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Psychological distress among caregivers raising a child with autism spectrum disorder during the COVID-19 pandemic / L. G. KALB in Autism Research, 14-10 (October 2021)
[article]
Titre : Psychological distress among caregivers raising a child with autism spectrum disorder during the COVID-19 pandemic Type de document : Texte imprimé et/ou numérique Auteurs : L. G. KALB, Auteur ; E. BADILLO-GOICOECHEA, Auteur ; C. HOLINGUE, Auteur ; K. E. RIEHM, Auteur ; J. THRUL, Auteur ; E. A. STUART, Auteur ; E. J. SMAIL, Auteur ; K. LAW, Auteur ; C. WHITE-LEHMAN, Auteur ; D. FALLIN, Auteur Article en page(s) : p.2183-2188 Langues : Anglais (eng) Mots-clés : Autism Spectrum Disorder/complications/epidemiology Covid-19 Caregivers Child Humans Pandemics Parents Psychological Distress SARS-CoV-2 Stress, Psychological/complications/epidemiology United States/epidemiology Index. décimale : PER Périodiques Résumé : The COVID-19 pandemic may disproportionately impact parents of children with autism spectrum disorder (ASD). Loss of services and supports, heightened fears about increased infection rates, and disruption of daily routines likely adversely affect the well-being of children with ASD and their families. The goal of this study was to examine differences in psychological distress-as defined by symptoms of anxiety, depression, loneliness, and hyperarousal-between parents raising a child with ASD and parents in the US as a whole during the early stages of the pandemic (March-April 2020). Parents raising a child with ASD (n = 3556) were recruited through SPARK, a national ASD research registry, whereas a representative sample of parents in the US (n = 5506) were recruited from the Pew Research Center's American Trends Panel. All data were captured via online surveys. Descriptive statistics and multivariable logistic regressions examined psychological distress at the item and summary score level. Parents of children with ASD reported higher levels of overall psychological distress (48% vs. 25%; aOR = 1.60, 95% CI: 1.32, 1.84, p?0.001). Hyperarousal, or feelings of panic when thinking about COVID-19, was particularly prevalent among parents of children with ASD compared to parents in the US (25% vs. 9%; aOR = 2.38, 95% CI: 1.83, 3.07, p?0.001). Findings highlight the importance of considering the policies and practices that contribute to poor mental health in parents, particularly those raising a child with ASD, to ensure mental health services remain accessible. LAY SUMMARY: This study examined the mental health of parents raising a child with ASD during the early stages of the COVID-19 pandemic. Results demonstrated substantially higher levels of psychological distress, particularly those related to feelings of panic, among parents raising a child with ASD when compared to parents in the US as a whole. These data suggest the need for ensuring mental health services are accessible to parents, particularly those raising a child with ASD, during and after the pandemic. En ligne : http://dx.doi.org/10.1002/aur.2589 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=450
in Autism Research > 14-10 (October 2021) . - p.2183-2188[article] Psychological distress among caregivers raising a child with autism spectrum disorder during the COVID-19 pandemic [Texte imprimé et/ou numérique] / L. G. KALB, Auteur ; E. BADILLO-GOICOECHEA, Auteur ; C. HOLINGUE, Auteur ; K. E. RIEHM, Auteur ; J. THRUL, Auteur ; E. A. STUART, Auteur ; E. J. SMAIL, Auteur ; K. LAW, Auteur ; C. WHITE-LEHMAN, Auteur ; D. FALLIN, Auteur . - p.2183-2188.
