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Aging and autism: Do measures of autism symptoms, co-occurring mental health conditions, or quality of life differ between younger and older autistic adults? / Esra ZÄ+vralÄ+ YARAR in Autism Research, 15-8 (August 2022)
[article]
Titre : Aging and autism: Do measures of autism symptoms, co-occurring mental health conditions, or quality of life differ between younger and older autistic adults? Type de document : Texte imprimé et/ou numérique Auteurs : Esra ZÄ+vralÄ+ YARAR, Auteur ; Amanda ROESTORF, Auteur ; Debbie SPAIN, Auteur ; Patricia HOWLIN, Auteur ; Dermot BOWLER, Auteur ; Rebecca CHARLTON, Auteur ; Francesca HAPPE, Auteur Article en page(s) : p.1482-1494 Langues : Anglais (eng) Mots-clés : Adult Aging Autism Spectrum Disorder/complications/epidemiology/psychology Autistic Disorder/complications/epidemiology/psychology Cross-Sectional Studies Humans Mental Health Quality of Life/psychology adults autism spectrum disorder quality of life Index. décimale : PER Périodiques Résumé : Previous research has indicated that autistic adults experience higher rates of co-occurring mental health difficulties and poorer quality of life (QoL) than their non-autistic peers. Little is known, however, about these aspects in older age or whether younger and older autistic adults experience similar patterns This cross-sectional study investigated potential age-related effects on autism symptoms, self-reported mental health, and QoL in younger and older autistic adults (n = 79, aged 19-71years) compared to a non-autistic control group (n = 57) matched for gender, age and IQ. Results showed that autistic adults had higher levels of self-reported autism symptoms and poorer QoL than controls. There were no significant age effects on autism symptoms or on most self-rated mental health symptoms. However, significantly more autistic adults in the younger versus older group scored above the clinical threshold for anxiety, somatoform disorders and eating disorders. Older autistic adults rated social QoL as significantly better than younger autistic adults; there was no significant age difference in the control group. Self-reported QoL was best predicted by self-ratings of severity of depressive symptoms in both groups. Further research is needed to track autism and co-occurring mental health symptomatology across the lifespan, so that service provision can be tailored accordingly. LAY SUMMARY: Young autistic adults have reported more psychological difficulties and poorer quality of life (QoL) than the general population. We investigated whether these difficulties continue into older age. Autism symptoms and mental health problems were common in autistic adults, with no difference between age groups, except for anxiety, physical and eating problems. Although QoL was poorer in both younger and older autistic compared to non-autistic adults, older autistic adults reported better social QoL than those who were younger. En ligne : http://dx.doi.org/10.1002/aur.2780 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=483
in Autism Research > 15-8 (August 2022) . - p.1482-1494[article] Aging and autism: Do measures of autism symptoms, co-occurring mental health conditions, or quality of life differ between younger and older autistic adults? [Texte imprimé et/ou numérique] / Esra ZÄ+vralÄ+ YARAR, Auteur ; Amanda ROESTORF, Auteur ; Debbie SPAIN, Auteur ; Patricia HOWLIN, Auteur ; Dermot BOWLER, Auteur ; Rebecca CHARLTON, Auteur ; Francesca HAPPE, Auteur . - p.1482-1494.
