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Family-centered care practices in a multidisciplinary sample of pediatric professionals providing autism spectrum disorder services in the United States / Lillian M. CHRISTON in Research in Autism Spectrum Disorders, 20 (December 2015)
[article]
Titre : Family-centered care practices in a multidisciplinary sample of pediatric professionals providing autism spectrum disorder services in the United States Type de document : Texte imprimé et/ou numérique Auteurs : Lillian M. CHRISTON, Auteur ; Barbara J. MYERS, Auteur Article en page(s) : p.47-57 Langues : Anglais (eng) Mots-clés : Family-centered care Pediatric professionals Autism spectrum disorder Multidisciplinary Service delivery Theory of planned behavior Index. décimale : PER Périodiques Résumé : Family-centered care (FCC) has not been studied extensively in the field of autism spectrum disorders (ASD), but has been highlighted as a critical component of practice with youth with ASD. The aim of this study was to examine predictors (e.g., the theory of planned behavior, [TPB]) of providing family-centered care (FCC) services to youth with ASD in pediatric professionals from a range of disciplines. A multidisciplinary (e.g., medicine, psychology, education, etc.) sample of professionals (N = 709) who endorsed providing services to youth with ASD in the United States was recruited from online provider listings, listservs, etc. Hierarchical multiple regressions examined the relationship of demographic and TPB predictors to professionals' self-reported FCC practices. Professionals reported a high degree of using FCC in their practice with youth with ASD. Attitudes and perceived behavioral control predicted self-reported FCC practices, while subjective norms did not. Experienced practitioners reported using FCC practices in spite of not having necessarily received FCC training. Discipline differences were evident in rates of reported FCC. The Theory of Planned Behavior is helpful in understanding FCC practices and attention should be given to training professionals in FCC as they work with youth with ASD. Implications and future directions are discussed. En ligne : http://dx.doi.org/10.1016/j.rasd.2015.08.004 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=270
in Research in Autism Spectrum Disorders > 20 (December 2015) . - p.47-57[article] Family-centered care practices in a multidisciplinary sample of pediatric professionals providing autism spectrum disorder services in the United States [Texte imprimé et/ou numérique] / Lillian M. CHRISTON, Auteur ; Barbara J. MYERS, Auteur . - p.47-57.
Langues : Anglais (eng)
in Research in Autism Spectrum Disorders > 20 (December 2015) . - p.47-57
Mots-clés : Family-centered care Pediatric professionals Autism spectrum disorder Multidisciplinary Service delivery Theory of planned behavior Index. décimale : PER Périodiques Résumé : Family-centered care (FCC) has not been studied extensively in the field of autism spectrum disorders (ASD), but has been highlighted as a critical component of practice with youth with ASD. The aim of this study was to examine predictors (e.g., the theory of planned behavior, [TPB]) of providing family-centered care (FCC) services to youth with ASD in pediatric professionals from a range of disciplines. A multidisciplinary (e.g., medicine, psychology, education, etc.) sample of professionals (N = 709) who endorsed providing services to youth with ASD in the United States was recruited from online provider listings, listservs, etc. Hierarchical multiple regressions examined the relationship of demographic and TPB predictors to professionals' self-reported FCC practices. Professionals reported a high degree of using FCC in their practice with youth with ASD. Attitudes and perceived behavioral control predicted self-reported FCC practices, while subjective norms did not. Experienced practitioners reported using FCC practices in spite of not having necessarily received FCC training. Discipline differences were evident in rates of reported FCC. The Theory of Planned Behavior is helpful in understanding FCC practices and attention should be given to training professionals in FCC as they work with youth with ASD. Implications and future directions are discussed. En ligne : http://dx.doi.org/10.1016/j.rasd.2015.08.004 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=270 Family-Centered Care: How Close Do We Get When Talking to Parents of Children Undergoing Diagnosis for Autism Spectrum Disorders? / L. MYERS in Journal of Autism and Developmental Disorders, 51-9 (September 2021)
