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Family Quality of Life and ASD: The Role of Child Adaptive Functioning and Behavior Problems / Gardiner EMILY in Autism Research, 8-2 (April 2015)
[article]
Titre : Family Quality of Life and ASD: The Role of Child Adaptive Functioning and Behavior Problems Type de document : Texte imprimé et/ou numérique Auteurs : Gardiner EMILY, Auteur ; Iarocci GRACE, Auteur Article en page(s) : p.199-213 Langues : Anglais (eng) Mots-clés : Family Quality of Life autism spectrum disorder adaptive functioning behavior problems Index. décimale : PER Périodiques Résumé : The family is the key support network for children with autism spectrum disorder (ASD), in many cases into adulthood. The Family Quality of Life (FQOL) construct encompasses family satisfaction with both internal and external dynamics, as well as support availability. Therefore, although these families face considerable risk in raising a child with a disability, the FQOL outcome is conceptualized as representative of a continuum of family adaptation. This study examined the role of child characteristics, including adaptive functioning and behaviour problems, in relation to FQOL. Eighty-four caregivers of children and adolescents (range?=?6–18 years) with ASD participated, completing questionnaires online and by telephone. Adaptive functioning, and specifically daily living skills, emerged as a significant predictor of FQOL satisfaction, after accounting for behavioural and demographic characteristics, including child age, gender, perceived disability severity, and behavioural problems, as well as family income. Furthermore, there were significant differences across each domain of FQOL when groups were separated by daily living skill functioning level (‘low,’ ‘moderately low,’ and ‘adequate’). The results suggest that intervention strategies targeting daily living skills will likely have beneficial effects for both individual and family well-being, and may reduce family support demands. En ligne : http://dx.doi.org/10.1002/aur.1442 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=256
in Autism Research > 8-2 (April 2015) . - p.199-213[article] Family Quality of Life and ASD: The Role of Child Adaptive Functioning and Behavior Problems [Texte imprimé et/ou numérique] / Gardiner EMILY, Auteur ; Iarocci GRACE, Auteur . - p.199-213.
Langues : Anglais (eng)
in Autism Research > 8-2 (April 2015) . - p.199-213
Mots-clés : Family Quality of Life autism spectrum disorder adaptive functioning behavior problems Index. décimale : PER Périodiques Résumé : The family is the key support network for children with autism spectrum disorder (ASD), in many cases into adulthood. The Family Quality of Life (FQOL) construct encompasses family satisfaction with both internal and external dynamics, as well as support availability. Therefore, although these families face considerable risk in raising a child with a disability, the FQOL outcome is conceptualized as representative of a continuum of family adaptation. This study examined the role of child characteristics, including adaptive functioning and behaviour problems, in relation to FQOL. Eighty-four caregivers of children and adolescents (range?=?6–18 years) with ASD participated, completing questionnaires online and by telephone. Adaptive functioning, and specifically daily living skills, emerged as a significant predictor of FQOL satisfaction, after accounting for behavioural and demographic characteristics, including child age, gender, perceived disability severity, and behavioural problems, as well as family income. Furthermore, there were significant differences across each domain of FQOL when groups were separated by daily living skill functioning level (‘low,’ ‘moderately low,’ and ‘adequate’). The results suggest that intervention strategies targeting daily living skills will likely have beneficial effects for both individual and family well-being, and may reduce family support demands. En ligne : http://dx.doi.org/10.1002/aur.1442 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=256 Cross-cultural perspectives on the meaning of family quality of life: Comparing Korean immigrant families and Canadian families of children with autism spectrum disorder / Vanessa C. FONG in Autism, 25-5 (July 2021)
[article]
Titre : Cross-cultural perspectives on the meaning of family quality of life: Comparing Korean immigrant families and Canadian families of children with autism spectrum disorder Type de document : Texte imprimé et/ou numérique Auteurs : Vanessa C. FONG, Auteur ; Emily GARDINER, Auteur ; Grace IAROCCI, Auteur Article en page(s) : p.1335-1348 Langues : Anglais (eng) Mots-clés : Autism Spectrum Disorder Canada Child Cross-Cultural Comparison Emigrants and Immigrants Family Humans Parents Qualitative Research Quality of Life Republic of Korea cross-cultural family quality of life qualitative research conflicts of interest with respect to the research, authorship, and/or publication of this article. Index. décimale : PER Périodiques Résumé : The purpose of this study was to compare Korean immigrant families and Canadian families of children with autism in their perceptions