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Interpretative Phenomenological Analysis (IPA) as a tool for participatory research within Critical Autism Studies: A systematic review / Andrea MACLEOD in Research in Autism Spectrum Disorders, 64 (August 2019)
[article]
Titre : Interpretative Phenomenological Analysis (IPA) as a tool for participatory research within Critical Autism Studies: A systematic review Type de document : Texte imprimé et/ou numérique Auteurs : Andrea MACLEOD, Auteur Article en page(s) : p.49-62 Langues : Anglais (eng) Mots-clés : Interpretative phenomenological analysis Participatory Critical autism studies Autism Index. décimale : PER Périodiques Résumé : Purpose Interpretative phenomenological analysis is distinctive in foregrounding participants’ interpretations. As such, it is potentially useful for gaining an insight into the lived experience of autistic individuals and aligns well with participatory approaches. This paper provides the first systematic review of IPA studies that have employed a participatory approach and considers their contribution to Critical Autism Studies. Method Four electronic databases were searched to identify peer-reviewed empirical research articles which employed a participatory IPA approach to consult with autistic individuals. Thirteen studies from four countries, published 2008–2018, met the inclusion criteria. These were examined to identify details of the methodology, findings and recommendations in order to consider each in relation to the underpinning philosophies of IPA and participatory research respectively, and their relationship to the stated aims of Critical Autism Studies. Results A range of participatory approaches were employed and their use extended the depth and validity of findings. There was evidence of disruption to power relations in process and outcomes. Making sense of the autism diagnosis was a frequent point of discussion, even when this was not the focus of the study, and across studies, strong commonalities emerged, capturing a multi-dimensionality of ‘autistic identities’. Conclusion This review provides evidence of the usefulness of IPA as a research approach to consult with autistic individuals. It lends itself to a range of participatory techniques and there is scope for these to be used with diverse autistic populations, in order to extend the opportunities for autistic individuals to be represented, and represent themselves, within autism research. En ligne : https://doi.org/10.1016/j.rasd.2019.04.005 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=399
in Research in Autism Spectrum Disorders > 64 (August 2019) . - p.49-62[article] Interpretative Phenomenological Analysis (IPA) as a tool for participatory research within Critical Autism Studies: A systematic review [Texte imprimé et/ou numérique] / Andrea MACLEOD, Auteur . - p.49-62.
Langues : Anglais (eng)
in Research in Autism Spectrum Disorders > 64 (August 2019) . - p.49-62
Mots-clés : Interpretative phenomenological analysis Participatory Critical autism studies Autism Index. décimale : PER Périodiques Résumé : Purpose Interpretative phenomenological analysis is distinctive in foregrounding participants’ interpretations. As such, it is potentially useful for gaining an insight into the lived experience of autistic individuals and aligns well with participatory approaches. This paper provides the first systematic review of IPA studies that have employed a participatory approach and considers their contribution to Critical Autism Studies. Method Four electronic databases were searched to identify peer-reviewed empirical research articles which employed a participatory IPA approach to consult with autistic individuals. Thirteen studies from four countries, published 2008–2018, met the inclusion criteria. These were examined to identify details of the methodology, findings and recommendations in order to consider each in relation to the underpinning philosophies of IPA and participatory research respectively, and their relationship to the stated aims of Critical Autism Studies. Results A range of participatory approaches were employed and their use extended the depth and validity of findings. There was evidence of disruption to power relations in process and outcomes. Making sense of the autism diagnosis was a frequent point of discussion, even when this was not the focus of the study, and across studies, strong commonalities emerged, capturing a multi-dimensionality of ‘autistic identities’. Conclusion This review provides evidence of the usefulness of IPA as a research approach to consult with autistic individuals. It lends itself to a range of participatory techniques and there is scope for these to be used with diverse autistic populations, in order to extend the opportunities for autistic individuals to be represented, and represent themselves, within autism research. En ligne : https://doi.org/10.1016/j.rasd.2019.04.005 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=399 Adolescent boys with an autism spectrum disorder and their experience of sexuality: An interpretative phenomenological analysis / Jeroen DEWINTER in Autism, 21-1 (January 2017)
[article]
