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Autism disclosure ? The decisions autistic adults make / Armita FARSINEJAD in Research in Autism Spectrum Disorders, 93 (May 2022)
[article]
Titre : Autism disclosure ? The decisions autistic adults make Type de document : Texte imprimé et/ou numérique Auteurs : Armita FARSINEJAD, Auteur ; Ailsa RUSSELL, Auteur ; Catherine BUTLER, Auteur Article en page(s) : 101936 Langues : Anglais (eng) Mots-clés : Autism Disclosure Stigmatised identities Social identity Index. décimale : PER Périodiques Résumé : Background Autistic people face dilemmas regarding whether to disclose their autism due to the potential negative consequences. While there have been studies examining the issue of disclosure, a small but growing number have specifically investigated how autistic adults make decisions to disclose. The aim of the study was to understand the perspective of autistic adults about the decisions behind disclosure. Methods This cross-sectional mixed methods study recruited 30 autistic adults who completed an online survey. The online survey included free response text spaces to answer questions about disclosure. An inductive approach using thematic analysis was used for the analyses of the survey responses. Participants also completed two self report measures about how strongly they identify with an autism identity and how positively they view this identity. Results Themes of informed judgement and raising awareness appeared central to how decisions were made to disclose Autism. Participants did not strongly identify with the diagnostic label, nor did they feel particularly negative towards the label. Conclusion Misconceptions and stigma about autism can inhibit individuals from disclosing and can contribute to poorer mental health. Thus, educating the public is vital to reduce negative misconceptions of autism to not only better understand Autism but to help raise awareness so that autism can be discussed without fear of stigmatisation. En ligne : https://doi.org/10.1016/j.rasd.2022.101936 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=475
in Research in Autism Spectrum Disorders > 93 (May 2022) . - 101936[article] Autism disclosure ? The decisions autistic adults make [Texte imprimé et/ou numérique] / Armita FARSINEJAD, Auteur ; Ailsa RUSSELL, Auteur ; Catherine BUTLER, Auteur . - 101936.
Langues : Anglais (eng)
in Research in Autism Spectrum Disorders > 93 (May 2022) . - 101936
Mots-clés : Autism Disclosure Stigmatised identities Social identity Index. décimale : PER Périodiques Résumé : Background Autistic people face dilemmas regarding whether to disclose their autism due to the potential negative consequences. While there have been studies examining the issue of disclosure, a small but growing number have specifically investigated how autistic adults make decisions to disclose. The aim of the study was to understand the perspective of autistic adults about the decisions behind disclosure. Methods This cross-sectional mixed methods study recruited 30 autistic adults who completed an online survey. The online survey included free response text spaces to answer questions about disclosure. An inductive approach using thematic analysis was used for the analyses of the survey responses. Participants also completed two self report measures about how strongly they identify with an autism identity and how positively they view this identity. Results Themes of informed judgement and raising awareness appeared central to how decisions were made to disclose Autism. Participants did not strongly identify with the diagnostic label, nor did they feel particularly negative towards the label. Conclusion Misconceptions and stigma about autism can inhibit individuals from disclosing and can contribute to poorer mental health. Thus, educating the public is vital to reduce negative misconceptions of autism to not only better understand Autism but to help raise awareness so that autism can be discussed without fear of stigmatisation. En ligne : https://doi.org/10.1016/j.rasd.2022.101936 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=475 Autistic Adults' Experiences of Diagnosis Disclosure / Yunhe HUANG in Journal of Autism and Developmental Disorders, 52-12 (December 2022)