Langues : Anglais (eng)
in Autism Research > 14-10 (October 2021) . - p.2183-2188
Mots-clés : Autism Spectrum Disorder/complications/epidemiology Covid-19 Caregivers Child Humans Pandemics Parents Psychological Distress SARS-CoV-2 Stress, Psychological/complications/epidemiology United States/epidemiology Index. décimale : PER Périodiques Résumé : The COVID-19 pandemic may disproportionately impact parents of children with autism spectrum disorder (ASD). Loss of services and supports, heightened fears about increased infection rates, and disruption of daily routines likely adversely affect the well-being of children with ASD and their families. The goal of this study was to examine differences in psychological distress-as defined by symptoms of anxiety, depression, loneliness, and hyperarousal-between parents raising a child with ASD and parents in the US as a whole during the early stages of the pandemic (March-April 2020). Parents raising a child with ASD (n = 3556) were recruited through SPARK, a national ASD research registry, whereas a representative sample of parents in the US (n = 5506) were recruited from the Pew Research Center's American Trends Panel. All data were captured via online surveys. Descriptive statistics and multivariable logistic regressions examined psychological distress at the item and summary score level. Parents of children with ASD reported higher levels of overall psychological distress (48% vs. 25%; aOR = 1.60, 95% CI: 1.32, 1.84, p?0.001). Hyperarousal, or feelings of panic when thinking about COVID-19, was particularly prevalent among parents of children with ASD compared to parents in the US (25% vs. 9%; aOR = 2.38, 95% CI: 1.83, 3.07, p?0.001). Findings highlight the importance of considering the policies and practices that contribute to poor mental health in parents, particularly those raising a child with ASD, to ensure mental health services remain accessible. LAY SUMMARY: This study examined the mental health of parents raising a child with ASD during the early stages of the COVID-19 pandemic. Results demonstrated substantially higher levels of psychological distress, particularly those related to feelings of panic, among parents raising a child with ASD when compared to parents in the US as a whole. These data suggest the need for ensuring mental health services are accessible to parents, particularly those raising a child with ASD, during and after the pandemic. En ligne : http://dx.doi.org/10.1002/aur.2589 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=450 Psychological distress among parents of children with autism spectrum disorders: A randomized control trial of cognitive behavioural therapy / Charity Neejide ONYISHI in Research in Autism Spectrum Disorders, 100 (February 2023)
[article]
Titre : Psychological distress among parents of children with autism spectrum disorders: A randomized control trial of cognitive behavioural therapy Type de document : Texte imprimé et/ou numérique Auteurs : Charity Neejide ONYISHI, Auteur ; Maximus Monaheng SEFOTHO, Auteur ; Vera VICTOR-AIBODION, Auteur Article en page(s) : 102070 Langues : Anglais (eng) Mots-clés : Cognitive Behavioural Therapy Depression Anxiety Stress Autism Spectrum Disorders Psychological distress Parenting Index. décimale : PER Périodiques Résumé : High psychological distress that ranges from stress reactions to anxiety and depression are prevalent among parents and caregivers of children with Autism Spectrum Disorder (ASD) and undermine positive parenting and health outcomes. The current study sought to investigate cognitive-behavioral therapy (CBT) in curtailing psychological distress in a sample of those parenting children with autism. We conducted the study in Enugu state, Nigeria, with 97 parents of children with ASD. Participants were randomly allocated into CBT (NÂ =Â 48) and waitlist comparison (WLC) (NÂ =Â 49) groups. The CBT group participated in a 120Â min CBT program weekly for 12 weeks. Data were collected using Demographic Questionnaire; Depression, Anxiety, and Stress Scale-21 items (DASS-21) and Satisfaction with therapy and therapist scale- revised (STTS-R). Three data sets were collected at baseline, post-test, and follow-up. Descriptive statistics, Repeated measures Multivariate Analysis of Variance (MANOVA), and t-test statistics were used to analyze the data. Raincloud plots were also used to illustrate results. Results revealed that all dimensions of psychological distress (DASS-depressive symptoms, DASS-anxiety, and DASS-stress) reduced significantly at post-CBT intervention and follow-up assessments in the CBT group, compared to the WLC. Multivariate analysis showed that the global psychological distress score was responsive to CBT intervention. We concluded that stress, anxiety, and depression among those parenting children with autism could be lessened with CBT. En ligne : https://doi.org/10.1016/j.rasd.2022.102070 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=491
in Research in Autism Spectrum Disorders > 100 (February 2023) . - 102070[article] Psychological distress among parents of children with autism spectrum disorders: A randomized control trial of cognitive behavioural therapy [Texte imprimé et/ou numérique] / Charity Neejide ONYISHI, Auteur ; Maximus Monaheng SEFOTHO, Auteur ; Vera VICTOR-AIBODION, Auteur . - 102070.
