Centre d'Information et de documentation du CRA Rhône-Alpes
CRA
Informations pratiques
-
Adresse
Centre d'information et de documentation
du CRA Rhône-Alpes
Centre Hospitalier le Vinatier
bât 211
95, Bd Pinel
69678 Bron CedexHoraires
Lundi au Vendredi
9h00-12h00 13h30-16h00Contact
Tél: +33(0)4 37 91 54 65
Mail
Fax: +33(0)4 37 91 54 37
-
Résultat de la recherche
30 recherche sur le mot-clé 'Developmental disability'
Affiner la recherche Générer le flux rss de la recherche
Partager le résultat de cette recherche Faire une suggestion
Brief Report: Telehealth Satisfaction Among Caregivers of Pediatric and Adult Psychology and Psychiatry Patients with Intellectual and Developmental Disability in the Wake of Covid-19 / Victoria ROSEN in Journal of Autism and Developmental Disorders, 52-12 (December 2022)
[article]
Titre : Brief Report: Telehealth Satisfaction Among Caregivers of Pediatric and Adult Psychology and Psychiatry Patients with Intellectual and Developmental Disability in the Wake of Covid-19 Type de document : Texte imprimé et/ou numérique Auteurs : Victoria ROSEN, Auteur ; Elizabeth BLANK, Auteur ; Erica LAMPERT, Auteur ; Kelli DOMINICK, Auteur ; Meredith WILL, Auteur ; Craig ERICKSON, Auteur ; Ernest V. PEDAPATI, Auteur ; Martine LAMY, Auteur ; Rebecca SHAFFER, Auteur Année de publication : 2022 Article en page(s) : p.5253-5265 Langues : Anglais (eng) Mots-clés : Adult Humans Child covid-19 Pandemics SARS-CoV-2 Caregivers Developmental Disabilities/therapy Personal Satisfaction Patient Satisfaction Autism Spectrum Disorder/therapy Telemedicine/methods Intellectual Disability Psychiatry ASC (autism spectrum conditions) Developmental disability Satisfaction Telehealth Telepsychiatry Index. décimale : PER Périodiques Résumé : Telehealth has been shown to be both acceptable and effective in many areas of healthcare, yet it was not widely adopted prior to the SARS-CoV-2 (COVID-19) pandemic. Additionally, previous evaluations of telehealth for autism spectrum condition (ASC) and intellectual and developmental disability (IDD) populations are limited in both number and scope. Here, we investigated satisfaction amongst Psychology and Psychiatry patient caregivers at Cincinnati Children's Hospital Medical Center (CCHMC) after the onset of the COVID-19 pandemic. Results (640 responses) showed high rates of satisfaction across departments, appointment types, and diagnoses, with 92% indicating overall satisfaction with their appointment. There were, however, notable decreases in satisfaction among Group Therapy respondents, and those whose diagnosis was classified as Other. En ligne : http://dx.doi.org/10.1007/s10803-022-05712-x Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=489
in Journal of Autism and Developmental Disorders > 52-12 (December 2022) . - p.5253-5265[article] Brief Report: Telehealth Satisfaction Among Caregivers of Pediatric and Adult Psychology and Psychiatry Patients with Intellectual and Developmental Disability in the Wake of Covid-19 [Texte imprimé et/ou numérique] / Victoria ROSEN, Auteur ; Elizabeth BLANK, Auteur ; Erica LAMPERT, Auteur ; Kelli DOMINICK, Auteur ; Meredith WILL, Auteur ; Craig ERICKSON, Auteur ; Ernest V. PEDAPATI, Auteur ; Martine LAMY, Auteur ; Rebecca SHAFFER, Auteur . - 2022 . - p.5253-5265.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 52-12 (December 2022) . - p.5253-5265
Mots-clés : Adult Humans Child covid-19 Pandemics SARS-CoV-2 Caregivers Developmental Disabilities/therapy Personal Satisfaction Patient Satisfaction Autism Spectrum Disorder/therapy Telemedicine/methods Intellectual Disability Psychiatry ASC (autism spectrum conditions) Developmental disability Satisfaction Telehealth Telepsychiatry Index. décimale : PER Périodiques Résumé : Telehealth has been shown to be both acceptable and effective in many areas of healthcare, yet it was not widely adopted prior to the SARS-CoV-2 (COVID-19) pandemic. Additionally, previous evaluations of telehealth for autism spectrum condition (ASC) and intellectual and developmental disability (IDD) populations are limited in both number and scope. Here, we investigated satisfaction amongst Psychology and Psychiatry patient caregivers at Cincinnati Children's Hospital Medical Center (CCHMC) after the onset of the COVID-19 pandemic. Results (640 responses) showed high rates of satisfaction across departments, appointment types, and diagnoses, with 92% indicating overall satisfaction with their appointment. There were, however, notable decreases in satisfaction among Group Therapy respondents, and those whose diagnosis was classified as Other. En ligne : http://dx.doi.org/10.1007/s10803-022-05712-x Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=489 Brief Report: Do Service Dog Providers Placing Dogs with Children with Developmental Disabilities Use Outcome Measures and, If So, What Are they? / Felicity Ruth BUTTERLY in Journal of Autism and Developmental Disorders, 43-11 (November 2013)
[article]
