8 recherche sur le mot-clé 'Mixed methods'

Autism Through the Ages: A Mixed Methods Approach to Understanding How Age and Age of Diagnosis Affect Quality of Life / Gray ATHERTON in Journal of Autism and Developmental Disorders, 52-8 (August 2022)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 52-8 (August 2022) . - p.3639-3654 Titre : Autism Through the Ages: A Mixed Methods Approach to Understanding How Age and Age of Diagnosis Affect Quality of Life Type de document : texte imprimé Auteurs : Gray ATHERTON, Auteur ; Emma EDISBURY, Auteur ; Andrea PIOVESAN, Auteur ; Liam CROSS, Auteur Article en page(s) : p.3639-3654 Langues : Anglais (eng) Mots-clés : Adult  Age Factors  Autism Spectrum Disorder/diagnosis/psychology  Autistic Disorder/diagnosis/psychology  Humans  Mental Health  Quality of Life/psychology  Adulthood  Autism  Autism quotient  Mixed methods  Quality of life Index. décimale : PER Périodiques Résumé : A significant proportion of autistic adults today were not diagnosed until later in life, a group referred to as the 'lost generation,' which may affect mental health. In Study 1 we explored quality of life and autistic trait levels in 420 autistic and TD adults, and in Study 2 we explored the experiences of 8 autistic adults diagnosed as adults. We found that autistic adults had lower quality of life outcomes and higher autistic trait levels which related to age of diagnosis, and qualitative findings indicated that while adults were empowered by their new diagnosis, they still require specialized supports. Our findings are discussed, emphasizing future directions and implications for the current care system in place for autistic adults. En ligne : http://dx.doi.org/10.1007/s10803-021-05235-x Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=485 [article] Autism Through the Ages: A Mixed Methods Approach to Understanding How Age and Age of Diagnosis Affect Quality of Life [texte imprimé] / Gray ATHERTON, Auteur ; Emma EDISBURY, Auteur ; Andrea PIOVESAN, Auteur ; Liam CROSS, Auteur . - p.3639-3654. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 52-8 (August 2022) . - p.3639-3654 Mots-clés : Adult  Age Factors  Autism Spectrum Disorder/diagnosis/psychology  Autistic Disorder/diagnosis/psychology  Humans  Mental Health  Quality of Life/psychology  Adulthood  Autism  Autism quotient  Mixed methods  Quality of life Index. décimale : PER Périodiques Résumé : A significant proportion of autistic adults today were not diagnosed until later in life, a group referred to as the 'lost generation,' which may affect mental health. In Study 1 we explored quality of life and autistic trait levels in 420 autistic and TD adults, and in Study 2 we explored the experiences of 8 autistic adults diagnosed as adults. We found that autistic adults had lower quality of life outcomes and higher autistic trait levels which related to age of diagnosis, and qualitative findings indicated that while adults were empowered by their new diagnosis, they still require specialized supports. Our findings are discussed, emphasizing future directions and implications for the current care system in place for autistic adults. En ligne : http://dx.doi.org/10.1007/s10803-021-05235-x Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=485