[article]
Titre : Family-Centered Care: How Close Do We Get When Talking to Parents of Children Undergoing Diagnosis for Autism Spectrum Disorders? Type de document : Texte imprimé et/ou numérique Auteurs : L. MYERS, Auteur ; S. M. KARP, Auteur ; M. S. DIETRICH, Auteur ; W. S. LOOMAN, Auteur ; M. LUTENBACHER, Auteur Article en page(s) : p.3073-3084 Langues : Anglais (eng) Mots-clés : Anxiety Disorders Autism Spectrum Disorder/diagnosis Child Family Humans Parents Patient-Centered Care Autism spectrum disorders Communication Diagnosis Family-centered care Index. décimale : PER Périodiques Résumé : Autism spectrum disorder (ASD) affects 1:59 children, yet little is known about parents' perceptions of family-centered care (FCC) during the diagnostic process leading up to diagnosis. This mixed-methods study explored key elements of FCC from 31 parents of children recently diagnosed with ASD using parallel qualitative and quantitative measures. Parents rated highly their receipt of FCC and discussed ways providers demonstrated FCC. However, the majority of parents indicated that the period when their child was undergoing diagnosis was stressful and reported symptoms of depression and anxiety. The study points to ways in which health care providers can enhance FCC provided to families when a child is undergoing ASD diagnosis. En ligne : http://dx.doi.org/10.1007/s10803-020-04765-0 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=453
in Journal of Autism and Developmental Disorders > 51-9 (September 2021) . - p.3073-3084[article] Family-Centered Care: How Close Do We Get When Talking to Parents of Children Undergoing Diagnosis for Autism Spectrum Disorders? [Texte imprimé et/ou numérique] / L. MYERS, Auteur ; S. M. KARP, Auteur ; M. S. DIETRICH, Auteur ; W. S. LOOMAN, Auteur ; M. LUTENBACHER, Auteur . - p.3073-3084.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 51-9 (September 2021) . - p.3073-3084
Mots-clés : Anxiety Disorders Autism Spectrum Disorder/diagnosis Child Family Humans Parents Patient-Centered Care Autism spectrum disorders Communication Diagnosis Family-centered care Index. décimale : PER Périodiques Résumé : Autism spectrum disorder (ASD) affects 1:59 children, yet little is known about parents' perceptions of family-centered care (FCC) during the diagnostic process leading up to diagnosis. This mixed-methods study explored key elements of FCC from 31 parents of children recently diagnosed with ASD using parallel qualitative and quantitative measures. Parents rated highly their receipt of FCC and discussed ways providers demonstrated FCC. However, the majority of parents indicated that the period when their child was undergoing diagnosis was stressful and reported symptoms of depression and anxiety. The study points to ways in which health care providers can enhance FCC provided to families when a child is undergoing ASD diagnosis. En ligne : http://dx.doi.org/10.1007/s10803-020-04765-0 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=453 Brief Report: Perceptions of Family-Centered Care Across Service Delivery Systems and Types of Caregiver Concerns About Their Toddlers' Development / Catherine C. DICK in Journal of Autism and Developmental Disorders, 52-9 (September 2022)
[article]
Titre : Brief Report: Perceptions of Family-Centered Care Across Service Delivery Systems and Types of Caregiver Concerns About Their Toddlers' Development Type de document : Texte imprimé et/ou numérique Auteurs : Catherine C. DICK, Auteur ; Lisa V. IBAÑEZ, Auteur ; Trent D. DESCHAMPS, Auteur ; Shana M. ATTAR, Auteur ; Wendy L. STONE, Auteur Article en page(s) : p.4181-4190 Langues : Anglais (eng) Mots-clés : Autism Spectrum Disorder Caregivers Child, Preschool Early Intervention, Educational Family Humans Patient-Centered Care Autism concerns Autism spectrum disorder Caregiver experiences Early intervention Family-centered care Primary care Service delivery Index. décimale : PER Périodiques Résumé : Family-centered care represents a collaborative partnership between caregivers and service providers, and is associated with positive caregiver and child outcomes. This approach may be especially important for caregivers with early concerns about autism, as service providers are often the gateway to appropriately-specialized intervention. Perceptions of family-centered care received from primary care providers (PCPs) and Part C Early Intervention (EI) providers were rated by two groups of caregivers: those concerned about autism (n=37) and those concerned about another developmental problem (n=22), using the Measure of Processes of Care (MPOC-20). Ratings did not differ across caregiver groups, but both groups rated EI providers significantly higher than PCPs, which may reflect systems-level differences between primary care and EI. En ligne : http://dx.doi.org/10.1007/s10803-021-05248-6 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=486