Titre : Brief Report: Do Service Dog Providers Placing Dogs with Children with Developmental Disabilities Use Outcome Measures and, If So, What Are they? Type de document : Texte imprimé et/ou numérique Auteurs : Felicity Ruth BUTTERLY, Auteur ; Carol PERCY, Auteur ; Gillian WARD, Auteur Article en page(s) : p.2720-2725 Langues : Anglais (eng) Mots-clés : Assistance Dogs Service providers Outcome measures Developmental disability Index. décimale : PER Périodiques Résumé : The aim of this study was to identify the outcomes expected and assessed by those providing service dogs to children with developmental disabilities. Seventeen registered service dog providers were invited to complete a mixed methods online survey. Five providers, who prepared dogs to work with a wide range of conditions and behaviours, mainly Asperger’s syndrome, autism and communication disorders, completed the survey. All five participants reported that they expected to see positive changes as a consequence of the service dog placement, in both the recipient child and their family, including improvements in attention span and language skills, as well as increased familial cohesion. Survey responses indicated that not all desired outcomes were routinely assessed. The range of assessments used were interviews, intake conversations, pre-placement questionnaires, child social dairies filled in by parents, follow up surveys after placement, and child observation by parents. No specifically named valid and reliable clinical or research measures were referred to, showing an emphasis on assessments from parents and service dog providers. It is not clear whether pre-intervention assessments are repeated systematically at follow-up, which could show robust intervention effects. There is scope for professionals in developmental disability to work with service dog providers to improve the evidence base in this field. En ligne : http://dx.doi.org/10.1007/s10803-013-1803-1 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=217
in Journal of Autism and Developmental Disorders > 43-11 (November 2013) . - p.2720-2725[article] Brief Report: Do Service Dog Providers Placing Dogs with Children with Developmental Disabilities Use Outcome Measures and, If So, What Are they? [Texte imprimé et/ou numérique] / Felicity Ruth BUTTERLY, Auteur ; Carol PERCY, Auteur ; Gillian WARD, Auteur . - p.2720-2725.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 43-11 (November 2013) . - p.2720-2725
Mots-clés : Assistance Dogs Service providers Outcome measures Developmental disability Index. décimale : PER Périodiques Résumé : The aim of this study was to identify the outcomes expected and assessed by those providing service dogs to children with developmental disabilities. Seventeen registered service dog providers were invited to complete a mixed methods online survey. Five providers, who prepared dogs to work with a wide range of conditions and behaviours, mainly Asperger’s syndrome, autism and communication disorders, completed the survey. All five participants reported that they expected to see positive changes as a consequence of the service dog placement, in both the recipient child and their family, including improvements in attention span and language skills, as well as increased familial cohesion. Survey responses indicated that not all desired outcomes were routinely assessed. The range of assessments used were interviews, intake conversations, pre-placement questionnaires, child social dairies filled in by parents, follow up surveys after placement, and child observation by parents. No specifically named valid and reliable clinical or research measures were referred to, showing an emphasis on assessments from parents and service dog providers. It is not clear whether pre-intervention assessments are repeated systematically at follow-up, which could show robust intervention effects. There is scope for professionals in developmental disability to work with service dog providers to improve the evidence base in this field. En ligne : http://dx.doi.org/10.1007/s10803-013-1803-1 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=217 Job burnout amongst the institutional caregivers working with individuals with intellectual and developmental disabilities: Utilization of the Chinese version of the Copenhagen Burnout Inventory survey / Lan-Ping LIN in Research in Autism Spectrum Disorders, 7-6 (June 2013)
[article]