"I Don't Do Much Without Researching Things Myself": A Mixed Methods Study Exploring the Role of Parent Health Literacy in Autism Services Use for Young Children / Olivia J. LINDLY in Journal of Autism and Developmental Disorders, 52-8 (August 2022)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 52-8 (August 2022) . - p.3598-3611 Titre : "I Don't Do Much Without Researching Things Myself": A Mixed Methods Study Exploring the Role of Parent Health Literacy in Autism Services Use for Young Children Type de document : texte imprimé Auteurs : Olivia J. LINDLY, Auteur ; Jacqueline CABRAL, Auteur ; Ruqayah MOHAMMED, Auteur ; Ivonne GARBER, Auteur ; Kamila B. MISTRY, Auteur ; Karen A. KUHLTHAU, Auteur Article en page(s) : p.3598-3611 Langues : Anglais (eng) Mots-clés : Autism Spectrum Disorder  Autistic Disorder/diagnosis/therapy  Child  Child, Preschool  Educational Status  Health Literacy  Humans  Parents/education  Autism  Children  Decision-making  Health literacy  Mixed methods  Parents  Services use  United States  interests to disclose. Index. décimale : PER Périodiques Résumé : Little is known about how parent health literacy contributes to health-related outcomes for children with autism. This mixed-methods study included 82 U.S. parents of a child with autism 2-5 years-old and sought to describe (1) health literacy dimensions, (2) how health literacy influences services use, and (3) health literacy improvement strategies. Results showed: autism information was accessed from multiple sources; understanding autism information involved "doing your own research"; autism information empowered decision-making; health literacy facilitated behavioral services use; health literacy influenced medication use; family and system characteristics also affected services use; autism education remains needed; services information is needed across the diagnostic odyssey; and greater scientific information accessibility would increase uptake. Findings demonstrate how parent health literacy affects services use. En ligne : http://dx.doi.org/10.1007/s10803-021-05240-0 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=485 [article] "I Don't Do Much Without Researching Things Myself": A Mixed Methods Study Exploring the Role of Parent Health Literacy in Autism Services Use for Young Children [texte imprimé] / Olivia J. LINDLY, Auteur ; Jacqueline CABRAL, Auteur ; Ruqayah MOHAMMED, Auteur ; Ivonne GARBER, Auteur ; Kamila B. MISTRY, Auteur ; Karen A. KUHLTHAU, Auteur . - p.3598-3611. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 52-8 (August 2022) . - p.3598-3611 Mots-clés : Autism Spectrum Disorder  Autistic Disorder/diagnosis/therapy  Child  Child, Preschool  Educational Status  Health Literacy  Humans  Parents/education  Autism  Children  Decision-making  Health literacy  Mixed methods  Parents  Services use  United States  interests to disclose. Index. décimale : PER Périodiques Résumé : Little is known about how parent health literacy contributes to health-related outcomes for children with autism. This mixed-methods study included 82 U.S. parents of a child with autism 2-5 years-old and sought to describe (1) health literacy dimensions, (2) how health literacy influences services use, and (3) health literacy improvement strategies. Results showed: autism information was accessed from multiple sources; understanding autism information involved "doing your own research"; autism information empowered decision-making; health literacy facilitated behavioral services use; health literacy influenced medication use; family and system characteristics also affected services use; autism education remains needed; services information is needed across the diagnostic odyssey; and greater scientific information accessibility would increase uptake. Findings demonstrate how parent health literacy affects services use. En ligne : http://dx.doi.org/10.1007/s10803-021-05240-0 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=485

