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Health profiles of adults with autism spectrum disorder: Differences between women and men / Leann S. DAWALT in Autism Research, 14-9 (September 2021)
[article]
Titre : Health profiles of adults with autism spectrum disorder: Differences between women and men Type de document : Texte imprimé et/ou numérique Auteurs : Leann S. DAWALT, Auteur ; Julie LOUNDS TAYLOR, Auteur ; A. MOVAGHAR, Auteur ; J. HONG, Auteur ; B. KIM, Auteur ; M. H. BRILLIANT, Auteur ; M. R. MAILICK, Auteur Article en page(s) : p.1896-1904 Langues : Anglais (eng) Mots-clés : Adult Autism Spectrum Disorder/complications/epidemiology Autistic Disorder Electronic Health Records Female Humans Male Sleep Wake Disorders adults electronic health records health health care utilization sex differences Index. décimale : PER Périodiques Résumé : The purpose of the present study was to investigate the hypothesis that women with autism have poorer health compared with men with autism, and compared with women without autism. Utilizing electronic health records drawn from a single health care system serving over 2 million individuals, 2119 adults with diagnosed autism spectrum disorders were compared with age- and sex-matched controls. When considering health care utilization, we found evidence of multiplicative risk for conditions within some domains (i.e., nutrition conditions, neurologic disease, psychiatric conditions, and sleep disorders) such that women with autism spectrum disorder (ASD) experienced double jeopardy-meaning they had greater rates of health care utilization within a domain than what would separately be expected by virtue of being a woman and having ASD. For other domains (i.e., endocrine disorders, gastrointestinal disorders), the risk was additive such that being a female and having ASD were both associated with higher health care utilization, but there were no significant interaction effects. It was only with respect to one domain (cardiovascular) that rates of health care utilization were reflective of neither ASD diagnosis nor sex. Overall, our findings suggest that women with ASD are a vulnerable subgroup with high levels of health care utilization. LAY SUMMARY: This study asked whether women with autism have poorer health compared with men with autism, and compared with women without autism. To answer this question, we used data from electronic health records. We found that women with autism spectrum disorder (ASD) were at the greatest risk for health problems such as nutrition conditions, neurologic disease, psychiatric conditions, and sleep disorders. More research on health of women with ASD is needed. En ligne : http://dx.doi.org/10.1002/aur.2563 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=449
in Autism Research > 14-9 (September 2021) . - p.1896-1904[article] Health profiles of adults with autism spectrum disorder: Differences between women and men [Texte imprimé et/ou numérique] / Leann S. DAWALT, Auteur ; Julie LOUNDS TAYLOR, Auteur ; A. MOVAGHAR, Auteur ; J. HONG, Auteur ; B. KIM, Auteur ; M. H. BRILLIANT, Auteur ; M. R. MAILICK, Auteur . - p.1896-1904.
Langues : Anglais (eng)
in Autism Research > 14-9 (September 2021) . - p.1896-1904
Mots-clés : Adult Autism Spectrum Disorder/complications/epidemiology Autistic Disorder Electronic Health Records Female Humans Male Sleep Wake Disorders adults electronic health records health health care utilization sex differences Index. décimale : PER Périodiques Résumé : The purpose of the present study was to investigate the hypothesis that women with autism have poorer health compared with men with autism, and compared with women without autism. Utilizing electronic health records drawn from a single health care system serving over 2 million individuals, 2119 adults with diagnosed autism spectrum disorders were compared with age- and sex-matched controls. When considering health care utilization, we found evidence of multiplicative risk for conditions within some domains (i.e., nutrition conditions, neurologic disease, psychiatric conditions, and sleep disorders) such that women with autism spectrum disorder (ASD) experienced double jeopardy-meaning they had greater rates of health care utilization within a domain than what would separately be expected by virtue of being a woman and having ASD. For other domains (i.e., endocrine disorders, gastrointestinal disorders), the risk was additive such that being a female and having ASD were both associated with higher health care utilization, but there were no significant interaction effects. It was only with respect to one domain (cardiovascular) that rates of health care utilization were reflective of neither ASD diagnosis nor sex. Overall, our findings suggest that women with ASD are a vulnerable subgroup with high levels of health care utilization. LAY SUMMARY: This study asked whether women with autism have poorer health compared with men with autism, and compared with women without autism. To answer this question, we used data from electronic health records. We found that women with autism spectrum disorder (ASD) were at the greatest risk for health problems such as nutrition conditions, neurologic disease, psychiatric conditions, and sleep disorders. More research on health of women with ASD is needed. En ligne : http://dx.doi.org/10.1002/aur.2563 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=449 Health Concerns and Health Service Utilization in a Population Cohort of Young Adults with Autism Spectrum Disorder / J. A. WEISS in Journal of Autism and Developmental Disorders, 48-1 (January 2018)
