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COVID-19 risk: Adult Medicaid beneficiaries with autism, intellectual disability, and mental health conditions / Whitney SCHOTT in Autism, 26-4 (May 2022)
[article]
Titre : COVID-19 risk: Adult Medicaid beneficiaries with autism, intellectual disability, and mental health conditions Type de document : Texte imprimé et/ou numérique Auteurs : Whitney SCHOTT, Auteur ; Sha TAO, Auteur ; Lindsay SHEA, Auteur Article en page(s) : p.975-987 Langues : Anglais (eng) Mots-clés : Adult Autism Spectrum Disorder/epidemiology Autistic Disorder/epidemiology COVID-19/epidemiology Humans Intellectual Disability/epidemiology Medicaid Mental Health United States/epidemiology COVID-19 risk autism comorbidities intellectual disability Index. décimale : PER Périodiques Résumé : Autistic adults, adults with intellectual disability, and adults with other mental health conditions may have higher risk of contracting COVID-19 or experiencing more severe illness from COVID-19 if infected. We used data from Medicaid to look at whether autistic adults and other adults with intellectual disability and other mental health conditions were more likely to have risk factors for COVID-19, such as living in a residential facility, receiving services regularly in the home from outside caregivers, having had a long hospitalization, having had avoidable hospitalizations, and having high-risk health conditions. We found that autistic adults had higher odds of living in a residential facility, receiving in-home services from outside caregivers, having had an avoidable hospitalization, and having a high-risk health condition, compared to neurotypical adults without mental health conditions. Adults with intellectual disability had similar odds of having these conditions. Adults with other mental health conditions were also more likely to live in a residential facility, receive services from outside caregivers, and have had avoidable hospitalizations compared to the neurotypical population without mental health conditions. They had three times higher odds of having a high-risk health condition. High risk of COVID-19 among autistic adults and adults with intellectual disability and mental health conditions should be recognized by clinicians, and these groups should be prioritized for vaccine outreach. En ligne : https://dx.doi.org/10.1177/13623613211039662 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=473
in Autism > 26-4 (May 2022) . - p.975-987[article] COVID-19 risk: Adult Medicaid beneficiaries with autism, intellectual disability, and mental health conditions [Texte imprimé et/ou numérique] / Whitney SCHOTT, Auteur ; Sha TAO, Auteur ; Lindsay SHEA, Auteur . - p.975-987.
Langues : Anglais (eng)
in Autism > 26-4 (May 2022) . - p.975-987
Mots-clés : Adult Autism Spectrum Disorder/epidemiology Autistic Disorder/epidemiology COVID-19/epidemiology Humans Intellectual Disability/epidemiology Medicaid Mental Health United States/epidemiology COVID-19 risk autism comorbidities intellectual disability Index. décimale : PER Périodiques Résumé : Autistic adults, adults with intellectual disability, and adults with other mental health conditions may have higher risk of contracting COVID-19 or experiencing more severe illness from COVID-19 if infected. We used data from Medicaid to look at whether autistic adults and other adults with intellectual disability and other mental health conditions were more likely to have risk factors for COVID-19, such as living in a residential facility, receiving services regularly in the home from outside caregivers, having had a long hospitalization, having had avoidable hospitalizations, and having high-risk health conditions. We found that autistic adults had higher odds of living in a residential facility, receiving in-home services from outside caregivers, having had an avoidable hospitalization, and having a high-risk health condition, compared to neurotypical adults without mental health conditions. Adults with intellectual disability had similar odds of having these conditions. Adults with other mental health conditions were also more likely to live in a residential facility, receive services from outside caregivers, and have had avoidable hospitalizations compared to the neurotypical population without mental health conditions. They had three times higher odds of having a high-risk health condition. High risk of COVID-19 among autistic adults and adults with intellectual disability and mental health conditions should be recognized by clinicians, and these groups should be prioritized for vaccine outreach. En ligne : https://dx.doi.org/10.1177/13623613211039662 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=473 Parent-Reported Strengths and Positive Qualities of Adolescents and Adults with Autism Spectrum Disorder and/or Intellectual Disability / Ellen WILKINSON in Journal of Autism and Developmental Disorders, 52-12 (December 2022)