Titre : Adolescent boys with an autism spectrum disorder and their experience of sexuality: An interpretative phenomenological analysis Type de document : Texte imprimé et/ou numérique Auteurs : Jeroen DEWINTER, Auteur ; Hanna Van PARYS, Auteur ; Robert R. J. M. VERMEIREN, Auteur ; Chijs van NIEUWENHUIZEN, Auteur Article en page(s) : p.75-82 Langues : Anglais (eng) Mots-clés : adolescents autism interpretative phenomenological analysis qualitative research sexuality Index. décimale : PER Périodiques Résumé : This qualitative study explored how adolescent boys with autism spectrum disorder experience their sexuality. Previous research has demonstrated that sexuality is a developmental task for boys with autism spectrum disorder, as it is for their peers. Case studies have suggested a relation between autism spectrum disorder and atypical sexual development; empirical studies on this subject, however, are scant and inconsistent. This study is based on interviews with eight boys, aged 16–20?years, with Asperger’s disorder or autistic disorder. Interpretative phenomenological analysis of the data revealed three major themes relating to (a) how they experience sexual feelings, think about sexuality and think about themselves as sexual beings; (b) how they perceive messages relating to sexuality in their surroundings; and (c) how they experience finding and having a partner and partnered sex. We believe that attention to these themes is needed in assessment, education and further research. En ligne : http://dx.doi.org/10.1177/1362361315627134 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=297
in Autism > 21-1 (January 2017) . - p.75-82[article] Adolescent boys with an autism spectrum disorder and their experience of sexuality: An interpretative phenomenological analysis [Texte imprimé et/ou numérique] / Jeroen DEWINTER, Auteur ; Hanna Van PARYS, Auteur ; Robert R. J. M. VERMEIREN, Auteur ; Chijs van NIEUWENHUIZEN, Auteur . - p.75-82.
Langues : Anglais (eng)
in Autism > 21-1 (January 2017) . - p.75-82
Mots-clés : adolescents autism interpretative phenomenological analysis qualitative research sexuality Index. décimale : PER Périodiques Résumé : This qualitative study explored how adolescent boys with autism spectrum disorder experience their sexuality. Previous research has demonstrated that sexuality is a developmental task for boys with autism spectrum disorder, as it is for their peers. Case studies have suggested a relation between autism spectrum disorder and atypical sexual development; empirical studies on this subject, however, are scant and inconsistent. This study is based on interviews with eight boys, aged 16–20?years, with Asperger’s disorder or autistic disorder. Interpretative phenomenological analysis of the data revealed three major themes relating to (a) how they experience sexual feelings, think about sexuality and think about themselves as sexual beings; (b) how they perceive messages relating to sexuality in their surroundings; and (c) how they experience finding and having a partner and partnered sex. We believe that attention to these themes is needed in assessment, education and further research. En ligne : http://dx.doi.org/10.1177/1362361315627134 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=297 ‘Are they just gonna reject me?’ Male adolescents with autism making sense of anxiety: An Interpretative Phenomenological Analysis / Louise ACKER in Research in Autism Spectrum Disorders, 56 (December 2018)
[article]
Titre : ‘Are they just gonna reject me?’ Male adolescents with autism making sense of anxiety: An Interpretative Phenomenological Analysis Type de document : Texte imprimé et/ou numérique Auteurs : Louise ACKER, Auteur ; Matthew KNIGHT, Auteur ; Fiona KNOTT, Auteur Article en page(s) : p.9-20 Langues : Anglais (eng) Mots-clés : Interpretative Phenomenological Analysis Autism Experience Qualitative Anxiety Emotion Index. décimale : PER Périodiques Résumé : Background Anxiety can be a significant difficulty for people with autism, and rates increase during childhood and early adolescence. Nevertheless, little is known about the subjective experience of anxiety in this population. This study aimed to explore this phenomenon using a method conducive to gaining richer insight into participants' lived experiences. Method This study used Interpretative Phenomenological Analysis to explore the lived experience of anxiety, in 14 male adolescents (aged 13–18 years) with autism. Results Participants described anxiety which in some ways resembled typically developing adolescent concerns, such as a desire to belong and feel connected to others, and stress linked to academic pressure. However, they also described how their anxiety could be further compounded by qualities that are characteristic of autism, such as difficulty knowing what others felt and how to comfort them, difficulty regulating emotions and the challenge of sensory sensitivities. Some managed their anxiety in ways that might differ from the typically developing population, for example through use of fantasy and role-play. Participants also outlined details about the format and nature of support that they found most helpful. Conclusions Themes highlight participants' sensitivity and vulnerability in their unique struggle during this time of adolescence, as well as their resilience and resourcefulness in navigating this. A compassionate response is required from health and education professionals, which considers these young people's human need to feel socially connected, which is sensitive to the way that support is provided, and perhaps makes greater use of creative means of intervention (such as involving fantasy and role-play). En ligne : https://doi.org/10.1016/j.rasd.2018.07.005 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=369
in Research in Autism Spectrum Disorders > 56 (December 2018) . - p.9-20[article] ‘Are they just gonna reject me?’ Male adolescents with autism making sense of anxiety: An Interpretative Phenomenological Analysis [Texte imprimé et/ou numérique] / Louise ACKER, Auteur ; Matthew KNIGHT, Auteur ; Fiona KNOTT, Auteur . - p.9-20.