[article]
Titre : Health Concerns and Health Service Utilization in a Population Cohort of Young Adults with Autism Spectrum Disorder Type de document : Texte imprimé et/ou numérique Auteurs : J. A. WEISS, Auteur ; B. ISAACS, Auteur ; H. DIEPSTRA, Auteur ; A. S. WILTON, Auteur ; H. K. BROWN, Auteur ; C. MCGARRY, Auteur ; Y. LUNSKY, Auteur Article en page(s) : p.36-44 Langues : Anglais (eng) Mots-clés : Autism Comorbidity Developmental disability Epidemiology Health Psychiatry Services Index. décimale : PER Périodiques Résumé : Individuals with autism spectrum disorder (ASD) have many health needs that place demands on the health service sector. This study used administrative data to compare health profiles in young adults 18-24 years of age with ASD to peers with and without other developmental disability. Young adults with ASD were more likely to have almost all the examined clinical health issues and health service use indicators compared to peers without developmental disability. They were more likely to have at least one psychiatric diagnosis, and visit the family physician, pediatrician, psychiatrist, and emergency department for psychiatric reasons, compared to peers with other developmental disability. Planning for the mental health care of transition age adults with ASD is an important priority for health policy. En ligne : https://doi.org/10.1007/s10803-017-3292-0 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=336
in Journal of Autism and Developmental Disorders > 48-1 (January 2018) . - p.36-44[article] Health Concerns and Health Service Utilization in a Population Cohort of Young Adults with Autism Spectrum Disorder [Texte imprimé et/ou numérique] / J. A. WEISS, Auteur ; B. ISAACS, Auteur ; H. DIEPSTRA, Auteur ; A. S. WILTON, Auteur ; H. K. BROWN, Auteur ; C. MCGARRY, Auteur ; Y. LUNSKY, Auteur . - p.36-44.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 48-1 (January 2018) . - p.36-44
Mots-clés : Autism Comorbidity Developmental disability Epidemiology Health Psychiatry Services Index. décimale : PER Périodiques Résumé : Individuals with autism spectrum disorder (ASD) have many health needs that place demands on the health service sector. This study used administrative data to compare health profiles in young adults 18-24 years of age with ASD to peers with and without other developmental disability. Young adults with ASD were more likely to have almost all the examined clinical health issues and health service use indicators compared to peers without developmental disability. They were more likely to have at least one psychiatric diagnosis, and visit the family physician, pediatrician, psychiatrist, and emergency department for psychiatric reasons, compared to peers with other developmental disability. Planning for the mental health care of transition age adults with ASD is an important priority for health policy. En ligne : https://doi.org/10.1007/s10803-017-3292-0 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=336 Health Needs and College Readiness in Autistic Students: The Freshman Survey Results / P. FERNANDES in Journal of Autism and Developmental Disorders, 51-10 (October 2021)
[article]
Titre : Health Needs and College Readiness in Autistic Students: The Freshman Survey Results Type de document : Texte imprimé et/ou numérique Auteurs : P. FERNANDES, Auteur ; M. HALEY, Auteur ; K. EAGAN, Auteur ; P. T. SHATTUCK, Auteur ; A. A. KUO, Auteur Article en page(s) : p.3506-3513 Langues : Anglais (eng) Mots-clés : Achievement Adult Autism Spectrum Disorder Autistic Disorder Humans Students United States Universities Young Adult Autism College Health Index. décimale : PER Périodiques Résumé : With an increase in the diagnosis of autism spectrum disorder in the United States, many of whom have higher intellectual ability, there is a predicted increase in the number of college-bound students. Affected young adults face a "Services Cliff" as they transition into adulthood. Our study examined a nationally represented sample of freshman students and found that academic achievements in autistic students are comparable to their peers when they first enter college. The students however have more mental health and physical health problems compared to their non-autistic peers. Poor health maybe a major contributing factor to the lower graduation rates among autistic students. College-bound autistic students may continue to require services through college for them to be successful and graduate. En ligne : http://dx.doi.org/10.1007/s10803-020-04814-8 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=453
in Journal of Autism and Developmental Disorders > 51-10 (October 2021) . - p.3506-3513[article] Health Needs and College Readiness in Autistic Students: The Freshman Survey Results [Texte imprimé et/ou numérique] / P. FERNANDES, Auteur ; M. HALEY, Auteur ; K. EAGAN, Auteur ; P. T. SHATTUCK, Auteur ; A. A. KUO, Auteur . - p.3506-3513.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 51-10 (October 2021) . - p.3506-3513