and definitions of family quality of life. Interviews were done with 13 Korean immigrant parents and 12 Canadian parents of children with autism living in BC, Canada. For Korean immigrant families, three themes were identified: family cohesiveness, value orientation, and acceptance from society. For Canadian families, themes comprising family interactions, support, emotional well-being, individual characteristics, and comparisons to other families were essential elements in defining their family quality of life. The findings emphasize how differences in culture may impact how we understand and assess family functioning and quality of life. If research informing the development of these tools lacks cross-cultural perspectives, service providers and professionals may fail to address these families' unique needs. En ligne : http://dx.doi.org/10.1177/1362361321989221 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=475
in Autism > 25-5 (July 2021) . - p.1335-1348[article] Cross-cultural perspectives on the meaning of family quality of life: Comparing Korean immigrant families and Canadian families of children with autism spectrum disorder [Texte imprimé et/ou numérique] / Vanessa C. FONG, Auteur ; Emily GARDINER, Auteur ; Grace IAROCCI, Auteur . - p.1335-1348.
Langues : Anglais (eng)
in Autism > 25-5 (July 2021) . - p.1335-1348
Mots-clés : Autism Spectrum Disorder Canada Child Cross-Cultural Comparison Emigrants and Immigrants Family Humans Parents Qualitative Research Quality of Life Republic of Korea cross-cultural family quality of life qualitative research conflicts of interest with respect to the research, authorship, and/or publication of this article. Index. décimale : PER Périodiques Résumé : The purpose of this study was to compare Korean immigrant families and Canadian families of children with autism in their perceptions and definitions of family quality of life. Interviews were done with 13 Korean immigrant parents and 12 Canadian parents of children with autism living in BC, Canada. For Korean immigrant families, three themes were identified: family cohesiveness, value orientation, and acceptance from society. For Canadian families, themes comprising family interactions, support, emotional well-being, individual characteristics, and comparisons to other families were essential elements in defining their family quality of life. The findings emphasize how differences in culture may impact how we understand and assess family functioning and quality of life. If research informing the development of these tools lacks cross-cultural perspectives, service providers and professionals may fail to address these families' unique needs. En ligne : http://dx.doi.org/10.1177/1362361321989221 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=475 Cross-cultural perspectives on the meaning of family quality of life: Comparing Korean immigrant families and Canadian families of children with autism spectrum disorder / Vanessa C. FONG in Autism, 26-5 (July 2022)
[article]
Titre : Cross-cultural perspectives on the meaning of family quality of life: Comparing Korean immigrant families and Canadian families of children with autism spectrum disorder Type de document : Texte imprimé et/ou numérique Auteurs : Vanessa C. FONG, Auteur ; Emily GARDINER, Auteur ; Grace IAROCCI, Auteur Article en page(s) : p.1335-1348 Langues : Anglais (eng) Mots-clés : Autism Spectrum Disorder Canada Child Cross-Cultural Comparison Emigrants and Immigrants Family Humans Parents Qualitative Research Quality of Life Republic of Korea autism spectrum disorder cross-cultural family quality of life qualitative research conflicts of interest with respect to the research, authorship, and/or publication of this article. Index. décimale : PER Périodiques Résumé : The purpose of this study was to compare Korean immigrant families and Canadian families of children with autism in their perceptions and definitions of family quality of life. Interviews were done with 13 Korean immigrant parents and 12 Canadian parents of children with autism living in BC, Canada. For Korean immigrant families, three themes were identified: family cohesiveness, value orientation, and acceptance from society. For Canadian families, themes comprising family interactions, support, emotional well-being, individual characteristics, and comparisons to other families were essential elements in defining their family quality of life. The findings emphasize how differences in culture may impact how we understand and assess family functioning and quality of life. If research informing the development of these tools lacks cross-cultural perspectives, service providers and professionals may fail to address these families' unique needs. En ligne : http://dx.doi.org/10.1177/1362361321989221 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=483
in Autism > 26-5 (July 2022) . - p.1335-1348[article] Cross-cultural perspectives on the meaning of family quality of life: Comparing Korean immigrant families and Canadian families of children with autism spectrum disorder [Texte imprimé et/ou numérique] / Vanessa C. FONG, Auteur ; Emily GARDINER, Auteur ; Grace IAROCCI, Auteur . - p.1335-1348.
