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"I Don't Do Much Without Researching Things Myself": A Mixed Methods Study Exploring the Role of Parent Health Literacy in Autism Services Use for Young Children / Olivia J. LINDLY in Journal of Autism and Developmental Disorders, 52-8 (August 2022)
[article]
Titre : "I Don't Do Much Without Researching Things Myself": A Mixed Methods Study Exploring the Role of Parent Health Literacy in Autism Services Use for Young Children Type de document : Texte imprimé et/ou numérique Auteurs : Olivia J. LINDLY, Auteur ; Jacqueline CABRAL, Auteur ; Ruqayah MOHAMMED, Auteur ; Ivonne GARBER, Auteur ; Kamila B. MISTRY, Auteur ; Karen A. KUHLTHAU, Auteur Article en page(s) : p.3598-3611 Langues : Anglais (eng) Mots-clés : Autism Spectrum Disorder Autistic Disorder/diagnosis/therapy Child Child, Preschool Educational Status Health Literacy Humans Parents/education Autism Children Decision-making Health literacy Mixed methods Parents Services use United States interests to disclose. Index. décimale : PER Périodiques Résumé : Little is known about how parent health literacy contributes to health-related outcomes for children with autism. This mixed-methods study included 82 U.S. parents of a child with autism 2-5Â years-old and sought to describe (1) health literacy dimensions, (2) how health literacy influences services use, and (3) health literacy improvement strategies. Results showed: autism information was accessed from multiple sources; understanding autism information involved "doing your own research"; autism information empowered decision-making; health literacy facilitated behavioral services use; health literacy influenced medication use; family and system characteristics also affected services use; autism education remains needed; services information is needed across the diagnostic odyssey; and greater scientific information accessibility would increase uptake. Findings demonstrate how parent health literacy affects services use. En ligne : http://dx.doi.org/10.1007/s10803-021-05240-0 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=485
in Journal of Autism and Developmental Disorders > 52-8 (August 2022) . - p.3598-3611[article] "I Don't Do Much Without Researching Things Myself": A Mixed Methods Study Exploring the Role of Parent Health Literacy in Autism Services Use for Young Children [Texte imprimé et/ou numérique] / Olivia J. LINDLY, Auteur ; Jacqueline CABRAL, Auteur ; Ruqayah MOHAMMED, Auteur ; Ivonne GARBER, Auteur ; Kamila B. MISTRY, Auteur ; Karen A. KUHLTHAU, Auteur . - p.3598-3611.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 52-8 (August 2022) . - p.3598-3611
Mots-clés : Autism Spectrum Disorder Autistic Disorder/diagnosis/therapy Child Child, Preschool Educational Status Health Literacy Humans Parents/education Autism Children Decision-making Health literacy Mixed methods Parents Services use United States interests to disclose. Index. décimale : PER Périodiques Résumé : Little is known about how parent health literacy contributes to health-related outcomes for children with autism. This mixed-methods study included 82 U.S. parents of a child with autism 2-5Â years-old and sought to describe (1) health literacy dimensions, (2) how health literacy influences services use, and (3) health literacy improvement strategies. Results showed: autism information was accessed from multiple sources; understanding autism information involved "doing your own research"; autism information empowered decision-making; health literacy facilitated behavioral services use; health literacy influenced medication use; family and system characteristics also affected services use; autism education remains needed; services information is needed across the diagnostic odyssey; and greater scientific information accessibility would increase uptake. Findings demonstrate how parent health literacy affects services use. En ligne : http://dx.doi.org/10.1007/s10803-021-05240-0 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=485 Early Identification and Connection to Services Among Urban Parents Who Have Low Income and Low-Literacy Skills / Peggy A. GALLAGHER in Focus on Autism and Other Developmental Disabilities, 34-2 (June 2019)
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Titre : Early Identification and Connection to Services Among Urban Parents Who Have Low Income and Low-Literacy Skills Type de document : Texte imprimé et/ou numérique Auteurs : Peggy A. GALLAGHER, Auteur ; Daphne GREENBERG, Auteur ; Jonathan M. CAMPBELL, Auteur ; Zolinda STONEMAN, Auteur ; Iris Z. FEINBERG, Auteur Article en page(s) : p.97-106 Langues : Anglais (eng) Mots-clés : health literacy child development parenting milestones low literacy Index. décimale : PER Périodiques Résumé : Young children from parents with low income and low-literacy skills are often late in being diagnosed with developmental disabilities. To try to understand this phenomenon, we conducted six focus groups with 17 parents of low income with low-literacy skills living in an urban area who had children between 6 months and 4 years of age. Parents were asked how they access general information about child development and parenting resources. They were also probed about their experiences learning about their specific children’s development. Their feedback was also sought on the Centers for Disease Control and Prevention’s Learn the Signs Act Early materials. Results highlighted the resourcefulness of the parents to find information and the difficulties they had with printed information. Their focus group responses indicate the need for agencies to think more broadly about where to provide information for parents and the need to utilize easy-to-read printed materials. En ligne : http://dx.doi.org/10.1177/1088357618794913 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=397
in Focus on Autism and Other Developmental Disabilities > 34-2 (June 2019) . - p.97-106[article] Early Identification and Connection to Services Among Urban Parents Who Have Low Income and Low-Literacy Skills [Texte imprimé et/ou numérique] / Peggy A. GALLAGHER, Auteur ; Daphne GREENBERG, Auteur ; Jonathan M. CAMPBELL, Auteur ; Zolinda STONEMAN, Auteur ; Iris Z. FEINBERG, Auteur . - p.97-106.
