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A Meta-analysis of Outcome Studies of Autistic Adults: Quantifying Effect Size, Quality, and Meta-regression / D. MASON in Journal of Autism and Developmental Disorders, 51-9 (September 2021)
[article]
Titre : A Meta-analysis of Outcome Studies of Autistic Adults: Quantifying Effect Size, Quality, and Meta-regression Type de document : Texte imprimé et/ou numérique Auteurs : D. MASON, Auteur ; Simone J CAPP, Auteur ; G. R. STEWART, Auteur ; M. J. KEMPTON, Auteur ; K. GLASER, Auteur ; P. HOWLIN, Auteur ; Francesca HAPPE, Auteur Article en page(s) : p.3165-3179 Langues : Anglais (eng) Mots-clés : Adult Autism Spectrum Disorder Autistic Disorder Humans Outcome Assessment, Health Care Autism spectrum disorder Functioning Meta-analysis Outcome Index. décimale : PER Périodiques Résumé : Longitudinal studies have generally reported poor outcomes in adulthood for the majority of individuals (c.50-60%) with autism. Several factors putatively predict outcome (e.g. IQ), but findings remain mixed. This paper presents an updated meta-analysis of autism outcome studies and extends previous findings with additional analyses (including meta-regression). A total of 4088 records was screened and 18 studies, involving 1199 individuals, were included in the quantitative analysis. Estimated percentages indicated that 20.0% of participants were rated as having a good outcome, 26.6% a fair outcome, and 49.3% a poor outcome. Meta-regression indicated that lower IQ in adulthood was predictive of poor outcome; other meta-regression models did not survive correction for multiple comparisons. Overall, outcomes for autistic people are on average poor, and higher IQ appears to be protective against having a poor outcome. The limitations of current constructs of outcome are discussed. En ligne : http://dx.doi.org/10.1007/s10803-020-04763-2 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=453
in Journal of Autism and Developmental Disorders > 51-9 (September 2021) . - p.3165-3179[article] A Meta-analysis of Outcome Studies of Autistic Adults: Quantifying Effect Size, Quality, and Meta-regression [Texte imprimé et/ou numérique] / D. MASON, Auteur ; Simone J CAPP, Auteur ; G. R. STEWART, Auteur ; M. J. KEMPTON, Auteur ; K. GLASER, Auteur ; P. HOWLIN, Auteur ; Francesca HAPPE, Auteur . - p.3165-3179.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 51-9 (September 2021) . - p.3165-3179
Mots-clés : Adult Autism Spectrum Disorder Autistic Disorder Humans Outcome Assessment, Health Care Autism spectrum disorder Functioning Meta-analysis Outcome Index. décimale : PER Périodiques Résumé : Longitudinal studies have generally reported poor outcomes in adulthood for the majority of individuals (c.50-60%) with autism. Several factors putatively predict outcome (e.g. IQ), but findings remain mixed. This paper presents an updated meta-analysis of autism outcome studies and extends previous findings with additional analyses (including meta-regression). A total of 4088 records was screened and 18 studies, involving 1199 individuals, were included in the quantitative analysis. Estimated percentages indicated that 20.0% of participants were rated as having a good outcome, 26.6% a fair outcome, and 49.3% a poor outcome. Meta-regression indicated that lower IQ in adulthood was predictive of poor outcome; other meta-regression models did not survive correction for multiple comparisons. Overall, outcomes for autistic people are on average poor, and higher IQ appears to be protective against having a poor outcome. The limitations of current constructs of outcome are discussed. En ligne : http://dx.doi.org/10.1007/s10803-020-04763-2 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=453 Characteristics, Early Development and Outcome of Parent-Reported Regression in Autism Spectrum Disorder / S. BOTERBERG in Journal of Autism and Developmental Disorders, 49-11 (November 2019)
[article]
