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Parental Experiences with Early Identification and Initial Care for their Child with Autism: Tailored Improvement Strategies / Michelle I. J. SNIJDER in Journal of Autism and Developmental Disorders, 52-8 (August 2022)
[article]
Titre : Parental Experiences with Early Identification and Initial Care for their Child with Autism: Tailored Improvement Strategies Type de document : Texte imprimé et/ou numérique Auteurs : Michelle I. J. SNIJDER, Auteur ; Ilse P. C. LANGERAK, Auteur ; Shireen P. T. KAIJADOE, Auteur ; Marrit E. BURUMA, Auteur ; Rianne VERSCHUUR, Auteur ; Claudine DIETZ, Auteur ; Jan K. BUITELAAR, Auteur ; Iris J. OOSTERLING, Auteur Article en page(s) : p.3473-3485 Langues : Anglais (eng) Mots-clés : Autism Spectrum Disorder/diagnosis/therapy Autistic Disorder/diagnosis/therapy Child Early Diagnosis Humans Parents Risk Assessment Autism spectrum disorder Early detection Improvement strategies Parental experiences Preventive care board of/and/or speaker for Takeda/Shire, Roche, Medice, Angelini, Janssen, and Servier. He is not an employee of any of these companies, and not a stock shareholder of any of these companies. He has no other financial or material support, including expert testimony, patents, royalties. Index. décimale : PER Périodiques Résumé : Whereas it is well documented how parents experience the diagnostic process of their child with autism spectrum disorder (ASD), less is known about parental experiences with the course of the early identification process and first steps in receiving care for their child with ASD symptoms. This mixed-method study investigated these experiences as well as barriers and improvement strategies regarding early detection in the Netherlands. A parental survey (N=45) showed that, on average, initial concerns started at 22Â months. A focus group (N=10) revealed multiple barriers and proposed strategies of improvement in three domains: "Knowledge and Expertise", "Attention to Parental Needs" and "System and Organization". Strategies to improve early identification will be discussed based on parental perspectives and professional perspectives. En ligne : http://dx.doi.org/10.1007/s10803-021-05226-y Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=485
in Journal of Autism and Developmental Disorders > 52-8 (August 2022) . - p.3473-3485[article] Parental Experiences with Early Identification and Initial Care for their Child with Autism: Tailored Improvement Strategies [Texte imprimé et/ou numérique] / Michelle I. J. SNIJDER, Auteur ; Ilse P. C. LANGERAK, Auteur ; Shireen P. T. KAIJADOE, Auteur ; Marrit E. BURUMA, Auteur ; Rianne VERSCHUUR, Auteur ; Claudine DIETZ, Auteur ; Jan K. BUITELAAR, Auteur ; Iris J. OOSTERLING, Auteur . - p.3473-3485.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 52-8 (August 2022) . - p.3473-3485
Mots-clés : Autism Spectrum Disorder/diagnosis/therapy Autistic Disorder/diagnosis/therapy Child Early Diagnosis Humans Parents Risk Assessment Autism spectrum disorder Early detection Improvement strategies Parental experiences Preventive care board of/and/or speaker for Takeda/Shire, Roche, Medice, Angelini, Janssen, and Servier. He is not an employee of any of these companies, and not a stock shareholder of any of these companies. He has no other financial or material support, including expert testimony, patents, royalties. Index. décimale : PER Périodiques Résumé : Whereas it is well documented how parents experience the diagnostic process of their child with autism spectrum disorder (ASD), less is known about parental experiences with the course of the early identification process and first steps in receiving care for their child with ASD symptoms. This mixed-method study investigated these experiences as well as barriers and improvement strategies regarding early detection in the Netherlands. A parental survey (N=45) showed that, on average, initial concerns started at 22Â months. A focus group (N=10) revealed multiple barriers and proposed strategies of improvement in three domains: "Knowledge and Expertise", "Attention to Parental Needs" and "System and Organization". Strategies to improve early identification will be discussed based on parental perspectives and professional perspectives. En ligne : http://dx.doi.org/10.1007/s10803-021-05226-y Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=485 Parental Perceptions and Decisions Regarding Maintaining Bilingualism in Autism / Katie HOWARD in Journal of Autism and Developmental Disorders, 51-1 (January 2021)
[article]
Titre : Parental Perceptions and Decisions Regarding Maintaining Bilingualism in Autism Type de document : Texte imprimé et/ou numérique Auteurs : Katie HOWARD, Auteur ; Jenny GIBSON, Auteur ; Napoleon KATSOS, Auteur Article en page(s) : p.179-192 Langues : Anglais (eng) Mots-clés : Autism Bilingualism Parental experiences Index. décimale : PER Périodiques Résumé : A growing body of evidence suggests that bilingual exposure does not negatively impact children on the autism spectrum. This study sought to illuminate parents' perceptions and choices regarding maintaining bilingualism in autism. Semi-structured interviews were conducted with 16 family members in England and Wales. Data were analysed using interpretative phenomenological analysis (IPA). Although parents expressed positive attitudes towards bilingualism, these views were not always congruent with their language practices. Instead, several factors influenced decisions about language maintenance in autism, including the severity of the child's autism, advice received, and the importance of English as the dominant societal language. This article calls for greater support for families in making language decisions that are suitable for the individual child and their family. En ligne : http://dx.doi.org/10.1007/s10803-020-04528-x Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=437
in Journal of Autism and Developmental Disorders > 51-1 (January 2021) . - p.179-192[article] Parental Perceptions and Decisions Regarding Maintaining Bilingualism in Autism [Texte imprimé et/ou numérique] / Katie HOWARD, Auteur ; Jenny GIBSON, Auteur ; Napoleon KATSOS, Auteur . - p.179-192.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 51-1 (January 2021) . - p.179-192
Mots-clés : Autism Bilingualism Parental experiences Index. décimale : PER Périodiques Résumé : A growing body of evidence suggests that bilingual exposure does not negatively impact children on the autism spectrum. This study sought to illuminate parents' perceptions and choices regarding maintaining bilingualism in autism. Semi-structured interviews were conducted with 16 family members in England and Wales. Data were analysed using interpretative phenomenological analysis (IPA). Although parents expressed positive attitudes towards bilingualism, these views were not always congruent with their language practices. Instead, several factors influenced decisions about language maintenance in autism, including the severity of the child's autism, advice received, and the importance of English as the dominant societal language. This article calls for greater support for families in making language decisions that are suitable for the individual child and their family. En ligne : http://dx.doi.org/10.1007/s10803-020-04528-x Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=437