Langues : Anglais (eng)
in Autism Research > 15-8 (August 2022) . - p.1482-1494
Mots-clés : Adult Aging Autism Spectrum Disorder/complications/epidemiology/psychology Autistic Disorder/complications/epidemiology/psychology Cross-Sectional Studies Humans Mental Health Quality of Life/psychology adults autism spectrum disorder quality of life Index. décimale : PER Périodiques Résumé : Previous research has indicated that autistic adults experience higher rates of co-occurring mental health difficulties and poorer quality of life (QoL) than their non-autistic peers. Little is known, however, about these aspects in older age or whether younger and older autistic adults experience similar patterns This cross-sectional study investigated potential age-related effects on autism symptoms, self-reported mental health, and QoL in younger and older autistic adults (n = 79, aged 19-71years) compared to a non-autistic control group (n = 57) matched for gender, age and IQ. Results showed that autistic adults had higher levels of self-reported autism symptoms and poorer QoL than controls. There were no significant age effects on autism symptoms or on most self-rated mental health symptoms. However, significantly more autistic adults in the younger versus older group scored above the clinical threshold for anxiety, somatoform disorders and eating disorders. Older autistic adults rated social QoL as significantly better than younger autistic adults; there was no significant age difference in the control group. Self-reported QoL was best predicted by self-ratings of severity of depressive symptoms in both groups. Further research is needed to track autism and co-occurring mental health symptomatology across the lifespan, so that service provision can be tailored accordingly. LAY SUMMARY: Young autistic adults have reported more psychological difficulties and poorer quality of life (QoL) than the general population. We investigated whether these difficulties continue into older age. Autism symptoms and mental health problems were common in autistic adults, with no difference between age groups, except for anxiety, physical and eating problems. Although QoL was poorer in both younger and older autistic compared to non-autistic adults, older autistic adults reported better social QoL than those who were younger. En ligne : http://dx.doi.org/10.1002/aur.2780 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=483 Autism Through the Ages: A Mixed Methods Approach to Understanding How Age and Age of Diagnosis Affect Quality of Life / Gray ATHERTON in Journal of Autism and Developmental Disorders, 52-8 (August 2022)
[article]
Titre : Autism Through the Ages: A Mixed Methods Approach to Understanding How Age and Age of Diagnosis Affect Quality of Life Type de document : Texte imprimé et/ou numérique Auteurs : Gray ATHERTON, Auteur ; Emma EDISBURY, Auteur ; Andrea PIOVESAN, Auteur ; Liam CROSS, Auteur Article en page(s) : p.3639-3654 Langues : Anglais (eng) Mots-clés : Adult Age Factors Autism Spectrum Disorder/diagnosis/psychology Autistic Disorder/diagnosis/psychology Humans Mental Health Quality of Life/psychology Adulthood Autism Autism quotient Mixed methods Quality of life Index. décimale : PER Périodiques Résumé : A significant proportion of autistic adults today were not diagnosed until later in life, a group referred to as the 'lost generation,' which may affect mental health. In Study 1 we explored quality of life and autistic trait levels in 420 autistic and TD adults, and in Study 2 we explored the experiences of 8 autistic adults diagnosed as adults. We found that autistic adults had lower quality of life outcomes and higher autistic trait levels which related to age of diagnosis, and qualitative findings indicated that while adults were empowered by their new diagnosis, they still require specialized supports. Our findings are discussed, emphasizing future directions and implications for the current care system in place for autistic adults. En ligne : http://dx.doi.org/10.1007/s10803-021-05235-x Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=485
in Journal of Autism and Developmental Disorders > 52-8 (August 2022) . - p.3639-3654[article] Autism Through the Ages: A Mixed Methods Approach to Understanding How Age and Age of Diagnosis Affect Quality of Life [Texte imprimé et/ou numérique] / Gray ATHERTON, Auteur ; Emma EDISBURY, Auteur ; Andrea PIOVESAN, Auteur ; Liam CROSS, Auteur . - p.3639-3654.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 52-8 (August 2022) . - p.3639-3654