[article]
Titre : Parent-Reported Strengths and Positive Qualities of Adolescents and Adults with Autism Spectrum Disorder and/or Intellectual Disability Type de document : Texte imprimé et/ou numérique Auteurs : Ellen WILKINSON, Auteur ; Le Thao Vy VO, Auteur ; Zoe LONDON, Auteur ; Sherri WILSON, Auteur ; Vanessa H. BAL, Auteur Année de publication : 2022 Article en page(s) : p.5471-5482 Langues : Anglais (eng) Mots-clés : Adult Adolescent Humans Aged Autism Spectrum Disorder/diagnosis Intellectual Disability/epidemiology Quality of Life Parents Autistic Disorder Adolescents Adults Positive qualities Qualitative research Strengths Index. décimale : PER Périodiques Résumé : Despite increasing attention to understanding strengths in those on the autism spectrum, few studies have explored this in older individuals. The present study provides a qualitative analysis of parent-reported strengths and positive qualities of 68 15-30-year-olds with autism and/or intellectual disability (ID). Most parents (97%) reported at least one positive quality. Themes were consistent with previous studies; Personality characteristics (82%) and Sociability (53%) were reported most frequently. A Work Ethic/Motivation category not previously reported emerged. Autistic individuals (with/without ID) were more likely than those with ID-only to have a Specific Skill. Findings highlight the importance of recognizing strengths of autistic adults. Research is needed to understand how to best leverage positive qualities to promote goal achievement and quality of life. En ligne : http://dx.doi.org/10.1007/s10803-021-05405-x Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=489
in Journal of Autism and Developmental Disorders > 52-12 (December 2022) . - p.5471-5482[article] Parent-Reported Strengths and Positive Qualities of Adolescents and Adults with Autism Spectrum Disorder and/or Intellectual Disability [Texte imprimé et/ou numérique] / Ellen WILKINSON, Auteur ; Le Thao Vy VO, Auteur ; Zoe LONDON, Auteur ; Sherri WILSON, Auteur ; Vanessa H. BAL, Auteur . - 2022 . - p.5471-5482.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 52-12 (December 2022) . - p.5471-5482
Mots-clés : Adult Adolescent Humans Aged Autism Spectrum Disorder/diagnosis Intellectual Disability/epidemiology Quality of Life Parents Autistic Disorder Adolescents Adults Positive qualities Qualitative research Strengths Index. décimale : PER Périodiques Résumé : Despite increasing attention to understanding strengths in those on the autism spectrum, few studies have explored this in older individuals. The present study provides a qualitative analysis of parent-reported strengths and positive qualities of 68 15-30-year-olds with autism and/or intellectual disability (ID). Most parents (97%) reported at least one positive quality. Themes were consistent with previous studies; Personality characteristics (82%) and Sociability (53%) were reported most frequently. A Work Ethic/Motivation category not previously reported emerged. Autistic individuals (with/without ID) were more likely than those with ID-only to have a Specific Skill. Findings highlight the importance of recognizing strengths of autistic adults. Research is needed to understand how to best leverage positive qualities to promote goal achievement and quality of life. En ligne : http://dx.doi.org/10.1007/s10803-021-05405-x Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=489 Resilience, and positive parenting in parents of children with syndromic autism and intellectual disability. Evidence from the impact of the COVID-19 pandemic on family's quality of life and parent-child relationships / Corneliu BOLBOCEAN in Autism Research, 15-12 (December 2022)
[article]