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Titre : Autistic Adults' Experiences of Diagnosis Disclosure Type de document : Texte imprimé et/ou numérique Auteurs : Yunhe HUANG, Auteur ; Ye In Jane HWANG, Auteur ; Samuel R. C. ARNOLD, Auteur ; Lauren P LAWSON, Auteur ; Amanda L. RICHDALE, Auteur ; Julian N. TROLLOR, Auteur Année de publication : 2022 Article en page(s) : p.5301-5307 Langues : Anglais (eng) Mots-clés : Adult Humans Disclosure Autistic Disorder/diagnosis Autism Spectrum Disorder Social Stigma Prejudice Adults Autism Diagnosis Mixed-methods Stigma Index. décimale : PER Périodiques Résumé : As autism is an invisible and often stigmatised condition, disclosing the diagnosis may lead to both support and/or discrimination. This mixed-methods questionnaire study examined autistic adults' experiences of disclosure in various contexts. The sample consisted of 393 participants aged 17-83Â years from two longitudinal surveys. Almost all participants disclosed their diagnosis to someone, most commonly to friends. A significant minority of participants studying and/or working at the time had not disclosed to their education provider/employer. Content analysis of open-ended responses showed participants desired to gain understanding and support from disclosure but feared prejudice. While some received support, others encountered dismissiveness and misunderstanding. Findings highlight the need to improve autism understanding and reduce stigma within and beyond educational and employment contexts. En ligne : http://dx.doi.org/10.1007/s10803-021-05384-z Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=489
in Journal of Autism and Developmental Disorders > 52-12 (December 2022) . - p.5301-5307[article] Autistic Adults' Experiences of Diagnosis Disclosure [Texte imprimé et/ou numérique] / Yunhe HUANG, Auteur ; Ye In Jane HWANG, Auteur ; Samuel R. C. ARNOLD, Auteur ; Lauren P LAWSON, Auteur ; Amanda L. RICHDALE, Auteur ; Julian N. TROLLOR, Auteur . - 2022 . - p.5301-5307.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 52-12 (December 2022) . - p.5301-5307
Mots-clés : Adult Humans Disclosure Autistic Disorder/diagnosis Autism Spectrum Disorder Social Stigma Prejudice Adults Autism Diagnosis Mixed-methods Stigma Index. décimale : PER Périodiques Résumé : As autism is an invisible and often stigmatised condition, disclosing the diagnosis may lead to both support and/or discrimination. This mixed-methods questionnaire study examined autistic adults' experiences of disclosure in various contexts. The sample consisted of 393 participants aged 17-83Â years from two longitudinal surveys. Almost all participants disclosed their diagnosis to someone, most commonly to friends. A significant minority of participants studying and/or working at the time had not disclosed to their education provider/employer. Content analysis of open-ended responses showed participants desired to gain understanding and support from disclosure but feared prejudice. While some received support, others encountered dismissiveness and misunderstanding. Findings highlight the need to improve autism understanding and reduce stigma within and beyond educational and employment contexts. En ligne : http://dx.doi.org/10.1007/s10803-021-05384-z Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=489 Evaluating Parental Autism Disclosure Strategies / J. E. AUSTIN in Journal of Autism and Developmental Disorders, 48-1 (January 2018)
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Titre : Evaluating Parental Autism Disclosure Strategies Type de document : Texte imprimé et/ou numérique Auteurs : J. E. AUSTIN, Auteur ; R. GALIJOT, Auteur ; W. H. DAVIES, Auteur Article en page(s) : p.103-109 Langues : Anglais (eng) Mots-clés : Attitudes Autism Disability Disclosure Perceptions Index. décimale : PER Périodiques Résumé : The relative effects of different autism disclosure methods on the perceptions of a mother-child dyad were investigated. Using three conditions, disclosure card, disclosure bracelet, and no disclosure, U.S. community parents (N = 383) were asked 18 questions about their perceptions of the dyad. An ANOVA revealed significant protection from stigma for those in either disclosure condition compared to the no disclosure condition on two factors, Critical of the Mother/Child and Need to Protect Own Child, as well as a single item, Embarrassment for the Mother. These results reinforce findings that disclosure may effectively and efficiently reduce negative perceptions. The availability of multiple, effective methods of disclosure that reduce stigma allows parents to choose the method that best suits their individual preferences. En ligne : https://doi.org/10.1007/s10803-017-3302-2 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=336
