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Health-related quality of life and its determinants among adults with autism / Rahul KHANNA in Research in Autism Spectrum Disorders, 8-3 (March 2014)
[article]
Titre : Health-related quality of life and its determinants among adults with autism Type de document : Texte imprimé et/ou numérique Auteurs : Rahul KHANNA, Auteur ; Krutika JARIWALA-PARIKH, Auteur ; Donna WEST-STRUM, Auteur ; Rohan MAHABALESHWARKAR, Auteur Article en page(s) : p.157-167 Langues : Anglais (eng) Mots-clés : Autism Adults Health-related quality of life Social support Coping Index. décimale : PER Périodiques Résumé : Abstract The purpose of this study was to determine health-related quality of life (HRQOL) among adults with autism, and compare it to the HRQOL of the general adult population in the United States (US). Factors predicting HRQOL of adults with autism were also identified. A cross-sectional online survey was conducted to gather study information. From adults with autism registered with the Interactive Autism Network (IAN), those aged 18 years and above and having the capacity to self-report were identified and approached for study participation. The final sample included 291 adults with autism. One-way t-test revealed adults with autism to have significantly lower physical and mental HRQOL than their counterparts in the US population. Using linear regression analysis, modifiable factors including social support and coping along with other socio-demographic and medial characteristics were identified as significant predictors of physical and mental HRQOL. Greater perceived adequacy of social support from friends and family was associated with better HRQOL, while greater use of maladaptive coping was associated with lower HRQOL. Clinicians and other health interventionist should consider assessing these factors among adults with autism, and provide necessary capabilities to these adults with the aim of improving their HRQOL. En ligne : http://dx.doi.org/10.1016/j.rasd.2013.11.003 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=224
in Research in Autism Spectrum Disorders > 8-3 (March 2014) . - p.157-167[article] Health-related quality of life and its determinants among adults with autism [Texte imprimé et/ou numérique] / Rahul KHANNA, Auteur ; Krutika JARIWALA-PARIKH, Auteur ; Donna WEST-STRUM, Auteur ; Rohan MAHABALESHWARKAR, Auteur . - p.157-167.
Langues : Anglais (eng)
in Research in Autism Spectrum Disorders > 8-3 (March 2014) . - p.157-167
Mots-clés : Autism Adults Health-related quality of life Social support Coping Index. décimale : PER Périodiques Résumé : Abstract The purpose of this study was to determine health-related quality of life (HRQOL) among adults with autism, and compare it to the HRQOL of the general adult population in the United States (US). Factors predicting HRQOL of adults with autism were also identified. A cross-sectional online survey was conducted to gather study information. From adults with autism registered with the Interactive Autism Network (IAN), those aged 18 years and above and having the capacity to self-report were identified and approached for study participation. The final sample included 291 adults with autism. One-way t-test revealed adults with autism to have significantly lower physical and mental HRQOL than their counterparts in the US population. Using linear regression analysis, modifiable factors including social support and coping along with other socio-demographic and medial characteristics were identified as significant predictors of physical and mental HRQOL. Greater perceived adequacy of social support from friends and family was associated with better HRQOL, while greater use of maladaptive coping was associated with lower HRQOL. Clinicians and other health interventionist should consider assessing these factors among adults with autism, and provide necessary capabilities to these adults with the aim of improving their HRQOL. En ligne : http://dx.doi.org/10.1016/j.rasd.2013.11.003 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=224 Health-related quality of life for children with ASD: Associations with behavioral characteristics / Karen A. KUHLTHAU in Research in Autism Spectrum Disorders, 7-9 (September 2013)
