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Brief Report: Initial Evidence of Depressive Symptom Disparities among Black and White Transition Age Autistic Youth / Ed-Dee G. WILLIAMS in Journal of Autism and Developmental Disorders, 52-8 (August 2022)
[article]
Titre : Brief Report: Initial Evidence of Depressive Symptom Disparities among Black and White Transition Age Autistic Youth Type de document : Texte imprimé et/ou numérique Auteurs : Ed-Dee G. WILLIAMS, Auteur ; Matthew J. SMITH, Auteur ; Kari SHERWOOD, Auteur ; Temple S. LOVELACE, Auteur ; Lauren BISHOP, Auteur Article en page(s) : p.3740-3745 Langues : Anglais (eng) Mots-clés : Adolescent African Americans Autism Spectrum Disorder Autistic Disorder Depression Healthcare Disparities Humans Whites Index. décimale : PER Périodiques Résumé : The lived experience of being autistic and being Black in America both put youth at higher risk for developing depressive symptoms. However, there is a dearth of research examining potential disparities in autistic youth with depression. The current study examined disparities in depressive symptoms among a sample of Black and White autistic youth between the ages of 16 and 26 years old. Using analysis of covariance this study found that the Black autistic youth had significantly higher depressive symptoms than White autistic youth (m = 7.3, sd = 4.4 vs. m = 3.8, sd = 3.6; t = 2.6, p = 0.013). This study presents initial evidence of a significant racial disparity between Black and White autistic youth depressive symptoms. En ligne : http://dx.doi.org/10.1007/s10803-021-05242-y Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=485
in Journal of Autism and Developmental Disorders > 52-8 (August 2022) . - p.3740-3745[article] Brief Report: Initial Evidence of Depressive Symptom Disparities among Black and White Transition Age Autistic Youth [Texte imprimé et/ou numérique] / Ed-Dee G. WILLIAMS, Auteur ; Matthew J. SMITH, Auteur ; Kari SHERWOOD, Auteur ; Temple S. LOVELACE, Auteur ; Lauren BISHOP, Auteur . - p.3740-3745.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 52-8 (August 2022) . - p.3740-3745
Mots-clés : Adolescent African Americans Autism Spectrum Disorder Autistic Disorder Depression Healthcare Disparities Humans Whites Index. décimale : PER Périodiques Résumé : The lived experience of being autistic and being Black in America both put youth at higher risk for developing depressive symptoms. However, there is a dearth of research examining potential disparities in autistic youth with depression. The current study examined disparities in depressive symptoms among a sample of Black and White autistic youth between the ages of 16 and 26 years old. Using analysis of covariance this study found that the Black autistic youth had significantly higher depressive symptoms than White autistic youth (m = 7.3, sd = 4.4 vs. m = 3.8, sd = 3.6; t = 2.6, p = 0.013). This study presents initial evidence of a significant racial disparity between Black and White autistic youth depressive symptoms. En ligne : http://dx.doi.org/10.1007/s10803-021-05242-y Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=485 Development and evaluation of a novel caregiver-report tool to assess barriers to physical healthcare for people on the autism spectrum / C. WALSH in Research in Autism Spectrum Disorders, 79 (November 2020)
[article]
Titre : Development and evaluation of a novel caregiver-report tool to assess barriers to physical healthcare for people on the autism spectrum Type de document : Texte imprimé et/ou numérique Auteurs : C. WALSH, Auteur ; S. LYDON, Auteur ; A. HEHIR, Auteur ; P. O’CONNOR, Auteur Article en page(s) : 101680 Langues : Anglais (eng) Mots-clés : Autism spectrum disorder Healthcare access Reasonable adjustments Healthcare equity Healthcare disparities Health Index. décimale : PER Périodiques Résumé : Introduction People on the autism spectrum often experience poorer health than the general population despite higher engagement with the health services. This suggests a disparity in the accessibility of appropriate healthcare for autistic individuals. To improve access, barriers the autism community experience in healthcare first need to be identified. This paper aimed to: 1) develop and evaluate a caregiver-report tool; 2) identify barriers to physical healthcare for autistic individuals; and 3) identify potential contributing factors. Methods A previously established taxonomy of barriers to healthcare for autistic individuals informed the development of the tool; this was then distributed to caregivers of autistic adults and children. Exploratory factor analysis (EFA) assessed validity and reliability of the tool. Multiple Regressions were performed to identify predictors of barriers. Results In total, caregivers of 194 autistic children or adults participated in the study. The EFA produced four factors: 1) patient-level barriers; 2) healthcare provider-level (HCP) barriers; 3) healthcare system-level barriers; and 4) barriers related to managing healthcare. The greatest barriers included difficulties with identifying/reporting symptoms (endorsed by 62.4% of participants); difficulties handling the waiting area (60.3% of participants); and a lack of HCP knowledge regarding autism (52.1% of participants). Autism severity, general adjustment problems, anxiety, age and having unmet needs predicted the frequency and/or severity of barriers. Conclusions A tool that allows assessment of patient-, HCP-, and system-level barriers to healthcare was developed and evaluated. Patient-level barriers appear to occur frequently and pose substantial challenges. This tool will help identify areas most in need of intervention and support intervention evaluation. En ligne : https://doi.org/10.1016/j.rasd.2020.101680 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=434
in Research in Autism Spectrum Disorders > 79 (November 2020) . - 101680[article] Development and evaluation of a novel caregiver-report tool to assess barriers to physical healthcare for people on the autism spectrum [Texte imprimé et/ou numérique] / C. WALSH, Auteur ; S. LYDON, Auteur ; A. HEHIR, Auteur ; P. O’CONNOR, Auteur . - 101680.
