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Parental Risk Literacy is Related to Quality of Life in Spanish Families of Children with Autism Spectrum Disorder / D. GARRIDO in Journal of Autism and Developmental Disorders, 51-7 (July 2021)
[article]
Titre : Parental Risk Literacy is Related to Quality of Life in Spanish Families of Children with Autism Spectrum Disorder Type de document : Texte imprimé et/ou numérique Auteurs : D. GARRIDO, Auteur ; D. PETROVA, Auteur ; E. COKELY, Auteur ; Gloria CARBALLO, Auteur ; R. GARCIA-RETAMERO, Auteur Article en page(s) : p.2475-2484 Langues : Anglais (eng) Mots-clés : Adult Autism Spectrum Disorder/psychology Case-Control Studies Family/psychology Female Health Literacy Humans Male Middle Aged Parenting/psychology Parents Quality of Life Social Support Autism spectrum disorder Numeracy Quality of life Risk literacy Index. décimale : PER Périodiques Résumé : Families of children with autism spectrum disorder (ASD) often experience much more negative perceptions of their family quality of life (FQoL). To investigate key factors that may shape these experiences, we conducted a case-control study of sixty-one Spanish families (29 with a child with ASD) using a broad psychosocial assessment (e.g., ASD severity, social support, demographics), including the first direct test of the relationship between FQoL and parental risk literacy (i.e., the ability to evaluate and understand risk, as measured by numeracy). Results revealed that numeracy was associated with differences in perceived FQoL among families of children with ASD (R(2)?=?.10), a finding that held across several models statistically controlling for the influence of other variables. Findings suggest that parental risk literacy skills may generally be associated with differences in decision making vulnerabilities (e.g., risk evaluation and interpretation) that influence family outcomes including FQoL. En ligne : http://dx.doi.org/10.1007/s10803-020-04733-8 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=452
in Journal of Autism and Developmental Disorders > 51-7 (July 2021) . - p.2475-2484[article] Parental Risk Literacy is Related to Quality of Life in Spanish Families of Children with Autism Spectrum Disorder [Texte imprimé et/ou numérique] / D. GARRIDO, Auteur ; D. PETROVA, Auteur ; E. COKELY, Auteur ; Gloria CARBALLO, Auteur ; R. GARCIA-RETAMERO, Auteur . - p.2475-2484.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 51-7 (July 2021) . - p.2475-2484
Mots-clés : Adult Autism Spectrum Disorder/psychology Case-Control Studies Family/psychology Female Health Literacy Humans Male Middle Aged Parenting/psychology Parents Quality of Life Social Support Autism spectrum disorder Numeracy Quality of life Risk literacy Index. décimale : PER Périodiques Résumé : Families of children with autism spectrum disorder (ASD) often experience much more negative perceptions of their family quality of life (FQoL). To investigate key factors that may shape these experiences, we conducted a case-control study of sixty-one Spanish families (29 with a child with ASD) using a broad psychosocial assessment (e.g., ASD severity, social support, demographics), including the first direct test of the relationship between FQoL and parental risk literacy (i.e., the ability to evaluate and understand risk, as measured by numeracy). Results revealed that numeracy was associated with differences in perceived FQoL among families of children with ASD (R(2)?=?.10), a finding that held across several models statistically controlling for the influence of other variables. Findings suggest that parental risk literacy skills may generally be associated with differences in decision making vulnerabilities (e.g., risk evaluation and interpretation) that influence family outcomes including FQoL. En ligne : http://dx.doi.org/10.1007/s10803-020-04733-8 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=452 Perceptions of Families of Individuals with Autism Spectrum Disorder during the COVID-19 Crisis / J. MANNING in Journal of Autism and Developmental Disorders, 51-8 (August 2021)
[article]
Titre : Perceptions of Families of Individuals with Autism Spectrum Disorder during the COVID-19 Crisis Type de document : Texte imprimé et/ou numérique Auteurs : J. MANNING, Auteur ; J. BILLIAN, Auteur ; J. MATSON, Auteur ; C. ALLEN, Auteur ; N. SOARES, Auteur Article en page(s) : p.2920-2928 Langues : Anglais (eng) Mots-clés : Adult Autism Spectrum Disorder/psychology COVID-19/epidemiology Caregivers Child Family/psychology Humans Male Pandemics Respite Care Surveys and Questionnaires Autism spectrum disorder Covid-19 Families Stress Index. décimale : PER Périodiques Résumé : Caring for an individual with autism spectrum disorder (ASD) in ideal circumstances can be stressful, and the Coronavirus disease (COVID-19) pandemic created a high degree of disruption to life and stress to families living with an individual with ASD. We conducted an online survey of families in Michigan that revealed higher levels of stress in caregivers of younger individuals with ASD and those with greater severity of ASD symptoms. Stress around therapeutic service disruption, finances, and illness predominated and greater stress was reported for caregivers of individuals receiving greater intensity of services pre-COVID-19. Respondents voiced concerns about receiving respite care during COVID-19, and those expressing interest in respite also reported greater symptom severity in the person with ASD. En ligne : http://dx.doi.org/10.1007/s10803-020-04760-5 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=453
in Journal of Autism and Developmental Disorders > 51-8 (August 2021) . - p.2920-2928[article] Perceptions of Families of Individuals with Autism Spectrum Disorder during the COVID-19 Crisis [Texte imprimé et/ou numérique] / J. MANNING, Auteur ; J. BILLIAN, Auteur ; J. MATSON, Auteur ; C. ALLEN, Auteur ; N. SOARES, Auteur . - p.2920-2928.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 51-8 (August 2021) . - p.2920-2928
Mots-clés : Adult Autism Spectrum Disorder/psychology COVID-19/epidemiology Caregivers Child Family/psychology Humans Male Pandemics Respite Care Surveys and Questionnaires Autism spectrum disorder Covid-19 Families Stress Index. décimale : PER Périodiques Résumé : Caring for an individual with autism spectrum disorder (ASD) in ideal circumstances can be stressful, and the Coronavirus disease (COVID-19) pandemic created a high degree of disruption to life and stress to families living with an individual with ASD. We conducted an online survey of families in Michigan that revealed higher levels of stress in caregivers of younger individuals with ASD and those with greater severity of ASD symptoms. Stress around therapeutic service disruption, finances, and illness predominated and greater stress was reported for caregivers of individuals receiving greater intensity of services pre-COVID-19. Respondents voiced concerns about receiving respite care during COVID-19, and those expressing interest in respite also reported greater symptom severity in the person with ASD. En ligne : http://dx.doi.org/10.1007/s10803-020-04760-5 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=453