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Parental perspectives on the importance and likelihood of adult outcomes for children with Autism Spectrum Disorders, Intellectual Disabilities or Multiple Disabilities / Kenneth K. POON in Research in Autism Spectrum Disorders, 7-2 (February 2013)
[article]
Titre : Parental perspectives on the importance and likelihood of adult outcomes for children with Autism Spectrum Disorders, Intellectual Disabilities or Multiple Disabilities Type de document : Texte imprimé et/ou numérique Auteurs : Kenneth K. POON, Auteur ; Lynette KOH, Auteur ; Iliana MAGIATI, Auteur Article en page(s) : p.382-390 Langues : Anglais (eng) Mots-clés : Autism Spectrum Disorders Intellectual Disability Multiple Disability Parental expectations Importance Likelihood Adult outcomes Index. décimale : PER Périodiques Résumé : Aims This study examined parental perspectives on the importance and likelihood of future adult outcomes for children with Autism Spectrum Disorders (ASD), Intellectual Disabilities (ID), or Multiple Disabilities (MD) and some of the factors that may affect parental aspirations. Methods Parents of 105 children with ASD, ID, or MD were presented with 21 possible future outcomes and were asked to indicate how important and how likely they considered these outcomes for their children with disabilities when they become adults. Results Parents rated the overall likelihood of their child attaining various future outcomes significantly lower than the importance they placed on these same outcomes. They mostly valued future outcomes relating to their children's personal satisfaction, safety and security over and above those relating to social participation. Parental ratings of the importance or likelihood of outcomes did not differ across the diagnostic groups. Ratings of importance were independent of the child's age, gender, diagnosis, or severity of functioning, but likelihood ratings were significantly predicted by the children's symptom severity. Conclusions The implications of this study's findings for service development, intervention and transitioning planning, and treatment outcome research are discussed in relation to existing literature and the study's strengths and limitations. En ligne : http://dx.doi.org/10.1016/j.rasd.2012.10.006 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=186
in Research in Autism Spectrum Disorders > 7-2 (February 2013) . - p.382-390[article] Parental perspectives on the importance and likelihood of adult outcomes for children with Autism Spectrum Disorders, Intellectual Disabilities or Multiple Disabilities [Texte imprimé et/ou numérique] / Kenneth K. POON, Auteur ; Lynette KOH, Auteur ; Iliana MAGIATI, Auteur . - p.382-390.
Langues : Anglais (eng)
in Research in Autism Spectrum Disorders > 7-2 (February 2013) . - p.382-390
Mots-clés : Autism Spectrum Disorders Intellectual Disability Multiple Disability Parental expectations Importance Likelihood Adult outcomes Index. décimale : PER Périodiques Résumé : Aims This study examined parental perspectives on the importance and likelihood of future adult outcomes for children with Autism Spectrum Disorders (ASD), Intellectual Disabilities (ID), or Multiple Disabilities (MD) and some of the factors that may affect parental aspirations. Methods Parents of 105 children with ASD, ID, or MD were presented with 21 possible future outcomes and were asked to indicate how important and how likely they considered these outcomes for their children with disabilities when they become adults. Results Parents rated the overall likelihood of their child attaining various future outcomes significantly lower than the importance they placed on these same outcomes. They mostly valued future outcomes relating to their children's personal satisfaction, safety and security over and above those relating to social participation. Parental ratings of the importance or likelihood of outcomes did not differ across the diagnostic groups. Ratings of importance were independent of the child's age, gender, diagnosis, or severity of functioning, but likelihood ratings were significantly predicted by the children's symptom severity. Conclusions The implications of this study's findings for service development, intervention and transitioning planning, and treatment outcome research are discussed in relation to existing literature and the study's strengths and limitations. En ligne : http://dx.doi.org/10.1016/j.rasd.2012.10.006 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=186 “Set in Stone” or “Ray of Hope”: Parents’ Beliefs About Cause and Prognosis After Genomic Testing of Children Diagnosed with ASD / Marian REIFF in Journal of Autism and Developmental Disorders, 47-5 (May 2017)
[article]
Titre : “Set in Stone” or “Ray of Hope”: Parents’ Beliefs About Cause and Prognosis After Genomic Testing of Children Diagnosed with ASD Type de document : Texte imprimé et/ou numérique Auteurs : Marian REIFF, Auteur ; Eva BUGOS, Auteur ; Ellen GIARELLI, Auteur ; Barbara A. BERNHARDT, Auteur ; Nancy B. SPINNER, Auteur ; Pamela L. SANKAR, Auteur ; Surabhi MULCHANDANI, Auteur Article en page(s) : p.1453-1463 Langues : Anglais (eng) Mots-clés : Autism spectrum disorders Chromosomal microarray analysis Genomic testing Parental expectations Causation beliefs Genetic determinism Index. décimale : PER Périodiques Résumé : Despite increasing utilization of chromosomal microarray analysis (CMA) for autism spectrum disorders (ASD), limited information exists about how results influence parents’ beliefs about etiology and prognosis. We conducted in-depth interviews and surveys with 57 parents of children with ASD who received CMA results categorized as pathogenic, negative or variant of uncertain significance. Parents tended to incorporate their child’s CMA results within their existing beliefs about the etiology of ASD, regardless of CMA result. However, parents’ expectations for the future tended to differ depending on results; those who received genetic confirmation for their children’s ASD expressed a sense of concreteness, acceptance and permanence of the condition. Some parents expressed hope for future biomedical treatments as a result of genetic research. En ligne : http://dx.doi.org/10.1007/s10803-017-3067-7 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=305
in Journal of Autism and Developmental Disorders > 47-5 (May 2017) . - p.1453-1463[article] “Set in Stone” or “Ray of Hope”: Parents’ Beliefs About Cause and Prognosis After Genomic Testing of Children Diagnosed with ASD [Texte imprimé et/ou numérique] / Marian REIFF, Auteur ; Eva BUGOS, Auteur ; Ellen GIARELLI, Auteur ; Barbara A. BERNHARDT, Auteur ; Nancy B. SPINNER, Auteur ; Pamela L. SANKAR, Auteur ; Surabhi MULCHANDANI, Auteur . - p.1453-1463.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 47-5 (May 2017) . - p.1453-1463
Mots-clés : Autism spectrum disorders Chromosomal microarray analysis Genomic testing Parental expectations Causation beliefs Genetic determinism Index. décimale : PER Périodiques Résumé : Despite increasing utilization of chromosomal microarray analysis (CMA) for autism spectrum disorders (ASD), limited information exists about how results influence parents’ beliefs about etiology and prognosis. We conducted in-depth interviews and surveys with 57 parents of children with ASD who received CMA results categorized as pathogenic, negative or variant of uncertain significance. Parents tended to incorporate their child’s CMA results within their existing beliefs about the etiology of ASD, regardless of CMA result. However, parents’ expectations for the future tended to differ depending on results; those who received genetic confirmation for their children’s ASD expressed a sense of concreteness, acceptance and permanence of the condition. Some parents expressed hope for future biomedical treatments as a result of genetic research. En ligne : http://dx.doi.org/10.1007/s10803-017-3067-7 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=305