Langues : Anglais (eng)
in Focus on Autism and Other Developmental Disabilities > 34-2 (June 2019) . - p.97-106
Mots-clés : health literacy child development parenting milestones low literacy Index. décimale : PER Périodiques Résumé : Young children from parents with low income and low-literacy skills are often late in being diagnosed with developmental disabilities. To try to understand this phenomenon, we conducted six focus groups with 17 parents of low income with low-literacy skills living in an urban area who had children between 6 months and 4 years of age. Parents were asked how they access general information about child development and parenting resources. They were also probed about their experiences learning about their specific children’s development. Their feedback was also sought on the Centers for Disease Control and Prevention’s Learn the Signs Act Early materials. Results highlighted the resourcefulness of the parents to find information and the difficulties they had with printed information. Their focus group responses indicate the need for agencies to think more broadly about where to provide information for parents and the need to utilize easy-to-read printed materials. En ligne : http://dx.doi.org/10.1177/1088357618794913 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=397 Parental Risk Literacy is Related to Quality of Life in Spanish Families of Children with Autism Spectrum Disorder / D. GARRIDO in Journal of Autism and Developmental Disorders, 51-7 (July 2021)
[article]
Titre : Parental Risk Literacy is Related to Quality of Life in Spanish Families of Children with Autism Spectrum Disorder Type de document : Texte imprimé et/ou numérique Auteurs : D. GARRIDO, Auteur ; D. PETROVA, Auteur ; E. COKELY, Auteur ; Gloria CARBALLO, Auteur ; R. GARCIA-RETAMERO, Auteur Article en page(s) : p.2475-2484 Langues : Anglais (eng) Mots-clés : Adult Autism Spectrum Disorder/psychology Case-Control Studies Family/psychology Female Health Literacy Humans Male Middle Aged Parenting/psychology Parents Quality of Life Social Support Autism spectrum disorder Numeracy Quality of life Risk literacy Index. décimale : PER Périodiques Résumé : Families of children with autism spectrum disorder (ASD) often experience much more negative perceptions of their family quality of life (FQoL). To investigate key factors that may shape these experiences, we conducted a case-control study of sixty-one Spanish families (29 with a child with ASD) using a broad psychosocial assessment (e.g., ASD severity, social support, demographics), including the first direct test of the relationship between FQoL and parental risk literacy (i.e., the ability to evaluate and understand risk, as measured by numeracy). Results revealed that numeracy was associated with differences in perceived FQoL among families of children with ASD (R(2)?=?.10), a finding that held across several models statistically controlling for the influence of other variables. Findings suggest that parental risk literacy skills may generally be associated with differences in decision making vulnerabilities (e.g., risk evaluation and interpretation) that influence family outcomes including FQoL. En ligne : http://dx.doi.org/10.1007/s10803-020-04733-8 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=452
in Journal of Autism and Developmental Disorders > 51-7 (July 2021) . - p.2475-2484[article] Parental Risk Literacy is Related to Quality of Life in Spanish Families of Children with Autism Spectrum Disorder [Texte imprimé et/ou numérique] / D. GARRIDO, Auteur ; D. PETROVA, Auteur ; E. COKELY, Auteur ; Gloria CARBALLO, Auteur ; R. GARCIA-RETAMERO, Auteur . - p.2475-2484.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 51-7 (July 2021) . - p.2475-2484
Mots-clés : Adult Autism Spectrum Disorder/psychology Case-Control Studies Family/psychology Female Health Literacy Humans Male Middle Aged Parenting/psychology Parents Quality of Life Social Support Autism spectrum disorder Numeracy Quality of life Risk literacy Index. décimale : PER Périodiques Résumé : Families of children with autism spectrum disorder (ASD) often experience much more negative perceptions of their family quality of life (FQoL). To investigate key factors that may shape these experiences, we conducted a case-control study of sixty-one Spanish families (29 with a child with ASD) using a broad psychosocial assessment (e.g., ASD severity, social support, demographics), including the first direct test of the relationship between FQoL and parental risk literacy (i.e., the ability to evaluate and understand risk, as measured by numeracy). Results revealed that numeracy was associated with differences in perceived FQoL among families of children with ASD (R(2)?