Titre : Characteristics, Early Development and Outcome of Parent-Reported Regression in Autism Spectrum Disorder Type de document : Texte imprimé et/ou numérique Auteurs : S. BOTERBERG, Auteur ; R. VAN COSTER, Auteur ; H. ROEYERS, Auteur Article en page(s) : p.4603-4625 Langues : Anglais (eng) Mots-clés : Autism spectrum disorder Early development Onset patterns Outcome Regression Index. décimale : PER Périodiques Résumé : This study explored regression patterns in 100 children with ASD (3-11 years) using several approaches to enhance the validity of retrospective parent report. Both early development and outcome were examined in regression groups defined by 36 months age cut-off and two underlying empirical patterns based on type and onset age. Results over regression groups were generally consistent. During early development, children with regression showed a similar amount of social atypicalities and stereotyped behaviour as compared to children without regression. However, parents indicated less communication skills which could be a valuable predictor of regression. Development after regression was characterised by early language delay and more restricted and repetitive behaviour. The findings provide insight into the diagnosis and prognosis of regression in ASD. En ligne : http://dx.doi.org/10.1007/s10803-019-04183-x Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=408
in Journal of Autism and Developmental Disorders > 49-11 (November 2019) . - p.4603-4625[article] Characteristics, Early Development and Outcome of Parent-Reported Regression in Autism Spectrum Disorder [Texte imprimé et/ou numérique] / S. BOTERBERG, Auteur ; R. VAN COSTER, Auteur ; H. ROEYERS, Auteur . - p.4603-4625.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 49-11 (November 2019) . - p.4603-4625
Mots-clés : Autism spectrum disorder Early development Onset patterns Outcome Regression Index. décimale : PER Périodiques Résumé : This study explored regression patterns in 100 children with ASD (3-11 years) using several approaches to enhance the validity of retrospective parent report. Both early development and outcome were examined in regression groups defined by 36 months age cut-off and two underlying empirical patterns based on type and onset age. Results over regression groups were generally consistent. During early development, children with regression showed a similar amount of social atypicalities and stereotyped behaviour as compared to children without regression. However, parents indicated less communication skills which could be a valuable predictor of regression. Development after regression was characterised by early language delay and more restricted and repetitive behaviour. The findings provide insight into the diagnosis and prognosis of regression in ASD. En ligne : http://dx.doi.org/10.1007/s10803-019-04183-x Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=408 Long-term Outcome of Trauma in Children: The Psychological Consequences of a Bus Accident / Dagfinn WINJE in Journal of Child Psychology and Psychiatry, 39-5 (July 1998)
[article]
Titre : Long-term Outcome of Trauma in Children: The Psychological Consequences of a Bus Accident Type de document : Texte imprimé et/ou numérique Auteurs : Dagfinn WINJE, Auteur ; Annicken ULVIK, Auteur Année de publication : 1998 Article en page(s) : p.635-342 Langues : Anglais (eng) Mots-clés : School children coping outcome prognosis post-traumatic stress road traffic accident Index. décimale : PER Périodiques Résumé : The psychological consequences of trauma on 28 Swedish children were examined 1 year and 3 years after a bus accident in western Norway in 1988. Symptoms were assessed by the Impact of Event Scale (IES), semi-structured interviews, and a questionnaire developed for this study. At the 1-year follow-up, large proportions of the sample had symptoms of Intrusion and Avoidance (IES) and symptoms of general psychological distress, but no clinically significant symptoms were observed at the 3-year follow-up. Girls and children who experienced loss in the accident were characterised by high levels of Intrusion, whereas passenger trauma and age were unrelated to the outcome. A bidirectional relationship was observed between the mothers' and the children's symptoms over time, whereas the fathers' symptoms were unrelated to the children's symptoms. The clinical implications of the study are that symptoms in all children of traumatised families deserve attention during the first year post-trauma, and that objective risk indicators (age, sex, and types of trauma) do not provide sufficient information to identify children at risk. Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=123
in Journal of Child Psychology and Psychiatry > 39-5 (July 1998) . - p.635-342[article] Long-term Outcome of Trauma in Children: The Psychological Consequences of a Bus Accident [Texte imprimé et/ou numérique] / Dagfinn WINJE, Auteur ; Annicken ULVIK, Auteur . - 1998 . - p.635-342.