School based cognitive behavioural therapy targeting anxiety in children with autistic spectrum disorder: a quasi-experimental randomised controlled trail incorporating a mixed methods approach / Chris CLARKE in Journal of Autism and Developmental Disorders, 47-12 (December 2017)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 47-12 (December 2017) . - p.3883-3895 Titre : School based cognitive behavioural therapy targeting anxiety in children with autistic spectrum disorder: a quasi-experimental randomised controlled trail incorporating a mixed methods approach Type de document : texte imprimé Auteurs : Chris CLARKE, Auteur ; Vivian HILL, Auteur ; Tony CHARMAN, Auteur Année de publication : 2017 Article en page(s) : p.3883-3895 Langues : Anglais (eng) Mots-clés : Autism  Cognitive behavioural therapy  Coping behaviours  Mixed methods  Schools based interventions Index. décimale : PER Périodiques Résumé : Children with a diagnosis of autism are more likely to experience anxiety than their typically developing peers. Research suggests that Cognitive Behavioural Therapy (CBT) could offer a way to help children with autism manage their anxiety but most evidence is based on clinical trials. This study investigated a school-based CBT programme using a quasi-experimental design incorporating the child and parent versions of the Spence Children's Anxiety Scale (Spence, J Abnorm Psy 106(2):280-297, 1997) and the Coping Scale for Children and Youth (Brodzinsky et al., J Appl Dev Psychol 13:195-214, 1992). Interview data was incorporated to help understand the process of change further. Children in the experimental condition had lower levels of anxiety, maintained at follow-up and changes were found in coping behaviours such as lower behavioural avoidance strategies but increased problem solving strategies at follow-up. Limitations of the research together with future directions are also discussed. En ligne : http://dx.doi.org/10.1007/s10803-016-2801-x Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=326 [article] School based cognitive behavioural therapy targeting anxiety in children with autistic spectrum disorder: a quasi-experimental randomised controlled trail incorporating a mixed methods approach [texte imprimé] / Chris CLARKE, Auteur ; Vivian HILL, Auteur ; Tony CHARMAN, Auteur . - 2017 . - p.3883-3895. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 47-12 (December 2017) . - p.3883-3895 Mots-clés : Autism  Cognitive behavioural therapy  Coping behaviours  Mixed methods  Schools based interventions Index. décimale : PER Périodiques Résumé : Children with a diagnosis of autism are more likely to experience anxiety than their typically developing peers. Research suggests that Cognitive Behavioural Therapy (CBT) could offer a way to help children with autism manage their anxiety but most evidence is based on clinical trials. This study investigated a school-based CBT programme using a quasi-experimental design incorporating the child and parent versions of the Spence Children's Anxiety Scale (Spence, J Abnorm Psy 106(2):280-297, 1997) and the Coping Scale for Children and Youth (Brodzinsky et al., J Appl Dev Psychol 13:195-214, 1992). Interview data was incorporated to help understand the process of change further. Children in the experimental condition had lower levels of anxiety, maintained at follow-up and changes were found in coping behaviours such as lower behavioural avoidance strategies but increased problem solving strategies at follow-up. Limitations of the research together with future directions are also discussed. En ligne : http://dx.doi.org/10.1007/s10803-016-2801-x Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=326

Associations among sensory hyperresponsiveness, restricted and repetitive behaviors, and anxiety in autism: An integrated systematic review / Kathryn L. WILLIAMS in Research in Autism Spectrum Disorders, 83 (May 2021)  