Langues : Anglais (eng)
in Autism > 26-5 (July 2022) . - p.1335-1348
Mots-clés : Autism Spectrum Disorder Canada Child Cross-Cultural Comparison Emigrants and Immigrants Family Humans Parents Qualitative Research Quality of Life Republic of Korea autism spectrum disorder cross-cultural family quality of life qualitative research conflicts of interest with respect to the research, authorship, and/or publication of this article. Index. décimale : PER Périodiques Résumé : The purpose of this study was to compare Korean immigrant families and Canadian families of children with autism in their perceptions and definitions of family quality of life. Interviews were done with 13 Korean immigrant parents and 12 Canadian parents of children with autism living in BC, Canada. For Korean immigrant families, three themes were identified: family cohesiveness, value orientation, and acceptance from society. For Canadian families, themes comprising family interactions, support, emotional well-being, individual characteristics, and comparisons to other families were essential elements in defining their family quality of life. The findings emphasize how differences in culture may impact how we understand and assess family functioning and quality of life. If research informing the development of these tools lacks cross-cultural perspectives, service providers and professionals may fail to address these families' unique needs. En ligne : http://dx.doi.org/10.1177/1362361321989221 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=483 Stress and Family Quality of Life in Parents of Children with Autism Spectrum Disorder: Parent Gender and the Double ABCX Model / Rebecca L. MCSTAY in Journal of Autism and Developmental Disorders, 44-12 (December 2014)
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Titre : Stress and Family Quality of Life in Parents of Children with Autism Spectrum Disorder: Parent Gender and the Double ABCX Model Type de document : Texte imprimé et/ou numérique Auteurs : Rebecca L. MCSTAY, Auteur ; David TREMBATH, Auteur ; Cheryl DISSANAYAKE, Auteur Article en page(s) : p.3101-3118 Langues : Anglais (eng) Mots-clés : Autism Stress Family quality of life Child behaviour Family sense of coherence Index. décimale : PER Périodiques Résumé : Past research has supported the utility of the Double ABCX model of family adaptation for parents raising a child with autism spectrum disorder (ASD). What remains unclear is the impact of family-related variables on outcomes in both mothers and fathers within the same family. We explored the potential predictors of maternal and paternal stress and family quality of life in an Australian sample of 196 parents of children with ASD aged 3–16 years. Using a cross-sectional design, parents completed questionnaires assessing factors within the Double ABCX model attributed to family adaptation. Findings provide further evidence of the negative impact of child externalising behaviours and highlight the importance of family sense of coherence on positive parental outcomes. En ligne : http://dx.doi.org/10.1007/s10803-014-2178-7 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=243
in Journal of Autism and Developmental Disorders > 44-12 (December 2014) . - p.3101-3118[article] Stress and Family Quality of Life in Parents of Children with Autism Spectrum Disorder: Parent Gender and the Double ABCX Model [Texte imprimé et/ou numérique] / Rebecca L. MCSTAY, Auteur ; David TREMBATH, Auteur ; Cheryl DISSANAYAKE, Auteur . - p.3101-3118.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 44-12 (December 2014) . - p.3101-3118
Mots-clés : Autism Stress Family quality of life Child behaviour Family sense of coherence Index. décimale : PER Périodiques Résumé : Past research has supported the utility of the Double ABCX model of family adaptation for parents raising a child with autism spectrum disorder (ASD). What remains unclear is the impact of family-related variables on outcomes in both mothers and fathers within the same family. We explored the potential predictors of maternal and paternal stress and family quality of life in an Australian sample of 196 parents of children with ASD aged 3–16 years. Using a cross-sectional design, parents completed questionnaires assessing factors within the Double ABCX model attributed to family adaptation. Findings provide further evidence of the negative impact of child externalising behaviours and highlight the importance of family sense of coherence on positive parental outcomes. En ligne : http://dx.doi.org/10.1007/s10803-014-2178-7 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=243 The Role of Choice and Control in the Impact of Autism Waiver Services on Family Quality of Life and Child Progress / K. G. ESKOW in Journal of Autism and Developmental Disorders, 49-5 (May 2019)