Langues : Anglais (eng)
in Journal of Child Psychology and Psychiatry > 39-5 (July 1998) . - p.635-342
Mots-clés : School children coping outcome prognosis post-traumatic stress road traffic accident Index. décimale : PER Périodiques Résumé : The psychological consequences of trauma on 28 Swedish children were examined 1 year and 3 years after a bus accident in western Norway in 1988. Symptoms were assessed by the Impact of Event Scale (IES), semi-structured interviews, and a questionnaire developed for this study. At the 1-year follow-up, large proportions of the sample had symptoms of Intrusion and Avoidance (IES) and symptoms of general psychological distress, but no clinically significant symptoms were observed at the 3-year follow-up. Girls and children who experienced loss in the accident were characterised by high levels of Intrusion, whereas passenger trauma and age were unrelated to the outcome. A bidirectional relationship was observed between the mothers' and the children's symptoms over time, whereas the fathers' symptoms were unrelated to the children's symptoms. The clinical implications of the study are that symptoms in all children of traumatised families deserve attention during the first year post-trauma, and that objective risk indicators (age, sex, and types of trauma) do not provide sufficient information to identify children at risk. Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=123 Narrative Performance of Optimal Outcome Children and Adolescents with a History of an Autism Spectrum Disorder (ASD) / Joyce SUH in Journal of Autism and Developmental Disorders, 44-7 (July 2014)
[article]
Titre : Narrative Performance of Optimal Outcome Children and Adolescents with a History of an Autism Spectrum Disorder (ASD) Type de document : Texte imprimé et/ou numérique Auteurs : Joyce SUH, Auteur ; Inge-Marie EIGSTI, Auteur ; Letitia NAIGLES, Auteur ; Marianne L. BARTON, Auteur ; Elizabeth KELLEY, Auteur ; Deborah A. FEIN, Auteur Article en page(s) : p.1681-1694 Langues : Anglais (eng) Mots-clés : Autism Outcome Optimal Narrative Language Pragmatics Dysfluency Index. décimale : PER Périodiques Résumé : Autism Spectrum Disorders (ASDs) have traditionally been considered a lifelong condition; however, a subset of people makes such significant improvements that they no longer meet diagnostic criteria for an ASD. The current study examines whether these “optimal outcome” (OO) children and adolescents continue to have subtle pragmatic language deficits. The narratives of 15 OO individuals, 15 high-functioning individuals with an ASD (HFA), and 15 typically developing (TD) peers were evaluated. Despite average cognitive functioning, the ASD group produced narratives with fewer central “gist” descriptions, more ambiguous pronominal referents, idiosyncratic language, speech dysfluency (more repetitions and self-corrections), and were less likely to name story characters. The OO participants displayed only very subtle pragmatic and higher-level language deficits (idiosyncratic language and self-correction dysfluency). En ligne : http://dx.doi.org/10.1007/s10803-014-2042-9 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=236
in Journal of Autism and Developmental Disorders > 44-7 (July 2014) . - p.1681-1694[article] Narrative Performance of Optimal Outcome Children and Adolescents with a History of an Autism Spectrum Disorder (ASD) [Texte imprimé et/ou numérique] / Joyce SUH, Auteur ; Inge-Marie EIGSTI, Auteur ; Letitia NAIGLES, Auteur ; Marianne L. BARTON, Auteur ; Elizabeth KELLEY, Auteur ; Deborah A. FEIN, Auteur . - p.1681-1694.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 44-7 (July 2014) . - p.1681-1694
Mots-clés : Autism Outcome Optimal Narrative Language Pragmatics Dysfluency Index. décimale : PER Périodiques Résumé : Autism Spectrum Disorders (ASDs) have traditionally been considered a lifelong condition; however, a subset of people makes such significant improvements that they no longer meet diagnostic criteria for an ASD. The current study examines whether these “optimal outcome” (OO) children and adolescents continue to have subtle pragmatic language deficits. The narratives of 15 OO individuals, 15 high-functioning individuals with an ASD (HFA), and 15 typically developing (TD) peers were evaluated. Despite average cognitive functioning, the ASD group produced narratives with fewer central “gist” descriptions, more ambiguous pronominal referents, idiosyncratic language, speech dysfluency (more repetitions and self-corrections), and were less likely to name story characters. The OO participants displayed only very subtle pragmatic and higher-level language deficits (idiosyncratic language and self-correction dysfluency). En ligne : http://dx.doi.org/10.1007/s10803-014-2042-9 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=236 Optimal outcome in individuals with a history of autism / Deborah A. FEIN in Journal of Child Psychology and Psychiatry, 54-2 (February 2013)
[article]