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Titre : Health-related quality of life for children with ASD: Associations with behavioral characteristics Type de document : Texte imprimé et/ou numérique Auteurs : Karen A. KUHLTHAU, Auteur ; Erica A. KOVACS, Auteur ; Trevor A. HALL, Auteur ; Traci CLEMMONS, Auteur ; Felice ORLICH, Auteur ; Jennifer DELAHAYE, Auteur ; Darryn SIKORA, Auteur Article en page(s) : p.1035-1042 Langues : Anglais (eng) Mots-clés : Health-related quality of life Behavior Index. décimale : PER Périodiques Résumé : Abstract This paper examines health-related quality of life (HRQoL) of children age 6–11 years with an autism spectrum disorder (ASD) using the Child Health and Illness Profile – Child Edition (CHIP–CE). We further examine associations of HRQoL scores with measures of behavior using regression models. Overall HRQoL scores are lower than those for normative samples. We find that both externalizing and internalizing behaviors (measured with the Child Behavior Checklist) are correlated with HRQoL as are several of the subscales of the aberrant behavior checklist. These results suggest that some potentially modifiable aspects of ASD, in particular ASD-related and aberrant behaviors, are associated with HRQoL. These associations are suggestive of the potential for improvements in behaviors in some domains having the potential to improve HRQoL. Future studies should determine whether improvements in behaviors are associated with improvements in HRQoL. En ligne : http://dx.doi.org/10.1016/j.rasd.2013.04.006 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=210
in Research in Autism Spectrum Disorders > 7-9 (September 2013) . - p.1035-1042[article] Health-related quality of life for children with ASD: Associations with behavioral characteristics [Texte imprimé et/ou numérique] / Karen A. KUHLTHAU, Auteur ; Erica A. KOVACS, Auteur ; Trevor A. HALL, Auteur ; Traci CLEMMONS, Auteur ; Felice ORLICH, Auteur ; Jennifer DELAHAYE, Auteur ; Darryn SIKORA, Auteur . - p.1035-1042.
Langues : Anglais (eng)
in Research in Autism Spectrum Disorders > 7-9 (September 2013) . - p.1035-1042
Mots-clés : Health-related quality of life Behavior Index. décimale : PER Périodiques Résumé : Abstract This paper examines health-related quality of life (HRQoL) of children age 6–11 years with an autism spectrum disorder (ASD) using the Child Health and Illness Profile – Child Edition (CHIP–CE). We further examine associations of HRQoL scores with measures of behavior using regression models. Overall HRQoL scores are lower than those for normative samples. We find that both externalizing and internalizing behaviors (measured with the Child Behavior Checklist) are correlated with HRQoL as are several of the subscales of the aberrant behavior checklist. These results suggest that some potentially modifiable aspects of ASD, in particular ASD-related and aberrant behaviors, are associated with HRQoL. These associations are suggestive of the potential for improvements in behaviors in some domains having the potential to improve HRQoL. Future studies should determine whether improvements in behaviors are associated with improvements in HRQoL. En ligne : http://dx.doi.org/10.1016/j.rasd.2013.04.006 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=210 Health-related quality of life in children with autism spectrum disorders and children with developmental language disorders / Catherine COALES in Autism & Developmental Language Impairments, 4 (January-December 2019)
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Titre : Health-related quality of life in children with autism spectrum disorders and children with developmental language disorders Type de document : Texte imprimé et/ou numérique Auteurs : Catherine COALES, Auteur ; Natalie HEANEY, Auteur ; Jessie RICKETTS, Auteur ; Julie E. DOCKRELL, Auteur ; Geoff LINDSAY, Auteur ; Olympia PALIKARA, Auteur ; Tony CHARMAN, Auteur Langues : Anglais (eng) Mots-clés : Language impairment autism spectrum disorders emotional and behavioural problems health-related quality of life well-being Index. décimale : PER Périodiques Résumé : Background and aimsThere is a paucity of literature investigating health-related quality of life in neurodevelopmental populations including children with developmental language disorders and children with autism spectrum disorder. Health-related quality of life in these two groups remains poorly understood. Furthermore, studies have typically relied on reports from caregivers and teachers rather than using self-report measures. The aim of the current study is to compare the levels and profiles of self-reported health-related quality of life of children with developmental language disorders and children with autism spectrum disorder.MethodsParticipants comprised 114 7-to-13-year-old children with developmental language disorders (n=63) and children with autism spectrum disorder (n=51) attending mainstream school. Self-reported health-related quality of life was measured using the KIDSCREEN-52. We