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Meeting the needs of autistic adults in Qatar: Stakeholder perspectives on gaps in services and priorities for future programming / Serene HABAYEB in Autism, 26-1 (January 2022)
[article]
Titre : Meeting the needs of autistic adults in Qatar: Stakeholder perspectives on gaps in services and priorities for future programming Type de document : Texte imprimé et/ou numérique Auteurs : Serene HABAYEB, Auteur ; S. AL-HARAHSHEH, Auteur ; Allison B. RATTO, Auteur ; A. VERBALIS, Auteur ; C. PUGLIESE, Auteur ; N. NADWODNY, Auteur ; F. AL-MEER, Auteur ; M. EL-AKOUM, Auteur Article en page(s) : p.88-100 Langues : Anglais (eng) Mots-clés : Qatar adolescents adults autism spectrum disorders family functioning and support quality of life vocational/labor force participation Index. décimale : PER Périodiques Résumé : Qatar is expanding the services that it offers for autistic people, but these services focus mainly on diagnosing and treating young children. Because there are not enough autism providers in Qatar and few opportunities for autistic youth to participate in the community, more and more autistic teens and young adults have unmet needs during their transition to adulthood. The goal of this study was to conduct a needs assessment of transition-age autistic youth in Qatar and their families in order to inform the development of an adult respite care and support center. Respite care is a service that provides families with stress relief and time to participate in activities that are more difficult to do when their loved one with a disability is with them. The objective of this study was to use family and stakeholder input to identify the needs and preferences for respite care for autistic youth in Qatar. The project was conducted with a local research team in Qatar and a team of clinical researchers in the United States specializing in autism. Stakeholders, including parents of autistic people and providers working with individuals with autism, completed surveys and participated in focus groups. Families and providers in Qatar were very interested increasing services for young adults with autism to improve quality of life, although wanted to make sure the service providers would be reliable and trustworthy. Implications from this study may substantially improve the lives of autistic adults in Qatar. En ligne : http://dx.doi.org/10.1177/13623613211020623 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=451
in Autism > 26-1 (January 2022) . - p.88-100[article] Meeting the needs of autistic adults in Qatar: Stakeholder perspectives on gaps in services and priorities for future programming [Texte imprimé et/ou numérique] / Serene HABAYEB, Auteur ; S. AL-HARAHSHEH, Auteur ; Allison B. RATTO, Auteur ; A. VERBALIS, Auteur ; C. PUGLIESE, Auteur ; N. NADWODNY, Auteur ; F. AL-MEER, Auteur ; M. EL-AKOUM, Auteur . - p.88-100.
Langues : Anglais (eng)
in Autism > 26-1 (January 2022) . - p.88-100
Mots-clés : Qatar adolescents adults autism spectrum disorders family functioning and support quality of life vocational/labor force participation Index. décimale : PER Périodiques Résumé : Qatar is expanding the services that it offers for autistic people, but these services focus mainly on diagnosing and treating young children. Because there are not enough autism providers in Qatar and few opportunities for autistic youth to participate in the community, more and more autistic teens and young adults have unmet needs during their transition to adulthood. The goal of this study was to conduct a needs assessment of transition-age autistic youth in Qatar and their families in order to inform the development of an adult respite care and support center. Respite care is a service that provides families with stress relief and time to participate in activities that are more difficult to do when their loved one with a disability is with them. The objective of this study was to use family and stakeholder input to identify the needs and preferences for respite care for autistic youth in Qatar. The project was conducted with a local research team in Qatar and a team of clinical researchers in the United States specializing in autism. Stakeholders, including parents of autistic people and providers working with individuals with autism, completed surveys and participated in focus groups. Families and providers in Qatar were very interested increasing services for young adults with autism to improve quality of life, although wanted to make sure the service providers would be reliable and trustworthy. Implications from this study may substantially improve the lives of autistic adults in Qatar. En ligne : http://dx.doi.org/10.1177/13623613211020623 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=451 Quality of life of caregivers of children with autism in Qatar / Nadir KHEIR in Autism, 16-3 (May 2012)
[article]
Titre : Quality of life of caregivers of children with autism in Qatar Type de document : Texte imprimé et/ou numérique Auteurs : Nadir KHEIR, Auteur ; Ola GHONEIM, Auteur ; Amy L. SANDRIDGE, Auteur ; Muna AL-ISMAIL, Auteur ; Sara HAYDER, Auteur ; Fadhila AL-RAWI, Auteur Année de publication : 2012 Article en page(s) : p.293-298 Langues : Anglais (eng) Mots-clés : autism caregivers Qatar quality of life Index. décimale : PER Périodiques Résumé : Introduction: Caring for a child diagnosed with autism could affect the quality of life of the caregiver in various different ways. No previous research has assessed the quality of lives of caregivers of children with autism in Qatar.
Methods: Caregivers of a child with autism between 3 and 17 years old were recruited from child rehabilitation clinics in Qatar. The non-autism group was represented by caregivers of a typically growing child visiting a primary health care facility for a routine medical examination. Data collected from both groups included demographic and quality of life information for caregivers.
Results: A total of 98 participants consented to take part in the study. Fifty-six of these were caregivers of a child with autism and 42 were caregivers of a typically growing child. There was no significant difference between quality of life domains between the two groups of caregivers, but caregivers of autistic children rated their health as poor and likely to get worse (p < 0.05).
Conclusions: This study provided some evidence for the impact of caring for a child with autism on the life of the caregiver. The findings should help health policy-makers in Qatar to provide better and more focused support to children with autism and their caregivers.En ligne : http://dx.doi.org/10.1177/1362361311433648 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=166
in Autism > 16-3 (May 2012) . - p.293-298[article] Quality of life of caregivers of children with autism in Qatar [Texte imprimé et/ou numérique] / Nadir KHEIR, Auteur ; Ola GHONEIM, Auteur ; Amy L. SANDRIDGE, Auteur ; Muna AL-ISMAIL, Auteur ; Sara HAYDER, Auteur ; Fadhila AL-RAWI, Auteur . - 2012 . - p.293-298.
Langues : Anglais (eng)
in Autism > 16-3 (May 2012) . - p.293-298
Mots-clés : autism caregivers Qatar quality of life Index. décimale : PER Périodiques Résumé : Introduction: Caring for a child diagnosed with autism could affect the quality of life of the caregiver in various different ways. No previous research has assessed the quality of lives of caregivers of children with autism in Qatar.
Methods: Caregivers of a child with autism between 3 and 17 years old were recruited from child rehabilitation clinics in Qatar. The non-autism group was represented by caregivers of a typically growing child visiting a primary health care facility for a routine medical examination. Data collected from both groups included demographic and quality of life information for caregivers.
Results: A total of 98 participants consented to take part in the study. Fifty-six of these were caregivers of a child with autism and 42 were caregivers of a typically growing child. There was no significant difference between quality of life domains between the two groups of caregivers, but caregivers of autistic children rated their health as poor and likely to get worse (p < 0.05).
Conclusions: This study provided some evidence for the impact of caring for a child with autism on the life of the caregiver. The findings should help health policy-makers in Qatar to provide better and more focused support to children with autism and their caregivers.En ligne : http://dx.doi.org/10.1177/1362361311433648 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=166