in Journal of Autism and Developmental Disorders > 52-9 (September 2022) . - p.4181-4190[article] Brief Report: Perceptions of Family-Centered Care Across Service Delivery Systems and Types of Caregiver Concerns About Their Toddlers' Development [Texte imprimé et/ou numérique] / Catherine C. DICK, Auteur ; Lisa V. IBAÑEZ, Auteur ; Trent D. DESCHAMPS, Auteur ; Shana M. ATTAR, Auteur ; Wendy L. STONE, Auteur . - p.4181-4190.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 52-9 (September 2022) . - p.4181-4190
Mots-clés : Autism Spectrum Disorder Caregivers Child, Preschool Early Intervention, Educational Family Humans Patient-Centered Care Autism concerns Autism spectrum disorder Caregiver experiences Early intervention Family-centered care Primary care Service delivery Index. décimale : PER Périodiques Résumé : Family-centered care represents a collaborative partnership between caregivers and service providers, and is associated with positive caregiver and child outcomes. This approach may be especially important for caregivers with early concerns about autism, as service providers are often the gateway to appropriately-specialized intervention. Perceptions of family-centered care received from primary care providers (PCPs) and Part C Early Intervention (EI) providers were rated by two groups of caregivers: those concerned about autism (n=37) and those concerned about another developmental problem (n=22), using the Measure of Processes of Care (MPOC-20). Ratings did not differ across caregiver groups, but both groups rated EI providers significantly higher than PCPs, which may reflect systems-level differences between primary care and EI. En ligne : http://dx.doi.org/10.1007/s10803-021-05248-6 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=486 Coming to understand the child has autism: A process illustrating parents' evolving readiness for engaging in care / Stephen J. GENTLES in Autism, 24-2 (February 2020)
[article]
Titre : Coming to understand the child has autism: A process illustrating parents' evolving readiness for engaging in care Type de document : Texte imprimé et/ou numérique Auteurs : Stephen J. GENTLES, Auteur ; David B NICHOLAS, Auteur ; Susan M JACK, Auteur ; K. Ann MCKIBBON, Auteur ; Peter SZATMARI, Auteur Article en page(s) : p.470-483 Langues : Anglais (eng) Mots-clés : caregiver family-centered care grounded theory patient engagement patient-centered care pre-diagnosis Index. décimale : PER Périodiques Résumé : LAY ABSTRACT: What is already known about the topic? Parents of children with autism often learn about their child's autism before diagnosis and can spend long periods seeking care (including assessment) before receiving a diagnosis. Meanwhile, parents' readiness to engage in care at this early stage can vary from parent to parent. What this paper adds? This study revealed how parents come to understand their child has autism-on their own terms, rather than from just talking to professionals. It also explained how parents' growing awareness of their child's autism leads them to feel more motivated to engage in care by seeking information and pursuing services. Four "optional steps" described how parents' growing readiness to engage in care at this early stage can vary, depending on their personal process. Implications for practice, research, or policy The results suggest ways that professionals can be more sensitive (a) to parents' varying awareness of autism and (b) to their varying readiness for being involved in early care. They also suggest ways to tailor parent supports to their individual situation and design care that is more family centered. Not all parents want high levels of involvement. Depending on their personal process, some parents may need care and support that is directed at them before feeling ready for professionals to engage them in care directed at the child. En ligne : http://dx.doi.org/10.1177/1362361319874647 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=415
in Autism > 24-2 (February 2020) . - p.470-483[article] Coming to understand the child has autism: A process illustrating parents' evolving readiness for engaging in care [Texte imprimé et/ou numérique] / Stephen J. GENTLES, Auteur ; David B NICHOLAS, Auteur ; Susan M JACK, Auteur ; K. Ann MCKIBBON, Auteur ; Peter SZATMARI, Auteur . - p.470-483.