Titre : Resilience, and positive parenting in parents of children with syndromic autism and intellectual disability. Evidence from the impact of the COVID-19 pandemic on family's quality of life and parent-child relationships Type de document : Texte imprimé et/ou numérique Auteurs : Corneliu BOLBOCEAN, Auteur ; Kayla B. RHIDENOUR, Auteur ; Maria MCCORMACK, Auteur ; Bernhard SUTER, Auteur ; Jimmy Lloyd HOLDER, Auteur Article en page(s) : p.2381-2398 Langues : Anglais (eng) Mots-clés : Humans Parenting Quality of Life Intellectual Disability/epidemiology covid-19 Autistic Disorder/epidemiology Pandemics Autism Spectrum Disorder Parents Parent-Child Relations Covid-19 Phelan-McDermid syndrome Rett syndrome Syngap1-id autism families of autistic children intellectual disabilities resilience Index. décimale : PER Périodiques Résumé : Family quality of life (FQoL) outcomes collected during the first year of COVID-19 has been combined with 2018 data to estimate the outbreak's impact on parental outcomes on a sample of 230 families with syndromic autistic children and those with intellectual disabilities (IDs). Despite challenges imposed by the COVID-19 outbreak, our study found that FQoL outcomes reported by participating parents during the first year of COVID-19 appears to be similar to ratings from a prepandemic study of families with the same conditions. Parents of children in our sample generally displayed a stable functioning trajectory as measured by the validated FQoL instrument. Across syndromic autistic groups considered, families reported that their relationships with their children were positive. Our findings provide evidence of families' resilience which might explain the presence of positive parent-child interactions during COVID-19. Exploring mechanisms which would explain how families with autistic and ID children confront, manage disruptive experiences, and buffer COVID-19 induced stress is a fruitful direction for future research. En ligne : http://dx.doi.org/10.1002/aur.2825 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=488
in Autism Research > 15-12 (December 2022) . - p.2381-2398[article] Resilience, and positive parenting in parents of children with syndromic autism and intellectual disability. Evidence from the impact of the COVID-19 pandemic on family's quality of life and parent-child relationships [Texte imprimé et/ou numérique] / Corneliu BOLBOCEAN, Auteur ; Kayla B. RHIDENOUR, Auteur ; Maria MCCORMACK, Auteur ; Bernhard SUTER, Auteur ; Jimmy Lloyd HOLDER, Auteur . - p.2381-2398.
Langues : Anglais (eng)
in Autism Research > 15-12 (December 2022) . - p.2381-2398
Mots-clés : Humans Parenting Quality of Life Intellectual Disability/epidemiology covid-19 Autistic Disorder/epidemiology Pandemics Autism Spectrum Disorder Parents Parent-Child Relations Covid-19 Phelan-McDermid syndrome Rett syndrome Syngap1-id autism families of autistic children intellectual disabilities resilience Index. décimale : PER Périodiques Résumé : Family quality of life (FQoL) outcomes collected during the first year of COVID-19 has been combined with 2018 data to estimate the outbreak's impact on parental outcomes on a sample of 230 families with syndromic autistic children and those with intellectual disabilities (IDs). Despite challenges imposed by the COVID-19 outbreak, our study found that FQoL outcomes reported by participating parents during the first year of COVID-19 appears to be similar to ratings from a prepandemic study of families with the same conditions. Parents of children in our sample generally displayed a stable functioning trajectory as measured by the validated FQoL instrument. Across syndromic autistic groups considered, families reported that their relationships with their children were positive. Our findings provide evidence of families' resilience which might explain the presence of positive parent-child interactions during COVID-19. Exploring mechanisms which would explain how families with autistic and ID children confront, manage disruptive experiences, and buffer COVID-19 induced stress is a fruitful direction for future research. En ligne : http://dx.doi.org/10.1002/aur.2825 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=488 Age of walking and intellectual ability in autism spectrum disorder and other neurodevelopmental disorders: a population-based study / A. HAVDAHL in Journal of Child Psychology and Psychiatry, 62-9 (September 2021)
[article]
Titre : Age of walking and intellectual ability in autism spectrum disorder and other neurodevelopmental disorders: a population-based study Type de document : Texte imprimé et/ou numérique Auteurs : A. HAVDAHL, Auteur ; C. FARMER, Auteur ; Synnve SCHJØLBERG, Auteur ; A. S. ØYEN, Auteur ; P. SURÉN, Auteur ; T. REICHBORN-KJENNERUD, Auteur ; P. MAGNUS, Auteur ; Michaeline BRESNAHAN, Auteur ; M. HORNIG, Auteur ; E. SUSSER, Auteur ; W. I. LIPKIN, Auteur ; C. LORD, Auteur ; C. STOLTENBERG, Auteur ; A. THURM, Auteur ; Somer L. BISHOP, Auteur Article en page(s) : p.1070-1078 Langues : Anglais (eng) Mots-clés : Autism Spectrum Disorder/epidemiology Child Cohort Studies Humans Intellectual Disability/epidemiology Neurodevelopmental Disorders/epidemiology Walking Intellectual disability MoBa epidemiology gross motor milestones late walking All profits from their research are donated to charity. The other authors report no conflicts