in Journal of Autism and Developmental Disorders > 48-1 (January 2018) . - p.103-109[article] Evaluating Parental Autism Disclosure Strategies [Texte imprimé et/ou numérique] / J. E. AUSTIN, Auteur ; R. GALIJOT, Auteur ; W. H. DAVIES, Auteur . - p.103-109.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 48-1 (January 2018) . - p.103-109
Mots-clés : Attitudes Autism Disability Disclosure Perceptions Index. décimale : PER Périodiques Résumé : The relative effects of different autism disclosure methods on the perceptions of a mother-child dyad were investigated. Using three conditions, disclosure card, disclosure bracelet, and no disclosure, U.S. community parents (N = 383) were asked 18 questions about their perceptions of the dyad. An ANOVA revealed significant protection from stigma for those in either disclosure condition compared to the no disclosure condition on two factors, Critical of the Mother/Child and Need to Protect Own Child, as well as a single item, Embarrassment for the Mother. These results reinforce findings that disclosure may effectively and efficiently reduce negative perceptions. The availability of multiple, effective methods of disclosure that reduce stigma allows parents to choose the method that best suits their individual preferences. En ligne : https://doi.org/10.1007/s10803-017-3302-2 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=336 How is autistic identity in adolescence influenced by parental disclosure decisions and perceptions of autism? / Ariana RICCIO in Autism, 25-2 (February 2021)
[article]
Titre : How is autistic identity in adolescence influenced by parental disclosure decisions and perceptions of autism? Type de document : Texte imprimé et/ou numérique Auteurs : Ariana RICCIO, Auteur ; Steven K. KAPP, Auteur ; Allison JORDAN, Auteur ; Anna Marie DORELIEN, Auteur ; Kristen GILLESPIE-LYNCH, Auteur Article en page(s) : p.374-388 Langues : Anglais (eng) Mots-clés : adolescents autistic identity disclosure parenting Index. décimale : PER Périodiques Résumé : There is a lot of research about how parents think about their child's autism but we don't know much about how parents talk with their kids about autism. How parents talk with their kids about autism may shape how kids see autism. A team of autistic and non-autistic people (including a mother of an autistic person) did a study. We wanted to know if how parents talk with their kids about autism shapes how their kids see autism. Nineteen teens from a summer camp did interviews and surveys. Their mothers did surveys. Teens learned about if they had autism in different ways. Some teens still didn't know they were autistic. Teens whose moms chose to tell them about their autism talked about autism and themselves more positively than teens whose moms didn't choose to talk with them about autism. Only teens whose moms chose to talk with them about autism described themselves as having social strengths. Teens had a harder time defining autism than moms. However, teens and moms talked about autism in similar ways. Our study shows that parents can help their kids see autism and themselves more positively by talking with their kids about autism early in development. En ligne : http://dx.doi.org/10.1177/1362361320958214 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=442
in Autism > 25-2 (February 2021) . - p.374-388[article] How is autistic identity in adolescence influenced by parental disclosure decisions and perceptions of autism? [Texte imprimé et/ou numérique] / Ariana RICCIO, Auteur ; Steven K. KAPP, Auteur ; Allison JORDAN, Auteur ; Anna Marie DORELIEN, Auteur ; Kristen GILLESPIE-LYNCH, Auteur . - p.374-388.