=?.10), a finding that held across several models statistically controlling for the influence of other variables. Findings suggest that parental risk literacy skills may generally be associated with differences in decision making vulnerabilities (e.g., risk evaluation and interpretation) that influence family outcomes including FQoL. En ligne : http://dx.doi.org/10.1007/s10803-020-04733-8 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=452 Strategies for Disseminating Information on Biomedical Research on Autism to Hispanic Parents / Clara M. LAJONCHERE in Journal of Autism and Developmental Disorders, 46-3 (March 2016)
[article]
Titre : Strategies for Disseminating Information on Biomedical Research on Autism to Hispanic Parents Type de document : Texte imprimé et/ou numérique Auteurs : Clara M. LAJONCHERE, Auteur ; Barbara Y. WHEELER, Auteur ; Thomas W. VALENTE, Auteur ; Cary KREUTZER, Auteur ; Aron MUNSON, Auteur ; Shrikanth NARAYANAN, Auteur ; Abe KAZEMZADEH, Auteur ; Roxana CRUZ, Auteur ; Irene MARTINEZ, Auteur ; Sheree M. SCHRAGER, Auteur ; Lisa SCHWEITZER, Auteur ; Tara CHKLOVSKI, Auteur ; Darryl HWANG, Auteur Article en page(s) : p.1038-1050 Langues : Anglais (eng) Mots-clés : Biomedical research on Autism Hispanic/Latino Health literacy Racial disparities Index. décimale : PER Périodiques Résumé : Low income Hispanic families experience multiple barriers to accessing evidence-based information on Autism Spectrum Disorders (ASD). This study utilized a mixed-strategy intervention to create access to information in published bio-medical research articles on ASD by distilling the content into parent-friendly English- and Spanish-language ASD Science Briefs and presenting them to participants using two socially-oriented dissemination methods. There was a main effect for short-term knowledge gains associated with the Science Briefs but no effect for the dissemination method. After 5 months, participants reported utilizing the information learned and 90 % wanted to read more Science Briefs. These preliminary findings highlight the potential benefits of distilling biomedical research articles on ASD into parent-friendly educational products for currently underserved Hispanic parents. En ligne : http://dx.doi.org/10.1007/s10803-015-2649-5 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=281
in Journal of Autism and Developmental Disorders > 46-3 (March 2016) . - p.1038-1050[article] Strategies for Disseminating Information on Biomedical Research on Autism to Hispanic Parents [Texte imprimé et/ou numérique] / Clara M. LAJONCHERE, Auteur ; Barbara Y. WHEELER, Auteur ; Thomas W. VALENTE, Auteur ; Cary KREUTZER, Auteur ; Aron MUNSON, Auteur ; Shrikanth NARAYANAN, Auteur ; Abe KAZEMZADEH, Auteur ; Roxana CRUZ, Auteur ; Irene MARTINEZ, Auteur ; Sheree M. SCHRAGER, Auteur ; Lisa SCHWEITZER, Auteur ; Tara CHKLOVSKI, Auteur ; Darryl HWANG, Auteur . - p.1038-1050.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 46-3 (March 2016) . - p.1038-1050
Mots-clés : Biomedical research on Autism Hispanic/Latino Health literacy Racial disparities Index. décimale : PER Périodiques Résumé : Low income Hispanic families experience multiple barriers to accessing evidence-based information on Autism Spectrum Disorders (ASD). This study utilized a mixed-strategy intervention to create access to information in published bio-medical research articles on ASD by distilling the content into parent-friendly English- and Spanish-language ASD Science Briefs and presenting them to participants using two socially-oriented dissemination methods. There was a main effect for short-term knowledge gains associated with the Science Briefs but no effect for the dissemination method. After 5 months, participants reported utilizing the information learned and 90 % wanted to read more Science Briefs. These preliminary findings highlight the potential benefits of distilling biomedical research articles on ASD into parent-friendly educational products for currently underserved Hispanic parents. En ligne : http://dx.doi.org/10.1007/s10803-015-2649-5 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=281