Langues : Anglais (eng)
in Autism > 24-2 (February 2020) . - p.470-483
Mots-clés : caregiver family-centered care grounded theory patient engagement patient-centered care pre-diagnosis Index. décimale : PER Périodiques Résumé : LAY ABSTRACT: What is already known about the topic? Parents of children with autism often learn about their child's autism before diagnosis and can spend long periods seeking care (including assessment) before receiving a diagnosis. Meanwhile, parents' readiness to engage in care at this early stage can vary from parent to parent. What this paper adds? This study revealed how parents come to understand their child has autism-on their own terms, rather than from just talking to professionals. It also explained how parents' growing awareness of their child's autism leads them to feel more motivated to engage in care by seeking information and pursuing services. Four "optional steps" described how parents' growing readiness to engage in care at this early stage can vary, depending on their personal process. Implications for practice, research, or policy The results suggest ways that professionals can be more sensitive (a) to parents' varying awareness of autism and (b) to their varying readiness for being involved in early care. They also suggest ways to tailor parent supports to their individual situation and design care that is more family centered. Not all parents want high levels of involvement. Depending on their personal process, some parents may need care and support that is directed at them before feeling ready for professionals to engage them in care directed at the child. En ligne : http://dx.doi.org/10.1177/1362361319874647 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=415 Parent and Pediatrician Perspectives Regarding the Primary Care of Children with Autism Spectrum Disorders / Paul S. CARBONE in Journal of Autism and Developmental Disorders, 43-4 (April 2013)
[article]
Titre : Parent and Pediatrician Perspectives Regarding the Primary Care of Children with Autism Spectrum Disorders Type de document : Texte imprimé et/ou numérique Auteurs : Paul S. CARBONE, Auteur ; Nancy A. MURPHY, Auteur ; Chuck NORLIN, Auteur ; Virgina AZOR, Auteur ; Xiaoming SHENG, Auteur ; Paul C. YOUNG, Auteur Article en page(s) : p.964-972 Langues : Anglais (eng) Mots-clés : Autism Autism spectrum disorders Medical home Children Family-centered care Primary care Index. décimale : PER Périodiques Résumé : Parents of children with autism spectrum disorders (ASD) (n = 144) and primary care providers (PCPs) (n = 144) completed similar surveys assessing the ability of the PCP to address ASD-specific needs. Parents also rated their PCP’s ability to deliver family-centered care. A majority of parents rated their PCP’s ability as “not good” in addressing 14 of 17 ASD-specific needs, while a majority of PCPs rated themselves as “good” in addressing 10 of 17 areas. On 7 of 17 items, parents rated their PCPs lower than PCPs rated themselves. Parents who reported receiving family-centered care were more likely to rate the PCP’s ability to meet ASD specific needs as “good”. Both parents and PCPs identified areas for improvement in caring for children with ASD. En ligne : http://dx.doi.org/10.1007/s10803-012-1640-7 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=194
in Journal of Autism and Developmental Disorders > 43-4 (April 2013) . - p.964-972[article] Parent and Pediatrician Perspectives Regarding the Primary Care of Children with Autism Spectrum Disorders [Texte imprimé et/ou numérique] / Paul S. CARBONE, Auteur ; Nancy A. MURPHY, Auteur ; Chuck NORLIN, Auteur ; Virgina AZOR, Auteur ; Xiaoming SHENG, Auteur ; Paul C. YOUNG, Auteur . - p.964-972.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 43-4 (April 2013) . - p.964-972
Mots-clés : Autism Autism spectrum disorders Medical home Children Family-centered care Primary care Index. décimale : PER Périodiques Résumé : Parents of children with autism spectrum disorders (ASD) (n = 144) and primary care providers (PCPs) (n = 144) completed similar surveys assessing the ability of the PCP to address ASD-specific needs. Parents also rated their PCP’s ability to deliver family-centered care. A majority of parents rated their PCP’s ability as “not good” in addressing 14 of 17 ASD-specific needs, while a majority of PCPs rated themselves as “good” in addressing 10 of 17 areas. On 7 of 17 items, parents rated their PCPs lower than PCPs rated themselves. Parents who reported receiving family-centered care were more likely to rate the PCP’s ability to meet ASD specific needs as “good”. Both parents and PCPs identified areas for improvement in caring for children with ASD. En ligne : http://dx.doi.org/10.1007/s10803-012-1640-7 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=194 Health Care Transition Planning Among Adolescents with Autism Spectrum Disorder / Casey WALSH in Journal of Autism and Developmental Disorders, 47-4 (April 2017)
PermalinkProfile and predictors of service needs for families of children with autism spectrum disorders / Sandra HODGETTS in Autism, 19-6 (August 2015)
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