also collected standardised measures of receptive language, autism spectrum disorder symptoms, nonverbal IQ and emotional and behavioural problems.ResultsChildren with developmental language disorders reported health-related quality of life commensurate with normative ranges, except for 2 of the 10 dimensions; the Moods and Emotions domain and the Social acceptance/bullying domain, which were below norms. Children with autism spectrum disorder reported significantly lower health-related quality of life compared to norms and the developmental language disorders group. However, when the effects of non-verbal ability and language ? on which the groups were not matched ? were covaried most group differences fell to non-significance or disappeared. Child characteristics showed few associations with dimensions of health-related quality of life across groups.ConclusionsChildren with autism spectrum disorder may be particularly vulnerable to poorer health-related quality of life and the relevant professionals need to be aware of this. Children with developmental language disorders exhibit a profile of health-related quality of life more in-line with average ranges. However, certain domains warrant monitoring and may benefit from intervention. Many of the between-group differences in self-reported health-related quality of life disappeared when non-verbal and language ability were covaried, though neither of the covariates was systematically related to scores. Other within-child factors such as emotional understanding and competence should be explored in future studies.ImplicationsFurther research into child and contextual factors may elucidate risk or protective factors for health-related quality of life in children with neurodevelopmental disorders. En ligne : https://doi.org/10.1177/2396941519851225 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=409
in Autism & Developmental Language Impairments > 4 (January-December 2019)[article] Health-related quality of life in children with autism spectrum disorders and children with developmental language disorders [Texte imprimé et/ou numérique] / Catherine COALES, Auteur ; Natalie HEANEY, Auteur ; Jessie RICKETTS, Auteur ; Julie E. DOCKRELL, Auteur ; Geoff LINDSAY, Auteur ; Olympia PALIKARA, Auteur ; Tony CHARMAN, Auteur.
Langues : Anglais (eng)
in Autism & Developmental Language Impairments > 4 (January-December 2019)
Mots-clés : Language impairment autism spectrum disorders emotional and behavioural problems health-related quality of life well-being Index. décimale : PER Périodiques Résumé : Background and aimsThere is a paucity of literature investigating health-related quality of life in neurodevelopmental populations including children with developmental language disorders and children with autism spectrum disorder. Health-related quality of life in these two groups remains poorly understood. Furthermore, studies have typically relied on reports from caregivers and teachers rather than using self-report measures. The aim of the current study is to compare the levels and profiles of self-reported health-related quality of life of children with developmental language disorders and children with autism spectrum disorder.MethodsParticipants comprised 114 7-to-13-year-old children with developmental language disorders (n=63) and children with autism spectrum disorder (n=51) attending mainstream school. Self-reported health-related quality of life was measured using the KIDSCREEN-52. We also collected standardised measures of receptive language, autism spectrum disorder symptoms, nonverbal IQ and emotional and behavioural problems.ResultsChildren with developmental language disorders reported health-related quality of life commensurate with normative ranges, except for 2 of the 10 dimensions; the Moods and Emotions domain and the Social acceptance/bullying domain, which were below norms. Children with autism spectrum disorder reported significantly lower health-related quality of life compared to norms and the developmental language disorders group. However, when the effects of non-verbal ability and language ? on which the groups were not matched ? were covaried most group differences fell to non-significance or disappeared. Child characteristics showed few associations with dimensions of health-related quality of life across groups.ConclusionsChildren with autism spectrum disorder may be particularly vulnerable to poorer health-related quality of life and the relevant professionals need to be aware of this. Children with developmental language disorders exhibit a profile of health-related quality of life more in-line with average