Mots-clés : Achievement Adult Autism Spectrum Disorder Autistic Disorder Humans Students United States Universities Young Adult Autism College Health Index. décimale : PER Périodiques Résumé : With an increase in the diagnosis of autism spectrum disorder in the United States, many of whom have higher intellectual ability, there is a predicted increase in the number of college-bound students. Affected young adults face a "Services Cliff" as they transition into adulthood. Our study examined a nationally represented sample of freshman students and found that academic achievements in autistic students are comparable to their peers when they first enter college. The students however have more mental health and physical health problems compared to their non-autistic peers. Poor health maybe a major contributing factor to the lower graduation rates among autistic students. College-bound autistic students may continue to require services through college for them to be successful and graduate. En ligne : http://dx.doi.org/10.1007/s10803-020-04814-8 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=453 Associations of quality of life with health-related characteristics among children with autism / Karen A. KUHLTHAU in Autism, 22-7 (October 2018)
[article]
Titre : Associations of quality of life with health-related characteristics among children with autism Type de document : Texte imprimé et/ou numérique Auteurs : Karen A. KUHLTHAU, Auteur ; E. MCDONNELL, Auteur ; D. L. COURY, Auteur ; N. PAYAKACHAT, Auteur ; E. MACKLIN, Auteur Article en page(s) : p.804-813 Langues : Anglais (eng) Mots-clés : Pediatric Quality of Life Inventory 4.0 autism health health-related quality of life longitudinal pediatric Index. décimale : PER Périodiques Résumé : We examine whether behavioral, mental health, and physical health characteristics of children with autism are associated with baseline and change in health-related quality of life. We measured health-related quality of life with the Pediatric Quality of Life Inventory 4.0 total scores from children enrolled in the Autism Treatment Network. We used linear mixed model regressions with random slopes. Predictors of lower health-related quality of life at baseline included demographic and insurance characteristics, diagnosis, higher Child Behavior Checklist internalizing and externalizing scores, sleep problems by Children's Sleep Habits Questionnaire, seizures, gastrointestinal problems, and mental health problems. Several characteristics had different associations over time. This study demonstrates that in addition to behavioral and autism-related characteristics, physical and mental health conditions are associated with health-related quality of life in children with autism. En ligne : http://dx.doi.org/10.1177/1362361317704420 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=369
in Autism > 22-7 (October 2018) . - p.804-813[article] Associations of quality of life with health-related characteristics among children with autism [Texte imprimé et/ou numérique] / Karen A. KUHLTHAU, Auteur ; E. MCDONNELL, Auteur ; D. L. COURY, Auteur ; N. PAYAKACHAT, Auteur ; E. MACKLIN, Auteur . - p.804-813.
Langues : Anglais (eng)
in Autism > 22-7 (October 2018) . - p.804-813
Mots-clés : Pediatric Quality of Life Inventory 4.0 autism health health-related quality of life longitudinal pediatric Index. décimale : PER Périodiques Résumé : We examine whether behavioral, mental health, and physical health characteristics of children with autism are associated with baseline and change in health-related quality of life. We measured health-related quality of life with the Pediatric Quality of Life Inventory 4.0 total scores from children enrolled in the Autism Treatment Network. We used linear mixed model regressions with random slopes. Predictors of lower health-related quality of life at baseline included demographic and insurance characteristics, diagnosis, higher Child Behavior Checklist internalizing and externalizing scores, sleep problems by Children's Sleep Habits Questionnaire, seizures, gastrointestinal problems, and mental health problems. Several characteristics had different associations over time. This study demonstrates that in addition to behavioral and autism-related characteristics, physical and mental health conditions are associated with health-related quality of life in children with autism. En ligne : http://dx.doi.org/10.1177/1362361317704420 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=369 Development and evaluation of a novel caregiver-report tool to assess barriers to physical healthcare for people on the autism spectrum / C. WALSH in Research in Autism Spectrum Disorders, 79 (November 2020)
[article]
Titre : Development and evaluation of a novel caregiver-report tool to assess barriers to physical healthcare for people on the autism spectrum Type de document : Texte imprimé et/ou numérique Auteurs : C. WALSH, Auteur ; S. LYDON, Auteur ; A. HEHIR, Auteur ; P. O’CONNOR, Auteur Article en page(s) : 101680 Langues : Anglais (eng) Mots-clés : Autism spectrum disorder Healthcare access Reasonable adjustments Healthcare equity Healthcare disparities Health Index. décimale : PER Périodiques Résumé : Introduction People on the autism spectrum often experience poorer health than the general population despite higher engagement with the health services. This suggests a disparity in the accessibility of appropriate healthcare for autistic individuals. To improve access, barriers the autism community experience in