Public ISBD [article]  inResearch in Autism Spectrum Disorders > 83 (May 2021) . - 101763 Titre : Associations among sensory hyperresponsiveness, restricted and repetitive behaviors, and anxiety in autism: An integrated systematic review Type de document : texte imprimé Auteurs : Kathryn L. WILLIAMS, Auteur ; Emily CAMPI, Auteur ; Grace T. BARANEK, Auteur Article en page(s) : 101763 Langues : Anglais (eng) Mots-clés : Autism  Anxiety  Hyperresponsiveness  Restricted  Repetitive behaviors  Systematic review  Mixed methods Index. décimale : PER Périodiques Résumé : Background Autistic individuals exhibit core and co-occurring features that can be disabling to daily functioning and impede quality of life. The combined expression of three closely related features: sensory hyperresponsiveness, restricted interests and repetitive behaviors, and anxiety, may be a sign to practitioners that experiences in the environment are particularly challenging. These are investigated through many approaches, including animal modelling, neurological or physiological measures, behavioral observation, and first-hand accounts. However, little work has been done to review evidence across approaches to better understand their expression. Method This study was an integrated systematic review to identify factors that contribute to the collective expression of three constructs of interests (COIs; hyperresponsiveness, restricted interests and repetitive behaviors, and anxiety). Twenty-two articles were analyzed for both structural and thematic patterns. This review is unique in its inclusion of articles from a variety of disciplines and grouping of studies based on similarities over methodological techniques (i.e. quantitative, qualitative, or mixed methods). Results Three overall structural approaches relating the constructs of interest were identified (parallel, relational, and contingent). Three overarching themes also emerged: 1) the broader social context, 2) predictability of environmental factors, and 3) overlap with cognitive and behavioral coping strategies. Conclusions Results highlight clinically relevant information about the combined expression of the three COIs and demonstrate possibilities for increased collaboration across disciplines through common themes and study structures to further understand the experiences of autistic people. En ligne : https://doi.org/10.1016/j.rasd.2021.101763 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=445 [article] Associations among sensory hyperresponsiveness, restricted and repetitive behaviors, and anxiety in autism: An integrated systematic review [texte imprimé] / Kathryn L. WILLIAMS, Auteur ; Emily CAMPI, Auteur ; Grace T. BARANEK, Auteur . - 101763. Langues : Anglais (eng) in Research in Autism Spectrum Disorders > 83 (May 2021) . - 101763 Mots-clés : Autism  Anxiety  Hyperresponsiveness  Restricted  Repetitive behaviors  Systematic review  Mixed methods Index. décimale : PER Périodiques Résumé : Background Autistic individuals exhibit core and co-occurring features that can be disabling to daily functioning and impede quality of life. The combined expression of three closely related features: sensory hyperresponsiveness, restricted interests and repetitive behaviors, and anxiety, may be a sign to practitioners that experiences in the environment are particularly challenging. These are investigated through many approaches, including animal modelling, neurological or physiological measures, behavioral observation, and first-hand accounts. However, little work has been done to review evidence across approaches to better understand their expression. Method This study was an integrated systematic review to identify factors that contribute to the collective expression of three constructs of interests (COIs; hyperresponsiveness, restricted interests and repetitive behaviors, and anxiety). Twenty-two articles were analyzed for both structural and thematic patterns. This review is unique in its inclusion of articles from a variety of disciplines and grouping of studies based on similarities over methodological techniques (i.e. quantitative, qualitative, or mixed methods). Results Three overall structural approaches relating the constructs of interest were identified (parallel, relational, and contingent). Three overarching themes also emerged: 1) the broader social context, 2) predictability of environmental factors, and 3) overlap with cognitive and behavioral coping strategies. Conclusions Results highlight clinically relevant information about the combined expression of the three COIs and demonstrate possibilities for increased collaboration across disciplines through common themes and study structures to further understand the experiences of autistic people. En ligne : https://doi.org/10.1016/j.rasd.2021.101763 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=445