Langues : Anglais (eng)
in Research in Autism Spectrum Disorders > 100 (February 2023) . - 102070
Mots-clés : Cognitive Behavioural Therapy Depression Anxiety Stress Autism Spectrum Disorders Psychological distress Parenting Index. décimale : PER Périodiques Résumé : High psychological distress that ranges from stress reactions to anxiety and depression are prevalent among parents and caregivers of children with Autism Spectrum Disorder (ASD) and undermine positive parenting and health outcomes. The current study sought to investigate cognitive-behavioral therapy (CBT) in curtailing psychological distress in a sample of those parenting children with autism. We conducted the study in Enugu state, Nigeria, with 97 parents of children with ASD. Participants were randomly allocated into CBT (NÂ =Â 48) and waitlist comparison (WLC) (NÂ =Â 49) groups. The CBT group participated in a 120Â min CBT program weekly for 12 weeks. Data were collected using Demographic Questionnaire; Depression, Anxiety, and Stress Scale-21 items (DASS-21) and Satisfaction with therapy and therapist scale- revised (STTS-R). Three data sets were collected at baseline, post-test, and follow-up. Descriptive statistics, Repeated measures Multivariate Analysis of Variance (MANOVA), and t-test statistics were used to analyze the data. Raincloud plots were also used to illustrate results. Results revealed that all dimensions of psychological distress (DASS-depressive symptoms, DASS-anxiety, and DASS-stress) reduced significantly at post-CBT intervention and follow-up assessments in the CBT group, compared to the WLC. Multivariate analysis showed that the global psychological distress score was responsive to CBT intervention. We concluded that stress, anxiety, and depression among those parenting children with autism could be lessened with CBT. En ligne : https://doi.org/10.1016/j.rasd.2022.102070 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=491 Bio-ecological factors associated with the psychological distress of fathers of children with autism spectrum disorder: A population-based study of Australian families / M. SEYMOUR in Autism, 22-7 (October 2018)
[article]
Titre : Bio-ecological factors associated with the psychological distress of fathers of children with autism spectrum disorder: A population-based study of Australian families Type de document : Texte imprimé et/ou numérique Auteurs : M. SEYMOUR, Auteur ; R. GIALLO, Auteur ; C. E. WOOD, Auteur Article en page(s) : p.825-836 Langues : Anglais (eng) Mots-clés : autism bio-ecological fathers predictors psychological distress Index. décimale : PER Périodiques Résumé : Using a bio-ecological framework, the aim of this study was to examine factors associated with psychological distress experienced by fathers of children with autism spectrum disorder from a nationally representative sample of Australian children and their families. Individual (e.g. age and self-efficacy), interpersonal (e.g. partner distress, couple relationship, child behaviour and social support) and social environmental factors (e.g. job quality and financial hardship) were explored as potential predictors of fathers' distress. Data were drawn from the Longitudinal Study of Australian Children, where 159 fathers of children with autism spectrum disorder were identified. As comparison, 6578 fathers of children without developmental disabilities were identified. Multiple regression analyses showed that experiencing depression within the past year, job quality (e.g. autonomy and access to parental leave) and social support were significant predictors for fathers of children with autism spectrum disorder. The importance of supporting the well-being of fathers of children with autism spectrum disorder is discussed. En ligne : http://dx.doi.org/10.1177/1362361317709971 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=369
in Autism > 22-7 (October 2018) . - p.825-836[article] Bio-ecological factors associated with the psychological distress of fathers of children with autism spectrum disorder: A population-based study of Australian families [Texte imprimé et/ou numérique] / M. SEYMOUR, Auteur ; R. GIALLO, Auteur ; C. E. WOOD, Auteur . - p.825-836.