Langues : Anglais (eng)
in Research in Autism Spectrum Disorders > 56 (December 2018) . - p.9-20
Mots-clés : Interpretative Phenomenological Analysis Autism Experience Qualitative Anxiety Emotion Index. décimale : PER Périodiques Résumé : Background Anxiety can be a significant difficulty for people with autism, and rates increase during childhood and early adolescence. Nevertheless, little is known about the subjective experience of anxiety in this population. This study aimed to explore this phenomenon using a method conducive to gaining richer insight into participants' lived experiences. Method This study used Interpretative Phenomenological Analysis to explore the lived experience of anxiety, in 14 male adolescents (aged 13–18 years) with autism. Results Participants described anxiety which in some ways resembled typically developing adolescent concerns, such as a desire to belong and feel connected to others, and stress linked to academic pressure. However, they also described how their anxiety could be further compounded by qualities that are characteristic of autism, such as difficulty knowing what others felt and how to comfort them, difficulty regulating emotions and the challenge of sensory sensitivities. Some managed their anxiety in ways that might differ from the typically developing population, for example through use of fantasy and role-play. Participants also outlined details about the format and nature of support that they found most helpful. Conclusions Themes highlight participants' sensitivity and vulnerability in their unique struggle during this time of adolescence, as well as their resilience and resourcefulness in navigating this. A compassionate response is required from health and education professionals, which considers these young people's human need to feel socially connected, which is sensitive to the way that support is provided, and perhaps makes greater use of creative means of intervention (such as involving fantasy and role-play). En ligne : https://doi.org/10.1016/j.rasd.2018.07.005 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=369 Autistic people's perspectives on stereotypes: An interpretative phenomenological analysis / C. TREWEEK in Autism, 23-3 (April 2019)
[article]
Titre : Autistic people's perspectives on stereotypes: An interpretative phenomenological analysis Type de document : Texte imprimé et/ou numérique Auteurs : C. TREWEEK, Auteur ; C. WOOD, Auteur ; J. MARTIN, Auteur ; M. FREETH, Auteur Article en page(s) : p.759-769 Langues : Anglais (eng) Mots-clés : autistic spectrum condition autistic spectrum disorder disability interpretative phenomenological analysis stereotypes Index. décimale : PER Périodiques Résumé : Autism stereotypes can often portray autistic people in a negative way. However, few studies have looked at how autistic people think they are perceived by others, and none have specifically asked autistic people what they think the autistic stereotypes are. Semi-structured interviews with 12 autistic adults (aged between 20 and 63 years) were conducted. Using interpretative phenomenological analysis, three main themes emerged from the data. These were as follows: (1) the primary stereotype is that autistic people are 'weird'; (2) autistic stereotypes have negative effects and consequences; and (3) autistic people are heterogeneous. This study makes an important and novel contribution to understanding the experience of being autistic by exploring how autistic people feel they are perceived by others and identifying some of the ways in which negative stereotypes are believed to have negative consequences for autistic people. En ligne : http://dx.doi.org/10.1177/1362361318778286 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=392
in Autism > 23-3 (April 2019) . - p.759-769[article] Autistic people's perspectives on stereotypes: An interpretative phenomenological analysis [Texte imprimé et/ou numérique] / C. TREWEEK, Auteur ; C. WOOD, Auteur ; J. MARTIN, Auteur ; M. FREETH, Auteur . - p.759-769.