ranges. However, certain domains warrant monitoring and may benefit from intervention. Many of the between-group differences in self-reported health-related quality of life disappeared when non-verbal and language ability were covaried, though neither of the covariates was systematically related to scores. Other within-child factors such as emotional understanding and competence should be explored in future studies.ImplicationsFurther research into child and contextual factors may elucidate risk or protective factors for health-related quality of life in children with neurodevelopmental disorders. En ligne : https://doi.org/10.1177/2396941519851225 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=409 Health-related quality of life in children with high-functioning autism / Marie-Christine POTVIN in Autism, 19-1 (January 2015)
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Titre : Health-related quality of life in children with high-functioning autism Type de document : Texte imprimé et/ou numérique Auteurs : Marie-Christine POTVIN, Auteur ; Laurie SNIDER, Auteur ; Patricia A. PRELOCK, Auteur ; Sharon WOOD-DAUPHINEE, Auteur ; Eva KEHAYIA, Auteur Année de publication : 2015 Article en page(s) : p.14-19 Langues : Anglais (eng) Mots-clés : Asperger disorder autism autistic disorder health-related quality of life pervasive developmental disorder; Index. décimale : PER Périodiques Résumé : The health-related quality of life of school-aged children with high-functioning autism is poorly understood. The objectives of this study were to compare the health-related quality of life of children with high-functioning autism to that of typically developing peers and to compare child-self and parent-proxy reports of health-related quality of life of children. A cross-sectional study of children with high-functioning autism (n = 30) and peers (n = 31) was conducted using the Pediatric Quality of Life Inventory 4.0 Generic Core Scales. Children with high-functioning autism had significantly poorer health-related quality of life than peers whether reported by themselves (p < .001) or their parents (p < .001), although disagreement (intra-class coefficient = ?.075) between children and parental scores suggested variance in points of view. This study specifically investigated health-related quality of life in children with high-functioning autism as compared to a sample of peers, from the child’s perspective. It strengthens earlier findings that children with high-functioning autism experience poorer health-related quality of life than those without this disorder and points to the importance of clinicians working with families to identify areas in a child’s life that promote or hinder their sense of well-being. En ligne : http://dx.doi.org/10.1177/1362361313509730 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=245
in Autism > 19-1 (January 2015) . - p.14-19[article] Health-related quality of life in children with high-functioning autism [Texte imprimé et/ou numérique] / Marie-Christine POTVIN, Auteur ; Laurie SNIDER, Auteur ; Patricia A. PRELOCK, Auteur ; Sharon WOOD-DAUPHINEE, Auteur ; Eva KEHAYIA, Auteur . - 2015 . - p.14-19.
Langues : Anglais (eng)
in Autism > 19-1 (January 2015) . - p.14-19
Mots-clés : Asperger disorder autism autistic disorder health-related quality of life pervasive developmental disorder; Index. décimale : PER Périodiques Résumé : The health-related quality of life of school-aged children with high-functioning autism is poorly understood. The objectives of this study were to compare the health-related quality of life of children with high-functioning autism to that of typically developing peers and to compare child-self and parent-proxy reports of health-related quality of life of children. A cross-sectional study of children with high-functioning autism (n = 30) and peers (n = 31) was conducted using the Pediatric Quality of Life Inventory 4.0 Generic Core Scales. Children with high-functioning autism had significantly poorer health-related quality of life than peers whether reported by themselves (p < .001) or their parents (p < .001), although disagreement (intra-class coefficient = ?.075) between children and parental scores suggested variance in points of view. This study specifically investigated health-related quality of life in children with high-functioning autism as compared to a sample of peers, from the child’s perspective. It strengthens earlier findings that children with high-functioning autism experience poorer health-related quality of life than those without this disorder and points to the importance of clinicians working with families to identify areas in a child’s life that promote or hinder their sense of well-being. En ligne : http://dx.doi.org/10.1177/1362361313509730 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=245 Self-reported Health-Related Quality of Life (HRQOL) and Anxiety Among Greek School-Age Siblings of Individuals with Autism Spectrum Disorders (ASD) in Relation to Parental Mental Health and Social Support / Evangelia KOUKOURIKI in Journal of Autism and Developmental Disorders, 50-8 (August 2020)