Mots-clés : Adult Age Factors Autism Spectrum Disorder/diagnosis/psychology Autistic Disorder/diagnosis/psychology Humans Mental Health Quality of Life/psychology Adulthood Autism Autism quotient Mixed methods Quality of life Index. décimale : PER Périodiques Résumé : A significant proportion of autistic adults today were not diagnosed until later in life, a group referred to as the 'lost generation,' which may affect mental health. In Study 1 we explored quality of life and autistic trait levels in 420 autistic and TD adults, and in Study 2 we explored the experiences of 8 autistic adults diagnosed as adults. We found that autistic adults had lower quality of life outcomes and higher autistic trait levels which related to age of diagnosis, and qualitative findings indicated that while adults were empowered by their new diagnosis, they still require specialized supports. Our findings are discussed, emphasizing future directions and implications for the current care system in place for autistic adults. En ligne : http://dx.doi.org/10.1007/s10803-021-05235-x Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=485 Increased perceived stress is negatively associated with activities of daily living and subjective quality of life in younger, middle, and older autistic adults / Goldie A. MCQUAID in Autism Research, 15-8 (August 2022)
[article]
Titre : Increased perceived stress is negatively associated with activities of daily living and subjective quality of life in younger, middle, and older autistic adults Type de document : Texte imprimé et/ou numérique Auteurs : Goldie A. MCQUAID, Auteur ; Colin H. WEISS, Auteur ; Alex Job SAID, Auteur ; Kevin A. PELPHREY, Auteur ; Nancy Raitano LEE, Auteur ; Gregory L. WALLACE, Auteur Article en page(s) : p.1535-1549 Langues : Anglais (eng) Mots-clés : Activities of Daily Living Adult Aged Autism Spectrum Disorder/psychology Autistic Disorder/psychology Female Humans Infant, Newborn Male Quality of Life/psychology Stress, Psychological/complications/epidemiology/psychology adulthood autism perceived stress subjective quality of life Index. décimale : PER Périodiques Résumé : Few studies have examined self-reported perceived stress in autistic adults. Existing studies have included relatively small, predominantly male samples and have not included older autistic adults. Using a large autistic sample (NÂ =Â 713), enriched for individuals designated female at birth (59.3%), and spanning younger, middle, and older adulthood, we examined perceived stress and its associations with independence in activities of daily living and subjective quality of life (QoL). Perceived stress for autistic adults designated male or female at birth was compared to their same birth-sex counterparts in a general population sample. In addition, within the autistic sample, effects of sex designated at birth, age, and their interaction were examined. Regression modeling examined associations between perceived stress and independence in activities of daily living and domains of subjective QoL in autistic adults, after controlling for age, sex designated at birth, and household income. Autistic adults reported significantly greater perceived stress than a general population comparison sample. Relative to autistic adults designated male at birth, those designated female at birth demonstrated significantly elevated perceived stress. Perceived stress contributed significantly to all regression models, with greater perceived stress associated with less independence in activities of daily living, and poorer subjective QoL across all domains-Physical, Psychological, Social, Environment, and Autism-related QoL. Findings are contextualized within the literature documenting that autistic individuals experience elevated underemployment and unemployment, heightened rates of adverse life events, and increased exposure to minority stress. LAY SUMMARY: This study looked at self-reported perceived stress in a large sample of autistic adults. Autistic adults reported more perceived stress than non-autistic adults. Autistic individuals designated female at birth reported higher stress than autistic individuals designated male at birth. In autistic adults, greater perceived stress is related to less independence in activities of daily living and poorer subjective quality of life. En ligne : http://dx.doi.org/10.1002/aur.2779 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=483
in Autism Research > 15-8 (August 2022) . - p.1535-1549[article] Increased perceived stress is negatively associated with activities of daily living and subjective quality of life in younger, middle, and older autistic adults [Texte imprimé et/ou numérique] / Goldie A. MCQUAID, Auteur ; Colin H. WEISS, Auteur ; Alex Job SAID, Auteur ; Kevin A. PELPHREY, Auteur ; Nancy Raitano LEE, Auteur ; Gregory L. WALLACE, Auteur . - p.1535-1549.
Langues : Anglais (eng)
in Autism Research > 15-8 (August 2022) . - p.1535-1549