Langues : Anglais (eng)
in Autism > 23-3 (April 2019) . - p.759-769
Mots-clés : autistic spectrum condition autistic spectrum disorder disability interpretative phenomenological analysis stereotypes Index. décimale : PER Périodiques Résumé : Autism stereotypes can often portray autistic people in a negative way. However, few studies have looked at how autistic people think they are perceived by others, and none have specifically asked autistic people what they think the autistic stereotypes are. Semi-structured interviews with 12 autistic adults (aged between 20 and 63 years) were conducted. Using interpretative phenomenological analysis, three main themes emerged from the data. These were as follows: (1) the primary stereotype is that autistic people are 'weird'; (2) autistic stereotypes have negative effects and consequences; and (3) autistic people are heterogeneous. This study makes an important and novel contribution to understanding the experience of being autistic by exploring how autistic people feel they are perceived by others and identifying some of the ways in which negative stereotypes are believed to have negative consequences for autistic people. En ligne : http://dx.doi.org/10.1177/1362361318778286 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=392 Early years autism and bilingualism: An interpretative phenomenological analysis of parent perceptions during lockdown / Sarah OUDET in Autism & Developmental Language Impairments, 7 (January-December 2022)
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Titre : Early years autism and bilingualism: An interpretative phenomenological analysis of parent perceptions during lockdown Type de document : Texte imprimé et/ou numérique Auteurs : Sarah OUDET, Auteur ; Katie HOWARD, Auteur ; Stephanie DURRLEMAN, Auteur Langues : Anglais (eng) Mots-clés : Autism spectrum disorders bilingualism interpretative phenomenological analysis pre-school children parent-led treatment Index. décimale : PER Périodiques Résumé : Aim This study explores how bilingual parents of autistic children made language decisions for their families, how the event of the SARS-CoV-2 pandemic and subsequent lockdown impacted the communication environment of their households, and whether these experiences affected their language habits. Method Semi-structured interviews were conducted with five bilingual parents of autistic children who lived through lockdown in France. Data were analysed using interpretative phenomenological analysis. Demographic and background information was collected using an adapted version of the Questionnaire for Parents of Bilingual Children. Results Participants reported conflicting advice given by a range of practitioners. Parents expressed differing beliefs about the impact of language choices on their children. Parents described active engagement with their children’s home-learning as generally positive. Parents identified an increase in children’s exposure to their first language during the lockdown. Parents reported an increase in children’s overall communication abilities. Conclusion Parents believed that their children’s positive communication development during lockdown was related to increased exposure to their first language(s), and direct involvement in their children’s learning programs. En ligne : http://dx.doi.org/10.1177/23969415221138704 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=491
in Autism & Developmental Language Impairments > 7 (January-December 2022)[article] Early years autism and bilingualism: An interpretative phenomenological analysis of parent perceptions during lockdown [Texte imprimé et/ou numérique] / Sarah OUDET, Auteur ; Katie HOWARD, Auteur ; Stephanie DURRLEMAN, Auteur.
Langues : Anglais (eng)
in Autism & Developmental Language Impairments > 7 (January-December 2022)
Mots-clés : Autism spectrum disorders bilingualism interpretative phenomenological analysis pre-school children parent-led treatment Index. décimale : PER Périodiques Résumé : Aim This study explores how bilingual parents of autistic children made language decisions for their families, how the event of the SARS-CoV-2 pandemic and subsequent lockdown impacted the communication environment of their households, and whether these experiences affected their language habits. Method Semi-structured interviews were conducted with five bilingual parents of autistic children who lived through lockdown in France. Data were analysed using interpretative phenomenological analysis. Demographic and background information was collected using an adapted version of the Questionnaire for Parents of Bilingual Children. Results Participants reported conflicting advice given by a range of practitioners. Parents expressed differing beliefs about the impact of language choices on their children. Parents described active engagement with their children’s home-learning as generally positive. Parents identified an increase in children’s exposure to their first language during the lockdown. Parents reported an increase in children’s overall communication abilities. Conclusion Parents believed that their children’s positive communication development during lockdown was related to increased exposure to their first language(s), and direct involvement in their children’s learning programs. En ligne : http://dx.doi.org/10.1177/23969415221138704 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=491 'I felt like my senses were under attack': An interpretative phenomenological analysis of experiences of hypersensitivity in autistic individuals / Liesbeth TAELS in Autism, 27-8 (November 2023)
Permalink‘I’m really glad this is developmental’: Autism and social comparisons – an interpretative phenomenological analysis / Jaci C. HUWS in Autism, 19-1 (January 2015)
PermalinkThe impact of socio-cultural values on autistic women: An interpretative phenomenological analysis / Stella MO in Autism, 26-4 (May 2022)
PermalinkUsing interpretative phenomenological analysis in autism research / K. HOWARD in Autism, 23-7 (October 2019)
PermalinkCarers’ experiences of being exposed to challenging behaviour in services for autism spectrum disorders / Rasa BUTRIMAVICIUTE in Autism, 18-8 (November 2014)
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