Titre : Job burnout amongst the institutional caregivers working with individuals with intellectual and developmental disabilities: Utilization of the Chinese version of the Copenhagen Burnout Inventory survey Type de document : Texte imprimé et/ou numérique Auteurs : Lan-Ping LIN, Auteur ; Jin-Ding LIN, Auteur Article en page(s) : p.777-784 Langues : Anglais (eng) Mots-clés : Burnout Caregiver Copenhagen Burnout Inventory Intellectual disability Developmental disability Index. décimale : PER Périodiques Résumé : Burnout has been considered important to understand the well-being of people who work with individuals with intellectual disabilities (ID) and developmental disabilities (DD). To identify personal and workplace characteristics associated with burnout, this study aimed to utilize the Chinese version of the Copenhagen Burnout Inventory to provide a burnout profile of caregivers who served individuals with ID/DD and evaluate the potential factors associated with burnout in this group. A purposive sampling method and a self-administered structured questionnaire were employed to recruit 276 caregivers from 4 different disability institutions for study participation. The results revealed that the average personal burnout score (PBS) and work-related burnout score (WBS) were 44.0 (SD = 16.8) and 34.2 (SD = 15.9). These burnout scores were higher compared with general full time employees in Taiwan. The results showed that that 17.8% of the staff were moderately burnt out (PBS score: 50–70), and 7.6% of the staff were in the highest exhausted level (PBS score ? 70) of PBS. With regard to the WBS score, 20.7% were moderately burnt out (PBS score: 50–70), and 5.1% of the staff were in the highest exhausted level (WBS score ? 70). Finally, a multiple regression analysis reported that the factors of self-report health status and WBS significantly predicted higher respondent PBS (R2 = 0.642). The study highlights the need to improve the psychological health and well-being of the caregivers who work with individuals with ID/DD and the need for the institutions to strengthen supportive healthy working environments to decrease staff burnout. En ligne : http://dx.doi.org/10.1016/j.rasd.2013.03.004 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=199
in Research in Autism Spectrum Disorders > 7-6 (June 2013) . - p.777-784[article] Job burnout amongst the institutional caregivers working with individuals with intellectual and developmental disabilities: Utilization of the Chinese version of the Copenhagen Burnout Inventory survey [Texte imprimé et/ou numérique] / Lan-Ping LIN, Auteur ; Jin-Ding LIN, Auteur . - p.777-784.
Langues : Anglais (eng)
in Research in Autism Spectrum Disorders > 7-6 (June 2013) . - p.777-784
Mots-clés : Burnout Caregiver Copenhagen Burnout Inventory Intellectual disability Developmental disability Index. décimale : PER Périodiques Résumé : Burnout has been considered important to understand the well-being of people who work with individuals with intellectual disabilities (ID) and developmental disabilities (DD). To identify personal and workplace characteristics associated with burnout, this study aimed to utilize the Chinese version of the Copenhagen Burnout Inventory to provide a burnout profile of caregivers who served individuals with ID/DD and evaluate the potential factors associated with burnout in this group. A purposive sampling method and a self-administered structured questionnaire were employed to recruit 276 caregivers from 4 different disability institutions for study participation. The results revealed that the average personal burnout score (PBS) and work-related burnout score (WBS) were 44.0 (SD = 16.8) and 34.2 (SD = 15.9). These burnout scores were higher compared with general full time employees in Taiwan. The results showed that that 17.8% of the staff were moderately burnt out (PBS score: 50–70), and 7.6% of the staff were in the highest exhausted level (PBS score ? 70) of PBS. With regard to the WBS score, 20.7% were moderately burnt out (PBS score: 50–70), and 5.1% of the staff were in the highest exhausted level (WBS score ? 70). Finally, a multiple regression analysis reported that the factors of self-report health status and WBS significantly predicted higher respondent PBS (R2 = 0.642). The study highlights the need to improve the psychological health and well-being of the caregivers who work with individuals with ID/DD and the need for the institutions to strengthen supportive healthy working environments to decrease staff burnout. En ligne : http://dx.doi.org/10.1016/j.rasd.2013.03.004 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=199 A review of screening tools for the identification of autism spectrum disorders and developmental delay in infants and young children: recommendations for use in low- and middle-income countries / M. MARLOW in Autism Research, 12-2 (February 2019)
[article]