Langues : Anglais (eng)
in Research in Autism Spectrum Disorders > 79 (November 2020) . - 101680
Mots-clés : Autism spectrum disorder Healthcare access Reasonable adjustments Healthcare equity Healthcare disparities Health Index. décimale : PER Périodiques Résumé : Introduction People on the autism spectrum often experience poorer health than the general population despite higher engagement with the health services. This suggests a disparity in the accessibility of appropriate healthcare for autistic individuals. To improve access, barriers the autism community experience in healthcare first need to be identified. This paper aimed to: 1) develop and evaluate a caregiver-report tool; 2) identify barriers to physical healthcare for autistic individuals; and 3) identify potential contributing factors. Methods A previously established taxonomy of barriers to healthcare for autistic individuals informed the development of the tool; this was then distributed to caregivers of autistic adults and children. Exploratory factor analysis (EFA) assessed validity and reliability of the tool. Multiple Regressions were performed to identify predictors of barriers. Results In total, caregivers of 194 autistic children or adults participated in the study. The EFA produced four factors: 1) patient-level barriers; 2) healthcare provider-level (HCP) barriers; 3) healthcare system-level barriers; and 4) barriers related to managing healthcare. The greatest barriers included difficulties with identifying/reporting symptoms (endorsed by 62.4% of participants); difficulties handling the waiting area (60.3% of participants); and a lack of HCP knowledge regarding autism (52.1% of participants). Autism severity, general adjustment problems, anxiety, age and having unmet needs predicted the frequency and/or severity of barriers. Conclusions A tool that allows assessment of patient-, HCP-, and system-level barriers to healthcare was developed and evaluated. Patient-level barriers appear to occur frequently and pose substantial challenges. This tool will help identify areas most in need of intervention and support intervention evaluation. En ligne : https://doi.org/10.1016/j.rasd.2020.101680 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=434 Healthcare access and services use among US children with autism spectrum disorder / O. J. LINDLY in Autism, 23-6 (August 2019)
[article]
Titre : Healthcare access and services use among US children with autism spectrum disorder Type de document : Texte imprimé et/ou numérique Auteurs : O. J. LINDLY, Auteur ; Katharine E. ZUCKERMAN, Auteur ; Karen A. KUHLTHAU, Auteur Article en page(s) : p.1419-1430 Langues : Anglais (eng) Mots-clés : autism spectrum disorder emergency medical services ethnicity health services accessibility healthcare disparities preventive health services race socioeconomic status Index. décimale : PER Périodiques Résumé : This study aimed to determine associations of healthcare access problems with services use among US children with autism spectrum disorder. We analyzed 2011-2014 National Health Interview Survey data on 651 children with autism spectrum disorder aged 2-17 years. There were three measures of healthcare access problems: (1) delays accessing healthcare, (2) difficulty affording healthcare, and (3) trouble finding a primary care provider. There were five service use measures: (1) 4 office visits, (2) 1 well-child visit, (3) flu vaccine, (4) prescription medication, and (5) 1 emergency department visit. Multivariable regression models estimated associations of 1 healthcare access problem with each service use variable and effect modification by socioeconomic status and race and ethnicity. Twenty-nine percent of children with autism spectrum disorder had 1 healthcare access problem. Having 1 healthcare access problem was associated with lower adjusted odds of 1 well-child visit or prescription medication use but higher adjusted odds of 4 office visits or 1 emergency department visit. No significant association was found for flu vaccine. Associations of healthcare access problems with emergency department use were most pronounced for higher socioeconomic status and White, non-Hispanic subgroups. Intervention, such as insurance expansion, is needed to improve healthcare access for children with autism spectrum disorder. En ligne : http://dx.doi.org/10.1177/1362361318815237 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=403
in Autism > 23-6 (August 2019) . - p.1419-1430[article] Healthcare access and services use among US children with autism spectrum disorder [Texte imprimé et/ou numérique] / O. J. LINDLY, Auteur ; Katharine E. ZUCKERMAN, Auteur ; Karen A. KUHLTHAU, Auteur . - p.1419-1430.