Titre : Optimal outcome in individuals with a history of autism Type de document : Texte imprimé et/ou numérique Auteurs : Deborah A. FEIN, Auteur ; Marianne L. BARTON, Auteur ; Inge-Marie EIGSTI, Auteur ; Elizabeth KELLEY, Auteur ; Letitia R. NAIGLES, Auteur ; Robert T. SCHULTZ, Auteur ; Michael C. STEVENS, Auteur ; Molly HELT, Auteur ; Alyssa ORINSTEIN, Auteur ; Michael A. ROSENTHAL, Auteur ; Eva TROYB, Auteur ; Katherine E. TYSON, Auteur Année de publication : 2013 Article en page(s) : p.195-205 Langues : Anglais (eng) Mots-clés : Autism outcome optimal Index. décimale : PER Périodiques Résumé : Background: Although autism spectrum disorders (ASDs) are generally considered lifelong disabilities, literature suggests that a minority of individuals with an ASD will lose the diagnosis. However, the existence of this phenomenon, as well as its frequency and interpretation, is still controversial: were they misdiagnosed initially, is this a rare event, did they lose the full diagnosis, but still suffer significant social and communication impairments or did they lose all symptoms of ASD and function socially within the normal range? Methods: The present study documents a group of these optimal outcome individuals (OO group, n = 34) by comparing their functioning on standardized measures to age, sex, and nonverbal IQ matched individuals with high-functioning autism (HFA group, n = 44) or typical development (TD group, n = 34). For this study, ‘optimal outcome' requires losing all symptoms of ASD in addition to the diagnosis, and functioning within the nonautistic range of social interaction and communication. Domains explored include language, face recognition, socialization, communication, and autism symptoms. Results: Optimal outcome and TD groups' mean scores did not differ on socialization, communication, face recognition, or most language subscales, although three OO individuals showed below-average scores on face recognition. Early in their development, the OO group displayed milder symptoms than the HFA group in the social domain, but had equally severe difficulties with communication and repetitive behaviors. Conclusions: Although possible deficits in more subtle aspects of social interaction or cognition are not ruled out, the results substantiate the possibility of OO from autism spectrum disorders and demonstrate an overall level of functioning within normal limits for this group. En ligne : http://dx.doi.org/10.1111/jcpp.12037 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=188
in Journal of Child Psychology and Psychiatry > 54-2 (February 2013) . - p.195-205[article] Optimal outcome in individuals with a history of autism [Texte imprimé et/ou numérique] / Deborah A. FEIN, Auteur ; Marianne L. BARTON, Auteur ; Inge-Marie EIGSTI, Auteur ; Elizabeth KELLEY, Auteur ; Letitia R. NAIGLES, Auteur ; Robert T. SCHULTZ, Auteur ; Michael C. STEVENS, Auteur ; Molly HELT, Auteur ; Alyssa ORINSTEIN, Auteur ; Michael A. ROSENTHAL, Auteur ; Eva TROYB, Auteur ; Katherine E. TYSON, Auteur . - 2013 . - p.195-205.
Langues : Anglais (eng)
in Journal of Child Psychology and Psychiatry > 54-2 (February 2013) . - p.195-205
Mots-clés : Autism outcome optimal Index. décimale : PER Périodiques Résumé : Background: Although autism spectrum disorders (ASDs) are generally considered lifelong disabilities, literature suggests that a minority of individuals with an ASD will lose the diagnosis. However, the existence of this phenomenon, as well as its frequency and interpretation, is still controversial: were they misdiagnosed initially, is this a rare event, did they lose the full diagnosis, but still suffer significant social and communication impairments or did they lose all symptoms of ASD and function socially within the normal range? Methods: The present study documents a group of these optimal outcome individuals (OO group, n = 34) by comparing their functioning on standardized measures to age, sex, and nonverbal IQ matched individuals with high-functioning autism (HFA group, n = 44) or typical development (TD group, n = 34). For this study, ‘optimal outcome' requires losing all symptoms of ASD in addition to the diagnosis, and functioning within the nonautistic range of social interaction and communication. Domains explored include language, face recognition, socialization, communication, and autism symptoms. Results: Optimal outcome and TD groups' mean scores did not differ on socialization, communication, face recognition, or most language subscales, although three OO individuals showed below-average scores on face recognition. Early in their development, the OO group displayed milder symptoms than the HFA group in the social domain, but had equally severe difficulties with communication and repetitive behaviors. Conclusions: Although possible deficits in more subtle aspects of social interaction or cognition are not ruled out, the results substantiate the possibility of OO from autism spectrum disorders and demonstrate an overall level of functioning within normal limits for this group. En ligne : http://dx.doi.org/10.1111/jcpp.12037 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=188 Preschoolers with Autism Spectrum Disorder Followed for 2 Years: Those Who Gained and Those Who Lost the Most in Terms of Adaptive Functioning Outcome / Asa HEDVALL in Journal of Autism and Developmental Disorders, 45-11 (November 2015)
PermalinkRestricted and Repetitive Behaviors as Predictors of Outcome in Autism Spectrum Disorders / Eva TROYB in Journal of Autism and Developmental Disorders, 46-4 (April 2016)
PermalinkSocial Function and Communication in Optimal Outcome Children and Adolescents with an Autism History on Structured Test Measures / Alyssa J. ORINSTEIN in Journal of Autism and Developmental Disorders, 45-8 (August 2015)
PermalinkThe Autism Impact Measure (AIM): Initial Development of a New Tool for Treatment Outcome Measurement / Stephen M. KANNE in Journal of Autism and Developmental Disorders, 44-1 (January 2014)
PermalinkOutcomes for Adolescents and young Adults with Autism Spectrum Disorder: General Social Functioning / Ahmed AL ANSARI in Autism - Open Access, 6-4 ([01/07/2016])
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