Langues : Anglais (eng)
in Autism > 22-7 (October 2018) . - p.825-836
Mots-clés : autism bio-ecological fathers predictors psychological distress Index. décimale : PER Périodiques Résumé : Using a bio-ecological framework, the aim of this study was to examine factors associated with psychological distress experienced by fathers of children with autism spectrum disorder from a nationally representative sample of Australian children and their families. Individual (e.g. age and self-efficacy), interpersonal (e.g. partner distress, couple relationship, child behaviour and social support) and social environmental factors (e.g. job quality and financial hardship) were explored as potential predictors of fathers' distress. Data were drawn from the Longitudinal Study of Australian Children, where 159 fathers of children with autism spectrum disorder were identified. As comparison, 6578 fathers of children without developmental disabilities were identified. Multiple regression analyses showed that experiencing depression within the past year, job quality (e.g. autonomy and access to parental leave) and social support were significant predictors for fathers of children with autism spectrum disorder. The importance of supporting the well-being of fathers of children with autism spectrum disorder is discussed. En ligne : http://dx.doi.org/10.1177/1362361317709971 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=369 Early Pandemic Experiences of Autistic Adults: Predictors of Psychological Distress / Vanessa H. BAL in Autism Research, 14-6 (June 2021)
[article]
Titre : Early Pandemic Experiences of Autistic Adults: Predictors of Psychological Distress Type de document : Texte imprimé et/ou numérique Auteurs : Vanessa H. BAL, Auteur ; E. WILKINSON, Auteur ; L. C. WHITE, Auteur ; J. K. LAW, Auteur ; P. FELICIANO, Auteur ; W. K. CHUNG, Auteur Article en page(s) : p.1209-1219 Langues : Anglais (eng) Mots-clés : Adolescent Adult Autistic Disorder/psychology COVID-19/epidemiology Female Health Surveys Hope Humans Internet Male Pandemics Psychological Distress Risk Assessment Stress, Psychological/psychology Young Adult COVID-19 pandemic adults co-morbid conditions gender/female ASD hope loneliness funding from Novartis, Roche, Pfizer, Biogen, Ipsen, LAM Therapeutics, Astellas, Bridgebio and Quadrant Biosciences and has served on the Scientific Advisory Boards for Sage Therapeutics, Roche, Celgene, Aeovian, Regenxbio and Takeda. Robin Kochel has a contract with Yamo Pharmaceuticals, Inc., to consult on the design of clinical trials for individuals with ASD. Suma Jacobs has been an investigator in multisite treatment trials by Roche and served on an autism advisory board for Roche. Index. décimale : PER Périodiques Résumé : The COVID-19 pandemic has disrupted lives around the world. Autistic adults are at higher risk for co-occurring medical and psychiatric conditions and may be more prone to difficulties adapting to pandemic-related changes and social distancing mandates and coping with ongoing uncertainties. On the other hand, the pandemic may lead to greater understanding and acceptance of accommodations in the broader community that may facilitate supports for autistic adults beyond the pandemic. To learn more about their early pandemic experiences, online surveys were sent to independent adults enrolled in the Simons Powering Autism Research Knowledge (SPARK). The first survey was open from March 30 to April 19, 2020; a follow-up survey sent to original responders was open from May 27 to June 6, yielding 396 participants with data for both surveys. We found that adults who were female, younger, had prior diagnoses of a mental health condition, personal COVID-19 experience (i.e., knowing someone who had symptoms or tested positive) or less frequent hope for the future reported the greatest negative impacts. Decrease in feelings of hopefulness over time predicted greater psychological distress at T2, accounting for T1 impact and distress levels and increases in total COVID-19 impact. Less perceived benefit of online services also predicted later distress. Although there tends to be a focus on coping with negative effects of the pandemic, mental health providers may consider approaches that focus on positives, such as fostering hope and understanding factors that facilitate benefit from online services. LAY SUMMARY: Autistic adults may be at risk for psychological distress during the COVID-19 pandemic. The current study suggests that autistic adults who were younger, female, had a mental health diagnosis before the pandemic and knew someone who showed symptoms or tested positive for COVID-19 reported more areas negatively impacted by COVID-19 and greater difficulty coping with those effects. Decreases in hope over time were associated with greater psychological distress. Less perceived benefit from online services also predicted distress 2?months later. These results suggest important areas to further explore as we develop supports for autistic adults during the pandemic. En ligne : http://dx.doi.org/10.1002/aur.2480 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=449
in Autism Research > 14-6 (June 2021) . - p.1209-1219[article] Early Pandemic Experiences of Autistic Adults: Predictors of Psychological Distress [Texte imprimé et/ou numérique] / Vanessa H. BAL, Auteur ; E. WILKINSON, Auteur ; L. C. WHITE, Auteur ; J. K. LAW, Auteur ; P. FELICIANO, Auteur ; W. K. CHUNG, Auteur . - p.1209-1219.
Langues : Anglais (eng)
in Autism Research > 14-6 (June 2021) . - p.1209-1219
Mots-clés : Adolescent Adult Autistic Disorder/psychology COVID-19/epidemiology Female Health Surveys Hope Humans Internet Male Pandemics Psychological Distress Risk Assessment Stress, Psychological/psychology Young Adult COVID-19 pandemic adults co-morbid conditions gender/female ASD hope loneliness funding from Novartis, Roche, Pfizer, Biogen, Ipsen, LAM Therapeutics, Astellas, Bridgebio and Quadrant Biosciences and has served on the Scientific Advisory Boards for Sage Therapeutics, Roche, Celgene, Aeovian, Regenxbio and Takeda. Robin Kochel has a contract with Yamo Pharmaceuticals, Inc., to consult on the design of clinical trials for individuals with ASD. Suma Jacobs has been an investigator in multisite treatment trials by Roche and served on an autism advisory board for Roche. Index. décimale : PER Périodiques Résumé : The COVID-19 pandemic has disrupted lives around the world. Autistic adults are at higher risk for co-occurring medical and psychiatric conditions and may be more prone to difficulties adapting to pandemic-related changes and social distancing mandates and coping with ongoing uncertainties. On the other hand, the pandemic may lead to greater understanding and acceptance of accommodations in the broader community that may facilitate supports for autistic adults beyond the pandemic. To learn more about their early pandemic experiences, online surveys were sent to independent adults enrolled in the Simons Powering Autism Research Knowledge (SPARK). The first survey was open from March 30 to April 19, 2020; a follow-up survey sent to original responders was open from May 27 to June 6, yielding 396 participants with data for both surveys. We found that adults who were female, younger, had prior diagnoses of a mental health condition, personal COVID-19 experience (i.e., knowing someone who had symptoms or tested positive) or less frequent hope for the future reported the greatest negative impacts. Decrease in feelings of hopefulness over time predicted greater psychological distress at T2, accounting for T1 impact and distress levels and increases in total COVID-19 impact. Less perceived benefit of online services also predicted later distress. Although there tends to be a focus on coping with negative effects of the pandemic, mental health providers may consider approaches that focus on positives, such as fostering hope and understanding factors that facilitate benefit from online services. LAY SUMMARY: Autistic adults may be at risk for psychological distress during the COVID-19 pandemic. The current study suggests that autistic adults who were younger, female, had a mental health diagnosis before the pandemic and knew someone who showed symptoms or tested positive for COVID-19 reported more areas negatively impacted by COVID-19 and greater difficulty coping with those effects. Decreases in hope over time were associated with greater psychological distress. Less perceived benefit from online services also predicted distress 2?months later. These results suggest important areas to further explore as we develop supports for autistic adults during the pandemic. En ligne : http://dx.doi.org/10.1002/aur.2480 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=449 Exploring the Moderating Role of Benefit Finding on the Relationship Between Child Problematic Behaviours and Psychological Distress in Caregivers of Children with ASD / Brian LOVELL in Journal of Autism and Developmental Disorders, 50-2 (February 2020)