Mots-clés : Activities of Daily Living Adult Aged Autism Spectrum Disorder/psychology Autistic Disorder/psychology Female Humans Infant, Newborn Male Quality of Life/psychology Stress, Psychological/complications/epidemiology/psychology adulthood autism perceived stress subjective quality of life Index. décimale : PER Périodiques Résumé : Few studies have examined self-reported perceived stress in autistic adults. Existing studies have included relatively small, predominantly male samples and have not included older autistic adults. Using a large autistic sample (NÂ =Â 713), enriched for individuals designated female at birth (59.3%), and spanning younger, middle, and older adulthood, we examined perceived stress and its associations with independence in activities of daily living and subjective quality of life (QoL). Perceived stress for autistic adults designated male or female at birth was compared to their same birth-sex counterparts in a general population sample. In addition, within the autistic sample, effects of sex designated at birth, age, and their interaction were examined. Regression modeling examined associations between perceived stress and independence in activities of daily living and domains of subjective QoL in autistic adults, after controlling for age, sex designated at birth, and household income. Autistic adults reported significantly greater perceived stress than a general population comparison sample. Relative to autistic adults designated male at birth, those designated female at birth demonstrated significantly elevated perceived stress. Perceived stress contributed significantly to all regression models, with greater perceived stress associated with less independence in activities of daily living, and poorer subjective QoL across all domains-Physical, Psychological, Social, Environment, and Autism-related QoL. Findings are contextualized within the literature documenting that autistic individuals experience elevated underemployment and unemployment, heightened rates of adverse life events, and increased exposure to minority stress. LAY SUMMARY: This study looked at self-reported perceived stress in a large sample of autistic adults. Autistic adults reported more perceived stress than non-autistic adults. Autistic individuals designated female at birth reported higher stress than autistic individuals designated male at birth. In autistic adults, greater perceived stress is related to less independence in activities of daily living and poorer subjective quality of life. En ligne : http://dx.doi.org/10.1002/aur.2779 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=483 Predictors of the Quality of Life of Informal Carers of Adults on the Autism Spectrum / Marisse T. SONIDO in Journal of Autism and Developmental Disorders, 52-7 (July 2022)
[article]
Titre : Predictors of the Quality of Life of Informal Carers of Adults on the Autism Spectrum Type de document : Texte imprimé et/ou numérique Auteurs : Marisse T. SONIDO, Auteur ; Ye In HWANG, Auteur ; Preeyaporn SRASUEBKUL, Auteur ; Julian N. TROLLOR, Auteur ; Samuel R. C. ARNOLD, Auteur Article en page(s) : p.2997-3014 Langues : Anglais (eng) Mots-clés : Adult Australia Autism Spectrum Disorder Autistic Disorder Caregivers/psychology Humans Longitudinal Studies Quality of Life/psychology Adults Autism spectrum disorders Carers Family functioning and support Mental well-being Psychiatric comorbidity Quality of life Index. décimale : PER Périodiques Résumé : Carers of adults on the autism spectrum often experience high levels of stress, worry, and caregiver burden. There are few studies identifying the predictors of carer mental well-being and none have been conducted in Australia. Data from the Autism Cooperative Research Centre for Living with Autism's Australian Longitudinal Study of Autism in Adulthood was used to test the conceptual model by Sonido et al. (Rev J Autism Dev Disord, 2019, https://doi.org/10.1007/s40489-019-00177-8 ) by (a) identifying the predictors of mental well-being for carers of adults on the spectrum, (b) using model selection to determine which predictors contribute to the model of best fit, and (c) testing for mediating relationships between the predictors. Several predictors were directly associated with carer psychological quality of life, including carer age, care recipient intellectual disability, and carer intolerance of uncertainty. Model selection strongly supported the inclusion of most clusters from the conceptual model. Some mediating relationships were found, such as care recipient depressive behaviours mediating the relationships between caregiver burden and psychological quality of life. Future studies of the conceptual model will improve understanding of the predictors of carer mental well-being and enable tailored interventions to improve the psychological health of carers of adults on the autism spectrum. En ligne : http://dx.doi.org/10.1007/s10803-021-05178-3 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=477
in Journal of Autism and Developmental Disorders > 52-7 (July 2022) . - p.2997-3014[article] Predictors of the Quality of Life of Informal Carers of Adults on the Autism Spectrum [Texte imprimé et/ou numérique] / Marisse T. SONIDO, Auteur ; Ye In HWANG, Auteur ; Preeyaporn SRASUEBKUL, Auteur ; Julian N. TROLLOR, Auteur ; Samuel R. C. ARNOLD, Auteur . - p.2997-3014.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 52-7 (July 2022) . - p.2997-3014