of interest. Index. décimale : PER Périodiques Résumé : BACKGROUND: Delayed walking is common in intellectual disability (ID) but may be less common when ID occurs with autism spectrum disorder (ASD). Previous studies examining this were limited by reliance on clinical samples and exclusion of children with severe motor deficits. OBJECTIVE: To examine in a population-based sample if age of walking is differentially related to intellectual ability in children with ASD versus other neurodevelopmental disorders (NDD). METHODS: Participants were from the nested Autism Birth Cohort Study of the Norwegian Mother, Father and Child Cohort Study (MoBa). Cox proportional hazards regression assessed if diagnosis (ASD n = 212 vs. NDD n = 354), continuous nonverbal IQ, and their interaction, were associated with continuous age of walking. RESULTS: The relationship between nonverbal IQ and age of walking was stronger for NDD than for ASD (Group × nonverbal IQ interaction, ?(2) = 13.93, p = .0002). This interaction was characterized by a 21% decrease in the likelihood of walking onset at any given time during the observation period per 10-point decrease in nonverbal IQ (hazard ratio = 0.79, 95% CI: 0.78-0.85) in the NDD group compared to 8% (hazard ratio = 0.92, 95% CI: 0.86-0.98) in the ASD group. CONCLUSIONS: The finding that age of walking is less strongly related to low intellectual ability in children with ASD than in children without other NDDs supports the hypothesis that ID in ASD may result from heterogeneous developmental pathways. Late walking may be a useful stratification variable in etiological research focused on ASD and other NDDs. En ligne : http://dx.doi.org/10.1111/jcpp.13369 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=456
in Journal of Child Psychology and Psychiatry > 62-9 (September 2021) . - p.1070-1078[article] Age of walking and intellectual ability in autism spectrum disorder and other neurodevelopmental disorders: a population-based study [Texte imprimé et/ou numérique] / A. HAVDAHL, Auteur ; C. FARMER, Auteur ; Synnve SCHJØLBERG, Auteur ; A. S. ØYEN, Auteur ; P. SURÉN, Auteur ; T. REICHBORN-KJENNERUD, Auteur ; P. MAGNUS, Auteur ; Michaeline BRESNAHAN, Auteur ; M. HORNIG, Auteur ; E. SUSSER, Auteur ; W. I. LIPKIN, Auteur ; C. LORD, Auteur ; C. STOLTENBERG, Auteur ; A. THURM, Auteur ; Somer L. BISHOP, Auteur . - p.1070-1078.
Langues : Anglais (eng)
in Journal of Child Psychology and Psychiatry > 62-9 (September 2021) . - p.1070-1078
Mots-clés : Autism Spectrum Disorder/epidemiology Child Cohort Studies Humans Intellectual Disability/epidemiology Neurodevelopmental Disorders/epidemiology Walking Intellectual disability MoBa epidemiology gross motor milestones late walking All profits from their research are donated to charity. The other authors report no conflicts of interest. Index. décimale : PER Périodiques Résumé : BACKGROUND: Delayed walking is common in intellectual disability (ID) but may be less common when ID occurs with autism spectrum disorder (ASD). Previous studies examining this were limited by reliance on clinical samples and exclusion of children with severe motor deficits. OBJECTIVE: To examine in a population-based sample if age of walking is differentially related to intellectual ability in children with ASD versus other neurodevelopmental disorders (NDD). METHODS: Participants were from the nested Autism Birth Cohort Study of the Norwegian Mother, Father and Child Cohort Study (MoBa). Cox proportional hazards regression assessed if diagnosis (ASD n = 212 vs. NDD n = 354), continuous nonverbal IQ, and their interaction, were associated with continuous age of walking. RESULTS: The relationship between nonverbal IQ and age of walking was stronger for NDD than for ASD (Group × nonverbal IQ interaction, ?(2) = 13.93, p = .0002). This interaction was characterized by a 21% decrease in the likelihood of walking onset at any given time during the observation period per 10-point decrease in nonverbal IQ (hazard ratio = 0.79, 95% CI: 0.78-0.85) in the NDD group compared to 8% (hazard ratio = 0.92, 95% CI: 0.86-0.98) in the ASD group. CONCLUSIONS: The finding that age of walking is less strongly related to low intellectual ability in children with ASD than in children without other NDDs supports the hypothesis that ID in ASD may result from heterogeneous developmental pathways. Late walking may be a useful stratification variable in etiological research focused on ASD and other NDDs. En ligne : http://dx.doi.org/10.1111/jcpp.13369 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=456 Food insecurity in the households of children with autism spectrum disorders and intellectual disabilities in the United States: Analysis of the National Survey of Children's Health Data 2016-2018 / A. KARPUR in Autism, 25-8 (November 2021)