Titre : A review of screening tools for the identification of autism spectrum disorders and developmental delay in infants and young children: recommendations for use in low- and middle-income countries Type de document : Texte imprimé et/ou numérique Auteurs : M. MARLOW, Auteur ; C. SERVILI, Auteur ; M. TOMLINSON, Auteur Article en page(s) : p.176-199 Langues : Anglais (eng) Mots-clés : autism spectrum disorders developmental disability developmental monitoring low- and middle-income countries screening tools Index. décimale : PER Périodiques Résumé : Without intervention, developmental delay (DD) and autism spectrum disorders (ASDs) severely restrict children from reaching their developmental potential. Monitoring child development through the use of screening tools can help identify children who need further assessment or intervention. Screening has been widely encouraged to identify children with ASD or DD, and a large variety of screening instruments are suggested in the literature. There is a lack of consensus around which screening tools are most effective, especially where tools are used in cultures other than those in which they were created. We conducted a review of the literature for screening tools for DD and autism to make recommendations for tool selection and use in low- and middle-income countries (LMIC). We included 99 screening tools in the review and created profiles for each tool to evaluate their properties and determine which tools could be effectively used in various LMIC. Our review identified a substantial number (35 for DD and 6 for ASD) of screening tools from LMIC. We identified 10 tools which show promise for use across settings; these tools are brief, low-cost and can be implemented by paraprofessionals or lay community health workers. Routine screening is an important first step toward addressing the need for services in LMIC, but high-quality tools take time to be conceptualized, developed, piloted, and validated, before implementation can happen. A focus on improving the scientific rigor of early detection approaches and on enhancing the reach to underserved populations should be prioritized. Autism Res 2019, 12: 176-199 (c) 2019 International Society for Autism Research, Wiley Periodicals, Inc. LAY SUMMARY: Screening tools are short questionnaires or brief assessments used to identify children at risk of a developmental disability such as autism. Many screening tools exist, but there is uncertainty about which tools work best in non-Western cultures or low-resource settings. We reviewed over 90 screening tools to identify which tools can be easily used in these settings. Selecting tools that are affordable and easy to use will make it easier to identify and support children with developmental difficulties. En ligne : http://dx.doi.org/10.1002/aur.2033 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=383
in Autism Research > 12-2 (February 2019) . - p.176-199[article] A review of screening tools for the identification of autism spectrum disorders and developmental delay in infants and young children: recommendations for use in low- and middle-income countries [Texte imprimé et/ou numérique] / M. MARLOW, Auteur ; C. SERVILI, Auteur ; M. TOMLINSON, Auteur . - p.176-199.
Langues : Anglais (eng)
in Autism Research > 12-2 (February 2019) . - p.176-199
Mots-clés : autism spectrum disorders developmental disability developmental monitoring low- and middle-income countries screening tools Index. décimale : PER Périodiques Résumé : Without intervention, developmental delay (DD) and autism spectrum disorders (ASDs) severely restrict children from reaching their developmental potential. Monitoring child development through the use of screening tools can help identify children who need further assessment or intervention. Screening has been widely encouraged to identify children with ASD or DD, and a large variety of screening instruments are suggested in the literature. There is a lack of consensus around which screening tools are most effective, especially where tools are used in cultures other than those in which they were created. We conducted a review of the literature for screening tools for DD and autism to make recommendations for tool selection and use in low- and middle-income countries (LMIC). We included 99 screening tools in the review and created profiles for each tool to evaluate their properties and determine which tools could be effectively used in various LMIC. Our review identified a substantial number (35 for DD and 6 for ASD) of screening tools from LMIC. We identified 10 tools which show promise for use across settings; these tools are brief, low-cost and can be implemented by paraprofessionals or lay community health workers. Routine screening is an important first step toward addressing the need for services in LMIC, but high-quality tools take time to be conceptualized, developed, piloted, and validated, before implementation can happen. A focus on improving the scientific rigor of early detection approaches and on enhancing the reach to underserved populations should be prioritized. Autism Res 2019, 12: 176-199 (c) 2019 International Society for Autism Research, Wiley Periodicals, Inc. LAY SUMMARY: Screening tools are short questionnaires or brief assessments used to identify children at risk of a developmental disability such as autism. Many screening tools exist, but there is uncertainty about which tools work best in non-Western cultures or low-resource settings. We reviewed over 90 screening tools to identify which tools can be easily used in these settings. Selecting tools that are affordable and easy to use will make it easier to identify and support children with developmental difficulties. En ligne : http://dx.doi.org/10.1002/aur.2033 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=383 Adaptive function in preschoolers in relation to developmental delay and diagnosis of autism spectrum disorders: Insights from a clinical sample / Susan L. MILNE in Autism, 17-6 (November 2013)