Langues : Anglais (eng)
in Autism > 25-2 (February 2021) . - p.374-388
Mots-clés : adolescents autistic identity disclosure parenting Index. décimale : PER Périodiques Résumé : There is a lot of research about how parents think about their child's autism but we don't know much about how parents talk with their kids about autism. How parents talk with their kids about autism may shape how kids see autism. A team of autistic and non-autistic people (including a mother of an autistic person) did a study. We wanted to know if how parents talk with their kids about autism shapes how their kids see autism. Nineteen teens from a summer camp did interviews and surveys. Their mothers did surveys. Teens learned about if they had autism in different ways. Some teens still didn't know they were autistic. Teens whose moms chose to tell them about their autism talked about autism and themselves more positively than teens whose moms didn't choose to talk with them about autism. Only teens whose moms chose to talk with them about autism described themselves as having social strengths. Teens had a harder time defining autism than moms. However, teens and moms talked about autism in similar ways. Our study shows that parents can help their kids see autism and themselves more positively by talking with their kids about autism early in development. En ligne : http://dx.doi.org/10.1177/1362361320958214 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=442 Influencing Perception About Children with Autism and their Parents Using Disclosure Cards / Jillian E. AUSTIN in Journal of Autism and Developmental Disorders, 46-8 (August 2016)
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Titre : Influencing Perception About Children with Autism and their Parents Using Disclosure Cards Type de document : Texte imprimé et/ou numérique Auteurs : Jillian E. AUSTIN, Auteur ; Vanessa L. ZINKE, Auteur ; Hobart W. DAVIES, Auteur Article en page(s) : p.2764-2769 Langues : Anglais (eng) Mots-clés : Attitudes Autism Disability Disclosure Perceptions Index. décimale : PER Périodiques Résumé : Parents of children with autism often report feeling judged and are increasingly using disclosure cards to reduce negative perceptions. However, no empirical research has been conducted on the effectiveness of these cards. The present study used vignettes of a parent–child interaction in which the child was misbehaving and investigated the efficacy on 160 parents’ perceptions. A unique survey was developed with two factors (Maternal Skill Deficit and Negative Reaction) and a single item (Sympathy for Mother). Those who received the disclosure card reported significantly lower Maternal Skill Deficit and Negative Reaction to the Dyad and no difference in Sympathy for the Mother. These results provide preliminary validation for the use of autism disclosure cards in buffering negative judgment. En ligne : http://dx.doi.org/10.1007/s10803-016-2821-6 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=291
in Journal of Autism and Developmental Disorders > 46-8 (August 2016) . - p.2764-2769[article] Influencing Perception About Children with Autism and their Parents Using Disclosure Cards [Texte imprimé et/ou numérique] / Jillian E. AUSTIN, Auteur ; Vanessa L. ZINKE, Auteur ; Hobart W. DAVIES, Auteur . - p.2764-2769.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 46-8 (August 2016) . - p.2764-2769
Mots-clés : Attitudes Autism Disability Disclosure Perceptions Index. décimale : PER Périodiques Résumé : Parents of children with autism often report feeling judged and are increasingly using disclosure cards to reduce negative perceptions. However, no empirical research has been conducted on the effectiveness of these cards. The present study used vignettes of a parent–child interaction in which the child was misbehaving and investigated the efficacy on 160 parents’ perceptions. A unique survey was developed with two factors (Maternal Skill Deficit and Negative Reaction) and a single item (Sympathy for Mother). Those who received the disclosure card reported significantly lower Maternal Skill Deficit and Negative Reaction to the Dyad and no difference in Sympathy for the Mother. These results provide preliminary validation for the use of autism disclosure cards in buffering negative judgment. En ligne : http://dx.doi.org/10.1007/s10803-016-2821-6 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=291 Parent and health care provider perspectives related to disclosure of autism spectrum disorder in pediatric emergency departments / Barbara MUSKAT in Autism, 20-8 (November 2016)
PermalinkPredicting Parent Reactions at Diagnostic Disclosure Sessions for Autism / Emily I. ANDERBERG in Journal of Autism and Developmental Disorders, 51-10 (October 2021)
PermalinkThe role of age of disclosure of biological origins in the psychological wellbeing of adolescents conceived by reproductive donation: a longitudinal study from age 1 to age 14 / Elena ILIOI in Journal of Child Psychology and Psychiatry, 58-3 (March 2017)
PermalinkHonest, Open, Proud for adolescents with mental illness: pilot randomized controlled trial / N. MULFINGER in Journal of Child Psychology and Psychiatry, 59-6 (June 2018)
Permalink"I Spent Most of Freshers in my Room"-A Qualitative Study of the Social Experiences of University Students on the Autistic Spectrum / Helen GODDARD in Journal of Autism and Developmental Disorders, 52-6 (June 2022)
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