[article]
Titre : The Role of Choice and Control in the Impact of Autism Waiver Services on Family Quality of Life and Child Progress Type de document : Texte imprimé et/ou numérique Auteurs : K. G. ESKOW, Auteur ; Gregory S. CHASSON, Auteur ; J. A. SUMMERS, Auteur Article en page(s) : p.2035-2048 Langues : Anglais (eng) Mots-clés : Autism services Family quality of life Home and Community-Based Services Waiver Medicaid Index. décimale : PER Périodiques Résumé : Home and Community-Based Services (HCBS) Waivers provide support and services to families with a child/youth with autism spectrum disorder (ASD). Research indicates HCBS Waivers are positively related to family quality of life (FQoL) and Child Progress. This study replicated and expanded prior research using propensity score matching of 460 families. Results support prior findings that HCBS waivers have a positive impact on FQoL and aspects of child progress. This study also found that having choices in the selection of services and service providers, as well as control over day-to-day provision of services, strengthened both the child and family impacts of the Waiver services. In addition, the study provides preliminary evidence for psychometric properties of a quick and inexpensive parent-report of ASD severity. En ligne : http://dx.doi.org/10.1007/s10803-019-03886-5 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=393
in Journal of Autism and Developmental Disorders > 49-5 (May 2019) . - p.2035-2048[article] The Role of Choice and Control in the Impact of Autism Waiver Services on Family Quality of Life and Child Progress [Texte imprimé et/ou numérique] / K. G. ESKOW, Auteur ; Gregory S. CHASSON, Auteur ; J. A. SUMMERS, Auteur . - p.2035-2048.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 49-5 (May 2019) . - p.2035-2048
Mots-clés : Autism services Family quality of life Home and Community-Based Services Waiver Medicaid Index. décimale : PER Périodiques Résumé : Home and Community-Based Services (HCBS) Waivers provide support and services to families with a child/youth with autism spectrum disorder (ASD). Research indicates HCBS Waivers are positively related to family quality of life (FQoL) and Child Progress. This study replicated and expanded prior research using propensity score matching of 460 families. Results support prior findings that HCBS waivers have a positive impact on FQoL and aspects of child progress. This study also found that having choices in the selection of services and service providers, as well as control over day-to-day provision of services, strengthened both the child and family impacts of the Waiver services. In addition, the study provides preliminary evidence for psychometric properties of a quick and inexpensive parent-report of ASD severity. En ligne : http://dx.doi.org/10.1007/s10803-019-03886-5 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=393 Family adaptation among parents of children on the autism spectrum without a comorbid intellectual disability: A test of the Double ABCX model / Jane MELEADY in Research in Autism Spectrum Disorders, 78 (October 2020)
PermalinkA Cross-Sectional Cohort Study of a Large, Statewide Medicaid Home and Community-Based Services Autism Waiver Program / Karen Goldrich ESKOW in Journal of Autism and Developmental Disorders, 45-3 (March 2015)
PermalinkMindfulness and Stress Among Parents of Children with Autism Spectrum Disorder in China / Hui WANG in Journal of Autism and Developmental Disorders, 52-5 (May 2022)
PermalinkEmotional Disclosure Through Journal Writing: Telehealth Intervention for Maternal Stress and Mother–Child Relationships / Rondalyn V. WHITNEY in Journal of Autism and Developmental Disorders, 45-11 (November 2015)
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