Langues : Anglais (eng)
in Autism > 23-6 (August 2019) . - p.1419-1430
Mots-clés : autism spectrum disorder emergency medical services ethnicity health services accessibility healthcare disparities preventive health services race socioeconomic status Index. décimale : PER Périodiques Résumé : This study aimed to determine associations of healthcare access problems with services use among US children with autism spectrum disorder. We analyzed 2011-2014 National Health Interview Survey data on 651 children with autism spectrum disorder aged 2-17 years. There were three measures of healthcare access problems: (1) delays accessing healthcare, (2) difficulty affording healthcare, and (3) trouble finding a primary care provider. There were five service use measures: (1) 4 office visits, (2) 1 well-child visit, (3) flu vaccine, (4) prescription medication, and (5) 1 emergency department visit. Multivariable regression models estimated associations of 1 healthcare access problem with each service use variable and effect modification by socioeconomic status and race and ethnicity. Twenty-nine percent of children with autism spectrum disorder had 1 healthcare access problem. Having 1 healthcare access problem was associated with lower adjusted odds of 1 well-child visit or prescription medication use but higher adjusted odds of 4 office visits or 1 emergency department visit. No significant association was found for flu vaccine. Associations of healthcare access problems with emergency department use were most pronounced for higher socioeconomic status and White, non-Hispanic subgroups. Intervention, such as insurance expansion, is needed to improve healthcare access for children with autism spectrum disorder. En ligne : http://dx.doi.org/10.1177/1362361318815237 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=403 Understanding Racial and Ethnic Disparities in Autism-Related Service Use Among Medicaid-Enrolled Children / Lucy A. BILAVER in Journal of Autism and Developmental Disorders, 51-9 (September 2021)
[article]
Titre : Understanding Racial and Ethnic Disparities in Autism-Related Service Use Among Medicaid-Enrolled Children Type de document : Texte imprimé et/ou numérique Auteurs : Lucy A. BILAVER, Auteur ; S. A. SOBOTKA, Auteur ; D. S. MANDELL, Auteur Article en page(s) : p.3341-3355 Langues : Anglais (eng) Mots-clés : Autism Spectrum Disorder/therapy Autistic Disorder/therapy Child Ethnicity Healthcare Disparities Humans Medicaid Native Hawaiian or Other Pacific Islander United States Autism spectrum disorder Outpatient services Racial and ethnic disparities School-based services Index. décimale : PER Périodiques Résumé : Racial and ethnic disparities in the use of nine common autism-related services among Medicaid-enrolled children with autism spectrum disorder (ASD) were examined, distinguishing between school and other community-based outpatient settings. Using 2012 Medicaid Analytic Extract data, we identified 117,848 continuously enrolled children with ASD. Several racial and ethnic disparities were found, varying by geography. Black, Asian, and Native American/Pacific Islanders received fewer outpatient services compared with white children, but there was no disparity for Latinx children. Black and Asian children received more school-based services than white children. Disparities in case management/care coordination services were largest and present in each minority group. Geographic variation in receipt of services suggests targets for policy intervention to improve access for minorities with ASD. En ligne : http://dx.doi.org/10.1007/s10803-020-04797-6 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=453
in Journal of Autism and Developmental Disorders > 51-9 (September 2021) . - p.3341-3355[article] Understanding Racial and Ethnic Disparities in Autism-Related Service Use Among Medicaid-Enrolled Children [Texte imprimé et/ou numérique] / Lucy A. BILAVER, Auteur ; S. A. SOBOTKA, Auteur ; D. S. MANDELL, Auteur . - p.3341-3355.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 51-9 (September 2021) . - p.3341-3355
