under-resourced communities as well as collecting large nationally representative samples, or samples in which traditionally disenfranchised groups are over-represented. To achieve these goals, a diverse group of culturally competent researchers must partner with and gain the trust of communities to identify and eliminate barriers to participating in research. We suggest community-academic partnerships as one promising approach that results in high-quality research built on cultural competency, respect, and shared decision making. En ligne : http://dx.doi.org/10.1007/s10803-021-05250-y Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=486

Black and White caregivers' experiences with the autism diagnostic process / James D. LYNCH ; Kayva KANDARPA ; Suma KOLLA ; Maggie MICHAEL ; Waleia LARKIN ; Lisa L. HUNTER in Research in Autism, 124 (June 2025)  

Public ISBD [article]  inResearch in Autism > 124 (June 2025) . - 202598 Titre : Black and White caregivers' experiences with the autism diagnostic process Type de document : texte imprimé Auteurs : James D. LYNCH, Auteur ; Kayva KANDARPA, Auteur ; Suma KOLLA, Auteur ; Maggie MICHAEL, Auteur ; Waleia LARKIN, Auteur ; Lisa L. HUNTER, Auteur Article en page(s) : 202598 Langues : Anglais (eng) Mots-clés : Autism spectrum disorders  Qualitative research  Patient satisfaction  Cultural competency  Parents  Racial groups  Diagnosis Index. décimale : PER Périodiques Résumé : Introduction Families commonly report dissatisfaction with the autism diagnostic process, including long waits and lack of follow-up care. Dissatisfaction may be amplified for Black families, who experience racism in the healthcare system and have less access to culturally responsive care. Methods We assessed open text box responses to a survey about caregivers' satisfaction with the diagnostic process of autism spectrum disorder. We recruited Black and White caregivers of children with autism who participated in a developmental evaluation in 2018 at a large midwestern hospital. Out of 174 who completed the satisfaction survey, 71 (46.6 %) caregivers gave one or more qualitative responses in open text boxes (17 [34.0 %] Black families, 54 [43.5 %] White families). Researchers analyzed themes using inductive methods for Black and White families. Results Families who expanded on their Likert responses in open text boxes were less satisfied with the diagnostic process than those who did not. Caregivers described mixed feedback about wait times, their providers, and the information they received. Black families specifically described a power differential between providers and themselves. Discussion Though not representative of all families' experiences, caregivers' qualitative feedback sheds light on important changes that could be implemented to improve families' experiences with the diagnostic process. We highlight several recommendations including family navigation, training in culturally responsive care, and shared decision making. En ligne : https://doi.org/10.1016/j.reia.2025.202598 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=556 [article] Black and White caregivers' experiences with the autism diagnostic process [texte imprimé] / James D. LYNCH, Auteur ; Kayva KANDARPA, Auteur ; Suma KOLLA, Auteur ; Maggie MICHAEL, Auteur ; Waleia LARKIN, Auteur ; Lisa L. HUNTER, Auteur . - 202598. Langues : Anglais (eng) in Research in Autism > 124 (June 2025) . - 202598 Mots-clés : Autism spectrum disorders  Qualitative research  Patient satisfaction  Cultural competency  Parents  Racial groups  Diagnosis Index. décimale : PER Périodiques Résumé : Introduction Families commonly report dissatisfaction with the autism diagnostic process, including long waits and lack of follow-up care. Dissatisfaction may be amplified for Black families, who experience racism in the healthcare system and have less access to culturally responsive care. Methods We assessed open text box responses to a survey about caregivers' satisfaction with the diagnostic process of autism spectrum disorder. We recruited Black and White caregivers of children with autism who participated in a developmental evaluation in 2018 at a large midwestern hospital. Out of 174 who completed the satisfaction survey, 71 (46.6 %) caregivers gave one or more qualitative responses in open text boxes (17 [34.0 %] Black families, 54 [43.5 %] White families). Researchers analyzed themes using inductive methods for Black and White families. Results Families who expanded on their Likert responses in open text boxes were less satisfied with the diagnostic process than those who did not. Caregivers described mixed feedback about wait times, their providers, and the information they received. Black families specifically described a power differential between providers and themselves. Discussion Though not representative of all families' experiences, caregivers' qualitative feedback sheds light on important changes that could be implemented to improve families' experiences with the diagnostic process. We highlight several recommendations including family navigation, training in culturally responsive care, and shared decision making. En ligne : https://doi.org/10.1016/j.reia.2025.202598 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=556