Mots-clés : Adult Australia Autism Spectrum Disorder Autistic Disorder Caregivers/psychology Humans Longitudinal Studies Quality of Life/psychology Adults Autism spectrum disorders Carers Family functioning and support Mental well-being Psychiatric comorbidity Quality of life Index. décimale : PER Périodiques Résumé : Carers of adults on the autism spectrum often experience high levels of stress, worry, and caregiver burden. There are few studies identifying the predictors of carer mental well-being and none have been conducted in Australia. Data from the Autism Cooperative Research Centre for Living with Autism's Australian Longitudinal Study of Autism in Adulthood was used to test the conceptual model by Sonido et al. (Rev J Autism Dev Disord, 2019, https://doi.org/10.1007/s40489-019-00177-8 ) by (a) identifying the predictors of mental well-being for carers of adults on the spectrum, (b) using model selection to determine which predictors contribute to the model of best fit, and (c) testing for mediating relationships between the predictors. Several predictors were directly associated with carer psychological quality of life, including carer age, care recipient intellectual disability, and carer intolerance of uncertainty. Model selection strongly supported the inclusion of most clusters from the conceptual model. Some mediating relationships were found, such as care recipient depressive behaviours mediating the relationships between caregiver burden and psychological quality of life. Future studies of the conceptual model will improve understanding of the predictors of carer mental well-being and enable tailored interventions to improve the psychological health of carers of adults on the autism spectrum. En ligne : http://dx.doi.org/10.1007/s10803-021-05178-3 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=477 A Psychometric Evaluation of the Quality of Life for Children with Autism Spectrum Disorder Scale / Laura C. CHEZAN in Journal of Autism and Developmental Disorders, 52-4 (April 2022)
[article]
Titre : A Psychometric Evaluation of the Quality of Life for Children with Autism Spectrum Disorder Scale Type de document : Texte imprimé et/ou numérique Auteurs : Laura C. CHEZAN, Auteur ; Jin LIU, Auteur ; Judith M. CHOLEWICKI, Auteur ; Erik DRASGOW, Auteur ; Ruyi DING, Auteur ; Adam WARMAN, Auteur Article en page(s) : p.1536-1552 Langues : Anglais (eng) Mots-clés : Autism Spectrum Disorder/diagnosis/psychology Child Factor Analysis, Statistical Humans Psychometrics/methods Quality of Life/psychology Reproducibility of Results Surveys and Questionnaires Autism spectrum disorder Children Factor analysis Quality of life Validation Index. décimale : PER Périodiques Résumé : Our purpose in this study was to validate the Quality of Life for Children with Autism Spectrum Disorder scale. We first conducted an exploratory factor analysis to examine the factor structure. Results suggested that a three-factor model (Interpersonal Relationships, Self-Determination, and Emotional Well-Being) should be retained. Next, we conducted a confirmatory factor analysis to compare a higher-order factor model and additional models. Results showed acceptable model fit for the higher-order factor model. The scale had excellent reliability (?=.90) for the overall scale and for the three subscales (Interpersonal Relationships, ?=.87; Self-Determination, ?=.81; and Emotional Well-Being, ?=.66). The 16-item scale showed convergent and divergent validity. Implications for future research and practice are discussed. En ligne : http://dx.doi.org/10.1007/s10803-021-05048-y Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=475
in Journal of Autism and Developmental Disorders > 52-4 (April 2022) . - p.1536-1552[article] A Psychometric Evaluation of the Quality of Life for Children with Autism Spectrum Disorder Scale [Texte imprimé et/ou numérique] / Laura C. CHEZAN, Auteur ; Jin LIU, Auteur ; Judith M. CHOLEWICKI, Auteur ; Erik DRASGOW, Auteur ; Ruyi DING, Auteur ; Adam WARMAN, Auteur . - p.1536-1552.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 52-4 (April 2022) . - p.1536-1552
Mots-clés : Autism Spectrum Disorder/diagnosis/psychology Child Factor Analysis, Statistical Humans Psychometrics/methods Quality of Life/psychology Reproducibility of Results Surveys and Questionnaires Autism spectrum disorder Children Factor analysis Quality of life Validation Index. décimale : PER Périodiques Résumé : Our purpose in this study was to validate the Quality of Life for Children with Autism Spectrum Disorder scale. We first conducted an exploratory factor analysis to examine the factor structure. Results suggested that a three-factor model (Interpersonal Relationships, Self-Determination, and Emotional Well-Being) should be retained. Next, we conducted a confirmatory factor analysis to compare a higher-order factor model and additional models. Results showed acceptable model fit for the higher-order factor model. The scale had excellent reliability (?=.90) for the overall scale and for the three subscales (Interpersonal Relationships, ?=.87; Self-Determination, ?=.81; and Emotional Well-Being, ?=.66). The 16-item scale showed convergent and divergent validity. Implications for future research and practice are discussed. En ligne : http://dx.doi.org/10.1007/s10803-021-05048-y Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=475