[article]
Titre : Adaptive function in preschoolers in relation to developmental delay and diagnosis of autism spectrum disorders: Insights from a clinical sample Type de document : Texte imprimé et/ou numérique Auteurs : Susan L. MILNE, Auteur ; Jenny L. MCDONALD, Auteur ; Elizabeth J. COMINO, Auteur Année de publication : 2013 Article en page(s) : p.743-753 Langues : Anglais (eng) Mots-clés : adaptive behaviour Adaptive Behaviour Assessment System–Second Edition autism developmental disability preschoolers Index. décimale : PER Périodiques Résumé : This study aims to explore the relationship between developmental ability, autism and adaptive skills in preschoolers. Adaptive function was assessed in 152 preschoolers with autism, with and without developmental delay, and without autism, with and without developmental delay. Their overall adaptive function, measured by the general adaptive composite on the Adaptive Behaviour Assessment System, was closely correlated to developmental ability as measured by the general quotient on the Griffith Mental Development Scales. Children with autism performed significantly less well on both scales. Domain scores discriminated between children with and without autism, with poorer performance on both the social and practical domain scores for children with autism, even when controlling for the effects of development. Children with average development, both with and without autism, had lower adaptive skills than expected for their developmental level. The importance of considering domain scores as well as the general adaptive composite when determining support needs is emphasised. En ligne : http://dx.doi.org/10.1177/1362361312453091 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=218
in Autism > 17-6 (November 2013) . - p.743-753[article] Adaptive function in preschoolers in relation to developmental delay and diagnosis of autism spectrum disorders: Insights from a clinical sample [Texte imprimé et/ou numérique] / Susan L. MILNE, Auteur ; Jenny L. MCDONALD, Auteur ; Elizabeth J. COMINO, Auteur . - 2013 . - p.743-753.
Langues : Anglais (eng)
in Autism > 17-6 (November 2013) . - p.743-753
Mots-clés : adaptive behaviour Adaptive Behaviour Assessment System–Second Edition autism developmental disability preschoolers Index. décimale : PER Périodiques Résumé : This study aims to explore the relationship between developmental ability, autism and adaptive skills in preschoolers. Adaptive function was assessed in 152 preschoolers with autism, with and without developmental delay, and without autism, with and without developmental delay. Their overall adaptive function, measured by the general adaptive composite on the Adaptive Behaviour Assessment System, was closely correlated to developmental ability as measured by the general quotient on the Griffith Mental Development Scales. Children with autism performed significantly less well on both scales. Domain scores discriminated between children with and without autism, with poorer performance on both the social and practical domain scores for children with autism, even when controlling for the effects of development. Children with average development, both with and without autism, had lower adaptive skills than expected for their developmental level. The importance of considering domain scores as well as the general adaptive composite when determining support needs is emphasised. En ligne : http://dx.doi.org/10.1177/1362361312453091 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=218 Assessing Generalization in Single-Case Research Studies Teaching Core Academic Content to Students With Intellectual and Developmental Disabilities / John MCDONNELL in Focus on Autism and Other Developmental Disabilities, 35-3 (September 2020)
PermalinkAssociations Between Resilience and the Well-Being of Mothers of Children with Autism Spectrum Disorder and Other Developmental Disabilities / E. HALSTEAD in Journal of Autism and Developmental Disorders, 48-4 (April 2018)
PermalinkBuilding Employer Capacity to Support Meaningful Employment for Persons with Developmental Disabilities: A Grounded Theory Study of Employment Support Perspectives / M. RASHID in Journal of Autism and Developmental Disorders, 47-11 (November 2017)
PermalinkComputerised attention training for children with intellectual and developmental disabilities: a randomised controlled trial / Hannah E. KIRK in Journal of Child Psychology and Psychiatry, 57-12 (December 2016)
PermalinkEarly childhood interventions in educational settings that promote school readiness for children with autism and other developmental disabilities: Systematic review / Zuyi FANG in Research in Autism Spectrum Disorders, 108 (October 2023)
Permalink