[article]
Titre : Exploring the Moderating Role of Benefit Finding on the Relationship Between Child Problematic Behaviours and Psychological Distress in Caregivers of Children with ASD Type de document : Texte imprimé et/ou numérique Auteurs : Brian LOVELL, Auteur ; Mark A. WETHERELL, Auteur Article en page(s) : p.617-624 Langues : Anglais (eng) Mots-clés : Asd Benefit finding Child problematic behaviours Moderation Psychological distress Index. décimale : PER Périodiques Résumé : Caregivers of children with ASD often find benefits associated with their caregiving role, and benefit finding predicts lower distress. Child problematic behaviours (CPB), which positively predict caregivers' distress, are perceived to be being less problematic, or more manageable, by caregivers who find benefits. Benefit finding therefore might mitigate the negative psychological impact of CPB. A sample of n = 158 caregivers of children with ASD completed an online survey assessing benefit finding, CPB, and psychological distress. CPB positively, and benefit finding negatively, predicted caregivers' distress. Moderation effects however were not observed. Findings implicate increased CPB and lower benefit finding as risk factors for caregivers' psychological distress. Findings provide clearly definable targets for intervention. En ligne : http://dx.doi.org/10.1007/s10803-019-04300-w Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=416
in Journal of Autism and Developmental Disorders > 50-2 (February 2020) . - p.617-624[article] Exploring the Moderating Role of Benefit Finding on the Relationship Between Child Problematic Behaviours and Psychological Distress in Caregivers of Children with ASD [Texte imprimé et/ou numérique] / Brian LOVELL, Auteur ; Mark A. WETHERELL, Auteur . - p.617-624.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 50-2 (February 2020) . - p.617-624
Mots-clés : Asd Benefit finding Child problematic behaviours Moderation Psychological distress Index. décimale : PER Périodiques Résumé : Caregivers of children with ASD often find benefits associated with their caregiving role, and benefit finding predicts lower distress. Child problematic behaviours (CPB), which positively predict caregivers' distress, are perceived to be being less problematic, or more manageable, by caregivers who find benefits. Benefit finding therefore might mitigate the negative psychological impact of CPB. A sample of n = 158 caregivers of children with ASD completed an online survey assessing benefit finding, CPB, and psychological distress. CPB positively, and benefit finding negatively, predicted caregivers' distress. Moderation effects however were not observed. Findings implicate increased CPB and lower benefit finding as risk factors for caregivers' psychological distress. Findings provide clearly definable targets for intervention. En ligne : http://dx.doi.org/10.1007/s10803-019-04300-w Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=416 Maternal caregiving ameliorates the consequences of prenatal maternal psychological distress on child development / Leah A. GRANDE in Development and Psychopathology, 34-4 (October 2022)
PermalinkPrenatal maternal psychological distress and fetal developmental trajectories: associations with infant temperament / Mariann A. HOWLAND in Development and Psychopathology, 32-5 (December 2020)
PermalinkThe Association Between Emotional and Behavioral Problems in Children with Autism Spectrum Disorder and Psychological Distress in Their Parents: A Systematic Review and Meta-analysis / I. YORKE in Journal of Autism and Developmental Disorders, 48-10 (October 2018)
PermalinkThe Interplay of Communication Skills, Emotional and Behavioural Problems and Parental Psychological Distress / E. SALOMONE in Journal of Autism and Developmental Disorders, 49-11 (November 2019)
PermalinkThe spectrum of attitudes towards the spectrum of autism and its relationship to psychological distress in mothers of children with autism / Kinga FERENC in Autism, 27-1 (January 2023)
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