[article]
Titre : Food insecurity in the households of children with autism spectrum disorders and intellectual disabilities in the United States: Analysis of the National Survey of Children's Health Data 2016-2018 Type de document : Texte imprimé et/ou numérique Auteurs : A. KARPUR, Auteur ; V. VASUDEVAN, Auteur ; A. LELLO, Auteur ; T. W. FRAZIER, Auteur ; A. SHIH, Auteur Article en page(s) : p.2400-2411 Langues : Anglais (eng) Mots-clés : Autism Spectrum Disorder/epidemiology Covid-19 Child Child Health Food Insecurity Humans Intellectual Disability/epidemiology Pandemics SARS-CoV-2 United States/epidemiology autism spectrum disorders food insecurity sociotype Index. décimale : PER Périodiques Résumé : Families of children with autism spectrum disorder are more likely to experience financial strain and resulting food insecurity due to additional cost of care, disparate access to needed services, and loss of income resulting from parental job loss. Utilizing nationally representative data, this analysis indicates that the families of children with autism spectrum disorder and co-occurring intellectual disabilities are twice as likely to experience food insecurity than families of children without disabilities after adjusting for various factors. Several factors, ranging from state-level policies such as Medicaid expansion to individual-level factors such as higher utilization of emergency room services, were associated with the higher prevalence of food insecurity in families of children with autism spectrum disorder and co-occurring intellectual disabilities. Implications of these findings on programs and policies supporting families in the COVID-19 pandemic are discussed. En ligne : http://dx.doi.org/10.1177/13623613211019159 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=451
in Autism > 25-8 (November 2021) . - p.2400-2411[article] Food insecurity in the households of children with autism spectrum disorders and intellectual disabilities in the United States: Analysis of the National Survey of Children's Health Data 2016-2018 [Texte imprimé et/ou numérique] / A. KARPUR, Auteur ; V. VASUDEVAN, Auteur ; A. LELLO, Auteur ; T. W. FRAZIER, Auteur ; A. SHIH, Auteur . - p.2400-2411.
Langues : Anglais (eng)
in Autism > 25-8 (November 2021) . - p.2400-2411
Mots-clés : Autism Spectrum Disorder/epidemiology Covid-19 Child Child Health Food Insecurity Humans Intellectual Disability/epidemiology Pandemics SARS-CoV-2 United States/epidemiology autism spectrum disorders food insecurity sociotype Index. décimale : PER Périodiques Résumé : Families of children with autism spectrum disorder are more likely to experience financial strain and resulting food insecurity due to additional cost of care, disparate access to needed services, and loss of income resulting from parental job loss. Utilizing nationally representative data, this analysis indicates that the families of children with autism spectrum disorder and co-occurring intellectual disabilities are twice as likely to experience food insecurity than families of children without disabilities after adjusting for various factors. Several factors, ranging from state-level policies such as Medicaid expansion to individual-level factors such as higher utilization of emergency room services, were associated with the higher prevalence of food insecurity in families of children with autism spectrum disorder and co-occurring intellectual disabilities. Implications of these findings on programs and policies supporting families in the COVID-19 pandemic are discussed. En ligne : http://dx.doi.org/10.1177/13623613211019159 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=451 Examining frequent emergency department use among children and adolescents with autism spectrum disorder / Judith BEVERLY in Autism, 25-5 (July 2021)
PermalinkExamining frequent emergency department use among children and adolescents with autism spectrum disorder / Judith BEVERLY in Autism, 26-5 (July 2022)
PermalinkRepresentativeness of autistic samples in studies recruiting through social media / Eya-Mist RØDGAARD in Autism Research, 15-8 (August 2022)
PermalinkSchool-Based Autism Rates by State: An Analysis of Demographics, Political Leanings, and Differential Identification / Jonathan SAFER-LICHTENSTEIN in Journal of Autism and Developmental Disorders, 51-7 (July 2021)
PermalinkSelf-reported community participation experiences and preferences of autistic adults / Lindsay L. SHEA in Autism, 25-5 (July 2021)
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