"Glimmers of hope and good things": Positive aspects of caregiving to autistic adolescents and young adults / Carina N MONTOYA in Autism, 29-1 (January 2025)  

Public ISBD [article]  inAutism > 29-1 (January 2025) . - p.233-246 Titre : "Glimmers of hope and good things": Positive aspects of caregiving to autistic adolescents and young adults Type de document : texte imprimé Auteurs : Carina N MONTOYA, Auteur ; Karen J. ISHLER, Auteur ; Rita OBEID, Auteur ; Julie PAYNER, Auteur ; Kristen A. BERG, Auteur Article en page(s) : p.233-246 Langues : Anglais (eng) Mots-clés : autism spectrum disorders  caregiving rewards  coping  family functioning and support  mixed methods  older adolescents  parenting  qualitative research  young adults Index. décimale : PER Périodiques Résumé : Studies commonly measure the challenges of caring for autistic adolescents and young adults, but scarcely explore the positive aspects of the caregiving experience. This study employed an equal-status concurrent mixed methods approach to quantitatively assess predictors of positive aspects of caregiving and qualitatively examine 174 caregivers' perceived rewards, or positive aspects, of caring for autistic adolescents and young adults (ages 16-30 years). Results from multiple regression analyses suggest that youth?s helping behavior most strongly predicted positive aspects of caregiving, and youth receiving more services and caregivers' greater report of social support and use of religious, acceptance, and instrumental support coping also significantly predicted greater reported positive aspects of caregiving. Findings from a phenomenologically informed thematic analysis suggest that caregivers find reward in witnessing youths' progress and joyous qualities, in the caregiver-youth relationship, and in caregivers' own growth. Mixed methods findings highlight that positive aspects of caregiving likely extend caregivers' self-development and may be relationship-specific. Study findings offer a strengths-based framework that highlights the positive aspects of caring for autistic adolescents and young adults. We contribute to the research in defining factors related to positive aspects of caregiving, which may inform future work and contribute to caregiver well-being.Lay abstractWe wanted to explore the positive, or rewarding, experiences of caregivers who were caring for older adolescents or young autistic adults. We surveyed 174 caregivers, asking questions about how they dealt with stressors, the support they had from people in their lives, and the different behaviors of the autistic youth they care for. Using an existing measure, as well as an open-ended question, we asked caregivers about the most rewarding aspects of caring for their youth. When examining survey responses, we found that caregivers who reported receiving more help and support from their autistic youth also reported more positive aspects related to caregiving. In response to our study?s open-ended question, caregivers talked about the reward of seeing their youth grow and progress (e.g. learning new skills, reaching new milestones), described positive aspects of the relationship with their youth (e.g. sharing a special bond), and reflected on their own learning and personal growth as caregivers and people. Our findings highlight the positive, or rewarding, aspects of caregiving for autistic adolescents and young adults. This work will inform future work studying positive aspects of caring for autistic individuals and how this may impact caregivers' psychological well-being. En ligne : https://dx.doi.org/10.1177/13623613241272050 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=544 [article] "Glimmers of hope and good things": Positive aspects of caregiving to autistic adolescents and young adults [texte imprimé] / Carina N MONTOYA, Auteur ; Karen J. ISHLER, Auteur ; Rita OBEID, Auteur ; Julie PAYNER, Auteur ; Kristen A. BERG, Auteur . - p.233-246. Langues : Anglais (eng) in Autism > 29-1 (January 2025) . - p.233-246 Mots-clés : autism spectrum disorders  caregiving rewards  coping  family functioning and support  mixed methods  older adolescents  parenting  qualitative research  young adults Index. décimale : PER Périodiques Résumé : Studies commonly measure the challenges of caring for autistic adolescents and young adults, but scarcely explore the positive aspects of the caregiving experience. This study employed an equal-status concurrent mixed methods approach to quantitatively assess predictors of positive aspects of caregiving and qualitatively examine 174 caregivers' perceived rewards, or positive aspects, of caring for autistic adolescents and young adults (ages 16-30 years). Results from multiple regression analyses suggest that youth?s helping behavior most strongly predicted positive aspects of caregiving, and youth receiving more services and caregivers' greater report of social support and use of religious, acceptance, and instrumental support coping also significantly predicted greater reported positive aspects of caregiving. Findings from a phenomenologically informed thematic analysis suggest that caregivers find reward in witnessing youths' progress and joyous qualities, in the caregiver-youth relationship, and in caregivers' own growth. Mixed methods findings highlight that positive aspects of caregiving likely extend caregivers' self-development and may be relationship-specific. Study findings offer a strengths-based framework that highlights the positive aspects of caring for autistic adolescents and young adults. We contribute to the research in defining factors related to positive aspects of caregiving, which may inform future work and contribute to caregiver well-being.Lay abstractWe wanted to explore the positive, or rewarding, experiences of caregivers who were caring for older adolescents or young autistic adults. We surveyed 174 caregivers, asking questions about how they dealt with stressors, the support they had from people in their lives, and the different behaviors of the autistic youth they care for. Using an existing measure, as well as an open-ended question, we asked caregivers about the most rewarding aspects of caring for their youth. When examining survey responses, we found that caregivers who reported receiving more help and support from their autistic youth also reported more positive aspects related to caregiving. In response to our study?s open-ended question, caregivers talked about the reward of seeing their youth grow and progress (e.g. learning new skills, reaching new milestones), described positive aspects of the relationship with their youth (e.g. sharing a special bond), and reflected on their own learning and personal growth as caregivers and people. Our findings highlight the positive, or rewarding, aspects of caregiving for autistic adolescents and young adults. This work will inform future work studying positive aspects of caring for autistic individuals and how this may impact caregivers' psychological well-being. En ligne : https://dx.doi.org/10.1177/13623613241272050 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=544

Multisystemic approaches to researching young people?s resilience: Discovering culturally and contextually sensitive accounts of thriving under adversity / Linda THERON ; Michael UNGAR in Development and Psychopathology, 35-5 (December 2023)  

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Experience of mental health diagnosis and perceived misdiagnosis in autistic, possibly autistic and non-autistic adults / Sheena K. AU-YEUNG in Autism, 23-6 (August 2019)  

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Perspective-taking is two-sided: Misunderstandings between people with Asperger's syndrome and their family members / Brett HEASMAN in Autism, 22-6 (August 2018)  

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