[article]
Titre : Self-reported Health-Related Quality of Life (HRQOL) and Anxiety Among Greek School-Age Siblings of Individuals with Autism Spectrum Disorders (ASD) in Relation to Parental Mental Health and Social Support Type de document : Texte imprimé et/ou numérique Auteurs : Evangelia KOUKOURIKI, Auteur ; Sryridon-Georgios SOULIS, Auteur Article en page(s) : p.2913-2930 Langues : Anglais (eng) Mots-clés : Anxiety Autism spectrum disorders Health-related quality of life School-age Siblings Index. décimale : PER Périodiques Résumé : Health-Related Quality of Life (HRQOL) and anxiety were measured in 233 school-age siblings of individuals with Autism Spectrum Disorders (ASD) and siblings of Typically Developing (TD) children in Greece. The aim of the study was to investigate for any association between siblings' HRQOL or anxiety and parental mental health, perceived social support as well as major demographic factors. It was found that the disability group (ASD-sibs) showed elevated anxiety levels and poorer HRQOL than controls. In hierarchical multiple regression models, the anxiety of ASD-sibs was significantly associated with parental anxiety independent of parental perceived social support and demographic factors, whereas the HRQOL of ASD-sibs was associated with perceived social support independent of parental physical and mental health and demographic factors. En ligne : http://dx.doi.org/10.1007/s10803-020-04395-6 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=428
in Journal of Autism and Developmental Disorders > 50-8 (August 2020) . - p.2913-2930[article] Self-reported Health-Related Quality of Life (HRQOL) and Anxiety Among Greek School-Age Siblings of Individuals with Autism Spectrum Disorders (ASD) in Relation to Parental Mental Health and Social Support [Texte imprimé et/ou numérique] / Evangelia KOUKOURIKI, Auteur ; Sryridon-Georgios SOULIS, Auteur . - p.2913-2930.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 50-8 (August 2020) . - p.2913-2930
Mots-clés : Anxiety Autism spectrum disorders Health-related quality of life School-age Siblings Index. décimale : PER Périodiques Résumé : Health-Related Quality of Life (HRQOL) and anxiety were measured in 233 school-age siblings of individuals with Autism Spectrum Disorders (ASD) and siblings of Typically Developing (TD) children in Greece. The aim of the study was to investigate for any association between siblings' HRQOL or anxiety and parental mental health, perceived social support as well as major demographic factors. It was found that the disability group (ASD-sibs) showed elevated anxiety levels and poorer HRQOL than controls. In hierarchical multiple regression models, the anxiety of ASD-sibs was significantly associated with parental anxiety independent of parental perceived social support and demographic factors, whereas the HRQOL of ASD-sibs was associated with perceived social support independent of parental physical and mental health and demographic factors. En ligne : http://dx.doi.org/10.1007/s10803-020-04395-6 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=428 Assessment of Health-Related Quality of Life Among Primary Caregivers of Children with Autism Spectrum Disorders / Rahul KHANNA in Journal of Autism and Developmental Disorders, 41-9 (September 2011)
PermalinkAssociations of quality of life with health-related characteristics among children with autism / Karen A. KUHLTHAU in Autism, 22-7 (October 2018)
PermalinkCaring for Children with an Autism Spectrum Disorder: Factors Associating with Health- and Care-Related Quality of Life of the Caregivers / Leontine W. TEN HOOPEN in Journal of Autism and Developmental Disorders, 52-11 (November 2022)
PermalinkChildren with an Autism Spectrum Disorder and Their Caregivers: Capturing Health-Related and Care-Related Quality of Life / Leontine W. TEN HOOPEN in Journal of Autism and Developmental Disorders, 50-1 (January 2020)
PermalinkCorrelates of health-related quality of life and the perception of its importance in caregivers of children with autism / Li-Chen TUNG in Research in Autism Spectrum Disorders, 8-9 (September 2014)
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