healthcare first need to be identified. This paper aimed to: 1) develop and evaluate a caregiver-report tool; 2) identify barriers to physical healthcare for autistic individuals; and 3) identify potential contributing factors. Methods A previously established taxonomy of barriers to healthcare for autistic individuals informed the development of the tool; this was then distributed to caregivers of autistic adults and children. Exploratory factor analysis (EFA) assessed validity and reliability of the tool. Multiple Regressions were performed to identify predictors of barriers. Results In total, caregivers of 194 autistic children or adults participated in the study. The EFA produced four factors: 1) patient-level barriers; 2) healthcare provider-level (HCP) barriers; 3) healthcare system-level barriers; and 4) barriers related to managing healthcare. The greatest barriers included difficulties with identifying/reporting symptoms (endorsed by 62.4% of participants); difficulties handling the waiting area (60.3% of participants); and a lack of HCP knowledge regarding autism (52.1% of participants). Autism severity, general adjustment problems, anxiety, age and having unmet needs predicted the frequency and/or severity of barriers. Conclusions A tool that allows assessment of patient-, HCP-, and system-level barriers to healthcare was developed and evaluated. Patient-level barriers appear to occur frequently and pose substantial challenges. This tool will help identify areas most in need of intervention and support intervention evaluation. En ligne : https://doi.org/10.1016/j.rasd.2020.101680 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=434
in Research in Autism Spectrum Disorders > 79 (November 2020) . - 101680[article] Development and evaluation of a novel caregiver-report tool to assess barriers to physical healthcare for people on the autism spectrum [Texte imprimé et/ou numérique] / C. WALSH, Auteur ; S. LYDON, Auteur ; A. HEHIR, Auteur ; P. O’CONNOR, Auteur . - 101680.
Langues : Anglais (eng)
in Research in Autism Spectrum Disorders > 79 (November 2020) . - 101680
Mots-clés : Autism spectrum disorder Healthcare access Reasonable adjustments Healthcare equity Healthcare disparities Health Index. décimale : PER Périodiques Résumé : Introduction People on the autism spectrum often experience poorer health than the general population despite higher engagement with the health services. This suggests a disparity in the accessibility of appropriate healthcare for autistic individuals. To improve access, barriers the autism community experience in healthcare first need to be identified. This paper aimed to: 1) develop and evaluate a caregiver-report tool; 2) identify barriers to physical healthcare for autistic individuals; and 3) identify potential contributing factors. Methods A previously established taxonomy of barriers to healthcare for autistic individuals informed the development of the tool; this was then distributed to caregivers of autistic adults and children. Exploratory factor analysis (EFA) assessed validity and reliability of the tool. Multiple Regressions were performed to identify predictors of barriers. Results In total, caregivers of 194 autistic children or adults participated in the study. The EFA produced four factors: 1) patient-level barriers; 2) healthcare provider-level (HCP) barriers; 3) healthcare system-level barriers; and 4) barriers related to managing healthcare. The greatest barriers included difficulties with identifying/reporting symptoms (endorsed by 62.4% of participants); difficulties handling the waiting area (60.3% of participants); and a lack of HCP knowledge regarding autism (52.1% of participants). Autism severity, general adjustment problems, anxiety, age and having unmet needs predicted the frequency and/or severity of barriers. Conclusions A tool that allows assessment of patient-, HCP-, and system-level barriers to healthcare was developed and evaluated. Patient-level barriers appear to occur frequently and pose substantial challenges. This tool will help identify areas most in need of intervention and support intervention evaluation. En ligne : https://doi.org/10.1016/j.rasd.2020.101680 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=434 Adaptive Behavior Moderates Health-Related Pathways in Children with Autism Spectrum Disorder / Emily BREMER in Journal of Autism and Developmental Disorders, 50-2 (February 2020)
PermalinkCaregiver perspectives, experiences and service satisfaction, and health service utilization among families of children with developmental disorders at a tertiary center in a low-resource setting / Kirsten A. DONALD in Research in Autism Spectrum Disorders, 110 (February 2024)
PermalinkChildhood behavior problems and health at midlife: 35-year follow-up of a Scottish birth cohort / Sophie VON STUMM in Journal of Child Psychology and Psychiatry, 52-9 (September 2011)
PermalinkEmotional intelligence modulates cortisol awakening response and self-reported health in caregivers of people with autism spectrum disorders / N. RUIZ-ROBLEDILLO in Research in Autism Spectrum Disorders, 8-11 (November 2014)
PermalinkA matter of time: The necessity of temporal language in research on health conditions that present with autism spectrum disorder / E. RUBENSTEIN in Autism Research, 12-1 (January 2019)
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