Mots-clés : Autism Spectrum Disorder/therapy Autistic Disorder/therapy Child Ethnicity Healthcare Disparities Humans Medicaid Native Hawaiian or Other Pacific Islander United States Autism spectrum disorder Outpatient services Racial and ethnic disparities School-based services Index. décimale : PER Périodiques Résumé : Racial and ethnic disparities in the use of nine common autism-related services among Medicaid-enrolled children with autism spectrum disorder (ASD) were examined, distinguishing between school and other community-based outpatient settings. Using 2012 Medicaid Analytic Extract data, we identified 117,848 continuously enrolled children with ASD. Several racial and ethnic disparities were found, varying by geography. Black, Asian, and Native American/Pacific Islanders received fewer outpatient services compared with white children, but there was no disparity for Latinx children. Black and Asian children received more school-based services than white children. Disparities in case management/care coordination services were largest and present in each minority group. Geographic variation in receipt of services suggests targets for policy intervention to improve access for minorities with ASD. En ligne : http://dx.doi.org/10.1007/s10803-020-04797-6 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=453 Biases, Barriers, and Possible Solutions: Steps Towards Addressing Autism Researchers Under-Engagement with Racially, Ethnically, and Socioeconomically Diverse Communities / Melissa MAYE in Journal of Autism and Developmental Disorders, 52-9 (September 2022)
[article]
Titre : Biases, Barriers, and Possible Solutions: Steps Towards Addressing Autism Researchers Under-Engagement with Racially, Ethnically, and Socioeconomically Diverse Communities Type de document : Texte imprimé et/ou numérique Auteurs : Melissa MAYE, Auteur ; Brian A. BOYD, Auteur ; Frances MARTINEZ-PEDRAZA, Auteur ; Alycia K. HALLADAY, Auteur ; Audrey THURM, Auteur ; David S. MANDELL, Auteur Article en page(s) : p.4206-4211 Langues : Anglais (eng) Mots-clés : Autism Spectrum Disorder Autistic Disorder Bias Cultural Competency Healthcare Disparities Humans Autism Engagement Ethnicity Participation Race Socioeconomic status to disclose. Index. décimale : PER Périodiques Résumé : Autistic individuals who are also people of color or from lower socioeconomic strata are historically underrepresented in research. Lack of representation in autism research has contributed to health and healthcare disparities. Reducing these disparities will require culturally competent research that is relevant to under-resourced communities as well as collecting large nationally representative samples, or samples in which traditionally disenfranchised groups are over-represented. To achieve these goals, a diverse group of culturally competent researchers must partner with and gain the trust of communities to identify and eliminate barriers to participating in research. We suggest community-academic partnerships as one promising approach that results in high-quality research built on cultural competency, respect, and shared decision making. En ligne : http://dx.doi.org/10.1007/s10803-021-05250-y Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=486
in Journal of Autism and Developmental Disorders > 52-9 (September 2022) . - p.4206-4211[article] Biases, Barriers, and Possible Solutions: Steps Towards Addressing Autism Researchers Under-Engagement with Racially, Ethnically, and Socioeconomically Diverse Communities [Texte imprimé et/ou numérique] / Melissa MAYE, Auteur ; Brian A. BOYD, Auteur ; Frances MARTINEZ-PEDRAZA, Auteur ; Alycia K. HALLADAY, Auteur ; Audrey THURM, Auteur ; David S. MANDELL, Auteur . - p.4206-4211.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 52-9 (September 2022) . - p.4206-4211
Mots-clés : Autism Spectrum Disorder Autistic Disorder Bias Cultural Competency Healthcare Disparities Humans Autism Engagement Ethnicity Participation Race Socioeconomic status to disclose. Index. décimale : PER Périodiques Résumé : Autistic individuals who are also people of color or from lower socioeconomic strata are historically underrepresented in research. Lack of representation in autism research has contributed to health and healthcare disparities. Reducing these disparities will require culturally competent research that is relevant to under-resourced communities as well as collecting large nationally representative samples, or samples in which traditionally disenfranchised groups are over-represented. To achieve these goals, a diverse group of culturally competent researchers must partner with and gain the trust of communities to identify and eliminate barriers to participating in research. We suggest community-academic partnerships as one promising approach that results in high-quality research built on cultural competency, respect, and shared decision making. En ligne : http://dx.doi.org/10.1007/s10803-021-05250-y Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=486 Vision care among school-aged children with autism spectrum disorder in North America: Findings from the Autism Treatment Network Registry Call-Back Study / Olivia J. LINDLY in Autism, 25-3 (April 2021)
PermalinkParent Perceptions of Community Autism Spectrum Disorder Stigma: Measure Validation and Associations in a Multi-site Sample / Katharine E. ZUCKERMAN in Journal of Autism and Developmental Disorders, 48-9 (September 2018)
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